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Sample records for genetic privacy act

  1. The Genetic Privacy Act and commentary

    Annas, G.J.; Glantz, L.H.; Roche, P.A.

    1995-02-28

    The Genetic Privacy Act is a proposal for federal legislation. The Act is based on the premise that genetic information is different from other types of personal information in ways that require special protection. Therefore, to effectively protect genetic privacy unauthorized collection and analysis of individually identifiable DNA must be prohibited. As a result, the premise of the Act is that no stranger should have or control identifiable DNA samples or genetic information about an individual unless that individual specifically authorizes the collection of DNA samples for the purpose of genetic analysis, authorized the creation of that private information, and has access to and control over the dissemination of that information.

  2. The Genetic Privacy Act and commentary

    Annas, G.J.; Glantz, L.H.; Roche, P.A.

    1995-02-28

    The Genetic Privacy Act is a proposal for federal legislation. The Act is based on the premise that genetic information is different from other types of personal information in ways that require special protection. The DNA molecule holds an extensive amount of currently indecipherable information. The major goal of the Human Genome Project is to decipher this code so that the information it contains is accessible. The privacy question is, accessible to whom? The highly personal nature of the information contained in DNA can be illustrated by thinking of DNA as containing an individual`s {open_quotes}future diary.{close_quotes} A diary is perhaps the most personal and private document a person can create. It contains a person`s innermost thoughts and perceptions, and is usually hidden and locked to assure its secrecy. Diaries describe the past. The information in one`s genetic code can be thought of as a coded probabilistic future diary because it describes an important part of a unique and personal future. This document presents an introduction to the proposal for federal legislation `the Genetic Privacy Act`; a copy of the proposed act; and comment.

  3. Privacy Act

    Learn about the Privacy Act of 1974, the Electronic Government Act of 2002, the Federal Information Security Management Act, and other information about the Environmental Protection Agency maintains its records.

  4. Genetic privacy.

    Sankar, Pamela

    2003-01-01

    During the past 10 years, the number of genetic tests performed more than tripled, and public concern about genetic privacy emerged. The majority of states and the U.S. government have passed regulations protecting genetic information. However, research has shown that concerns about genetic privacy are disproportionate to known instances of information misuse. Beliefs in genetic determinacy explain some of the heightened concern about genetic privacy. Discussion of the debate over genetic testing within families illustrates the most recent response to genetic privacy concerns.

  5. 75 FR 63703 - Privacy Act of 1974; Privacy Act Regulation

    2010-10-18

    ... FEDERAL RESERVE SYSTEM 12 CFR Part 261a [Docket No. R-1313] Privacy Act of 1974; Privacy Act... implementing the Privacy Act of 1974 (Privacy Act). The primary changes concern the waiver of copying fees... records under the Privacy Act; the amendment of special procedures for the release of medical records to...

  6. Protecting genetic privacy.

    Roche, P A; Annas, G J

    2001-05-01

    This article outlines the arguments for and against new rules to protect genetic privacy. We explain why genetic information is different to other sensitive medical information, why researchers and biotechnology companies have opposed new rules to protect genetic privacy (and favour anti-discrimination laws instead), and discuss what can be done to protect privacy in relation to genetic-sequence information and to DNA samples themselves.

  7. 76 FR 59073 - Privacy Act

    2011-09-23

    ... CENTRAL INTELLIGENCE AGENCY 32 CFR Part 1901 Privacy Act AGENCY: Central Intelligence Agency. ACTION: Proposed rule. SUMMARY: Consistent with the Privacy Act (PA), the Central Intelligence Agency...-1379. SUPPLEMENTARY INFORMATION: Consistent with the Privacy Act (PA), the CIA has undertaken and...

  8. Modifications to the HIPAA Privacy, Security, Enforcement, and Breach Notification rules under the Health Information Technology for Economic and Clinical Health Act and the Genetic Information Nondiscrimination Act; other modifications to the HIPAA rules.

    2013-01-25

    The Department of Health and Human Services (HHS or ``the Department'') is issuing this final rule to: Modify the Health Insurance Portability and Accountability Act (HIPAA) Privacy, Security, and Enforcement Rules to implement statutory amendments under the Health Information Technology for Economic and Clinical Health Act (``the HITECH Act'' or ``the Act'') to strengthen the privacy and security protection for individuals' health information; modify the rule for Breach Notification for Unsecured Protected Health Information (Breach Notification Rule) under the HITECH Act to address public comment received on the interim final rule; modify the HIPAA Privacy Rule to strengthen the privacy protections for genetic information by implementing section 105 of Title I of the Genetic Information Nondiscrimination Act of 2008 (GINA); and make certain other modifications to the HIPAA Privacy, Security, Breach Notification, and Enforcement Rules (the HIPAA Rules) to improve their workability and effectiveness and to increase flexibility for and decrease burden on the regulated entities.

  9. 76 FR 64115 - Privacy Act of 1974; Privacy Act System of Records

    2011-10-17

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-092)] Privacy Act of 1974; Privacy Act... retirement of one Privacy Act system of records notice. SUMMARY: In accordance with the Privacy Act of 1974, NASA is giving notice that it proposes to cancel the following Privacy Act system of records notice...

  10. 78 FR 46256 - Privacy Act

    2013-07-31

    ... FEDERAL ELECTION COMMISSION 11 CFR Part 1 Privacy Act CFR Correction In Title 11 of the Code of Federal Regulations, revised as of January 1, 2012, on page 5, in Sec. 1.2, the words ``95 and 96 of the Internal Revenue Code of 1954.'' are added at the end of the definition of Act. [FR Doc. 2013-18535 Filed 7...

  11. 75 FR 81205 - Privacy Act: Revision of Privacy Act Systems of Records

    2010-12-27

    ... DEPARTMENT OF AGRICULTURE Office of the Secretary Privacy Act: Revision of Privacy Act Systems of Records AGENCY: Office of the Secretary, USDA. ACTION: Notice to Revise Privacy Act Systems of Records... two Privacy Act Systems of Records entitled ``Information on Persons Disqualified from the...

  12. 76 FR 67763 - Privacy Act of 1974; Privacy Act System of Records

    2011-11-02

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-109)] Privacy Act of 1974; Privacy Act... proposed revisions to an existing Privacy Act system of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  13. 76 FR 64114 - Privacy Act of 1974; Privacy Act System of Records

    2011-10-17

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-093)] Privacy Act of 1974; Privacy Act... proposed revisions to an existing Privacy Act system of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  14. 76 FR 64112 - Privacy Act of 1974; Privacy Act System of Records Appendices

    2011-10-17

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice (11-091)] Privacy Act of 1974; Privacy Act...: Revisions of NASA Appendices to Privacy Act System of Records. SUMMARY: Notice is hereby given that NASA is... Privacy Act of 1974. This notice publishes those amendments as set forth below under the caption...

  15. 78 FR 40515 - Privacy Act of 1974; Privacy Act System of Records

    2013-07-05

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice 13-071] Privacy Act of 1974; Privacy Act System of Records AGENCY: National Aeronautics and Space Administration (NASA). ACTION: Notice of Privacy Act system of records. SUMMARY: Each Federal agency is required by the Privacy Act of 1974 to publish...

  16. 78 FR 77503 - Privacy Act of 1974; Privacy Act System of Records

    2013-12-23

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice 13-149] Privacy Act of 1974; Privacy Act... proposed revisions to existing Privacy Act systems of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  17. 77 FR 69898 - Privacy Act of 1974; Privacy Act System of Records

    2012-11-21

    ... NATIONAL AERONAUTICS AND SPACE ADMINISTRATION [Notice 12-100] Privacy Act of 1974; Privacy Act... proposed revisions to an existing Privacy Act system of records. SUMMARY: Pursuant to the provisions of the Privacy Act of 1974 (5 U.S.C. 552a), the National Aeronautics and Space Administration is issuing public...

  18. 31 CFR 0.216 - Privacy Act.

    2010-07-01

    ... 31 Money and Finance: Treasury 1 2010-07-01 2010-07-01 false Privacy Act. 0.216 Section 0.216... RULES OF CONDUCT Rules of Conduct § 0.216 Privacy Act. Employees involved in the design, development, operation, or maintenance of any system of records or in maintaining records subject to the Privacy Act of...

  19. 77 FR 67348 - Privacy Act of 1974; System of Records-Alternative Dispute Resolution (ADR) Center Case Tracking...

    2012-11-09

    ....S.C. 791 et seq.; the Equal Pay Act, 29 U.S.C. 206(d); the Genetic Information Nondiscrimination Act... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records--Alternative Dispute Resolution... with the Privacy Act of 1974, as amended, 5 U.S.C. 552a (Privacy Act), the Department of Education...

  20. 43 CFR 2.47 - Records subject to Privacy Act.

    2010-10-01

    ... 43 Public Lands: Interior 1 2010-10-01 2010-10-01 false Records subject to Privacy Act. 2.47 Section 2.47 Public Lands: Interior Office of the Secretary of the Interior RECORDS AND TESTIMONY; FREEDOM OF INFORMATION ACT Privacy Act § 2.47 Records subject to Privacy Act. The Privacy Act applies to all...

  1. 76 FR 51869 - Privacy Act Implementation

    2011-08-19

    ... permanent residence. Maintain includes collect, use, disseminate, or control. Privacy Act means the Privacy... announces the creation, deletion, or amendment of one or more system of records. System of records notices... reference and university libraries or electronically at the [[Page 51873

  2. 45 CFR 503.1 - Definitions-Privacy Act.

    2010-10-01

    ... 45 Public Welfare 3 2010-10-01 2010-10-01 false Definitions-Privacy Act. 503.1 Section 503.1... THE UNITED STATES, DEPARTMENT OF JUSTICE RULES OF PRACTICE PRIVACY ACT AND GOVERNMENT IN THE SUNSHINE REGULATIONS Privacy Act Regulations § 503.1 Definitions—Privacy Act. For the purpose of this part: Agency...

  3. 45 CFR 503.2 - General policies-Privacy Act.

    2010-10-01

    ... 45 Public Welfare 3 2010-10-01 2010-10-01 false General policies-Privacy Act. 503.2 Section 503.2... THE UNITED STATES, DEPARTMENT OF JUSTICE RULES OF PRACTICE PRIVACY ACT AND GOVERNMENT IN THE SUNSHINE REGULATIONS Privacy Act Regulations § 503.2 General policies—Privacy Act. The Commission will protect the...

  4. 48 CFR 52.224-2 - Privacy Act.

    2010-10-01

    ... 48 Federal Acquisition Regulations System 2 2010-10-01 2010-10-01 false Privacy Act. 52.224-2... AND FORMS SOLICITATION PROVISIONS AND CONTRACT CLAUSES Text of Provisions and Clauses 52.224-2 Privacy... agency function: Privacy Act (APR 1984) (a) The Contractor agrees to— (1) Comply with the Privacy Act of...

  5. 77 FR 33761 - Privacy Act of 1974; Notification to Update an Existing Privacy Act System of Records, “Grievance...

    2012-06-07

    ... of a data breach. (See also on HUD's privacy Web site, Appendix I for other ways that the Privacy Act... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-04] Privacy Act of 1974; Notification to Update an Existing Privacy Act System of Records, ``Grievance Records'' AGENCY: Office of the...

  6. Routes for breaching and protecting genetic privacy.

    Erlich, Yaniv; Narayanan, Arvind

    2014-06-01

    We are entering an era of ubiquitous genetic information for research, clinical care and personal curiosity. Sharing these data sets is vital for progress in biomedical research. However, a growing concern is the ability to protect the genetic privacy of the data originators. Here, we present an overview of genetic privacy breaching strategies. We outline the principles of each technique, indicate the underlying assumptions, and assess their technological complexity and maturation. We then review potential mitigation methods for privacy-preserving dissemination of sensitive data and highlight different cases that are relevant to genetic applications.

  7. Routes for breaching and protecting genetic privacy

    Erlich, Yaniv; Narayanan, Arvind

    2013-01-01

    We are entering an era of ubiquitous genetic information for research, clinical care and personal curiosity. Sharing these datasets is vital for progress in biomedical research. However, one growing concern is the ability to protect the genetic privacy of the data originators. Here, we present an overview of genetic privacy breaching strategies. We outline the principles of each technique, point to the underlying assumptions, and assess its technological complexity and maturati...

  8. Developing genetic privacy legislation: the South Carolina experience.

    Edwards, J G; Young, S R; Brooks, K A; Aiken, J H; Patterson, E D; Pritchett, S T

    1998-01-01

    The availability of presymptomatic and predisposition genetic testing has spawned the need for legislation prohibiting health insurance discrimination on the basis of genetic information. The federal effort, the Health Insurance Portability and Accountability Act (HIPAA) of 1996, falls short by protecting only those who access insurance through group plans. A committee of University of South Carolina professionals convened in 1996 to develop legislation in support of genetic privacy for the state of South Carolina. The legislation prevents health insurance companies from denying coverage or setting insurance rates on the basis of genetic information. It also protects the privacy of genetic information and prohibits performance of genetic tests without specific informed consent. In preparing the bill, genetic privacy laws from other states were reviewed, and a modified version of the Virginia law adopted. The South Carolina Committee for the Protection of Genetic Privacy version went a step further by including enforcement language and excluding Virginia's sunset clause. The definition of genetic information encompassed genetic test results, and importantly, includes family history of genetic disease. Our experience in navigating through the state legislature and working through opposition from the health insurance lobby is detailed herein.

  9. 78 FR 32554 - Privacy Act; Implementation

    2013-05-31

    ..., or intelligence efforts by putting the subject of an investigation, study or analysis on notice of...] Privacy Act; Implementation AGENCY: National Geospatial-Intelligence Agency (NGA), DoD. ACTION: Direct final rule. SUMMARY: National Geospatial-Intelligence Agency (NGA) is proposing to update the NGA...

  10. 75 FR 20346 - Privacy Act of 1974; System of Records

    2010-04-19

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Federal Student Aid, Department of Education. ACTION: Notice of an altered system of records. SUMMARY: In accordance with the Privacy Act of 1974, as amended (Privacy Act), 5 United States Code (U.S.C.) 552a, the Chief Operating...

  11. 77 FR 32111 - Privacy Act System of Records

    2012-05-31

    ... contacted in order to obtain that office's advice regarding obligations under the Privacy Act; 8. Breach... FEDERAL COMMUNICATIONS COMMISSION Privacy Act System of Records AGENCY: Federal Communications Commission. ACTION: Notice; one new Privacy Act system of records. SUMMARY: Pursuant to subsection (e)(4) of...

  12. 10 CFR 1304.103 - Privacy Act inquiries.

    2010-01-01

    ... writing may be sent to: Privacy Act Officer, U.S. Nuclear Waste Technical Review Board, 2300 Clarendon... NUCLEAR WASTE TECHNICAL REVIEW BOARD PRIVACY ACT OF 1974 § 1304.103 Privacy Act inquiries. (a) Requests... contains a record pertaining to him or her may file a request in person or in writing, via the internet, or...

  13. 32 CFR 505.3 - Privacy Act systems of records.

    2010-07-01

    ... anticipated threats or hazards to the security or integrity of data, which could result in substantial harm... 32 National Defense 3 2010-07-01 2010-07-01 true Privacy Act systems of records. 505.3 Section 505... AND PUBLIC RELATIONS ARMY PRIVACY ACT PROGRAM § 505.3 Privacy Act systems of records. (a) Systems of...

  14. 75 FR 53262 - Privacy Act of 1974; System of Records

    2010-08-31

    ... a new Privacy Act system of records, JUSTICE/FBI- 021, the Data Integration and Visualization System... provisions of the Privacy Act in order to avoid interference with the national security and criminal law...)(G), (H) and (I); (e)(5) and (8); (f) and (g) of the Privacy Act: (1) Data Integration and...

  15. 77 FR 56676 - Privacy Act of 1974; System of Records

    2012-09-13

    ... of records to account for the previous omission of an accounting of disclosure when records may be.... Accounting of disclosure records: The date, nature, and purpose of each disclosure of a Privacy Act covered..., including FOIA and Privacy Act requests, and to comply with FOIA and Privacy Act disclosure accounting and...

  16. 77 FR 74851 - Privacy Act of 1974; System of Records

    2012-12-18

    ... FEDERAL DEPOSIT INSURANCE CORPORATION Privacy Act of 1974; System of Records AGENCY: Federal Deposit Insurance Corporation. ACTION: Notice to Delete a System of Records. SUMMARY: In accordance with the requirements of the Privacy Act of 1974, as amended (Privacy Act), the Federal Deposit Insurance...

  17. 37 CFR 251.23 - FOIA and Privacy Act.

    2010-07-01

    ... 37 Patents, Trademarks, and Copyrights 1 2010-07-01 2010-07-01 false FOIA and Privacy Act. 251.23 Section 251.23 Patents, Trademarks, and Copyrights COPYRIGHT OFFICE, LIBRARY OF CONGRESS COPYRIGHT... Access to and Inspection of Records § 251.23 FOIA and Privacy Act. Freedom of Information Act and Privacy...

  18. 48 CFR 352.224-70 - Privacy Act.

    2010-10-01

    ... 48 Federal Acquisition Regulations System 4 2010-10-01 2010-10-01 false Privacy Act. 352.224-70... SOLICITATION PROVISIONS AND CONTRACT CLAUSES Texts of Provisions and Clauses 352.224-70 Privacy Act. As prescribed in 324.103(b)(2), the Contracting Officer shall insert the following clause: Privacy Act (January...

  19. 32 CFR 806b.4 - Privacy Act complaints.

    2010-07-01

    ... be identified, the local Privacy Act officer will assume these duties. Issues that cannot be resolved... 32 National Defense 6 2010-07-01 2010-07-01 false Privacy Act complaints. 806b.4 Section 806b.4 National Defense Department of Defense (Continued) DEPARTMENT OF THE AIR FORCE ADMINISTRATION PRIVACY ACT...

  20. An overview of human genetic privacy.

    Shi, Xinghua; Wu, Xintao

    2017-01-01

    The study of human genomics is becoming a Big Data science, owing to recent biotechnological advances leading to availability of millions of personal genome sequences, which can be combined with biometric measurements from mobile apps and fitness trackers, and of human behavior data monitored from mobile devices and social media. With increasing research opportunities for integrative genomic studies through data sharing, genetic privacy emerges as a legitimate yet challenging concern that needs to be carefully addressed, not only for individuals but also for their families. In this paper, we present potential genetic privacy risks and relevant ethics and regulations for sharing and protecting human genomics data. We also describe the techniques for protecting human genetic privacy from three broad perspectives: controlled access, differential privacy, and cryptographic solutions. © 2016 New York Academy of Sciences.

  1. Privacy and policy for genetic research.

    DeCew, Judith Wagner

    2004-01-01

    I begin with a discussion of the value of privacy and what we lose without it. I then turn to the difficulties of preserving privacy for genetic information and other medical records in the face of advanced information technology. I suggest three alternative public policy approaches to the problem of protecting individual privacy and also preserving databases for genetic research: (1) governmental guidelines and centralized databases, (2) corporate self-regulation, and (3) my hybrid approach. None of these are unproblematic; I discuss strengths and drawbacks of each, emphasizing the importance of protecting the privacy of sensitive medical and genetic information as well as letting information technology flourish to aid patient care, public health and scientific research.

  2. An overview of human genetic privacy

    Shi, Xinghua; Wu, Xintao

    2016-01-01

    The study of human genomics is becoming a Big Data science, owing to recent biotechnological advances leading to availability of millions of personal genome sequences, which can be combined with biometric measurements from mobile apps and fitness trackers, and of human behavior data monitored from mobile devices and social media. With increasing research opportunities for integrative genomic studies through data sharing, genetic privacy emerges as a legitimate yet challenging concern that needs to be carefully addressed, not only for individuals but also for their families. In this paper, we present potential genetic privacy risks and relevant ethics and regulations for sharing and protecting human genomics data. We also describe the techniques for protecting human genetic privacy from three broad perspectives: controlled access, differential privacy, and cryptographic solutions. PMID:27626905

  3. Genetic secrets: Protecting privacy and confidentiality in the genetic era

    Rothstein, M.A. [ed.

    1998-07-01

    Few developments are likely to affect human beings more profoundly in the long run than the discoveries resulting from advances in modern genetics. Although the developments in genetic technology promise to provide many additional benefits, their application to genetic screening poses ethical, social, and legal questions, many of which are rooted in issues of privacy and confidentiality. The ethical, practical, and legal ramifications of these and related questions are explored in depth. The broad range of topics includes: the privacy and confidentiality of genetic information; the challenges to privacy and confidentiality that may be projected to result from the emerging genetic technologies; the role of informed consent in protecting the confidentiality of genetic information in the clinical setting; the potential uses of genetic information by third parties; the implications of changes in the health care delivery system for privacy and confidentiality; relevant national and international developments in public policies, professional standards, and laws; recommendations; and the identification of research needs.

  4. Disclosure 'downunder': misadventures in Australian genetic privacy law.

    Bonython, Wendy; Arnold, Bruce

    2014-03-01

    Along with many jurisdictions, Australia is struggling with the unique issues raised by genetic information in the context of privacy laws and medical ethics. Although the consequences of disclosure of most private information are generally confined to individuals, disclosure of genetic information has far-reaching consequences, with a credible argument that genetic relatives have a right to know about potential medical conditions. In 2006, the Privacy Act was amended to permit disclosure of an individual's genetic information, without their consent, to genetic relatives, if it was to avoid or mitigate serious illness. Unfortunately, additional amendments required for operation of the disclosure amendment were overlooked. Public Interest Determinations (PIDs)-delegated legislation issued by the privacy commissioner-have, instead, been used to exempt healthcare providers from provisions which would otherwise make disclosure unlawful. This paper critiques the PIDs using documents obtained under the Freedom of Information Act-specifically the impact of both the PIDs and the disclosure amendment on patients and relatives-and confidentiality and the procedural validity of subordinate laws regulating medical privacy.

  5. 32 CFR 701.109 - Privacy Act (PA) appeals.

    2010-07-01

    ... 32 National Defense 5 2010-07-01 2010-07-01 false Privacy Act (PA) appeals. 701.109 Section 701... OF THE NAVY DOCUMENTS AFFECTING THE PUBLIC DON Privacy Program § 701.109 Privacy Act (PA) appeals. (a... commence when the appeal reaches the office of the review authority having jurisdiction over the record...

  6. 77 FR 61275 - Privacy Act of 1974: Implementation

    2012-10-09

    ... (FBI) Privacy Act system of records titled FBI Data Warehouse System, JUSTICE/FBI- 022. This system is...)(G), (H), and (I), (5), and (8); (f); and (g) of the Privacy Act: (1) FBI Data Warehouse System... security; disclose information that would constitute an unwarranted invasion of another's personal privacy...

  7. 78 FR 15732 - Privacy Act of 1974; Computer Matching Program

    2013-03-12

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... Privacy Act of 1974 (5 U.S.C. 552a), as amended by the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection Amendments of 1990 (Pub. L. 101...

  8. 76 FR 11435 - Privacy Act of 1974; Computer Matching Program

    2011-03-02

    ... Security Administration. SUMMARY: Pursuant to the Computer Matching and Privacy Protection Act of 1988, Public Law 100-503, the Computer Matching and Privacy Protections Amendments of 1990, Pub. L. 101-508... Interpreting the Provisions of Public Law 100-503, the Computer Matching and Privacy Protection Act of 1988...

  9. 77 FR 15555 - Freedom of Information Act and Privacy Act Procedures

    2012-03-16

    ... Freedom of Information Act and Privacy Act Procedures AGENCY: Special Inspector General for Afghanistan... Freedom of Information Act (FOIA) and the Privacy Act of 1974. These procedures will facilitate public..., Freedom of information, Privacy. Authority and Issuance For the reasons set forth above, SIGAR establishes...

  10. 75 FR 36535 - Freedom of Information Act, Privacy Act of 1974; Implementation

    2010-06-28

    ... DEPARTMENT OF THE TREASURY Office of the Secretary 31 CFR Part 1 Freedom of Information Act... Freedom of Information Act (FOIA) and its regulations concerning the Privacy Act of 1974 (Privacy Act). It... correct those errors. List of Subjects in 31 CFR Part 1 Freedom of Information; Privacy. 0 Accordingly...

  11. 20 CFR 401.30 - Privacy Act and other responsibilities.

    2010-04-01

    ... information privacy issues, including those relating to the collection, use, sharing, and disclosure of... 20 Employees' Benefits 2 2010-04-01 2010-04-01 false Privacy Act and other responsibilities. 401.30 Section 401.30 Employees' Benefits SOCIAL SECURITY ADMINISTRATION PRIVACY AND DISCLOSURE OF...

