Russo, Michael T.; Sunal, Cynthia Szymanski; Sunal, Dennis W.
All citizens will make bioethics decisions as a result of today's biotechnology revolution. The decisions made require citizens to find possible acceptable solutions to dilemmas that have become public issues. In this activity, students practice making decisions in ethical dilemmas after evaluating the influences of their own ethical beliefs and…
Ortiz Llueca, Eduardo
This paper shows the insufficiency of a bioethics which would intend to derive its proposals from Utilitarianism, identifying some inadequacies in the ethics of John Stuart Mill, e.g., the difficulties of the utilitarian commitment with instrumentalism, the deficiency of an utilitarian moral psychology and the naiveté of the forensic dimension of the utilitarian submission. PMID:23745819
Chattopadhyay, Subrata; De Vries, Raymond
Modern bioethics was born in the West and thus reflects, not surprisingly, the traditions of Western moral philosophy and political and social theory. When the work of bioethics was confined to the West, this background of socio-political theory and moral tradition posed few problems, but as bioethics has moved into other cultures - inside and outside of the Western world - it has become an agent of moral imperialism. We describe the moral imperialism of bioethics, discuss its dangers, and su...
Making difficult healthcare decisions is often helped by consultation with a bioethics committee. This article reviews the main bioethics principles, when it is appropriate and how to call a bioethics consult, ethical concerns, and members of the consult team. Bioethics resources are included.
Pauls, Merril; Hutchinson, Roger C.
“PROTESTANT” IS A TERM APPLIED TO MANY DIFFERENT Christian denominations, with a wide range of beliefs, who trace their common origin to the Reformation of the 16th century. Protestant ideas have profoundly influenced modern bioethics, and most Protestants would see mainstream bioethics as compatible with their personal beliefs. This makes it difficult to define a uniquely Protestant approach to bioethics. In this article we provide an overview of common Protestant beliefs and highlight conce...
The state of bioethics in Ukraine, as well as in the world has been analyzed in this article. The author offers a model of integrative pedagogical bioethics and substantiates the necessity of the organization of the bioethics education and confirms the topicality of adoption of the new specialty – educatorbioethicist. The author defines the structure and method of the educational process and the new curriculum «Integrative Bioethics» for preparing educator-bioethicist specialist.
Rendtorff, Jacob Dahl
principles of autonomy, dignity, integrity and vulnerability are proposed as the most important ethical principles for respect for the human person in biomedical and biotechnological development. This approach to bioethics and biolaw is presented here in a short updated version that integrates the earlier......This paper presents an update of the research on European bioethics undertaken by the author together with Professor Peter Kemp since the 1990s, on Basic ethical principles in European bioethics and biolaw. In this European approach to basic ethical principles in bioethics and biolaw, the...... research in a presentation of the present understanding of the basic ethical principles in bioethics and biolaw....
In this article, postmodernism is presented as posing a challenge to the role of philosophy within bioethics. It is argued that any attempt to develop a postmodern bioethics must respond to arguments concerning power, relational responsibility, and violence. Contemporary work on the topic of relational autonomy and naturalized bioethics is interpreted as engaging with the postmodern challenge. This article proposes that the role of philosophy in bioethics should be not to provide moral guidance but rather to adopt a critical approach to the possible consequences of privileging any position or understanding over others. PMID:25719353
This article deals with the question as to what makes bioethics a critical discipline. It considers different senses of criticism and evaluates their strengths and weaknesses. A primary method in bioethics as a philosophical discipline is critical thinking, which implies critical evaluation of concepts, positions, and arguments. It is argued that the type of analytical criticism that restricts its critical role to critical thinking of this type often suffers from other intellectual flaws. Three examples are taken to demonstrate this: premature criticism, uncritical self-understanding of theoretical assumptions, and narrow framing of bioethical issues. Such flaws can lead both to unfair treatment of authors and to uncritical discussion of topics. In this context, the article makes use of Häyry's analysis of different rationalities in bioethical approaches and argues for the need to recognize the importance of communicative rationality for critical bioethics. A radically different critical approach in bioethics, rooted in social theory, focuses on analyses of power relations neglected in mainstream critical thinking. It is argued that, although this kind of criticism provides an important alternative in bioethics, it suffers from other shortcomings that are rooted in a lack of normative dimensions. In order to complement these approaches and counter their shortcomings, there is a need for a bioethics enlightened by critical hermeneutics. Such hermeneutic bioethics is aware of its own assumptions, places the issues in a wide context, and reflects critically on the power relations that stand in the way of understanding them. Moreover, such an approach is dialogical, which provides both a critical exercise of speech and a normative dimension implied in the free exchange of reasons and arguments. This discussion is framed by Hedgecoe's argument that critical bioethics needs four elements: to be empirically rooted, theory challenging, reflexive, and politely skeptical
Opel, Douglas J; Olson, Maren E
Ethics education based upon everyday ethical dilemmas can help trainees place themselves within the situation and encourage them to reflect on their role and responsibility in reaching its resolution.• Three elements can help augment the bioethics teaching experience: (a) identifying the ethical dilemma, (b) employing methods of ethical analysis, and(c) having knowledge of additional bioethics resources.An increasing number of bioethics resources are available to clinicians, including clinical ethics consultation (CEC) and print and Web-based resources. PMID:22855929
Pauls, Merril; Hutchinson, Roger C
"Protestant" is a term applied to many different Christian denominations, with a wide range of beliefs, who trace their common origin to the Reformation of the 16th century. Protestant ideas have profoundly influenced modern bioethics, and most Protestants would see mainstream bioethics as compatible with their personal beliefs. This makes it difficult to define a uniquely Protestant approach to bioethics. In this article we provide an overview of common Protestant beliefs and highlight concepts that have emerged from Protestant denominations that are particularly relevant to bioethics. These include the sovereignty of God, the value of autonomy and the idea of medicine as a calling as well as a profession. Most Canadian physicians will find that they share certain values and beliefs with the majority of their Protestant patients. Physicians should be particularly sensitive to their Protestant patients' beliefs when dealing with end-of-life issues, concerns about consent and refusal of care, and beginning-of-life issues such as abortion, genetic testing and the use of assisted reproductive technologies. Physicians should also recognize that members of certain Protestant groups and denominations may have unique wishes concerning treatment. Understanding how to elicit these wishes and respond appropriately will allow physicians to enhance patient care and minimize conflict. PMID:11868645
Hoskins, Betty B.; Shannon, Thomas A.
Discusses the importance of developing bioethics programs for undergraduate students. Two aspects are considered: (1) current areas of concern and sources of bibliographic information; and (2) problems encountered in undergraduate projects. A list of references is provided. (HM)
Explores a hermeneutical perspective of modern medicine. The author suggests that good medical decision making requires interpretation, and bioethics will be well served by incorporating this interpretive element. (LZ)
Luka Tomašević, PhD, ScD
Full Text Available Every creature is good and subject to the principle of solidarity that everyone has been blessed and gifted with life by God. Therefore, we cannot have one without the other, and no man exists without an animal.Over the last several decades, our world has been confronted with many ethical problems and ethics is being more and more sought after in spheres of human conduct and profession. Man has acquired enormous power over the world and over life itself, but he has also, willingly or not, become more responsible for 'the threats' against his very life, as well as against the life of other creatures. Within this context a discussion on biocentrism has ensued, which should replace Christian biblical anthropocentrism. At any rate, man has encountered a challenge to expand his moral sphere because nature needs his protection, whereas he no longer needs to protect himself from nature. It is exactly this point that poses a paradox: only man can give protection to nature and the whole of life within it. Having crossed all limits, he has to establish them yet again. Once again, he has to search for these limits within himself, which is exactly what original Christianity demands: to act according to one's pure belief (St. Peter. The aim of this work lies in trying to answer the questions of how to preserve life and healthy environment, how to achieve harmony between the development and modern ideas and trends as well as to establish the right relationship between man and his environment. The author primarily points out to the rising of pastoral medicine in Catholic theology, whose emergence was caused by the development of medical science and which gradually transforms into today's bioethics that is acknowledged by the theology. He then proceeds to discuss the disharmony between man and nature, about the rising of the 'animal rights' movement, and finally, about the beginnings of scientific and global bioethics which has developed in USA and which has
Kieffer, George H.
Examined is the issue concerning teaching bioethics. Differing points of view are discussed. The author concludes that moral and ethical reasoning should be incorporated into the public school curriculum, using morally laden issues that have grown out of advances in biological knowledge and biomedical technology. (CS)
Nielsen, Morten Ebbe Juul; Andersen, Martin Marchman
-order examinations, what might be called a political philosophical approach. The authors argue that although first-order examination plays an important role in teasing out different moral points of view, in contemporary democratic societies, few, if any, bioethical questions can be resolved satisfactorily by means...
Jonsen, Albert R.
Urban bioethics can draw on elements of city life and view them under the moral perspective of social responsibility of creating the personal, cultural, social, and economic environment in which persons can be responsible personally as they interpret actions on themselves and creatively respond to them in an ongoing community of agents.
The purpose of this presentation is to discuss some concepts related to bioethics and ageing, specifically with regard to health and disease. Considerations on medical practice are made by referring to Kant and Heidelberg school of thought. Perception of time in the elderly and issues such as euthanasia and death are mentioned.
