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Sample records for genetic privacy act

  1. The Genetic Privacy Act and commentary

    Energy Technology Data Exchange (ETDEWEB)

    Annas, G.J.; Glantz, L.H.; Roche, P.A.

    1995-02-28

    The Genetic Privacy Act is a proposal for federal legislation. The Act is based on the premise that genetic information is different from other types of personal information in ways that require special protection. Therefore, to effectively protect genetic privacy unauthorized collection and analysis of individually identifiable DNA must be prohibited. As a result, the premise of the Act is that no stranger should have or control identifiable DNA samples or genetic information about an individual unless that individual specifically authorizes the collection of DNA samples for the purpose of genetic analysis, authorized the creation of that private information, and has access to and control over the dissemination of that information.

  2. The Genetic Privacy Act and commentary

    Energy Technology Data Exchange (ETDEWEB)

    Annas, G.J.; Glantz, L.H.; Roche, P.A.

    1995-02-28

    The Genetic Privacy Act is a proposal for federal legislation. The Act is based on the premise that genetic information is different from other types of personal information in ways that require special protection. The DNA molecule holds an extensive amount of currently indecipherable information. The major goal of the Human Genome Project is to decipher this code so that the information it contains is accessible. The privacy question is, accessible to whom? The highly personal nature of the information contained in DNA can be illustrated by thinking of DNA as containing an individual`s {open_quotes}future diary.{close_quotes} A diary is perhaps the most personal and private document a person can create. It contains a person`s innermost thoughts and perceptions, and is usually hidden and locked to assure its secrecy. Diaries describe the past. The information in one`s genetic code can be thought of as a coded probabilistic future diary because it describes an important part of a unique and personal future. This document presents an introduction to the proposal for federal legislation `the Genetic Privacy Act`; a copy of the proposed act; and comment.

  3. 75 FR 63703 - Privacy Act of 1974; Privacy Act Regulation

    Science.gov (United States)

    2010-10-18

    ... FEDERAL RESERVE SYSTEM 12 CFR Part 261a [Docket No. R-1313] Privacy Act of 1974; Privacy Act... implementing the Privacy Act of 1974 (Privacy Act). The primary changes concern the waiver of copying fees... records under the Privacy Act; the amendment of special procedures for the release of medical records to...

  4. Genetic privacy.

    Science.gov (United States)

    Sankar, Pamela

    2003-01-01

    During the past 10 years, the number of genetic tests performed more than tripled, and public concern about genetic privacy emerged. The majority of states and the U.S. government have passed regulations protecting genetic information. However, research has shown that concerns about genetic privacy are disproportionate to known instances of information misuse. Beliefs in genetic determinacy explain some of the heightened concern about genetic privacy. Discussion of the debate over genetic testing within families illustrates the most recent response to genetic privacy concerns.

  5. 76 FR 64115 - Privacy Act of 1974; Privacy Act System of Records

    Science.gov (United States)

    2011-10-17

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-092)] Privacy Act of 1974; Privacy Act... retirement of one Privacy Act system of records notice. SUMMARY: In accordance with the Privacy Act of 1974, NASA is giving notice that it proposes to cancel the following Privacy Act system of records notice...

  6. 75 FR 81205 - Privacy Act: Revision of Privacy Act Systems of Records

    Science.gov (United States)

    2010-12-27

    ... DEPARTMENT OF AGRICULTURE Office of the Secretary Privacy Act: Revision of Privacy Act Systems of Records AGENCY: Office of the Secretary, USDA. ACTION: Notice to Revise Privacy Act Systems of Records... two Privacy Act Systems of Records entitled ``Information on Persons Disqualified from the...

  7. 78 FR 40515 - Privacy Act of 1974; Privacy Act System of Records

    Science.gov (United States)

    2013-07-05

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice 13-071] Privacy Act of 1974; Privacy Act System of Records AGENCY: National Aeronautics and Space Administration (NASA). ACTION: Notice of Privacy Act system of records. SUMMARY: Each Federal agency is required by the Privacy Act of 1974 to publish...

  8. 78 FR 77503 - Privacy Act of 1974; Privacy Act System of Records

    Science.gov (United States)

    2013-12-23

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice 13-149] Privacy Act of 1974; Privacy Act... proposed revisions to existing Privacy Act systems of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  9. 76 FR 67763 - Privacy Act of 1974; Privacy Act System of Records

    Science.gov (United States)

    2011-11-02

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-109)] Privacy Act of 1974; Privacy Act... proposed revisions to an existing Privacy Act system of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  10. 76 FR 64114 - Privacy Act of 1974; Privacy Act System of Records

    Science.gov (United States)

    2011-10-17

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-093)] Privacy Act of 1974; Privacy Act... proposed revisions to an existing Privacy Act system of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  11. 77 FR 69898 - Privacy Act of 1974; Privacy Act System of Records

    Science.gov (United States)

    2012-11-21

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice 12-100] Privacy Act of 1974; Privacy Act... proposed revisions to an existing Privacy Act system of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  12. Disclosure 'downunder': misadventures in Australian genetic privacy law.

    Science.gov (United States)

    Bonython, Wendy; Arnold, Bruce

    2014-03-01

    Along with many jurisdictions, Australia is struggling with the unique issues raised by genetic information in the context of privacy laws and medical ethics. Although the consequences of disclosure of most private information are generally confined to individuals, disclosure of genetic information has far-reaching consequences, with a credible argument that genetic relatives have a right to know about potential medical conditions. In 2006, the Privacy Act was amended to permit disclosure of an individual's genetic information, without their consent, to genetic relatives, if it was to avoid or mitigate serious illness. Unfortunately, additional amendments required for operation of the disclosure amendment were overlooked. Public Interest Determinations (PIDs)-delegated legislation issued by the privacy commissioner-have, instead, been used to exempt healthcare providers from provisions which would otherwise make disclosure unlawful. This paper critiques the PIDs using documents obtained under the Freedom of Information Act-specifically the impact of both the PIDs and the disclosure amendment on patients and relatives-and confidentiality and the procedural validity of subordinate laws regulating medical privacy.

  13. 76 FR 64112 - Privacy Act of 1974; Privacy Act System of Records Appendices

    Science.gov (United States)

    2011-10-17

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-091)] Privacy Act of 1974; Privacy Act...: Revisions of NASA Appendices to Privacy Act System of Records. SUMMARY: Notice is hereby given that NASA is... Privacy Act of 1974. This notice publishes those amendments as set forth below under the caption...

  14. Modifications to the HIPAA Privacy, Security, Enforcement, and Breach Notification rules under the Health Information Technology for Economic and Clinical Health Act and the Genetic Information Nondiscrimination Act; other modifications to the HIPAA rules.

    Science.gov (United States)

    2013-01-25

    The Department of Health and Human Services (HHS or ``the Department'') is issuing this final rule to: Modify the Health Insurance Portability and Accountability Act (HIPAA) Privacy, Security, and Enforcement Rules to implement statutory amendments under the Health Information Technology for Economic and Clinical Health Act (``the HITECH Act'' or ``the Act'') to strengthen the privacy and security protection for individuals' health information; modify the rule for Breach Notification for Unsecured Protected Health Information (Breach Notification Rule) under the HITECH Act to address public comment received on the interim final rule; modify the HIPAA Privacy Rule to strengthen the privacy protections for genetic information by implementing section 105 of Title I of the Genetic Information Nondiscrimination Act of 2008 (GINA); and make certain other modifications to the HIPAA Privacy, Security, Breach Notification, and Enforcement Rules (the HIPAA Rules) to improve their workability and effectiveness and to increase flexibility for and decrease burden on the regulated entities.

  15. Protecting genetic privacy.

    Science.gov (United States)

    Roche, P A; Annas, G J

    2001-05-01

    This article outlines the arguments for and against new rules to protect genetic privacy. We explain why genetic information is different to other sensitive medical information, why researchers and biotechnology companies have opposed new rules to protect genetic privacy (and favour anti-discrimination laws instead), and discuss what can be done to protect privacy in relation to genetic-sequence information and to DNA samples themselves.

  16. Developing genetic privacy legislation: the South Carolina experience.

    Science.gov (United States)

    Edwards, J G; Young, S R; Brooks, K A; Aiken, J H; Patterson, E D; Pritchett, S T

    1998-01-01

    The availability of presymptomatic and predisposition genetic testing has spawned the need for legislation prohibiting health insurance discrimination on the basis of genetic information. The federal effort, the Health Insurance Portability and Accountability Act (HIPAA) of 1996, falls short by protecting only those who access insurance through group plans. A committee of University of South Carolina professionals convened in 1996 to develop legislation in support of genetic privacy for the state of South Carolina. The legislation prevents health insurance companies from denying coverage or setting insurance rates on the basis of genetic information. It also protects the privacy of genetic information and prohibits performance of genetic tests without specific informed consent. In preparing the bill, genetic privacy laws from other states were reviewed, and a modified version of the Virginia law adopted. The South Carolina Committee for the Protection of Genetic Privacy version went a step further by including enforcement language and excluding Virginia's sunset clause. The definition of genetic information encompassed genetic test results, and importantly, includes family history of genetic disease. Our experience in navigating through the state legislature and working through opposition from the health insurance lobby is detailed herein.

  17. Privacy Act

    Science.gov (United States)

    Learn about the Privacy Act of 1974, the Electronic Government Act of 2002, the Federal Information Security Management Act, and other information about the Environmental Protection Agency maintains its records.

  18. 76 FR 59073 - Privacy Act

    Science.gov (United States)

    2011-09-23

    ... CENTRAL INTELLIGENCE AGENCY 32 CFR Part 1901 Privacy Act AGENCY: Central Intelligence Agency. ACTION: Proposed rule. SUMMARY: Consistent with the Privacy Act (PA), the Central Intelligence Agency...-1379. SUPPLEMENTARY INFORMATION: Consistent with the Privacy Act (PA), the CIA has undertaken and...

  19. 77 FR 67348 - Privacy Act of 1974; System of Records-Alternative Dispute Resolution (ADR) Center Case Tracking...

    Science.gov (United States)

    2012-11-09

    ....S.C. 791 et seq.; the Equal Pay Act, 29 U.S.C. 206(d); the Genetic Information Nondiscrimination Act... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records--Alternative Dispute Resolution... with the Privacy Act of 1974, as amended, 5 U.S.C. 552a (Privacy Act), the Department of Education...

  20. 45 CFR 503.1 - Definitions-Privacy Act.

    Science.gov (United States)

    2010-10-01

    ... 45 Public Welfare 3 2010-10-01 2010-10-01 false Definitions-Privacy Act. 503.1 Section 503.1... THE UNITED STATES, DEPARTMENT OF JUSTICE RULES OF PRACTICE PRIVACY ACT AND GOVERNMENT IN THE SUNSHINE REGULATIONS Privacy Act Regulations § 503.1 Definitions—Privacy Act. For the purpose of this part: Agency...

  1. Disclosing genetic information to at-risk relatives: new Australian privacy principles, but uniformity still elusive.

    Science.gov (United States)

    Otlowski, Margaret F A

    2015-04-06

    There is growing understanding of the need for genetic information to be shared with genetic relatives in some circumstances. Since 2006, s 95AA of the Privacy Act 1988 (Cwlth) has permitted the disclosure of genetic information to genetic relatives without the patient's consent, provided that the health practitioner reasonably believes that disclosure is necessary to lessen or prevent a serious threat to the life, health or safety of the genetic relatives. Enabling guidelines were introduced in 2009. These were limited to the private sector, and excluded doctors working in the public sector at both Commonwealth and state and territory levels. Privacy legislation was amended in March 2014, and new Australian Privacy Principles, which replace the National Privacy Principles and Information Privacy Principles, now cover the collection and use of personal information. The Privacy Act and the Australian Privacy Principles now extend to practitioners employed by the Commonwealth but not to health practitioners working in state and territory public hospitals. In this article, I review these legislative developments and highlight the implications of the lack of uniformity and the consequent need for a collaborative, uniform approach by states and territories.

  2. 31 CFR 0.216 - Privacy Act.

    Science.gov (United States)

    2010-07-01

    ... 31 Money and Finance: Treasury 1 2010-07-01 2010-07-01 false Privacy Act. 0.216 Section 0.216... RULES OF CONDUCT Rules of Conduct § 0.216 Privacy Act. Employees involved in the design, development, operation, or maintenance of any system of records or in maintaining records subject to the Privacy Act of...

  3. 77 FR 15555 - Freedom of Information Act and Privacy Act Procedures

    Science.gov (United States)

    2012-03-16

    ... Freedom of Information Act and Privacy Act Procedures AGENCY: Special Inspector General for Afghanistan... Freedom of Information Act (FOIA) and the Privacy Act of 1974. These procedures will facilitate public..., Freedom of information, Privacy. Authority and Issuance For the reasons set forth above, SIGAR establishes...

  4. 48 CFR 52.224-2 - Privacy Act.

    Science.gov (United States)

    2010-10-01

    ... 48 Federal Acquisition Regulations System 2 2010-10-01 2010-10-01 false Privacy Act. 52.224-2... AND FORMS SOLICITATION PROVISIONS AND CONTRACT CLAUSES Text of Provisions and Clauses 52.224-2 Privacy... agency function: Privacy Act (APR 1984) (a) The Contractor agrees to— (1) Comply with the Privacy Act of...

  5. 77 FR 33761 - Privacy Act of 1974; Notification to Update an Existing Privacy Act System of Records, “Grievance...

    Science.gov (United States)

    2012-06-07

    ... of a data breach. (See also on HUD's privacy Web site, Appendix I for other ways that the Privacy Act... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-04] Privacy Act of 1974; Notification to Update an Existing Privacy Act System of Records, ``Grievance Records'' AGENCY: Office of the...

  6. The social life of genes: privacy, property and the new genetics.

    Science.gov (United States)

    Everett, Margaret

    2003-01-01

    With the advent of the Human Genome Project and widespread fears over human cloning and medical privacy, a number of states have moved to protect genetic privacy. Oregon's unique Genetic Privacy Act of 1995, which declared that an individual had property rights to their DNA, has provoked national and international interest and controversy. This paper critically reviews the literature on genetic privacy and gene patenting from law, philosophy, science and anthropology. The debate in Oregon, from 1995 to 2001, illustrates many of the key issues in this emerging area. Both sides of the debate invoke the property metaphor, reinforcing deterministic assumptions and avoiding more fundamental questions about the integrity of the body and self-identity. The anthropological critique of the commodification of the body, and the concept of 'embodiment' are useful in analyzing the debate over DNA as property.

  7. 45 CFR 503.2 - General policies-Privacy Act.

    Science.gov (United States)

    2010-10-01

    ... 45 Public Welfare 3 2010-10-01 2010-10-01 false General policies-Privacy Act. 503.2 Section 503.2... THE UNITED STATES, DEPARTMENT OF JUSTICE RULES OF PRACTICE PRIVACY ACT AND GOVERNMENT IN THE SUNSHINE REGULATIONS Privacy Act Regulations § 503.2 General policies—Privacy Act. The Commission will protect the...

  8. Disentangling privacy from property: toward a deeper understanding of genetic privacy.

    Science.gov (United States)

    Suter, Sonia M

    2004-04-01

    With the mapping of the human genome, genetic privacy has become a concern to many. People care about genetic privacy because genes play an important role in shaping us--our genetic information is about us, and it is deeply connected to our sense of ourselves. In addition, unwanted disclosure of our genetic information, like a great deal of other personal information, makes us vulnerable to unwanted exposure, stigmatization, and discrimination. One recent approach to protecting genetic privacy is to create property rights in genetic information. This Article argues against that approach. Privacy and property are fundamentally different concepts. At heart, the term "property" connotes control within the marketplace and over something that is disaggregated or alienable from the self. "Privacy," in contrast, connotes control over access to the self as well as things close to, intimately connected to, and about the self. Given these different meanings, a regime of property rights in genetic information would impoverish our understanding of that information, ourselves, and the relationships we hope will be built around and through its disclosure. This Article explores our interests in genetic information in order to deepen our understanding of the ongoing discourse about the distinction between property and privacy. It develops a conception of genetic privacy with a strong relational component. We ordinarily share genetic information in the context of relationships in which disclosure is important to the relationship--family, intimate, doctor-patient, researcher-participant, employer-employee, and insurer-insured relationships. Such disclosure makes us vulnerable to and dependent on the person to whom we disclose it. As a result, trust is essential to the integrity of these relationships and our sharing of genetic information. Genetic privacy can protect our vulnerability in these relationships and enhance the trust we hope to have in them. Property, in contrast, by

  9. 48 CFR 352.224-70 - Privacy Act.

    Science.gov (United States)

    2010-10-01

    ... 48 Federal Acquisition Regulations System 4 2010-10-01 2010-10-01 false Privacy Act. 352.224-70... SOLICITATION PROVISIONS AND CONTRACT CLAUSES Texts of Provisions and Clauses 352.224-70 Privacy Act. As prescribed in 324.103(b)(2), the Contracting Officer shall insert the following clause: Privacy Act (January...

  10. 10 CFR 1304.103 - Privacy Act inquiries.

    Science.gov (United States)

    2010-01-01

    ... writing may be sent to: Privacy Act Officer, U.S. Nuclear Waste Technical Review Board, 2300 Clarendon... NUCLEAR WASTE TECHNICAL REVIEW BOARD PRIVACY ACT OF 1974 § 1304.103 Privacy Act inquiries. (a) Requests... contains a record pertaining to him or her may file a request in person or in writing, via the internet, or...

  11. 75 FR 36535 - Freedom of Information Act, Privacy Act of 1974; Implementation

    Science.gov (United States)

    2010-06-28

    ... DEPARTMENT OF THE TREASURY Office of the Secretary 31 CFR Part 1 Freedom of Information Act... Freedom of Information Act (FOIA) and its regulations concerning the Privacy Act of 1974 (Privacy Act). It... correct those errors. List of Subjects in 31 CFR Part 1 Freedom of Information; Privacy. 0 Accordingly...

  12. 43 CFR 2.47 - Records subject to Privacy Act.

    Science.gov (United States)

    2010-10-01

    ... 43 Public Lands: Interior 1 2010-10-01 2010-10-01 false Records subject to Privacy Act. 2.47 Section 2.47 Public Lands: Interior Office of the Secretary of the Interior RECORDS AND TESTIMONY; FREEDOM OF INFORMATION ACT Privacy Act § 2.47 Records subject to Privacy Act. The Privacy Act applies to all...

  13. 77 FR 32111 - Privacy Act System of Records

    Science.gov (United States)

    2012-05-31

    ... contacted in order to obtain that office's advice regarding obligations under the Privacy Act; 8. Breach... FEDERAL COMMUNICATIONS COMMISSION Privacy Act System of Records AGENCY: Federal Communications Commission. ACTION: Notice; one new Privacy Act system of records. SUMMARY: Pursuant to subsection (e)(4) of...

  14. 37 CFR 251.23 - FOIA and Privacy Act.

    Science.gov (United States)

    2010-07-01

    ... 37 Patents, Trademarks, and Copyrights 1 2010-07-01 2010-07-01 false FOIA and Privacy Act. 251.23 Section 251.23 Patents, Trademarks, and Copyrights COPYRIGHT OFFICE, LIBRARY OF CONGRESS COPYRIGHT... Access to and Inspection of Records § 251.23 FOIA and Privacy Act. Freedom of Information Act and Privacy...

  15. 32 CFR 806b.4 - Privacy Act complaints.

    Science.gov (United States)

    2010-07-01

    ... be identified, the local Privacy Act officer will assume these duties. Issues that cannot be resolved... 32 National Defense 6 2010-07-01 2010-07-01 false Privacy Act complaints. 806b.4 Section 806b.4 National Defense Department of Defense (Continued) DEPARTMENT OF THE AIR FORCE ADMINISTRATION PRIVACY ACT...

  16. Genetic secrets: Protecting privacy and confidentiality in the genetic era

    Energy Technology Data Exchange (ETDEWEB)

    Rothstein, M.A. [ed.

    1998-07-01

    Few developments are likely to affect human beings more profoundly in the long run than the discoveries resulting from advances in modern genetics. Although the developments in genetic technology promise to provide many additional benefits, their application to genetic screening poses ethical, social, and legal questions, many of which are rooted in issues of privacy and confidentiality. The ethical, practical, and legal ramifications of these and related questions are explored in depth. The broad range of topics includes: the privacy and confidentiality of genetic information; the challenges to privacy and confidentiality that may be projected to result from the emerging genetic technologies; the role of informed consent in protecting the confidentiality of genetic information in the clinical setting; the potential uses of genetic information by third parties; the implications of changes in the health care delivery system for privacy and confidentiality; relevant national and international developments in public policies, professional standards, and laws; recommendations; and the identification of research needs.

  17. Genetic privacy and non-discrimination.

    Science.gov (United States)

    Romeo Casabona, Carlos María

    2011-01-01

    The UN Inter-Agency Committee on Bioethics met for its tenth meeting at the UNESCO headquarters in Paris on 4-5th March 2011. Member organisations such as the WHO and UNESCO were in attendance alongside associate members such as the Council for Europe, the European Commission, the Organisation for Economic Co-operation and Development and the World Trade Organisation. Discussion centred on the theme "genetic privacy and nondiscrimination". The United Nations Economic and Social Council (ECOSOC) had previously considered, from a legal and ethical perspective, the implications of increasingly sophisticated technologies for genetic privacy and non-discrimination in fields such as medicine, employment and insurance. Thus, the ECOSOC requested that UNESCO report on relevant developments in the field of genetic privacy and non-discrimination. In parallel with a consultation process with member states, UNESCO launched a consultation with the UN Interagency Committee on Bioethics. This article analyses the report presented by the author concerning the analysis of the current contentions in the field and illustrates attempts at responding on a normative level to a perceived threat to genetic privacy and non-discrimination.

  18. Privacy and policy for genetic research.

    Science.gov (United States)

    DeCew, Judith Wagner

    2004-01-01

    I begin with a discussion of the value of privacy and what we lose without it. I then turn to the difficulties of preserving privacy for genetic information and other medical records in the face of advanced information technology. I suggest three alternative public policy approaches to the problem of protecting individual privacy and also preserving databases for genetic research: (1) governmental guidelines and centralized databases, (2) corporate self-regulation, and (3) my hybrid approach. None of these are unproblematic; I discuss strengths and drawbacks of each, emphasizing the importance of protecting the privacy of sensitive medical and genetic information as well as letting information technology flourish to aid patient care, public health and scientific research.

  19. 77 FR 61275 - Privacy Act of 1974: Implementation

    Science.gov (United States)

    2012-10-09

    ... (FBI) Privacy Act system of records titled FBI Data Warehouse System, JUSTICE/FBI- 022. This system is...)(G), (H), and (I), (5), and (8); (f); and (g) of the Privacy Act: (1) FBI Data Warehouse System... security; disclose information that would constitute an unwarranted invasion of another's personal privacy...

  20. 32 CFR 701.109 - Privacy Act (PA) appeals.

    Science.gov (United States)

    2010-07-01

    ... 32 National Defense 5 2010-07-01 2010-07-01 false Privacy Act (PA) appeals. 701.109 Section 701... OF THE NAVY DOCUMENTS AFFECTING THE PUBLIC DON Privacy Program § 701.109 Privacy Act (PA) appeals. (a... commence when the appeal reaches the office of the review authority having jurisdiction over the record...

  1. An overview of human genetic privacy.

    Science.gov (United States)

    Shi, Xinghua; Wu, Xintao

    2017-01-01

    The study of human genomics is becoming a Big Data science, owing to recent biotechnological advances leading to availability of millions of personal genome sequences, which can be combined with biometric measurements from mobile apps and fitness trackers, and of human behavior data monitored from mobile devices and social media. With increasing research opportunities for integrative genomic studies through data sharing, genetic privacy emerges as a legitimate yet challenging concern that needs to be carefully addressed, not only for individuals but also for their families. In this paper, we present potential genetic privacy risks and relevant ethics and regulations for sharing and protecting human genomics data. We also describe the techniques for protecting human genetic privacy from three broad perspectives: controlled access, differential privacy, and cryptographic solutions. © 2016 New York Academy of Sciences.

  2. An overview of human genetic privacy

    Science.gov (United States)

    Shi, Xinghua; Wu, Xintao

    2016-01-01

    The study of human genomics is becoming a Big Data science, owing to recent biotechnological advances leading to availability of millions of personal genome sequences, which can be combined with biometric measurements from mobile apps and fitness trackers, and of human behavior data monitored from mobile devices and social media. With increasing research opportunities for integrative genomic studies through data sharing, genetic privacy emerges as a legitimate yet challenging concern that needs to be carefully addressed, not only for individuals but also for their families. In this paper, we present potential genetic privacy risks and relevant ethics and regulations for sharing and protecting human genomics data. We also describe the techniques for protecting human genetic privacy from three broad perspectives: controlled access, differential privacy, and cryptographic solutions. PMID:27626905

  3. Routes for breaching and protecting genetic privacy.

    Science.gov (United States)

    Erlich, Yaniv; Narayanan, Arvind

    2014-06-01

    We are entering an era of ubiquitous genetic information for research, clinical care and personal curiosity. Sharing these data sets is vital for progress in biomedical research. However, a growing concern is the ability to protect the genetic privacy of the data originators. Here, we present an overview of genetic privacy breaching strategies. We outline the principles of each technique, indicate the underlying assumptions, and assess their technological complexity and maturation. We then review potential mitigation methods for privacy-preserving dissemination of sensitive data and highlight different cases that are relevant to genetic applications.

  4. 32 CFR 505.3 - Privacy Act systems of records.

    Science.gov (United States)

    2010-07-01

    ... anticipated threats or hazards to the security or integrity of data, which could result in substantial harm... 32 National Defense 3 2010-07-01 2010-07-01 true Privacy Act systems of records. 505.3 Section 505... AND PUBLIC RELATIONS ARMY PRIVACY ACT PROGRAM § 505.3 Privacy Act systems of records. (a) Systems of...

  5. 76 FR 51869 - Privacy Act Implementation

    Science.gov (United States)

    2011-08-19

    ... permanent residence. Maintain includes collect, use, disseminate, or control. Privacy Act means the Privacy... announces the creation, deletion, or amendment of one or more system of records. System of records notices... reference and university libraries or electronically at the [[Page 51873

  6. 77 FR 74851 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-12-18

    ... FEDERAL DEPOSIT INSURANCE CORPORATION Privacy Act of 1974; System of Records AGENCY: Federal Deposit Insurance Corporation. ACTION: Notice to Delete a System of Records. SUMMARY: In accordance with the requirements of the Privacy Act of 1974, as amended (Privacy Act), the Federal Deposit Insurance...

  7. 75 FR 20346 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-04-19

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Federal Student Aid, Department of Education. ACTION: Notice of an altered system of records. SUMMARY: In accordance with the Privacy Act of 1974, as amended (Privacy Act), 5 United States Code (U.S.C.) 552a, the Chief Operating...

  8. 77 FR 56676 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-09-13

    ... of records to account for the previous omission of an accounting of disclosure when records may be.... Accounting of disclosure records: The date, nature, and purpose of each disclosure of a Privacy Act covered..., including FOIA and Privacy Act requests, and to comply with FOIA and Privacy Act disclosure accounting and...

  9. Genetic secrets: Protecting privacy and confidentiality in the genetic era. Final report

    Energy Technology Data Exchange (ETDEWEB)

    Rothstein, M.A. [ed.