  12. Identifying genetic relatives without compromising privacy.

    He, Dan; Furlotte, Nicholas A; Hormozdiari, Farhad; Joo, Jong Wha J; Wadia, Akshay; Ostrovsky, Rafail; Sahai, Amit; Eskin, Eleazar

    2014-04-01

    The development of high-throughput genomic technologies has impacted many areas of genetic research. While many applications of these technologies focus on the discovery of genes involved in disease from population samples, applications of genomic technologies to an individual's genome or personal genomics have recently gained much interest. One such application is the identification of relatives from genetic data. In this application, genetic information from a set of individuals is collected in a database, and each pair of individuals is compared in order to identify genetic relatives. An inherent issue that arises in the identification of relatives is privacy. In this article, we propose a method for identifying genetic relatives without compromising privacy by taking advantage of novel cryptographic techniques customized for secure and private comparison of genetic information. We demonstrate the utility of these techniques by allowing a pair of individuals to discover whether or not they are related without compromising their genetic information or revealing it to a third party. The idea is that individuals only share enough special-purpose cryptographically protected information with each other to identify whether or not they are relatives, but not enough to expose any information about their genomes. We show in HapMap and 1000 Genomes data that our method can recover first- and second-order genetic relationships and, through simulations, show that our method can identify relationships as distant as third cousins while preserving privacy.

  13. Genetic privacy and non-discrimination.

    Romeo Casabona, Carlos María

    2011-01-01

    The UN Inter-Agency Committee on Bioethics met for its tenth meeting at the UNESCO headquarters in Paris on 4-5th March 2011. Member organisations such as the WHO and UNESCO were in attendance alongside associate members such as the Council for Europe, the European Commission, the Organisation for Economic Co-operation and Development and the World Trade Organisation. Discussion centred on the theme "genetic privacy and nondiscrimination". The United Nations Economic and Social Council (ECOSOC) had previously considered, from a legal and ethical perspective, the implications of increasingly sophisticated technologies for genetic privacy and non-discrimination in fields such as medicine, employment and insurance. Thus, the ECOSOC requested that UNESCO report on relevant developments in the field of genetic privacy and non-discrimination. In parallel with a consultation process with member states, UNESCO launched a consultation with the UN Interagency Committee on Bioethics. This article analyses the report presented by the author concerning the analysis of the current contentions in the field and illustrates attempts at responding on a normative level to a perceived threat to genetic privacy and non-discrimination.

  14. Genetic privacy in sports: clearing the hurdles.

    Callier, Shawneequa

    2012-12-01

    As genomic medicine continues to advance and inform clinical care, knowledge gained is likely to influence sports medicine and training practices. Susceptibility to injury, sudden cardiac failure, and other serious conditions may one day be tackled on a subclinical level through genetic testing programs. In addition, athletes may increasingly consider using genetic testing services to maximize their performance potential. This paper assesses the role of privacy and genetic discrimination laws that would apply to athletes who engage in genetic testing and the limits of these protections.

  15. Privacy and equality in diagnostic genetic testing.

    Nyrhinen, Tarja; Hietala, Marja; Puukka, Pauli; Leino-Kilpi, Helena

    2007-05-01

    This study aimed to determine the extent to which the principles of privacy and equality were observed during diagnostic genetic testing according to views held by patients or child patients' parents (n = 106) and by staff (n = 162) from three Finnish university hospitals. The data were collected through a structured questionnaire and analysed using the SAS 8.1 statistical software. In general, the two principles were observed relatively satisfactorily in clinical practice. According to patients/parents, equality in the post-analytic phase and, according to staff, privacy in the pre-analytic phase, involved the greatest ethical problems. The two groups differed in their views concerning pre-analytic privacy. Although there were no major problems regarding the two principles, the differences between the testing phases require further clarification. To enhance privacy protection and equality, professionals need to be given more genetics/ethics training, and patients individual counselling by genetics units staff, giving more consideration to patients' world-view, the purpose of the test and the test result.

  16. 76 FR 72325 - Privacy Act; Exempt Record System

    2011-11-23

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES 45 CFR Part 5b RIN 0906-AA91 Privacy Act; Exempt Record... are guaranteed access to, and correction rights for, substantive information reported to the NPDB. The procedures, appearing in 45 CFR part 60, use the Privacy Act access and correction procedures as a basic...

  17. 76 FR 77015 - Privacy Act of 1974; Computer Matching Agreement

    2011-12-09

    ... DEPARTMENT OF JUSTICE [AAG/A Order No. 001/2011] Privacy Act of 1974; Computer Matching Agreement AGENCY: Department of Justice. ACTION: Notice--computer matching between the Department of Justice and the Internal Revenue Service, Department of Treasury. SUMMARY: In accordance with the Privacy Act of...

  18. 77 FR 64962 - Privacy Act of 1974, as Amended

    2012-10-24

    ... social media, and recipients of other public relations materials issued by the CFPB about CFPB sponsored... THE BUREAU OF CONSUMER FINANCIAL PROTECTION Privacy Act of 1974, as Amended AGENCY: Bureau of Consumer Financial Protection. ACTION: Notice of Proposed Privacy Act System of Records. SUMMARY: In...

  19. 76 FR 67155 - Privacy Act of 1974; System of Records

    2011-10-31

    ... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: The... Federal Register Liaison Officer, Department of Defense. N05000-1 System name: OPNAV Headquarters Web... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID USN-2011-0015] Privacy Act of 1974; System...

  20. 77 FR 27756 - Privacy Act of 1974; System of Records

    2012-05-11

    ...) deletes one system of records from its existing inventory of systems of records subject to the Privacy Act... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. The deletion is... following system of records is deleted: 1. (18-04-03) ED Web Personalization Pilot Data Collection, 66 FR...

  1. 78 FR 41918 - Privacy Act of 1974; System of Records

    2013-07-12

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate.... SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records, T7905, entitled...: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act...

  2. 78 FR 21600 - Privacy Act of 1974; System of Records

    2013-04-11

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0050] Privacy Act of 1974... notice in its existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as... members of the public is to make these submissions available for public viewing on the Internet at http...

  3. 75 FR 22569 - Privacy Act of 1974; System of Records

    2010-04-29

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2010-0014] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... Internet at http://www.regulations.gov as they are received without change, including any personal...

  4. 76 FR 10010 - Privacy Act of 1974; System of Records

    2011-02-23

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0020] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... the public is to make these submissions available for public viewing on the Internet at http://www...

  5. 78 FR 52517 - Privacy Act of 1974; System of Records

    2013-08-23

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0183] Privacy Act of 1974... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed action will... public is to make these submissions available for public viewing on the Internet at http://www...

  6. 75 FR 22570 - Privacy Act of 1974; System of Records

    2010-04-29

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2010-0012] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  7. 76 FR 53420 - Privacy Act of 1974; Systems of Records

    2011-08-26

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0097] Privacy Act of 1974... notice in its existing inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a... submissions available for public viewing on the Internet at http://www.regulations.gov as they are [[Page...

  8. 78 FR 33807 - Privacy Act New System of Records

    2013-06-05

    ... DEPARTMENT OF COMMERCE [Docket No. 130520483-3483-01] Privacy Act New System of Records AGENCY... Department's proposal for a new system of records under the Privacy Act. The system is entitled ``Information... Department is creating a new system of records that will enable electronic registration, via the Internet...

  9. 76 FR 11213 - Privacy Act of 1974; Systems of Records

    2011-03-01

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2011-OS-0017] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... public is of make these submissions available for public viewing on the Internet at http://www...

  10. 77 FR 37002 - Privacy Act of 1974; System of Records

    2012-06-20

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2012-OS-0072] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  11. 76 FR 63611 - Privacy Act of 1974; System of Records

    2011-10-13

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2011-0025] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... submissions available for public viewing on the Internet at http:// [[Page 63612

  12. 76 FR 43993 - Privacy Act of 1974; System of Records

    2011-07-22

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0081] Privacy Act of 1974... the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action would be effective... the public is to make these submissions available for public viewing on the Internet at http://www...

  13. 75 FR 39921 - Privacy Act of 1974; System of Records

    2010-07-13

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0102] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  14. 78 FR 43869 - Privacy Act of 1974; System of Records

    2013-07-22

    ... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID USN-2013-0025] Privacy Act of 1974; System... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  15. 75 FR 17910 - Privacy Act of 1974; Systems of Records

    2010-04-08

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0040] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... viewing on the Internet at http://www.regulations.gov as they are received without change, including any...

  16. 76 FR 10008 - Privacy Act of 1974; System of Records

    2011-02-23

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0023] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... from members of the public is to make these submissions available for public viewing on the Internet at...

  17. 76 FR 66698 - Privacy Act of 1974; System of Records

    2011-10-27

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0117] Privacy Act of 1974... notice from its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  18. 75 FR 52517 - Privacy Act of 1974; System of Records

    2010-08-26

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2010-OS-0117] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  19. 75 FR 33789 - Privacy Act of 1974; System of Records

    2010-06-15

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0078] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... on the Internet at http://www.regulations.gov as they are received without change, including any...

  20. 78 FR 31905 - Privacy Act of 1974; System of Records

    2013-05-28

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0110] Privacy Act of 1974... notice in its existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as... members of the public is to make these submissions available for public viewing on the Internet at http...

  1. 76 FR 45543 - Privacy Act of 1974; System of Records

    2011-07-29

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0082] Privacy Act of 1974... subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action will be... the public is to make these submissions available for public viewing on the Internet at http://www...

  2. 77 FR 65539 - Privacy Act of 1974; System of Records

    2012-10-29

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2012-OS-0132] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. [[Page... Internet at http://www.regulations.gov as they are received without change, including any personal...

  3. 75 FR 67703 - Privacy Act of 1974; System of Records

    2010-11-03

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2010-0024] Privacy Act of 1974; System... record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed... the public is to make these submissions available for public viewing on the Internet at http://www...

  4. 77 FR 60412 - Privacy Act of 1974; System of Records

    2012-10-03

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2012-0012] Privacy Act of 1974; System... systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  5. 76 FR 70428 - Privacy Act of 1974; System of Records

    2011-11-14

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0120] Privacy Act of 1974... notice from its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  6. 76 FR 62394 - Privacy Act of 1974; System of Records

    2011-10-07

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0109] Privacy Act of 1974... notice from its existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a... public is to make these submissions available for public viewing on the Internet at http://www...

  7. 75 FR 10476 - Privacy Act of 1974; Systems of Records

    2010-03-08

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2010-OS-0021] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  8. 76 FR 37329 - Privacy Act of 1974; System of Records

    2011-06-27

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2011-0018] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... public is to make these submissions available for public viewing on the Internet at http://www...

  9. 76 FR 1409 - Privacy Act of 1974; System of Records

    2011-01-10

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0001] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... from members of the public is to make these submissions available for public viewing on the Internet at...

  10. 75 FR 81247 - Privacy Act of 1974; System of Records

    2010-12-27

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2010-OS-0168] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... public is to make these submissions available for public viewing on the Internet at http://www...

  11. 76 FR 22682 - Privacy Act of 1974; System of Records

    2011-04-22

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2011-OS-0044] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... from members of the public is to make these submissions available for public viewing on the Internet at...

  12. 78 FR 73511 - Privacy Act of 1974; System of Records

    2013-12-06

    ... DEPARTMENT OF DEFENSE [Docket ID: USN-2013-0046] Privacy Act of 1974; System of Records AGENCY... Privacy Act of 1974, as amended. The system being deleted is N01500-8, System Name: Personnel and Training... Internet at http://www.regulations.gov as they are received without change, including any personal...

  13. 75 FR 29728 - Privacy Act of 1974; System of Records

    2010-05-27

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0067] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... on the Internet at http://www.regulations.gov as they are received without change, including any...

  14. 76 FR 1411 - Privacy Act of 1974; System of Records

    2011-01-10

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2011-0001] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... the public is to make these submissions available for public viewing on the Internet at http://www...

  15. 78 FR 6078 - Privacy Act of 1974; System of Records

    2013-01-29

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0011] Privacy Act of 1974... record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed... public is to make these submissions available for public viewing on the Internet at http:// [[Page 6079...

  16. 77 FR 37885 - Privacy Act of 1974; System of Records

    2012-06-25

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2012-OS-0074] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  17. 78 FR 60265 - Privacy Act of 1974; System of Records

    2013-10-01

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0201] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  18. 76 FR 60008 - Privacy Act of 1974; System of Records

    2011-09-28

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0023] Privacy Act of 1974; System... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  19. 76 FR 82286 - Privacy Act of 1974; System of Records

    2011-12-30

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0028] Privacy Act of 1974; System... record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  20. 75 FR 16760 - Privacy Act of 1974; System of Records

    2010-04-02

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0037] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  1. 75 FR 17910 - Privacy Act of 1974; System of Records

    2010-04-08

    ... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID: USN-2010-0007] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... viewing on the Internet at http://www.regulations.gov as they are received without change, including any...

  2. 78 FR 5788 - Privacy Act of 1974; System of Records

    2013-01-28

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0005] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... of the public is to make these submissions available for public viewing on the Internet at http://www...

  3. 77 FR 60400 - Privacy Act of 1974; System of Records

    2012-10-03

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DOD-2012-OS-0119] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a(r)), as amended. DATES: This... public is to make these submissions available for public viewing on the Internet at http://www...

  4. 75 FR 33788 - Privacy Act of 1974; System of Records

    2010-06-15

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0077] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES... on the Internet at http:// [[Page 33789

  5. 75 FR 63824 - Privacy Act of 1974; System of Records

    2010-10-18

    ... DEPARTMENT OF DEFENSE Department of the Air Force [Docket ID: USAF-2010-0026] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... for public viewing on the Internet at http://www.regulations.gov as they are received without change...

  6. 75 FR 33794 - Privacy Act of 1974; System of Records

    2010-06-15

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2010-0013] Privacy Act of 1974... inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  7. 75 FR 15694 - Privacy Act of 1974; Systems of Records

    2010-03-30

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0035] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... on the Internet at http://www.regulations.gov as they are received without change, including any...

  8. 75 FR 65456 - Privacy Act of 1974; System of Records

    2010-10-25

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0147] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. [[Page... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  9. 77 FR 26260 - Privacy Act of 1974; System of Records

    2012-05-03

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2012-OS-0030] Privacy Act of 1974... inventory of records systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This... make these submissions available for public viewing on the Internet at http://www.regulations.gov as...

  10. 77 FR 66442 - Privacy Act of 1974; System of Records

    2012-11-05

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2012-OS-0133] Privacy Act of 1974... existing inventory of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES... Internet at http://www.regulations.gov as they are received without change, including any personal...

  11. 78 FR 14279 - Privacy Act of 1974; System of Records

    2013-03-05

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0040] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... of the public is to make these submissions available for public viewing on the Internet at http://www...

  12. 78 FR 14273 - Privacy Act of 1974; System of Records

    2013-03-05

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID DoD-2013-OS-0019] Privacy Act of 1974... record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed... public is to make these submissions available for public viewing on the Internet at http://www...

  13. 75 FR 3714 - Privacy Act of 1974; System of Records

    2010-01-22

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0004] Privacy Act of 1974... its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as... available for public viewing on the Internet at http://www.regulations.gov as they are received without...

  14. 76 FR 28002 - Privacy Act of 1974; Systems of Records

    2011-05-13

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2011-OS-0052] Privacy Act of 1974... existing inventory of records systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES... the public is to make these submissions available for public viewing on the Internet at http://www...

  15. 76 FR 39394 - Privacy Act of 1974; System of Records

    2011-07-06

    ... DEPARTMENT OF DEFENSE Department of the Navy [Docket ID USN-2011-0010] Privacy Act of 1974; System... systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  16. 77 FR 35945 - Privacy Act of 1974; System of Records

    2012-06-15

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2012-OS-0067] Privacy Act of 1974... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: The proposed action will be... Internet at http://www.regulations.gov as they are received without change, including any personal...

  17. 75 FR 69650 - Privacy Act of 1974; System of Records

    2010-11-15

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2010-0026] Privacy Act of 1974... record systems subject to the Privacy Act of 1974, (5 U.S.C. 552a), as amended. DATES: This proposed... from members of the public is to make these submissions available for public viewing on the Internet at...

  18. 78 FR 44102 - Privacy Act of 1974; System of Records

    2013-07-23

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2013-0027] Privacy Act of 1974... of record systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This... of the public is to make these submissions available for public viewing on the Internet at http://www...

  19. 75 FR 62111 - Privacy Act of 1974; System of Records

    2010-10-07

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0140] Privacy Act of 1974... records notices in its existing inventory of record systems subject to the Privacy Act of 1974, (5 U.S.C... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  20. 78 FR 22525 - Privacy Act of 1974; System of Records

    2013-04-16

    ... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-0057] Privacy Act of 1974... systems subject to the Privacy Act of 1974 (5 U.S.C. 552a), as amended. DATES: This proposed action will... submissions available for public viewing on the Internet at http://www.regulations.gov as they are received...

  1. 78 FR 69076 - Privacy Act of 1974; System of Records

    2013-11-18

    ... Medical Human Resources System internet (DMHRSi). DHA 12 EDHA 12 Third Party Collection System. DHA 16 DoD... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DoD-2013-OS-0216] Privacy Act of 1974... Defense Health Agency's compilation of Privacy Act SORNS. The realignment of the nineteen system...

  2. 78 FR 23810 - Privacy Act System of Records

    2013-04-22

    ... SMALL BUSINESS ADMINISTRATION Privacy Act System of Records AGENCY: Small Business Administration. ACTION: Notice of new Privacy Act system of records and request for comment. SUMMARY: The Small Business... the protected information collected from applicants and participants in the Small Business Innovation...

  3. 77 FR 60382 - Privacy Act of 1974, as Amended

    2012-10-03

    ... financial products or services, (b) consumer behavior with respect to consumer financial products and... BUREAU OF CONSUMER FINANCIAL PROTECTION Privacy Act of 1974, as Amended AGENCY: Bureau of Consumer... the Privacy Act of 1974, as amended, the Bureau of Consumer Financial Protection, hereinto referred to...

  4. 78 FR 15731 - Privacy Act of 1974; Computer Matching Program

    2013-03-12

    ... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2013-0011] Privacy Act of 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... amended by the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503) and the Computer...

  5. 78 FR 1275 - Privacy Act of 1974; Computer Matching Program

    2013-01-08

    ... Social Security Administration (Computer Matching Agreement 1071). SUMMARY: In accordance with the Privacy Act of 1974 (5 U.S.C. 552a), as amended by the Computer Matching and Privacy Protection Act of... of its new computer matching program with the Social Security Administration (SSA). DATES: OPM will...

  6. 76 FR 3098 - Privacy Act of 1974; Systems of Records

    2011-01-19

    ... requests and/or records have been referred to the National Security Agency/Central Security Service (NSA..., Department of Defense Privacy Program; NSA/CSS Policy 1-5; NSA/CSS Freedom of Information Act Program; NSA/CSS Policy 1-34; Implementation of the Privacy Act of 1974; NSA/CSS Policy 1-15, Mandatory...

  7. 77 FR 24242 - Privacy Act of 1974; System of Records

    2012-04-23

    ... under the Freedom of Information Act (FOIA) or the Privacy Act. Categories of records in the system: The... allegation or complaint of discrimination based on race, color, religion, sex, national origin, age, or...

  8. An overview of human genetic privacy

    Shi, Xinghua; Wu, Xintao

    2016-01-01

    The study of human genomics is becoming a Big Data science, owing to recent biotechnological advances leading to availability of millions of personal genome sequences, which can be combined with biometric measurements from mobile apps and fitness trackers, and of human behavior data monitored from mobile devices and social media. With increasing research opportunities for integrative genomic studies through data sharing, genetic privacy emerges as a legitimate yet challenging concern that nee...

  9. Electronic Mail, Privacy, and the Electronic Communications Privacy Act of 1986: Technology in Search of Law.

    Samoriski, Jan H.; And Others

    1996-01-01

    Attempts to clarify the status of e-mail privacy under the Electronic Communications Privacy Act of 1986 (ECPA). Examines current law and the paucity of definitive case law. A review of cases and literature suggests there is a gap in the existing ECPA that allows for potentially abusive electronic monitoring and interception of e-mail,…

  10. 75 FR 54662 - Privacy Act of 1974: Systems of Records

    2010-09-08

    ..., Chief Privacy Officer, Office of Information Technology, 202-551-7209. In the Federal Register of August... SECURITIES AND EXCHANGE COMMISSION [Release No. PA-44A; File No. S7-17-10] Privacy Act of 1974: Systems of Records AGENCY: Securities and Exchange Commission. ACTION: Notice to establish systems of...

  11. 77 FR 44207 - Privacy Act of 1974, System of Records

    2012-07-27

    ... 10, 2012. ADDRESSES: You may submit comments: Paper Comments Fax: (703) 666-5670. Mail: Chief Privacy... the Privacy Act. It is USAID's core financial management system and accounting system of record... Budget Execution, which are required to perform necessary accounting operations. Phoenix falls under...

  12. 78 FR 38724 - Privacy Act of 1974; Computer Matching Program

    2013-06-27

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... Agreement that establishes a computer matching program between the Department of Homeland Security/U.S... and Privacy Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection...

  13. Context trees for privacy-preserving modeling of genetic data

    Kusters, C.J.; Ignatenko, T.

    2016-01-01

    In this work, we use context trees for privacypreserving modeling of genetic sequences. The resulting estimated models are applied for functional comparison of genetic sequences in a privacy preserving way. Here we define privacy as uncertainty about the genetic source sequence given its model and

  14. Disclosing genetic information to at-risk relatives: new Australian privacy principles, but uniformity still elusive.

    Otlowski, Margaret F A

    2015-04-06

    There is growing understanding of the need for genetic information to be shared with genetic relatives in some circumstances. Since 2006, s 95AA of the Privacy Act 1988 (Cwlth) has permitted the disclosure of genetic information to genetic relatives without the patient's consent, provided that the health practitioner reasonably believes that disclosure is necessary to lessen or prevent a serious threat to the life, health or safety of the genetic relatives. Enabling guidelines were introduced in 2009. These were limited to the private sector, and excluded doctors working in the public sector at both Commonwealth and state and territory levels. Privacy legislation was amended in March 2014, and new Australian Privacy Principles, which replace the National Privacy Principles and Information Privacy Principles, now cover the collection and use of personal information. The Privacy Act and the Australian Privacy Principles now extend to practitioners employed by the Commonwealth but not to health practitioners working in state and territory public hospitals. In this article, I review these legislative developments and highlight the implications of the lack of uniformity and the consequent need for a collaborative, uniform approach by states and territories.

  15. 77 FR 38363 - Office of Privacy, Records, and Disclosure; Privacy Act of 1974, as Amended

    2012-06-27

    ... delinquencies; final determinations of appeals; name/ title of officials responsible for denial of records; and... FOIA and the Privacy Act. Also used to produce statistical reports; and as a data source for management...

  16. 75 FR 65007 - Privacy Act of 1974; System of Records

    2010-10-21

    ... Officer, P.O. Box 2218, Waldorf, MD 20604-2218. Individuals should complete AFOSI's Certification of... of Information/Privacy Act Officer, P.O. Box 2218, Waldorf, MD 20604-2218. Individuals should...

  17. 75 FR 19377 - Privacy Act of 1974; Systems of Records

    2010-04-14

    .... 552a(r), of the Privacy Act of 1974, as amended, were submitted on March 31, 2010, to the House..., forced password-change protocols or also equipped with ``Smart Card'' technology that requires the...

  18. 78 FR 22854 - Privacy Act of 1974; System of Records

    2013-04-17

    ... U.S.C. 552a(r) of the Privacy Act of 1974, as amended, was submitted on April 1, 2013, to the House... administrative procedures. Computers are equipped with ``Smart Card'' technology that requires the insertion of...

  19. 78 FR 34354 - Privacy Act of 1974; System of Records

    2013-06-07

    ...(r) of the Privacy Act of 1974, as amended, was submitted on May 14, 2013, to the House Committee on... replace with ``System contains personnel data to support enlisted assignment, planning, programming...

  20. 78 FR 65620 - Privacy Act of 1974; System of Records

    2013-11-01

    ..., as required by 5 U.S.C. 552a(r) of the Privacy Act of 1974, as amended, was submitted on March 18... support officer assignment, planning, programming, accounting, promotions, career development, and...

  1. 76 FR 53421 - Privacy Act of 1974; System of Records

    2011-08-26

    ..., Air Force Privacy Act Office, Office of Warfighting Integration and Chief Information Officer, ATTN...: Name, signatures, personal contact information, individual's employer and institutional, organizational..., Historical Products, Services, and Requirements; Air Force Instruction 84-105, Organizational Lineage, Honors...