Full Text Available The article explores two questions: what is feminist bioethics, and how different it is from standard bioethics. Development of feminist bioethics, it is argued, began as a response to standard bioethics, challenging its background values, and philosophical perspectives. The most important contribution of feminist bioethics has been its re-examination of the basic conceptual underpinnings of mainstream bioethics, including the concepts of “universality”, “autonomy”, and “trust”. Particularly important for feminists has been the concept of autonomy. They challenge the old liberal notion of autonomy that treats individuals as separate social units and argue that autonomy is established through relations. Relational autonomy assumes that identities and values are developed through relationships with others and that the choices one makes are shaped by specific social and historical contexts. Neither relational autonomy, nor feminist bioethics, however, represents a single, unified perspective. There are, actually, as many feminist bioethics as there are feminisms-liberal, cultural, radical, postmodern etc. Their different ontological, epistemological and political underpinnings shape their respective approaches to bioethical issues at hand. Still what they all have in common is interest in social justice-feminists explore mainstream bioethics and reproductive technologies in order to establish whether they support or impede gender and overall social justice and equality. Feminist bioethics thus brings a significant improvement to standard bioethics. [Projekat Ministarstva nauke Republike Srbije, br. 41004: Bioethical Aspects: Morally Acceptable Within the Biotechnologically and Socially Possible i br. 43007: Studying climate change and its influence on the environment: impacts, adaptation and mitigation
McKneally, Martin F.; Peter A Singer
BIOETHICS IS NOW TAUGHT IN EVERY CANADIAN MEDICAL SCHOOL. Canada needs a cadre of teachers who can help clinicians learn bioethics. Our purpose is to encourage clinician teachers to accept this important responsibility and to provide practical advice about teaching bioethics to clinicians as an integral part of good clinical medicine. We use 5 questions to focus the discussion: Why should I teach? What should I teach? How should I teach? How should I evaluate? How should I learn?
Dietz, Elizabeth A
Transgender people and issues have come to the forefront of public consciousness over the last year. Caitlyn Jenner' very public transition, heightened media coverage of the murders of transgender women of color, and the panicked passage of North Carolina's "bathroom bill" (House Bill 2), mean that conversations about transgender health and well-being are no longer happening only within small communities. The idea that transgender issues are bioethical issues is not new, but I think that increased public awareness of transgender people and the ways that their health is affected by systems that bioethics already engages with offers an opportunity for scholarship that works to improve transgender health in meaningful ways. PMID:27417871
Full Text Available In this paper the authors analyze the process of negotiating and beginning of the United Nations Declaration on Human Cloning as well as the paragraphs of the very Declaration. The negotiation was originally conceived as a clear bioethical debate that should have led to a general agreement to ban human cloning. However, more often it had been discussed about human rights, cultural, civil and religious differences between people and about priorities in case of eventual conflicts between different value systems. In the end, a non-binding Declaration on Human Cloning had been adopted, full of numerous compromises and ambiguous formulations, that relativized the original intention of proposer states. According to authors, it would have been better if bioethical discussion and eventual regulations on cloning mentioned in the following text had been left over to certain professional bodies, and only after the public had been fully informed about it should relevant supranational organizations have taken that into consideration.
Herreros, Benjamín; Moreno-Milán, Beatriz; Pacho-Jiménez, Eloy; Real de Asua, Diego; Roa-Castellanos, Ricardo Andrés; Valentia, Emanuele
In this article some of the most relevant terms in clinical bioethics are defined. The terms were chosen based on three criteria: impact on the most important problems in clinical bioethics, difficulty in understanding, and need to clarify their meaning. For a better understanding, the terms were grouped into 5 areas: general concepts (conflict of values, deliberation, conflict of interest, conscientious objection); justice (justice, distributive justice, models of justice, triage); clinical matters (information, competency, capability, informed consent, mature minor, coercion, secrecy, privacy, confidentiality, professional secrecy); end of life (prior instructions, limitation of therapeutic efforts, professional obstinacy, futility, palliative care, palliative sedation, principle of double effect, euthanasia, assisted suicide, persistent vegetative state, minimally conscious state, locked-in syndrome, brain death), and beginning of life (assisted reproduction, genetic counseling, preimplantation genetic diagnosis). PMID:26506495
Li, Hongwen; Cong, Yali
Bioethics began to emerge in the late 1980s in China, which was borrowed and introduced from western countries. But the Chinese bioethics has a different model from western bioethics in its philosophical basis and culture environment which have been influenced by Confucianism, Taoism and Buddhism. Academic researchers of bioethics, policy makers and the public have different opinions to the bioethical issues. Though sharing some similarities with those of western bioethics, the Chinese bioethics has certain different and urgent topics, such as health inequality in health care reform, physician-patient relationship, and different model of the informed consent. PMID:19492719
Pastor, Luis Miguel
In this article we analyze how the idea of virtue as an important element of human ethical action is slowly being lost. There are proposals both in ethics and in bioethics to rehabilitate virtue and to consider it as a very important element of human morality. In particular, in the health sector the rehabilitation of virtue, would imply greater focus on the ethical character of professionals and personal improvement rather than on training for the resolution of ethical cases. Such guidance would also improve the health professional-patient relationship with an increase not only in the technical quality but also in human dimension of health sciences. However, this orientation or tendency in bioethics suffers from a deficit in reasoning due to lack of a complete theory of human action that covers the good and also norms. The second part of the article looks at the relation between of virtue and personalistic bioethics. Virtue is considered as an important element of human action and is integrated with the good and norms. After analyzing and distinguishing between what is today considered personalistic bioethics and the contributions of personalism to bioethics, the paper concludes that the integration of virtue in personalistic bioethics is not only possible but desirable to overcome the ethical minimalism that has resulted from modern day principlism driven bioethics. PMID:23745818
de Vries, R
Bioethics traffics in matters moral. As such, bioethics frequently bumps up against religion, offering an ideal arena to examine how the sacred and the secular encounter each other in modern medicine. In this essay I consider two places where bioethics and religion intersect: 1) the response of bioethics to the universal problem of suffering, and 2) the professional proselytizing or “missionizing work” that bioethics does in order to make a place for itself among the professions of the life s...
This paper is concerned with the process by which bioethics decisions are made as well as the actual decisions that are reached. The process commonly is one of ``shared decision-making,`` that is, decisionmaking at several levels, beginning with the government and ending with the individual. After the government has defined a scope of permissible activity, the research or health care institution may further limit what activities are permitted. Finally, the individual patient, or, if the patient is incompetent, the patient`s legal representative decides whether or not to participate in the activity. Because bioethics in general, and bioethics related to genetics in particular, evolves through this process of decisionmaking at several levels, this paper briefly traces the process, to see how it works in several areas of bioethics, in order to provide a perspective on the way in which ethical decisions related to genetics are or will be made.
This paper is concerned with the process by which bioethics decisions are made as well as the actual decisions that are reached. The process commonly is one of shared decision-making,'' that is, decisionmaking at several levels, beginning with the government and ending with the individual. After the government has defined a scope of permissible activity, the research or health care institution may further limit what activities are permitted. Finally, the individual patient, or, if the patient is incompetent, the patient's legal representative decides whether or not to participate in the activity. Because bioethics in general, and bioethics related to genetics in particular, evolves through this process of decisionmaking at several levels, this paper briefly traces the process, to see how it works in several areas of bioethics, in order to provide a perspective on the way in which ethical decisions related to genetics are or will be made.
Ogundiran Temidayo O
Full Text Available Abstract Background Medical ethics has existed since the time of Hippocrates. However, formal training in bioethics did not become established until a few decades ago. Bioethics has gained a strong foothold in health sciences in the developed world, especially in Europe and North America. The situation is quite different in many developing countries. In most African countries, bioethics – as established and practiced today in the west- is either non-existent or is rudimentary. Discussion Though bioethics has come of age in the developed and some developing countries, it is still largely "foreign" to most African countries. In some parts of Africa, some bioethics conferences have been held in the past decade to create research ethics awareness and ensure conformity to international guidelines for research with human participants. This idea has arisen in recognition of the genuine need to develop capacity for reviewing the ethics of research in Africa. It is also a condition required by external sponsors of collaborative research in Africa. The awareness and interest that these conferences have aroused need to be further strengthened and extended beyond research ethics to clinical practice. By and large, bioethics education in schools that train doctors and other health care providers is the hook that anchors both research ethics and clinical ethics. Summary This communication reviews the current situation of bioethics in Africa as it applies to research ethics workshops and proposes that in spite of the present efforts to integrate ethics into biomedical research in Africa, much still needs to be done to accomplish this. A more comprehensive approach to bioethics with an all-inclusive benefit is to incorporate formal ethics education into health training institutions in Africa.
Sharp, Richard R; Scott, Angela L; Landy, David C; Kicklighter, Laura A
Growing ties to private industry have prompted many to question the impartiality of academic bioethicists who receive financial support from for-profit corporations in exchange for ethics-related services and research. To the extent that corporate sponsors may view bioethics as little more than a way to strengthen public relations or avoid potential controversy, close ties to industry may pose serious threats to professional independence. New sources of support from private industry may also divert bioethicists from pursuing topics of greater social importance, such as the needs of medically underserved communities. To inform ongoing debates about the financing of bioethics and its transparency to those concerned about potential sources of bias, we examined funding disclosures appearing in original research reports in major bioethics journals. Reviewing research published over a 15-year period, we found little evidence that for-profit corporations are influencing bioethics research directly. Instead, we found evidence that a great number of organizations, both public and private, support bioethics research. These findings suggest that worries about the cooption of bioethics research by a few interested stakeholders are greatly overstated and undersupported by available data. PMID:18802867
Alexander Georgievich Yushchenko
Full Text Available The essential theses of evolutional theology are set forth here, which assume biological evolution to be either a technology of the Creator or His own evolution towards understanding His own intentions and attributes. The paradigm of evolutional Christianity is reviwed along with the position and the role of humans in the psychophysical megasynthesis of the Universe and the attibutes of religious and scientifically-atheistic world-view. Biological evolution is interpreted as an ascending row of divine embodiments in biological organisms culminated in the most cephalized living forms: human being (terrestrial form and higher dolphins (water form. The establishment of communication between these living forms is considered a necessary stage of integration of Noospheric consciousness. It is suggested to use the ethics of the Creator’s attitude to human beings, as a basis of bio-ethical attitude of humans to animals, especially to higher ones possessing advanced intellect and soul.
Along with rapidly expanding applications of life science and technology, technical experts have been implicated more and more often with ethical, social, and legal problems than before. It should be noted that in this background there are scientific and social uncertainty elements which are inevitable during the progress of life science in addition to the historically-established social unreliability to scientists and engineers. In order to solve these problems, therefore, we should establish the social governance with ‘relief’ and ‘reliance’ which enables for both citizens and engineers to share the awareness of the issues, to design social orders and criterions based on hypothetical sense of values for bioethics, to carry out practical use management of each subject carefully, and to improve the sense of values from hypothetical to universal. Concerning these measures, the technical experts can learn many things from the present performance in the medical field.