    1998-09-01

    Few developments are likely to affect human beings more profoundly in the long run than the discoveries resulting from advances in modern genetics. Although the developments in genetic technology promise to provide many additional benefits, their application to genetic screening poses ethical, social, and legal questions, many of which are rooted in issues of privacy and confidentiality. The ethical, practical, and legal ramifications of these and related questions are explored in depth. The broad range of topics includes: the privacy and confidentiality of genetic information; the challenges to privacy and confidentiality that may be projected to result from the emerging genetic technologies; the role of informed consent in protecting the confidentiality of genetic information in the clinical setting; the potential uses of genetic information by third parties; the implications of changes in the health care delivery system for privacy and confidentiality; relevant national and international developments in public policies, professional standards, and laws; recommendations; and the identification of research needs.

  10. 78 FR 23810 - Privacy Act System of Records

    Science.gov (United States)

    2013-04-22

    ... SMALL BUSINESS ADMINISTRATION Privacy Act System of Records AGENCY: Small Business Administration. ACTION: Notice of new Privacy Act system of records and request for comment. SUMMARY: The Small Business... the protected information collected from applicants and participants in the Small Business Innovation...

  11. 75 FR 53262 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-08-31

    ... a new Privacy Act system of records, JUSTICE/FBI- 021, the Data Integration and Visualization System... provisions of the Privacy Act in order to avoid interference with the national security and criminal law...)(G), (H) and (I); (e)(5) and (8); (f) and (g) of the Privacy Act: (1) Data Integration and...

  12. Routes for breaching and protecting genetic privacy

    OpenAIRE

    Erlich, Yaniv; Narayanan, Arvind

    2013-01-01

    We are entering an era of ubiquitous genetic information for research, clinical care and personal curiosity. Sharing these datasets is vital for progress in biomedical research. However, one growing concern is the ability to protect the genetic privacy of the data originators. Here, we present an overview of genetic privacy breaching strategies. We outline the principles of each technique, point to the underlying assumptions, and assess its technological complexity and maturati...

  13. 76 FR 72325 - Privacy Act; Exempt Record System

    Science.gov (United States)

    2011-11-23

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES 45 CFR Part 5b RIN 0906-AA91 Privacy Act; Exempt Record... are guaranteed access to, and correction rights for, substantive information reported to the NPDB. The procedures, appearing in 45 CFR part 60, use the Privacy Act access and correction procedures as a basic...

  14. 76 FR 35050 - Privacy Act of 1974: New System of Records

    Science.gov (United States)

    2011-06-15

    .../Central-15, Health Claims Data Warehouse, to its inventory of records systems subject to the Privacy Act.... The data warehouse will be fully compliant with all applicable provisions of the Privacy Act, Health... fully compliant with all applicable provisions of the Privacy Act, Federal Information Security...

  15. 77 FR 48984 - Privacy Act of 1974; System of Records Notice

    Science.gov (United States)

    2012-08-15

    ... Privacy Act systems, to facilitate their ability to respond to data security breach incidents (see OMB... DEPARTMENT OF HEALTH AND HUMAN SERVICES Privacy Act of 1974; System of Records Notice AGENCY...: In accordance with the requirements of the Privacy Act of 1974, HHS gives notice of a proposed...

  16. 76 FR 11435 - Privacy Act of 1974; Computer Matching Program

    Science.gov (United States)

    2011-03-02

    ... Security Administration. SUMMARY: Pursuant to the Computer Matching and Privacy Protection Act of 1988, Public Law 100-503, the Computer Matching and Privacy Protections Amendments of 1990, Pub. L. 101-508... Interpreting the Provisions of Public Law 100-503, the Computer Matching and Privacy Protection Act of 1988...

  17. 38 CFR 20.1200 - Rule 1200. Privacy Act request-appeal pending.

    Science.gov (United States)

    2010-07-01

    ... 38 Pensions, Bonuses, and Veterans' Relief 2 2010-07-01 2010-07-01 false Rule 1200. Privacy Act request-appeal pending. 20.1200 Section 20.1200 Pensions, Bonuses, and Veterans' Relief DEPARTMENT OF.... Privacy Act request—appeal pending. When a Privacy Act request is filed under § 1.577 of this chapter by...

  18. 32 CFR 806b.30 - Evaluating information systems for Privacy Act compliance.

    Science.gov (United States)

    2010-07-01

    ... privacy issues are unchanged. (d) The depth and content of the Privacy Impact Assessment should be... 32 National Defense 6 2010-07-01 2010-07-01 false Evaluating information systems for Privacy Act... FORCE ADMINISTRATION PRIVACY ACT PROGRAM Privacy Impact Assessments § 806b.30 Evaluating information...

  19. 78 FR 15732 - Privacy Act of 1974; Computer Matching Program

    Science.gov (United States)

    2013-03-12

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... Privacy Act of 1974 (5 U.S.C. 552a), as amended by the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection Amendments of 1990 (Pub. L. 101...

  20. 45 CFR 2508.3 - What is the Corporation's Privacy Act policy?

    Science.gov (United States)

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false What is the Corporation's Privacy Act policy? 2508... NATIONAL AND COMMUNITY SERVICE IMPLEMENTATION OF THE PRIVACY ACT OF 1974 § 2508.3 What is the Corporation's Privacy Act policy? It is the policy of the Corporation to protect, preserve, and defend the right of...

  1. Privacy and equality in diagnostic genetic testing.

    Science.gov (United States)

    Nyrhinen, Tarja; Hietala, Marja; Puukka, Pauli; Leino-Kilpi, Helena

    2007-05-01

    This study aimed to determine the extent to which the principles of privacy and equality were observed during diagnostic genetic testing according to views held by patients or child patients' parents (n = 106) and by staff (n = 162) from three Finnish university hospitals. The data were collected through a structured questionnaire and analysed using the SAS 8.1 statistical software. In general, the two principles were observed relatively satisfactorily in clinical practice. According to patients/parents, equality in the post-analytic phase and, according to staff, privacy in the pre-analytic phase, involved the greatest ethical problems. The two groups differed in their views concerning pre-analytic privacy. Although there were no major problems regarding the two principles, the differences between the testing phases require further clarification. To enhance privacy protection and equality, professionals need to be given more genetics/ethics training, and patients individual counselling by genetics units staff, giving more consideration to patients' world-view, the purpose of the test and the test result.

  2. Regulating genetic privacy in the online health information era.

    Science.gov (United States)

    Magnusson, Roger S

    As the clinical implications of the genetic components of disease come to be better understood, there is likely to be a significant increase in the volume of genetic information held within clinical records. As patient health care records, in turn, come on-line as part of broader health information networks, there is likely to be considerable pressure in favour of special laws protecting genetic privacy. This paper reviews some of the privacy challenges posed by electronic health records, some government initiatives in this area, and notes the impact that developments in genetic testing will have upon the 'genetic content' of e-health records. Despite the sensitivity of genetic information, the paper argues against a policy of 'genetic exceptionalism', and its implications for genetic privacy laws.

  3. 77 FR 64962 - Privacy Act of 1974, as Amended

    Science.gov (United States)

    2012-10-24

    ... social media, and recipients of other public relations materials issued by the CFPB about CFPB sponsored... THE BUREAU OF CONSUMER FINANCIAL PROTECTION Privacy Act of 1974, as Amended AGENCY: Bureau of Consumer Financial Protection. ACTION: Notice of Proposed Privacy Act System of Records. SUMMARY: In...

  4. 77 FR 60382 - Privacy Act of 1974, as Amended

    Science.gov (United States)

    2012-10-03

    ... financial products or services, (b) consumer behavior with respect to consumer financial products and... BUREAU OF CONSUMER FINANCIAL PROTECTION Privacy Act of 1974, as Amended AGENCY: Bureau of Consumer... the Privacy Act of 1974, as amended, the Bureau of Consumer Financial Protection, hereinto referred to...

  5. Context trees for privacy-preserving modeling of genetic data

    NARCIS (Netherlands)

    Kusters, C.J.; Ignatenko, T.

    2016-01-01

    In this work, we use context trees for privacypreserving modeling of genetic sequences. The resulting estimated models are applied for functional comparison of genetic sequences in a privacy preserving way. Here we define privacy as uncertainty about the genetic source sequence given its model and

  6. Identifying genetic relatives without compromising privacy.

    Science.gov (United States)

    He, Dan; Furlotte, Nicholas A; Hormozdiari, Farhad; Joo, Jong Wha J; Wadia, Akshay; Ostrovsky, Rafail; Sahai, Amit; Eskin, Eleazar

    2014-04-01

    The development of high-throughput genomic technologies has impacted many areas of genetic research. While many applications of these technologies focus on the discovery of genes involved in disease from population samples, applications of genomic technologies to an individual's genome or personal genomics have recently gained much interest. One such application is the identification of relatives from genetic data. In this application, genetic information from a set of individuals is collected in a database, and each pair of individuals is compared in order to identify genetic relatives. An inherent issue that arises in the identification of relatives is privacy. In this article, we propose a method for identifying genetic relatives without compromising privacy by taking advantage of novel cryptographic techniques customized for secure and private comparison of genetic information. We demonstrate the utility of these techniques by allowing a pair of individuals to discover whether or not they are related without compromising their genetic information or revealing it to a third party. The idea is that individuals only share enough special-purpose cryptographically protected information with each other to identify whether or not they are relatives, but not enough to expose any information about their genomes. We show in HapMap and 1000 Genomes data that our method can recover first- and second-order genetic relationships and, through simulations, show that our method can identify relationships as distant as third cousins while preserving privacy.

  7. 78 FR 46256 - Privacy Act

    Science.gov (United States)

    2013-07-31

    ... FEDERAL ELECTION COMMISSION 11 CFR Part 1 Privacy Act CFR Correction In Title 11 of the Code of Federal Regulations, revised as of January 1, 2012, on page 5, in Sec. 1.2, the words ``95 and 96 of the Internal Revenue Code of 1954.'' are added at the end of the definition of Act. [FR Doc. 2013-18535 Filed 7...

  8. 78 FR 33807 - Privacy Act New System of Records

    Science.gov (United States)

    2013-06-05

    ... DEPARTMENT OF COMMERCE [Docket No. 130520483-3483-01] Privacy Act New System of Records AGENCY... Department's proposal for a new system of records under the Privacy Act. The system is entitled ``Information... Department is creating a new system of records that will enable electronic registration, via the Internet...

  9. Genetic information, non-discrimination, and privacy protections in genetic counseling practice.

    Science.gov (United States)

    Prince, Anya E R; Roche, Myra I

    2014-12-01

    The passage of the Genetic Information Non Discrimination Act (GINA) was hailed as a pivotal achievement that was expected to calm the fears of both patients and research participants about the potential misuse of genetic information. However, 6 years later, patient and provider awareness of legal protections at both the federal and state level remains discouragingly low, thereby, limiting their potential effectiveness. The increasing demand for genetic testing will expand the number of individuals and families who could benefit from obtaining accurate information about the privacy and anti-discriminatory protections that GINA and other laws extend. In this paper we describe legal protections that are applicable to individuals seeking genetic counseling, review the literature on patient and provider fears of genetic discrimination and examine their awareness and understandings of existing laws, and summarize how genetic counselors currently discuss genetic discrimination. We then present three genetic counseling cases to illustrate issues of genetic discrimination and provide relevant information on applicable legal protections. Genetic counselors have an unprecedented opportunity, as well as the professional responsibility, to disseminate accurate knowledge about existing legal protections to their patients. They can strengthen their effectiveness in this role by achieving a greater knowledge of current protections including being able to identify specific steps that can help protect genetic information.

  10. 75 FR 10554 - Privacy Act of 1974; System of Records Notice

    Science.gov (United States)

    2010-03-08

    ..., privacy and security objectives: Provide driver-related MCMIS crash and inspection data electronically... to submit a Freedom of Information Act (FOIA) request or Privacy Act request to FMCSA for the data..., privacy and security objectives are being met. The PSP system will only allow operator-applicants to...

  11. 77 FR 12641 - Privacy Act of 1974; System of Records Notice

    Science.gov (United States)

    2012-03-01

    ..., DC 20590. For privacy issues, please contact: Claire W. Barrett (202-366-8135), Departmental Chief... DEPARTMENT OF TRANSPORTATION Office of the Secretary [Docket No. DOT-RITA-2012-0001] Privacy Act... the Privacy Act of 1974, the Department of Transportation proposes to add a new system of records...

  12. 20 CFR 401.30 - Privacy Act and other responsibilities.

    Science.gov (United States)

    2010-04-01

    ... information privacy issues, including those relating to the collection, use, sharing, and disclosure of... 20 Employees' Benefits 2 2010-04-01 2010-04-01 false Privacy Act and other responsibilities. 401.30 Section 401.30 Employees' Benefits SOCIAL SECURITY ADMINISTRATION PRIVACY AND DISCLOSURE OF...

  13. Ensuring privacy in the study of pathogen genetics.

    Science.gov (United States)

    Mehta, Sanjay R; Vinterbo, Staal A; Little, Susan J

    2014-08-01

    Rapid growth in the genetic sequencing of pathogens in recent years has led to the creation of large sequence databases. This aggregated sequence data can be very useful for tracking and predicting epidemics of infectious diseases. However, the balance between the potential public health benefit and the risk to personal privacy for individuals whose genetic data (personal or pathogen) are included in such work has been difficult to delineate, because neither the true benefit nor the actual risk to participants has been adequately defined. Existing approaches to minimise the risk of privacy loss to participants are based on de-identification of data by removal of a predefined set of identifiers. These approaches neither guarantee privacy nor protect the usefulness of the data. We propose a new approach to privacy protection that will quantify the risk to participants, while still maximising the usefulness of the data to researchers. This emerging standard in privacy protection and disclosure control, which is known as differential privacy, uses a process-driven rather than data-centred approach to protecting privacy. Copyright © 2014 Elsevier Ltd. All rights reserved.

  14. 78 FR 41918 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-07-12

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate.... SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records, T7905, entitled...: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act...

  15. 76 FR 77015 - Privacy Act of 1974; Computer Matching Agreement

    Science.gov (United States)

    2011-12-09

    ... DEPARTMENT OF JUSTICE [AAG/A Order No. 001/2011] Privacy Act of 1974; Computer Matching Agreement AGENCY: Department of Justice. ACTION: Notice--computer matching between the Department of Justice and the Internal Revenue Service, Department of Treasury. SUMMARY: In accordance with the Privacy Act of...

  16. 75 FR 33788 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-06-15

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0077] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... on the Internet at http:// [[Page 33789

  17. Democracy and genetic privacy: the value of bodily integrity.

    Science.gov (United States)

    Beckman, Ludvig

    2005-01-01

    The right to genetic privacy is presently being incorporated in legal systems all over the world. It remains largely unclear however what interests and values this right serves to protect. There are many different arguments made in the literature, yet none takes into account the problem of how particular values can be justified given the plurality of moral and religious doctrines in our societies. In this article theories of public reason are used in order to explore how genetic privacy could be justified in a way that is sensitive to the "fact of pluralism". The idea of public reason is specified as the idea that governments should appeal only to values and beliefs that are acceptable to all reasonable citizens in the justification of rights. In examining prevalent arguments for genetic privacy--based on the value of autonomy or on the value of intimacy--it is concluded that they do not meet this requirement. In dealing with this deficiency in the literature, an argument is developed that genetic privacy is fundamental to the democratic participation of all citizens. By referring to the preconditions of democratic citizenship, genetic privacy can be justified in a way that respects the plurality of comprehensive doctrines of morality and religion in contemporary societies.

  18. Privacy of genetic information: a review of the laws in the United States.

    Science.gov (United States)

    Fuller, B; Ip, M

    2001-01-01

    This paper examines the privacy of genetic information and the laws in the United States designed to protect genetic privacy. While all 50 states have laws protecting the privacy of health information, there are many states that have additional laws that carve out additional protections specifically for genetic information. The majority of the individual states have enacted legislation to protect individuals from discrimination on the basis of genetic information, and most of this legislation also has provisions to protect the privacy of genetic information. On the Federal level, there has been no antidiscrimination or genetic privacy legislation. Secretary Donna Shalala of the Department of Health and Human Services has issued proposed regulations to protect the privacy of individually identifiable health information. These regulations encompass individually identifiable health information and do not make specific provisions for genetic information. The variety of laws regarding genetic privacy, some found in statutes to protect health information and some found in statutes to prevent genetic discrimination, presents challenges to those charged with administering and executing these laws.

  19. 78 FR 15731 - Privacy Act of 1974; Computer Matching Program

    Science.gov (United States)

    2013-03-12

    ... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2013-0011] Privacy Act of 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... amended by the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503) and the Computer...

  20. 76 FR 63611 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-10-13

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2011-0025] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... submissions available for public viewing on the Internet at http:// [[Page 63612

  1. 78 FR 1275 - Privacy Act of 1974; Computer Matching Program

    Science.gov (United States)

    2013-01-08

    ... Social Security Administration (Computer Matching Agreement 1071). SUMMARY: In accordance with the Privacy Act of 1974 (5 U.S.C. 552a), as amended by the Computer Matching and Privacy Protection Act of... of its new computer matching program with the Social Security Administration (SSA). DATES: OPM will...

  2. 78 FR 73511 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-12-06

    ... DEPARTMENT OF DEFENSE [Docket ID: USN-2013-0046] Privacy Act of 1974; System of Records AGENCY... Privacy Act of 1974, as amended. The system being deleted is N01500-8, System Name: Personnel and Training... Internet at http://www.regulations.gov as they are received without change, including any personal...

  3. 78 FR 69076 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-11-18

    ... Medical Human Resources System internet (DMHRSi). DHA 12 EDHA 12 Third Party Collection System. DHA 16 DoD... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0216] Privacy Act of 1974... Defense Health Agency's compilation of Privacy Act SORNS. The realignment of the nineteen system...

  4. 76 FR 3098 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2011-01-19

    ... requests and/or records have been referred to the National Security Agency/Central Security Service (NSA..., Department of Defense Privacy Program; NSA/CSS Policy 1-5; NSA/CSS Freedom of Information Act Program; NSA/CSS Policy 1-34; Implementation of the Privacy Act of 1974; NSA/CSS Policy 1-15, Mandatory...

  5. 76 FR 67155 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-10-31

    ... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: The... Federal Register Liaison Officer, Department of Defense. N05000-1 System name: OPNAV Headquarters Web... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID USN-2011-0015] Privacy Act of 1974; System...

  6. 75 FR 22569 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-04-29

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2010-0014] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... Internet at http://www.regulations.gov as they are received without change, including any personal...

  7. 76 FR 37329 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-06-27

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2011-0018] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... public is to make these submissions available for public viewing on the Internet at http://www...

  8. 78 FR 60265 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-10-01

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0201] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  9. 75 FR 33794 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-06-15

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2010-0013] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  10. 78 FR 2418 - Privacy Act; Notification of New Privacy Act System of Records, Pre-Purchase Homeownership...

    Science.gov (United States)

    2013-01-11

    ...); prior experience completing pre-purchase counseling or education; regular access to a computer and... New Privacy Act System of Records, Pre-Purchase Homeownership Counseling Demonstration and Impact... of record is the Pre-Purchase Homeownership Counseling Demonstration and Impact Evaluation Random...

  11. 76 FR 10010 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-02-23

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0020] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... the public is to make these submissions available for public viewing on the Internet at http://www...

  12. 78 FR 52517 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-08-23

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0183] Privacy Act of 1974... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed action will... public is to make these submissions available for public viewing on the Internet at http://www...

  13. 75 FR 22570 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-04-29

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2010-0012] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  14. 76 FR 53420 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2011-08-26

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0097] Privacy Act of 1974... notice in its existing inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a... submissions available for public viewing on the Internet at http://www.regulations.gov as they are [[Page...

  15. 76 FR 11213 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2011-03-01

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2011-OS-0017] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... public is of make these submissions available for public viewing on the Internet at http://www...

  16. 77 FR 37002 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-06-20

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2012-OS-0072] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  17. 76 FR 43993 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-07-22

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0081] Privacy Act of 1974... the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action would be effective... the public is to make these submissions available for public viewing on the Internet at http://www...

  18. 75 FR 39921 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-07-13

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0102] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  19. 78 FR 43869 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-07-22

    ... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID USN-2013-0025] Privacy Act of 1974; System... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  20. 75 FR 17910 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2010-04-08

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0040] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... viewing on the Internet at http://www.regulations.gov as they are received without change, including any...

  1. 76 FR 66698 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-10-27

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0117] Privacy Act of 1974... notice from its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  2. 75 FR 52517 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-08-26

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2010-OS-0117] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  3. 75 FR 33789 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-06-15

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0078] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... on the Internet at http://www.regulations.gov as they are received without change, including any...

  4. 76 FR 45543 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-07-29

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0082] Privacy Act of 1974... subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action will be... the public is to make these submissions available for public viewing on the Internet at http://www...

  5. 77 FR 65539 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-10-29

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2012-OS-0132] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. [[Page... Internet at http://www.regulations.gov as they are received without change, including any personal...

  6. 75 FR 67703 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-11-03

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2010-0024] Privacy Act of 1974; System... record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed... the public is to make these submissions available for public viewing on the Internet at http://www...

  7. 77 FR 60412 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-10-03

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2012-0012] Privacy Act of 1974; System... systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  8. 76 FR 70428 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-11-14

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0120] Privacy Act of 1974... notice from its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  9. 76 FR 62394 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-10-07

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0109] Privacy Act of 1974... notice from its existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a... public is to make these submissions available for public viewing on the Internet at http://www...

  10. 75 FR 10476 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2010-03-08

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2010-OS-0021] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  11. 75 FR 81247 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-12-27

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2010-OS-0168] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... public is to make these submissions available for public viewing on the Internet at http://www...

  12. 75 FR 29728 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-05-27

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0067] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... on the Internet at http://www.regulations.gov as they are received without change, including any...

  13. 76 FR 1411 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-01-10

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2011-0001] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... the public is to make these submissions available for public viewing on the Internet at http://www...

  14. 78 FR 6078 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-01-29

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0011] Privacy Act of 1974... record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed... public is to make these submissions available for public viewing on the Internet at http:// [[Page 6079...

  15. 77 FR 37885 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-06-25

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2012-OS-0074] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  16. 76 FR 60008 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-09-28

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0023] Privacy Act of 1974; System... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  17. 76 FR 82286 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-12-30

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0028] Privacy Act of 1974; System... record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  18. 75 FR 16760 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-04-02

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0037] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  19. 75 FR 17910 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-04-08

    ... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID: USN-2010-0007] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... viewing on the Internet at http://www.regulations.gov as they are received without change, including any...

  20. 77 FR 60400 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-10-03

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2012-OS-0119] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a(r)), as amended. DATES: This... public is to make these submissions available for public viewing on the Internet at http://www...

  1. 75 FR 63824 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-10-18

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2010-0026] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... for public viewing on the Internet at http://www.regulations.gov as they are received without change...

  2. 75 FR 15694 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2010-03-30

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0035] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  3. 75 FR 65456 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-10-25

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0147] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. [[Page... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  4. 77 FR 26260 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-05-03

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2012-OS-0030] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... make these submissions available for public viewing on the Internet at http://www.regulations.gov as...

  5. 77 FR 66442 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-11-05

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2012-OS-0133] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES... Internet at http://www.regulations.gov as they are received without change, including any personal...

  6. 78 FR 14273 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0019] Privacy Act of 1974... record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed... public is to make these submissions available for public viewing on the Internet at http://www...

  7. 75 FR 3714 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-01-22

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0004] Privacy Act of 1974... its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  8. 76 FR 28002 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2011-05-13

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0052] Privacy Act of 1974... existing inventory of records systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES... the public is to make these submissions available for public viewing on the Internet at http://www...

  9. 76 FR 39394 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-07-06

    ... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID USN-2011-0010] Privacy Act of 1974; System... systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  10. 77 FR 35945 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-06-15

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2012-OS-0067] Privacy Act of 1974... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: The proposed action will be... Internet at http://www.regulations.gov as they are received without change, including any personal...

  11. 75 FR 69650 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-11-15

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2010-0026] Privacy Act of 1974... record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed... from members of the public is to make these submissions available for public viewing on the Internet at...

  12. 78 FR 44102 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-07-23

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2013-0027] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... of the public is to make these submissions available for public viewing on the Internet at http://www...

  13. 75 FR 62111 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-10-07

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0140] Privacy Act of 1974... records notices in its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  14. 78 FR 22525 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-04-16

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-0057] Privacy Act of 1974... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  15. 77 FR 27756 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-05-11

    ...) deletes one system of records from its existing inventory of systems of records subject to the Privacy Act... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. The deletion is... following system of records is deleted: 1. (18-04-03) ED Web Personalization Pilot Data Collection, 66 FR...

  16. 78 FR 21600 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-04-11

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0050] Privacy Act of 1974... notice in its existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as... members of the public is to make these submissions available for public viewing on the Internet at http...

  17. 76 FR 10008 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-02-23

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0023] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... from members of the public is to make these submissions available for public viewing on the Internet at...

  18. 78 FR 31905 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-05-28

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0110] Privacy Act of 1974... notice in its existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as... members of the public is to make these submissions available for public viewing on the Internet at http...

  19. 76 FR 1409 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-01-10

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0001] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... from members of the public is to make these submissions available for public viewing on the Internet at...

  20. 76 FR 22682 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-04-22

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2011-OS-0044] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... from members of the public is to make these submissions available for public viewing on the Internet at...

  1. 78 FR 5788 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-01-28

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0005] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... of the public is to make these submissions available for public viewing on the Internet at http://www...

  2. 78 FR 14279 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0040] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... of the public is to make these submissions available for public viewing on the Internet at http://www...

  3. 77 FR 70796 - Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security...

    Science.gov (United States)

    2012-11-27

    ... privacy issues, please contact: Jonathan Cantor, (202-343-1717), Acting Chief Privacy Officer, Privacy... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security Administration System of Records AGENCY: Privacy...

  4. 29 CFR 71.50 - General exemptions pursuant to subsection (j) of the Privacy Act.

    Science.gov (United States)

    2010-07-01

    ... (Investigative Case Tracking Systems/Audit Information Reporting Systems, USDOL/OIG), a system of records... ACCESS TO RECORDS UNDER THE PRIVACY ACT OF 1974 Exemption of Records Systems Under the Privacy Act § 71.50 General exemptions pursuant to subsection (j) of the Privacy Act. (a) The following systems of...

  5. 76 FR 48811 - Computer Matching and Privacy Protection Act of 1988

    Science.gov (United States)

    2011-08-09

    ... CORPORATION FOR NATIONAL AND COMMUNITY SERVICE Computer Matching and Privacy Protection Act of... of the Computer Matching and Privacy Protection Act of 1988 (54 FR 25818, June 19, 1989), and OMB... Security Administration (``SSA''). DATES: CNCS will file a report on the computer matching agreement with...

  6. 78 FR 32554 - Privacy Act; Implementation

    Science.gov (United States)

    2013-05-31

    ..., or intelligence efforts by putting the subject of an investigation, study or analysis on notice of...] Privacy Act; Implementation AGENCY: National Geospatial-Intelligence Agency (NGA), DoD. ACTION: Direct final rule. SUMMARY: National Geospatial-Intelligence Agency (NGA) is proposing to update the NGA...