  2. 32 CFR 806b.30 - Evaluating information systems for Privacy Act compliance.

    2010-07-01

    ... privacy issues are unchanged. (d) The depth and content of the Privacy Impact Assessment should be... 32 National Defense 6 2010-07-01 2010-07-01 false Evaluating information systems for Privacy Act... FORCE ADMINISTRATION PRIVACY ACT PROGRAM Privacy Impact Assessments § 806b.30 Evaluating information...

  3. 77 FR 70796 - Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security...

    2012-11-27

    ... privacy issues, please contact: Jonathan Cantor, (202-343-1717), Acting Chief Privacy Officer, Privacy... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security Administration System of Records AGENCY: Privacy...

  4. The social life of genes: privacy, property and the new genetics.

    Everett, Margaret

    2003-01-01

    With the advent of the Human Genome Project and widespread fears over human cloning and medical privacy, a number of states have moved to protect genetic privacy. Oregon's unique Genetic Privacy Act of 1995, which declared that an individual had property rights to their DNA, has provoked national and international interest and controversy. This paper critically reviews the literature on genetic privacy and gene patenting from law, philosophy, science and anthropology. The debate in Oregon, from 1995 to 2001, illustrates many of the key issues in this emerging area. Both sides of the debate invoke the property metaphor, reinforcing deterministic assumptions and avoiding more fundamental questions about the integrity of the body and self-identity. The anthropological critique of the commodification of the body, and the concept of 'embodiment' are useful in analyzing the debate over DNA as property.

  5. 77 FR 56628 - Privacy Act of 1974; System of Records

    2012-09-13

    .../Central Security Service (NSA/CSS), Freedom of Information Act and Privacy Act Office, 9800 Savage Road... Agencies of Government who wrote to NSA on behalf of the constituent and who use it to respond to the.... The DoD Blanket Routine Uses published at the beginning of the NSA/ CSS's compilation of record...

  6. 75 FR 20298 - Privacy Act Regulations

    2010-04-19

    ... prevent and detect fraud, waste, and abuse and perform its other authorized duties and activities relating...--RATB Investigative Files'' and ``RATB--12--RATB Fraud Hotline Program Files,'' pursuant to the Privacy... 5 U.S.C. 552a: (1) From subsection (c)(3) because the release of accounting of disclosure would...

  7. 77 FR 43100 - Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency-009...

    2012-07-23

    ... Homeland Security, Washington, DC 20478. For privacy issues, please contact: Mary Ellen Callahan (703) 235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0097] Privacy Act of... Assistance Grant Programs System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system...

  8. Regulating genetic privacy in the online health information era.

    Magnusson, Roger S

    As the clinical implications of the genetic components of disease come to be better understood, there is likely to be a significant increase in the volume of genetic information held within clinical records. As patient health care records, in turn, come on-line as part of broader health information networks, there is likely to be considerable pressure in favour of special laws protecting genetic privacy. This paper reviews some of the privacy challenges posed by electronic health records, some government initiatives in this area, and notes the impact that developments in genetic testing will have upon the 'genetic content' of e-health records. Despite the sensitivity of genetic information, the paper argues against a policy of 'genetic exceptionalism', and its implications for genetic privacy laws.

  9. Disentangling privacy from property: toward a deeper understanding of genetic privacy.

    Suter, Sonia M

    2004-04-01

    With the mapping of the human genome, genetic privacy has become a concern to many. People care about genetic privacy because genes play an important role in shaping us--our genetic information is about us, and it is deeply connected to our sense of ourselves. In addition, unwanted disclosure of our genetic information, like a great deal of other personal information, makes us vulnerable to unwanted exposure, stigmatization, and discrimination. One recent approach to protecting genetic privacy is to create property rights in genetic information. This Article argues against that approach. Privacy and property are fundamentally different concepts. At heart, the term "property" connotes control within the marketplace and over something that is disaggregated or alienable from the self. "Privacy," in contrast, connotes control over access to the self as well as things close to, intimately connected to, and about the self. Given these different meanings, a regime of property rights in genetic information would impoverish our understanding of that information, ourselves, and the relationships we hope will be built around and through its disclosure. This Article explores our interests in genetic information in order to deepen our understanding of the ongoing discourse about the distinction between property and privacy. It develops a conception of genetic privacy with a strong relational component. We ordinarily share genetic information in the context of relationships in which disclosure is important to the relationship--family, intimate, doctor-patient, researcher-participant, employer-employee, and insurer-insured relationships. Such disclosure makes us vulnerable to and dependent on the person to whom we disclose it. As a result, trust is essential to the integrity of these relationships and our sharing of genetic information. Genetic privacy can protect our vulnerability in these relationships and enhance the trust we hope to have in them. Property, in contrast, by

  10. 32 CFR 635.12 - Release of information under the Privacy Act of 1974.

    2010-07-01

    ... § 635.12 Release of information under the Privacy Act of 1974. (a) Military police records may be...) The release and denial authorities for all Privacy Act cases concerning military police records are...

  11. 75 FR 35028 - Privacy Act of 1974; System of Records

    2010-06-21

    ... FEDERAL HOUSING FINANCE AGENCY [No. 2010-N-07] Privacy Act of 1974; System of Records AGENCY: Federal Housing Finance Agency. ACTION: Notice of the establishment of a new system of records. SUMMARY: The Federal Housing Finance Agency (FHFA) is revising the proposed system of records notice that was...

  12. 78 FR 16837 - Privacy Act of 1974; System of Records

    2013-03-19

    ... uses this information to obtain customer feedback concerning their service experience and the level of... listed under ``COMMERCE/ PAT-TM-20 Customer Call Center, Assistance and Satisfaction Survey Records... through the agency's telephone support system or customer service centers. The Privacy Act notice is being...

  13. 77 FR 24925 - Privacy Act of 1974; System of Records

    2012-04-26

    ... given that the United States Department of Agriculture (USDA) is revising two Privacy Act (PA) systems... Agriculture (NIFA), formerly the Cooperative State Research, Education, and Extension Service (CSREES). DATES... INFORMATION: I. Background 1. Two systems of records are being revised. A. State Cooperative Extension Service...

  14. 75 FR 67700 - Privacy Act of 1974; System of Records

    2010-11-03

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2010-0023] Privacy Act of 1974; System... Medical Examination with supporting documentation, the Report of Medical History, and any other reporting... Report of Medical Examination with supporting documentation, the Report of Medical History, and any other...

  15. 76 FR 26714 - Privacy Act of 1974; System of Records

    2011-05-09

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0010] Privacy Act of 1974; System... specialty, credit hours accumulated, examination and lesson course completion status, assignment history... history, student academic status, curricula, course description, scheduling, testing, academic, graduation...

  16. 75 FR 36644 - Privacy Act of 1974; System of Records

    2010-06-28

    ... DEPARTMENT OF DEFENSE Department of the Army [Docket ID: USA-2010-0014] Privacy Act of 1974... prisoner, mail records; personal history records; individual prisoner utilization records; requests for... recommendations; request to transfer prisoner; social history; clemency and parole actions; psychologist's report...

  17. 77 FR 75499 - Privacy Act of 1974: Computer Matching Program

    2012-12-20

    ... DEPARTMENT OF VETERANS AFFAIRS Privacy Act of 1974: Computer Matching Program AGENCY: Department...: This match will commence on or about January 22, 2013 or 40 days after the Office of Management and... of 18 months after the commencing date, the Departments may renew the agreement for another 12 months...

  18. 77 FR 41774 - Privacy Act of 1974; System of Records

    2012-07-16

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Office of Management...-19176 (April 12, 2004). Electronic Access to This Document: The official version of this document is the... Assistant Secretary of the Office of Management deletes the following system of records: System No. System...

  19. 76 FR 43278 - Privacy Act; System of Records

    2011-07-20

    ... the Privacy Act of 1974, 5 U.S.C. 552a, to publish a description of the systems of records containing... locked file cabinets, and electronic records are maintained on a password-protected desktop personal...'' published by the National Archives and Records Administration, Washington, DC. Paper records are shredded...

  20. 76 FR 44888 - Privacy Act of 1974, System of Records

    2011-07-27

    ... Privacy Act of 1974 (5 U.S.C. 552a), as amended, entitled ``USAID-30, Google Apps Business Edition''. This... . SUPPLEMENTARY INFORMATION: The Google Apps Business Edition is being established as an Agency-wide system of...'') cloud computing model. The suite is composed of Gmail for e-mail, Google Docs for office productivity...

  1. 76 FR 46767 - Privacy Act of 1974; System of Records

    2011-08-03

    ...: The Department of the Army proposes to add a system of records to its inventory of record systems... provides a student management system that integrates Web-enabled courseware to support online certification... DEPARTMENT OF DEFENSE Department of the Army [Docket ID USA-2011-0019] Privacy Act of 1974; System...

  2. 76 FR 114 - Privacy Act of 1974; System of Records

    2011-01-03

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a system of records. SUMMARY: The Defense Contract Audit Agency is proposing to amend a system of records notice in its... INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy Act of 1974...

  3. 76 FR 115 - Privacy Act of 1974; System of Records

    2011-01-03

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a system of records. SUMMARY: The Defense Contract Audit Agency is proposing to amend a system of records notice in its... INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy Act of 1974...

  4. 78 FR 5784 - Privacy Act of 1974; System of Records

    2013-01-28

    ... records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records in its.... FOR FURTHER INFORMATION CONTACT: Mr. Gregory Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  5. 78 FR 41916 - Privacy Act of 1974; System of Records

    2013-07-12

    ... Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to alter a System of Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records...

  6. 78 FR 37799 - Privacy Act of 1974; System of Records

    2013-06-24

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Finance and Accounting Service is amending a system of records...

  7. 78 FR 14280 - Privacy Act of 1974; System of Records

    2013-03-05

    ... Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records notice... information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  8. 78 FR 41919 - Privacy Act of 1974; System of Records

    2013-07-12

    .... SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records, T7340c... identifiers or contact information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications...

  9. 77 FR 58106 - Privacy Act of 1974; System of Records

    2012-09-19

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend two Systems of Records. SUMMARY: The Defense Finance and Accounting Service is amending two systems of records...

  10. 78 FR 14281 - Privacy Act of 1974; System of Records

    2013-03-05

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate... Records. SUMMARY: The Defense Finance and Accounting Service proposes to amend a system of records in its.... FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service...

  11. 78 FR 14286 - Privacy Act of 1974; System of Records

    2013-03-05

    ... Records. SUMMARY: The Defense Finance and Accounting Service proposes to amend a system of records in its... information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  12. 78 FR 52518 - Privacy Act of 1974; System of Records

    2013-08-23

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Finance and Accounting Service is amending a system of records...

  13. 78 FR 14285 - Privacy Act of 1974; System of Records

    2013-03-05

    ... Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records in its.... FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate Communications, DFAS-HKC/IN, 8899 E. 56th...

  14. 77 FR 69444 - Privacy Act of 1974; System of Records

    2012-11-19

    ..., Defense Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a system of records. SUMMARY: The Defense Finance and Accounting Service is amending a system of records...

  15. 78 FR 14283 - Privacy Act of 1974; System of Records

    2013-03-05

    ... Finance and Accounting Service, Freedom of Information/Privacy Act Program Manager, Corporate... a system of records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system... identifiers or contact information. FOR FURTHER INFORMATION CONTACT: Mr. Gregory L. Outlaw, Defense Finance...

  16. 77 FR 65939 - Privacy Act of 1974; System of Records

    2012-10-31

    ...) is amending the system of records currently entitled ``Veterans Health Information Systems and... Health Information Systems and Technology Architecture (VistA) Records-VA ROUTINE USES OF RECORDS... DEPARTMENT OF VETERANS AFFAIRS Privacy Act of 1974; System of Records AGENCY: Department of...

  17. 76 FR 67599 - Privacy Act of 1974: Implementation

    2011-11-02

    ...: Background On July 19, 2011, the Office of the Director of National Intelligence (ODNI) published notice of... OFFICE OF THE DIRECTOR OF NATIONAL INTELLIGENCE 32 CFR Part 1701 Privacy Act of 1974: Implementation AGENCY: Office of the Director of National Intelligence. ACTION: Final rule. SUMMARY: The Office...

  18. 78 FR 14669 - Privacy Act of 1974; Implementation

    2013-03-07

    ... law enforcement and intelligence matters, and for the reasons set forth in the rule these exemptions... general editorial revisions to the reasons for the existing IRFS exemptions. The public was provided with...) The proposed exemptions contravene the intent of the Privacy Act; (2) the DEA does not clearly...

  19. 75 FR 77849 - Privacy Act of 1974; System of Records

    2010-12-14

    ... Agency, Defense Threat Reduction Agency, Missile Defense Organization, Pentagon Force Protection Agency... DEPARTMENT OF DEFENSE Office of the Secretary [Docket ID: DOD-2010-OS-0160] Privacy Act of 1974; System of Records AGENCY: Office of the Secretary of Defense, DoD. ACTION: Notice to add a system of...

  20. 78 FR 64196 - Privacy Act Altered System of Records

    2013-10-28

    ... records to COMMERCE/DEPARTMENT-20, Biographical Files and Social Networks. The amendment serves to modify... DEPARTMENT OF COMMERCE [Docket No. 130730666-3877-02] Privacy Act Altered System of Records AGENCY: Department of Commerce. ACTION: Notice; Commerce/Department-20, Biographical Files. SUMMARY: The Department...

  1. 75 FR 39500 - Privacy Act of 1974; System of Records

    2010-07-09

    ... from the address above. The proposed system report, as required by 5 U.S.C. 552a(r) of the Privacy Act... location: Add to entry as last paragraph ``Defense Information Systems Agency (DISA) Mega Center, Building... plate number, drivers license number, vehicle make, model, year, color, drivers identification...

  2. 77 FR 73973 - Privacy Act of 1974, System of Records

    2012-12-12

    ... will become effective on January 25, 2013. ADDRESSES: You may submit comments: Paper Comments Fax: (703... requiring protection under the Privacy Act. It is USAID's core financial management system and accounting..., Accounts Receivables, and Budget Execution, which are required to perform necessary accounting operations...

  3. 78 FR 27195 - Privacy Act of 1974; System of Records

    2013-05-09

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to delete two Systems of Records. SUMMARY: The Defense Finance and Accounting Service is deleting two systems of records...: The Defense Finance and Accounting Service systems of records notices subject to the Privacy Act of...

  4. 78 FR 27194 - Privacy Act of 1974; System of Records

    2013-05-09

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to delete two Systems of Records. SUMMARY: The Defense Finance and Accounting Service is deleting two systems of records...: The Defense Finance and Accounting Service systems of records notices subject to the Privacy Act of...

  5. 78 FR 69392 - Privacy Act of 1974; System of Records

    2013-11-19

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to delete a system of records. SUMMARY: The Defense Finance and Accounting Service is deleting a system of records... INFORMATION: The Defense Finance and Accounting Service systems of records notices subject to the Privacy Act...

  6. 78 FR 47309 - Privacy Act of 1974; System of Records

    2013-08-05

    ...; System of Records AGENCY: Defense Finance and Accounting Service, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Finance and Accounting Service proposes to alter a system of records... Defense Finance and Accounting Service systems of records notices subject to the Privacy Act of 1974 (5 U...

  7. 77 FR 31606 - Privacy Act of 1974; System of Records

    2012-05-29

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Office of English Language Acquisition, Language Enhancement and Academic Achievement for Limited English Proficient Students, Department... Secretary of the Office of English Language Acquisition deletes the following system of records: System...

  8. 13 CFR 102.36 - Privacy Act standards of conduct.

    2010-01-01

    ... 13 Business Credit and Assistance 1 2010-01-01 2010-01-01 false Privacy Act standards of conduct. 102.36 Section 102.36 Business Credit and Assistance SMALL BUSINESS ADMINISTRATION RECORD DISCLOSURE... existence or development of any system of records that is not the subject of a current or planned public...

  9. 77 FR 77049 - Privacy Act of 1974; System of Records

    2012-12-31

    ..., Air Force Privacy Act Office, Office of Warfighting Integration and Chief Information officer, ATTN... of 1974 (5 U.S.C. 552a), as amended, which requires the submission of a new or altered system report...). Reason The Innovative Development through Employee Awareness (IDEA) Program Data System (IPDS) has been...

  10. 77 FR 67802 - Privacy Act of 1974, as Amended

    2012-11-14

    ... services, and consumer behavior with respect to such products or services. The CFPB will maintain control..., risks, and benefits of such products or services, and consumer behavior with respect to such products or... BUREAU OF CONSUMER FINANCIAL PROTECTION Privacy Act of 1974, as Amended AGENCY: Bureau of Consumer...

  11. 77 FR 34943 - Privacy Act of 1974; System of Records

    2012-06-12

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records AGENCY: Office of Planning..., 2012. FOR FURTHER INFORMATION CONTACT: Carmel Martin, Assistant Secretary for Planning, Evaluation and... 20202- 4500. Telephone: (202) 401-3676. If you use a telecommunications device for the deaf (TDD) or a...

  12. 76 FR 81910 - Abolishment of Privacy Act System of Records

    2011-12-29

    ... Program Manager, USDA, Forest Service, Office of Safety and Occupational and Health, 1400 Independence... Management Handbook (FSH) 6209.11. This system is abolished and removed from the inventory of the USDA System... DEPARTMENT OF AGRICULTURE Office of the Secretary Abolishment of Privacy Act System of Records...

  13. 76 FR 77846 - Privacy Act of 1974; System of Records

    2011-12-14

    ... terrorism and national security threat screening, system back-up, and continuity of operations purposes... DEPARTMENT OF JUSTICE [CPCLO Order No. 004-2011] Privacy Act of 1974; System of Records AGENCY: Federal Bureau of Investigation, Department of Justice. ACTION: Notice to amend system of records. SUMMARY...

  14. 78 FR 15734 - Privacy Act of 1974; Computer Matching Program

    2013-03-12

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... computer matching program between the Department of Homeland Security/U.S. Citizenship and Immigration... Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection Amendments of 1990...

  15. 78 FR 15733 - Privacy Act of 1974; Computer Matching Program

    2013-03-12

    ... 1974; Computer Matching Program AGENCY: Department of Homeland Security/U.S. Citizenship and... computer matching program between the Department of Homeland Security/U.S. Citizenship and Immigration... Protection Act of 1988 (Pub. L. 100-503) and the Computer Matching and Privacy Protection Amendments of 1990...

  16. 75 FR 54331 - Privacy Act of 1974; System of Records

    2010-09-07

    ... Administrator of the Office of Information and Regulatory Affairs, Office of Management and Budget (OMB), on..., Academic Competitiveness Grants (ACG), National Science and Mathematics Access to Retain Talent (National... Privacy Act Advice Disclosure. The Department may disclose records to the DOJ or the Office of Management...

  17. Genetic information, non-discrimination, and privacy protections in genetic counseling practice.

    Prince, Anya E R; Roche, Myra I

    2014-12-01

    The passage of the Genetic Information Non Discrimination Act (GINA) was hailed as a pivotal achievement that was expected to calm the fears of both patients and research participants about the potential misuse of genetic information. However, 6 years later, patient and provider awareness of legal protections at both the federal and state level remains discouragingly low, thereby, limiting their potential effectiveness. The increasing demand for genetic testing will expand the number of individuals and families who could benefit from obtaining accurate information about the privacy and anti-discriminatory protections that GINA and other laws extend. In this paper we describe legal protections that are applicable to individuals seeking genetic counseling, review the literature on patient and provider fears of genetic discrimination and examine their awareness and understandings of existing laws, and summarize how genetic counselors currently discuss genetic discrimination. We then present three genetic counseling cases to illustrate issues of genetic discrimination and provide relevant information on applicable legal protections. Genetic counselors have an unprecedented opportunity, as well as the professional responsibility, to disseminate accurate knowledge about existing legal protections to their patients. They can strengthen their effectiveness in this role by achieving a greater knowledge of current protections including being able to identify specific steps that can help protect genetic information.

  18. 77 FR 48984 - Privacy Act of 1974; System of Records Notice

    2012-08-15

    ... Privacy Act systems, to facilitate their ability to respond to data security breach incidents (see OMB... DEPARTMENT OF HEALTH AND HUMAN SERVICES Privacy Act of 1974; System of Records Notice AGENCY...: In accordance with the requirements of the Privacy Act of 1974, HHS gives notice of a proposed...

  19. 29 CFR 71.52 - Specific exemptions pursuant to subsection (k)(5) of the Privacy Act.

    2010-07-01

    ... (Investigative Case Tracking Systems/Audit Information Reporting Systems, USDOL/OIG), a system of records... AND ACCESS TO RECORDS UNDER THE PRIVACY ACT OF 1974 Exemption of Records Systems Under the Privacy Act § 71.52 Specific exemptions pursuant to subsection (k)(5) of the Privacy Act. (a) The following systems...

  20. 29 CFR 71.51 - Specific exemptions pursuant to subsection (k)(2) of the Privacy Act.

    2010-07-01

    ... (Investigative Case Tracking Systems/Audit Information Reporting Systems, USDOL/OIG), a system of records... AND ACCESS TO RECORDS UNDER THE PRIVACY ACT OF 1974 Exemption of Records Systems Under the Privacy Act § 71.51 Specific exemptions pursuant to subsection (k)(2) of the Privacy Act. (a) The following systems...

  1. 29 CFR 71.50 - General exemptions pursuant to subsection (j) of the Privacy Act.

    2010-07-01

    ... (Investigative Case Tracking Systems/Audit Information Reporting Systems, USDOL/OIG), a system of records... ACCESS TO RECORDS UNDER THE PRIVACY ACT OF 1974 Exemption of Records Systems Under the Privacy Act § 71.50 General exemptions pursuant to subsection (j) of the Privacy Act. (a) The following systems of...

  2. 76 FR 35050 - Privacy Act of 1974: New System of Records

    2011-06-15

    .../Central-15, Health Claims Data Warehouse, to its inventory of records systems subject to the Privacy Act.... The data warehouse will be fully compliant with all applicable provisions of the Privacy Act, Health... fully compliant with all applicable provisions of the Privacy Act, Federal Information Security...

  3. 45 CFR 2508.3 - What is the Corporation's Privacy Act policy?

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false What is the Corporation's Privacy Act policy? 2508... NATIONAL AND COMMUNITY SERVICE IMPLEMENTATION OF THE PRIVACY ACT OF 1974 § 2508.3 What is the Corporation's Privacy Act policy? It is the policy of the Corporation to protect, preserve, and defend the right of...

  4. 38 CFR 20.1200 - Rule 1200. Privacy Act request-appeal pending.

    2010-07-01

    ... 38 Pensions, Bonuses, and Veterans' Relief 2 2010-07-01 2010-07-01 false Rule 1200. Privacy Act request-appeal pending. 20.1200 Section 20.1200 Pensions, Bonuses, and Veterans' Relief DEPARTMENT OF.... Privacy Act request—appeal pending. When a Privacy Act request is filed under § 1.577 of this chapter by...

  5. 78 FR 2418 - Privacy Act; Notification of New Privacy Act System of Records, Pre-Purchase Homeownership...

    2013-01-11

    ...); prior experience completing pre-purchase counseling or education; regular access to a computer and... New Privacy Act System of Records, Pre-Purchase Homeownership Counseling Demonstration and Impact... of record is the Pre-Purchase Homeownership Counseling Demonstration and Impact Evaluation Random...

  6. 76 FR 24557 - Privacy Act of 1974; as Amended; Proposed Alteration to an Existing Privacy Act System of Records...

    2011-05-02

    ... computer system that will house the data. We annually provide all our employees and contractors with... by the system: This system covers vocational experts, medical experts, other health care professional... Privacy Act System of Records, Housekeeping Changes, and New Routine Use AGENCY: Social Security...

  7. 75 FR 64147 - Privacy Act; Implementation

    2010-10-19

    .... (relating to alcohol). After the organizational change, TTB conducted a review of its records to determine... notice of proposed rulemaking is required, the provisions of the Regulatory Flexibility Act (5 U.S.C. 601...

  8. 76 FR 12745 - Privacy Act of 1974; Department of Homeland Security Office of Operations Coordination and...

    2011-03-08

    ... 20528. For privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2010-0055] Privacy Act of... Operations Center Tracker and Senior Watch Officer Logs System of Records AGENCY: Privacy Office, DHS. ACTION...

  9. 76 FR 12609 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Office of...