Allograft shortage is a formidable obstacle in organ transplantation. Xenotransplantation, the interspecies transplantation of cells, tissues, and organs, or ex vivo interspecies exchange between cells, tissues, and organs is a frequently suggested alternative to this allograft shortage. As xenotransplantation steadily improves into a viable allotransplantation alternative, several bioethical considerations coalesce. Such considerations include the Helsinki declaration's guarantee of patients' rights to privacy; political red tape that may select for undermined socioeconomic groups as the first recipients of xenografts; industry incentives in xenotransplantation investments; conflicts of interest when a clinician supervises a patient as a research subject; the psychosocial impact of transplantation on the xenograft recipient, and the rights of animals. This review illuminates these issues through a conglomeration of expert opinion and relevant experimental studies. PMID:16574873
Barman, Charles R.; Rusch, John J.
Discusses the rationale for and development of an undergraduate bioethics course. Based on experiences with the course, general suggestions are offered to instructors planning to add bioethics to existing curricula. (MA)
Explains the importance of integrating bioethics into the science curriculum for student learning. Introduces a workshop designed for middle and high school science teachers teaching bioethics, its application to case studies, and how teachers can fit bioethics into their classroom. (YDS)
José Manuel Bertolín Guillén
Full Text Available Background and Objectives: Numerous opinions and medico-legal controversies have arisen up to the date from community treatment orders in Western countries, but underlying bioethical questions have not been specifically studied. The aim of this work is to contribute to further clarify the bioethical conflicts arising from community treatment orders. Methods: The bioethical deliberation of the author is principally based on what can be considered the deontologist-principlist dominant paradigm. These principles, as first described by Beauchamp and Childress in 1979, will be applied in this work to the actual situation of involuntary outpatient treatment. Results: The author's deliberation considers that community treatment orders are consistent first with the deontologist-principlist dominant paradigm of practical reason, respecting its four general categories of basic principles. It also respects the principles of the medical ethics of virtue, subsumed in the personalism of ontological matrix, in the same way as its ethos affects the intrinsic purpose which is the dignity of the person; and with the consequentialist utilitarianism because it seeks the proportionality of the common good. A community treatment order prescription must ultimately be based on a bioethical exercise of responsibility by the clinician, judiciously weighing up the classic principal prima facie duties which must necessarily be translated into a real duty referring to a specific patient and context. Conclusions: Community treatment orders are seen as a method of therapeutic intervention with a bioethical basis resistant to criticism.
Lipworth, Wendy; Axler, Renata
In recent years, it has become almost axiomatic that biomedical research and clinical practice should be 'innovative'-that is, that they should be always evolving and directed towards the production, translation and implementation of new technologies and practices. While this drive towards innovation in biomedicine might be beneficial, it also raises serious moral, legal, economic and sociopolitical questions that require further scrutiny. In this article, we argue that biomedical innovation needs to be accompanied by a dedicated 'bioethics of innovation' that attends systematically to the goals, process and outcomes of biomedical innovation as objects of critical inquiry. Using the example of personalised or precision medicine, we then suggest a preliminary framework for a bioethics of innovation, based on the research policy initiative of 'Responsible Innovation'. We invite and encourage critiques of this framework and hope that this will provoke a challenging and enriching new bioethical discourse. PMID:27015740
Cook, Kristin; Keller, Donna; Myers, Alyce
In this guided inquiry, students investigate advantages and disadvantages of genetic engineering by integrating popular fiction into their study of bioethics. What are the effects of artificially created hybrid creatures on characters in "The Hunger Games" and in our society? What are the effects on and basic rights of the organisms…
Nunes, Rui; Duarte, Ivone; Santos, Cristina; Rego, Guilhermina
"Education for Values and Bioethics" is a project which aims to help the student to build his/her personal ethics. It was addressed to ninth grade students (mean age 14) who frequented public education in all schools of the City of Porto, Portugal-EU in 2010-2013 (N-1164). This research and action project intended to promote the acquisition of knowledge in the following areas: interpersonal relationships, human rights, responsible sexuality, health, environment and sustainable development, preservation of public property, culture, financial education, social innovation and ethical education for work. The students were asked to answer to a knowledge questionnaire on bioethics. To assess the values it was used Leonard Gordon's Survey of Personal Values and Survey of Interpersonal Values. The results of this study show that the project contributes to an increase of knowledge in the area of bioethics. Also the students enrolled in the program showed a development with regards the acquisition of the basic values of pluralistic societies. It is also suggested that this general knowledge on bioethics could be especially helpful to students that want a career in health sciences. PMID:25694860
Derse, A. R.; Krogull, S. R.
Ethical analysis is crucial to decision making in biomedicine and health care, necessitating both rapid access to diffusely disseminated sources of information pertinent to bioethics and promotion of analysis in the field of bioethics through a resource for information analysis. We developed the Bioethics Discussion Forum, an Internet-based information analysis resource, in order to supplement the Bioethics Online Service with an interactive information medium to meet the demand for such an i...
Manchola-Castillo, Camilo; Garrafa, Volnei
Recently, bioethics and international relations have gotten closer to one an other, probably as a result of the motivation of bioethics to intervene in global affairs. However, this relationship has only been on the practical level.This study's objective, through a literature review, is to highlight the huge potential that the epistemologies of both areas have to build a more fruitful dialogue. 18 articles relating both areas were retrieved from databases Scopus, Web of Science, Bireme and PubMed. The articles were then grouped in three categories of analysis: bioethics and global health; international organizations and bioethics; and international relations and bioethics. This study concludes that an epistemological approaching between these areas is desirable and proposes the establishment of two new areas of study: international relations in health and international relations from the South, drawing upon the conceptual basis developed by Latin-American bioethics. PMID:27599082
Bioethics deals with the ethical problems arising from the developments in life sciences and biotechnologies. Western autonomy-based philosophical framework has dominated the approach of mainstream Bioethics. Yet, many of the assumptions implicit in the Western framework that makes claim to universal validity may not be shared by non-western cultures. Moral pluralism poses a challenge to a common bioethics. Pluralism is understood as a descriptive term, which refers to the existence of differ...
Full Text Available Abstract Background There has been debate on whether a global or unified field of bioethics exists. If bioethics is a unified global field, or at the very least a closely shared way of thinking, then we should expect bioethicists to behave the same way in their academic activities anywhere in the world. This paper investigates whether there is a 'global bioethics' in the sense of a unified academic community. Methods To address this question, we study the web-linking patterns of bioethics institutions, the citation patterns of bioethics papers and the buying patterns of bioethics books. Results All three analyses indicate that there are geographical and institutional differences in the academic behavior of bioethicists and bioethics institutions. Conclusion These exploratory studies support the position that there is no unified global field of bioethics. This is a problem if the only reason is parochialism. But these regional differences are probably of less concern if one notices that bioethics comes in many not always mutually understandable dialects.
In this article, I consider in what sense bioethics is philosophical. Philosophy includes both analysis and synthesis. Analysis focuses on central concepts in a domain, for example, informed consent, death, medical futility, and health. It is argued that analysis should avoid oversimplification. The synthesis or synoptic dimension prompts people to explain how their views have logical assumptions and implications. In addition to the conceptual elements are the evaluative and empirical dimensions. Among its functions, philosophy can be a form of prophylaxis--helping people avoid some commonly accepted questionable theories. Generally, recent philosophy has steered away from algorithms and deductivist approaches to ethical justification. In bioethics, philosophy works in partnership with a range of other disciplines, including pediatrics and neurology. PMID:26358430
Salzano, Francisco M.
In any research of human populations, the classical principles of bioethics (respect for autonomy, non-maleficence, beneficence, proportionality between risks and benefits, and justice) should be strictly followed. The question of individual and/or community rights should also be considered, as well as some neglected rights, such as the right to benefit from progress in science and technology and the right to know the nature of the group’s biological and cultural history; however, in their ur...
Kevles, D J
The principles of bioethics have been historically contingent, a product of social values, circumstances, and experience. During the early twentieth century, they rested on a doctor-knows-best autonomy that permitted physicians to perform research on human subjects with a minimum degree, if any, of informed consent. The eugenics movement of the period embraced an implicit bioethics by presuming to sterilize individuals for the sake of a larger social benefit, a practice and doctrine that helped lead to the Nazi medical experiments and death camps. After World War II, the promulgation of the Nuremberg Code failed to halt eugenic sterilization and risky human experimentation without informed consent either in civilian or military venues. However, beginning in the 1960s, these practices came under mounting critical scrutiny, partly because of the increasing attention given to individual rights. By now, it is widely understood that concern for individual rights rather than an appeal to some national good belongs at the heart of bioethics. PMID:11936137
Murray, Kevin J.
Describes the implementation of a bioethics laboratory exercise that incorporates a variety of instructional strategies. In the activity, General Biology students consider relevant and interesting topics of bioethical importance and prepare classroom presentations on the different viewpoints normally attendant to ethical topics. Includes an…
Pearce, Roger S.
Developing critical thinking is a perceived weakness in current education. Analysis and reasoning are core skills in bioethics making bioethics a useful vehicle to address this weakness. Assessment is widely considered to be the most influential factor on learning (Brown and Glasner, 1999) and this piece describes how analysis and reasoning in…
Roberto E. Cuenca
Introduction: In the area of the environment, it has been perceived the Bioethics like an interdisciplinary in the construction of a critical thought that should conclude in an environmental knowledge with ethics and in a position epistemologist where the existential values and axiological are reaffirmed, to conclude analyzing the courses of the environmental education. Objectives: To demonstrate how the Bioethics claims ...