  7. 75 FR 50846 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-001...

    Science.gov (United States)

    2010-08-18

    ... INFORMATION CONTACT: For general questions and privacy issues please contact: Mary Ellen Callahan (703-235...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL--001 Freedom of Information Act and Privacy Act Records System of Records AGENCY: Privacy Office, DHS. ACTION: Final rule...

  8. 75 FR 68852 - Privacy Act of 1974; System of Records Notice

    Science.gov (United States)

    2010-11-09

    ...., Washington, DC 20590 or [email protected] . FOR FURTHER INFORMATION CONTACT: For privacy issues please... DEPARTMENT OF TRANSPORTATION Office of the Secretary Privacy Act of 1974; System of Records Notice... Secretary of Transportation (DOT/OST) proposes to establish a DOT-wide system of records under the Privacy...

  9. 78 FR 69858 - Privacy Act of 1974; Department of Homeland Security/Federal Emergency Management Agency-001...

    Science.gov (United States)

    2013-11-21

    ... Emergency Management Agency, 500 C Street SW., Washington, DC 20475. For privacy issues please contact... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2013-0077] Privacy Act of..., Privacy Office. ACTION: Notice of Privacy Act System of Records. SUMMARY: In accordance with the Privacy...

  10. 32 CFR 635.12 - Release of information under the Privacy Act of 1974.

    Science.gov (United States)

    2010-07-01

    ... § 635.12 Release of information under the Privacy Act of 1974. (a) Military police records may be...) The release and denial authorities for all Privacy Act cases concerning military police records are...

  11. 29 CFR 71.52 - Specific exemptions pursuant to subsection (k)(5) of the Privacy Act.

    Science.gov (United States)

    2010-07-01

    ... (Investigative Case Tracking Systems/Audit Information Reporting Systems, USDOL/OIG), a system of records... AND ACCESS TO RECORDS UNDER THE PRIVACY ACT OF 1974 Exemption of Records Systems Under the Privacy Act § 71.52 Specific exemptions pursuant to subsection (k)(5) of the Privacy Act. (a) The following systems...

  12. 29 CFR 71.51 - Specific exemptions pursuant to subsection (k)(2) of the Privacy Act.

    Science.gov (United States)

    2010-07-01

    ... (Investigative Case Tracking Systems/Audit Information Reporting Systems, USDOL/OIG), a system of records... AND ACCESS TO RECORDS UNDER THE PRIVACY ACT OF 1974 Exemption of Records Systems Under the Privacy Act § 71.51 Specific exemptions pursuant to subsection (k)(2) of the Privacy Act. (a) The following systems...

  13. Using genetic information while protecting the privacy of the soul.

    Science.gov (United States)

    Moor, J H

    1999-01-01

    Computing plays an important role in genetics (and vice versa). Theoretically, computing provides a conceptual model for the function and malfunction of our genetic machinery. Practically, contemporary computers and robots equipped with advanced algorithms make the revelation of the complete human genome imminent--computers are about to reveal our genetic souls for the first time. Ethically, computers help protect privacy by restricting access in sophisticated ways to genetic information. But the inexorable fact that computers will increasingly collect, analyze, and disseminate abundant amounts of genetic information made available through the genetic revolution, not to mention that inexpensive computing devices will make genetic information gathering easier, underscores the need for strong and immediate privacy legislation.

  14. 75 FR 50987 - Privacy Act System of Records; National Animal Health Laboratory Network (NAHLN)

    Science.gov (United States)

    2010-08-18

    ...The U.S. Department of Agriculture (USDA) proposes to add a new Privacy Act system of records to its inventory of records systems subject to the Privacy Act of 1974, as amended, and invites public comment on this new records system. The system of records being proposed is the National Animal Health Laboratory Network. This notice is necessary to meet the requirements of the Privacy Act to publish in the Federal Register notice of the existence and character of record systems maintained by the agency. Although the Privacy Act requires only that the portion of the system that describes ``routine uses'' of the system be published for comment, USDA invites comment on all portions of this notice.

  15. 77 FR 44207 - Privacy Act of 1974, System of Records

    Science.gov (United States)

    2012-07-27

    ... 10, 2012. ADDRESSES: You may submit comments: Paper Comments Fax: (703) 666-5670. Mail: Chief Privacy... the Privacy Act. It is USAID's core financial management system and accounting system of record... Budget Execution, which are required to perform necessary accounting operations. Phoenix falls under...

  16. 78 FR 38724 - Privacy Act of 1974; Computer Matching Program

    Science.gov (United States)

    2013-06-27

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... Agreement that establishes a computer matching program between the Department of Homeland Security/U.S... and Privacy Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection...

  17. Privacy and Property? Multi-level Strategies for Protecting Personal Interests in Genetic Material

    OpenAIRE

    Laurie, Graeme

    2003-01-01

    The paper builds on earlier medico-legal work by Laurie on privacy in relation to genetic material. In this chapter, the author discusses not only Laurie's views as 'pro-privacy' but the limitations of privacy, particularly once information, genetic or otherwise, enters a public sphere. The article draws on cases and laws in the UK, continental Europe, and the US, to provide a comparative view in suggesting an alternative approach to privacy.

  18. 77 FR 43100 - Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency-009...

    Science.gov (United States)

    2012-07-23

    ... Homeland Security, Washington, DC 20478. For privacy issues, please contact: Mary Ellen Callahan (703) 235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0097] Privacy Act of... Assistance Grant Programs System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system...

  19. Electronic Mail, Privacy, and the Electronic Communications Privacy Act of 1986: Technology in Search of Law.

    Science.gov (United States)

    Samoriski, Jan H.; And Others

    1996-01-01

    Attempts to clarify the status of e-mail privacy under the Electronic Communications Privacy Act of 1986 (ECPA). Examines current law and the paucity of definitive case law. A review of cases and literature suggests there is a gap in the existing ECPA that allows for potentially abusive electronic monitoring and interception of e-mail,…

  20. 75 FR 54662 - Privacy Act of 1974: Systems of Records

    Science.gov (United States)

    2010-09-08

    ..., Chief Privacy Officer, Office of Information Technology, 202-551-7209. In the Federal Register of August... SECURITIES AND EXCHANGE COMMISSION [Release No. PA-44A; File No. S7-17-10] Privacy Act of 1974: Systems of Records AGENCY: Securities and Exchange Commission. ACTION: Notice to establish systems of...

  1. 78 FR 43258 - Privacy Act; System of Records: Human Resources Records, State-31

    Science.gov (United States)

    2013-07-19

    ... DEPARTMENT OF STATE [Public Notice 8384] Privacy Act; System of Records: Human Resources Records... system of records, Human Resources Records, State- 31, pursuant to the provisions of the Privacy Act of... State proposes that the current system will retain the name ``Human Resources Records'' (previously...

  2. 77 FR 24242 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-04-23

    ... under the Freedom of Information Act (FOIA) or the Privacy Act. Categories of records in the system: The... allegation or complaint of discrimination based on race, color, religion, sex, national origin, age, or...

  3. Genetic privacy in sports: clearing the hurdles.

    Science.gov (United States)

    Callier, Shawneequa

    2012-12-01

    As genomic medicine continues to advance and inform clinical care, knowledge gained is likely to influence sports medicine and training practices. Susceptibility to injury, sudden cardiac failure, and other serious conditions may one day be tackled on a subclinical level through genetic testing programs. In addition, athletes may increasingly consider using genetic testing services to maximize their performance potential. This paper assesses the role of privacy and genetic discrimination laws that would apply to athletes who engage in genetic testing and the limits of these protections.

  4. 76 FR 24557 - Privacy Act of 1974; as Amended; Proposed Alteration to an Existing Privacy Act System of Records...

    Science.gov (United States)

    2011-05-02

    ... computer system that will house the data. We annually provide all our employees and contractors with... by the system: This system covers vocational experts, medical experts, other health care professional... Privacy Act System of Records, Housekeeping Changes, and New Routine Use AGENCY: Social Security...

  5. Privacy, the individual and genetic information: a Buddhist perspective.

    Science.gov (United States)

    Hongladarom, Soraj

    2009-09-01

    Bioinformatics is a new field of study whose ethical implications involve a combination of bioethics, computer ethics and information ethics. This paper is an attempt to view some of these implications from the perspective of Buddhism. Privacy is a central concern in both computer/information ethics and bioethics, and with information technology being increasingly utilized to process biological and genetic data, the issue has become even more pronounced. Traditionally, privacy presupposes the individual self but as Buddhism does away with the ultimate conception of an individual self, it has to find a way to analyse and justify privacy that does not presuppose such a self. It does this through a pragmatic conception that does not depend on a positing of the substantial self, which is then found to be unnecessary for an effective protection of privacy. As it may be possible one day to link genetic data to individuals, the Buddhist conception perhaps offers a more flexible approach, as what is considered to be integral to an individual person is not fixed in objectivity but depends on convention.

  6. 76 FR 21768 - Privacy Act of 1974; Department of Homeland Security/Office of Health Affairs-001 Contractor...

    Science.gov (United States)

    2011-04-18

    ... Homeland Security, Washington, DC 20520. For privacy issues please contact: Mary Ellen Callahan (703-235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0013] Privacy Act of... Immunization Records System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of...

  7. 76 FR 71417 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Law Enforcement Agencies (LEA...

    Science.gov (United States)

    2011-11-17

    ...; Computer Matching Program (SSA/ Law Enforcement Agencies (LEA)) Match Number 5001 AGENCY: Social Security... protections for such persons. The Privacy Act, as amended, regulates the use of computer matching by Federal... accordance with the Privacy Act of 1974, as amended by the Computer Matching and Privacy Protection Act of...

  8. 76 FR 49500 - Privacy Act of 1974; Department of Homeland Security United States Coast Guard-020 Substance...

    Science.gov (United States)

    2011-08-10

    ... 7101 Washington, DC 20593. For privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0053] Privacy Act of... Treatment Program System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of...

  9. 77 FR 30433 - Privacy Act of 1974: Implementation of Exemptions; Automated Targeting System

    Science.gov (United States)

    2012-05-23

    ... Border Protection, Mint Annex, 799 Ninth Street NW., Washington, DC 20229. For privacy issues please... Secretary 6 CFR Part 5 [Docket No. DHS-2012-0020] Privacy Act of 1974: Implementation of Exemptions; Automated Targeting System AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  10. 75 FR 5604 - Privacy Act of 1974; Report of an Altered System of Records

    Science.gov (United States)

    2010-02-03

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Privacy Act...). SUMMARY: In accordance with the requirements of the Privacy Act of 1974, the Health Resources and Services... to include breach notification language required by Memoranda (M) 07-16, Safeguarding Against and...

  11. 76 FR 67755 - Privacy Act of 1974; Department of Homeland Security U.S. Customs and Border Protection DHS/CBP...

    Science.gov (United States)

    2011-11-02

    ... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0102] Privacy Act of... Data System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of records. SUMMARY: In accordance with the Privacy Act of 1974 the Department of Homeland Security proposes to...

  12. 77 FR 38363 - Office of Privacy, Records, and Disclosure; Privacy Act of 1974, as Amended

    Science.gov (United States)

    2012-06-27

    ... delinquencies; final determinations of appeals; name/ title of officials responsible for denial of records; and... FOIA and the Privacy Act. Also used to produce statistical reports; and as a data source for management...

  13. 76 FR 18954 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Federal...

    Science.gov (United States)

    2011-04-06

    ... issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer, Privacy Office...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Federal Emergency Management Agency DHS/FEMA-011 Training and Exercise Program Records System of Records AGENCY: Privacy Office...

  14. 75 FR 7648 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Veterans Affairs...

    Science.gov (United States)

    2010-02-22

    ... Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503), amended the Privacy... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0006] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Veterans Affairs/Veterans Benefits Administration (VA/ VBA...

  15. 78 FR 8963 - Update of Existing Privacy Act-NASA Regulations

    Science.gov (United States)

    2013-02-07

    ... FR 60622] inadvertently omits the responsibility of NASA's Freedom of Information Act (FOIA) Office..., this correction adds responsibility of the FOIA Office. This corrections also corrects the title to Sec... appropriate system manager, or, if unknown, to the Center Privacy Manager or Freedom of Information Act (FOIA...

  16. 75 FR 69603 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security National...

    Science.gov (United States)

    2010-11-15

    ... 20528. For privacy issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer... Secretary 6 CFR Part 5 [Docket No. DHS-2010-0085] Privacy Act of 1974: Implementation of Exemptions... Coordinating Center Records System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed...

  17. 75 FR 77044 - Financial Management Service; Privacy Act of 1974, as Amended; System of Records

    Science.gov (United States)

    2010-12-10

    ... DEPARTMENT OF THE TREASURY Financial Management Service; Privacy Act of 1974, as Amended; System of Records AGENCY: Financial Management Service, Treasury. ACTION: Withdrawal of a Privacy Act Notice... behalf of the Financial Management Service. DATES: December 10, 2010. FOR FURTHER INFORMATION CONTACT...

  18. 76 FR 67599 - Privacy Act of 1974: Implementation

    Science.gov (United States)

    2011-11-02

    ...: Background On July 19, 2011, the Office of the Director of National Intelligence (ODNI) published notice of... OFFICE OF THE DIRECTOR OF NATIONAL INTELLIGENCE 32 CFR Part 1701 Privacy Act of 1974: Implementation AGENCY: Office of the Director of National Intelligence. ACTION: Final rule. SUMMARY: The Office...

  19. 78 FR 46686 - Privacy Act of 1974; Treasury/United States Mint .013-United States Mint National Electronic...

    Science.gov (United States)

    2013-08-01

    ... available publicly. FOR FURTHER INFORMATION CONTACT: For general questions and privacy issues, please... DEPARTMENT OF THE TREASURY Privacy Act of 1974; Treasury/United States Mint .013--United States... Privacy Act of 1974, as amended, 5 U.S.C. 552a, the Department of the Treasury (``Treasury'') and the...

  20. 75 FR 75546 - Financial Management Service; Privacy Act of 1974, as Amended; System of Records

    Science.gov (United States)

    2010-12-03

    ... DEPARTMENT OF THE TREASURY Financial Management Service; Privacy Act of 1974, as Amended; System of Records AGENCY: Financial Management Service, Treasury. ACTION: Notice of proposed new system of records. SUMMARY: In accordance with the Privacy Act of 1974, as amended, the Financial Management Service...

  1. 75 FR 5166 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration...

    Science.gov (United States)

    2010-02-01

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2009-0043] Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration/Railroad Retirement Board (SSA/RRB))-- Match... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 Public Law (Pub. L.) 100-503...

  2. 76 FR 43278 - Privacy Act; System of Records

    Science.gov (United States)

    2011-07-20

    ... the Privacy Act of 1974, 5 U.S.C. 552a, to publish a description of the systems of records containing... locked file cabinets, and electronic records are maintained on a password-protected desktop personal...'' published by the National Archives and Records Administration, Washington, DC. Paper records are shredded...

  3. 78 FR 14669 - Privacy Act of 1974; Implementation

    Science.gov (United States)

    2013-03-07

    ... law enforcement and intelligence matters, and for the reasons set forth in the rule these exemptions... general editorial revisions to the reasons for the existing IRFS exemptions. The public was provided with...) The proposed exemptions contravene the intent of the Privacy Act; (2) the DEA does not clearly...

  4. Preserving Employee Privacy in Wellness.

    Science.gov (United States)

    Terry, Paul E

    2017-07-01

    The proposed "Preserving Employee Wellness Programs Act" states that the collection of information about the manifested disease or disorder of a family member shall not be considered an unlawful acquisition of genetic information. The bill recognizes employee privacy protections that are already in place and includes specific language relating to nondiscrimination based on illness. Why did legislation expressly intending to "preserve wellness programs" generate such antipathy about wellness among journalists? This article argues that those who are committed to preserving employee wellness must be equally committed to preserving employee privacy. Related to this, we should better parse between discussions and rules about commonplace health screenings versus much less common genetic testing.

  5. 75 FR 8092 - Privacy Act of 1974; Department of Homeland Security/ALL-027 The History of the Department of...

    Science.gov (United States)

    2010-02-23

    ... Policy, U.S. Department of Homeland Security, Washington, DC 20528. For privacy issues please contact... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2009-0040] Privacy Act of... System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of records. SUMMARY...

  6. 77 FR 56628 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-09-13

    .../Central Security Service (NSA/CSS), Freedom of Information Act and Privacy Act Office, 9800 Savage Road... Agencies of Government who wrote to NSA on behalf of the constituent and who use it to respond to the.... The DoD Blanket Routine Uses published at the beginning of the NSA/ CSS's compilation of record...

  7. 75 FR 11191 - Privacy Act of 1974; Retirement of Department of Homeland Security Federal Emergency Management...

    Science.gov (United States)

    2010-03-10

    ... 20472. For privacy issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Federal Emergency Management Agency System of Records AGENCY: Privacy Office...

  8. 78 FR 47210 - National Practitioner Data Bank and Privacy Act; Exempt Records System; Technical Correction

    Science.gov (United States)

    2013-08-05

    ... reference cited in the Privacy Act regulations. The National Practitioner Data Bank (NPDB) system of records... DEPARTMENT OF HEALTH AND HUMAN SERVICES 45 CFR Part 5b RIN 0906-AA97 National Practitioner Data Bank and Privacy Act; Exempt Records System; Technical Correction AGENCY: Health Resources and Services...

  9. 77 FR 70795 - Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security...

    Science.gov (United States)

    2012-11-27

    ... 20598-6036; email: [email protected] . For privacy issues please contact: Jonathan Cantor, (202-343... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security Administration System of Records AGENCY: Privacy...

  10. 77 FR 70792 - Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security...

    Science.gov (United States)

    2012-11-27

    ..., VA 20598-6036; email: [email protected] . For privacy issues please contact: Jonathan R. Cantor... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security Administration System of Records AGENCY: Privacy...

  11. 75 FR 65007 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-10-21

    ... Officer, P.O. Box 2218, Waldorf, MD 20604-2218. Individuals should complete AFOSI's Certification of... of Information/Privacy Act Officer, P.O. Box 2218, Waldorf, MD 20604-2218. Individuals should...

  12. 78 FR 69861 - Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency...

    Science.gov (United States)

    2013-11-21

    ... Homeland Security, Washington, DC 20478. For privacy issues, please contact: Karen L. Neuman, (202) 343... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [DHS-2013-0073] Privacy Act of 1974... Defense Executive Reserve System of Records AGENCY: Department of Homeland Security, Privacy Office...

  13. 75 FR 18863 - Privacy Act of 1974; Department of Homeland Security Transportation Security Administration-006...

    Science.gov (United States)

    2010-04-13

    ... 12th Street, Arlington, VA, 20598-6036. For privacy issues please contact: Mary Ellen Callahan (703-235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2010-0015] Privacy Act of... Matters Tracking Records AGENCY: Privacy Office, DHS. [[Page 18864

  14. 76 FR 12745 - Privacy Act of 1974; Department of Homeland Security Office of Operations Coordination and...

    Science.gov (United States)

    2011-03-08

    ... 20528. For privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2010-0055] Privacy Act of... Operations Center Tracker and Senior Watch Officer Logs System of Records AGENCY: Privacy Office, DHS. ACTION...

  15. 76 FR 12609 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Office of...

    Science.gov (United States)

    2011-03-08

    ... 20528. For privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer... Secretary 6 CFR Part 5 [Docket No. DHS-2010-0051] Privacy Act of 1974: Implementation of Exemptions... Center Tracker and Senior Watch Officer Logs System of Records AGENCY: Privacy Office, DHS. ACTION...

  16. 76 FR 34177 - Privacy Act of 1974: Implementation of Exemptions; U.S. Citizenship and Immigration Services...

    Science.gov (United States)

    2011-06-13

    ...] Privacy Act of 1974: Implementation of Exemptions; U.S. Citizenship and Immigration Services, Immigration... Privacy Act of 1974 for the Department of Homeland Security United States Citizenship and Immigration Services, Immigration and Customs Enforcement, and Customs and Border Protection--001 Alien File, Index...

  17. 77 FR 43639 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA...

    Science.gov (United States)

    2012-07-25

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0090] Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA)/Department of Veterans Affairs (VA.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503...

  18. 77 FR 54943 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA...

    Science.gov (United States)

    2012-09-06

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0016] Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA)/Department of Veterans Affairs (VA.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503...

  19. 75 FR 7979 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-027 The...

    Science.gov (United States)

    2010-02-23

    ... privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer, Privacy Office...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-027 The History of the Department of Homeland Security System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of...

  20. The medical examination in United States immigration applications: the potential use of genetic testing leads to heightened privacy concerns.

    Science.gov (United States)

    Burroughs, A Maxwell

    2005-01-01

    The medical examination has been an integral part of the immigration application process since the passing of the Immigration Act of 1891. Failing the medical examination can result in denial of the application. Over the years the medical examination has been expanded to include questioning about diseases that are scientifically shown to be rooted in an individual's genetic makeup. Recent advances in the fields of genomics and bioinformatics are making accurate and precise screening for these conditions a reality. Government policymakers will soon be faced with decisions regarding whether or not to sanction the use of these newly-developed genetic tests in the immigration application procedure. The terror threat currently facing the United States may ultimately bolster the argument in favor of genetic testing and/or DNA collection of applicants. However, the possibility of a government mandate requiring genetic testing raises a host of ethical issues; including the threat of eugenics and privacy concerns. Genetic testing has the ability to uncover a wealth of sensitive medical information about an individual and currently there are no medical information privacy protections afforded to immigration applicants. This article examines the potential for genetic testing in the immigration application process and the ethical issues surrounding this testing. In particular, this article explores the existing framework of privacy protections afforded to individuals living in the United States and how this and newly-erected standards like those released by the Health and Human Services (HHS) might apply to individuals seeking to immigrate to the United States.

  1. 78 FR 64196 - Privacy Act Altered System of Records

    Science.gov (United States)

    2013-10-28

    ... records to COMMERCE/DEPARTMENT-20, Biographical Files and Social Networks. The amendment serves to modify... DEPARTMENT OF COMMERCE [Docket No. 130730666-3877-02] Privacy Act Altered System of Records AGENCY: Department of Commerce. ACTION: Notice; Commerce/Department-20, Biographical Files. SUMMARY: The Department...

  2. 78 FR 34354 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-06-07

    ...(r) of the Privacy Act of 1974, as amended, was submitted on May 14, 2013, to the House Committee on... replace with ``System contains personnel data to support enlisted assignment, planning, programming...

  3. 78 FR 59082 - Privacy Act of 1974; Department of Transportation, Federal Motor Carrier Safety Administration...

    Science.gov (United States)

    2013-09-25

    ..., [email protected] . For privacy issues please contact: Claire W. Barrett, Departmental Chief... DEPARTMENT OF TRANSPORTATION Office of the Secretary [Docket No. FMCSA-2013-0306] Privacy Act of... Administration (FMCSA), DOT. ACTION: Notice to amend a system of records. SUMMARY: In accordance with the Privacy...

  4. 78 FR 65620 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-11-01

    ..., as required by 5 U.S.C. 552a(r) of the Privacy Act of 1974, as amended, was submitted on March 18... support officer assignment, planning, programming, accounting, promotions, career development, and...

  5. 75 FR 19377 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2010-04-14

    .... 552a(r), of the Privacy Act of 1974, as amended, were submitted on March 31, 2010, to the House..., forced password-change protocols or also equipped with ``Smart Card'' technology that requires the...

  6. 77 FR 3455 - Privacy Act of 1974; System of Records-Migrant Education Bypass Program Student Database

    Science.gov (United States)

    2012-01-24

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records--Migrant Education Bypass Program... (Privacy Act), the Department of Education (Department) publishes this notice of a new system of records... called a ``system of records.'' The Migrant Education Program (MEP) is authorized under Title I, Part C...

  7. 75 FR 7978 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Transportation...

    Science.gov (United States)

    2010-02-23

    ... Security Administration, 601 South 12th Street, Arlington, VA 20598-6036. For privacy issues please contact... Secretary 6 CFR Part 5 [Docket No. DHS-2009-0137] Privacy Act of 1974: Implementation of Exemptions... Program System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  8. An overview of human genetic privacy

    OpenAIRE

    Shi, Xinghua; Wu, Xintao

    2016-01-01

    The study of human genomics is becoming a Big Data science, owing to recent biotechnological advances leading to availability of millions of personal genome sequences, which can be combined with biometric measurements from mobile apps and fitness trackers, and of human behavior data monitored from mobile devices and social media. With increasing research opportunities for integrative genomic studies through data sharing, genetic privacy emerges as a legitimate yet challenging concern that nee...

  9. 78 FR 65011 - Privacy Act of 1974: New System of Records

    Science.gov (United States)

    2013-10-30

    ... Program under section 1334 of the Affordable Care Act (42 U.S.C. 18054). PURPOSE: OPM operates this system... password- protected computers and systems. Computer firewalls will be maintained to prevent access by... OFFICE OF PERSONNEL MANAGEMENT Privacy Act of 1974: New System of Records AGENCY: U.S. Office of...

  10. Ensuring privacy in the study of pathogen genetics

    OpenAIRE

    Mehta, Sanjay R.; Vinterbo, Staal A.; Little, Susan J.

    2014-01-01

    Rapid growth in the genetic sequencing of pathogens in recent years has led to the creation of large sequence databases. This aggregated sequence data can be very useful for tracking and predicting epidemics of infectious diseases. However, the balance between the potential public health benefit and the risk to personal privacy for individuals whose genetic data (personal or pathogen) are included in such work has been difficult to delineate, because neither the true benefit nor the actual ri...

  11. 78 FR 22854 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-04-17

    ... U.S.C. 552a(r) of the Privacy Act of 1974, as amended, was submitted on April 1, 2013, to the House... administrative procedures. Computers are equipped with ``Smart Card'' technology that requires the insertion of...

  12. 76 FR 53421 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-08-26

    ..., Air Force Privacy Act Office, Office of Warfighting Integration and Chief Information Officer, ATTN...: Name, signatures, personal contact information, individual's employer and institutional, organizational..., Historical Products, Services, and Requirements; Air Force Instruction 84-105, Organizational Lineage, Honors...

  13. 77 FR 13388 - Treasury Inspector General for Tax Administration; Privacy Act of 1974: Computer Matching Program

    Science.gov (United States)

    2012-03-06

    ... DEPARTMENT OF THE TREASURY Treasury Inspector General for Tax Administration; Privacy Act of 1974...: Notice. SUMMARY: Pursuant to 5 U.S.C. 552a, the Privacy Act of 1974, as amended, notice is hereby given... Administration. Beginning and Completion Dates: This program of computer matches is expected to commence on March...

  14. 75 FR 69604 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Office of...

    Science.gov (United States)

    2010-11-15

    ... Security, Washington, DC 20528. For privacy issues please contact: Mary Ellen Callahan (703-235- [[Page...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Office of Operations... System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  15. 77 FR 67802 - Privacy Act of 1974, as Amended

    Science.gov (United States)

    2012-11-14

    ... services, and consumer behavior with respect to such products or services. The CFPB will maintain control..., risks, and benefits of such products or services, and consumer behavior with respect to such products or... BUREAU OF CONSUMER FINANCIAL PROTECTION Privacy Act of 1974, as Amended AGENCY: Bureau of Consumer...