    2011-03-08

    ... 20528. For privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer... Secretary 6 CFR Part 5 [Docket No. DHS-2010-0051] Privacy Act of 1974: Implementation of Exemptions... Center Tracker and Senior Watch Officer Logs System of Records AGENCY: Privacy Office, DHS. ACTION...

  10. 75 FR 69603 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security National...

    2010-11-15

    ... 20528. For privacy issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer... Secretary 6 CFR Part 5 [Docket No. DHS-2010-0085] Privacy Act of 1974: Implementation of Exemptions... Coordinating Center Records System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed...

  11. 76 FR 18954 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Federal...

    2011-04-06

    ... issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer, Privacy Office...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Federal Emergency Management Agency DHS/FEMA-011 Training and Exercise Program Records System of Records AGENCY: Privacy Office...

  12. 75 FR 11191 - Privacy Act of 1974; Retirement of Department of Homeland Security Federal Emergency Management...

    2010-03-10

    ... 20472. For privacy issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Federal Emergency Management Agency System of Records AGENCY: Privacy Office...

  13. Ensuring privacy in the study of pathogen genetics.

    Mehta, Sanjay R; Vinterbo, Staal A; Little, Susan J

    2014-08-01

    Rapid growth in the genetic sequencing of pathogens in recent years has led to the creation of large sequence databases. This aggregated sequence data can be very useful for tracking and predicting epidemics of infectious diseases. However, the balance between the potential public health benefit and the risk to personal privacy for individuals whose genetic data (personal or pathogen) are included in such work has been difficult to delineate, because neither the true benefit nor the actual risk to participants has been adequately defined. Existing approaches to minimise the risk of privacy loss to participants are based on de-identification of data by removal of a predefined set of identifiers. These approaches neither guarantee privacy nor protect the usefulness of the data. We propose a new approach to privacy protection that will quantify the risk to participants, while still maximising the usefulness of the data to researchers. This emerging standard in privacy protection and disclosure control, which is known as differential privacy, uses a process-driven rather than data-centred approach to protecting privacy. Copyright © 2014 Elsevier Ltd. All rights reserved.

  14. Democracy and genetic privacy: the value of bodily integrity.

    Beckman, Ludvig

    2005-01-01

    The right to genetic privacy is presently being incorporated in legal systems all over the world. It remains largely unclear however what interests and values this right serves to protect. There are many different arguments made in the literature, yet none takes into account the problem of how particular values can be justified given the plurality of moral and religious doctrines in our societies. In this article theories of public reason are used in order to explore how genetic privacy could be justified in a way that is sensitive to the "fact of pluralism". The idea of public reason is specified as the idea that governments should appeal only to values and beliefs that are acceptable to all reasonable citizens in the justification of rights. In examining prevalent arguments for genetic privacy--based on the value of autonomy or on the value of intimacy--it is concluded that they do not meet this requirement. In dealing with this deficiency in the literature, an argument is developed that genetic privacy is fundamental to the democratic participation of all citizens. By referring to the preconditions of democratic citizenship, genetic privacy can be justified in a way that respects the plurality of comprehensive doctrines of morality and religion in contemporary societies.

  15. Using genetic information while protecting the privacy of the soul.

    Moor, J H

    1999-01-01

    Computing plays an important role in genetics (and vice versa). Theoretically, computing provides a conceptual model for the function and malfunction of our genetic machinery. Practically, contemporary computers and robots equipped with advanced algorithms make the revelation of the complete human genome imminent--computers are about to reveal our genetic souls for the first time. Ethically, computers help protect privacy by restricting access in sophisticated ways to genetic information. But the inexorable fact that computers will increasingly collect, analyze, and disseminate abundant amounts of genetic information made available through the genetic revolution, not to mention that inexpensive computing devices will make genetic information gathering easier, underscores the need for strong and immediate privacy legislation.

  16. 75 FR 10554 - Privacy Act of 1974; System of Records Notice

    2010-03-08

    ..., privacy and security objectives: Provide driver-related MCMIS crash and inspection data electronically... to submit a Freedom of Information Act (FOIA) request or Privacy Act request to FMCSA for the data..., privacy and security objectives are being met. The PSP system will only allow operator-applicants to...

  17. 77 FR 12641 - Privacy Act of 1974; System of Records Notice

    2012-03-01

    ..., DC 20590. For privacy issues, please contact: Claire W. Barrett (202-366-8135), Departmental Chief... DEPARTMENT OF TRANSPORTATION Office of the Secretary [Docket No. DOT-RITA-2012-0001] Privacy Act... the Privacy Act of 1974, the Department of Transportation proposes to add a new system of records...

  18. Genetic secrets: Protecting privacy and confidentiality in the genetic era. Final report

    Rothstein, M.A. [ed.

    1998-09-01

    Few developments are likely to affect human beings more profoundly in the long run than the discoveries resulting from advances in modern genetics. Although the developments in genetic technology promise to provide many additional benefits, their application to genetic screening poses ethical, social, and legal questions, many of which are rooted in issues of privacy and confidentiality. The ethical, practical, and legal ramifications of these and related questions are explored in depth. The broad range of topics includes: the privacy and confidentiality of genetic information; the challenges to privacy and confidentiality that may be projected to result from the emerging genetic technologies; the role of informed consent in protecting the confidentiality of genetic information in the clinical setting; the potential uses of genetic information by third parties; the implications of changes in the health care delivery system for privacy and confidentiality; relevant national and international developments in public policies, professional standards, and laws; recommendations; and the identification of research needs.

  19. 78 FR 69858 - Privacy Act of 1974; Department of Homeland Security/Federal Emergency Management Agency-001...

    2013-11-21

    ... Emergency Management Agency, 500 C Street SW., Washington, DC 20475. For privacy issues please contact... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2013-0077] Privacy Act of..., Privacy Office. ACTION: Notice of Privacy Act System of Records. SUMMARY: In accordance with the Privacy...

  20. 75 FR 39669 - Privacy Act of 1974; System of Records

    2010-07-12

    ...In accordance with the Privacy Act of 1974, as amended (Privacy Act), the Department of Education (Department) publishes this notice proposing to revise the system of records notice for the Hotline Complaint Files of the Inspector General (18-10-04), 64 FR 30157-59 (June 4, 1999). The Department proposes to amend this system of records notice by: (1) Adding that a purpose of the system is to report on complaints and allegations related to American Recovery and Reinvestment Act of 2009 (ARRA) funds to the Recovery Accountability and Transparency Board (RATB) as established by the ARRA (Pub. L. 111- 5); (2) adding a new routine use to allow the disclosure of ARRA- related complaints and allegations to the RATB; (3) adding a new routine use to allow for disclosure of information in connection with response and remedial efforts in the event of a data breach in accordance with Office of Management and Budget (OMB) requirements in M-07-16 (May 22, 2007); (4) revising the routine use ``Disclosure to Public and Private Sources in Connection with the Higher Education Act of 1965, as amended (HEA)'' to allow the disclosure of information to an educational institution or a school that is or was a party to an agreement with the Secretary of Education pursuant to the HEA; and (5) updating the address of the System Manager.

  1. 75 FR 50846 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-001...

    2010-08-18

    ... INFORMATION CONTACT: For general questions and privacy issues please contact: Mary Ellen Callahan (703-235...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL--001 Freedom of Information Act and Privacy Act Records System of Records AGENCY: Privacy Office, DHS. ACTION: Final rule...

  2. 75 FR 33608 - Privacy Act of 1974; System of Records

    2010-06-14

    ...In accordance with the Privacy Act of 1974, as amended (Privacy Act), the Department of Education (Department) publishes this notice proposing to revise the system of records notice for the Investigative Files of the Inspector General (18-10-01), 68 FR 38154 (June 26, 2003). The Department proposes to amend this system of records notice by: (1) Adding a new routine use to allow reporting on the activities of the Inspector General regarding American Recovery and Reinvestment Act funds to the Recovery Accountability and Transparency Board (RATB) as established by the American Recovery and Reinvestment Act of 2009 (Pub. L. 111-5); (2) adding a new routine use to allow for disclosure of information in connection with response and remedial efforts in the event of a data breach in accordance with Office of Management and Budget (OMB) requirements in M-07-16 (May 22, 2007); (3) revising routine uses ``(12) Disclosure to the President's Council on Integrity and Efficiency'' and ``(13) Disclosure for Qualitative Assessment Reviews'' to allow reporting on the activities of the Inspector General to the Council of Inspectors General on Integrity and Efficiency (formerly the President's Council on Integrity and Efficiency) as established by the Inspector General Reform Act of 2008 (Pub. L. 110-409); (4) revising the routine use ``(4) Disclosure to Public and Private Sources in Connection with the Higher Education Act of 1965, as Amended (HEA)'' to allow the disclosure of information to an educational institution or a school that is or was a party to an agreement with the Secretary of Education pursuant to the HEA; and (5) updating the system location addresses. This system of records provides essential support for investigative activities of the Office of Inspector General (OIG) relating to the Department's programs and operations, enabling the OIG to secure and maintain the necessary information and to coordinate with other law enforcement agencies as appropriate.

  3. Privacy Threats and Practical Solutions for Genetic Risk Tests

    Barman, Ludovic; El Graini, Mohammed-Taha; Raisaro, Jean Louis; Ayday, Erman; Hubaux, Jean-Pierre

    2015-01-01

    Recently, several solutions have been proposed to address the complex challenge of protecting individuals’ genetic data during personalized medicine tests. In this short paper, we analyze different privacy threats and propose simple countermeasures for the generic architecture mainly used in the literature. In particular, we present and evaluate a new practical solution against a critical attack of a malicious medical center trying to actively infer raw genetic information of patients.

  4. Ensuring privacy in the study of pathogen genetics

    Mehta, Sanjay R.; Vinterbo, Staal A.; Little, Susan J.

    2014-01-01

    Rapid growth in the genetic sequencing of pathogens in recent years has led to the creation of large sequence databases. This aggregated sequence data can be very useful for tracking and predicting epidemics of infectious diseases. However, the balance between the potential public health benefit and the risk to personal privacy for individuals whose genetic data (personal or pathogen) are included in such work has been difficult to delineate, because neither the true benefit nor the actual ri...

  5. 75 FR 68852 - Privacy Act of 1974; System of Records Notice

    2010-11-09

    ...., Washington, DC 20590 or [email protected] . FOR FURTHER INFORMATION CONTACT: For privacy issues please... DEPARTMENT OF TRANSPORTATION Office of the Secretary Privacy Act of 1974; System of Records Notice... Secretary of Transportation (DOT/OST) proposes to establish a DOT-wide system of records under the Privacy...

  6. 77 FR 70795 - Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security...

    2012-11-27

    ... 20598-6036; email: [email protected] . For privacy issues please contact: Jonathan Cantor, (202-343... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security Administration System of Records AGENCY: Privacy...

  7. 75 FR 28042 - Privacy Act of 1974: System of Records; Department of Homeland Security Transportation Security...

    2010-05-19

    ..., VA 20598-6036 or [email protected] . For privacy issues please contact: Mary Ellen Callahan (703-235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2010-0013] Privacy Act of..., Transportation Security Enforcement Record System, System of Records AGENCY: Privacy Office, DHS. ACTION: Notice...

  8. 75 FR 69604 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Office of...

    2010-11-15

    ... Security, Washington, DC 20528. For privacy issues please contact: Mary Ellen Callahan (703-235- [[Page...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Office of Operations... System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  9. 78 FR 59082 - Privacy Act of 1974; Department of Transportation, Federal Motor Carrier Safety Administration...

    2013-09-25

    ..., [email protected] . For privacy issues please contact: Claire W. Barrett, Departmental Chief... DEPARTMENT OF TRANSPORTATION Office of the Secretary [Docket No. FMCSA-2013-0306] Privacy Act of... Administration (FMCSA), DOT. ACTION: Notice to amend a system of records. SUMMARY: In accordance with the Privacy...

  10. 78 FR 69861 - Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency...

    2013-11-21

    ... Homeland Security, Washington, DC 20478. For privacy issues, please contact: Karen L. Neuman, (202) 343... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [DHS-2013-0073] Privacy Act of 1974... Defense Executive Reserve System of Records AGENCY: Department of Homeland Security, Privacy Office...

  11. 77 FR 30433 - Privacy Act of 1974: Implementation of Exemptions; Automated Targeting System

    2012-05-23

    ... Border Protection, Mint Annex, 799 Ninth Street NW., Washington, DC 20229. For privacy issues please... Secretary 6 CFR Part 5 [Docket No. DHS-2012-0020] Privacy Act of 1974: Implementation of Exemptions; Automated Targeting System AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  12. 77 FR 70792 - Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security...

    2012-11-27

    ..., VA 20598-6036; email: [email protected] . For privacy issues please contact: Jonathan R. Cantor... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary Privacy Act of 1974; Retirement of Department of Homeland Security Transportation Security Administration System of Records AGENCY: Privacy...

  13. 75 FR 7978 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security Transportation...

    2010-02-23

    ... Security Administration, 601 South 12th Street, Arlington, VA 20598-6036. For privacy issues please contact... Secretary 6 CFR Part 5 [Docket No. DHS-2009-0137] Privacy Act of 1974: Implementation of Exemptions... Program System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  14. 75 FR 18863 - Privacy Act of 1974; Department of Homeland Security Transportation Security Administration-006...

    2010-04-13

    ... 12th Street, Arlington, VA, 20598-6036. For privacy issues please contact: Mary Ellen Callahan (703-235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2010-0015] Privacy Act of... Matters Tracking Records AGENCY: Privacy Office, DHS. [[Page 18864

  15. 75 FR 7979 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-027 The...

    2010-02-23

    ... privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer, Privacy Office...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-027 The History of the Department of Homeland Security System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of...

  16. 75 FR 8092 - Privacy Act of 1974; Department of Homeland Security/ALL-027 The History of the Department of...

    2010-02-23

    ... Policy, U.S. Department of Homeland Security, Washington, DC 20528. For privacy issues please contact... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2009-0040] Privacy Act of... System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of records. SUMMARY...

  17. 76 FR 21768 - Privacy Act of 1974; Department of Homeland Security/Office of Health Affairs-001 Contractor...

    2011-04-18

    ... Homeland Security, Washington, DC 20520. For privacy issues please contact: Mary Ellen Callahan (703-235... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0013] Privacy Act of... Immunization Records System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of...

  18. 76 FR 49500 - Privacy Act of 1974; Department of Homeland Security United States Coast Guard-020 Substance...

    2011-08-10

    ... 7101 Washington, DC 20593. For privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0053] Privacy Act of... Treatment Program System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of...

  19. Privacy, the individual and genetic information: a Buddhist perspective.

    Hongladarom, Soraj

    2009-09-01

    Bioinformatics is a new field of study whose ethical implications involve a combination of bioethics, computer ethics and information ethics. This paper is an attempt to view some of these implications from the perspective of Buddhism. Privacy is a central concern in both computer/information ethics and bioethics, and with information technology being increasingly utilized to process biological and genetic data, the issue has become even more pronounced. Traditionally, privacy presupposes the individual self but as Buddhism does away with the ultimate conception of an individual self, it has to find a way to analyse and justify privacy that does not presuppose such a self. It does this through a pragmatic conception that does not depend on a positing of the substantial self, which is then found to be unnecessary for an effective protection of privacy. As it may be possible one day to link genetic data to individuals, the Buddhist conception perhaps offers a more flexible approach, as what is considered to be integral to an individual person is not fixed in objectivity but depends on convention.

  20. Privacy and Property? Multi-level Strategies for Protecting Personal Interests in Genetic Material

    Laurie, Graeme

    2003-01-01

    The paper builds on earlier medico-legal work by Laurie on privacy in relation to genetic material. In this chapter, the author discusses not only Laurie's views as 'pro-privacy' but the limitations of privacy, particularly once information, genetic or otherwise, enters a public sphere. The article draws on cases and laws in the UK, continental Europe, and the US, to provide a comparative view in suggesting an alternative approach to privacy.

  1. 78 FR 47210 - National Practitioner Data Bank and Privacy Act; Exempt Records System; Technical Correction

    2013-08-05

    ... reference cited in the Privacy Act regulations. The National Practitioner Data Bank (NPDB) system of records... DEPARTMENT OF HEALTH AND HUMAN SERVICES 45 CFR Part 5b RIN 0906-AA97 National Practitioner Data Bank and Privacy Act; Exempt Records System; Technical Correction AGENCY: Health Resources and Services...

  2. 78 FR 43258 - Privacy Act; System of Records: Human Resources Records, State-31

    2013-07-19

    ... DEPARTMENT OF STATE [Public Notice 8384] Privacy Act; System of Records: Human Resources Records... system of records, Human Resources Records, State- 31, pursuant to the provisions of the Privacy Act of... State proposes that the current system will retain the name ``Human Resources Records'' (previously...

  3. 77 FR 13388 - Treasury Inspector General for Tax Administration; Privacy Act of 1974: Computer Matching Program

    2012-03-06

    ... DEPARTMENT OF THE TREASURY Treasury Inspector General for Tax Administration; Privacy Act of 1974...: Notice. SUMMARY: Pursuant to 5 U.S.C. 552a, the Privacy Act of 1974, as amended, notice is hereby given... Administration. Beginning and Completion Dates: This program of computer matches is expected to commence on March...

  4. 75 FR 5604 - Privacy Act of 1974; Report of an Altered System of Records

    2010-02-03

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Privacy Act...). SUMMARY: In accordance with the requirements of the Privacy Act of 1974, the Health Resources and Services... to include breach notification language required by Memoranda (M) 07-16, Safeguarding Against and...

  5. 75 FR 77044 - Financial Management Service; Privacy Act of 1974, as Amended; System of Records

    2010-12-10

    ... DEPARTMENT OF THE TREASURY Financial Management Service; Privacy Act of 1974, as Amended; System of Records AGENCY: Financial Management Service, Treasury. ACTION: Withdrawal of a Privacy Act Notice... behalf of the Financial Management Service. DATES: December 10, 2010. FOR FURTHER INFORMATION CONTACT...

  6. 75 FR 75546 - Financial Management Service; Privacy Act of 1974, as Amended; System of Records

    2010-12-03

    ... DEPARTMENT OF THE TREASURY Financial Management Service; Privacy Act of 1974, as Amended; System of Records AGENCY: Financial Management Service, Treasury. ACTION: Notice of proposed new system of records. SUMMARY: In accordance with the Privacy Act of 1974, as amended, the Financial Management Service...

  7. 77 FR 43639 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA...

    2012-07-25

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0090] Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA)/Department of Veterans Affairs (VA.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503...

  8. 77 FR 54943 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA...

    2012-09-06

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0016] Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA)/Department of Veterans Affairs (VA.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503...

  9. 76 FR 48811 - Computer Matching and Privacy Protection Act of 1988

    2011-08-09

    ... CORPORATION FOR NATIONAL AND COMMUNITY SERVICE Computer Matching and Privacy Protection Act of... of the Computer Matching and Privacy Protection Act of 1988 (54 FR 25818, June 19, 1989), and OMB... Security Administration (``SSA''). DATES: CNCS will file a report on the computer matching agreement with...

  10. 75 FR 5166 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration...

    2010-02-01

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2009-0043] Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration/Railroad Retirement Board (SSA/RRB))-- Match... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 Public Law (Pub. L.) 100-503...

  11. Laboratory specimens and genetic privacy: evolution of legal theory.

    Lewis, Michelle Huckaby

    2013-03-01

    Although laboratory specimens are an important resource for biomedical research, controversy has arisen when research has been conducted without the knowledge or consent of the individuals who were the source of the specimens. This paper summarizes the most important litigation regarding the research use of laboratory specimens and traces the evolution of legal theory from property claims to claims related to genetic privacy interests. © 2013 American Society of Law, Medicine & Ethics, Inc.

  12. 75 FR 30411 - Privacy Act of 1974; Report of a Modified or Altered System of Records

    2010-06-01

    ... Privacy Act of 1974; the Federal Information Security Management Act of 2002; the Computer Fraud and Abuse... Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the Health Insurance Portability... systems and data files necessary for compliance with Title XI, Part C of the Social Security Act because...

  13. 76 FR 71417 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Law Enforcement Agencies (LEA...

    2011-11-17

    ...; Computer Matching Program (SSA/ Law Enforcement Agencies (LEA)) Match Number 5001 AGENCY: Social Security... protections for such persons. The Privacy Act, as amended, regulates the use of computer matching by Federal... accordance with the Privacy Act of 1974, as amended by the Computer Matching and Privacy Protection Act of...

  14. 76 FR 67621 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security U.S. Customs...

    2011-11-02

    ...., Washington, DC 20229. For privacy issues please contact: Mary Ellen Callahan (703) 235-0780), Chief Privacy... Secretary 6 CFR Part 5 [Docket No. DHS-2011-0103] Privacy Act of 1974: Implementation of Exemptions... of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  15. 75 FR 39184 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-029 Civil...

    2010-07-08

    ... questions and privacy issues please contact: Mary Ellen Callahan (703-235-0780), Chief Privacy Officer... Secretary 6 CFR Part 5 [Docket No. DHS-2010-0034] Privacy Act of 1974: Implementation of Exemptions...: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The Department of Homeland Security...

  16. 78 FR 44931 - Privacy Act of 1974; System of Records

    2013-07-25

    ...), as amended. This system will provide DLA installations with the ability to rapidly and effectively... Defense Privacy and Civil Liberties Web site at http://dpclo.defense.gov/privacy/SORNs/component/dla/index...: First name, last name, work email, work phone number, mobile phone number, short message service (SMS...

  17. 76 FR 52320 - Privacy Act of 1974; System of Records

    2011-08-22

    ... & Privacy, and DoD Information Assurance Regulations. Auditing: Audit trail records from all available.../JS Privacy Office, Freedom of Information Directorate, Washington Headquarters Services, 1155 Defense... Defense. DHA 23 System name: Pharmacy Data Transaction Service (PDTS). System location: Primary: Emdeon...

  18. 78 FR 46686 - Privacy Act of 1974; Treasury/United States Mint .013-United States Mint National Electronic...

    2013-08-01

    ... available publicly. FOR FURTHER INFORMATION CONTACT: For general questions and privacy issues, please... DEPARTMENT OF THE TREASURY Privacy Act of 1974; Treasury/United States Mint .013--United States... Privacy Act of 1974, as amended, 5 U.S.C. 552a, the Department of the Treasury (``Treasury'') and the...

  19. 75 FR 7648 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Veterans Affairs...

    2010-02-22

    ... Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503), amended the Privacy... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0006] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Veterans Affairs/Veterans Benefits Administration (VA/ VBA...

  20. 76 FR 4436 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... following Breach Response Routine Use Language to comply with the Office of Management and Budget [[Page 4437

  1. 75 FR 50987 - Privacy Act System of Records; National Animal Health Laboratory Network (NAHLN)

    2010-08-18

    ...The U.S. Department of Agriculture (USDA) proposes to add a new Privacy Act system of records to its inventory of records systems subject to the Privacy Act of 1974, as amended, and invites public comment on this new records system. The system of records being proposed is the National Animal Health Laboratory Network. This notice is necessary to meet the requirements of the Privacy Act to publish in the Federal Register notice of the existence and character of record systems maintained by the agency. Although the Privacy Act requires only that the portion of the system that describes ``routine uses'' of the system be published for comment, USDA invites comment on all portions of this notice.

  2. 75 FR 17937 - Privacy Act of 1974; Deletion of an Existing System of Records

    2010-04-08

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Privacy Act... Clinician Recruitment and Service (BCRS), Health Resources and Services Administration (HRSA), 5600 Fishers... Administrator, Bureau of Clinician Recruitment and Service (BCRS), Health Resources and Services Administration...

  3. 76 FR 50721 - Privacy Act of 1974; System of Records

    2011-08-16

    ... . Follow the instructions for submitting comments. Mail: Federal Docket Management System Office, 1160... of the Army, Privacy Office, U.S. Army Records Management and Declassification Agency, 7701 Telegraph...; laboratory reports, polygraph reports, documentary evidence, physical evidence, summary and administrative...

  4. 78 FR 38303 - Privacy Act of 1974; System of Records

    2013-06-26

    .... FOR FURTHER INFORMATION CONTACT: Mr. Leroy Jones, Department of the Army, Privacy Office, U.S. Army.../army/index.html . The Department of the Army proposes to amend two systems of records notices in its...