Ivanković, Viktor; Savić, Lovro
This article provides a critical evaluation of the central components of Integrative Bioethics, a project aiming at a bioethical framework reconceptualization. Its proponents claim that this new system of thought has developed a better bioethical methodology than mainstream Western bioethics, a claim that we criticize here. We deal especially with the buzz words of Integrative Bioethics - pluriperspectivism, integrativity, orientational knowledge, as well as with its underlying theory of moral truth. The first part of the paper looks at what the claims of a superior methodology consist in. The second reveals pluriperspectivism and integrativity to be underdeveloped, hazy terms, but which seem to be underpinned by two theses - the incommensurability and the inclusiveness theses. These theses we critically scrutinize. We then consider strategies the project's proponents might apply to curb these theses in order to acquire minimal consistency for their framework. This part of the article also deals with the conception of moral truth that drives the theory, a position equally burdened with inconsistencies. In the last part of the article, we observe the concept of orientational knowledge, and develop two interpretations of its possible meaning. We claim that, following the first interpretation, Integrative Bioethics is completely descriptive, in which case it is informative and important, but hardly bioethics; if it is normative, following the second interpretation, it is bioethics as we already know it, but merely clad in rhetorical embellishments. We conclude that there is nothing new about this project, and that its inconsistencies are reason enough for its abandonment. PMID:26644388
Full Text Available Nowadays, the narrative approach in Bioethics is more and more considered and used. In our paper we would like to explain why – when we need to take a decision – it is essential and crucial that the patient tells his own history; we also indicate the main consequences that this approach has with reference to the choices at the bed of the patient. Selected Papers of the Congress “Narrative Based Medicine and Communication in Clinical Practice” · Cagliari, Italy · April 14th, 2014 Guest Editors: Massimiliano Zonza, Vassilios Fanos, Gian Paolo Donzelli
Salzano, Francisco M
In any research of human populations, the classical principles of bioethics (respect for autonomy, non-maleficence, beneficence, proportionality between risks and benefits, and justice) should be strictly followed. The question of individual and/or community rights should also be considered, as well as some neglected rights, such as the right to benefit from progress in science and technology and the right to know the nature of the group's biological and cultural history; however, in their urge to assure rights, social researchers, bioethics commissions, non-governmental organizations, and community leaders are, in many cases, crossing the limits of good sense. DNA is sometimes interpreted as synonymous to demoniac, and there is a frequent behaviour that I could only describe using a neologism: geneticophobia. There is an irrational attitude against genetic studies aiming to unravel the biological history of a given people and to classify any genome population study as "racist". This behaviour should be opposed; science and the scientific study of humankind are the only way we have to reach the socially adequate objective of the maximum of happiness to the largest number of persons. PMID:25575494
Singleton, Rivers, Jr.; Brock, D. Heyward
Outlines an interdisciplinary workshop in bioethics for secondary teachers taught by a team consisting of a scientist, a philosopher, and a literary critic. Discusses definitions, topics, reading selections, problems, and value. (DC)
Capron, Alexander Morgan
The reasons for offering a course in bioethics to law students and some approaches to take in addressing controversial issues are examined. The use of hypothetical vs. real cases, emphasis on clinical problems, and overall course objectives are discussed. (MSE)
Chávez Aguilar, Pamela
Bioethics must have an intercultural perspective. This is based on three facts: The principles and values around which reflection is made are related to world views and traditions, human beings are cultural beings, and current societies are considerably diverse. Based on this, bioethics will seek an adequate balance between ethical universalism and contextualism. This is a fundamental step for unconditional respect for human dignity and mutual recognition, dialogue, correlation and complementarity among diverse cultures. PMID:23338647
Chan, See-Ching; 陳詩正.
Bioethics has been central to living donor liver transplantation (LDLT), which mandates a high recipient benefit and an acceptably low donor risk. The double equipoise imposes the contextual features of this already technically complex treatment. This research aimed at looking into key bioethical issues of LDLT in the light of the contemporary practice standards. In adult LDLT, in order to provide a partial graft of adequate size, donor right hepatectomy is often required. This procedure...
Full Text Available In their search for answers to the relevant theoretical questions on importing knowledge in practical ethics, the authors take an instrumental approach to metaphor. This figure of language allows one to compare language and linguistic variants to bioethics and knowledge. As defined by the dictionary, an 'idiom' is the official language of a nation, a 'dialect' is a regional variant of an idiom, and an 'idiolect' is an individual variant of a dialect. The bioethical idiom is thus seen as a linguistic set constituting a 'bioethical nation'. Since it is situated above particular dialects, it exercises more than a regulatory role over the discipline. In this article, in order to focus on the process of transmission of knowledge in bioethics, the authors chose Diego Gracia's work as a paradigmatic reference to the question on the transculturation of dialects and the relations in bioethics which are considered 'peripheral' or 'central'. Although this researcher found the key question pointing to the core of the problem of importing dialects, he is still searching for a proper answer to the cultural/bioethical context/contradiction
History's judgment on the success of bioethics will not depend solely on the conceptual creativity and innovation in the field at the level of ethical and political theory, but this intellectual work is not insignificant. One important new development is what I shall refer to as the relational turn in bioethics. This development represents a renewed emphasis on the ideographic approach, which interprets the meaning of right and wrong in human actions as they are inscribed in social and cultural practices and in structures of lived meaning and interdependence; in an ideographic approach, the task of bioethics is to bring practice into theory, not the other way around. The relational turn in bioethics may profoundly affect the critical questions that the field asks and the ethical guidance it offers society, politics, and policy. The relational turn provides a way of correcting the excessive atomism of many individualistic perspectives that have been, and continue to be, influential in bioethics. Nonetheless, I would argue that most of the work reflecting the relational turn remains distinctively liberal in its respect for the ethical significance of the human individual. It moves away from individualism, but not from the value of individuality.In this review essay, I shall focus on how the relational turn has manifested itself in work on core concepts in bioethics, especially liberty and autonomy. Following a general review, I conclude with a brief consideration of two important recent books in this area: Jennifer Nedelsky's Law's Relations and Rachel Haliburton's Autonomy and the Situated Self. PMID:26847836
Full Text Available Abstract Bioethical principles are widely used as a normative framework in areas of human research and medical care. In recent years there has been increasing formalization of their use in public health decisions. The "traditional bioethical principles" are applied in this discussion to the important issue human biomonitoring for environmental exposures. They are: (1 Autonomy – Also known as the "respect for humans" principle, people understand their own best interests; (2 Beneficence – "do good" for people; (3 Nonmaleficence – "do no harm"; (4 Justice – fair distribution of benefits and costs (including risks to health across stakeholders. Some of the points made are: (1 There is not a single generic bioethical analysis applicable to the use of human biomonitoring data, each specific use requires a separate deliberation; (2 Using unidentified, population-based biomonitoring information for risk assessment or population surveillance raises fewer bioethical concerns than personally identified biomonitoring information such as employed in health screening; (3 Companies should proactively apply normative bioethical principles when considering the disposition of products and by-products in the environment and humans; (4 There is a need for more engagement by scholars on the bioethical issues raised by the use of biomarkers of exposure; (5 Though our scientific knowledge of biology will continue to increase, there will always be a role for methods or frameworks to resolve substantive disagreements in the meaning of this data that are matters of belief rather than knowledge.
Koplin, Julian J; Selgelid, Michael J
A common strategy in bioethics is to posit a prima facie case in favour of one policy, and to then claim that the burden of proof (that this policy should be rejected) falls on those with opposing views. If the burden of proof is not met, it is claimed, then the policy in question should be accepted. This article illustrates, and critically evaluates, examples of this strategy in debates about the sale of organs by living donors, human enhancement, and the precautionary principle. We highlight general problems with this style of argument, and particular problems with its use in specific cases. We conclude that the burden ultimately falls on decision-makers (i.e. policy-makers) to choose the policy supported by the best reasons. PMID:26481200
Brody, B A
Empirical research can aid ethical reflection in bioethics by identifying issues, by seeing how they are currently resolved, and by assessing the consequences of these current resolutions. This potential can be misused when the ethical issues in question are fundamentally non-consequentialist or when they are consequentialist but the empirical research fails to address the important consequences. An example of the former problem is some recent studies about bad consequences resulting from commercialized living kidney donor programs. These consequences could be avoided, but the crucial non-consequentialist ethical issues about exploitation and commercialization would still remain. Examples of the latter problem are provided by recent studies of the allocation of ICU beds and of physician deception, where important consequences were not adequately studied. PMID:8259528
Stramondo, Joseph A
The deeply entrenched, sometimes heated conflict between the disability movement and the profession of bioethics is well known and well documented. Critiques of prenatal diagnosis and selective abortion are probably the most salient and most sophisticated of disability studies scholars' engagements with bioethics, but there are many other topics over which disability activists and scholars have encountered the field of bioethics in an adversarial way, including health care rationing, growth-attenuation interventions, assisted reproduction technology, and physician-assisted suicide. The tension between the analyses of the disabilities studies scholars and mainstream bioethics is not merely a conflict between two insular political groups, however; it is, rather, also an encounter between those who have experienced disability and those who have not. This paper explores that idea. I maintain that it is a mistake to think of this conflict as arising just from a difference in ideology or political commitments because it represents a much deeper difference-one rooted in variations in how human beings perceive and reason about moral problems. These are what I will refer to as variations of moral psychology. The lived experiences of disability produce variations in moral psychology that are at the heart of the moral conflict between the disability movement and mainstream bioethics. I will illustrate this point by exploring how the disability movement and mainstream bioethics come into conflict when perceiving and analyzing the moral problem of physician-assisted suicide via the lens of the principle of respect for autonomy. To reconcile its contemporary and historical conflict with the disability movement, the field of bioethics must engage with and fully consider the two groups' differences in moral perception and reasoning, not just the explicit moral and political arguments of the disability movement. PMID:27150415
Chemical and Engineering News, 1974
The functioning of the Kennedy Institute, which aims at dealing with ethical and social questions raised by advances in biosciences and medicine, is described. Three major projects now underway are briefly discussed: a core reference library in bioethics, an Encyclopedia of Bioethics, and a bioethics information retrieval system. (DT)
Full Text Available Development of biopharmaceuticals is a challenging issue in bioethics. Unlike conventional, small molecular weight drugs, biopharmaceuticals are proteins derived from DNA technology and hybrid techniques with complex three dimensional structures. Immunogenicity of biopharmaceuticals should always be tested in clinical settings due to low predictive value of preclinical animal models. However, non-human primates (NHP and transgenic mice could be used to address certain aspects of immunogenicity. Substantial efforts have been made to reduce NHP use in biopharmaceutical drug development, e.g. study design improvements and changes in regulatory policy. In addition, several expert groups are active in this field (e.g. NC3Rs, BioSafe, and Biopharmaceutical Technical Group. Despite that, there is an increasing trend of use of NHP in preclinical safety testing of biopharmaceuticals, especially regarding monoclonal antibodies. Other potential bioethical issues related biopharmaceutical drug development are their cost/effectiveness ratio, clinical safety assessment, production of biosimilars, and comparison of their efficacy with placebo in countries without intention to market. Identification of the human genome has opened many new bioethical issues. Development of biopharmaceuticals is an important bioethical issue for several reasons. It connects all aspects of contemporary bioethics: biomedicine (e.g. clinical trials in vulnerable subjects, animal welfare and the most recent advances in biotechnology. In particular, biopharmaceutical drug development is a challenging issue regarding treatment of rare diseases.