  16. 76 FR 67621 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security U.S. Customs...

    Science.gov (United States)

    2011-11-02

    ...., Washington, DC 20229. For privacy issues please contact: Mary Ellen Callahan (703) 235-0780), Chief Privacy... Secretary 6 CFR Part 5 [Docket No. DHS-2011-0103] Privacy Act of 1974: Implementation of Exemptions... of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  17. 75 FR 39184 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-029 Civil...

    Science.gov (United States)

    2010-07-08

    ... questions and privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer... Secretary 6 CFR Part 5 [Docket No. DHS-2010-0034] Privacy Act of 1974: Implementation of Exemptions...: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The Department of Homeland Security...

  18. 78 FR 51264 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of the Treasury...

    Science.gov (United States)

    2013-08-20

    ... 1016 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2013-0022] Privacy Act of 1974, as Amended...

  19. 78 FR 16564 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Personnel Management...

    Science.gov (United States)

    2013-03-15

    ... 1021 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of existing computer... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0073] Privacy Act of 1974, as Amended...

  20. 13 CFR 102.36 - Privacy Act standards of conduct.

    Science.gov (United States)

    2010-01-01

    ... 13 Business Credit and Assistance 1 2010-01-01 2010-01-01 false Privacy Act standards of conduct. 102.36 Section 102.36 Business Credit and Assistance SMALL BUSINESS ADMINISTRATION RECORD DISCLOSURE... existence or development of any system of records that is not the subject of a current or planned public...

  1. 75 FR 62623 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Internal Revenue Service (IRS...

    Science.gov (United States)

    2010-10-12

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0015] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Internal Revenue Service (IRS))--Match Number 1016 AGENCY: Social Security... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching...

  2. 77 FR 27108 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Child Support...

    Science.gov (United States)

    2012-05-08

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching... protections for such persons. The Privacy Act, as amended, regulates the use of computer matching by Federal... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0010] Privacy Act of 1974, as Amended...

  3. 77 FR 38880 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Railroad Retirement Board (SSA...

    Science.gov (United States)

    2012-06-29

    ... Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching program that... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0002] Privacy Act of 1974, as Amended...

  4. 75 FR 18251 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Internal Revenue Service (IRS...

    Science.gov (United States)

    2010-04-09

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2009-0066] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Internal Revenue Service (IRS))--Match 1305 AGENCY: Social Security... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...

  5. 75 FR 59780 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Railroad Retirement Board (RRB...

    Science.gov (United States)

    2010-09-28

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0040] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Railroad Retirement Board (RRB))--Match Number 1006 AGENCY: Social Security...: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L.) 100-503), amended the...

  6. 77 FR 65939 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-10-31

    ...) is amending the system of records currently entitled ``Veterans Health Information Systems and... Health Information Systems and Technology Architecture (VistA) Records-VA ROUTINE USES OF RECORDS... DEPARTMENT OF VETERANS AFFAIRS Privacy Act of 1974; System of Records AGENCY: Department of...

  7. 76 FR 26714 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-05-09

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0010] Privacy Act of 1974; System... specialty, credit hours accumulated, examination and lesson course completion status, assignment history... history, student academic status, curricula, course description, scheduling, testing, academic, graduation...

  8. 75 FR 36644 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-06-28

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2010-0014] Privacy Act of 1974... prisoner, mail records; personal history records; individual prisoner utilization records; requests for... recommendations; request to transfer prisoner; social history; clemency and parole actions; psychologist's report...

  9. 75 FR 28042 - Privacy Act of 1974: System of Records; Department of Homeland Security Transportation Security...

    Science.gov (United States)

    2010-05-19

    ..., VA 20598-6036 or [email protected] . For privacy issues please contact: Mary Ellen Callahan (703-235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2010-0013] Privacy Act of..., Transportation Security Enforcement Record System, System of Records AGENCY: Privacy Office, DHS. ACTION: Notice...

  10. 75 FR 43579 - Privacy Act of 1974; Computer Matching Program Between the Office of Personnel Management and...

    Science.gov (United States)

    2010-07-26

    ... the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503), Office of Management and... safeguards for disclosure of Social Security benefit information to OPM via direct computer link for the... OFFICE OF PERSONNEL MANAGEMENT Privacy Act of 1974; Computer Matching Program Between the Office...

  11. 78 FR 12128 - Privacy Act of 1974; Computer Matching Program (SSA/Department of the Treasury, Internal Revenue...

    Science.gov (United States)

    2013-02-21

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0067] Privacy Act of 1974; Computer Matching... Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching program... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...

  12. 78 FR 3474 - Privacy Act of 1974; Computer Matching Program Between the Office Of Personnel Management and...

    Science.gov (United States)

    2013-01-16

    ... amended by the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503), Office of... Security benefit information to OPM via direct computer link for the administration of certain programs by... OFFICE OF PERSONNEL MANAGEMENT Privacy Act of 1974; Computer Matching Program Between the Office...

  13. 75 FR 53004 - Privacy Act of 1974, as Amended; Notice of Computer-Matching Program (Railroad Retirement Board...

    Science.gov (United States)

    2010-08-30

    ... report of this computer-matching program with the Committee on Homeland Security and Governmental Affairs... INFORMATION: A. General The Computer-Matching and Privacy Protection Act of 1988, (Pub. L. 100-503), amended... RAILROAD RETIREMENT BOARD Privacy Act of 1974, as Amended; Notice of Computer-Matching Program...

  14. 77 FR 49849 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Child Support...

    Science.gov (United States)

    2012-08-17

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer-matching... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0021] Privacy Act of 1974, as Amended...

  15. 78 FR 69926 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Centers for Medicare & Medicaid...

    Science.gov (United States)

    2013-11-21

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L 100-503), amended the... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2013-0059] Privacy Act of 1974, as Amended...

  16. 75 FR 32833 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Personnel Management...

    Science.gov (United States)

    2010-06-09

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2009-0077] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Office of Personnel Management (OPM))--Match 1307 AGENCY: Social Security... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...

  17. 78 FR 70971 - Privacy Act of 1974, as Amended; Notice of Computer Matching Program (Railroad Retirement Board...

    Science.gov (United States)

    2013-11-27

    ... will file a report of this computer-matching program with the Committee on Homeland Security and... . SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988, (Pub. L. 100-503... RAILROAD RETIREMENT BOARD Privacy Act of 1974, as Amended; Notice of Computer Matching Program...

  18. Privacy Threats and Practical Solutions for Genetic Risk Tests

    OpenAIRE

    Barman, Ludovic; El Graini, Mohammed-Taha; Raisaro, Jean Louis; Ayday, Erman; Hubaux, Jean-Pierre

    2015-01-01

    Recently, several solutions have been proposed to address the complex challenge of protecting individuals’ genetic data during personalized medicine tests. In this short paper, we analyze different privacy threats and propose simple countermeasures for the generic architecture mainly used in the literature. In particular, we present and evaluate a new practical solution against a critical attack of a malicious medical center trying to actively infer raw genetic information of patients.

  19. 76 FR 77625 - Privacy Act of 1974, as Amended; System of Records

    Science.gov (United States)

    2011-12-13

    ..., certifications, and special skills and competencies; and (3) Purpose, adding to record and manage career development, certifications, and special skills and competencies. As described in the last published notice... 30-64-0021 Fitness Center Records FDIC 30-64-0022 Freedom of Information Act and Privacy Act Request...

  20. 78 FR 41919 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-07-12

    .... SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records, T7340c... identifiers or contact information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications...

  1. 78 FR 14281 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate... Records. SUMMARY: The Defense Finance and Accounting Service proposes to amend a system of records in its.... FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service...

  2. 78 FR 14283 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate... a system of records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system... identifiers or contact information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance...

  3. 77 FR 31606 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-05-29

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Office of English Language Acquisition, Language Enhancement and Academic Achievement for Limited English Proficient Students, Department... Secretary of the Office of English Language Acquisition deletes the following system of records: System...

  4. 76 FR 21091 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Centers for Medicare & Medicaid...

    Science.gov (United States)

    2011-04-14

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching...: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...), as amended, (Pub. L. 100-503, the Computer Matching and Privacy Protection Act (CMPPA) of 1988), the...

  5. 78 FR 34678 - Privacy Act of 1974, as Amended; Notice of Computer Matching Program (Railroad Retirement Board...

    Science.gov (United States)

    2013-06-10

    ... notice of its renewal of an ongoing computer-matching program with the Social Security Administration... computer-matching program with the Committee on Homeland Security and Governmental Affairs of the Senate... Computer Matching and Privacy Protection Act of 1988, (Pub. L. 100-503), amended by the Privacy Act of 1974...

  6. 45 CFR 2508.19 - What Privacy Act exemptions or control of systems of records are exempt from disclosure?

    Science.gov (United States)

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false What Privacy Act exemptions or control of systems of records are exempt from disclosure? 2508.19 Section 2508.19 Public Welfare Regulations Relating to... ACT OF 1974 § 2508.19 What Privacy Act exemptions or control of systems of records are exempt from...

  7. What was privacy?

    Science.gov (United States)

    McCreary, Lew

    2008-10-01

    Why is that question in the past tense? Because individuals can no longer feel confident that the details of their lives--from identifying numbers to cultural preferences--will be treated with discretion rather than exploited. Even as Facebook users happily share the names of their favorite books, movies, songs, and brands, they often regard marketers' use of that information as an invasion of privacy. In this wide-ranging essay, McCreary, a senior editor at HBR, examines numerous facets of the privacy issue, from Google searches, public shaming on the internet, and cell phone etiquette to passenger screening devices, public surveillance cameras, and corporate chief privacy officers. He notes that IBM has been a leader on privacy; its policy forswearing the use of employees' genetic information in hiring and benefits decisions predated the federal Genetic Information Nondiscrimination Act by three years. Now IBM is involved in an open-source project known as Higgins to provide users with transportable, potentially anonymous online presences. Craigslist, whose CEO calls it "as close to 100% user driven as you can get," has taken an extremely conservative position on privacy--perhaps easier for a company with a declared lack of interest in maximizing revenue. But TJX and other corporate victims of security breaches have discovered that retaining consumers' transaction information can be both costly and risky. Companies that underestimate the importance of privacy to their customers or fail to protect it may eventually face harsh regulation, reputational damage, or both. The best thing they can do, says the author, is negotiate directly with those customers over where to draw the line.

  8. 32 CFR Appendix M to Part 275 - Format for Certificate of Compliance With the Right to Financial Privacy Act of 1978

    Science.gov (United States)

    2010-07-01

    ... Certificate of Compliance With the Right to Financial Privacy Act of 1978 [Official Letterhead] [Date] Mr./Mrs..., pursuant to section 3403(b) of the Right to Financial Privacy Act of 1978, 12 U.S.C. 3401 et. seq., that...]: [Describe the specific records] Pursuant to section 3417(c) of the Right to Financial Privacy Act of 1978...

  9. 78 FR 5784 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-01-28

    ... records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records in its.... FOR FURTHER INFORMATION CONTACT: Mr. Gregory Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  10. 78 FR 37799 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-06-24

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Finance and Accounting Service is amending a system of records...

  11. 77 FR 58106 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-09-19

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend two Systems of Records. SUMMARY: The Defense Finance and Accounting Service is amending two systems of records...

  12. 78 FR 52518 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-08-23

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Finance and Accounting Service is amending a system of records...

  13. 77 FR 69444 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-11-19

    ..., Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a system of records. SUMMARY: The Defense Finance and Accounting Service is amending a system of records...

  14. 77 FR 24925 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-04-26

    ... given that the United States Department of Agriculture (USDA) is revising two Privacy Act (PA) systems... Agriculture (NIFA), formerly the Cooperative State Research, Education, and Extension Service (CSREES). DATES... INFORMATION: I. Background 1. Two systems of records are being revised. A. State Cooperative Extension Service...

  15. 78 FR 16837 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-19

    ... uses this information to obtain customer feedback concerning their service experience and the level of... listed under ``COMMERCE/ PAT-TM-20 Customer Call Center, Assistance and Satisfaction Survey Records... through the agency's telephone support system or customer service centers. The Privacy Act notice is being...

  16. 77 FR 73973 - Privacy Act of 1974, System of Records

    Science.gov (United States)

    2012-12-12

    ... will become effective on January 25, 2013. ADDRESSES: You may submit comments: Paper Comments Fax: (703... requiring protection under the Privacy Act. It is USAID's core financial management system and accounting..., Accounts Receivables, and Budget Execution, which are required to perform necessary accounting operations...

  17. 77 FR 34943 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-06-12

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Office of Planning..., 2012. FOR FURTHER INFORMATION CONTACT: Carmel Martin, Assistant Secretary for Planning, Evaluation and... 20202- 4500. Telephone: (202) 401-3676. If you use a telecommunications device for the deaf (TDD) or a...

  18. 76 FR 77846 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-12-14

    ... terrorism and national security threat screening, system back-up, and continuity of operations purposes... DEPARTMENT OF JUSTICE [CPCLO Order No. 004-2011] Privacy Act of 1974; System of Records AGENCY: Federal Bureau of Investigation, Department of Justice. ACTION: Notice to amend system of records. SUMMARY...

  19. 78 FR 15734 - Privacy Act of 1974; Computer Matching Program

    Science.gov (United States)

    2013-03-12

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... computer matching program between the Department of Homeland Security/U.S. Citizenship and Immigration... Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection Amendments of 1990...

  20. 78 FR 15733 - Privacy Act of 1974; Computer Matching Program

    Science.gov (United States)

    2013-03-12

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... computer matching program between the Department of Homeland Security/U.S. Citizenship and Immigration... Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection Amendments of 1990...

  1. 77 FR 24756 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Labor (DOL))-Match...

    Science.gov (United States)

    2012-04-25

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0084] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Labor (DOL))--Match Number 1003 AGENCY: Social Security... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988...

  2. 75 FR 5491 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Customs...

    Science.gov (United States)

    2010-02-03

    ... addressing privacy concerns. The fifteen- year retention period will allow CBP to access the data when needed... security, law enforcement and counterterrorism missions, while addressing privacy concerns. Legal or...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Customs and Border...

  3. 78 FR 41916 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-07-12

    ... Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to alter a System of Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records...

  4. 78 FR 14280 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    ... Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records notice... information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  5. 78 FR 14286 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    ... Records. SUMMARY: The Defense Finance and Accounting Service proposes to amend a system of records in its... information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  6. 78 FR 14285 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    ... Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records in its.... FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  7. 77 FR 41774 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-07-16

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Office of Management...-19176 (April 12, 2004). Electronic Access to This Document: The official version of this document is the... Assistant Secretary of the Office of Management deletes the following system of records: System No. System...

  8. 75 FR 67700 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-11-03

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2010-0023] Privacy Act of 1974; System... Medical Examination with supporting documentation, the Report of Medical History, and any other reporting... Report of Medical Examination with supporting documentation, the Report of Medical History, and any other...

  9. 76 FR 81910 - Abolishment of Privacy Act System of Records

    Science.gov (United States)

    2011-12-29

    ... Program Manager, USDA, Forest Service, Office of Safety and Occupational and Health, 1400 Independence... Management Handbook (FSH) 6209.11. This system is abolished and removed from the inventory of the USDA System... DEPARTMENT OF AGRICULTURE Office of the Secretary Abolishment of Privacy Act System of Records...

  10. 75 FR 54331 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-09-07

    ... Administrator of the Office of Information and Regulatory Affairs, Office of Management and Budget (OMB), on..., Academic Competitiveness Grants (ACG), National Science and Mathematics Access to Retain Talent (National... Privacy Act Advice Disclosure. The Department may disclose records to the DOJ or the Office of Management...

  11. 77 FR 24757 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Labor (DOL))-Match...

    Science.gov (United States)

    2012-04-25

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0083] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Labor (DOL))--Match Number 1015 AGENCY: Social Security... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching...

  12. 78 FR 4079 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security U.S. Customs...

    Science.gov (United States)

    2013-01-18

    ... Ninth Street NW., Washington, DC 20229. For privacy issues please contact: Jonathan R. Cantor (202-343... Secretary 6 CFR Part 5 [Docket No. DHS 2012-0076] Privacy Act of 1974: Implementation of Exemptions...), System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  13. 77 FR 33547 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Centers for Medicare and Medicaid...

    Science.gov (United States)

    2012-06-06

    ...: Social Security Administration (SSA). ACTION: Notice of a new computer matching program that will expire... protections for such persons. The Privacy Act, as amended, regulates the use of computer matching by Federal... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0015] Privacy Act of 1974, as Amended...

  14. 78 FR 69925 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Bureau of the Fiscal Service...

    Science.gov (United States)

    2013-11-21

    ... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching... savings securities. C. Authority for Conducting the Matching Program This computer matching agreement sets... amended by the Computer Matching and Privacy Protection Act of 1988, as amended, and the regulations and...

  15. 76 FR 5235 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA Internal Match)-Match Number 1014

    Science.gov (United States)

    2011-01-28

    ...; Computer Matching Program (SSA Internal Match)--Match Number 1014 AGENCY: Social Security Administration... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching....C. 552a, as amended, and the provisions of the Computer Matching and Privacy Protection Act of 1988...

  16. 76 FR 46767 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-08-03

    ...: The Department of the Army proposes to add a system of records to its inventory of record systems... provides a student management system that integrates Web-enabled courseware to support online certification... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0019] Privacy Act of 1974; System...

  17. 75 FR 35028 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-06-21

    ... FEDERAL HOUSING FINANCE AGENCY [No. 2010-N-07] Privacy Act of 1974; System of Records AGENCY: Federal Housing Finance Agency. ACTION: Notice of the establishment of a new system of records. SUMMARY: The Federal Housing Finance Agency (FHFA) is revising the proposed system of records notice that was...

  18. 75 FR 39500 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-07-09

    ... from the address above. The proposed system report, as required by 5 U.S.C. 552a(r) of the Privacy Act... location: Add to entry as last paragraph ``Defense Information Systems Agency (DISA) Mega Center, Building... plate number, drivers license number, vehicle make, model, year, color, drivers identification...

  19. 75 FR 77849 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-12-14

    ... Agency, Defense Threat Reduction Agency, Missile Defense Organization, Pentagon Force Protection Agency... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0160] Privacy Act of 1974; System of Records AGENCY: Office of the Secretary of Defense, DoD. ACTION: Notice to add a system of...

  20. 77 FR 75499 - Privacy Act of 1974: Computer Matching Program

    Science.gov (United States)

    2012-12-20

    ... DEPARTMENT OF VETERANS AFFAIRS Privacy Act of 1974: Computer Matching Program AGENCY: Department...: This match will commence on or about January 22, 2013 or 40 days after the Office of Management and... of 18 months after the commencing date, the Departments may renew the agreement for another 12 months...

  1. 77 FR 77049 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-12-31

    ..., Air Force Privacy Act Office, Office of Warfighting Integration and Chief Information officer, ATTN... of 1974 (5 U.S.C. 552a), as amended, which requires the submission of a new or altered system report...). Reason The Innovative Development through Employee Awareness (IDEA) Program Data System (IPDS) has been...

  2. 78 FR 27195 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-05-09

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to delete two Systems of Records. SUMMARY: The Defense Finance and Accounting Service is deleting two systems of records...: The Defense Finance and Accounting Service systems of records notices subject to the Privacy Act of...

  3. 78 FR 27194 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-05-09

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to delete two Systems of Records. SUMMARY: The Defense Finance and Accounting Service is deleting two systems of records...: The Defense Finance and Accounting Service systems of records notices subject to the Privacy Act of...

  4. 78 FR 69392 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-11-19

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to delete a system of records. SUMMARY: The Defense Finance and Accounting Service is deleting a system of records... INFORMATION: The Defense Finance and Accounting Service systems of records notices subject to the Privacy Act...

  5. 75 FR 39669 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-07-12

    ...In accordance with the Privacy Act of 1974, as amended (Privacy Act), the Department of Education (Department) publishes this notice proposing to revise the system of records notice for the Hotline Complaint Files of the Inspector General (18-10-04), 64 FR 30157-59 (June 4, 1999). The Department proposes to amend this system of records notice by: (1) Adding that a purpose of the system is to report on complaints and allegations related to American Recovery and Reinvestment Act of 2009 (ARRA) funds to the Recovery Accountability and Transparency Board (RATB) as established by the ARRA (Pub. L. 111- 5); (2) adding a new routine use to allow the disclosure of ARRA- related complaints and allegations to the RATB; (3) adding a new routine use to allow for disclosure of information in connection with response and remedial efforts in the event of a data breach in accordance with Office of Management and Budget (OMB) requirements in M-07-16 (May 22, 2007); (4) revising the routine use ``Disclosure to Public and Private Sources in Connection with the Higher Education Act of 1965, as amended (HEA)'' to allow the disclosure of information to an educational institution or a school that is or was a party to an agreement with the Secretary of Education pursuant to the HEA; and (5) updating the address of the System Manager.

  6. 45 CFR 2508.8 - Who is responsible for establishing the Corporation's rules of conduct for Privacy Act compliance?

    Science.gov (United States)

    2010-10-01

    ... Corporation's rules of conduct for Privacy Act compliance? 2508.8 Section 2508.8 Public Welfare Regulations Relating to Public Welfare (Continued) CORPORATION FOR NATIONAL AND COMMUNITY SERVICE IMPLEMENTATION OF THE PRIVACY ACT OF 1974 § 2508.8 Who is responsible for establishing the Corporation's rules of conduct for...

  7. SecureMA: protecting participant privacy in genetic association meta-analysis.

    Science.gov (United States)

    Xie, Wei; Kantarcioglu, Murat; Bush, William S; Crawford, Dana; Denny, Joshua C; Heatherly, Raymond; Malin, Bradley A

    2014-12-01

    Sharing genomic data is crucial to support scientific investigation such as genome-wide association studies. However, recent investigations suggest the privacy of the individual participants in these studies can be compromised, leading to serious concerns and consequences, such as overly restricted access to data. We introduce a novel cryptographic strategy to securely perform meta-analysis for genetic association studies in large consortia. Our methodology is useful for supporting joint studies among disparate data sites, where privacy or confidentiality is of concern. We validate our method using three multisite association studies. Our research shows that genetic associations can be analyzed efficiently and accurately across substudy sites, without leaking information on individual participants and site-level association summaries. Our software for secure meta-analysis of genetic association studies, SecureMA, is publicly available at http://github.com/XieConnect/SecureMA. Our customized secure computation framework is also publicly available at http://github.com/XieConnect/CircuitService. © The Author 2014. Published by Oxford University Press. All rights reserved. For Permissions, please e-mail: journals.permissions@oup.com.

  8. 78 FR 47309 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-08-05

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records... Defense Finance and Accounting Service systems of records notices subject to the Privacy Act of 1974 (5 U...

  9. 78 FR 9721 - Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management...

    Science.gov (United States)

    2013-02-11

    ... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-06-C] Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management System: Republication of System.... SUMMARY: Pursuant to the provision of the Privacy Act of 1974, HUD is providing notice of its formal...

  10. 76 FR 44888 - Privacy Act of 1974, System of Records

    Science.gov (United States)

    2011-07-27

    ... Privacy Act of 1974 (5 U.S.C. 552a), as amended, entitled ``USAID-30, Google Apps Business Edition''. This... . SUPPLEMENTARY INFORMATION: The Google Apps Business Edition is being established as an Agency-wide system of...'') cloud computing model. The suite is composed of Gmail for e-mail, Google Docs for office productivity...

  11. 76 FR 114 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-01-03

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a system of records. SUMMARY: The Defense Contract Audit Agency is proposing to amend a system of records notice in its... INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy Act of 1974...

  12. 76 FR 115 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-01-03

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a system of records. SUMMARY: The Defense Contract Audit Agency is proposing to amend a system of records notice in its... INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy Act of 1974...

  13. 75 FR 9012 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/U.S. Department of Health and...

    Science.gov (United States)

    2010-02-26

    ... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503), amended... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2009-0052] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ U.S. Department of Health and Human Services (HHS), Administration for...

  14. 78 FR 22522 - Privacy Act of 1974: New System of Records

    Science.gov (United States)

    2013-04-16

    ... System cannot access records through the biometric hand reader technology. RETENTION AND DISPOSAL: The... Privacy Act of 1974 (5 U.S.C. 552a), as amended, titled ``Biometric Verification System (CSOSA-20).'' This... Biometric Verification System allows individuals under supervision to electronically check-in for office...

  15. 76 FR 72428 - Privacy Act of 1974; Department of Homeland Security/ALL-017 General Legal Records System of Records

    Science.gov (United States)

    2011-11-23

    ... http://www.regulations.gov . FOR FURTHER INFORMATION CONTACT: For general questions and privacy issues... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0094] Privacy Act of 1974; Department of Homeland Security/ALL--017 General Legal Records System of Records AGENCY: Privacy...

  16. 76 FR 21902 - Privacy Act of 1974; Report of a New System of Records

    Science.gov (United States)

    2011-04-19

    ..., Information and Systems Management Services (ISMS), U.S. Department of Health and Human Services, Parklawn... Privacy Act of 1974; the Federal Information Security Management Act of 2002; the Computer Fraud and Abuse... for integrating acquisition with financial management (one interface between HCAS and UFMS) and other...

  17. 77 FR 48199 - Privacy Act; System of Records: State-35, Information Access Programs Records

    Science.gov (United States)

    2012-08-13

    ..., the Privacy Act, the Ethics in Government Act, the access provisions of Executive Order 13526 or a...; requester's name and requester's mailing and email address; Social Security number (if provided by the...: Hard copy and electronic media. RETRIEVABILITY: Individual name, case number. SAFEGUARDS: All users are...

  18. 75 FR 30411 - Privacy Act of 1974; Report of a Modified or Altered System of Records

    Science.gov (United States)

    2010-06-01

    ... Privacy Act of 1974; the Federal Information Security Management Act of 2002; the Computer Fraud and Abuse... Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the Health Insurance Portability... systems and data files necessary for compliance with Title XI, Part C of the Social Security Act because...

  19. Reassessing insurers' access to genetic information: genetic privacy, ignorance, and injustice.

    Science.gov (United States)

    Feiring, Eli

    2009-06-01

    Many countries have imposed strict regulations on the genetic information to which insurers have access. Commentators have warned against the emerging body of legislation for different reasons. This paper demonstrates that, when confronted with the argument that genetic information should be available to insurers for health insurance underwriting purposes, one should avoid appeals to rights of genetic privacy and genetic ignorance. The principle of equality of opportunity may nevertheless warrant restrictions. A choice-based account of this principle implies that it is unfair to hold people responsible for the consequences of the genetic lottery, since we have no choice in selecting our genotype or the expression of it. However appealing, this view does not take us all the way to an adequate justification of inaccessibility of genetic information. A contractarian account, suggesting that health is a condition of opportunity and that healthcare is an essential good, seems more promising. I conclude that if or when predictive medical tests (such as genetic tests) are developed with significant actuarial value, individuals have less reason to accept as fair institutions that limit access to healthcare on the grounds of risk status. Given the assumption that a division of risk pools in accordance with a rough estimate of people's level of (genetic) risk will occur, fairness and justice favour universal health insurance based on solidarity.

  20. Genetic privacy and confidentiality: why they are so hard to protect.

    Science.gov (United States)

    Rothstein, M A

    1998-01-01

    Author notes that widespread concerns have been raised about protecting genetic privacy and confidentiality in insurance and employment. He argues that effective protections are difficult because complicated issues, such as the right of access to health care, are invariably implicated.