  5. Privacy of genetic information: a review of the laws in the United States.

    Fuller, B; Ip, M

    2001-01-01

    This paper examines the privacy of genetic information and the laws in the United States designed to protect genetic privacy. While all 50 states have laws protecting the privacy of health information, there are many states that have additional laws that carve out additional protections specifically for genetic information. The majority of the individual states have enacted legislation to protect individuals from discrimination on the basis of genetic information, and most of this legislation also has provisions to protect the privacy of genetic information. On the Federal level, there has been no antidiscrimination or genetic privacy legislation. Secretary Donna Shalala of the Department of Health and Human Services has issued proposed regulations to protect the privacy of individually identifiable health information. These regulations encompass individually identifiable health information and do not make specific provisions for genetic information. The variety of laws regarding genetic privacy, some found in statutes to protect health information and some found in statutes to prevent genetic discrimination, presents challenges to those charged with administering and executing these laws.

  6. 76 FR 67755 - Privacy Act of 1974; Department of Homeland Security U.S. Customs and Border Protection DHS/CBP...

    2011-11-02

    ... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0102] Privacy Act of... Data System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of records. SUMMARY: In accordance with the Privacy Act of 1974 the Department of Homeland Security proposes to...

  7. The medical examination in United States immigration applications: the potential use of genetic testing leads to heightened privacy concerns.

    Burroughs, A Maxwell

    2005-01-01

    The medical examination has been an integral part of the immigration application process since the passing of the Immigration Act of 1891. Failing the medical examination can result in denial of the application. Over the years the medical examination has been expanded to include questioning about diseases that are scientifically shown to be rooted in an individual's genetic makeup. Recent advances in the fields of genomics and bioinformatics are making accurate and precise screening for these conditions a reality. Government policymakers will soon be faced with decisions regarding whether or not to sanction the use of these newly-developed genetic tests in the immigration application procedure. The terror threat currently facing the United States may ultimately bolster the argument in favor of genetic testing and/or DNA collection of applicants. However, the possibility of a government mandate requiring genetic testing raises a host of ethical issues; including the threat of eugenics and privacy concerns. Genetic testing has the ability to uncover a wealth of sensitive medical information about an individual and currently there are no medical information privacy protections afforded to immigration applicants. This article examines the potential for genetic testing in the immigration application process and the ethical issues surrounding this testing. In particular, this article explores the existing framework of privacy protections afforded to individuals living in the United States and how this and newly-erected standards like those released by the Health and Human Services (HHS) might apply to individuals seeking to immigrate to the United States.

  8. 76 FR 72428 - Privacy Act of 1974; Department of Homeland Security/ALL-017 General Legal Records System of Records

    2011-11-23

    ... http://www.regulations.gov . FOR FURTHER INFORMATION CONTACT: For general questions and privacy issues... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0094] Privacy Act of 1974; Department of Homeland Security/ALL--017 General Legal Records System of Records AGENCY: Privacy...

  9. 78 FR 4079 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security U.S. Customs...

    2013-01-18

    ... Ninth Street NW., Washington, DC 20229. For privacy issues please contact: Jonathan R. Cantor (202-343... Secretary 6 CFR Part 5 [Docket No. DHS 2012-0076] Privacy Act of 1974: Implementation of Exemptions...), System of Records AGENCY: Privacy Office, DHS. ACTION: Notice of proposed rulemaking. SUMMARY: The...

  10. 75 FR 5491 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Customs...

    2010-02-03

    ... addressing privacy concerns. The fifteen- year retention period will allow CBP to access the data when needed... security, law enforcement and counterterrorism missions, while addressing privacy concerns. Legal or...] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Customs and Border...

  11. 45 CFR 2508.19 - What Privacy Act exemptions or control of systems of records are exempt from disclosure?

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false What Privacy Act exemptions or control of systems of records are exempt from disclosure? 2508.19 Section 2508.19 Public Welfare Regulations Relating to... ACT OF 1974 § 2508.19 What Privacy Act exemptions or control of systems of records are exempt from...

  12. 77 FR 48199 - Privacy Act; System of Records: State-35, Information Access Programs Records

    2012-08-13

    ..., the Privacy Act, the Ethics in Government Act, the access provisions of Executive Order 13526 or a...; requester's name and requester's mailing and email address; Social Security number (if provided by the...: Hard copy and electronic media. RETRIEVABILITY: Individual name, case number. SAFEGUARDS: All users are...

  13. 76 FR 77625 - Privacy Act of 1974, as Amended; System of Records

    2011-12-13

    ..., certifications, and special skills and competencies; and (3) Purpose, adding to record and manage career development, certifications, and special skills and competencies. As described in the last published notice... 30-64-0021 Fitness Center Records FDIC 30-64-0022 Freedom of Information Act and Privacy Act Request...

  14. 76 FR 21902 - Privacy Act of 1974; Report of a New System of Records

    2011-04-19

    ..., Information and Systems Management Services (ISMS), U.S. Department of Health and Human Services, Parklawn... Privacy Act of 1974; the Federal Information Security Management Act of 2002; the Computer Fraud and Abuse... for integrating acquisition with financial management (one interface between HCAS and UFMS) and other...

  15. 78 FR 8963 - Update of Existing Privacy Act-NASA Regulations

    2013-02-07

    ... FR 60622] inadvertently omits the responsibility of NASA's Freedom of Information Act (FOIA) Office..., this correction adds responsibility of the FOIA Office. This corrections also corrects the title to Sec... appropriate system manager, or, if unknown, to the Center Privacy Manager or Freedom of Information Act (FOIA...

  16. 78 FR 65011 - Privacy Act of 1974: New System of Records

    2013-10-30

    ... Program under section 1334 of the Affordable Care Act (42 U.S.C. 18054). PURPOSE: OPM operates this system... password- protected computers and systems. Computer firewalls will be maintained to prevent access by... OFFICE OF PERSONNEL MANAGEMENT Privacy Act of 1974: New System of Records AGENCY: U.S. Office of...

  17. 76 FR 39392 - Privacy Act of 1974; System of Records

    2011-07-06

    ....regulations.gov . Follow the instructions for submitting comments. Mail: Federal Docket Management System...: Mr. Leroy Jones, Department of the Army, Privacy Office, U.S. Army Records Management and... address, counselor's phone number and email, documentary evidence, affidavits, information from individual...

  18. 77 FR 75621 - Privacy Act of 1974; System of Records

    2012-12-21

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Contract Audit Agency is amending a system of records notice in its existing.... SUPPLEMENTARY INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy...

  19. 77 FR 77048 - Privacy Act of 1974; System of Records

    2012-12-31

    ...; System of Records AGENCY: Defense Contract Audit Agency, DoD. ACTION: Notice to amend a System of Records. SUMMARY: The Defense Contract Audit Agency is amending a system of records notice in its existing.... SUPPLEMENTARY INFORMATION: The Defense Contract Audit Agency systems of records notices subject to the Privacy...

  20. 76 FR 61761 - Privacy Act of 1974; System of Records

    2011-10-05

    ... locations to grocery or drug stores, office supply stores, retail chains, and self-service kiosks. By... and to the Office of Management and Budget for their evaluation. The Postal Service does not expect this amended notice to have any adverse effect on individual privacy rights. The Postal Service...

  1. 78 FR 14274 - Privacy Act of 1974; System of Records

    2013-03-05

    .../privacy/SORNs/govt/Gov_Wide_Notices.html . K700.13 602-26, Retention Register Files (February 22, 1993, 58... systems of records notices K700.13 602-26, Retention Register Files (February 22, 1993, 58 FR 10562); K700...

  2. 76 FR 65535 - Privacy Act of 1974; System of Records

    2011-10-21

    ... the FBI BRUs expressly as part of this system notice because the entire notice is being republished. While the FBI BRUs provide necessary flexibility in disseminating records from the system, FBI notes...: Elizabeth Withnell, Supervisory Attorney-Advisor, Privacy and Civil Liberties Unit, Office of the General...

  3. 78 FR 79412 - Privacy Act of 1974; System of Records

    2013-12-30

    ... Defense Finance and Accounting Service proposes to alter a system of records, T7205, General Accounting... transaction-driven financial statements in support of Defense Finance and Accounting Service financial mission... INFORMATION: The Defense Finance and Accounting Service notices for systems of records subject to the Privacy...

  4. 78 FR 69393 - Privacy Act of 1974; System of Records

    2013-11-19

    ... Liberties Web site at http://dpclo.defense.gov/privacy/SORNs/component/ngia/index.html . The proposed system... the system: Current and former NGA employees, military personnel, contractors, employed by or assigned... certify, verify, or state) under penalty of perjury under the laws of the United States of America that...

  5. 78 FR 73508 - Privacy Act of 1974; System of Records

    2013-12-06

    ....gov/privacy/SORNs/component/airforce/index.html . The proposed systems reports, as required by 5 U.S.C..., citizenship, military and/or federal civilian service information, and private and professional affiliations... (or certify, verify, or state) under penalty of perjury under the laws of the United States of America...

  6. 78 FR 41920 - Privacy Act of 1974; System of Records

    2013-07-12

    ... Civil Liberties Office Web site at http://dpclo.defense.gov/privacy/SORNs/component/army/index.html... systems of records notices. Individual should provide full name, SSN and/or DoD ID number and military... penalty of perjury under the laws of the United States of America that the foregoing is true and correct...

  7. 77 FR 64241 - Privacy Act of 1974; Implementation of Exemptions

    2012-10-19

    .... SUPPLEMENTARY INFORMATION: Background The CFPB is re-publishing its System of Records Notice entitled ``CFPB.005... Confidential business information, Consumer protection, Freedom of information, Privacy. Authority and Issuance... its system of records entitled ``CFPB.005--Consumer Response System'' from certain provisions of the...

  8. 78 FR 74122 - Privacy Act of 1974; System of Records

    2013-12-10

    .... Shedrick, Department of the Air Force, Air Force Privacy Office, Office of Warfighting Integration and... funds employees who are required to operate a government motor vehicle on or off post.'' Categories of... adding new driver's information to the database or updating existing records in the performance of their...

  9. 75 FR 13575 - Privacy Act of 1974; System of Records

    2010-03-22

    ..., proposes to modify the Accounting Systems for the Department of Justice, Justice/DOJ-001, to update the... the system description is set forth below. FOR FURTHER INFORMATION CONTACT: Robin Moss, Privacy... NAME: Accounting Systems for the Department of Justice (DOJ). * * * * * RECORD SOURCE CATEGORIES...

  10. 75 FR 47797 - Privacy Act of 1974; System of Records

    2010-08-09

    ... Officer, Department of Defense. Deletion: S330.40 CAHS System name: Employee Assistance Program Records (August 27, 1999; 64 FR 46889). Reason: This collection is covered under the existing DHHS/FOH EAP Privacy notice 09-90-0010, entitled ``Employee Assistance Program (EAP) Records, HHS/OS/ASAM/OHR.'' [FR Doc. 2010...

  11. 78 FR 45913 - Privacy Act of 1974; Systems of Records

    2013-07-30

    ... at http://dpclo.defense.gov/privacy/SORNs/component/nsa/index.html . The proposed system report, as... Register Liaison Officer, Department of Defense. GNSA 14 System Name: NSA/CSS Library Patron File Control....'' Categories of individuals covered by the system: Delete entry and replace with ``NSA civilian employees...

  12. 78 FR 19510 - Privacy Act of 1974; Republication To Delete and Update Privacy Act System of Records...

    2013-04-01

    ... reported under that notice. FOR FURTHER INFORMATION CONTACT: The Chief Privacy Officer, 451 Seventh Street...). (This is not a toll-free number.) A telecommunication device for hearing- and speech-impaired... of General Routine Uses inadvertently reported repeated information that HUD proposes to exclude from...

  13. Genetic privacy and confidentiality: why they are so hard to protect.

    Rothstein, M A

    1998-01-01

    Author notes that widespread concerns have been raised about protecting genetic privacy and confidentiality in insurance and employment. He argues that effective protections are difficult because complicated issues, such as the right of access to health care, are invariably implicated.

  14. 75 FR 62623 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Internal Revenue Service (IRS...

    2010-10-12

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0015] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Internal Revenue Service (IRS))--Match Number 1016 AGENCY: Social Security... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching...

  15. 77 FR 33547 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Centers for Medicare and Medicaid...

    2012-06-06

    ...: Social Security Administration (SSA). ACTION: Notice of a new computer matching program that will expire... protections for such persons. The Privacy Act, as amended, regulates the use of computer matching by Federal... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0015] Privacy Act of 1974, as Amended...

  16. 77 FR 24757 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Labor (DOL))-Match...

    2012-04-25

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0083] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Labor (DOL))--Match Number 1015 AGENCY: Social Security... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching...

  17. 77 FR 27108 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Child Support...

    2012-05-08

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching... protections for such persons. The Privacy Act, as amended, regulates the use of computer matching by Federal... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0010] Privacy Act of 1974, as Amended...

  18. 77 FR 38880 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Railroad Retirement Board (SSA...

    2012-06-29

    ... Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching program that... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0002] Privacy Act of 1974, as Amended...

  19. 77 FR 3455 - Privacy Act of 1974; System of Records-Migrant Education Bypass Program Student Database

    2012-01-24

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records--Migrant Education Bypass Program... (Privacy Act), the Department of Education (Department) publishes this notice of a new system of records... called a ``system of records.'' The Migrant Education Program (MEP) is authorized under Title I, Part C...

  20. 76 FR 34177 - Privacy Act of 1974: Implementation of Exemptions; U.S. Citizenship and Immigration Services...

    2011-06-13

    ...] Privacy Act of 1974: Implementation of Exemptions; U.S. Citizenship and Immigration Services, Immigration... Privacy Act of 1974 for the Department of Homeland Security United States Citizenship and Immigration Services, Immigration and Customs Enforcement, and Customs and Border Protection--001 Alien File, Index...

  1. 78 FR 9721 - Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management...

    2013-02-11

    ... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-06-C] Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management System: Republication of System.... SUMMARY: Pursuant to the provision of the Privacy Act of 1974, HUD is providing notice of its formal...

  2. 45 CFR 2508.8 - Who is responsible for establishing the Corporation's rules of conduct for Privacy Act compliance?

    2010-10-01

    ... Corporation's rules of conduct for Privacy Act compliance? 2508.8 Section 2508.8 Public Welfare Regulations Relating to Public Welfare (Continued) CORPORATION FOR NATIONAL AND COMMUNITY SERVICE IMPLEMENTATION OF THE PRIVACY ACT OF 1974 § 2508.8 Who is responsible for establishing the Corporation's rules of conduct for...

  3. 75 FR 43579 - Privacy Act of 1974; Computer Matching Program Between the Office of Personnel Management and...

    2010-07-26

    ... the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503), Office of Management and... safeguards for disclosure of Social Security benefit information to OPM via direct computer link for the... OFFICE OF PERSONNEL MANAGEMENT Privacy Act of 1974; Computer Matching Program Between the Office...

  4. 78 FR 69925 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Bureau of the Fiscal Service...

    2013-11-21

    ... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching... savings securities. C. Authority for Conducting the Matching Program This computer matching agreement sets... amended by the Computer Matching and Privacy Protection Act of 1988, as amended, and the regulations and...

  5. 75 FR 9012 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/U.S. Department of Health and...

    2010-02-26

    ... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503), amended... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2009-0052] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ U.S. Department of Health and Human Services (HHS), Administration for...

  6. 78 FR 12128 - Privacy Act of 1974; Computer Matching Program (SSA/Department of the Treasury, Internal Revenue...

    2013-02-21

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0067] Privacy Act of 1974; Computer Matching... Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching program... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...

  7. 78 FR 3474 - Privacy Act of 1974; Computer Matching Program Between the Office Of Personnel Management and...

    2013-01-16

    ... amended by the Computer Matching and Privacy Protection Act of 1988 (Pub. L. 100-503), Office of... Security benefit information to OPM via direct computer link for the administration of certain programs by... OFFICE OF PERSONNEL MANAGEMENT Privacy Act of 1974; Computer Matching Program Between the Office...

  8. 75 FR 53004 - Privacy Act of 1974, as Amended; Notice of Computer-Matching Program (Railroad Retirement Board...

    2010-08-30

    ... report of this computer-matching program with the Committee on Homeland Security and Governmental Affairs... INFORMATION: A. General The Computer-Matching and Privacy Protection Act of 1988, (Pub. L. 100-503), amended... RAILROAD RETIREMENT BOARD Privacy Act of 1974, as Amended; Notice of Computer-Matching Program...

  9. 77 FR 49849 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Child Support...

    2012-08-17

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer-matching... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0021] Privacy Act of 1974, as Amended...

  10. 78 FR 51264 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of the Treasury...

    2013-08-20

    ... 1016 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2013-0022] Privacy Act of 1974, as Amended...

  11. 76 FR 21091 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Centers for Medicare & Medicaid...

    2011-04-14

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching...: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...), as amended, (Pub. L. 100-503, the Computer Matching and Privacy Protection Act (CMPPA) of 1988), the...

  12. 78 FR 34678 - Privacy Act of 1974, as Amended; Notice of Computer Matching Program (Railroad Retirement Board...

    2013-06-10

    ... notice of its renewal of an ongoing computer-matching program with the Social Security Administration... computer-matching program with the Committee on Homeland Security and Governmental Affairs of the Senate... Computer Matching and Privacy Protection Act of 1988, (Pub. L. 100-503), amended by the Privacy Act of 1974...

  13. 78 FR 69926 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Centers for Medicare & Medicaid...

    2013-11-21

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L 100-503), amended the... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2013-0059] Privacy Act of 1974, as Amended...

  14. 76 FR 5235 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA Internal Match)-Match Number 1014

    2011-01-28

    ...; Computer Matching Program (SSA Internal Match)--Match Number 1014 AGENCY: Social Security Administration... regarding protections for such persons. The Privacy Act, as amended, regulates the use of computer matching....C. 552a, as amended, and the provisions of the Computer Matching and Privacy Protection Act of 1988...

  15. 75 FR 18251 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Internal Revenue Service (IRS...

    2010-04-09

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2009-0066] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Internal Revenue Service (IRS))--Match 1305 AGENCY: Social Security... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...

  16. 78 FR 16564 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Personnel Management...

    2013-03-15

    ... 1021 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of existing computer... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2012-0073] Privacy Act of 1974, as Amended...

  17. 75 FR 32833 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Personnel Management...

    2010-06-09

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2009-0077] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Office of Personnel Management (OPM))--Match 1307 AGENCY: Social Security... INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub. L.) 100-503...

  18. 75 FR 59780 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Railroad Retirement Board (RRB...

    2010-09-28

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0040] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Railroad Retirement Board (RRB))--Match Number 1006 AGENCY: Social Security...: A. General The Computer Matching and Privacy Protection Act of 1988 (Pub. L.) 100-503), amended the...

  19. 78 FR 70971 - Privacy Act of 1974, as Amended; Notice of Computer Matching Program (Railroad Retirement Board...

    2013-11-27

    ... will file a report of this computer-matching program with the Committee on Homeland Security and... . SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988, (Pub. L. 100-503... RAILROAD RETIREMENT BOARD Privacy Act of 1974, as Amended; Notice of Computer Matching Program...

  20. 77 FR 24756 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Labor (DOL))-Match...

    2012-04-25

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0084] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Labor (DOL))--Match Number 1003 AGENCY: Social Security... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988...

  1. 77 FR 69445 - Privacy Act of 1974; System of Records

    2012-11-19

    ... records of the Military Police Report are maintained in the Centralized Operations Police Suite (COPS... Violence Prevention Act; 28 U.S.C. 534, Uniform Federal Crime Reporting Act of 1988; 42 U.S.C. 5119 et seq... complying with mandatory background checks, i.e., Brady Handgun Violence Prevention Act (18 U.S.C. 922) and...

  2. 78 FR 29786 - Computer Matching and Privacy Protection Act of 1988; Report of Matching Program: RRB and State...

    2013-05-21

    ... required by the Privacy Act of 1974, as amended, the RRB is issuing a public notice in the Federal Register... benefits under the Railroad Retirement Act that the RRB plans to share this computer matching data with...

  3. Reassessing insurers' access to genetic information: genetic privacy, ignorance, and injustice.

    Feiring, Eli

    2009-06-01

    Many countries have imposed strict regulations on the genetic information to which insurers have access. Commentators have warned against the emerging body of legislation for different reasons. This paper demonstrates that, when confronted with the argument that genetic information should be available to insurers for health insurance underwriting purposes, one should avoid appeals to rights of genetic privacy and genetic ignorance. The principle of equality of opportunity may nevertheless warrant restrictions. A choice-based account of this principle implies that it is unfair to hold people responsible for the consequences of the genetic lottery, since we have no choice in selecting our genotype or the expression of it. However appealing, this view does not take us all the way to an adequate justification of inaccessibility of genetic information. A contractarian account, suggesting that health is a condition of opportunity and that healthcare is an essential good, seems more promising. I conclude that if or when predictive medical tests (such as genetic tests) are developed with significant actuarial value, individuals have less reason to accept as fair institutions that limit access to healthcare on the grounds of risk status. Given the assumption that a division of risk pools in accordance with a rough estimate of people's level of (genetic) risk will occur, fairness and justice favour universal health insurance based on solidarity.

  4. 78 FR 54445 - Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System

    2013-09-04

    ... INFORMATION CONTACT: Mr. Christian B. Dellis, Export Services, Plant Health Programs, Plant Protection and... DEPARTMENT OF AGRICULTURE Office of the Secretary [Docket No. APHIS-2012-0104] Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System AGENCY: Animal and Plant Health...

  5. 78 FR 32256 - Privacy Act of 1974; Report of an Altered CMS System of Records Notice

    2013-05-29

    ... 1974; Report of an Altered CMS System of Records Notice AGENCY: Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services (HHS). ACTION: Altered System of Records Notice (SORN). SUMMARY: In accordance with the requirements of the Privacy Act of 1974 (5 USC 552a), CMS...

  6. 76 FR 4469 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use Language to comply... to the Breach of Personally Identifiable Information: To appropriate Federal agencies and Department...

  7. 76 FR 4440 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of....'' HHS is proposing to add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach...

  8. 76 FR 4445 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., ``Alien Mental Waiver Program, HHS/CDC/ NCID. HHS is proposing to add the following Breach Response..., Safeguarding Against and Responding to the Breach of Personally Identifiable Information: To appropriate...

  9. 76 FR 4452 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of.../NCID.'' HHS is proposing to add the following Breach Response Routine Use Language to comply with the... Breach of Personally Identifiable Information: To appropriate federal agencies and Department contractors...

  10. 76 FR 4451 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., ``Fellowship Program and Guest Researcher Records, HHS/CDC/AHRC.'' HHS is proposing to add the following Breach..., Safeguarding Against and responding to the Breach of Personally Identifiable Information: To appropriate...

  11. 76 FR 4460 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07- 16, Safeguarding Against and responding to the Breach of Personally...

  12. 76 FR 4462 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally...

  13. 76 FR 4435 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Interpreting Physician File, HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use... and responding to the Breach of Personally Identifiable Information: To appropriate Federal agencies...

  14. 76 FR 4474 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally Identifiable Information...

  15. 76 FR 4476 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of.../NCCDPHP.'' HHS is proposing adding the following Breach Response Routine Use Language to comply with the... Breach of Personally Identifiable Information: ``To appropriate federal agencies and Department...

  16. 76 FR 4463 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Program Records, HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use... and responding to the Breach of Personally Identifiable Information: [[Page 4464

  17. 76 FR 4458 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... proposing to add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and Responding to the Breach of Personally...

  18. 76 FR 4446 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... to add the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally...

  19. 76 FR 4466 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., HHS/CDC/NIOSH.'' HHS is proposing to add the following Breach Response Routine Use Language to comply... to the Breach of Personally Identifiable Information: To appropriate federal agencies and Department...

  20. 76 FR 4478 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of..., HHS/CDC/NCHSTP.'' HHS is proposing to add the following Breach Response Routine Use Language to comply... to the Breach of Personally Identifiable Information: To appropriate Federal agencies and Department...

  1. 76 FR 4443 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Health Benefit Recipients, HHS/CDC/NCHSTP.'' HHS is proposing to add the following Breach Response..., Safeguarding Against and Responding to the Breach of Personally Identifiable Information. To appropriate...

  2. 76 FR 4438 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... the following Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally Identifiable...

  3. 76 FR 4449 - Privacy Act of 1974; Report of Modified or Altered System of Records

    2011-01-25

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Privacy Act of... Breach Response Routine Use Language to comply with the Office of Management and Budget (OMB) Memoranda (M) 07-16, Safeguarding Against and responding to the Breach of Personally Identifiable Information...

  4. 32 CFR Appendix G to Part 323 - Privacy Act Enforcement Actions

    2010-07-01

    ... right granted by this DLAR will be permitted to seek relief through appropriate administrative channels... damages, court cost, and attorney fees in some cases. D. Criminal Penalties— 1. The Privacy Act also provides for criminal penalties (see 5 U.S.C. 552a(1).) Any official or employee may be found guilty of a...