Full Text Available Our contribution discusses the possibilities and limits of using video games for apprehending and reflecting on the moral actions of their players. We briefly present the results of an extended study that introduces the conceptual idea of a Serious Moral Game (SMG. Then, we outline its possible application in the domain of bioethics for training medical professionals such that they can deal better with moral problems in medical practice. We briefly sketch major components of a SMG Bioethics. The contribution should demonstrate how such an instrument may improve psychological competences that are needed for dealing with various ethical questions within healthcare. The contribution is an intermediate step of a project that aims at actually creating a SMG for training in moral competences that are needed for putting bioethics in practice.
'Bioethics still has important work to do in helping to secure status equality for LGBT people' writes Timothy F. Murphy in a recent Bioethics editorial. The focus of his piece, however, is much narrower than human rights, medical care for LGBT people, or ending the HIV/AIDS pandemic. Rather, he is primarily concerned with sexuality and gender identity, and the medical intersections thereof (i.e. DSM diagnosis; access to SrS or ARTs). It is the objective of this response to provide an alternate account of bioethics from a Queer perspective. I will situate Queer bioethics within Queer studies, and offer three 'lessons' that bioethics can derive from this perspective. These are not definitive rules for Queer bioethics, since it is a field which fundamentally opposes categorizations, favoring pastiche over principles. These lessons are exploratory examples, which both complement and contradict LGBT bioethics. My latter two lessons - on environmental bioethics and disability - overlap with some of Murphy's concerns, as well as other conceptions of LGBT bioethics. However, the first lesson takes an antithetical stance to Murphy's primary focus by resisting all forms of heteroconformity and disavowing reproduction as consonant with Queer objectives and theory. The first lesson, which doubles as a primer in Queer theory, does heavy philosophical lifting for the remainder of the essay. This response to Timothy F. Murphy, whose work is certainly a legacy in bioethics, reveals the multiplicity of discourses in LGBT/Queer studies, many of which are advantageous - even essential - to other disciplines like bioethics. PMID:26833492
Fleischman, A R
The prognosis is not good for an infant whose entire intestine has been destroyed by necrotizing enterocolitis. An infant bioethics committee is asked to advise whether the parents should be offered the option of total parenteral intravenous nutrition, with its ultimately fatal complications, for their child. Committee members agree that the option of intravenous feeding should be offered, and that it is morally acceptable for the parents to refuse it. Fleischman reviews the issues that an infant bioethics committee must consider when it is asked to help decide what treatment options will be discussed with the family of a seriously ill neonate. PMID:2108103
The paper highlights the poignancy with which problems and issues surface as the fields of special education and bioethics (the combination of ethics and the life sciences) intersect, and touches upon professionals' responsibility for protection of the persons in their care. (Author/SBH)
Willmott, Christopher J. R.; Wellens, Jane
There is growing awareness of the need to equip students to think through the ethical implications of developments in biology. We describe an exercise in which students work in teams to produce websites about current controversial issues within the subject. Participants report a significant improvement in their knowledge of bioethics and…
Gallegos, Tom; Mrgudic, Kate
Sees health care decision making posing variety of complex issues for individuals, families, and providers. Describes Health Decisions Community Council (HDCC), community-based bioethics committee established to offer noninstitutional forum for discussion of health care dilemmas. Notes that social work skills and values for autonomy and…
Markowitz, Dina G.; DuPre, Michael J.; Holt, Susan; Chen, Shaw-Ree; Wischnowski, Michael
This article discusses "Family Secrets," a problem-based learning (PBL) curriculum module that focuses on the bioethical implications of genetic testing. In high school biology classrooms throughout New York State, students are using "Family Secrets" to learn about DNA testing; Huntington's disease (HD); and the ethical, legal, and social…
March, B. E.
Discusses various bioethical issues and problems related to animal welfare and animal rights. Areas examined include: Aristotelian views; animal welfare legislation; Darwin and evolutionary theory; animal and human behavior; and vegetarianism. A 14-point universal declaration of the rights of animals is included. (JN)
Shapiro, Robyn S.
Bioethics--the study of ethical issues in science and medicine--has grown to become a significant academic and service-oriented discipline with its own research centers, conferences, journals, and degree programs. As these issues have moved to the center of public debate, the law has assumed an increasingly important place in the discipline of…
In recent years legal intervention in bioethical matters has increased notably following various paths: court decisions, parliamentary acts, codes of conduct and solemn declarations (i.e. European Bioethics Convention, 1997, or the UNESCO Genome Declaration, 1997). Body and liberty, as a question of fundamental legal rights, are constitutionalized along two paths. The former is vertical (a text created at central level is open to ratification and domestic implementation to finally become the rule in concrete cases). The latter is, above all, horizontal. It is characterized by the existence at world level of a number of centres and institutions, with the judiciary and judge-made law playing a major role. The most important new rights and freedoms in bioethics have been recognized in this ever-changing and troubled environment. The horizontal way has the great advantage of considering the differences as a resource and not as a limit. In the case law on bioethics a sort of jurisprudential model seems to be at work, that goes some way toward a judge-made law at a universal level. Cases such as Cruzan, Bland and Massimo held the fundamental concept of self-determination with surprising similarity. But we don't know if one of them has influenced the others, always supposing that the judges were aware of them. Today's first duty is to raise the consciousness of judges as to how common their problems are and how often their rulings are similar to each other's. PMID:12058772
Purdy, L M
Feminist criticism of health care and of bioethics has become increasingly rich and sophisticated in the last years of the twentieth century. Nonetheless, this body of work remains quite marginalized. I believe that there are (at least) two reasons for this. First, many people are still confused about feminism. Second, many people are unconvinced that significant sexism still exists and are therefore unreceptive to arguments that it should be remedied if there is no larger benefit. In this essay I argue for a thin, "core" conception of feminism that is easy to understand and difficult to reject. Core feminism would render debate within feminism more fruitful, clear the way for appropriate recognition of differences among women and their circumstances, provide intellectually compelling reasons for current non-feminists to adopt a feminist outlook, and facilitate mutually beneficial cooperation between feminism and other progressive social movements. This conception of feminism also makes it clear that feminism is part of a larger egalitarian moral and political agenda, and adopting it would help bioethics focus on the most urgent moral priorities. In addition, integrating core feminism into bioethics would open a gateway to the more speculative parts of feminist work where a wealth of creative thinking is occurring. Engaging with this feminist work would challenge and strengthen mainstream approaches: it should also motivate mainstream bioethicists to explore other currently marginalized parts of bioethics. PMID:11561992
Douglas-Steele, D; Hundert, E M
Many physicians have found that the traditional approach to bioethics fails to account for important aspects of their moral experience in practice. New approaches to bioethics theory are challenging the traditional application of universal moral principles based in liberal moral theory. At the same time, a shift in both the goals and methods of bioethics education has accompanied its "coming of age" in the medical school curriculum. Taken together, these changes challenge both bioethics educators and theorists to come closer to the details and nuances of real clinical encounters. The emerging trend emphasizes the importance of context in bioethics education and in the moral theory and research undergirding it. This article introduces one research approach examining the practical life contexts of medical students' ethical experiences and learning. It calls for increased attention to research and theory in bioethics that more adequately accounts for the ways different contexts produce significant changes in meaning and understanding in medical encounters. PMID:8767639
Kahn, Peter A
Bioethics in America positions itself as a totalizing discipline, capable of providing guidance to any individual within the boundaries of a health or medical setting. Yet the religiously observant or those driven by spiritual values have not universally accepted decisions made by "secular" bioethics, and as a result, religious bioethical thinkers and adherents have developed frameworks and rich counter-narratives used to fend off encroachment by policies perceived as threatening. This article uses brain death in Jewish law, the case of Jahi McMath, and vaccination refusal to observe how the religious system of ethics is presently excluded from bioethics and its implications. PMID:26525211
Full Text Available Problem statement: Bioethics is the philosophical study of the ethical controversies about humans and his environment. Bioethicists are concerned with the ethical questions that arise in the relationships among life sciences, biotechnology, medicine, politics, law, philosophy, theology and climate change. The objective of this study is to examine the impact of using bioethics resources as teaching tool in the teaching of climate change at tertiary level. Approach: This is done through assessing the extent of bioethics knowledge acquired in the learning process and how bioethics principles affect respondents thinking and opinions. The research employs a qualitative analysis of the data that is collected through pre-and post-tests and from feedback solicited through discussions with respondents. Some 100 university undergraduate students participated in this study. Results: The findings reveal that through the use of bioethics resources in teaching climate change, respondents' showed increased comprehension of bioethics knowledge and greater appreciation of its principles. Conclusion: Therefore the study concludes that the use of bioethics resources can accentuate the importance of bioethics principles in the understanding and in the provision of ethical framework in dealing with climate changes issues and mitigation initiatives. This research finding can be a useful source of information for scholars and researchers developing teaching strategies using bioethics resources.
UNESCO’s Universal Declaration on Bioethics and Human Rights (2005) was drawn up by an independent panel of experts (the International Bioethics Committee) and negotiated by member states. UNESCO aimed for a participatory and transparent drafting process, holding national and regional consultations and seeking the views of various interest groups, including religious and spiritual ones. Furthermore, reflecting UNESCO’s broad interpretation of bioethics, the IBC included medics, scientists, la...