  1. 78 FR 12127 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of the Treasury...

    Science.gov (United States)

    2013-02-21

    ... 1310 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer..., as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2013-0007] Privacy Act of 1974, as Amended...

  2. 75 FR 51154 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of the Treasury...

    Science.gov (United States)

    2010-08-18

    ... 1310 AGENCY: Social Security Administration (SSA) ACTION: Notice of a renewal of an existing computer..., as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0035] Privacy Act of 1974, as Amended...

  3. 77 FR 41997 - Privacy Act of 1974; Notice of a New System of Records, Office of General Counsel E-Discovery...

    Science.gov (United States)

    2012-07-17

    ... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-06] Privacy Act of 1974; Notice of a New System of Records, Office of General Counsel E-Discovery Management System AGENCY: Office of the Chief Information Officer. ACTION: Notification of New Privacy Act System of Records, E-Discovery...

  4. 32 CFR Appendix G to Part 323 - Privacy Act Enforcement Actions

    Science.gov (United States)

    2010-07-01

    ... right granted by this DLAR will be permitted to seek relief through appropriate administrative channels... damages, court cost, and attorney fees in some cases. D. Criminal Penalties— 1. The Privacy Act also provides for criminal penalties (see 5 U.S.C. 552a(1).) Any official or employee may be found guilty of a...

  5. 75 FR 68396 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Labor (DOL))-Match...

    Science.gov (United States)

    2010-11-05

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0052] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Labor (DOL))--Match Number 1003 AGENCY: Social Security... as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection...

  6. 76 FR 53921 - Privacy Act of 1974; Department of Homeland Security ALL-034 Emergency Care Medical Records...

    Science.gov (United States)

    2011-08-30

    ... AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of records. SUMMARY: In accordance with... Security Office of Health Affairs to collect and maintain records on individuals who receive emergency care... consistent, quality medical care. To support MQM, OHA operates the electronic Patient Care Record (ePCR), an...

  7. 75 FR 33608 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-06-14

    ...In accordance with the Privacy Act of 1974, as amended (Privacy Act), the Department of Education (Department) publishes this notice proposing to revise the system of records notice for the Investigative Files of the Inspector General (18-10-01), 68 FR 38154 (June 26, 2003). The Department proposes to amend this system of records notice by: (1) Adding a new routine use to allow reporting on the activities of the Inspector General regarding American Recovery and Reinvestment Act funds to the Recovery Accountability and Transparency Board (RATB) as established by the American Recovery and Reinvestment Act of 2009 (Pub. L. 111-5); (2) adding a new routine use to allow for disclosure of information in connection with response and remedial efforts in the event of a data breach in accordance with Office of Management and Budget (OMB) requirements in M-07-16 (May 22, 2007); (3) revising routine uses ``(12) Disclosure to the President's Council on Integrity and Efficiency'' and ``(13) Disclosure for Qualitative Assessment Reviews'' to allow reporting on the activities of the Inspector General to the Council of Inspectors General on Integrity and Efficiency (formerly the President's Council on Integrity and Efficiency) as established by the Inspector General Reform Act of 2008 (Pub. L. 110-409); (4) revising the routine use ``(4) Disclosure to Public and Private Sources in Connection with the Higher Education Act of 1965, as Amended (HEA)'' to allow the disclosure of information to an educational institution or a school that is or was a party to an agreement with the Secretary of Education pursuant to the HEA; and (5) updating the system location addresses. This system of records provides essential support for investigative activities of the Office of Inspector General (OIG) relating to the Department's programs and operations, enabling the OIG to secure and maintain the necessary information and to coordinate with other law enforcement agencies as appropriate.

  8. Laboratory specimens and genetic privacy: evolution of legal theory.

    Science.gov (United States)

    Lewis, Michelle Huckaby

    2013-03-01

    Although laboratory specimens are an important resource for biomedical research, controversy has arisen when research has been conducted without the knowledge or consent of the individuals who were the source of the specimens. This paper summarizes the most important litigation regarding the research use of laboratory specimens and traces the evolution of legal theory from property claims to claims related to genetic privacy interests. © 2013 American Society of Law, Medicine & Ethics, Inc.

  9. 39 CFR 262.5 - Systems (Privacy).

    Science.gov (United States)

    2010-07-01

    ... 39 Postal Service 1 2010-07-01 2010-07-01 false Systems (Privacy). 262.5 Section 262.5 Postal... DEFINITIONS § 262.5 Systems (Privacy). (a) Privacy Act system of records. A Postal Service system containing... individual. (c) Computer matching program. A “matching program,” as defined in the Privacy Act, 5 U.S.C. 552a...

  10. 77 FR 6620 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/the States); Match 6000 and 6003

    Science.gov (United States)

    2012-02-08

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0102] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ the States); Match 6000 and 6003 AGENCY: Social Security Administration..., as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection...

  11. 76 FR 12398 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Bureau of the Public Debt (BPD...

    Science.gov (United States)

    2011-03-07

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0034] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Bureau of the Public Debt (BPD))--Match Number 1304 AGENCY: Social Security... as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection...

  12. 75 FR 17937 - Privacy Act of 1974; Deletion of an Existing System of Records

    Science.gov (United States)

    2010-04-08

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Privacy Act... Clinician Recruitment and Service (BCRS), Health Resources and Services Administration (HRSA), 5600 Fishers... Administrator, Bureau of Clinician Recruitment and Service (BCRS), Health Resources and Services Administration...

  13. 76 FR 4436 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... following Breach Response Routine Use Language to comply with the Office of Management and Budget [[Page 4437

  14. 5 CFR 2606.106 - OGE employee Privacy Act rules of conduct and responsibilities.

    Science.gov (United States)

    2010-01-01

    ... 5 Administrative Personnel 3 2010-01-01 2010-01-01 false OGE employee Privacy Act rules of conduct and responsibilities. 2606.106 Section 2606.106 Administrative Personnel OFFICE OF GOVERNMENT ETHICS... requirement to inform each individual asked to supply information to be maintained in a system of records the...

  15. 78 FR 54445 - Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System

    Science.gov (United States)

    2013-09-04

    ... INFORMATION CONTACT: Mr. Christian B. Dellis, Export Services, Plant Health Programs, Plant Protection and... DEPARTMENT OF AGRICULTURE Office of the Secretary [Docket No. APHIS-2012-0104] Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System AGENCY: Animal and Plant Health...

  16. 77 FR 65049 - Privacy Act; System of Records: Translator and Interpreter Records, State-37

    Science.gov (United States)

    2012-10-24

    ... DEPARTMENT OF STATE [Public Notice 8066] Privacy Act; System of Records: Translator and... an existing system of records, Translator and Interpreter Records, State-37, pursuant to the... INFORMATION: The Department of State proposes that the current system will retain the name ``Translator and...

  17. 76 FR 45336 - Departmental Offices; Privacy Act of 1974, as Amended; Systems of Records

    Science.gov (United States)

    2011-07-28

    ... Inspector General.'' * * * * * Purpose(s): Description of change: The period ``.'' at the end of the... 510, Washington, DC 20220. For records provided by the general public concerning financial instrument... Records AGENCY: Office of Inspector General, Treasury. ACTION: Notice of Alteration to a Privacy Act...

  18. 75 FR 17938 - Privacy Act of 1974; Deletion of an Existing System of Records

    Science.gov (United States)

    2010-04-08

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Privacy Act of 1974; Deletion of an Existing System of Records AGENCY: Department of Health and Human Services... address comments to: Policy Director, Bureau of Clinician Recruitment and Service (BCRS), Health Resources...

  19. 78 FR 29786 - Computer Matching and Privacy Protection Act of 1988; Report of Matching Program: RRB and State...

    Science.gov (United States)

    2013-05-21

    ... required by the Privacy Act of 1974, as amended, the RRB is issuing a public notice in the Federal Register... benefits under the Railroad Retirement Act that the RRB plans to share this computer matching data with...

  20. 78 FR 37775 - Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System

    Science.gov (United States)

    2013-06-24

    ... DEPARTMENT OF AGRICULTURE Office of the Secretary [Docket No. APHIS-2012-0104] Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System AGENCY: Animal and Plant Health... Health Inspection Service proposes to add a system of records to its inventory of records systems subject...

  1. 76 FR 5973 - Privacy Act of 1974; Notice; Publication of the Systems of Records Managed by the Commodity...

    Science.gov (United States)

    2011-02-02

    ... System CFTC-39 Freedom of Information Act Requests CFTC-40 Privacy Act Requests CFTC-41 Requests for... provisions of the Freedom of Information Act. Nonpublic portions may be used for any purpose specifically... harassment (sexual or non-sexual) on the basis of their race color, religion, sex (gender), national origin...

  2. 48 CFR 39.105 - Privacy.

    Science.gov (United States)

    2010-10-01

    ... 48 Federal Acquisition Regulations System 1 2010-10-01 2010-10-01 false Privacy. 39.105 Section 39... CONTRACTING ACQUISITION OF INFORMATION TECHNOLOGY General 39.105 Privacy. Agencies shall ensure that contracts for information technology address protection of privacy in accordance with the Privacy Act (5 U.S.C...

  3. Privacy and Library Records

    Science.gov (United States)

    Bowers, Stacey L.

    2006-01-01

    This paper summarizes the history of privacy as it relates to library records. It commences with a discussion of how the concept of privacy first originated through case law and follows the concept of privacy as it has affected library records through current day and the "USA PATRIOT Act."

  4. 75 FR 54528 - Privacy Act of 1974: Implementation of Exemptions United States Citizenship and Immigration...

    Science.gov (United States)

    2010-09-08

    ... States Citizenship and Immigration Services-012 Citizenship and Immigration Data Repository System of... the Privacy Act of 1974 for the United States Citizenship and Immigration Services- 012 Citizenship and Immigration Data Repository System of Records system of records and this proposed rulemaking. In...

  5. 76 FR 4476 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of.../NCCDPHP.'' HHS is proposing adding the following Breach Response Routine Use Language to comply with the... Breach of Personally Identifiable Information: ``To appropriate federal agencies and Department...

  6. 76 FR 4463 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Program Records, HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use... and responding to the Breach of Personally Identifiable Information: [[Page 4464

  7. 76 FR 4443 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Health Benefit Recipients, HHS/CDC/NCHSTP.'' HHS is proposing to add the following Breach Response..., Safeguarding Against and Responding to the Breach of Personally Identifiable Information. To appropriate...

  8. Access to Information and Privacy | IDRC - International ...

    International Development Research Centre (IDRC) Digital Library (Canada)

    As a Crown corporation, IDRC is subject to Canada's laws on access to information and privacy protection. The following resources will help you learn more about IDRC and the access to information and privacy acts, including instructions for submitting an access to information or privacy act (ATIP) request. IDRC and ATIP ...

  9. Sharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validation.

    Science.gov (United States)

    Sarwate, Anand D; Plis, Sergey M; Turner, Jessica A; Arbabshirani, Mohammad R; Calhoun, Vince D

    2014-01-01

    The growth of data sharing initiatives for neuroimaging and genomics represents an exciting opportunity to confront the "small N" problem that plagues contemporary neuroimaging studies while further understanding the role genetic markers play in the function of the brain. When it is possible, open data sharing provides the most benefits. However, some data cannot be shared at all due to privacy concerns and/or risk of re-identification. Sharing other data sets is hampered by the proliferation of complex data use agreements (DUAs) which preclude truly automated data mining. These DUAs arise because of concerns about the privacy and confidentiality for subjects; though many do permit direct access to data, they often require a cumbersome approval process that can take months. An alternative approach is to only share data derivatives such as statistical summaries-the challenges here are to reformulate computational methods to quantify the privacy risks associated with sharing the results of those computations. For example, a derived map of gray matter is often as identifiable as a fingerprint. Thus alternative approaches to accessing data are needed. This paper reviews the relevant literature on differential privacy, a framework for measuring and tracking privacy loss in these settings, and demonstrates the feasibility of using this framework to calculate statistics on data distributed at many sites while still providing privacy.

  10. Sharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validation

    Directory of Open Access Journals (Sweden)

    Anand D. Sarwate

    2014-04-01

    Full Text Available The growth of data sharing initiatives for neuroimaging and genomics represents an exciting opportunity to confront the ``small $N$'' problem that plagues contemporary neuroimaging studies while further understanding the role genetic markers play in in the function of the brain. When it is possible, open data sharing provides the most benefits. However some data cannot be shared at all due to privacy concerns and/or risk of re-identification. Sharing other data sets is hampered by the proliferation of complex data use agreements (DUAs which preclude truly automated data mining. These DUAs arise because of concerns about the privacy and confidentiality for subjects; though many do permit direct access to data, they often require a cumbersome approval process that can take months. An alternative approach is to only share data derivatives such as statistical summaries -- the challenges here are to reformulate computational methods to quantify the privacy risks associated with sharing the results of those computations. For example, a derived map of gray matter is often as identifiable as a fingerprint. Thus alternative approaches to accessing data are needed. This paper reviews the relevant literature on differential privacy, a framework for measuring and tracking privacy loss in these settings, and demonstrates the feasibility of using this framework to calculate statistics on data distributed at many sites while still providing privacy.

  11. Sharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validation

    Science.gov (United States)

    Sarwate, Anand D.; Plis, Sergey M.; Turner, Jessica A.; Arbabshirani, Mohammad R.; Calhoun, Vince D.

    2014-01-01

    The growth of data sharing initiatives for neuroimaging and genomics represents an exciting opportunity to confront the “small N” problem that plagues contemporary neuroimaging studies while further understanding the role genetic markers play in the function of the brain. When it is possible, open data sharing provides the most benefits. However, some data cannot be shared at all due to privacy concerns and/or risk of re-identification. Sharing other data sets is hampered by the proliferation of complex data use agreements (DUAs) which preclude truly automated data mining. These DUAs arise because of concerns about the privacy and confidentiality for subjects; though many do permit direct access to data, they often require a cumbersome approval process that can take months. An alternative approach is to only share data derivatives such as statistical summaries—the challenges here are to reformulate computational methods to quantify the privacy risks associated with sharing the results of those computations. For example, a derived map of gray matter is often as identifiable as a fingerprint. Thus alternative approaches to accessing data are needed. This paper reviews the relevant literature on differential privacy, a framework for measuring and tracking privacy loss in these settings, and demonstrates the feasibility of using this framework to calculate statistics on data distributed at many sites while still providing privacy. PMID:24778614

  12. 76 FR 4469 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use Language to comply... to the Breach of Personally Identifiable Information: To appropriate Federal agencies and Department...

  13. 76 FR 4445 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., ``Alien Mental Waiver Program, HHS/CDC/ NCID. HHS is proposing to add the following Breach Response..., Safeguarding Against and Responding to the Breach of Personally Identifiable Information: To appropriate...

  14. 76 FR 4452 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of.../NCID.'' HHS is proposing to add the following Breach Response Routine Use Language to comply with the... Breach of Personally Identifiable Information: To appropriate federal agencies and Department contractors...

  15. 76 FR 4451 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., ``Fellowship Program and Guest Researcher Records, HHS/CDC/AHRC.'' HHS is proposing to add the following Breach..., Safeguarding Against and responding to the Breach of Personally Identifiable Information: To appropriate...

  16. 76 FR 4460 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07- 16, Safeguarding Against and responding to the Breach of Personally...

  17. 76 FR 4435 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Interpreting Physician File, HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use... and responding to the Breach of Personally Identifiable Information: To appropriate Federal agencies...

  18. 76 FR 4474 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally Identifiable Information...

  19. 76 FR 4466 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use Language to comply... to the Breach of Personally Identifiable Information: To appropriate federal agencies and Department...

  20. 76 FR 4478 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., HHS/CDC/NCHSTP.'' HHS is proposing to add the following Breach Response Routine Use Language to comply... to the Breach of Personally Identifiable Information: To appropriate Federal agencies and Department...

  1. 76 FR 4449 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally Identifiable Information...

  2. 75 FR 82061 - Notice To Amend an Existing System of Records; Privacy Act of 1974; as Amended

    Science.gov (United States)

    2010-12-29

    ... or aliens lawfully admitted for permanent residence) are subject to the Privacy Act. This system... requesting notification of the existence of records on himself or herself should send or provide a signed...

  3. 21 CFR 21.71 - Disclosure of records in Privacy Act Record Systems; accounting required.

    Science.gov (United States)

    2010-04-01

    ... accounting shall be made, in accordance with paragraph (e) of this section, of any disclosure under paragraph (a) of this section of a record that is not a disclosure under § 21.70. (e) Where an accounting is... of the disclosure. The accounting shall not be considered a Privacy Act Record System. (2) Retain the...

  4. 76 FR 4462 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally...

  5. 76 FR 4446 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... to add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally...

  6. 76 FR 4438 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally Identifiable...

  7. 78 FR 41924 - Privacy Act of 1974; System of Records-Impact Evaluation of Math Professional Development

    Science.gov (United States)

    2013-07-12

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records--Impact Evaluation of Math... ``Impact Evaluation of Math Professional Development'' (18-13-35). The National Center for Education...-focused math professional development (PD) program on teacher knowledge, teacher practices, and student...

  8. 76 FR 79114 - Privacy Act of 1974: Implementation of Exemptions; DOT/ALL 23-Information Sharing Environment...

    Science.gov (United States)

    2011-12-21

    ...] Privacy Act of 1974: Implementation of Exemptions; DOT/ALL 23-- Information Sharing Environment (ISE... titled, ``DOT/ALL 23--Information Sharing Environment (ISE) Suspicious Activity Reporting (SAR... exempts portions of the ``DOT/ALL 23--Information Sharing Environment (ISE) Suspicious Activity Reporting...

  9. 75 FR 5487 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Customs...

    Science.gov (United States)

    2010-02-03

    ... individual, is a strange use of Privacy Act exemptions. Response: The language of Routine Use M was drafted... sets of circumstances, will remain accessible for the life of the law enforcement matter. Redress and...

  10. 76 FR 4440 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of....'' HHS is proposing to add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach...

  11. 76 FR 4458 - Privacy Act of 1974; Report of Modified or Altered System of Records

    Science.gov (United States)

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... proposing to add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and Responding to the Breach of Personally...

  12. Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions.

    Science.gov (United States)

    Kass, Nancy E; Hull, Sara Chandros; Natowicz, Marvin R; Faden, Ruth R; Plantinga, Laura; Gostin, Lawrence O; Slutsman, Julia

    2004-07-30

    There has been heightened legislative attention to medical privacy and to protections from genetic discrimination, without large-scale studies to document privacy concerns or analysis of whether experiences differ by whether the condition is genetic (defined here as a single-gene disorder) or non-genetic. To determine whether experiences regarding privacy, disclosure, and consequences of disclosure differ by whether one's medical condition is genetic, we conducted a descriptive study with one-time, structured quantitative and qualitative interviews. We interviewed approximately 100 adults or parents of children with each of the following medical conditions: sickle cell disease, cystic fibrosis, diabetes, and HIV, and 200 adults with or at risk for breast cancer or colon cancer. The percentages of the total 597 respondents experiencing positive or negative consequences of disclosure and the degree to which experiences differed by whether the condition was genetic were the outcomes of interest. Seventy-four percent were glad and 13% regretted others knew about their condition; these findings did not differ significantly by genetic vs. non-genetic condition. Reports of job and health insurance discrimination were not uncommon for the overall study population (19 and 27%, respectively) but were more likely among those with genetic conditions (30 and 37%, respectively). Legislation and other policy-making should target the needs of persons with all conditions and not focus exclusively on genetic discrimination, given that experiences and concerns generally do not differ based on the genetic etiology of the condition. Copyright 2004 Wiley-Liss, Inc.

  13. Privacy Protection: Mandating New Arrangements to Implement and Assess Federal Privacy Policy and Practice

    National Research Council Canada - National Science Library

    Relyea, Harold C

    2004-01-01

    When Congress enacted the Privacy Act of 1974, it established a temporary national study commission to conduct a comprehensive assessment of privacy policy and practice in both the public and private...

  14. 78 FR 48170 - Privacy Act of 1974; CMS Computer Match No. 2013-12; HHS Computer Match No. 1307; SSA Computer...

    Science.gov (United States)

    2013-08-07

    ....hhs.gov . SUPPLEMENTARY INFORMATION: The Computer Matching and Privacy Protection Act of 1988 (Public... computer matching involving Federal agencies could be performed and adding certain protections for... Affordability Programs under the Patient Protection and Affordable Care Act''. SECURITY CLASSIFICATION...

  15. 78 FR 43890 - Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency-006...

    Science.gov (United States)

    2013-07-22

    ... titled, ``Department of Homeland Security/Federal Emergency Management Agency--006 Citizen Corps Database... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2013-0049] Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency--006 Citizen Corps Program...

  16. 77 FR 74913 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA...

    Science.gov (United States)

    2012-12-18

    ...; Computer Matching Program (Social Security Administration (SSA)/Office of Personnel Management (OPM.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub... computer matching involving the Federal government could be performed and adding certain protections for...

  17. Privacy and ethics in pediatric environmental health research-part I: genetic and prenatal testing.

    Science.gov (United States)

    Fisher, Celia B

    2006-10-01

    The pressing need for empirically informed public policies aimed at understanding and promoting children's health has challenged environmental scientists to modify traditional research paradigms and reevaluate their roles and obligations toward research participants. Methodologic approaches to children's environmental health research raise ethical challenges for which federal regulations may provide insufficient guidance. In this article I begin with a general discussion of privacy concerns and informed consent within pediatric environmental health research contexts. I then turn to specific ethical challenges associated with research on genetic determinants of environmental risk, prenatal studies and maternal privacy, and data causing inflicted insight or affecting the informational rights of third parties.

  18. Human Rights, Privacy and Medical Research; Analysing UK Policy on Tissue and Data

    OpenAIRE

    Gillott, John

    2006-01-01

    This report is one outcome of a study into privacy and human genetics initiated by John Gillott and staff and trustees of the Genetic Interest Group. \\ud \\ud The initial focus was on genetics and human rights, with an emphasis on legal aspects and policy decisions informed by law and rights ideology. Article 8 of the Human Rights Act 1998, the right to respect for private and family life,1 is of most relevance to this study, though other Articles are considered.\\ud \\ud The study as a whole co...

  19. Privacy Challenges of Genomic Big Data.

    Science.gov (United States)

    Shen, Hong; Ma, Jian

    2017-01-01

    With the rapid advancement of high-throughput DNA sequencing technologies, genomics has become a big data discipline where large-scale genetic information of human individuals can be obtained efficiently with low cost. However, such massive amount of personal genomic data creates tremendous challenge for privacy, especially given the emergence of direct-to-consumer (DTC) industry that provides genetic testing services. Here we review the recent development in genomic big data and its implications on privacy. We also discuss the current dilemmas and future challenges of genomic privacy.

  20. The "GeneTrustee": a universal identification system that ensures privacy and confidentiality for human genetic databases.

    Science.gov (United States)

    Burnett, Leslie; Barlow-Stewart, Kris; Proos, Anné L; Aizenberg, Harry

    2003-05-01

    This article describes a generic model for access to samples and information in human genetic databases. The model utilises a "GeneTrustee", a third-party intermediary independent of the subjects and of the investigators or database custodians. The GeneTrustee model has been implemented successfully in various community genetics screening programs and has facilitated research access to genetic databases while protecting the privacy and confidentiality of research subjects. The GeneTrustee model could also be applied to various types of non-conventional genetic databases, including neonatal screening Guthrie card collections, and to forensic DNA samples.

  1. 75 FR 40014 - Privacy Act of 1974, as Amended; Proposed System of Records and Routine Use Disclosures

    Science.gov (United States)

    2010-07-13

    ...: Economic Recovery List (ERL) Database, Social Security Administration. SYSTEM CLASSIFICATION: None. SYSTEM... SOCIAL SECURITY ADMINISTRATION Privacy Act of 1974, as Amended; Proposed System of Records and Routine Use Disclosures AGENCY: Social Security Administration (SSA). ACTION: Proposed System of Records...

  2. 77 FR 5062 - Privacy Act of 1974; Consolidation of National Labor Relations Board Systems of Records

    Science.gov (United States)

    2012-02-01

    ...: Next Generation Case Management System (NxGen) (NLRB-33). NxGen stores electronic case tracking... consolidation of six Privacy Act systems of records notices into one notice: Next Generation Case Management... systems of records notices: Judicial Case Management System--Pending Case List (JCMS-PCL) and Associated...

  3. 78 FR 32256 - Privacy Act of 1974; Report of an Altered CMS System of Records Notice

    Science.gov (United States)

    2013-05-29

    ... 1974; Report of an Altered CMS System of Records Notice AGENCY: Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services (HHS). ACTION: Altered System of Records Notice (SORN). SUMMARY: In accordance with the requirements of the Privacy Act of 1974 (5 USC 552a), CMS...

  4. 78 FR 23811 - Privacy Act of 1974; Proposed New Routine Uses and System of Records Alterations

    Science.gov (United States)

    2013-04-22

    ... Commissioner of Social Security, and, (c) Investigating issues of fraud or violations of civil rights by... property interests, risk of identity theft or fraud, or harm to the security or integrity of this system or... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2013-0015] Privacy Act of 1974; Proposed New...

  5. Owning genetic information and gene enhancement techniques: why privacy and property rights may undermine social control of the human genome.

    Science.gov (United States)

    Moore, A D

    2000-04-01

    In this article I argue that the proper subjects of intangible property claims include medical records, genetic profiles, and gene enhancement techniques. Coupled with a right to privacy these intangible property rights allow individuals a zone of control that will, in most cases, justifiably exclude governmental or societal invasions into private domains. I argue that the threshold for overriding privacy rights and intangible property rights is higher, in relation to genetic enhancement techniques and sensitive personal information, than is commonly suggested. Once the bar is raised, so-to-speak, the burden of overriding it is formidable. Thus many policy decisions that have been recently proposed or enacted--citywide audio and video surveillance, law enforcement DNA sweeps, genetic profiling, national bans on genetic testing and enhancement of humans, to name a few--will have to be backed by very strong arguments.

  6. 78 FR 4347 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security; U.S. Customs...

    Science.gov (United States)

    2013-01-22

    ... Secretary 6 CFR Part 5 [Docket No. DHS-2012-0035] Privacy Act of 1974: Implementation of Exemptions... trademark or copyright. This information allows retailers, consumers, and other businesses to contact the..., law enforcement, or intelligence agencies (federal, state, local, foreign, international or tribal) in...

  7. 76 FR 66940 - Privacy Act of 1974; Department of Homeland Security/United States Secret Service-004 Protection...

    Science.gov (United States)

    2011-10-28

    ... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0083] Privacy Act of 1974; Department of Homeland Security/United States Secret Service--004 Protection Information System... Security (DHS)/United States Secret Service (USSS)-004 System name: DHS/USSS-004 Protection Information...

  8. 75 FR 54213 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Personnel Management...

    Science.gov (United States)

    2010-09-03

    ... 1021 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub... computer matching involving the Federal government could be performed and adding certain protections for...

  9. 78 FR 15889 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security U.S. Customs...

    Science.gov (United States)

    2013-03-13

    ... individual. However, the Privacy Act requires DHS to maintain an accounting of the disclosures made pursuant...)(3) and (4) (Accounting for Disclosures) because release of the accounting of disclosures could alert... the recipient agency. Disclosure of the accounting would therefore present a serious impediment to law...