  5. 21 CFR 21.71 - Disclosure of records in Privacy Act Record Systems; accounting required.

    2010-04-01

    ... accounting shall be made, in accordance with paragraph (e) of this section, of any disclosure under paragraph (a) of this section of a record that is not a disclosure under § 21.70. (e) Where an accounting is... of the disclosure. The accounting shall not be considered a Privacy Act Record System. (2) Retain the...

  6. 75 FR 54528 - Privacy Act of 1974: Implementation of Exemptions United States Citizenship and Immigration...

    2010-09-08

    ... States Citizenship and Immigration Services-012 Citizenship and Immigration Data Repository System of... the Privacy Act of 1974 for the United States Citizenship and Immigration Services- 012 Citizenship and Immigration Data Repository System of Records system of records and this proposed rulemaking. In...

  7. 78 FR 37775 - Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System

    2013-06-24

    ... DEPARTMENT OF AGRICULTURE Office of the Secretary [Docket No. APHIS-2012-0104] Privacy Act Systems of Records; Phytosanitary Certificate Issuance and Tracking System AGENCY: Animal and Plant Health... Health Inspection Service proposes to add a system of records to its inventory of records systems subject...

  8. 5 CFR 2606.106 - OGE employee Privacy Act rules of conduct and responsibilities.

    2010-01-01

    ... 5 Administrative Personnel 3 2010-01-01 2010-01-01 false OGE employee Privacy Act rules of conduct and responsibilities. 2606.106 Section 2606.106 Administrative Personnel OFFICE OF GOVERNMENT ETHICS... requirement to inform each individual asked to supply information to be maintained in a system of records the...

  9. 78 FR 23811 - Privacy Act of 1974; Proposed New Routine Uses and System of Records Alterations

    2013-04-22

    ... Commissioner of Social Security, and, (c) Investigating issues of fraud or violations of civil rights by... property interests, risk of identity theft or fraud, or harm to the security or integrity of this system or... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA-2013-0015] Privacy Act of 1974; Proposed New...

  10. 77 FR 65049 - Privacy Act; System of Records: Translator and Interpreter Records, State-37

    2012-10-24

    ... DEPARTMENT OF STATE [Public Notice 8066] Privacy Act; System of Records: Translator and... an existing system of records, Translator and Interpreter Records, State-37, pursuant to the... INFORMATION: The Department of State proposes that the current system will retain the name ``Translator and...

  11. 77 FR 5062 - Privacy Act of 1974; Consolidation of National Labor Relations Board Systems of Records

    2012-02-01

    ...: Next Generation Case Management System (NxGen) (NLRB-33). NxGen stores electronic case tracking... consolidation of six Privacy Act systems of records notices into one notice: Next Generation Case Management... systems of records notices: Judicial Case Management System--Pending Case List (JCMS-PCL) and Associated...

  12. 78 FR 43890 - Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency-006...

    2013-07-22

    ... titled, ``Department of Homeland Security/Federal Emergency Management Agency--006 Citizen Corps Database... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2013-0049] Privacy Act of 1974; Department of Homeland Security, Federal Emergency Management Agency--006 Citizen Corps Program...

  13. 76 FR 45336 - Departmental Offices; Privacy Act of 1974, as Amended; Systems of Records

    2011-07-28

    ... Inspector General.'' * * * * * Purpose(s): Description of change: The period ``.'' at the end of the... 510, Washington, DC 20220. For records provided by the general public concerning financial instrument... Records AGENCY: Office of Inspector General, Treasury. ACTION: Notice of Alteration to a Privacy Act...

  14. 75 FR 17938 - Privacy Act of 1974; Deletion of an Existing System of Records

    2010-04-08

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Privacy Act of 1974; Deletion of an Existing System of Records AGENCY: Department of Health and Human Services... address comments to: Policy Director, Bureau of Clinician Recruitment and Service (BCRS), Health Resources...

  15. 78 FR 22522 - Privacy Act of 1974: New System of Records

    2013-04-16

    ... System cannot access records through the biometric hand reader technology. RETENTION AND DISPOSAL: The... Privacy Act of 1974 (5 U.S.C. 552a), as amended, titled ``Biometric Verification System (CSOSA-20).'' This... Biometric Verification System allows individuals under supervision to electronically check-in for office...

  16. 77 FR 74913 - Privacy Act of 1974, as Amended; Computer Matching Program (Social Security Administration (SSA...

    2012-12-18

    ...; Computer Matching Program (Social Security Administration (SSA)/Office of Personnel Management (OPM.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub... computer matching involving the Federal government could be performed and adding certain protections for...

  17. 78 FR 25414 - Privacy Act of 1974, System of Records

    2013-05-01

    ... communication cables; facility access authorizations/restrictions; photographs, fingerprints; financial records... Reinvestigating Individuals in Positions of Public Trust; and the Intelligence Reform and Terrorism Prevention Act...

  18. 77 FR 2721 - Privacy Act System of Records

    2012-01-19

    ...-3, ``National Deaf-Blind Equipment Distribution Program (NDBEDP).'' Following enactment of the Twenty-First Century Communications and Video Accessibility Act of 2010 (CVAA) on October 8, 2010, the..., Implementation of the Twenty- First Century Communications and Video Accessibility Act of 2010, Section 105...

  19. 75 FR 69988 - Privacy Act of 1974; Computer Matching Program

    2010-11-16

    ... Crime Control Act of 1990, Public Law 101-647 (hereinafter referred to as ``section 5301''), authorizes... amended and redesignated as section 421 of the Controlled Substances Act by section 1002(d) of the Crime... accessible format (e.g., Braille, large print, audiotape, or computer diskette) by contacting the contact...

  20. 76 FR 17997 - Privacy Act of 1974, as Amended

    2011-03-31

    ... entitled ``Treasury/IRS 42.888--Qualifying Therapeutic Discovery Project Records.'' DATES: Comments must be... with the Department of Health and Human Services, the Qualifying Therapeutic Discovery Program pursuant... and Education Reconciliation Act of 2010 (Pub. L. 111-152) (Affordable Care Act). The qualifying...

  1. 32 CFR Appendix M to Part 275 - Format for Certificate of Compliance With the Right to Financial Privacy Act of 1978

    2010-07-01

    ... Certificate of Compliance With the Right to Financial Privacy Act of 1978 [Official Letterhead] [Date] Mr./Mrs..., pursuant to section 3403(b) of the Right to Financial Privacy Act of 1978, 12 U.S.C. 3401 et. seq., that...]: [Describe the specific records] Pursuant to section 3417(c) of the Right to Financial Privacy Act of 1978...

  2. 76 FR 77472 - Privacy Act of 1974, as Amended

    2011-12-13

    ... financial laws, and, among other powers, has authority to protect consumers from unfair, deceptive, and abusive practices when obtaining consumer financial products or services. The Act establishes an Ombudsman...

  3. 16 CFR 4.13 - Privacy Act rules.

    2010-01-01

    ... assigned to the individual, such as a finger or voice print or a photograph, but does not include... Act or regulations established thereunder. Title 18 U.S.C. 1001, Crimes and Criminal Procedures, makes...

  4. 77 FR 15143 - Privacy Act of 1974; System of Records

    2012-03-14

    ... abuse. Recovery Act, Sec. Sec. 1521, 1523(a)(1). The Education Jobs Fund requires, among other things... signature (or submitted with date and signature under penalty of perjury), and any other identifying number...

  5. 75 FR 19624 - Privacy Act of 1974; System of Records

    2010-04-15

    ... Transportation and Related Agencies Appropriations Act 2001; 5 U.S.C. 6120, Telecommuting in Executive Agencies... by telephone control offices to validate and reimburse participants for costs associated with...

  6. 77 FR 46551 - Office of Privacy, Records, and Disclosure; Privacy Act of 1974, as Amended

    2012-08-03

    ... National Defense Authorization Act for Fiscal Year 2008 (Pub. L. 110-181), which created the Special... custody, use, and preservation of the department's records, papers, and property. To facilitate SIGAR's... any information they post, as with any other information passing through or stored on SIGAR equipment...

  7. 76 FR 12084 - Privacy Act of 1974; System of Records

    2011-03-04

    ... provide flying career background information used for assignment actions. Accounting and Finance Office... transaction file, a twelve month history file, and a career flying and jump history. A centralized file of...: aviation career; Public Law 92-204, Appropriations Act for 1973; Section 715 Public Law 93-570...

  8. 76 FR 79663 - Privacy Act of 1974; System of Records

    2011-12-22

    ... Advertising, Market Research & Studies Recruiting Database (January 9, 2007, 72 FR 952). Changes... following: Opt-Out information: Individuals, who are 15\\1/2\\ years old or older, or parents or legal guardians acting on behalf of individuals who are between the ages of 15\\1/2\\ and 18 years old, seeking to...

  9. 75 FR 29728 - Privacy Act of 1974; System of Records

    2010-05-27

    ... telephone number; emergency contact information; Child Development Center and Family Child Care insurance... reports of fire, safety, housing, and environmental health inspections. Children's records will also... Regulation (DoD 6025.18-R) issued pursuant to the Health Insurance Portability and Accountability Act of 1996...

  10. 78 FR 11575 - Privacy Act of 1974; Implementation

    2013-02-19

    ... subject to exemption under these subsections. Finally, the commenter alleged that the Department failed to... potential acts of terrorism. Revealing this information may also permit the subject individual to take... addition, because many of these records come from courts and other state and local criminal justice...

  11. 77 FR 56824 - Privacy Act of 1974; Computer Matching Program

    2012-09-14

    ... functions and duties of the Chief Operating Officer. Dated: September 11, 2012. James F. Manning, Chief of... recipients of, financial assistance under title IV of the Higher Education Act of 1965, as amended (HEA), as.... 4. Categories of Records and Individuals Covered The records to be used in the match and the roles...

  12. 76 FR 63287 - Privacy Act of 1974; System of Records

    2011-10-12

    ... one command to facilitate collaborative planning and to assist all echelons in achieving situational awareness, and for assisting the Combatant Command and Joint Task Force Surgeon in assessing risks..., Attention: Freedom of Information Act Requester Service Center, 16401 East Centretech Parkway, Aurora, CO...

  13. 78 FR 14278 - Privacy Act of 1974; System of Records

    2013-03-05

    ... Logistics; Pub.L. 95-521, Ethics in Government Act; and DoD Directive 7050.5, Coordination of Remedies for Fraud and Corruption Related to Procurement Activities.'' Purpose(s): Delete entry and replace with... or group of individuals or other entities from DLA procurement and sales.'' Routine uses of records...

  14. 78 FR 76897 - Privacy Act of 1974; System of Records

    2013-12-19

    ... established as the Income Verification Match Center, has authority under section 8051 to verify Veterans' self...) is amending the system of records currently titled ``Income Verification Records--VA'' (89VA16) as... Reconciliation Act of 1990, provides VA the authority to verify Veterans' self-reported income to determine...

  15. 78 FR 5785 - Privacy Act of 1974; System of Records

    2013-01-28

    ... identification number), date of birth, gender, race/ethnicity, citizenship, home and work email address... ``Physical access to system location restricted by cipher locks, visitor escort, access rosters, and photo... Activity, ATTN: Freedom of Information Act Requester Service Center, 16401 Centretech Parkway, Aurora...

  16. 76 FR 27103 - Privacy Act of 1974; System of Records

    2011-05-10

    ...., Education Jobs Fund, Public Law 111-226, 124 Stat. 2389, sec. 101 (Aug. 10, 2010) (``[T]he amount under this... Recovery Act was enacted on February 17, 2009, in order to make supplemental appropriations for job... of records contains information relevant to the retention of an employee, the retention of a security...

  17. 78 FR 69651 - Privacy Act of 1974; System of Records

    2013-11-20

    ... Dispute Resolution Act (ADR); DIA Instruction 5145.001, Conflict Management Program; DIA Manual 60-1... provided access to the information except to the extent that disclosure would reveal the identity of a.... 552a(k)(5), but only to the extent that such material would reveal the identity of a confidential...

  18. 76 FR 72391 - Privacy Act of 1974; System of Records

    2011-11-23

    ...; military hospitalization and medical treatment, immunization, and pharmaceutical dosage records; home and... individuals. To detect fraud, waste and abuse pursuant to the authority contained in the Inspector General Act..., immunization, and pharmaceutical dosage records; home and work addresses; and identities of individuals...

  19. 75 FR 80313 - Privacy Act of 1974; Implementation

    2010-12-22

    ... Act, 5 U.S.C. 601-612, therefore, the proposed rule will not have a significant economic impact on a... that are contributed to DIVS are created by the FBI or other law enforcement and intelligence entities..., and tribal governments, and the private sector. UMRA requires a written statement of economic and...

  20. 77 FR 23173 - Privacy Act of 1974: Implementation

    2012-04-18

    ... a significant economic impact on a substantial number of small entities. Paperwork Reduction Act The... governments, and the private sector. UMRA requires a written statement of economic and regulatory alternatives... subsections (c)(3); (d)(1), (2), (3) and (4); and (e)(1): (1) Air Intelligence Program (Justice/DEA-001) (2...

  1. 76 FR 53921 - Privacy Act of 1974; Department of Homeland Security ALL-034 Emergency Care Medical Records...

    2011-08-30

    ... AGENCY: Privacy Office, DHS. ACTION: Notice of Privacy Act system of records. SUMMARY: In accordance with... Security Office of Health Affairs to collect and maintain records on individuals who receive emergency care... consistent, quality medical care. To support MQM, OHA operates the electronic Patient Care Record (ePCR), an...

  2. 76 FR 12398 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Bureau of the Public Debt (BPD...

    2011-03-07

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0034] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Bureau of the Public Debt (BPD))--Match Number 1304 AGENCY: Social Security... as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection...

  3. 78 FR 12127 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of the Treasury...

    2013-02-21

    ... 1310 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer..., as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2013-0007] Privacy Act of 1974, as Amended...

  4. 75 FR 51154 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of the Treasury...

    2010-08-18

    ... 1310 AGENCY: Social Security Administration (SSA) ACTION: Notice of a renewal of an existing computer..., as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0035] Privacy Act of 1974, as Amended...

  5. 77 FR 6620 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/the States); Match 6000 and 6003

    2012-02-08

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2011-0102] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ the States); Match 6000 and 6003 AGENCY: Social Security Administration..., as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection...

  6. 75 FR 68396 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Labor (DOL))-Match...

    2010-11-05

    ... SOCIAL SECURITY ADMINISTRATION [Docket No. SSA 2010-0052] Privacy Act of 1974, as Amended; Computer Matching Program (SSA/ Department of Labor (DOL))--Match Number 1003 AGENCY: Social Security... as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection...

  7. 76 FR 66949 - Privacy Act of 1974; Notification of the Establishment of a Privacy Act System of Records, HUD...

    2011-10-28

    ...; billing dispute resolution documentation; reconciliation documents; service level agreements; distribution... records in the system: Storage: All data are stored on the production HIAMS database servers. The data are... HUD Integrated Core Financial System. Exemptions from certain provisions of the Act: None. [FR Doc...

  8. 75 FR 82061 - Notice To Amend an Existing System of Records; Privacy Act of 1974; as Amended

    2010-12-29

    ... or aliens lawfully admitted for permanent residence) are subject to the Privacy Act. This system... requesting notification of the existence of records on himself or herself should send or provide a signed...

  9. 75 FR 5487 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Customs...

    2010-02-03

    ... individual, is a strange use of Privacy Act exemptions. Response: The language of Routine Use M was drafted... sets of circumstances, will remain accessible for the life of the law enforcement matter. Redress and...

  10. 75 FR 40014 - Privacy Act of 1974, as Amended; Proposed System of Records and Routine Use Disclosures

    2010-07-13

    ...: Economic Recovery List (ERL) Database, Social Security Administration. SYSTEM CLASSIFICATION: None. SYSTEM... SOCIAL SECURITY ADMINISTRATION Privacy Act of 1974, as Amended; Proposed System of Records and Routine Use Disclosures AGENCY: Social Security Administration (SSA). ACTION: Proposed System of Records...

  11. 76 FR 5973 - Privacy Act of 1974; Notice; Publication of the Systems of Records Managed by the Commodity...

    2011-02-02

    ... System CFTC-39 Freedom of Information Act Requests CFTC-40 Privacy Act Requests CFTC-41 Requests for... provisions of the Freedom of Information Act. Nonpublic portions may be used for any purpose specifically... harassment (sexual or non-sexual) on the basis of their race color, religion, sex (gender), national origin...

  12. Sharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validation.

    Sarwate, Anand D; Plis, Sergey M; Turner, Jessica A; Arbabshirani, Mohammad R; Calhoun, Vince D

    2014-01-01

    The growth of data sharing initiatives for neuroimaging and genomics represents an exciting opportunity to confront the "small N" problem that plagues contemporary neuroimaging studies while further understanding the role genetic markers play in the function of the brain. When it is possible, open data sharing provides the most benefits. However, some data cannot be shared at all due to privacy concerns and/or risk of re-identification. Sharing other data sets is hampered by the proliferation of complex data use agreements (DUAs) which preclude truly automated data mining. These DUAs arise because of concerns about the privacy and confidentiality for subjects; though many do permit direct access to data, they often require a cumbersome approval process that can take months. An alternative approach is to only share data derivatives such as statistical summaries-the challenges here are to reformulate computational methods to quantify the privacy risks associated with sharing the results of those computations. For example, a derived map of gray matter is often as identifiable as a fingerprint. Thus alternative approaches to accessing data are needed. This paper reviews the relevant literature on differential privacy, a framework for measuring and tracking privacy loss in these settings, and demonstrates the feasibility of using this framework to calculate statistics on data distributed at many sites while still providing privacy.

  13. Sharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validation

    Anand D. Sarwate

    2014-04-01

    Full Text Available The growth of data sharing initiatives for neuroimaging and genomics represents an exciting opportunity to confront the ``small $N$'' problem that plagues contemporary neuroimaging studies while further understanding the role genetic markers play in in the function of the brain. When it is possible, open data sharing provides the most benefits. However some data cannot be shared at all due to privacy concerns and/or risk of re-identification. Sharing other data sets is hampered by the proliferation of complex data use agreements (DUAs which preclude truly automated data mining. These DUAs arise because of concerns about the privacy and confidentiality for subjects; though many do permit direct access to data, they often require a cumbersome approval process that can take months. An alternative approach is to only share data derivatives such as statistical summaries -- the challenges here are to reformulate computational methods to quantify the privacy risks associated with sharing the results of those computations. For example, a derived map of gray matter is often as identifiable as a fingerprint. Thus alternative approaches to accessing data are needed. This paper reviews the relevant literature on differential privacy, a framework for measuring and tracking privacy loss in these settings, and demonstrates the feasibility of using this framework to calculate statistics on data distributed at many sites while still providing privacy.

  14. Sharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validation

    Sarwate, Anand D.; Plis, Sergey M.; Turner, Jessica A.; Arbabshirani, Mohammad R.; Calhoun, Vince D.

    2014-01-01

    The growth of data sharing initiatives for neuroimaging and genomics represents an exciting opportunity to confront the “small N” problem that plagues contemporary neuroimaging studies while further understanding the role genetic markers play in the function of the brain. When it is possible, open data sharing provides the most benefits. However, some data cannot be shared at all due to privacy concerns and/or risk of re-identification. Sharing other data sets is hampered by the proliferation of complex data use agreements (DUAs) which preclude truly automated data mining. These DUAs arise because of concerns about the privacy and confidentiality for subjects; though many do permit direct access to data, they often require a cumbersome approval process that can take months. An alternative approach is to only share data derivatives such as statistical summaries—the challenges here are to reformulate computational methods to quantify the privacy risks associated with sharing the results of those computations. For example, a derived map of gray matter is often as identifiable as a fingerprint. Thus alternative approaches to accessing data are needed. This paper reviews the relevant literature on differential privacy, a framework for measuring and tracking privacy loss in these settings, and demonstrates the feasibility of using this framework to calculate statistics on data distributed at many sites while still providing privacy. PMID:24778614

  15. Privacy and ethics in pediatric environmental health research-part I: genetic and prenatal testing.

    Fisher, Celia B

    2006-10-01

    The pressing need for empirically informed public policies aimed at understanding and promoting children's health has challenged environmental scientists to modify traditional research paradigms and reevaluate their roles and obligations toward research participants. Methodologic approaches to children's environmental health research raise ethical challenges for which federal regulations may provide insufficient guidance. In this article I begin with a general discussion of privacy concerns and informed consent within pediatric environmental health research contexts. I then turn to specific ethical challenges associated with research on genetic determinants of environmental risk, prenatal studies and maternal privacy, and data causing inflicted insight or affecting the informational rights of third parties.

  16. Privacy preserving protocol for detecting genetic relatives using rare variants.

    Hormozdiari, Farhad; Joo, Jong Wha J; Wadia, Akshay; Guan, Feng; Ostrosky, Rafail; Sahai, Amit; Eskin, Eleazar

    2014-06-15

    High-throughput sequencing technologies have impacted many areas of genetic research. One such area is the identification of relatives from genetic data. The standard approach for the identification of genetic relatives collects the genomic data of all individuals and stores it in a database. Then, each pair of individuals is compared to detect the set of genetic relatives, and the matched individuals are informed. The main drawback of this approach is the requirement of sharing your genetic data with a trusted third party to perform the relatedness test. In this work, we propose a secure protocol to detect the genetic relatives from sequencing data while not exposing any information about their genomes. We assume that individuals have access to their genome sequences but do not want to share their genomes with anyone else. Unlike previous approaches, our approach uses both common and rare variants which provide the ability to detect much more distant relationships securely. We use a simulated data generated from the 1000 genomes data and illustrate that we can easily detect up to fifth degree cousins which was not possible using the existing methods. We also show in the 1000 genomes data with cryptic relationships that our method can detect these individuals. The software is freely available for download at http://genetics.cs.ucla.edu/crypto/. © The Author 2014. Published by Oxford University Press.

  17. Privacy Act System of Records: Freedom of Information Act Request and Appeal File, EPA-9

    Learn more about the Freedom of Information Act Request and Appeal File System, including who is covered in the system, the purpose of data collection, routine uses for the system's records, and other security procedures.

  18. 77 FR 41997 - Privacy Act of 1974; Notice of a New System of Records, Office of General Counsel E-Discovery...

    2012-07-17

    ... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-06] Privacy Act of 1974; Notice of a New System of Records, Office of General Counsel E-Discovery Management System AGENCY: Office of the Chief Information Officer. ACTION: Notification of New Privacy Act System of Records, E-Discovery...

  19. 78 FR 48170 - Privacy Act of 1974; CMS Computer Match No. 2013-12; HHS Computer Match No. 1307; SSA Computer...

    2013-08-07

    ....hhs.gov . SUPPLEMENTARY INFORMATION: The Computer Matching and Privacy Protection Act of 1988 (Public... computer matching involving Federal agencies could be performed and adding certain protections for... Affordability Programs under the Patient Protection and Affordable Care Act''. SECURITY CLASSIFICATION...

  20. 78 FR 4347 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security; U.S. Customs...

    2013-01-22

    ... Secretary 6 CFR Part 5 [Docket No. DHS-2012-0035] Privacy Act of 1974: Implementation of Exemptions... trademark or copyright. This information allows retailers, consumers, and other businesses to contact the..., law enforcement, or intelligence agencies (federal, state, local, foreign, international or tribal) in...

  1. 78 FR 73195 - Privacy Act of 1974: CMS Computer Matching Program Match No. 2013-01; HHS Computer Matching...

    2013-12-05

    ... 1974: CMS Computer Matching Program Match No. 2013-01; HHS Computer Matching Program Match No. 1312 AGENCY: Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services (HHS... Privacy Act of 1974 (5 U.S.C. 552a), as amended, this notice announces the renewal of a CMP that CMS plans...

  2. 78 FR 41924 - Privacy Act of 1974; System of Records-Impact Evaluation of Math Professional Development

    2013-07-12

    ... DEPARTMENT OF EDUCATION Privacy Act of 1974; System of Records--Impact Evaluation of Math... ``Impact Evaluation of Math Professional Development'' (18-13-35). The National Center for Education...-focused math professional development (PD) program on teacher knowledge, teacher practices, and student...

  3. 78 FR 15889 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security U.S. Customs...

    2013-03-13

    ... individual. However, the Privacy Act requires DHS to maintain an accounting of the disclosures made pursuant...)(3) and (4) (Accounting for Disclosures) because release of the accounting of disclosures could alert... the recipient agency. Disclosure of the accounting would therefore present a serious impediment to law...