José Roque Junges
Full Text Available The right to health is being more and more affected by the Biopower new configurations, no more only determined by the State, as in Foucault's analyses, but mainly by the symbolic power of the market. The biotechnological enterprises stir up increasing claims for consuming in health. These products are techno-semiotic agencies of the subjectivity in health, rendering their use as a right. In this situation it is important to return to the Right to Health comprehension of the International Conventions and the Alma-Ata Conference, proving the interdependence between Human Rights in general and the Right to Health in particular, mainly aiming at the social determinants of health that define more basic rights. The Human Rights perspective permits the proposal of a public health bioethics, different from the clinical bioethics, more appropriate for considering the collective implications of the right to Health, not reduced to a mere consumption of technologies.
Bioethics was born not only as an aftermath of medical technological advance but also from underlying philosophical conceptions about man, that determine scientific research. Analyzing occidental ethics, Heidegger showed that animalism was the only human dimension considered and thereby the domain of measurable objectiveness. He postulated that the essence of human existence as being-in-the-world is ethical and revealed through an original consciousness. Unlike moral conscience, original conscience calls to authenticity, to hear his constitutive nihilism as a "Being-referred-to-death". The founding ground of bioethics may be to listen to this primary being-guilty prior to the derived guilts, e.g. faults, deficiencies and shortcomings of specific daily actions. PMID:22286741
This article, which introduces the special issue of the Journal of Homosexuality on "Mapping Queer Bioethics," begins by offering an overview of the analytical scope of the issue. Specifically, the first half of this essay raises critical questions central to the concept of a space-related queer bioethics, such as: How do we appreciate and understand the special needs of queer parties given the constraints of location, space, and geography? The second half of this article describes each feature article in the issue, as well as the subsequent special sections on the ethics of reading literal, health-related maps ("Cartographies") and scrutinizing the history of this journal as concerns LGBT health ("Mapping the Journal of Homosexuality"). PMID:26643032
UNESCO's Universal Declaration on Bioethics and Human Rights (2005) was drawn up by an independent panel of experts (the International Bioethics Committee) and negotiated by member states. UNESCO aimed for a participatory and transparent drafting process, holding national and regional consultations and seeking the views of various interest groups, including religious and spiritual ones. Furthermore, reflecting UNESCO's broad interpretation of bioethics, the IBC included medics, scientists, lawyers and philosophers among its membership. Nevertheless, several potential stakeholders-academic scientists and ethicists, government policy-makers and NGO representatives-felt they had not been sufficiently consulted or even represented during the Declaration's development. Better communications and understanding within and between national, regional and international layers of governance would help to avoid a recurrence of this problem in future negotiations. PMID:22724045
In October, in an unexpected development, U.S. President Bill Clinton created a national ethics advisory board, the National Bioethics Advisory Commission (NBAC, Washington, DC), to study both research ethics and the management and use of genetic information. Of particular interest to biotechnology companies and researchers is the fact that the commission`s brief encompasses issues about human gene patenting, a subject not contained in earlier proposals for the commission.
Full Text Available Before examining the specific problems of emergency medicine, the article identifies the cardinal points for orientation in bioethics, in the conviction that the knowledge of the basic aspects of the subject allow the reader to make more conscious and suitable choices. The questions of moral relativism and the consequences of the biomedical revolution are addressed in detail in order to support the argument for a new ethical base for healthcare in general and for emergency medicine.
Roberto E. Cuenca
Full Text Available Introduction: In the area of the environment, it has been perceived the Bioethics like an interdisciplinary in the construction of a critical thought that should conclude in an environmental knowledge with ethics and in a position epistemologist where the existential values and axiological are reaffirmed, to conclude analyzing the courses of the environmental education. Objectives: To demonstrate how the Bioethics claims the values of the humanism and to outline the Environmental Education as an action opportunity and generation of actions in the sustainable development of the communities of our region. Methodology: By means of bibliographical revision, a rehearsal was elaborated about the relationship of the Bioethics with the Environmental Education, as for the aspects of the atmosphere, the socioeconomic development and the environmental pedagogy. Results: They were carried out descriptions about the Holistic concept in the environment; conceptualization on Environmental Ethics; conceptualization about the Sustainable Development, the Globalization and the Sustainability; and conceptualization about the Environmental Education and the Bioethics. Conclusions: Of the carried out analysis we have a first epilogue that drives to assume the responsibility for our to work in the world and being able to understand that our quality of life reaches its fullness, when we transcend from our individual conscience toward a form of conscience able to not feel as own alone our necessity but, that of all other human being and in all other way of life. And a second epilogue in outlining strategies of an Environmental Education, different to the traditional ones, like an evolution toward the Education for the Sustainability, on the as continuing the development at the same time that it is protected, it preserves and they conserve the systems of vital support of the planet.
Todorović Zoran; Protić Dragana
Development of biopharmaceuticals is a challenging issue in bioethics. Unlike conventional, small molecular weight drugs, biopharmaceuticals are proteins derived from DNA technology and hybrid techniques with complex three dimensional structures. Immunogenicity of biopharmaceuticals should always be tested in clinical settings due to low predictive value of preclinical animal models. However, non-human primates (NHP) and transgenic mice could be used to address certain aspects of immuno...
Edgar Abarca López
Full Text Available This paper presents a case report of thanatophoric displasia diagnosed in the prenatal period using ultrasound standards. The course of the case pregnancy, birth process, and postnatal period is described. This report invites bioethical analysis using its principles, appealing to human dignity, diversity and otherness, particularly in the mother-child dyad and their family. An early diagnosis allows parental support as they face the course of this condition and its potentially fatal outcome.
Edgar Abarca López; Alejandra Rodríguez Torres; Donovan Casas Patiño; Esteban Espíndola Benítez
This paper presents a case report of thanatophoric displasia diagnosed in the prenatal period using ultrasound standards. The course of the case pregnancy, birth process, and postnatal period is described. This report invites bioethical analysis using its principles, appealing to human dignity, diversity and otherness, particularly in the mother-child dyad and their family. An early diagnosis allows parental support as they face the course of this condition and its potentially fatal outcome.
Martínez-Carbonell López, Alfonso
In the dense theological thought of Joseph Ratzinger before his election as pope, we find fundamental contributions to contemporary bioethics. Starting from the assumption of the close relationship between faith and science he incorporates a necessary theological dimension in the bioethical dialogue that illuminates and clarifies the answers to the real questions raised in bioethical actions. On the one hand, there is the question of the origin of man that is understood as God's creation as opposed to a purely biological origin to which a modern pseudoscientific stance wants to confine it. On the other hand, there is the question about man's identity, which is understood as the image of God, from which stems the inviolable dignity and sacredness of human life, overcoming scientistic materialism. Finally, we find the question of how to treat the ″other″, even the embryo, as a result of its lofty dignity, analyzing the ethical and legal consequences that exude from their nature and are summarized in the duty to protect and respect the other which the law should protect against the abuse of those who are stronger. PMID:25329412
Arras, J D
This paper represents the first installment of a larger project devoted to the relevance of pragmatism for bioethics. One self-consciously pragmatist move would be to return to the classical pragmatist canon of Peirce, James and Dewey in search of substantive doctrines or methodological approaches that might be applied to current bioethical controversies. Another pragmatist (or neopragmatist) move would be to subject the regnant principlist paradigm to Richard Rorty's subversive assaults on foundationalism in epistemology and ethics. A third pragmatist method, dubbed "freestanding pragmatism" by its proponents, embraces a "pragmatist" approach to practical reasoning without discernable moorings either to the classical canon or to Rorty's neopragmatism. This third pragmatist approach to method in practical ethics is the subject of this article. I begin with an examination of freestanding pragmatism in the theory of judicial decision making. I argue that this version of legal pragmatism--so described on account of its commitments to contextualism, instrumentalism, eclecticism, and freedom from grand theory--bears a striking resemblance to much self-described pragmatist work in bioethics today. I further argue that if this is what we mean by "pragmatism," then in a certain sense "we are all pragmatists now." PMID:11437273
This paper begins by acknowledging the interest taken by various international organisations in genetic enhancement and sport, including the US President's Council on Bioethics (July, 2002) and the World Anti-Doping Agency (March, 2002). It is noticed how sporting organisations have been particularly concerned to emphasize the 'threat' of genetics to sport, whereas other institutions have recognised the broader bioethical issues arising from this prospect, which do not readily reject the use of genetic technology in sport. Sports are identified as necessarily 'human' and 'moral' practices, the exploration of which can reveal greater insight into the intuitive fears about genetic modification. It is argued that anti-doping testing measures and sanctions unacceptably persecute the athlete. While there are substantial reasons to be concerned about the use of genetic modification in sport, the desire for policy ought not diminish the need for ethical research; nor ought such research embody the similar guise of traditional 'anti' doping strategies. Rather, the approach to genetics in sport must be informed more by broader social policies in bioethics and recognition of the greater goods arising from genetic technology. PMID:16285154
Busquets, Ester; Roman, Begoña; Terribas, Núria
This article presents a view of bioethics in the Spanish context. We may identify several features common to Mediterranean countries because of their relatively similar social organisation. Each country has its own distinguishing features but we would point two aspects which are of particular interest: the Mediterranean view of autonomy and the importance of Catholicism in Mediterranean culture. The Spanish experience on bioethics field has been marked by these elements, trying to build a civic ethics alternative, with the law as an important support. So, Spanish bioethics has been developed in two parallel levels: in the academic and policy maker field (University and Parliament) and in clinical practice (hospitals and healthcare ethics committees), with different paces and methods. One of the most important changes in the paternalistic mentality has been promoted through the recognition by law of the patient's rights and also through the new generation of citizens, clearly aware on the exercise of autonomy. Now, the healthcare professionals have a new challenge: adapt their practice to this new paradigm. PMID:22033813
Hanegan, Nikki L.; Price, Laura; Peterson, Jeremy
This study examines how student practice of scientific argumentation using socioscientific bioethics issues affects both teacher expectations of students' general performance and student confidence in their own work. When teachers use bioethical issues in the classroom students can gain not only biology content knowledge but also important…
Diaz, Jose Luis
Bioethics is concerned with the moral aspects of biology and medicine. The bioethical relevance of aggression and violence is clear, as very different moral and legal responsibilities may apply depending on whether aggression and violence are forms of behaviour that are innate or acquired, deliberate or automatic or not, or understandable and…
...-mail: Hillary.Viers@bioethics.gov . Additional information may be obtained at http://www.bioethics.gov.... The meeting will also be webcast at http://www.bioethics.gov . Under authority of Executive Order....bioethics.gov . The Commission welcomes input from anyone wishing to provide public comment on any...