  10. 77 FR 32709 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Homeland Security...

    Science.gov (United States)

    2012-06-01

    ...; Computer Matching Program (SSA/ Department of Homeland Security (DHS))--Match Number 1010 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching program that... amended by the Computer Matching and Privacy Protection Act of 1988, as amended, and the regulations and...

  11. 75 FR 53005 - Privacy Act of 1974, as amended; Notice of Computer Matching Program (Railroad Retirement Board...

    Science.gov (United States)

    2010-08-30

    ... notice of its renewal of an ongoing computer-matching program with the Social Security Administration... computer-matching program with the Committee on Homeland Security and Governmental Affairs of the Senate.... General The Computer Matching and Privacy Protection Act of 1988, (Pub. L. 100-503), amended by the...

  12. 78 FR 4968 - Privacy Act of 1974, Computer Matching Program-U.S. Small Business Administration and U.S...

    Science.gov (United States)

    2013-01-23

    ... Small Business Administration (SBA) and the Department of Homeland Security, Federal Emergency... Security Officer, Office of the Chief Information Officer, Small Business Administration. Eric Won, Chief... SMALL BUSINESS ADMINISTRATION Privacy Act of 1974, Computer Matching Program--U.S. Small Business...

  13. 76 FR 41274 - Privacy Act of 1974; Department of Homeland Security/ALL-033 Reasonable Accommodations Records...

    Science.gov (United States)

    2011-07-13

    ..., telecommuting, or reassignment to a vacant position; and/or (3) acquisition or modification of equipment or... the control of an agency for which information is retrieved by the name of an individual or by some... possession or under the control of DHS by complying with DHS Privacy Act regulations, 6 CFR Part 5. The...

  14. 75 FR 8088 - Privacy Act of 1974; Department of Homeland Security/ALL-023 Personnel Security Management System...

    Science.gov (United States)

    2010-02-23

    ... risk of harm to economic or property interests, identity theft or fraud, or harm to the security or... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2009-0041] Privacy Act of 1974; Department of Homeland Security/ALL--023 Personnel Security Management System of Records AGENCY...

  15. 75 FR 35847 - Privacy Act of 1974, Computer Matching Program-U.S. Small Business Administration and U.S...

    Science.gov (United States)

    2010-06-23

    ... ID Number, Product (Home/Business) and Registration Occupant Social Security Number to create a New... SMALL BUSINESS ADMINISTRATION Privacy Act of 1974, Computer Matching Program--U.S. Small Business Administration and U.S. Department of Homeland Security, Federal Emergency Management Agency AGENCY: Small...

  16. 78 FR 37875 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Bureau of the Fiscal Service...

    Science.gov (United States)

    2013-06-24

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988... computer matching involving the Federal government could be performed and adding certain protections for...

  17. Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador.

    Science.gov (United States)

    Kosseim, Patricia; Pullman, Daryl; Perrot-Daley, Astrid; Hodgkinson, Kathy; Street, Catherine; Rahman, Proton

    2013-01-01

    To provide a legal and ethical analysis of some of the implementation challenges faced by the Population Therapeutics Research Group (PTRG) at Memorial University (Canada), in using genealogical information offered by individuals for its genetics research database. This paper describes the unique historical and genetic characteristics of the Newfoundland and Labrador founder population, which gave rise to the opportunity for PTRG to build the Newfoundland Genealogy Database containing digitized records of all pre-confederation (1949) census records of the Newfoundland founder population. In addition to building the database, PTRG has developed the Heritability Analytics Infrastructure, a data management structure that stores genotype, phenotype, and pedigree information in a single database, and custom linkage software (KINNECT) to perform pedigree linkages on the genealogy database. A newly adopted legal regimen in Newfoundland and Labrador is discussed. It incorporates health privacy legislation with a unique research ethics statute governing the composition and activities of research ethics boards and, for the first time in Canada, elevating the status of national research ethics guidelines into law. The discussion looks at this integration of legal and ethical principles which provides a flexible and seamless framework for balancing the privacy rights and welfare interests of individuals, families, and larger societies in the creation and use of research data infrastructures as public goods. The complementary legal and ethical frameworks that now coexist in Newfoundland and Labrador provide the legislative authority, ethical legitimacy, and practical flexibility needed to find a workable balance between privacy interests and public goods. Such an approach may also be instructive for other jurisdictions as they seek to construct and use biobanks and related research platforms for genetic research.

  18. A Framework for Privacy-preserving Classification of Next-generation PHR data.

    Science.gov (United States)

    Koufi, Vassiliki; Malamateniou, Flora; Prentza, Andriana; Vassilacopoulos, George

    2014-01-01

    Personal Health Records (PHRs), integrated with data from various sources, such as social care data, Electronic Health Record data and genetic information, are envisaged as having a pivotal role in transforming healthcare. These data, lumped under the term 'big data', are usually complex, noisy, heterogeneous, longitudinal and voluminous thus prohibiting their meaningful use by clinicians. Deriving value from these data requires the utilization of innovative data analysis techniques, which, however, may be hindered due to potential security and privacy breaches that may arise from improper release of personal health information. This paper presents a HIPAA-compliant machine learning framework that enables privacy-preserving classification of next-generation PHR data. The predictive models acquired can act as supporting tools to clinical practice by enabling more effective prevention, diagnosis and treatment of new incidents. The proposed framework has a huge potential for complementing medical staff expertise as it outperforms the manual inspection of PHR data while protecting patient privacy.

  19. Privacy Impact Assessment (PIA) Repository

    Data.gov (United States)

    Department of Veterans Affairs — This repository contains Privacy Impact Assessments (PIA) that have been vetted/approved. Section 208 of the Electronic Government Act of 2002 (E-Gov Act) requires...

  20. 78 FR 19510 - Privacy Act of 1974; Republication To Delete and Update Privacy Act System of Records...

    Science.gov (United States)

    2013-04-01

    ... reported under that notice. FOR FURTHER INFORMATION CONTACT: The Chief Privacy Officer, 451 Seventh Street...). (This is not a toll-free number.) A telecommunication device for hearing- and speech-impaired... of General Routine Uses inadvertently reported repeated information that HUD proposes to exclude from...

  1. Redefining genomic privacy: trust and empowerment.

    Directory of Open Access Journals (Sweden)

    Yaniv Erlich

    2014-11-01

    Full Text Available Fulfilling the promise of the genetic revolution requires the analysis of large datasets containing information from thousands to millions of participants. However, sharing human genomic data requires protecting subjects from potential harm. Current models rely on de-identification techniques in which privacy versus data utility becomes a zero-sum game. Instead, we propose the use of trust-enabling techniques to create a solution in which researchers and participants both win. To do so we introduce three principles that facilitate trust in genetic research and outline one possible framework built upon those principles. Our hope is that such trust-centric frameworks provide a sustainable solution that reconciles genetic privacy with data sharing and facilitates genetic research.

  2. Redefining genomic privacy: trust and empowerment.

    Science.gov (United States)

    Erlich, Yaniv; Williams, James B; Glazer, David; Yocum, Kenneth; Farahany, Nita; Olson, Maynard; Narayanan, Arvind; Stein, Lincoln D; Witkowski, Jan A; Kain, Robert C

    2014-11-01

    Fulfilling the promise of the genetic revolution requires the analysis of large datasets containing information from thousands to millions of participants. However, sharing human genomic data requires protecting subjects from potential harm. Current models rely on de-identification techniques in which privacy versus data utility becomes a zero-sum game. Instead, we propose the use of trust-enabling techniques to create a solution in which researchers and participants both win. To do so we introduce three principles that facilitate trust in genetic research and outline one possible framework built upon those principles. Our hope is that such trust-centric frameworks provide a sustainable solution that reconciles genetic privacy with data sharing and facilitates genetic research.

  3. 77 FR 49011 - Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management...

    Science.gov (United States)

    2012-08-15

    ... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-06-A] Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management System--Change in Final Effective... the OGC E-Discovery Management System until after the opportunity for further comment is provided to...

  4. 76 FR 39315 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-030 Use of...

    Science.gov (United States)

    2011-07-06

    ... the Terrorist Screening Database System of Records relates to official DHS national security and law... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary 6 CFR Part 5 [Docket No. DHS-2011-0060] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL--030 Use of the...

  5. 75 FR 20298 - Privacy Act Regulations

    Science.gov (United States)

    2010-04-19

    ... prevent and detect fraud, waste, and abuse and perform its other authorized duties and activities relating...--RATB Investigative Files'' and ``RATB--12--RATB Fraud Hotline Program Files,'' pursuant to the Privacy... 5 U.S.C. 552a: (1) From subsection (c)(3) because the release of accounting of disclosure would...

  6. Privacy rules for DNA databanks. Protecting coded 'future diaries'.

    Science.gov (United States)

    Annas, G J

    1993-11-17

    In privacy terms, genetic information is like medical information. But the information contained in the DNA molecule itself is more sensitive because it contains an individual's probabilistic "future diary," is written in a code that has only partially been broken, and contains information about an individual's parents, siblings, and children. Current rules for protecting the privacy of medical information cannot protect either genetic information or identifiable DNA samples stored in DNA databanks. A review of the legal and public policy rationales for protecting genetic privacy suggests that specific enforceable privacy rules for DNA databanks are needed. Four preliminary rules are proposed to govern the creation of DNA databanks, the collection of DNA samples for storage, limits on the use of information derived from the samples, and continuing obligations to those whose DNA samples are in the databanks.

  7. Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador

    Science.gov (United States)

    Pullman, Daryl; Perrot-Daley, Astrid; Hodgkinson, Kathy; Street, Catherine; Rahman, Proton

    2013-01-01

    Objective To provide a legal and ethical analysis of some of the implementation challenges faced by the Population Therapeutics Research Group (PTRG) at Memorial University (Canada), in using genealogical information offered by individuals for its genetics research database. Materials and methods This paper describes the unique historical and genetic characteristics of the Newfoundland and Labrador founder population, which gave rise to the opportunity for PTRG to build the Newfoundland Genealogy Database containing digitized records of all pre-confederation (1949) census records of the Newfoundland founder population. In addition to building the database, PTRG has developed the Heritability Analytics Infrastructure, a data management structure that stores genotype, phenotype, and pedigree information in a single database, and custom linkage software (KINNECT) to perform pedigree linkages on the genealogy database. Discussion A newly adopted legal regimen in Newfoundland and Labrador is discussed. It incorporates health privacy legislation with a unique research ethics statute governing the composition and activities of research ethics boards and, for the first time in Canada, elevating the status of national research ethics guidelines into law. The discussion looks at this integration of legal and ethical principles which provides a flexible and seamless framework for balancing the privacy rights and welfare interests of individuals, families, and larger societies in the creation and use of research data infrastructures as public goods. Conclusion The complementary legal and ethical frameworks that now coexist in Newfoundland and Labrador provide the legislative authority, ethical legitimacy, and practical flexibility needed to find a workable balance between privacy interests and public goods. Such an approach may also be instructive for other jurisdictions as they seek to construct and use biobanks and related research platforms for genetic research. PMID

  8. 77 FR 57639 - Privacy Act; System of Records: Records of the Office of White House Liaison, State-34

    Science.gov (United States)

    2012-09-18

    ..., background and security clearance information received from Executive Offices and Bureau of Human Resources... the provisions of the Privacy Act of 1974, as amended (5 U.S.C.552a) and Office of Management and... Liaison Office for the consideration, review, clearance and appointment of an individual to a non-career...

  9. 76 FR 52320 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-08-22

    ... & Privacy, and DoD Information Assurance Regulations. Auditing: Audit trail records from all available.../JS Privacy Office, Freedom of Information Directorate, Washington Headquarters Services, 1155 Defense... Defense. DHA 23 System name: Pharmacy Data Transaction Service (PDTS). System location: Primary: Emdeon...

  10. 78 FR 23938 - Privacy Act of 1974; Report of a New Routine Use for Selected CMS Systems of Records

    Science.gov (United States)

    2013-04-23

    ... & Medicaid Services (CMS), Department of Health and Human Services (HHS). ACTION: Altered Systems Notice... the systems of records being modified; the new routine use is compatible with the health care purposes... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Medicare & Medicaid Services Privacy Act of...

  11. Data Privacy Laws Follow Lead of Oklahoma and California

    Science.gov (United States)

    Vance, Amelia

    2016-01-01

    Oklahoma's Student Data Accessibility, Transparency, and Accountability Act (known as the Student DATA Act) arose just as privacy concerns about student data were beginning to surface. According to Linnette Attai, founder of education technology compliance consultancy PlayWell LLC, "When this climate of data privacy first emerged in its…

  12. Privacy: The Small and Large of It

    International Nuclear Information System (INIS)

    NUSBAUM, ANNA W.

    1999-01-01

    The topic of Privacy is complex, multi-faceted, and often emotionally laden. This paper will cover the following topics, in an effort to further understanding of federal regulations and activities, the balancing act that necessarily occurs in business, and what role a records manager can play. The topics are: Definitions; The Privacy Act; ''Private'' companies; Potential areas of concern; Expectations; Corporate responsibilities; Case studies; and Records Manager's role

  13. 76 FR 63896 - Federal Acquisition Regulation; Privacy Training, 2010-013

    Science.gov (United States)

    2011-10-14

    ... should a breach occur; and (7) Any agency-specific privacy training requirements. (d) The contractor is... Acquisition Regulation; Privacy Training, 2010-013 AGENCY: Department of Defense (DoD), General Services... contractors to complete training that addresses the protection of privacy, in accordance with the Privacy Act...

  14. 78 FR 73195 - Privacy Act of 1974: CMS Computer Matching Program Match No. 2013-01; HHS Computer Matching...

    Science.gov (United States)

    2013-12-05

    ... 1974: CMS Computer Matching Program Match No. 2013-01; HHS Computer Matching Program Match No. 1312 AGENCY: Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services (HHS... Privacy Act of 1974 (5 U.S.C. 552a), as amended, this notice announces the renewal of a CMP that CMS plans...

  15. Genetic testing in the workplace: the employer's coin toss.

    Science.gov (United States)

    French, Samantha

    2002-09-05

    A toss of the coin by the modern-day employer reveals two options regarding genetic testing in the workplace. The employer may choose to take advantage of increasingly precise, available, and affordable genetic testing in order to ascertain the genetic characteristics--and deficiencies--of its employees. This outcome exposes the employer to a vast array of potential litigation and liability relating to the Americans with Disabilities Act, the Fourth Amendment, Title VII of the Civil Rights Act, and state legislation designed to protect genetic privacy. Alternatively, the employer may neglect to indulge in this trend of genetic testing and may face liability for employer negligence, violations of federal legislation such as OSHA regulations, and increased costs associated with insuring the health of genetically endangered employees. In the rapidly developing universe of genetic intelligence, the employer is faced with a staggering dilemma.

  16. 78 FR 44931 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-07-25

    ...), as amended. This system will provide DLA installations with the ability to rapidly and effectively... Defense Privacy and Civil Liberties Web site at http://dpclo.defense.gov/privacy/SORNs/component/dla/index...: First name, last name, work email, work phone number, mobile phone number, short message service (SMS...

  17. Privacy: The Small and Large of It

    Energy Technology Data Exchange (ETDEWEB)

    NUSBAUM,ANNA W.

    1999-10-22

    The topic of Privacy is complex, multi-faceted, and often emotionally laden. This paper will cover the following topics, in an effort to further understanding of federal regulations and activities, the balancing act that necessarily occurs in business, and what role a records manager can play. The topics are: Definitions; The Privacy Act; ''Private'' companies; Potential areas of concern; Expectations; Corporate responsibilities; Case studies; and Records Manager's role.

  18. Privacy Concerns: The Effects of the Latest FERPA Changes

    Science.gov (United States)

    Cossler, Christine

    2010-01-01

    Privacy, something once taken for granted, has again become top-of-mind for public school districts thanks to technology's increasing reach, as well as new changes to privacy laws governing student information. Recently, educators have had to face important changes to the Family Educational Rights and Privacy Act (FERPA), originally signed into…

  19. Privacy in Online Social Networking Sites

    OpenAIRE

    M.Ida Evones

    2015-01-01

    There are more than 192 act ive social networking websites. Bringing every kind of social group together in one place and letting them interact is really a big thing indeed .Huge amount of information process in the sites each day, end up making it vulnerable to attack. There is no systematic framework taking into account the importance of privacy. Increased privacy settings don’t always guarantee privacy when there is a loop hole in the applications. Lack of user education results is over sh...

  20. 21 CFR 21.70 - Disclosure and intra-agency use of records in Privacy Act Record Systems; no accounting required.

    Science.gov (United States)

    2010-04-01

    ... requirements of this part under § 21.30. (b) No accounting is required for any disclosure or use under... 21 Food and Drugs 1 2010-04-01 2010-04-01 false Disclosure and intra-agency use of records in Privacy Act Record Systems; no accounting required. 21.70 Section 21.70 Food and Drugs FOOD AND DRUG...

  1. Scalable privacy-preserving data sharing methodology for genome-wide association studies: an application to iDASH healthcare privacy protection challenge.

    Science.gov (United States)

    Yu, Fei; Ji, Zhanglong

    2014-01-01

    In response to the growing interest in genome-wide association study (GWAS) data privacy, the Integrating Data for Analysis, Anonymization and SHaring (iDASH) center organized the iDASH Healthcare Privacy Protection Challenge, with the aim of investigating the effectiveness of applying privacy-preserving methodologies to human genetic data. This paper is based on a submission to the iDASH Healthcare Privacy Protection Challenge. We apply privacy-preserving methods that are adapted from Uhler et al. 2013 and Yu et al. 2014 to the challenge's data and analyze the data utility after the data are perturbed by the privacy-preserving methods. Major contributions of this paper include new interpretation of the χ2 statistic in a GWAS setting and new results about the Hamming distance score, a key component for one of the privacy-preserving methods.

  2. The effects of the Health Insurance Portability and Accountability Act privacy rule on influenza research using geographical information systems

    Directory of Open Access Journals (Sweden)

    Norisse Tellman

    2010-11-01

    Full Text Available The Health Insurance Portability and Accountability Act (HIPAA privacy rule was enacted to protect patients’ personal health information from undue disclosure. Despite its intention to protect patients, recent reports suggest that HIPAA restrictions may be negatively impacting health research. Quantitative, visual geographical and statistical analysis of zip code geographical information systems (GIS mapping, comparing 3-digit HIPAA-compliant and 5-digit HIPAA-non-compliant simulated data, was chosen to identify and describe the type of distortion that may result. It was found that unmitigated HIPAA compliance with HIPAA mapping rules distorted the GIS zip code data by 28% leading to erroneous results. Thus, compliance with HIPAA privacy rule when mapping may lead investigators to publish erroneous GIS maps.

  3. Blood rights: the body and information privacy.

    Science.gov (United States)

    Alston, Bruce

    2005-05-01

    Genetic and other medical technology makes blood, human tissue and other bodily samples an immediate and accessible source of comprehensive personal and health information about individuals. Yet, unlike medical records, bodily samples are not subject to effective privacy protection or other regulation to ensure that individuals have rights to control the collection, use and transfer of such samples. This article examines the existing coverage of privacy legislation, arguments in favour of baseline protection for bodily samples as sources of information and possible approaches to new regulation protecting individual privacy rights in bodily samples.

  4. Privacy in Educational Use of Social Media in the U.S.

    Science.gov (United States)

    Marek, Michael W.; Skrabut, Stan

    2017-01-01

    Few scholarly publications have addressed in detail the question of student privacy when using social media for classroom educational activities. This study combined qualitative and conceptual methodologies to explore the implications of privacy law on learning activities, using the strict Family Educational Rights Privacy Act (FERPA) in the…

  5. Suggestions for Compliance with Privacy Rights of Parents and Students (Buckley Amendments).

    Science.gov (United States)

    Arizona State Dept. of Education, Phoenix.

    These suggestions for formulating school district policies governing the confidentiality and release of student records are based on the Family Educational Rights and Privacy Act (the Buckley amendment) and on relevant Arizona state law. A checklist, which covers the major section of the Family Educational Rights and Privacy Act, is designed to…

  6. Mandatory Submission to The Identification of Genetic Profile for Criminal Purpose: A Broach Pursuant to the Right to Privacy and Dignity of the Human Person

    Directory of Open Access Journals (Sweden)

    George Maia Santos

    2015-12-01

    Full Text Available This article aims to demonstrate that the mandatory submission convicted of a crime committed, intentionally, with serious violence against person or heinous crime, to identify the genetic profile by DNA extraction - deoxyribonucleic acid, although by proper and painless technique is offensive to fundamental rights. For this purpose, it is part of the overall concept of the right to privacy, which is configured as a negative right or protection against unlawful state mismanagement, in order to protect a need or a basic right to the free individual self-determination. Then genetic intimacy is defined as an asset able to reveal the physical, psychological, behavioral and disease features, which, if disclosed or accessed without the consent of the accused, may generate stigmatization and discrimination of the subject involved, violating in this way, therefore, the right to privacy. In conclusion, we move towards emphasizing besides the right to privacy, compulsory provision of biological material to identify the genetic profile is offensive to fundamental rights to physical liberty or outpatient; physical integrity; to the freedom of religion or conscience; non-discrimination; the silence and non-production of evidences against himself, and in last instance, the biggest vector of all fundamental rights: the dignity of the human person.

  7. 76 FR 24489 - Privacy Act of 1974; Amendment to System of Records

    Science.gov (United States)

    2011-05-02

    ... message). Fax: 202-482-9237, Attention: Elaine Newton, Privacy Officer. Mail, Hand Delivery/Courier...: Elaine Newton, Privacy Officer. FOR FURTHER INFORMATION CONTACT: Ms. Newton at the Office of Government... 4685 (Jan. 26, 2009); and in support of this Administration's core principles of the business of...

  8. Reconciling Utility with Privacy in Genomics

    OpenAIRE

    Humbert, Mathias; Ayday, Erman; Hubaux, Jean-Pierre; Telenti, Amalio

    2014-01-01

    Direct-to-consumer genetic testing makes it possible for everyone to learn their genome sequences. In order to contribute to medical research, a growing number of people publish their genomic data on the Web, sometimes under their real identities. However, this is at odds not only with their own privacy but also with the privacy of their relatives. The genomes of relatives being highly correlated, some family members might be opposed to revealing any of the family's genomic data. In this pape...

  9. From Data Privacy to Location Privacy

    Science.gov (United States)

    Wang, Ting; Liu, Ling

    Over the past decade, the research on data privacy has achieved considerable advancement in the following two aspects: First, a variety of privacy threat models and privacy principles have been proposed, aiming at providing sufficient protection against different types of inference attacks; Second, a plethora of algorithms and methods have been developed to implement the proposed privacy principles, while attempting to optimize the utility of the resulting data. The first part of the chapter presents an overview of data privacy research by taking a close examination at the achievements from the above two aspects, with the objective of pinpointing individual research efforts on the grand map of data privacy protection. As a special form of data privacy, location privacy possesses its unique characteristics. In the second part of the chapter, we examine the research challenges and opportunities of location privacy protection, in a perspective analogous to data privacy. Our discussion attempts to answer the following three questions: (1) Is it sufficient to apply the data privacy models and algorithms developed to date for protecting location privacy? (2) What is the current state of the research on location privacy? (3) What are the open issues and technical challenges that demand further investigation? Through answering these questions, we intend to provide a comprehensive review of the state of the art in location privacy research.

  10. Patient privacy and social media.

    Science.gov (United States)

    Hader, Amy L; Brown, Evan D

    2010-08-01

    Healthcare providers using social media must remain mindful of professional boundaries and patients' privacy rights. Facebook and other online postings must comply with the Health Insurance Portability and Accountability Act of 1996 (HIPAA), applicable facility policy, state law, and AANA's Code of Ethics.

  11. PRESAGE: PRivacy-preserving gEnetic testing via SoftwAre Guard Extension.

    Science.gov (United States)

    Chen, Feng; Wang, Chenghong; Dai, Wenrui; Jiang, Xiaoqian; Mohammed, Noman; Al Aziz, Md Momin; Sadat, Md Nazmus; Sahinalp, Cenk; Lauter, Kristin; Wang, Shuang

    2017-07-26

    Advances in DNA sequencing technologies have prompted a wide range of genomic applications to improve healthcare and facilitate biomedical research. However, privacy and security concerns have emerged as a challenge for utilizing cloud computing to handle sensitive genomic data. We present one of the first implementations of Software Guard Extension (SGX) based securely outsourced genetic testing framework, which leverages multiple cryptographic protocols and minimal perfect hash scheme to enable efficient and secure data storage and computation outsourcing. We compared the performance of the proposed PRESAGE framework with the state-of-the-art homomorphic encryption scheme, as well as the plaintext implementation. The experimental results demonstrated significant performance over the homomorphic encryption methods and a small computational overhead in comparison to plaintext implementation. The proposed PRESAGE provides an alternative solution for secure and efficient genomic data outsourcing in an untrusted cloud by using a hybrid framework that combines secure hardware and multiple crypto protocols.

  12. 77 FR 37061 - DHS Data Privacy and Integrity Advisory Committee

    Science.gov (United States)

    2012-06-20

    .... Please note that the meeting may end early if the Committee has completed its business. ADDRESSES: The... draft report to the Department providing guidance on privacy protections for cybersecurity pilot... . Please note that the meeting may end early if all business is completed. Privacy Act Statement: DHS's Use...

  13. 77 FR 60131 - DHS Data Privacy and Integrity Advisory Committee

    Science.gov (United States)

    2012-10-02

    .... to 5 p.m. Please note that the meeting may end early if the Committee has completed its business... privacy protections for the collection and use of biometrics and for cybersecurity pilot programs. These... meeting may end early if all business is completed. Privacy Act Statement: DHS's Use of Your Information...

  14. The Genetic Information Nondiscrimination Act (GINA): A Civil Rights Victory

    Science.gov (United States)

    Petruniak, Mark; Krokosky, Alyson; Terry, Sharon F.

    2011-01-01

    This article discusses the Genetic Information Nondiscrimination Act (GINA) which President George W. Bush officially signed in 2008. The law prohibits employers from making adverse employment decisions based on a person's genetic information, including family health history. It also forbids insurance companies from discriminating against…

  15. Changes to the Employers' Use of Genetic Information and Non-discrimination for Health Insurance in the USA: Implications for Australians

    Directory of Open Access Journals (Sweden)

    Gemma A. Bilkey

    2018-06-01

    Full Text Available In the USA, a bill has been introduced to the senate that may jeopardize an individual's rights to privacy and non-discrimination. This piece examines the proposed Preserving Employee Wellness Programs Act (PEWPA, and implications this will have on the use of genetic information. The Act allows for employers to apply financial penalties for health insurance based on genetic information, which raises concerns as the capacity to interpret genetic results is limited by knowledge of the significance of both benign and pathogenic variants. In Australia, genetic information can only be used to determine life insurance, not to stratify health insurance, and any precedent set internationally should raise concerns of the potential for change on the horizon.