  4. 78 FR 23938 - Privacy Act of 1974; Report of a New Routine Use for Selected CMS Systems of Records

    2013-04-23

    ... & Medicaid Services (CMS), Department of Health and Human Services (HHS). ACTION: Altered Systems Notice... the systems of records being modified; the new routine use is compatible with the health care purposes... DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Medicare & Medicaid Services Privacy Act of...

  5. 77 FR 49011 - Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management...

    2012-08-15

    ... DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT [Docket No. FR-5613-N-06-A] Privacy Act of 1974; New System of Records, Office of General Counsel E-Discovery Management System--Change in Final Effective... the OGC E-Discovery Management System until after the opportunity for further comment is provided to...

  6. 75 FR 35847 - Privacy Act of 1974, Computer Matching Program-U.S. Small Business Administration and U.S...

    2010-06-23

    ... ID Number, Product (Home/Business) and Registration Occupant Social Security Number to create a New... SMALL BUSINESS ADMINISTRATION Privacy Act of 1974, Computer Matching Program--U.S. Small Business Administration and U.S. Department of Homeland Security, Federal Emergency Management Agency AGENCY: Small...

  7. 78 FR 4968 - Privacy Act of 1974, Computer Matching Program-U.S. Small Business Administration and U.S...

    2013-01-23

    ... Small Business Administration (SBA) and the Department of Homeland Security, Federal Emergency... Security Officer, Office of the Chief Information Officer, Small Business Administration. Eric Won, Chief... SMALL BUSINESS ADMINISTRATION Privacy Act of 1974, Computer Matching Program--U.S. Small Business...

  8. 76 FR 79114 - Privacy Act of 1974: Implementation of Exemptions; DOT/ALL 23-Information Sharing Environment...

    2011-12-21

    ...] Privacy Act of 1974: Implementation of Exemptions; DOT/ALL 23-- Information Sharing Environment (ISE... titled, ``DOT/ALL 23--Information Sharing Environment (ISE) Suspicious Activity Reporting (SAR... exempts portions of the ``DOT/ALL 23--Information Sharing Environment (ISE) Suspicious Activity Reporting...

  9. 75 FR 8088 - Privacy Act of 1974; Department of Homeland Security/ALL-023 Personnel Security Management System...

    2010-02-23

    ... risk of harm to economic or property interests, identity theft or fraud, or harm to the security or... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2009-0041] Privacy Act of 1974; Department of Homeland Security/ALL--023 Personnel Security Management System of Records AGENCY...

  10. 77 FR 57639 - Privacy Act; System of Records: Records of the Office of White House Liaison, State-34

    2012-09-18

    ..., background and security clearance information received from Executive Offices and Bureau of Human Resources... the provisions of the Privacy Act of 1974, as amended (5 U.S.C.552a) and Office of Management and... Liaison Office for the consideration, review, clearance and appointment of an individual to a non-career...

  11. 76 FR 66940 - Privacy Act of 1974; Department of Homeland Security/United States Secret Service-004 Protection...

    2011-10-28

    ... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary [Docket No. DHS-2011-0083] Privacy Act of 1974; Department of Homeland Security/United States Secret Service--004 Protection Information System... Security (DHS)/United States Secret Service (USSS)-004 System name: DHS/USSS-004 Protection Information...

  12. 76 FR 39315 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-030 Use of...

    2011-07-06

    ... the Terrorist Screening Database System of Records relates to official DHS national security and law... DEPARTMENT OF HOMELAND SECURITY Office of the Secretary 6 CFR Part 5 [Docket No. DHS-2011-0060] Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL--030 Use of the...

  13. 76 FR 41274 - Privacy Act of 1974; Department of Homeland Security/ALL-033 Reasonable Accommodations Records...

    2011-07-13

    ..., telecommuting, or reassignment to a vacant position; and/or (3) acquisition or modification of equipment or... the control of an agency for which information is retrieved by the name of an individual or by some... possession or under the control of DHS by complying with DHS Privacy Act regulations, 6 CFR Part 5. The...

  14. 78 FR 37875 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Bureau of the Fiscal Service...

    2013-06-24

    ...: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching... above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988... computer matching involving the Federal government could be performed and adding certain protections for...

  15. 75 FR 54213 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Office of Personnel Management...

    2010-09-03

    ... 1021 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer.... SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection Act of 1988 (Public Law (Pub... computer matching involving the Federal government could be performed and adding certain protections for...

  16. 77 FR 32709 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Department of Homeland Security...

    2012-06-01

    ...; Computer Matching Program (SSA/ Department of Homeland Security (DHS))--Match Number 1010 AGENCY: Social Security Administration (SSA). ACTION: Notice of a renewal of an existing computer matching program that... amended by the Computer Matching and Privacy Protection Act of 1988, as amended, and the regulations and...

  17. 75 FR 53005 - Privacy Act of 1974, as amended; Notice of Computer Matching Program (Railroad Retirement Board...

    2010-08-30

    ... notice of its renewal of an ongoing computer-matching program with the Social Security Administration... computer-matching program with the Committee on Homeland Security and Governmental Affairs of the Senate.... General The Computer Matching and Privacy Protection Act of 1988, (Pub. L. 100-503), amended by the...

  18. Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador.

    Kosseim, Patricia; Pullman, Daryl; Perrot-Daley, Astrid; Hodgkinson, Kathy; Street, Catherine; Rahman, Proton

    2013-01-01

    To provide a legal and ethical analysis of some of the implementation challenges faced by the Population Therapeutics Research Group (PTRG) at Memorial University (Canada), in using genealogical information offered by individuals for its genetics research database. This paper describes the unique historical and genetic characteristics of the Newfoundland and Labrador founder population, which gave rise to the opportunity for PTRG to build the Newfoundland Genealogy Database containing digitized records of all pre-confederation (1949) census records of the Newfoundland founder population. In addition to building the database, PTRG has developed the Heritability Analytics Infrastructure, a data management structure that stores genotype, phenotype, and pedigree information in a single database, and custom linkage software (KINNECT) to perform pedigree linkages on the genealogy database. A newly adopted legal regimen in Newfoundland and Labrador is discussed. It incorporates health privacy legislation with a unique research ethics statute governing the composition and activities of research ethics boards and, for the first time in Canada, elevating the status of national research ethics guidelines into law. The discussion looks at this integration of legal and ethical principles which provides a flexible and seamless framework for balancing the privacy rights and welfare interests of individuals, families, and larger societies in the creation and use of research data infrastructures as public goods. The complementary legal and ethical frameworks that now coexist in Newfoundland and Labrador provide the legislative authority, ethical legitimacy, and practical flexibility needed to find a workable balance between privacy interests and public goods. Such an approach may also be instructive for other jurisdictions as they seek to construct and use biobanks and related research platforms for genetic research.

  19. Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador

    Pullman, Daryl; Perrot-Daley, Astrid; Hodgkinson, Kathy; Street, Catherine; Rahman, Proton

    2013-01-01

    Objective To provide a legal and ethical analysis of some of the implementation challenges faced by the Population Therapeutics Research Group (PTRG) at Memorial University (Canada), in using genealogical information offered by individuals for its genetics research database. Materials and methods This paper describes the unique historical and genetic characteristics of the Newfoundland and Labrador founder population, which gave rise to the opportunity for PTRG to build the Newfoundland Genealogy Database containing digitized records of all pre-confederation (1949) census records of the Newfoundland founder population. In addition to building the database, PTRG has developed the Heritability Analytics Infrastructure, a data management structure that stores genotype, phenotype, and pedigree information in a single database, and custom linkage software (KINNECT) to perform pedigree linkages on the genealogy database. Discussion A newly adopted legal regimen in Newfoundland and Labrador is discussed. It incorporates health privacy legislation with a unique research ethics statute governing the composition and activities of research ethics boards and, for the first time in Canada, elevating the status of national research ethics guidelines into law. The discussion looks at this integration of legal and ethical principles which provides a flexible and seamless framework for balancing the privacy rights and welfare interests of individuals, families, and larger societies in the creation and use of research data infrastructures as public goods. Conclusion The complementary legal and ethical frameworks that now coexist in Newfoundland and Labrador provide the legislative authority, ethical legitimacy, and practical flexibility needed to find a workable balance between privacy interests and public goods. Such an approach may also be instructive for other jurisdictions as they seek to construct and use biobanks and related research platforms for genetic research. PMID

  20. SecureMA: protecting participant privacy in genetic association meta-analysis.

    Xie, Wei; Kantarcioglu, Murat; Bush, William S; Crawford, Dana; Denny, Joshua C; Heatherly, Raymond; Malin, Bradley A

    2014-12-01

    Sharing genomic data is crucial to support scientific investigation such as genome-wide association studies. However, recent investigations suggest the privacy of the individual participants in these studies can be compromised, leading to serious concerns and consequences, such as overly restricted access to data. We introduce a novel cryptographic strategy to securely perform meta-analysis for genetic association studies in large consortia. Our methodology is useful for supporting joint studies among disparate data sites, where privacy or confidentiality is of concern. We validate our method using three multisite association studies. Our research shows that genetic associations can be analyzed efficiently and accurately across substudy sites, without leaking information on individual participants and site-level association summaries. Our software for secure meta-analysis of genetic association studies, SecureMA, is publicly available at http://github.com/XieConnect/SecureMA. Our customized secure computation framework is also publicly available at http://github.com/XieConnect/CircuitService. © The Author 2014. Published by Oxford University Press. All rights reserved. For Permissions, please e-mail: journals.permissions@oup.com.

  1. Preserving Employee Privacy in Wellness.

    Terry, Paul E

    2017-07-01

    The proposed "Preserving Employee Wellness Programs Act" states that the collection of information about the manifested disease or disorder of a family member shall not be considered an unlawful acquisition of genetic information. The bill recognizes employee privacy protections that are already in place and includes specific language relating to nondiscrimination based on illness. Why did legislation expressly intending to "preserve wellness programs" generate such antipathy about wellness among journalists? This article argues that those who are committed to preserving employee wellness must be equally committed to preserving employee privacy. Related to this, we should better parse between discussions and rules about commonplace health screenings versus much less common genetic testing.

  2. 76 FR 24489 - Privacy Act of 1974; Amendment to System of Records

    2011-05-02

    ... message). Fax: 202-482-9237, Attention: Elaine Newton, Privacy Officer. Mail, Hand Delivery/Courier...: Elaine Newton, Privacy Officer. FOR FURTHER INFORMATION CONTACT: Ms. Newton at the Office of Government... 4685 (Jan. 26, 2009); and in support of this Administration's core principles of the business of...

  3. 76 FR 58007 - Privacy Act of 1974; Report of a New System of Records

    2011-09-19

    ..., Division of Information Security & Privacy Management, Enterprise Architecture and Strategy Group, Office... system contain Protected Health Information (PHI) as defined by HHS regulation ``Standards for Privacy of... such PHI that are otherwise authorized by these routine uses may only be made if, and as, permitted or...

  4. Owning genetic information and gene enhancement techniques: why privacy and property rights may undermine social control of the human genome.

    Moore, A D

    2000-04-01

    In this article I argue that the proper subjects of intangible property claims include medical records, genetic profiles, and gene enhancement techniques. Coupled with a right to privacy these intangible property rights allow individuals a zone of control that will, in most cases, justifiably exclude governmental or societal invasions into private domains. I argue that the threshold for overriding privacy rights and intangible property rights is higher, in relation to genetic enhancement techniques and sensitive personal information, than is commonly suggested. Once the bar is raised, so-to-speak, the burden of overriding it is formidable. Thus many policy decisions that have been recently proposed or enacted--citywide audio and video surveillance, law enforcement DNA sweeps, genetic profiling, national bans on genetic testing and enhancement of humans, to name a few--will have to be backed by very strong arguments.

  5. The Genetic Information Nondiscrimination Act (GINA): A Civil Rights Victory

    Petruniak, Mark; Krokosky, Alyson; Terry, Sharon F.

    2011-01-01

    This article discusses the Genetic Information Nondiscrimination Act (GINA) which President George W. Bush officially signed in 2008. The law prohibits employers from making adverse employment decisions based on a person's genetic information, including family health history. It also forbids insurance companies from discriminating against…

  6. PRESAGE: PRivacy-preserving gEnetic testing via SoftwAre Guard Extension.

    Chen, Feng; Wang, Chenghong; Dai, Wenrui; Jiang, Xiaoqian; Mohammed, Noman; Al Aziz, Md Momin; Sadat, Md Nazmus; Sahinalp, Cenk; Lauter, Kristin; Wang, Shuang

    2017-07-26

    Advances in DNA sequencing technologies have prompted a wide range of genomic applications to improve healthcare and facilitate biomedical research. However, privacy and security concerns have emerged as a challenge for utilizing cloud computing to handle sensitive genomic data. We present one of the first implementations of Software Guard Extension (SGX) based securely outsourced genetic testing framework, which leverages multiple cryptographic protocols and minimal perfect hash scheme to enable efficient and secure data storage and computation outsourcing. We compared the performance of the proposed PRESAGE framework with the state-of-the-art homomorphic encryption scheme, as well as the plaintext implementation. The experimental results demonstrated significant performance over the homomorphic encryption methods and a small computational overhead in comparison to plaintext implementation. The proposed PRESAGE provides an alternative solution for secure and efficient genomic data outsourcing in an untrusted cloud by using a hybrid framework that combines secure hardware and multiple crypto protocols.

  7. The "GeneTrustee": a universal identification system that ensures privacy and confidentiality for human genetic databases.

    Burnett, Leslie; Barlow-Stewart, Kris; Proos, Anné L; Aizenberg, Harry

    2003-05-01

    This article describes a generic model for access to samples and information in human genetic databases. The model utilises a "GeneTrustee", a third-party intermediary independent of the subjects and of the investigators or database custodians. The GeneTrustee model has been implemented successfully in various community genetics screening programs and has facilitated research access to genetic databases while protecting the privacy and confidentiality of research subjects. The GeneTrustee model could also be applied to various types of non-conventional genetic databases, including neonatal screening Guthrie card collections, and to forensic DNA samples.

  8. The effects of the Health Insurance Portability and Accountability Act privacy rule on influenza research using geographical information systems

    Norisse Tellman

    2010-11-01

    Full Text Available The Health Insurance Portability and Accountability Act (HIPAA privacy rule was enacted to protect patients’ personal health information from undue disclosure. Despite its intention to protect patients, recent reports suggest that HIPAA restrictions may be negatively impacting health research. Quantitative, visual geographical and statistical analysis of zip code geographical information systems (GIS mapping, comparing 3-digit HIPAA-compliant and 5-digit HIPAA-non-compliant simulated data, was chosen to identify and describe the type of distortion that may result. It was found that unmitigated HIPAA compliance with HIPAA mapping rules distorted the GIS zip code data by 28% leading to erroneous results. Thus, compliance with HIPAA privacy rule when mapping may lead investigators to publish erroneous GIS maps.

  9. 75 FR 73095 - Privacy Act of 1974; Report of New System of Records

    2010-11-29

    ... Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the E-Government Act of... Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the E-Government Act of... Social Security Act (the Act) by establishing incentive payments to eligible professionals (EPs...

  10. Privacy and confidentiality measures in genetic testing and counselling: arguing on genetic exceptionalism again?

    Witt, Magdalena M; Witt, Michał P

    2016-11-01

    Medical confidentiality in clinical genetics poses an important question about its scope, which would be in line with professional ethics and simple honesty. It is already known that the maintenance of absolute anonymity, bearing in mind the current progress of genetic techniques, is virtually impossible. On the other hand, our insight into the information contained in the human genome is increasing. This mini-review presents the authors' standpoint regarding this complex and difficult issue.

  11. What was privacy?

    McCreary, Lew

    2008-10-01

    Why is that question in the past tense? Because individuals can no longer feel confident that the details of their lives--from identifying numbers to cultural preferences--will be treated with discretion rather than exploited. Even as Facebook users happily share the names of their favorite books, movies, songs, and brands, they often regard marketers' use of that information as an invasion of privacy. In this wide-ranging essay, McCreary, a senior editor at HBR, examines numerous facets of the privacy issue, from Google searches, public shaming on the internet, and cell phone etiquette to passenger screening devices, public surveillance cameras, and corporate chief privacy officers. He notes that IBM has been a leader on privacy; its policy forswearing the use of employees' genetic information in hiring and benefits decisions predated the federal Genetic Information Nondiscrimination Act by three years. Now IBM is involved in an open-source project known as Higgins to provide users with transportable, potentially anonymous online presences. Craigslist, whose CEO calls it "as close to 100% user driven as you can get," has taken an extremely conservative position on privacy--perhaps easier for a company with a declared lack of interest in maximizing revenue. But TJX and other corporate victims of security breaches have discovered that retaining consumers' transaction information can be both costly and risky. Companies that underestimate the importance of privacy to their customers or fail to protect it may eventually face harsh regulation, reputational damage, or both. The best thing they can do, says the author, is negotiate directly with those customers over where to draw the line.

  12. 75 FR 31440 - Privacy Act of 1974; Report of a New System of Records

    2010-06-03

    ... Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the E-Government Act of... Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the E-Government Act of... by State law, or its fiscal agent; (3) support litigation involving the Department; (4) combat fraud...

  13. 76 FR 47190 - Privacy Act of 1974; Report of Modified or Altered System

    2011-08-04

    ... Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the Health Insurance... 1974; the Federal Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986...). MMA amended the Social Security Act (the Act) by adding the Medicare Part D Program under Title XVIII...

  14. 75 FR 23274 - Privacy Act of 1974; Department of Homeland Security United States Immigration Customs and...

    2010-05-03

    ... 1974; Department of Homeland Security United States Immigration Customs and Enforcement--011 Immigration and Enforcement Operational Records System of Records AGENCY: Privacy Office, DHS. ACTION: Notice... the Department of Homeland Security U.S. Immigration and Customs Enforcement is updating an existing...

  15. 75 FR 9238 - Privacy Act of 1974; Department of Homeland Security United States Immigration Customs and...

    2010-03-01

    ... 1974; Department of Homeland Security United States Immigration Customs and Enforcement--011 Immigration and Enforcement Operational Records System of Records AGENCY: Privacy Office, DHS. ACTION: Notice... the Department of Homeland Security U.S. Immigration and Customs Enforcement is updating an existing...

  16. 76 FR 18145 - Privacy Act of 1974; New System of Records

    2011-04-01

    ... to include final determinations; billing information to include payment delinquencies; case notes... delinquencies; and case notes. Information collected includes the individual's name, address, telephone number... outside USDA, and so have some impact on privacy of individuals, they are either necessary for carrying...

  17. 77 FR 52043 - Privacy Act of 1974; Proposed Exempt New System of Records

    2012-08-28

    ... networks. According to DHS' Privacy Impact Assessment for Einstein 2 (available on the DHS Cybersecurity... maintained on portable/mobile storage devices only for valid, business purposes, with prior approval, and in... access (i.e., valid, business need- to-know). Records from this system are available to the System...

  18. 78 FR 3019 - Privacy Act of 1974; Science & Technology Directorate-001 Research, Development, Test, and...

    2013-01-15

    ...: Understand the motivations and behaviors of terrorists, individuals that engage in violent or criminal... behavior changes in a detectable manner when he or she is being deceitful, and then design a research... personal privacy. Disclosure to consumer reporting agencies: None. Policies and practices for storing...

  19. 76 FR 5603 - Privacy Act of 1974; Department of Homeland Security Office of Operations Coordination and...

    2011-02-01

    ... on social media sites. However, OPS is permitted to establish user names and passwords to form profiles and follow relevant government, media, and subject matter experts on social media sites in order... Available Social Media Monitoring and Situational Awareness Initiative System of Records AGENCY: Privacy...

  20. Privacy and Library Records

    Bowers, Stacey L.

    2006-01-01

    This paper summarizes the history of privacy as it relates to library records. It commences with a discussion of how the concept of privacy first originated through case law and follows the concept of privacy as it has affected library records through current day and the "USA PATRIOT Act."

  1. 76 FR 21373 - Privacy Act of 1974; Report of a New System of Records

    2011-04-15

    ... Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986; the Health Insurance... 1974; the Federal Information Security Management Act of 2002; the Computer Fraud and Abuse Act of 1986... established by State law; (3) support litigation involving the Agency; (4) combat fraud, waste, and abuse in...

  2. 78 FR 8536 - Privacy Act of 1974; Report of New System of Records

    2013-02-06

    ... to Section 3004 of the Patient Protection and Affordable Care Act of 2010 (ACA) (Pub. L. 111-148), amending the Social Security Act (the Act) (42 U.S.C. 1886(m)). DATES: Effective Dates: Effective 30 days..., Office of Enterprise Management, Centers for Medicare & Medicaid Services, 7500 Security Boulevard...

  3. 76 FR 27847 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Coast...

    2011-05-13

    ... issues please contact: Mary Ellen Callahan (703-235- 0780), Chief Privacy Officer, Privacy Office, U.S...;Prices of new books are listed in the first FEDERAL REGISTER issue of each #0;week. #0; #0; #0; #0;#0...

  4. 21 CFR 21.70 - Disclosure and intra-agency use of records in Privacy Act Record Systems; no accounting required.

    2010-04-01

    ... requirements of this part under § 21.30. (b) No accounting is required for any disclosure or use under... 21 Food and Drugs 1 2010-04-01 2010-04-01 false Disclosure and intra-agency use of records in Privacy Act Record Systems; no accounting required. 21.70 Section 21.70 Food and Drugs FOOD AND DRUG...

  5. 76 FR 65196 - Privacy Act of 1974; Report of a New Routine Use for Selected CMS System of Records

    2011-10-20

    ... and privacy requirements included. A Data Use Agreement (DUA) (CMS Form 0235) must be completed by the...: CMS Privacy Officer, Division of Information Security & Privacy Management, Enterprise Architecture... requirements that she may specify for QEs to meet, such as ensuring the security of data. The Medicare claims...

  6. 78 FR 40542 - Privacy Act of 1974, As Amended: Proposed New Routine Use

    2013-07-05

    ... (CSR), Medicaid, the Children's Health Insurance Program (CHIP), and the Basic Health Program (BHP). As... annual Social Security benefit information under title II of the Social Security Act (Act). Section 1411... to a Federal or State agency that administers a Federally-funded benefit other than pursuant to the...

  7. 78 FR 45949 - Privacy Act of 1974, as Amended; Notice of a New System of Records

    2013-07-30

    ... enrollment data, work history, educational history, affiliations, and other related data, dates of birth... information, station and career history, firearms qualifications, medical history, background investigation... Security Act of 2002 (Pub. L. 107-296); USA PATRIOT ACT of 2001 (Pub. L. 107-56); USA PATRIOT Improvement...

  8. 76 FR 9034 - Privacy Act of 1974; Department of Homeland Security United States Citizenship and Immigration...

    2011-02-16

    ... Immigrant Responsibility Act of 1996 (IIRIRA), Public Law (Pub. L.) 104-208, September 30, 1996. The E... Immigration Reform and Immigrant Responsibility Act of 1996 (IIRIRA), Public Law 104-208, dated September 30... system: Storage: Records in this system are stored electronically, on magnetic disc, tape, digital media...

  9. 76 FR 63817 - Disclosure of Information; Privacy Act Regulations; Notice and Amendments

    2011-10-14

    ..., paper, reports of examination, work papers, and correspondence relating to such reports, to the.... Regulatory Flexibility Act The Regulatory Flexibility Act, 5 U.S.C. 601, et seq., (RFA) applies only to rules... and comment requirements of the APA, the requirement to prepare a final regulatory flexibility...

  10. 77 FR 69491 - Privacy Act of 1974: System of Records; Secure Flight Records

    2012-11-19

    ... page at http://www.regulations.gov ; (2) Accessing the Government Printing Office's Web page at http...) of the Intelligence Reform and Terrorism Prevention Act of 2004 (IRTPA),\\4\\ Congress directed TSA and... Intelligence Agency, the Secretary of the Treasury, and the Secretary of Defense. The Attorney General, acting...

  11. 77 FR 67203 - Privacy Act of 1974; Republication of Systems of Records Notices

    2012-11-08

    ... filed a formal complaint of sex discrimination under Title IX of the Education Amendments Act..., audio and video tapes, and electronic media. RETRIEVABILITY: Records are accessed by unique assigned...

  12. 76 FR 39978 - Departmental Offices; Privacy Act of 1974, as Amended

    2011-07-07

    ... financial law, and, among other powers, will have authority to protect consumers from unfair, deceptive, and abusive practices when obtaining consumer financial products or services. The Act grants Treasury certain...

  13. 75 FR 82427 - Departmental Offices; Privacy Act of 1974, as Amended

    2010-12-30

    ... laws, and, among other powers, will have authority to protect consumers from unfair, deceptive, and abusive practices when obtaining consumer financial products or services. The Act grants Treasury certain...