...: Hillary.Viers@bioethics.gov . Additional information may be obtained at http://www.bioethics.gov... available. The meeting will also be webcast at http://www.bioethics.gov . Under authority of Executive Order....bioethics.gov . The Commission welcomes input from anyone wishing to provide public comment on any...
Keskin-Samanci, Nilay; Özer-Keskin, Melike; Arslan, Orhan
This study has led to the development of the "Bioethical Values Inventory" that can be used to reveal secondary school students' ethical values in decisions that they make during ethical debates regarding the application of biological sciences. An original inventory development model was used, consisting of four steps and involving…
Solomon, Mildred Z; Vannier, David; Chowning, Jeanne Ting; Miller, Jacqueline S; Paget, Katherine F
A belief that high school students have the cognitive ability to analyze and assess moral choices and should be encouraged to do so but have rarely been helped to do so was the motivation for developing Exploring Bioethics, a six-module curriculum and teacher guide for grades nine through twelve on ethical issues in the life sciences. A multidisciplinary team of bioethicists, science educators, curriculum designers, scientists, and high school biology teachers worked together on the curriculum under a contract between the National Institutes of Health and Education Development Center, a nonprofit research and development organization with a long history of innovation in science education. At the NIH, the Department of Bioethics within the Clinical Center and the Office of Science Education within the Office of the Director guided the project.Our overarching goal for Exploring Bioethics was to introduce students to bioethics as a field of inquiry and to enable them to develop ethical reasoning skills so they could move beyond "gut reactions" to more nuanced positions. PMID:26786036
Lerner, Barron H; Caplan, Arthur L
Bioethics has become a common course of study in medical schools, other health professional schools, and graduate and undergraduate programs. An analysis of past ethical scandals, as well as the bioethics apparatus that emerged in response to them, is often central to the discussion of bioethical questions. This historical perspective on bioethics is invaluable and demonstrates how, for example, the infamous Tuskegee syphilis study was inherently racist and how other experiments exploited mentally disabled and other disadvantaged persons. However, such instruction can resemble so-called Whig history, in which a supposedly more enlightened mindset is seen as having replaced the "bad old days" of physicians behaving immorally. Bioethical discourse-both in the classroom and in practice-should be accompanied by efforts to historicize but not minimize past ethical transgressions. That is, bioethics needs to emphasize why and how such events occurred rather than merely condemning them with an air of moral superiority. Such instruction can reveal the complicated historical circumstances that led physician-researchers (some of whom were actually quite progressive in their thinking) to embark on projects that seem so unethical in hindsight. Such an approach is not meant to exonerate past transgressions but rather to explain them. In this manner, students and practitioners of bioethics can better appreciate how modern health professionals may be susceptible to the same types of pressures, misguided thinking, and conflicts of interest that sometimes led their predecessors astray. PMID:27089070
Popular fiction responds to, and may exacerbate, public anxieties in ways that more highbrow literary texts may not. Robin Cook's 1977 novel Coma exemplifies the ways in which medical thrillers participate in the public discourse about health care. Written shortly after the medical establishment promoted "irreversible coma," or brain death, as a new definition of dying, and at a time when the debate over the removal of Karen Ann Quinlan from life support was the subject of popular attention, Coma crystallized public fears over the uses of medical technology. While Cook hoped that Coma would encourage public participation in health-care decision-making, the book may have fueled public concerns about medicine in ways that he did not anticipate. The public engagement that accompanied the rise of bioethics and that led to increased transparency and patient autonomy in medical decision-making had its birth, in part, in the distrust and paranoia reflected in the medical thriller. Because fiction can shape public perceptions of health-care dilemmas and may affect decision-making on bioethical issues, bioethicists need to pay attention to popular fictional accounts of medicine. PMID:20639610
Inhorn, Marcia C; Tremayne, Soraya
Assisted reproductive technologies (ARTs), including in vitro fertilization to overcome infertility, are now widely available across the Middle East. Islamic fatwas emerging from the Sunni Islamic countries have permitted many ARTs, while prohibiting others. However, recent religious rulings emanating from Shia Muslim-dominant Iran have created unique avenues for infertile Muslim couples to obtain donor gametes through third-party reproductive assistance. The opening of Iran to gamete donation has had major impacts in Shia-dominant Lebanon and has led to so-called reproductive tourism of Sunni Muslim couples who are searching for donor gametes across national and international borders. This paper explores the "bioethical aftermath" of donor technologies in the Muslim Middle East. Other unexpected outcomes include new forms of sex selection and fetal "reduction." In general, assisted reproduction in the Muslim world has been a key site for understanding how emerging biomedical technologies are generating new Islamic bioethical discourses and local moral responses, as ARTs are used in novel and unexpected ways. PMID:26602421
Bioethics as a cultural phenomenon is nowadays presented as a paradigmatic locus of reflection, critical analysis, inquiries and debates about ethical problems and moral dilemmas provoked by scientific researches in the field of Biotechnology, with its innovations and applications. Humanity, since the middle of X X Th Century, lives under uncertainty and fear. Bioethics responds to the need of a ethical reflection which follows such inquiries and technological applications. One of the subjects of Bioethics is the biosafety, which deals with biohazards. In this process, there is a privileged place many questions such as technological evaluation, risk management and, in a special way, the precautionary principle. This study focus on these questions
Iudin, B G
Professor Yu.M. Lopukhin has made the most important contribution to the development of bioethics in this country based on his extensive experience in research, education and organization pertaining to different biomedical disciplines and high-tech medicine. The main works of Yu.M. Lopukhin on major bioethical problems of special importance for present-day Russia are analysed including ethical expertise of biomedical research and their legal aspects including tissue and organ transplantation, the use of embrionic stem cells, etc. The importance of international collaboration in the field of bioethics is emphasized. PMID:20000106
Fayemi, Ademola K
It is nearly two decades now since the publication of Godfrey Tangwa's article, 'Bioethics: African Perspective', without a critical review. His article is important because sequel to its publication in Bioethics, the idea of 'African bioethics' started gaining some attention in the international bioethics literature. This paper breaks this relative silence by critically examining Tangwa's claim on the existence of African bioethics. Employing conceptual and critical methods, this paper argues that Tangwa's account of African bioethics has some conceptual, methodic and substantive difficulties, which altogether do not justify the idea of African bioethics, at least for now. Contra Tangwa, this article establishes that while African bioethics remains a future possibility, it is more cogent that current efforts in the name of 'African bioethics' be primarily re-intensified towards 'Healthcare ethics in Africa'. PMID:25912979
The Holocaust arose, in part, because of a profound and pervasive breakdown of medical professional ethics. This history is complex and powerfully instructive. The value judgments and moral actions of the Nazi doctors can inform current debate and practices and also prevent the use of inaccurate analogies in current bioethical debates. Under the auspices of the International Center for Health, Law and Ethics at Haifa University, we are in the process of publishing a casebook on bioethical topics, using personal cases from the Third Reich and the Holocaust. The casebook will provide a platform for deep reflection and discourse on historical ethical issues and their relevance for today. This teaching tool can also inspire healthcare professionals and students to practice with greater compassion, knowledge, tolerance, respect and justice on behalf of their patients. PMID:23781761
College and University, 1985
Examples are given of points hospitals must consider when adopting and implementing infant bioethics committees, including committee functions (educational, policy development, and consultative), structure, membership, jurisdiction, recordkeeping, and legal issues. (MSE)
Bergel, Salvador Darío
Argentine has a new Civil and Commercial Code that will enter into force in August. This Code contains a series of rules relating to bioethics that have served to illustrate a brief comment on its contents. PMID:26665351
Zhanna V. Chashina
Full Text Available Introduction: the article discusses significance of use of new technologies in the learning process for realisation of goals of cognitive and affective domain of knowledge. The paper explores the methods of development of educational knowledge, which is achieved by information, reproductive and research means. Based on example of bioethics the paper demonstrates the use of visuals technology (charts, graphs, tables, illustrations, specification, etc., which performs the following tasks: memorising, analysis and synthesis, comparison and differentiation, categorisation and classification, identification of relationships between facts, and for the revision of the material studied, acquisition of the new knowledge, memo risation of educational material. Materials and Methods: on the basis of the dialectical approach the object of research is new technologies in the learning process, in particular the study of bioethics. By using methods of observation, survey, analysis and synthesis in the educational process the authors prove the efficiency of such technologies as the use of visualisation (diagrams, illustrations, problem-based learning (issues, tasks and situations and research tasks (case study method. Results: visual method complements the learning process. It allows a deeper understanding of the subject. This method deals with feelings, emotions and consciousness of students. It encourages creativity. In addition this method of material presentation allows reducing the amount of material of an ordinary lecture. It is underscored that in the study of bioethics it is recommended to use a technology of a problem-based learning, which is able to implement the intellectual activity of students by means of questions¸ case-studies, tasks and situations. The most vivid form of such technology is a case method. The basis for the emergence of technology of problembased learning is a certain contradiction between knowledge and practice. This method can
Turina, Iva Sorta-Bilajac; Brkljacić, Morana; Grgas-Bile, Cecilija; Gajski, Domagoj; Racz, Aleksandar; Cengić, Tomislav
In the context of modern scientific and technological developments in biomedicine and health care, and the potential consequences of their application on humans and the environment, Potter's global bioethics concept resurfaces. By actualizing Potter's original thoughts on individual bioethical issues, the universality of two of his books, which today represent the backbone of the world bioethical literature, "Bioethics--Bridge to the Future" and "Global Bioethics: Building on the Leopold Legacy", is emphasized. Potter's global bioethics today can legitimately be viewed as a bridge between clinical personalized ethics on the one hand and ethics of public health on the other. PMID:27017727
Pastor, Luis Miguel
For years there are different types of criticism about principialist bioethics. One alternative that has been proposed is to introduce empirical evidence within the bioethical discourse to make it less formal, less theoretical and closer to reality. In this paper we analyze first in synthetic form diverse alternative proposals to make an empirical bioethics. Some of them are strongly naturalistic while others aim to provide empirical data only for correct or improve bioethical work. Most of them are not shown in favor of maintaining a complete separation between facts and values, between what is and what ought to be. With different nuances these proposals of moderate naturalism make ethical judgments depend normative social opinion resulting into a certain social naturalism. Against these proposals we think to make a bioethics in that relates the empirical facts with ethical duties, we must rediscover empirical reality of human action. Only from it and, in particular, from the activity of discernment that makes practical reason, when judged on the object of his action, it is possible to integrate the mere descriptive facts with ethical judgments of character prescriptive. In conclusion we think that it is not possible to perform bioethics a mode of empirical science, as this would be contrary to natural reason, leading to a sort of scientific reductionism. At the same time we believe that empirical data are important in the development of bioethics and to enhance and improve the innate ability of human reason to discern good. From this discernment could develop a bioethics from the perspective of ethical agents themselves, avoiding the extremes of an excessive normative rationalism, accepting empirical data and not falling into a simple pragmatism. PMID:24206254
Hanegan, Nikki L.; Price, Laura; Peterson, Jeremy
This study examines how student practice of scientific argumentation using socioscientific bioethics issues affects both teacher expectations of students’ general performance and student confidence in their own work. When teachers use bioethical issues in the classroom students can gain not only biology content knowledge but also important decision-making skills. Learning bioethics through scientific argumentation gives students opportunities to express their ideas, formulate educated opinions and value others’ viewpoints. Research has shown that science teachers’ expectations of student success and knowledge directly influence student achievement and confidence levels. Our study analyzes pre-course and post-course surveys completed by students enrolled in a university level bioethics course ( n = 111) and by faculty in the College of Biology and Agriculture faculty ( n = 34) based on their perceptions of student confidence. Additionally, student data were collected from classroom observations and interviews. Data analysis showed a disconnect between faculty and students perceptions of confidence for both knowledge and the use of science argumentation. Student reports of their confidence levels regarding various bioethical issues were higher than faculty reports. A further disconnect showed up between students’ preferred learning styles and the general faculty’s common teaching methods; students learned more by practicing scientific argumentation than listening to traditional lectures. Students who completed a bioethics course that included practice in scientific argumentation, significantly increased their confidence levels. This study suggests that professors’ expectations and teaching styles influence student confidence levels in both knowledge and scientific argumentation.