  16. HIPPA privacy regulations: practical information for physicians.

    Science.gov (United States)

    McMahon, E B; Lee-Huber, T

    2001-07-01

    After much debate and controversy, the Bush administration announced on April 12, 2001, that it would implement the Health Insurance Portability and Accountability Act (HIPAA) privacy regulations issued by the Clinton administration in December of 2000. The privacy regulations became effective on April 14, 2001. Although the regulations are considered final, the Secretary of the Department of Health and Human Services has the power to modify the regulations at any time during the first year of implementation. These regulations affect how a patient's health information is used and disclosed, as well as how patients are informed of their privacy rights. As "covered entities," physicians have until April 14, 2003, to comply fully with the HIPAA privacy regulations, which are more than 1,500 pages in length. This article presents a basic overview of the new and complex regulations and highlights practical information about physicians' compliance with the regulations. However, this summary of the HIPAA privacy regulations should not be construed as legal advice or an opinion on specific situations. Please consult an attorney concerning your compliance with HIPAA and the regulations promulgated thereunder.

  17. 78 FR 38303 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-06-26

    .... FOR FURTHER INFORMATION CONTACT: Mr. Leroy Jones, Department of the Army, Privacy Office, U.S. Army.../army/index.html . The Department of the Army proposes to amend two systems of records notices in its...

  18. Privacy preserving processing of genomic data: A survey.

    Science.gov (United States)

    Akgün, Mete; Bayrak, A Osman; Ozer, Bugra; Sağıroğlu, M Şamil

    2015-08-01

    Recently, the rapid advance in genome sequencing technology has led to production of huge amount of sensitive genomic data. However, a serious privacy challenge is confronted with increasing number of genetic tests as genomic data is the ultimate source of identity for humans. Lately, privacy threats and possible solutions regarding the undesired access to genomic data are discussed, however it is challenging to apply proposed solutions to real life problems due to the complex nature of security definitions. In this review, we have categorized pre-existing problems and corresponding solutions in more understandable and convenient way. Additionally, we have also included open privacy problems coming with each genomic data processing procedure. We believe our classification of genome associated privacy problems will pave the way for linking of real-life problems with previously proposed methods. Copyright © 2015 Elsevier Inc. All rights reserved.

  19. 76 FR 50721 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-08-16

    ... . Follow the instructions for submitting comments. Mail: Federal Docket Management System Office, 1160... of the Army, Privacy Office, U.S. Army Records Management and Declassification Agency, 7701 Telegraph...; laboratory reports, polygraph reports, documentary evidence, physical evidence, summary and administrative...

  20. 78 FR 14274 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-03-05

    .../privacy/SORNs/govt/Gov_Wide_Notices.html . K700.13 602-26, Retention Register Files (February 22, 1993, 58... systems of records notices K700.13 602-26, Retention Register Files (February 22, 1993, 58 FR 10562); K700...

  1. 76 FR 39392 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-07-06

    ....regulations.gov . Follow the instructions for submitting comments. Mail: Federal Docket Management System...: Mr. Leroy Jones, Department of the Army, Privacy Office, U.S. Army Records Management and... address, counselor's phone number and email, documentary evidence, affidavits, information from individual...

  2. 76 FR 58007 - Privacy Act of 1974; Report of a New System of Records

    Science.gov (United States)

    2011-09-19

    ..., Division of Information Security & Privacy Management, Enterprise Architecture and Strategy Group, Office... system contain Protected Health Information (PHI) as defined by HHS regulation ``Standards for Privacy of... such PHI that are otherwise authorized by these routine uses may only be made if, and as, permitted or...

  3. Will You Accept the Government's Friend Request? Social Networks and Privacy Concerns

    OpenAIRE

    Siegel, David A.

    2013-01-01

    Participating in social network websites entails voluntarily sharing private information, and the explosive growth of social network websites over the last decade suggests shifting views on privacy. Concurrently, new anti-terrorism laws, such as the USA Patriot Act, ask citizens to surrender substantial claim to privacy in the name of greater security. I address two important questions regarding individuals' views on privacy raised by these trends. First, how does prompting individuals to con...

  4. Genetic data and the listing of species under the U.S. Endangered Species Act.

    Science.gov (United States)

    Fallon, Sylvia M

    2007-10-01

    Genetic information is becoming an influential factor in determining whether species, subspecies, and distinct population segments qualify for protection under the U.S. Endangered Species Act. Nevertheless, there are currently no standards or guidelines that define how genetic information should be used by the federal agencies that administer the act. I examined listing decisions made over a 10-year period (February 1996-February 2006) that relied on genetic information. There was wide variation in the genetic data used to inform listing decisions in terms of which genomes (mitochondrial vs. nuclear) were sampled and the number of markers (or genetic techniques) and loci evaluated. In general, whether the federal agencies identified genetic distinctions between putative taxonomic units or populations depended on the type and amount of genetic data. Studies that relied on multiple genetic markers were more likely to detect distinctions, and those organisms were more likely to receive protection than studies that relied on a single genetic marker. Although the results may, in part, reflect the corresponding availability of genetic techniques over the given time frame, the variable use of genetic information for listing decisions has the potential to misguide conservation actions. Future management policy would benefit from guidelines for the critical evaluation of genetic information to list or delist organisms under the Endangered Species Act.

  5. 77 FR 64241 - Privacy Act of 1974; Implementation of Exemptions

    Science.gov (United States)

    2012-10-19

    .... SUPPLEMENTARY INFORMATION: Background The CFPB is re-publishing its System of Records Notice entitled ``CFPB.005... Confidential business information, Consumer protection, Freedom of information, Privacy. Authority and Issuance... its system of records entitled ``CFPB.005--Consumer Response System'' from certain provisions of the...

  6. 75 FR 13575 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-03-22

    ..., proposes to modify the Accounting Systems for the Department of Justice, Justice/DOJ-001, to update the... the system description is set forth below. FOR FURTHER INFORMATION CONTACT: Robin Moss, Privacy... NAME: Accounting Systems for the Department of Justice (DOJ). * * * * * RECORD SOURCE CATEGORIES...

  7. 10 CFR 727.4 - Is there any expectation of privacy applicable to a DOE computer?

    Science.gov (United States)

    2010-01-01

    ... computer? 727.4 Section 727.4 Energy DEPARTMENT OF ENERGY CONSENT FOR ACCESS TO INFORMATION ON DEPARTMENT OF ENERGY COMPUTERS § 727.4 Is there any expectation of privacy applicable to a DOE computer... Communications Privacy Act of 1986), no user of a DOE computer shall have any expectation of privacy in the use...

  8. 76 FR 65535 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-10-21

    ... the FBI BRUs expressly as part of this system notice because the entire notice is being republished. While the FBI BRUs provide necessary flexibility in disseminating records from the system, FBI notes...: Elizabeth Withnell, Supervisory Attorney-Advisor, Privacy and Civil Liberties Unit, Office of the General...

  9. 78 FR 79412 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-12-30

    ... Defense Finance and Accounting Service proposes to alter a system of records, T7205, General Accounting... transaction-driven financial statements in support of Defense Finance and Accounting Service financial mission... INFORMATION: The Defense Finance and Accounting Service notices for systems of records subject to the Privacy...

  10. 78 FR 45913 - Privacy Act of 1974; Systems of Records

    Science.gov (United States)

    2013-07-30

    ... at http://dpclo.defense.gov/privacy/SORNs/component/nsa/index.html . The proposed system report, as... Register Liaison Officer, Department of Defense. GNSA 14 System Name: NSA/CSS Library Patron File Control....'' Categories of individuals covered by the system: Delete entry and replace with ``NSA civilian employees...

  11. 76 FR 61761 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2011-10-05

    ... locations to grocery or drug stores, office supply stores, retail chains, and self-service kiosks. By... and to the Office of Management and Budget for their evaluation. The Postal Service does not expect this amended notice to have any adverse effect on individual privacy rights. The Postal Service...

  12. 77 FR 75621 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-12-21

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Contract Audit Agency is amending a system of records notice in its existing.... SUPPLEMENTARY INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy...

  13. 77 FR 77048 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2012-12-31

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Contract Audit Agency is amending a system of records notice in its existing.... SUPPLEMENTARY INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy...

  14. 78 FR 74122 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-12-10

    .... Shedrick, Department of the Air Force, Air Force Privacy Office, Office of Warfighting Integration and... funds employees who are required to operate a government motor vehicle on or off post.'' Categories of... adding new driver's information to the database or updating existing records in the performance of their...

  15. 78 FR 69393 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-11-19

    ... Liberties Web site at http://dpclo.defense.gov/privacy/SORNs/component/ngia/index.html . The proposed system... the system: Current and former NGA employees, military personnel, contractors, employed by or assigned... certify, verify, or state) under penalty of perjury under the laws of the United States of America that...

  16. 78 FR 73508 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-12-06

    ....gov/privacy/SORNs/component/airforce/index.html . The proposed systems reports, as required by 5 U.S.C..., citizenship, military and/or federal civilian service information, and private and professional affiliations... (or certify, verify, or state) under penalty of perjury under the laws of the United States of America...

  17. 75 FR 47797 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2010-08-09

    ... Officer, Department of Defense. Deletion: S330.40 CAHS System name: Employee Assistance Program Records (August 27, 1999; 64 FR 46889). Reason: This collection is covered under the existing DHHS/FOH EAP Privacy notice 09-90-0010, entitled ``Employee Assistance Program (EAP) Records, HHS/OS/ASAM/OHR.'' [FR Doc. 2010...

  18. Safeguarding patient privacy in electronic healthcare in the USA: the legal view.

    Science.gov (United States)

    Walsh, Diana; Passerini, Katia; Varshney, Upkar; Fjermestad, Jerry

    2008-01-01

    The conflict between the sweeping power of technology to access and assemble personal information and the ongoing concern about our privacy and security is ever increasing. While we gradually need higher electronic access to medical information, issues relating to patient privacy and reducing vulnerability to security breaches surmount. In this paper, we take a legal perspective and examine the existing patchwork of laws and obligations governing health information in the USA. The study finds that as Electronic Medical Records (EMRs) increase in scope and dissemination, privacy protections gradually decrease due to the shortcomings in the legal system. The contributions of this paper are (1) an overview of the legal EMR issues in the USA, and (2) the identification of the unresolved legal issues and how these will escalate when health information is transmitted over wireless networks. More specifically, the paper discusses federal and state government regulations such as the Electronic Communications Privacy Act, the Health Insurance Portability and Accountability Act (HIPAA) and judicial intervention. Based on the legal overview, the unresolved challenges are identified and suggestions for future research are included.

  19. 78 FR 41920 - Privacy Act of 1974; System of Records

    Science.gov (United States)

    2013-07-12

    ... Civil Liberties Office Web site at http://dpclo.defense.gov/privacy/SORNs/component/army/index.html... systems of records notices. Individual should provide full name, SSN and/or DoD ID number and military... penalty of perjury under the laws of the United States of America that the foregoing is true and correct...

  20. Book Review: Online Privacy: Issues in the Digital Age

    Directory of Open Access Journals (Sweden)

    Darlene M Tester

    2011-09-01

    Full Text Available Currie, Stephen (2012: Online Privacy: Issues in the Digital Age, San Diego, CA, Reference Point Press, Inc. 96 pages, ISBN: 13-978-1-60152-194-1, US $27.95.Reviewed by Darlene M Tester, CISSP, CISM, ITIL, CHSS, JD, Metropolitan State University, Minnesota (nonsequitr60@gmail.comThis book is one of a series of books Currie has written about online areas of concern. This is the sixth book in the series. The purpose of the book is to act as a primer for people in the IT field who may need a point of reference for Internet issues such as gaming, security and privacy. The book takes a high level look at the complexities of privacy online from social networking to hackers and provides insight into what the most pressing issues of privacy are online today.(see PDF for full review

  1. A Taxonomy of Privacy Constructs for Privacy-Sensitive Robotics

    OpenAIRE

    Rueben, Matthew; Grimm, Cindy M.; Bernieri, Frank J.; Smart, William D.

    2017-01-01

    The introduction of robots into our society will also introduce new concerns about personal privacy. In order to study these concerns, we must do human-subject experiments that involve measuring privacy-relevant constructs. This paper presents a taxonomy of privacy constructs based on a review of the privacy literature. Future work in operationalizing privacy constructs for HRI studies is also discussed.

  2. 76 FR 18145 - Privacy Act of 1974; New System of Records

    Science.gov (United States)

    2011-04-01

    ... to include final determinations; billing information to include payment delinquencies; case notes... delinquencies; and case notes. Information collected includes the individual's name, address, telephone number... outside USDA, and so have some impact on privacy of individuals, they are either necessary for carrying...

  3. Federal Privacy Laws That Apply to Children and Education. Safeguarding Data

    Science.gov (United States)

    Data Quality Campaign, 2014

    2014-01-01

    This table identifies and briefly describes the following federal policies that safeguard and protect the confidentiality of personal information: (1) Family Educational Rights and Privacy Act (FERPA); (2) Protection of Pupil Rights Amendment (PPRA); (3) Health Insurance Portability and Accountability Act (HIPAA); (4) Children's Online Privacy…

  4. "Genetic exceptionalism" in medicine: clarifying the differences between genetic and nongenetic tests.

    Science.gov (United States)

    Green, Michael J; Botkin, Jeffrey R

    2003-04-01

    Predictive genetic tests are now available for assessing susceptibility to a variety of conditions, including breast and colon cancer, hemochromatosis, and Alzheimer and Huntington disease. Much controversy surrounds the application of these tests, stemming from their similarities to and differences from other tests commonly used in asymptomatic persons. Some have argued that genetic tests are unique and therefore justify special consideration with regard to informed consent and privacy. This paper examines the arguments for such "genetic exceptionalism" and concludes that no clear, significant distinctions between genetic and nongenetic tests justify a different approach to testing by clinicians. Nevertheless, with many genetic tests, the results may cause stigmatization, family discord, and psychological distress. Regardless of whether a test is genetic, when this combination of characteristics is present and when health care providers are not specifically trained to interpret results, testing should be performed with particular caution and the highest standards of informed consent and privacy protection should be applied.

  5. Privacy under construction : A developmental perspective on privacy perception

    NARCIS (Netherlands)

    Steijn, W.M.P.; Vedder, A.H.

    2015-01-01

    We present a developmental perspective regarding the difference in perceptions toward privacy between young and old. Here, we introduce the notion of privacy conceptions, that is, the specific ideas that individuals have regarding what privacy actually is. The differences in privacy concerns often

  6. Privacy Bridges: EU and US Privacy Experts In Search of Transatlantic Privacy Solutions

    NARCIS (Netherlands)

    Abramatic, J.-F.; Bellamy, B.; Callahan, M.E.; Cate, F.; van Eecke, P.; van Eijk, N.; Guild, E.; de Hert, P.; Hustinx, P.; Kuner, C.; Mulligan, D.; O'Connor, N.; Reidenberg, J.; Rubinstein, I.; Schaar, P.; Shadbolt, N.; Spiekermann, S.; Vladeck, D.; Weitzner, D.J.; Zuiderveen Borgesius, F.; Hagenauw, D.; Hijmans, H.

    2015-01-01

    The EU and US share a common commitment to privacy protection as a cornerstone of democracy. Following the Treaty of Lisbon, data privacy is a fundamental right that the European Union must proactively guarantee. In the United States, data privacy derives from constitutional protections in the

  7. Protecting and Evaluating Genomic Privacy in Medical Tests and Personalized Medicine

    OpenAIRE

    Ayday, Erman; Raisaro, Jean Louis; Rougemont, Jacques; Hubaux, Jean-Pierre

    2013-01-01

    In this paper, we propose privacy-enhancing technologies for medical tests and personalized medicine methods that use patients' genomic data. Focusing on genetic disease-susceptibility tests, we develop a new architecture (between the patient and the medical unit) and propose a "privacy-preserving disease susceptibility test" (PDS) by using homomorphic encryption and proxy re-encryption. Assuming the whole genome sequencing to be done by a certified institution, we propose to store patients' ...

  8. Information Privacy: Culture, Legislation and User Attitudes

    Directory of Open Access Journals (Sweden)

    Sophie Cockcroft

    2006-11-01

    Full Text Available Information privacy has received much public and research interest in recent years. Globally this has arisen from public anxiety following the September 11 attacks and within Australia a progressive tightening of privacy legislation in particular the privacy amendment (private sector Act of 2000 which became operative in 2001. This paper presents the results of a study into attitudes towards information privacy. Based on an instrument developed and validated by Smith et al (1996a this study sets out to measure individual concerns regarding organisational use of information along four dimensions: collection, errors, unauthorised secondary use, and improper access. The survey was completed by 67 undergraduate and postgraduate students enrolled in an e-commerce security subject at the University of Queensland. Comparisons are drawn between the results of this study and an identical one carried out at the University of North Alabama. Whilst it is too early to draw conclusions about the impact of these attitudes on the success of e-commerce in general, the results should be of interest to those within universities seeking to expand the use of networking technologies for handling sensitive information such as enrolment and fee processing (Vanscoy & Oakleaf 2003

  9. A Generic Privacy Quantification Framework for Privacy-Preserving Data Publishing

    Science.gov (United States)

    Zhu, Zutao

    2010-01-01

    In recent years, the concerns about the privacy for the electronic data collected by government agencies, organizations, and industries are increasing. They include individual privacy and knowledge privacy. Privacy-preserving data publishing is a research branch that preserves the privacy while, at the same time, withholding useful information in…

  10. Employment discrimination implications of genetic screening in the workplace under Title VII and the Rehabilitation Act.

    Science.gov (United States)

    Canter, E F

    1984-01-01

    The emergence of genetic screening techniques will permit employers to exclude hypersusceptible individuals from potentially hazardous workplace environments. The denial of employment opportunities to these individuals, however, may constitute discrimination. This Note analyzes genetic screening cases with respect to currently available remedies contained in Title VII of the Civil Rights Act of 1964 and the Rehabilitation Act of 1973. The Note concludes that Title VII claims may succeed but only in limited circumstances and that Rehabilitation Act claims will encounter numerous obstacles to relief. Additionally, the Note discusses some of the implications of the use of genetic screening in the workplace.

  11. Choose Privacy Week: Educate Your Students (and Yourself) about Privacy

    Science.gov (United States)

    Adams, Helen R.

    2016-01-01

    The purpose of "Choose Privacy Week" is to encourage a national conversation to raise awareness of the growing threats to personal privacy online and in day-to-day life. The 2016 Choose Privacy Week theme is "respecting individuals' privacy," with an emphasis on minors' privacy. A plethora of issues relating to minors' privacy…

  12. Designing Privacy for You : A User Centric Approach For Privacy

    OpenAIRE

    Senarath, Awanthika; Arachchilage, Nalin A. G.; Slay, Jill

    2017-01-01

    Privacy directly concerns the user as the data owner (data- subject) and hence privacy in systems should be implemented in a manner which concerns the user (user-centered). There are many concepts and guidelines that support development of privacy and embedding privacy into systems. However, none of them approaches privacy in a user- centered manner. Through this research we propose a framework that would enable developers and designers to grasp privacy in a user-centered manner and implement...

  13. Privacy protection for patients with substance use problems

    Directory of Open Access Journals (Sweden)

    Hu LL

    2011-12-01

    Full Text Available Lianne Lian Hu1, Steven Sparenborg2, Betty Tai21Department of Preventive Medicine and Biometrics, Uniformed Services University of the Health Sciences, 2Center for the Clinical Trials Network, National Institute on Drug Abuse, National Institutes of Health, Bethesda, MDAbstract: Many Americans with substance use problems will have opportunities to receive coordinated health care through the integration of primary care and specialty care for substance use disorders under the Patient Protection and Affordable Care Act of 2010. Sharing of patient health records among care providers is essential to realize the benefits of electronic health records. Health information exchange through meaningful use of electronic health records can improve health care safety, quality, and efficiency. Implementation of electronic health records and health information exchange presents great opportunities for health care integration, but also makes patient privacy potentially vulnerable. Privacy issues are paramount for patients with substance use problems. This paper discusses major differences between two federal privacy laws associated with health care for substance use disorders, identifies health care problems created by privacy policies, and describes potential solutions to these problems through technology innovation and policy improvement.Keywords: substance abuse, patient privacy, electronic health records, health information exchange

  14. The Privacy Coach: Supporting customer privacy in the Internet of Things

    OpenAIRE

    Broenink, Gerben; Hoepman, Jaap-Henk; Hof, Christian van 't; van Kranenburg, Rob; Smits, David; Wisman, Tijmen

    2010-01-01

    The Privacy Coach is an application running on a mobile phone that supports customers in making privacy decisions when confronted with RFID tags. The approach we take to increase customer privacy is a radical departure from the mainstream research efforts that focus on implementing privacy enhancing technologies on the RFID tags themselves. Instead the Privacy Coach functions as a mediator between customer privacy preferences and corporate privacy policies, trying to find a match between the ...

  15. DESIGN AND IMPLEMENTATION OF A PRIVACY PRESERVED OFF-PREMISES CLOUD STORAGE

    OpenAIRE

    Sarfraz Nawaz Brohi; Mervat Adib Bamiah; Suriayati Chuprat; Jamalul-lail Ab Manan

    2014-01-01

    Despite several cost-effective and flexible characteristics of cloud computing, some clients are reluctant to adopt this paradigm due to emerging security and privacy concerns. Organization such as Healthcare and Payment Card Industry where confidentiality of information is a vital act, are not assertive to trust the security techniques and privacy policies offered by cloud service providers. Malicious attackers have violated the cloud storages to steal, view, manipulate and tamper client&...

  16. Privacy, confidentiality and abortion statistics: a question of public interest?

    Science.gov (United States)

    McHale, Jean V; Jones, June

    2012-01-01

    The precise nature and scope of healthcare confidentiality has long been the subject of debate. While the obligation of confidentiality is integral to professional ethical codes and is also safeguarded under English law through the equitable remedy of breach of confidence, underpinned by the right to privacy enshrined in Article 8 of the Human Rights Act 1998, it has never been regarded as absolute. But when can and should personal information be made available for statistical and research purposes and what if the information in question is highly sensitive information, such as that relating to the termination of pregnancy after 24 weeks? This article explores the case of In the Matter of an Appeal to the Information Tribunal under section 57 of the Freedom of Information Act 2000, concerning the decision of the Department of Health to withhold some statistical data from the publication of its annual abortion statistics. The specific data being withheld concerned the termination for serious fetal handicap under section 1(1)d of the Abortion Act 1967. The paper explores the implications of this case, which relate both to the nature and scope of personal privacy. It suggests that lessons can be drawn from this case about public interest and use of statistical information and also about general policy issues concerning the legal regulation of confidentiality and privacy in the future.

  17. Privacy vs security

    CERN Document Server

    Stalla-Bourdillon, Sophie; Ryan, Mark D

    2014-01-01

    Securing privacy in the current environment is one of the great challenges of today's democracies. Privacy vs. Security explores the issues of privacy and security and their complicated interplay, from a legal and a technical point of view. Sophie Stalla-Bourdillon provides a thorough account of the legal underpinnings of the European approach to privacy and examines their implementation through privacy, data protection and data retention laws. Joshua Philips and Mark D. Ryan focus on the technological aspects of privacy, in particular, on today's attacks on privacy by the simple use of today'

  18. SecureMA: protecting participant privacy in genetic association meta-analysis

    OpenAIRE

    Xie, Wei; Kantarcioglu, Murat; Bush, William S.; Crawford, Dana; Denny, Joshua C.; Heatherly, Raymond; Malin, Bradley A.

    2014-01-01

    Motivation: Sharing genomic data is crucial to support scientific investigation such as genome-wide association studies. However, recent investigations suggest the privacy of the individual participants in these studies can be compromised, leading to serious concerns and consequences, such as overly restricted access to data.

  19. Will you accept the government's friend request? Social networks and privacy concerns.

    Science.gov (United States)

    Siegel, David A

    2013-01-01

    Participating in social network websites entails voluntarily sharing private information, and the explosive growth of social network websites over the last decade suggests shifting views on privacy. Concurrently, new anti-terrorism laws, such as the USA Patriot Act, ask citizens to surrender substantial claim to privacy in the name of greater security. I address two important questions regarding individuals' views on privacy raised by these trends. First, how does prompting individuals to consider security concerns affect their views on government actions that jeopardize privacy? Second, does the use of social network websites alter the effect of prompted security concerns? I posit that prompting individuals to consider security concerns does lead to an increased willingness to accept government actions that jeopardize privacy, but that frequent users of websites like Facebook are less likely to be swayed by prompted security concerns. An embedded survey experiment provides support for both parts of my claim.

  20. Privacy transparency patterns

    NARCIS (Netherlands)

    Siljee B.I.J.

    2015-01-01

    This paper describes two privacy patterns for creating privacy transparency: the Personal Data Table pattern and the Privacy Policy Icons pattern, as well as a full overview of privacy transparency patterns. It is a first step in creating a full set of privacy design patterns, which will aid

  1. Privacy Awareness: A Means to Solve the Privacy Paradox?

    Science.gov (United States)

    Pötzsch, Stefanie

    People are limited in their resources, i.e. they have limited memory capabilities, cannot pay attention to too many things at the same time, and forget much information after a while; computers do not suffer from these limitations. Thus, revealing personal data in electronic communication environments and being completely unaware of the impact of privacy might cause a lot of privacy issues later. Even if people are privacy aware in general, the so-called privacy paradox shows that they do not behave according to their stated attitudes. This paper discusses explanations for the existing dichotomy between the intentions of people towards disclosure of personal data and their behaviour. We present requirements on tools for privacy-awareness support in order to counteract the privacy paradox.

  2. Privacy Policy

    Science.gov (United States)

    ... Home → NLM Privacy Policy URL of this page: https://medlineplus.gov/privacy.html NLM Privacy Policy To ... out of cookies in the most popular browsers, http://www.usa.gov/optout_instructions.shtml. Please note ...

  3. 76 FR 65196 - Privacy Act of 1974; Report of a New Routine Use for Selected CMS System of Records

    Science.gov (United States)

    2011-10-20

    ... and privacy requirements included. A Data Use Agreement (DUA) (CMS Form 0235) must be completed by the...: CMS Privacy Officer, Division of Information Security & Privacy Management, Enterprise Architecture... requirements that she may specify for QEs to meet, such as ensuring the security of data. The Medicare claims...

  4. BORDERS OF COMMUNICATION PRIVACY IN SLOVENIAN CRIMINAL PROCEDURE – CONSTITUTIONAL CHALLENGES

    Directory of Open Access Journals (Sweden)

    Sabina Zgaga

    2015-01-01

    Full Text Available Due to fast technological development and our constant communication protection of communication privacy in every aspect of our (legal life has become more important than ever before. Regarding protection of privacy in criminal procedure special emphasis should be given to the regulation of privacy in Slovenian Constitution and its interpretation in the case law of the Constitutional Court. This paper presents the definition of privacy and communication privacy in Slovenian constitutional law and exposes the main issues of communication privacy that have been discussed in the case law of the Constitutional Court in the last twenty years. Thereby the paper tries to show the general trend in the case law of Constitutional Court regarding the protection of communication privacy and to expose certain unsolved issues and unanswered challenges. Slovenian constitutional regulation of communication privacy is very protective, considering the broad definition of privacy and the strict conditions for encroachment of communication privacy. The case law of Slovenian Constitutional Court has also shown such trend, with the possible exception of the recent decision on a dynamic IP address. The importance of this decision is however significant, since it could be applicable to all forms of communication via internet, the prevailing form of communication nowadays. Certain challenges still lay ahead, such as the current proposal for the amendment of Criminal Procedure Act-M, which includes the use of IMSI catchers and numerous unanswered issues regarding data retention after the decisive annulment of its partial legal basis by the Constitutional Court.