  14. 76 FR 1507 - Departmental Offices; Privacy Act of 1974, as Amended

    2011-01-10

    ... laws, and, among other powers, will have authority to protect consumers from unfair, deceptive, and abusive practices when obtaining consumer financial products or services. The Act grants Treasury certain...

  15. Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions.

    Kass, Nancy E; Hull, Sara Chandros; Natowicz, Marvin R; Faden, Ruth R; Plantinga, Laura; Gostin, Lawrence O; Slutsman, Julia

    2004-07-30

    There has been heightened legislative attention to medical privacy and to protections from genetic discrimination, without large-scale studies to document privacy concerns or analysis of whether experiences differ by whether the condition is genetic (defined here as a single-gene disorder) or non-genetic. To determine whether experiences regarding privacy, disclosure, and consequences of disclosure differ by whether one's medical condition is genetic, we conducted a descriptive study with one-time, structured quantitative and qualitative interviews. We interviewed approximately 100 adults or parents of children with each of the following medical conditions: sickle cell disease, cystic fibrosis, diabetes, and HIV, and 200 adults with or at risk for breast cancer or colon cancer. The percentages of the total 597 respondents experiencing positive or negative consequences of disclosure and the degree to which experiences differed by whether the condition was genetic were the outcomes of interest. Seventy-four percent were glad and 13% regretted others knew about their condition; these findings did not differ significantly by genetic vs. non-genetic condition. Reports of job and health insurance discrimination were not uncommon for the overall study population (19 and 27%, respectively) but were more likely among those with genetic conditions (30 and 37%, respectively). Legislation and other policy-making should target the needs of persons with all conditions and not focus exclusively on genetic discrimination, given that experiences and concerns generally do not differ based on the genetic etiology of the condition. Copyright 2004 Wiley-Liss, Inc.

  16. SecureMA: protecting participant privacy in genetic association meta-analysis

    Xie, Wei; Kantarcioglu, Murat; Bush, William S.; Crawford, Dana; Denny, Joshua C.; Heatherly, Raymond; Malin, Bradley A.

    2014-01-01

    Motivation: Sharing genomic data is crucial to support scientific investigation such as genome-wide association studies. However, recent investigations suggest the privacy of the individual participants in these studies can be compromised, leading to serious concerns and consequences, such as overly restricted access to data.

  17. 76 FR 71108 - Privacy Act of 1974; System of Records Notice

    2011-11-16

    ... for accessing the docket. FOR FURTHER INFORMATION CONTACT: For general questions, please contact..., age (40 or over), disability, sexual orientation, parental status, and/or genetic information; and... ``disadvantaged business enterprise'' (DBE) certification. Authority for maintenance of the system: 42 U.S.C...

  18. 32 CFR 635.3 - Special requirements of the Privacy Act of 1974.

    2010-07-01

    ... information can be used to complete military police reports and records. The following procedures may be used... for new systems of military police records, changes to existing systems, and continuation systems, not... military personnel are required to produce their Common Access Card, DD Form 2 (Act), DD Form 2 (Res), or...

  19. 75 FR 45674 - Privacy Act of 1974, as Amended; System of Records Notices

    2010-08-03

    ... Freedom of Information Act (FOIA) and their compliance with FOIA by agencies; offer mediation services to... the proposed ``routine uses'' of the system of records. The notice also includes the business address..., research, and other administrative forms used in the process. These files may also contain information or...

  20. 6 CFR Appendix C to Part 5 - DHS Systems of Records Exempt From the Privacy Act

    2010-01-01

    ... in section 2(9) of the Homeland Security Act of 2002) and “critical infrastructure” (as defined in 42... infrastructure and the availability of a viable national security and emergency preparedness communications infrastructure; (4) activities detrimental to the security of transportation and transportation systems; (5...

  1. 78 FR 22604 - Privacy Act of 1974, as Amended; System of Records

    2013-04-16

    ... Compensation Act for medical expenses, lost wages, leave buy- back, and scheduled awards continuation of pay or... clearance requests; Case files; Bank shortage letters; Contractor files; Currency discrepancy reports; Intelligence files; Stamp discrepancy reports; Case records; Correspondence from the public concerning security...

  2. 44 CFR 6.3 - Collection and use of information (Privacy Act statements).

    2010-10-01

    ... in compliance with the Act and these regulations. (c) Solicitation of Social Security numbers. Before... such individual refuses to disclose his/her social security account number, the employee of FEMA shall... identity of an individual, and the social security number will become a part of a system of records in...

  3. 77 FR 20104 - Privacy Act of 1974, as Amended; System of Records

    2012-04-03

    ... Locator File OTS .012--Payroll/Personnel Systems & Payroll Records OTS .013--Mass Communication System OTS... examination or investigation; (3) The news media in accordance with guidelines contained in 28 CFR 50.2; (4... Information Act Officer, Communications Division, Mailstop 2-3, Office of the Comptroller of the Currency, 250...

  4. 77 FR 25152 - Privacy Act of 1974; System of Records-National Longitudinal Transitions Study-2012

    2012-04-27

    ... attended; and scores on reading and mathematics achievement tests. The system of records also includes... congressionally mandated national assessment of Individuals with Disability Education Act (IDEA). It will be... characteristics? Compare Current Transition-Age Students With an IEP to Their Peers in Prior Cohorts How do the...

  5. 75 FR 28264 - Privacy Act of 1974; Report of Systems of Record Notices

    2010-05-20

    ....S.C. 290bb-31 et seq.). Protection and Advocacy for Individuals with Mental Illness Act of 1986 as... mental, alcohol, and/or drug abuse related illness. CATEGORIES OF RECORDS IN THE SYSTEM: The system... prevention, and the promotion of good physical and mental health. ROUTINE USES OF RECORDS MAINTAINED IN THE...

  6. 77 FR 5865 - Privacy Act; System of Records: State-59, Refugee Case Records

    2012-02-06

    ... transferred by the Department of Homeland Security U.S. Citizenship and Immigration Services (USCIS... Presidential Documents, Pg. 2880 (Refugee Resettlement Grants Program); Refugee Crisis in Iraq Act of 2007... other immigration benefit under U.S. law. (2) To the International Organization for Migration (IOM) to...

  7. 78 FR 20087 - Privacy Act of 1974; Proposed New System of Records

    2013-04-03

    ... information (for market agencies selling on commission), bond information, and information registered entities... Archives and Records Administration; contractors, grantees, experts, consultants, or volunteers; and/or... individuals that are regulated under the P&S Act, which include stockyard owners, market agencies, dealers...

  8. 76 FR 39980 - Departmental Offices; Privacy Act of 1974, as Amended

    2011-07-07

    ... and electronic media. Retrievability: By taxpayer name and Taxpayer Identification Number, social...) is conducting a pilot project funded by the Partnership Fund for Program Integrity Innovation (Partnership Fund). The Partnership Fund was established by the Consolidated Appropriations Act, 2010 (Pub. L...

  9. 76 FR 58321 - Privacy Act of 1974; Publication of Notice of Systems of Records

    2011-09-20

    ... concerning aliens. Department of Health and Human Services--For locations of parents pursuant to the Child... sources of information include the Report of Separation From Active Duty (DD Form 214), referral documents... parents pursuant to the Child Support Enforcement Act. State and Local Governments--To provide data that...

  10. 76 FR 39245 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/U.S. Coast...

    2011-07-06

    ... Marilyn Scott-Perez (202-475-3515), Privacy Officer, U.S. Coast Guard. For privacy issues please contact...;Prices of new books are listed in the first FEDERAL REGISTER issue of each #0;week. #0; #0; #0; #0;#0...

  11. When public health and genetic privacy collide: positive and normative theories explaining how ACA's expansion of corporate wellness programs conflicts with GINA's privacy rules.

    Bard, Jennifer S

    2011-01-01

    The Patient Protection and Affordable Care Act of 2010 (ACA) contains many provisions intended to increase access to and lower the cost of health care by adopting public health measures. One of these promotes the use of at-work wellness programs by both providing employers with grants to develop these programs and also increasing their ability to tie the price employees pay for health insurance for participating in these programs and meeting specific health goals. Yet despite ACA's specific alteration of three different statues which had in the past shielded employees from having to contribute to the cost of their health insurance based on their achieving employer-designated health markers, it chose to leave alone recently enacted rules implementing the Genetic Non-Discrimination Act (GINA), which prohibits employers from asking employees about their family health history in any context, including assessing their risk for setting wellness targets. This article reviews how both the changes made by ACA and the restrictions recently put place by GINA will affect the way employers are likely to structure Wellness Programs. It also considers how these changes reflect the competing social goals of both ACA, which seeks to expand access to the population by lowering costs, and GINA, which seeks to protect individuals from discrimination. It does so by analyzing both positive theories about how these new laws will function and normative theories explaining the likelihood of future friction between the interests of the population of the United States as a whole who are in need of increased and affordable access to health care, and of the individuals living in this country who risk discrimination, as science and medicine continue to make advances in linking genetic make-up to risk of future illness. © 2011 American Society of Law, Medicine & Ethics, Inc.

  12. 48 CFR 39.105 - Privacy.

    2010-10-01

    ... 48 Federal Acquisition Regulations System 1 2010-10-01 2010-10-01 false Privacy. 39.105 Section 39... CONTRACTING ACQUISITION OF INFORMATION TECHNOLOGY General 39.105 Privacy. Agencies shall ensure that contracts for information technology address protection of privacy in accordance with the Privacy Act (5 U.S.C...

  13. Privacy Policy

    ... Home → NLM Privacy Policy URL of this page: https://medlineplus.gov/privacy.html NLM Privacy Policy To ... out of cookies in the most popular browsers, http://www.usa.gov/optout_instructions.shtml. Please note ...

  14. The conservation genetics juggling act: Integrating genetics and ecology, science and policy

    Haig, Susan M.; Miller, Mark P.; Bellinger, Renee; Draheim, Hope M.; Mercer, Dacey; Mullins, Tom

    2016-01-01

    The field of conservation genetics, when properly implemented, is a constant juggling act integrating molecular genetics, ecology, and demography with applied aspects concerning managing declining species or implementing conservation laws and policies. This young field has grown substantially since the 1980’s following development of the polymerase chain reaction and now into the genomics era. Our lab has “grown up” with the field, having worked on these issues for over three decades. Our multi-disciplinary approach entails understanding the behavior and ecology of species as well as the underlying processes that contribute to genetic viability. Taking this holistic approach provides a comprehensive understanding of factors that influence species persistence and evolutionary potential while considering annual challenges that occur throughout their life cycle. As a federal lab, we are often addressing the needs of the U.S. Fish and Wildlife Service in their efforts to list, de-list or recover species. Nevertheless, there remains an overall communication gap between research geneticists and biologists who are charged with implementing their results. Therefore, we outline the need for a National Center for Small Population Biology to ameliorate this problem and provide organizations charged with making status decisions firmer ground from which to make their critical decisions. 

  15. Sharing extended summary data from contemporary genetics studies is unlikely to threaten subject privacy.

    Silviu-Alin Bacanu

    Full Text Available Starting from a forensic problem, Homer et al. showed that it was possible to detect if an individual contributes only 0.5% of the DNA in a pool. The finding was extended to prove the possibility of detecting whether a subject participated in a small homogeneous GWAS. We denote this as the detection of a subject belonging to a certain cohort (SBCC. Subsequently, Visscher and Hill showed that the power to detect SBCC signal for an ethnically homogeneous cohort depends roughly on the ratio of the number of independent markers and total sample size. However, it is not clear if the same holds for more ethnically diverse cohorts. Later, Masca et al. propose running as SBCC test a regression of departure from assumed population frequency of i subject genotype on ii cohort of interest frequency. They use simulations to show that the approach has better SBCC detection power than the original Homer method but is impeded by population stratification.To investigate the possibility of SBCC detection in multi-ethnic cohorts, we generalize the Masca et al. approach by theoretically deriving the correlation between a subject genotype and the cohort reference allele frequencies (RAFs for stratified cohorts. Based on the derived formula, we theoretically show that, due to background stratification noise, SBCC detection is unlikely even for mildly stratified cohorts of size greater than around a thousand subjects. Thus, for the vast majority of contemporary cohorts, the fear of compromising privacy via SBCC detection is unfounded.

  16. Sharing extended summary data from contemporary genetics studies is unlikely to threaten subject privacy.

    Bacanu, Silviu-Alin

    2017-01-01

    Starting from a forensic problem, Homer et al. showed that it was possible to detect if an individual contributes only 0.5% of the DNA in a pool. The finding was extended to prove the possibility of detecting whether a subject participated in a small homogeneous GWAS. We denote this as the detection of a subject belonging to a certain cohort (SBCC). Subsequently, Visscher and Hill showed that the power to detect SBCC signal for an ethnically homogeneous cohort depends roughly on the ratio of the number of independent markers and total sample size. However, it is not clear if the same holds for more ethnically diverse cohorts. Later, Masca et al. propose running as SBCC test a regression of departure from assumed population frequency of i) subject genotype on ii) cohort of interest frequency. They use simulations to show that the approach has better SBCC detection power than the original Homer method but is impeded by population stratification. To investigate the possibility of SBCC detection in multi-ethnic cohorts, we generalize the Masca et al. approach by theoretically deriving the correlation between a subject genotype and the cohort reference allele frequencies (RAFs) for stratified cohorts. Based on the derived formula, we theoretically show that, due to background stratification noise, SBCC detection is unlikely even for mildly stratified cohorts of size greater than around a thousand subjects. Thus, for the vast majority of contemporary cohorts, the fear of compromising privacy via SBCC detection is unfounded.

  17. 76 FR 66937 - Privacy Act of 1974; Department of Homeland Security/United States Secret Service-003 Non...

    2011-10-28

    ... 1974; Department of Homeland Security/United States Secret Service--003 Non-Criminal Investigation... Security/United States Secret Service--003 Non-Criminal Investigation Information System.'' As a result of... Secret Service, 245 Murray Lane SW., Building T-5, Washington, DC 20223. For privacy issues please...

  18. 75 FR 404 - Privacy Act of 1974; Department of Homeland Security U.S. Immigration and Customs Enforcement-009...

    2010-01-05

    ... Officer, U.S. Immigration and Customs Enforcement, Washington, DC 20536. For privacy issues please contact...; individuals who employ others in their individual capacity whether related to a business activity or not; and... moral, educational, or professional qualifications of an individual who is licensed or who is seeking to...

  19. 75 FR 82132 - Privacy Act of 1974; System of Records; Statement of General Routine Uses; Notice of...

    2010-12-29

    ...: Send written comments on the two new general routine uses to Habib Azarsina, Departmental Privacy... Avenue, SE., Washington, DC 20590 or habib[email protected] . FOR FURTHER INFORMATION CONTACT: Habib... Transportation, 1200 New Jersey Avenue, SE., Washington, DC 20590 or habib[email protected] or (202) 366-1965...

  20. 76 FR 12397 - Privacy Act of 1974, as Amended; Computer Matching Program (SSA/Bureau of the Public Debt (BPD...

    2011-03-07

    ...; Computer Matching Program (SSA/ Bureau of the Public Debt (BPD))--Match Number 1038 AGENCY: Social Security... as shown above. SUPPLEMENTARY INFORMATION: A. General The Computer Matching and Privacy Protection... containing SSNs extracted from the Supplemental Security Record database. Exchanges for this computer...

  1. Access to Information and Privacy | IDRC - International ...

    As a Crown corporation, IDRC is subject to Canada's laws on access to information and privacy protection. The following resources will help you learn more about IDRC and the access to information and privacy acts, including instructions for submitting an access to information or privacy act (ATIP) request. IDRC and ATIP ...

  2. Mandatory Submission to The Identification of Genetic Profile for Criminal Purpose: A Broach Pursuant to the Right to Privacy and Dignity of the Human Person

    George Maia Santos

    2015-12-01

    Full Text Available This article aims to demonstrate that the mandatory submission convicted of a crime committed, intentionally, with serious violence against person or heinous crime, to identify the genetic profile by DNA extraction - deoxyribonucleic acid, although by proper and painless technique is offensive to fundamental rights. For this purpose, it is part of the overall concept of the right to privacy, which is configured as a negative right or protection against unlawful state mismanagement, in order to protect a need or a basic right to the free individual self-determination. Then genetic intimacy is defined as an asset able to reveal the physical, psychological, behavioral and disease features, which, if disclosed or accessed without the consent of the accused, may generate stigmatization and discrimination of the subject involved, violating in this way, therefore, the right to privacy. In conclusion, we move towards emphasizing besides the right to privacy, compulsory provision of biological material to identify the genetic profile is offensive to fundamental rights to physical liberty or outpatient; physical integrity; to the freedom of religion or conscience; non-discrimination; the silence and non-production of evidences against himself, and in last instance, the biggest vector of all fundamental rights: the dignity of the human person.

  3. Privacy Impact Assessment (PIA) Repository

    Department of Veterans Affairs — This repository contains Privacy Impact Assessments (PIA) that have been vetted/approved. Section 208 of the Electronic Government Act of 2002 (E-Gov Act) requires...

  4. Genetic data and the listing of species under the U.S. Endangered Species Act.

    Fallon, Sylvia M

    2007-10-01

    Genetic information is becoming an influential factor in determining whether species, subspecies, and distinct population segments qualify for protection under the U.S. Endangered Species Act. Nevertheless, there are currently no standards or guidelines that define how genetic information should be used by the federal agencies that administer the act. I examined listing decisions made over a 10-year period (February 1996-February 2006) that relied on genetic information. There was wide variation in the genetic data used to inform listing decisions in terms of which genomes (mitochondrial vs. nuclear) were sampled and the number of markers (or genetic techniques) and loci evaluated. In general, whether the federal agencies identified genetic distinctions between putative taxonomic units or populations depended on the type and amount of genetic data. Studies that relied on multiple genetic markers were more likely to detect distinctions, and those organisms were more likely to receive protection than studies that relied on a single genetic marker. Although the results may, in part, reflect the corresponding availability of genetic techniques over the given time frame, the variable use of genetic information for listing decisions has the potential to misguide conservation actions. Future management policy would benefit from guidelines for the critical evaluation of genetic information to list or delist organisms under the Endangered Species Act.

  5. Employment discrimination implications of genetic screening in the workplace under Title VII and the Rehabilitation Act.

    Canter, E F

    1984-01-01

    The emergence of genetic screening techniques will permit employers to exclude hypersusceptible individuals from potentially hazardous workplace environments. The denial of employment opportunities to these individuals, however, may constitute discrimination. This Note analyzes genetic screening cases with respect to currently available remedies contained in Title VII of the Civil Rights Act of 1964 and the Rehabilitation Act of 1973. The Note concludes that Title VII claims may succeed but only in limited circumstances and that Rehabilitation Act claims will encounter numerous obstacles to relief. Additionally, the Note discusses some of the implications of the use of genetic screening in the workplace.

  6. 39 CFR 262.5 - Systems (Privacy).

    2010-07-01

    ... 39 Postal Service 1 2010-07-01 2010-07-01 false Systems (Privacy). 262.5 Section 262.5 Postal... DEFINITIONS § 262.5 Systems (Privacy). (a) Privacy Act system of records. A Postal Service system containing... individual. (c) Computer matching program. A “matching program,” as defined in the Privacy Act, 5 U.S.C. 552a...

  7. 78 FR 57402 - Privacy Act of 1974; Department of Homeland Security/U.S. Customs and Border Protection-019 Air...

    2013-09-18

    ..., 1225, and 1324; and the Immigration Reform and Immigrant Responsibility Act of 1996, Public Law 104-208..., 1225, and 1324; the Illegal Immigration Reform and Immigrant Responsibility Act of 1996, Public Law 104... [[Page 57405

  8. 78 FR 32257 - Privacy Act of 1974; Report of a New Routine Use for Selected CMS Systems of Records

    2013-05-29

    ... systems of records to assist in preventing and detecting fraud, waste and abuse. The new routine use will... for the purpose of preventing and detecting fraud, waste and abuse, pursuant to section 1128C(a)(2) of the Social Security Act (``the Act''). At section 1128C(c) of the Act, a health plan is defined as a...

  9. Privacy Protection: Mandating New Arrangements to Implement and Assess Federal Privacy Policy and Practice

    Relyea, Harold C

    2004-01-01

    When Congress enacted the Privacy Act of 1974, it established a temporary national study commission to conduct a comprehensive assessment of privacy policy and practice in both the public and private...

  10. Privacy policies

    Dekker, M.A.C.; Etalle, S.; Hartog, den J.I.; Petkovic, M.; Jonker, W.

    2007-01-01

    Privacy is a prime concern in today’s information society. To protect the privacy of individuals, enterprises must follow certain privacy practices while collecting or processing personal data. In this chapter we look at the setting where an enterprise collects private data on its website, processes

  11. Privacy Policies

    Dekker, M.A.C.; Etalle, Sandro; den Hartog, Jeremy; Petkovic, M.; Jonker, W.; Jonker, Willem

    2007-01-01

    Privacy is a prime concern in today's information society. To protect the privacy of individuals, enterprises must follow certain privacy practices, while collecting or processing personal data. In this chapter we look at the setting where an enterprise collects private data on its website,

  12. 78 FR 29748 - Privacy Act of 1974; Computer Matching Program Between the Department of Education and the...

    2013-05-21

    ... the Higher Education Act of 1965, as amended (HEA)) to individuals convicted of drug trafficking or... drug trafficking or possession of a controlled substance who have been denied Federal benefits by..., which was originally enacted as section 5301 of the Anti-Drug Abuse Act of 1988, and which was amended...

  13. 76 FR 56781 - Privacy Act of 1974; Notice of a Computer Matching Program Between the Department of Housing and...

    2011-09-14

    ... require additional verification to identify inappropriate or inaccurate rental assistance, and may provide... Affordable Housing Act, the Native American Housing Assistance and Self-Determination Act of 1996, and the... matching activities. The computer matching program will also provide for the verification of social...

  14. 77 FR 61620 - Privacy Act of 1974; Home Equity Reverse Mortgage Information Technology (HERMIT)-Notice of...

    2012-10-10

    ... or default. Authority for maintenance of the system: Section 255 of the National Housing Act of 1934... 24x7 security guards including electronic access and surveillance capabilities (CCTV and recorders...

  15. 76 FR 58525 - Privacy Act of 1974; Department of Homeland Security, U.S. Citizenship and Immigration Services...

    2011-09-21

    ... the Illegal Immigration Reform and Immigrant Responsibility Act of 1996 (IIRIRA), Public Law 104-208... locked drawer behind a locked door. The records are stored on magnetic disc, tape, digital media, and CD...

  16. 78 FR 43893 - Privacy Act of 1974; Department of Homeland Security U.S. Citizenship and Immigration Services...

    2013-07-22

    ... Reform and Immigrant Responsibility Act of 1996 (IIRIRA), Public Law 104-208 (1996). Purpose(s): This... magnetic disc, tape, digital media, and CD-ROM. Retrievability: Records may be retrieved by name...

  17. 75 FR 79947 - Privacy Act of 1974: Implementation of Exemptions; Department of Homeland Security/ALL-031...

    2010-12-21

    ... contains regulatory documents #0;having general applicability and legal effect, most of which are keyed #0... particularly to any potential plans to collect cybersecurity information from private entities regarding cyber... security threats and would not include the Bank Secrecy Act (BSA) related SARs filed with FinCEN. The ISE...

  18. 78 FR 49524 - Privacy Act of 1974; CMS Computer Match No. 2013-08; HHS Computer Match No. 1309

    2013-08-14

    ... individuals applying for and receiving Federal benefits. Section 7201 of the Omnibus Budget Reconciliation Act... findings before reducing, suspending, terminating, or denying an individual's benefits or payments. This...; a Cost Sharing Reduction (CSR) under Section 1402 of the ACA; Medicaid and the Children's Health...

  19. 75 FR 38824 - Privacy Act of 1974; Department of Homeland Security/ALL-029 Civil Rights and Civil Liberties...

    2010-07-06

    ... civil rights, civil liberties, such as profiling on the basis of race, ethnicity, or religion, by.../ religion (CRCL does not solicit this information, it is tracked if individuals provide it); Allegation... Officer and Chief Freedom of Information Act Officer, Department of Homeland Security, 245 Murray Drive...

  20. 77 FR 42796 - Privacy Act of 1974; System of Records; Statement of General Routine Uses; Notice of...

    2012-07-20

    ... activities against the United States, as contemplated by the Intelligence Reform and Terrorism Prevention Act... functions and activities that gave rise to the system of records. This general use does not contemplate uses that are in addition to those already identified in existing DOT SORNs, instead, it clarifies that DOT...