  5. 76 FR 27847 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Coast...

    Science.gov (United States)

    2011-05-13

    ... issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer, Privacy Office, U.S...;Prices of new books are listed in the first FEDERAL REGISTER issue of each #0;week. #0; #0; #0; #0;#0...

  6. Concentrated Differential Privacy

    OpenAIRE

    Dwork, Cynthia; Rothblum, Guy N.

    2016-01-01

    We introduce Concentrated Differential Privacy, a relaxation of Differential Privacy enjoying better accuracy than both pure differential privacy and its popular "(epsilon,delta)" relaxation without compromising on cumulative privacy loss over multiple computations.

  7. 76 FR 39245 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Coast...

    Science.gov (United States)

    2011-07-06

    ... Marilyn Scott-Perez (202-475-3515), Privacy Officer, U.S. Coast Guard. For privacy issues please contact...;Prices of new books are listed in the first FEDERAL REGISTER issue of each #0;week. #0; #0; #0; #0;#0...

  8. Public Opinion about the Importance of Privacy in Biobank Research

    Science.gov (United States)

    Kaufman, David J.; Murphy-Bollinger, Juli; Scott, Joan; Hudson, Kathy L.

    2009-01-01

    Concerns about privacy may deter people from participating in genetic research. Recruitment and retention of biobank participants requires understanding the nature and magnitude of these concerns. Potential participants in a proposed biobank were asked about their willingness to participate, their privacy concerns, informed consent, and data sharing. A representative survey of 4659 U.S. adults was conducted. Ninety percent of respondents would be concerned about privacy, 56% would be concerned about researchers having their information, and 37% would worry that study data could be used against them. However, 60% would participate in the biobank if asked. Nearly half (48%) would prefer to provide consent once for all research approved by an oversight panel, whereas 42% would prefer to provide consent for each project separately. Although 92% would allow academic researchers to use study data, 80% and 75%, respectively, would grant access to government and industry researchers. Concern about privacy was related to lower willingness to participate only when respondents were told that they would receive $50 for participation and would not receive individual research results back. Among respondents who were told that they would receive $200 or individual research results, privacy concerns were not related to willingness. Survey respondents valued both privacy and participation in biomedical research. Despite pervasive privacy concerns, 60% would participate in a biobank. Assuring research participants that their privacy will be protected to the best of researchers' abilities may increase participants' acceptance of consent for broad research uses of biobank data by a wide range of researchers. PMID:19878915

  9. South African banks and their online privacy policy statements: A content analysis

    Directory of Open Access Journals (Sweden)

    Salah K. Kabanda

    2010-09-01

    Full Text Available In Internet banking and Internet-related transactions, security and privacy are of great concern. To alleviate these concerns, the South African government has promulgated the Electronic Communications and Transactions (ECT Act No. 25 of 2002. The Act regulates all electronic communication transactions in South Africa. Business organisations implement the Act by, for example, posting a privacy policy statement on their websites, which, in accordance with the requirements of the ECT Act, states how the organisation will use any personal identifiable information provided by the client. This study investigates whether South African banks that subscribe to the ECT Act comply with the principles relating to the protection of a consumer’s personal information. The study employed the research methods of content analysis and interviews. The findings indicate that some banks only complied with a few of the ECT Act principles, which, according to the interview respondents, undermines the levels of trust which are in play between their banks and themselves. The respondents themselves were not fully aware of all the ECT Act requirements. This lack of awareness results in consumers failing to assess the comprehensiveness of their bank’s policy statements and to what extent such banks comply with the ECT Act.

  10. 76 FR 19726 - Family Educational Rights and Privacy

    Science.gov (United States)

    2011-04-08

    ... DEPARTMENT OF EDUCATION 34 CFR Part 99 RIN 1880-AA86 [Docket ID ED-2011-OM-0002] Family... the General Education Provisions Act, which is also known as the Family Educational Rights and Privacy... receiving non-consensual disclosures of PII to link education, workforce, health, family services, and other...

  11. Personal Information as Communicative Acts

    DEFF Research Database (Denmark)

    Mai, Jens-Erik

    2016-01-01

    The paper extends previous accounts of informational privacy as a contextual notion. Where previous accounts have focused on interpretations of the privacy context itself as being contextual and open for negotiation and interpretation, this paper extends those analyses and shows that personal...... information itself is in fact best understood as contextual and situational—and as such open for interpretation. The paper reviews the notion of information as it has been applied in informational privacy and philosophy of information, and suggests that personal information ought to be regarded...... as communicative acts. The paper suggests a reconceptualization of informational privacy from having its focus on controlling, limiting, and restricting access to material carriers of information to a focus on a regulation of the use, analysis, and interpretation of personal information....

  12. Will you accept the government's friend request? Social networks and privacy concerns.

    Directory of Open Access Journals (Sweden)

    David A Siegel

    Full Text Available Participating in social network websites entails voluntarily sharing private information, and the explosive growth of social network websites over the last decade suggests shifting views on privacy. Concurrently, new anti-terrorism laws, such as the USA Patriot Act, ask citizens to surrender substantial claim to privacy in the name of greater security. I address two important questions regarding individuals' views on privacy raised by these trends. First, how does prompting individuals to consider security concerns affect their views on government actions that jeopardize privacy? Second, does the use of social network websites alter the effect of prompted security concerns? I posit that prompting individuals to consider security concerns does lead to an increased willingness to accept government actions that jeopardize privacy, but that frequent users of websites like Facebook are less likely to be swayed by prompted security concerns. An embedded survey experiment provides support for both parts of my claim.

  13. 76 FR 31350 - Public Workshop; Privacy Compliance Basics and 2011 Developments

    Science.gov (United States)

    2011-05-31

    ... Privacy Act of 1974, as amended, the E-Government Act of 2002, Office of Management and Budget memoranda... telephone 703-235-0780; by facsimile 703-235-0442; or by e-mail at [email protected] . SUPPLEMENTARY INFORMATION... send an e-mail to [email protected] , with ``PRIVComplianceWorkshop'' in the subject line, and your full name...

  14. Privacy in Pharmacogenetics: An End-to-End Case Study of Personalized Warfarin Dosing.

    Science.gov (United States)

    Fredrikson, Matthew; Lantz, Eric; Jha, Somesh; Lin, Simon; Page, David; Ristenpart, Thomas

    2014-08-01

    We initiate the study of privacy in pharmacogenetics, wherein machine learning models are used to guide medical treatments based on a patient's genotype and background. Performing an in-depth case study on privacy in personalized warfarin dosing, we show that suggested models carry privacy risks, in particular because attackers can perform what we call model inversion : an attacker, given the model and some demographic information about a patient, can predict the patient's genetic markers. As differential privacy (DP) is an oft-proposed solution for medical settings such as this, we evaluate its effectiveness for building private versions of pharmacogenetic models. We show that DP mechanisms prevent our model inversion attacks when the privacy budget is carefully selected . We go on to analyze the impact on utility by performing simulated clinical trials with DP dosing models. We find that for privacy budgets effective at preventing attacks, patients would be exposed to increased risk of stroke, bleeding events, and mortality . We conclude that current DP mechanisms do not simultaneously improve genomic privacy while retaining desirable clinical efficacy, highlighting the need for new mechanisms that should be evaluated in situ using the general methodology introduced by our work.

  15. Privacy Policies

    NARCIS (Netherlands)

    Dekker, M.A.C.; Etalle, Sandro; den Hartog, Jeremy; Petkovic, M.; Jonker, W.; Jonker, Willem

    2007-01-01

    Privacy is a prime concern in today's information society. To protect the privacy of individuals, enterprises must follow certain privacy practices, while collecting or processing personal data. In this chapter we look at the setting where an enterprise collects private data on its website,

  16. Privacy enhancing techniques - the key to secure communication and management of clinical and genomic data.

    Science.gov (United States)

    De Moor, G J E; Claerhout, B; De Meyer, F

    2003-01-01

    To introduce some of the privacy protection problems related to genomics based medicine and to highlight the relevance of Trusted Third Parties (TTPs) and of Privacy Enhancing Techniques (PETs) in the restricted context of clinical research and statistics. Practical approaches based on two different pseudonymisation models, both for batch and interactive data collection and exchange, are described and analysed. The growing need of managing both clinical and genetic data raises important legal and ethical challenges. Protecting human rights in the realm of privacy, while optimising research potential and other statistical activities is a challenge that can easily be overcome with the assistance of a trust service provider offering advanced privacy enabling/enhancing solutions. As such, the use of pseudonymisation and other innovative Privacy Enhancing Techniques can unlock valuable data sources.

  17. Balancing Cyberspace Promise, Privacy, and Protection: Tracking the Debate.

    Science.gov (United States)

    Metivier-Carreiro, Karen A.; LaFollette, Marcel C.

    1997-01-01

    Examines aspects of cyberspace policy: Internet content and expectations; privacy: medical information and data collected by the government; and the regulation of offensive material: the Communications Decency Act, Internet filters, and the American Library Association's proactive great Web sites for children. Suggests that even "child…

  18. Privacy policies

    NARCIS (Netherlands)

    Dekker, M.A.C.; Etalle, S.; Hartog, den J.I.; Petkovic, M.; Jonker, W.

    2007-01-01

    Privacy is a prime concern in today’s information society. To protect the privacy of individuals, enterprises must follow certain privacy practices while collecting or processing personal data. In this chapter we look at the setting where an enterprise collects private data on its website, processes

  19. Forensic DNA phenotyping: Developing a model privacy impact assessment.

    Science.gov (United States)

    Scudder, Nathan; McNevin, Dennis; Kelty, Sally F; Walsh, Simon J; Robertson, James

    2018-05-01

    Forensic scientists around the world are adopting new technology platforms capable of efficiently analysing a larger proportion of the human genome. Undertaking this analysis could provide significant operational benefits, particularly in giving investigators more information about the donor of genetic material, a particularly useful investigative lead. Such information could include predicting externally visible characteristics such as eye and hair colour, as well as biogeographical ancestry. This article looks at the adoption of this new technology from a privacy perspective, using this to inform and critique the application of a Privacy Impact Assessment to this emerging technology. Noting the benefits and limitations, the article develops a number of themes that would influence a model Privacy Impact Assessment as a contextual framework for forensic laboratories and law enforcement agencies considering implementing forensic DNA phenotyping for operational use. Copyright © 2018 Elsevier B.V. All rights reserved.

  20. Privacy og selvbeskrivelse

    DEFF Research Database (Denmark)

    Rosengaard, Hans Ulrik

    2015-01-01

    En beskrivelse af feltet for forskning i Privacy med særligt henblik på privacys betydning for muligheden for at styre sin egen selvbeskrivelse......En beskrivelse af feltet for forskning i Privacy med særligt henblik på privacys betydning for muligheden for at styre sin egen selvbeskrivelse...

  1. Couldn't or wouldn't? The influence of privacy concerns and self-efficacy in privacy management on privacy protection.

    Science.gov (United States)

    Chen, Hsuan-Ting; Chen, Wenghong

    2015-01-01

    Sampling 515 college students, this study investigates how privacy protection, including profile visibility, self-disclosure, and friending, are influenced by privacy concerns and efficacy regarding one's own ability to manage privacy settings, a factor that researchers have yet to give a great deal of attention to in the context of social networking sites (SNSs). The results of this study indicate an inconsistency in adopting strategies to protect privacy, a disconnect from limiting profile visibility and friending to self-disclosure. More specifically, privacy concerns lead SNS users to limit their profile visibility and discourage them from expanding their network. However, they do not constrain self-disclosure. Similarly, while self-efficacy in privacy management encourages SNS users to limit their profile visibility, it facilitates self-disclosure. This suggests that if users are limiting their profile visibility and constraining their friending behaviors, it does not necessarily mean they will reduce self-disclosure on SNSs because these behaviors are predicted by different factors. In addition, the study finds an interaction effect between privacy concerns and self-efficacy in privacy management on friending. It points to the potential problem of increased risk-taking behaviors resulting from high self-efficacy in privacy management and low privacy concerns.

  2. A model-driven privacy compliance decision support for medical data sharing in Europe.

    Science.gov (United States)

    Boussi Rahmouni, H; Solomonides, T; Casassa Mont, M; Shiu, S; Rahmouni, M

    2011-01-01

    Clinical practitioners and medical researchers often have to share health data with other colleagues across Europe. Privacy compliance in this context is very important but challenging. Automated privacy guidelines are a practical way of increasing users' awareness of privacy obligations and help eliminating unintentional breaches of privacy. In this paper we present an ontology-plus-rules based approach to privacy decision support for the sharing of patient data across European platforms. We use ontologies to model the required domain and context information about data sharing and privacy requirements. In addition, we use a set of Semantic Web Rule Language rules to reason about legal privacy requirements that are applicable to a specific context of data disclosure. We make the complete set invocable through the use of a semantic web application acting as an interactive privacy guideline system can then invoke the full model in order to provide decision support. When asked, the system will generate privacy reports applicable to a specific case of data disclosure described by the user. Also reports showing guidelines per Member State may be obtained. The advantage of this approach lies in the expressiveness and extensibility of the modelling and inference languages adopted and the ability they confer to reason with complex requirements interpreted from high level regulations. However, the system cannot at this stage fully simulate the role of an ethics committee or review board.

  3. The privacy coach: Supporting customer privacy in the internet of things

    NARCIS (Netherlands)

    Broenink, E.G.; Hoepman, J.H.; Hof, C. van 't; Kranenburg, R. van; Smits, D.; Wisman, T.

    2010-01-01

    The Privacy Coach is an application running on a mobile phone that supports customers in making privacy decisions when confronted with RFID tags. The approach we take to increase customer privacy is a radical departure from the mainstream research efforts that focus on implementing privacy enhancing

  4. Semantic Security: Privacy Definitions Revisited

    OpenAIRE

    Jinfei Liu; Li Xiong; Jun Luo

    2013-01-01

    In this paper we illustrate a privacy framework named Indistinguishabley Privacy. Indistinguishable privacy could be deemed as the formalization of the existing privacy definitions in privacy preserving data publishing as well as secure multi-party computation. We introduce three representative privacy notions in the literature, Bayes-optimal privacy for privacy preserving data publishing, differential privacy for statistical data release, and privacy w.r.t. semi-honest behavior in the secure...

  5. Redefining Genomic Privacy: Trust and Empowerment

    OpenAIRE

    Erlich, Yaniv; Williams, James B.; Glazer, David; Yocum, Kenneth; Farahany, Nita; Olson, Maynard; Narayanan, Arvind; Stein, Lincoln D.; Witkowski, Jan A.; Kain, Robert C.

    2014-01-01

    Fulfilling the promise of the genetic revolution requires the analysis of large datasets containing information from thousands to millions of participants. However, sharing human genomic data requires protecting subjects from potential harm. Current models rely on de-identification techniques in which privacy versus data utility becomes a zero-sum game. Instead, we propose the use of trust-enabling techniques to create a solution in which researchers and participants both win. To do so we int...

  6. Privacy in context technology, policy, and the integrity of social life

    CERN Document Server

    Nissenbaum, Helen

    2009-01-01

    Privacy is one of the most urgent issues associated with information technology and digital media. This book claims that what people really care about when they complain and protest that privacy has been violated is not the act of sharing information itself—most people understand that this is crucial to social life —but the inappropriate, improper sharing of information. Arguing that privacy concerns should not be limited solely to concern about control over personal information, Helen Nissenbaum counters that information ought to be distributed and protected according to norms governing distinct social contexts—whether it be workplace, health care, schools, or among family and friends. She warns that basic distinctions between public and private, informing many current privacy policies, in fact obscure more than they clarify. In truth, contemporary information systems should alarm us only when they function without regard for social norms and values, and thereby weaken the fabric of social life.

  7. Tales from the dark side: Privacy dark strategies and privacy dark patterns

    DEFF Research Database (Denmark)

    Bösch, Christoph; Erb, Benjamin; Kargl, Frank

    2016-01-01

    Privacy strategies and privacy patterns are fundamental concepts of the privacy-by-design engineering approach. While they support a privacy-aware development process for IT systems, the concepts used by malicious, privacy-threatening parties are generally less understood and known. We argue...... that understanding the “dark side”, namely how personal data is abused, is of equal importance. In this paper, we introduce the concept of privacy dark strategies and privacy dark patterns and present a framework that collects, documents, and analyzes such malicious concepts. In addition, we investigate from...... a psychological perspective why privacy dark strategies are effective. The resulting framework allows for a better understanding of these dark concepts, fosters awareness, and supports the development of countermeasures. We aim to contribute to an easier detection and successive removal of such approaches from...

  8. The conservation genetics juggling act: Integrating genetics and ecology, science and policy

    Science.gov (United States)

    Haig, Susan M.; Miller, Mark P.; Bellinger, Renee; Draheim, Hope M.; Mercer, Dacey; Mullins, Tom

    2016-01-01

    The field of conservation genetics, when properly implemented, is a constant juggling act integrating molecular genetics, ecology, and demography with applied aspects concerning managing declining species or implementing conservation laws and policies. This young field has grown substantially since the 1980’s following development of the polymerase chain reaction and now into the genomics era. Our lab has “grown up” with the field, having worked on these issues for over three decades. Our multi-disciplinary approach entails understanding the behavior and ecology of species as well as the underlying processes that contribute to genetic viability. Taking this holistic approach provides a comprehensive understanding of factors that influence species persistence and evolutionary potential while considering annual challenges that occur throughout their life cycle. As a federal lab, we are often addressing the needs of the U.S. Fish and Wildlife Service in their efforts to list, de-list or recover species. Nevertheless, there remains an overall communication gap between research geneticists and biologists who are charged with implementing their results. Therefore, we outline the need for a National Center for Small Population Biology to ameliorate this problem and provide organizations charged with making status decisions firmer ground from which to make their critical decisions. 

  9. Policy recommendations for addressing privacy challenges associated with cell-based research and interventions.

    Science.gov (United States)

    Ogbogu, Ubaka; Burningham, Sarah; Ollenberger, Adam; Calder, Kathryn; Du, Li; El Emam, Khaled; Hyde-Lay, Robyn; Isasi, Rosario; Joly, Yann; Kerr, Ian; Malin, Bradley; McDonald, Michael; Penney, Steven; Piat, Gayle; Roy, Denis-Claude; Sugarman, Jeremy; Vercauteren, Suzanne; Verhenneman, Griet; West, Lori; Caulfield, Timothy

    2014-02-03

    The increased use of human biological material for cell-based research and clinical interventions poses risks to the privacy of patients and donors, including the possibility of re-identification of individuals from anonymized cell lines and associated genetic data. These risks will increase as technologies and databases used for re-identification become affordable and more sophisticated. Policies that require ongoing linkage of cell lines to donors' clinical information for research and regulatory purposes, and existing practices that limit research participants' ability to control what is done with their genetic data, amplify the privacy concerns. To date, the privacy issues associated with cell-based research and interventions have not received much attention in the academic and policymaking contexts. This paper, arising out of a multi-disciplinary workshop, aims to rectify this by outlining the issues, proposing novel governance strategies and policy recommendations, and identifying areas where further evidence is required to make sound policy decisions. The authors of this paper take the position that existing rules and norms can be reasonably extended to address privacy risks in this context without compromising emerging developments in the research environment, and that exceptions from such rules should be justified using a case-by-case approach. In developing new policies, the broader framework of regulations governing cell-based research and related areas must be taken into account, as well as the views of impacted groups, including scientists, research participants and the general public. This paper outlines deliberations at a policy development workshop focusing on privacy challenges associated with cell-based research and interventions. The paper provides an overview of these challenges, followed by a discussion of key themes and recommendations that emerged from discussions at the workshop. The paper concludes that privacy risks associated with cell

  10. Genetic Issues in Mental Retardation, 1996-1997.

    Science.gov (United States)

    Genetic Issues in Mental Retardation, 1996

    1996-01-01

    This document consists of the first six issues of a newsletter, which discusses current knowledge about and concerns related to genetics and mental retardation. The second issue addresses the problem of genetic discrimination. The third issue considers genetic testing, screening, and counseling. The fourth issue addresses genetic privacy issues.…

  11. Privacy Preserving Association Rule Mining Revisited: Privacy Enhancement and Resources Efficiency

    Science.gov (United States)

    Mohaisen, Abedelaziz; Jho, Nam-Su; Hong, Dowon; Nyang, Daehun

    Privacy preserving association rule mining algorithms have been designed for discovering the relations between variables in data while maintaining the data privacy. In this article we revise one of the recently introduced schemes for association rule mining using fake transactions (FS). In particular, our analysis shows that the FS scheme has exhaustive storage and high computation requirements for guaranteeing a reasonable level of privacy. We introduce a realistic definition of privacy that benefits from the average case privacy and motivates the study of a weakness in the structure of FS by fake transactions filtering. In order to overcome this problem, we improve the FS scheme by presenting a hybrid scheme that considers both privacy and resources as two concurrent guidelines. Analytical and empirical results show the efficiency and applicability of our proposed scheme.

  12. Privacy enhanced group communication in clinical environment

    Science.gov (United States)

    Li, Mingyan; Narayanan, Sreeram; Poovendran, Radha

    2005-04-01

    Privacy protection of medical records has always been an important issue and is mandated by the recent Health Insurance Portability and Accountability Act (HIPAA) standards. In this paper, we propose security architectures for a tele-referring system that allows electronic group communication among professionals for better quality treatments, while protecting patient privacy against unauthorized access. Although DICOM defines the much-needed guidelines for confidentiality of medical data during transmission, there is no provision in the existing medical security systems to guarantee patient privacy once the data has been received. In our design, we address this issue by enabling tracing back to the recipient whose received data is disclosed to outsiders, using watermarking technique. We present security architecture design of a tele-referring system using a distributed approach and a centralized web-based approach. The resulting tele-referring system (i) provides confidentiality during the transmission and ensures integrity and authenticity of the received data, (ii) allows tracing of the recipient who has either distributed the data to outsiders or whose system has been compromised, (iii) provides proof of receipt or origin, and (iv) can be easy to use and low-cost to employ in clinical environment.

  13. Privacy and Innovation

    OpenAIRE

    Avi Goldfarb; Catherine Tucker

    2011-01-01

    Information and communication technology now enables firms to collect detailed and potentially intrusive data about their customers both easily and cheaply. This means that privacy concerns are no longer limited to government surveillance and public figures' private lives. The empirical literature on privacy regulation shows that privacy regulation may affect the extent and direction of data-based innovation. We also show that the impact of privacy regulation can be extremely heterogeneous. T...

  14. 12 CFR 792.69 - Training and employee standards of conduct with regard to privacy.

    Science.gov (United States)

    2010-01-01

    ... person's supervision are advised of the provisions of the Privacy Act, including the criminal penalties..., use, or disseminate information concerning an individual's religious or political beliefs or...

  15. 75 FR 64147 - Privacy Act; Implementation

    Science.gov (United States)

    2010-10-19

    .... (relating to alcohol). After the organizational change, TTB conducted a review of its records to determine... notice of proposed rulemaking is required, the provisions of the Regulatory Flexibility Act (5 U.S.C. 601...

  16. What Is Direct-to-Consumer Genetic Testing?

    Science.gov (United States)

    ... consumer genetic testing. Additional information about direct-to-consumer marketing of genetic tests and related research questions are ... for Links Data Files & API Site Map Subscribe Customer Support USA.gov Copyright Privacy Accessibility FOIA Viewers & ...

  17. Evaluating human genetic diversity

    National Research Council Canada - National Science Library

    ... into human evolution and origins and serving as a springboard for important medical research. It also addresses issues of confidentiality and individual privacy for participants in genetic diversity research studies.

  18. Internet and Privacy

    OpenAIRE

    Al-Fadhli, Meshal Shehab

    2007-01-01

    The concept of privacy is hard to understand and is not easy to define, because this concept is linked with several dimensions. Internet Privacy is associated with the use of the Internet and most likely appointed under communications privacy, involving the user of the Internet’s personal information and activities, and the disclosure of them online. This essay is going to present the meaning of privacy and the implications of it for Internet users. Also, this essay will demonstrate some of t...

  19. Biohistorical materials and contemporary privacy concerns-the forensic case of King Albert I.

    Science.gov (United States)

    Larmuseau, Maarten H D; Bekaert, Bram; Baumers, Maarten; Wenseleers, Tom; Deforce, Dieter; Borry, Pascal; Decorte, Ronny

    2016-09-01

    The rapid advancement of technology in genomic analysis increasingly allows researchers to study human biohistorical materials. Nevertheless, little attention has been paid to the privacy of the donor's living relatives and the negative impact they might experience from the (public) availability of genetic results, even in cases of scientific, forensic or historical relevance. This issue has become clear during a cold case investigation of a relic attributed to Belgian King and World War I-hero Albert I who died, according to the official version, in a solo climbing accident in 1934. Authentication of the relic with blood stains assigned to the King and collected on the place where his body was discovered is recognised as one of the final opportunities to test the plausibility of various conspiracy theories on the King's demise. While the historical value and current technological developments allow the genomic analysis of this relic, publication of genetic data would immediately lead to privacy concerns for living descendants and relatives of the King, including the Belgian and British royal families, even after more than 80 years. Therefore, the authentication study of the relic of King Albert I has been a difficult exercise towards balancing public research interests and privacy interests. The identification of the relic was realised by using a strict genetic genealogical approach including Y-chromosome and mitochondrial genome comparison with living relatives, thereby limiting the analysis to genomic regions relevant for identification. The genetic results combined with all available historical elements concerning the relic, provide strong evidence that King Albert I was indeed the donor of the blood stains, which is in line with the official climbing accident hypothesis and contradicts widespread 'mise-en-scène' scenarios. Since publication of the haploid data of the blood stains has the potential to violate the privacy of living relatives, we opted for

  20. Patient Privacy in the Era of Big Data.

    Science.gov (United States)

    Kayaalp, Mehmet

    2018-01-20

    Privacy was defined as a fundamental human right in the Universal Declaration of Human Rights at the 1948 United Nations General Assembly. However, there is still no consensus on what constitutes privacy. In this review, we look at the evolution of privacy as a concept from the era of Hippocrates to the era of social media and big data. To appreciate the modern measures of patient privacy protection and correctly interpret the current regulatory framework in the United States, we need to analyze and understand the concepts of individually identifiable information, individually identifiable health information, protected health information, and de-identification. The Privacy Rule of the Health Insurance Portability and Accountability Act defines the regulatory framework and casts a balance between protective measures and access to health information for secondary (scientific) use. The rule defines the conditions when health information is protected by law and how protected health information can be de-identified for secondary use. With the advents of artificial intelligence and computational linguistics, computational text de-identification algorithms produce de-identified results nearly as well as those produced by human experts, but much faster, more consistently and basically for free. Modern clinical text de-identification systems now pave the road to big data and enable scientists to access de-identified clinical information while firmly protecting patient privacy. However, clinical text de-identification is not a perfect process. In order to maximize the protection of patient privacy and to free clinical and scientific information from the confines of electronic healthcare systems, all stakeholders, including patients, health institutions and institutional review boards, scientists and the scientific communities, as well as regulatory and law enforcement agencies must collaborate closely. On the one hand, public health laws and privacy regulations define rules