Full Text Available Abstract In Poland there are only Regional Bioethical Committees. Unlike most EU countries Poland has no coordinating centre on bioethics for human research. However, the Ministry of Health and Welfare has established a Bioethics Appeals Committee. The functioning of the Bioethical Committees in Poland is regulated in detail by the Regulation of the Ministry of Health and Welfare of 1999. All regulations comply with important guidelines such as: the Helsinki Declaration, The Rules of Good Clinical Practice, EU Directives and legal regulations binding in Poland, mainly the Act of the Medical Doctor Profession and the Dentist Profession, as well as the Act of Pharmaceutical Law. In the framework of the Human Biomonitoring Programme, the application for bioethical evaluation will be submitted to the Bioethical Committee at the Nofer Institute of Occupational Medicine in Lodz. The data protection legislation in Poland according to the Act of the Protection of Personal Data of 29th of August 1997 with latest amendments fulfils EU regulations. The Act also contains detailed provisions regarding the duties of the Inspector General for Data Protection. The paper presents data on the activities of the Bureau of the Inspector General for Personal Data Protection in 2005, 2006 and 2007.
Williams, Arthur Robin
Last year marks the first year of implementation for both the Patient Protection and Affordable Care Act and the Mental Health Parity and Addiction Equity Act in the United States. As a result, healthcare reform is moving in the direction of integrating care for physical and mental illness, nudging clinicians to consider medical and psychiatric comorbidity as the expectation rather than the exception. Understanding the intersections of physical and mental illness with autonomy and self-determination in a system realigning its values so fundamentally therefore becomes a top priority for clinicians. Yet Bioethics has missed opportunities to help guide clinicians through one of medicine's most ethically rich and challenging fields. Bioethics' distancing from mental illness is perhaps best explained by two overarching themes: 1) An intrinsic opposition between approaches to personhood rooted in Bioethics' early efforts to protect the competent individual from abuses in the research setting; and 2) Structural forces, such as deinstitutionalization, the Patient Rights Movement, and managed care. These two themes help explain Bioethics' relationship to mental health ethics and may also guide opportunities for rapprochement. The potential role for Bioethics may have the greatest implications for international human rights if bioethicists can re-energize an understanding of autonomy as not only free from abusive intrusions but also with rights to treatment and other fundamental necessities for restoring freedom of choice and self-determination. Bioethics thus has a great opportunity amid healthcare reform to strengthen the important role of the virtuous and humanistic care provider. PMID:26424211
Goldim, José Roberto
Van Rensselaer Potter is usually credited with coining the term bioethics and with founding this field. However, the rediscovery of the article "Bioethics: A Panorama of the Human Being's Ethical Relations with Animals and Plants," published in 1927 by Fritz Jahr in the German magazine Kosmos, necessitates a revision of this history of the foundation of bioethics. While Potter made significant contributions to this field, the importance of Jahr to the founding of bioethics should be recognized. PMID:19684372
..., DC 20005. Telephone: (202) 233-3960. Email: Hillary.Viers@bioethics.gov . Additional information may be obtained at http://www.bioethics.gov . SUPPLEMENTARY INFORMATION: Pursuant to the Federal Advisory....bioethics.gov . Under authority of Executive Order 13521, dated November 24, 2009, the President...
Pearce, Roger S.
The article describes a compulsory bioethics module delivered to [approximately] 120 biology students in their final year. The main intended learning outcome is that students should be able to analyse and reason about bioethical issues. Interactive lectures explain and illustrate bioethics. Underlying principles and example issues are used to…
...., Suite C-100, Washington, DC 20005. Telephone: 202-233-3960. Email: Hillary.Viers@bioethics.gov . Additional information may be obtained at www.bioethics.gov . SUPPLEMENTARY INFORMATION: Pursuant to the....bioethics.gov . Under authority of Executive Order 13521, dated November 24, 2009, the President...
... 20005. Telephone: (202) 233-3960. Email: Hillary.Viers@bioethics.gov . Additional information may be obtained at www.bioethics.gov . SUPPLEMENTARY INFORMATION: Pursuant to the Federal Advisory Committee Act....bioethics.gov . Under authority of Executive Order 13521, dated November 24, 2009, the President...
Engelhardt, H Tristram
In the face of the moral pluralism that results from the death of God and the abandonment of a God's eye perspective in secular philosophy, bioethics arose in a context that renders it essentially incapable of giving answers to substantive moral questions, such as concerning the permissibility of abortion, human embryonic stem cell research, euthanasia, etc. Indeed, it is only when bioethics understands its own limitations and those of secular moral philosophy in general can it better appreciate those tasks that it can actually usefully perform in both the clinical and academic setting. It is the task of this paper to understand and reevaluate bioethics by understanding these limits. Academic bioethicists can analyze ideas, concepts, and claims necessary to understanding the moral questions raised in health care, assessing the arguments related to these issues, and provide an understanding of the different moral perspectives on bioethical issues. In the clinical setting, bioethicists can provide legal advice, serve as experts on IRBs, mediating disputes, facilitating decision-making and risk management, and clarifying normative issues. However, understanding this is only possible when one understands the history, genesis, and foundations of bioethics and its inability to provide a resolution to postmodern moral pluralism. PMID:21724971
The author attempts to give a general picture of corruption, especially in the area of healthcare. Corruption ranges from fraud, through deceit, bribery and dehumanisation, to immeasurable moral decay. As a bioethicist who has challenged corruption in various ways, the author approaches this worldwide plague mainly on the basis of his personal experience. He does not offer a recipe for successfully combating corruption, but tries to provide some ways and means to fight immorality without self-defeat. Bioethics is not a discipline whose task is to investigate, expose, or punish corrupt people. A number of agencies exist for this "noble" job. Nevertheless, an ethics teacher should not be completely indifferent to obvious and harmful immoral behaviour, regardless of his/her personal compulsions. It is not the "patient rights" that threaten the prestige of the medical profession; it is rather the bad apples that infiltrate the moral mission of this esteemed work. It seems that the hardest challenges in the struggle against corruption are bad laws-laws that provide loopholes and immunity to immoral dealings. In a stable, strong democracy, morally unfounded laws can, and will be changed. Where real democracy exists, they would not even have come into effect. PMID:23912730
Ventura-Juncá, Patricio; Erices, Alejandro; Santos, Manuel J
Stem cells have drawn extraordinary attention from scientists and the general public due to their potential to generate effective therapies for incurable diseases. At the same time, the production of embryonic stem cells involves a serious ethical issue concerning the destruction of human embryos. Although adult stem cells and induced pluripotential cells do not pose this ethical objection, there are other bioethical challenges common to all types of stem cells related particularly to the clinical use of stem cells. Their clinical use should be based on clinical trials, and in special situations, medical innovation, both of which have particular ethical dimensions. The media has raised unfounded expectations in patients and the public about the real clinical benefits of stem cells. At the same time, the number of unregulated clinics is increasing around the world, making direct offers through Internet of unproven stem cell therapies that attract desperate patients that have not found solutions in standard medicine. This is what is called stem cells tourism. This article reviews this situation, its consequences and the need for international cooperation to establish effective regulations to prevent the exploitation of patients and to endanger the prestige of legitimate stem cell research. PMID:24448860
Fagundes, Maria José Delgado; Soares, Magnely Gomes Alves; Diniz, Nilza Maria; Pires, Jansen Ribeiro; Garrafa, Volnei
This study investigates how advertising campaigns for drugs influence drug prescription practices among physicians from a point of view of "protection ethics" and of "intervention bioethics". It also analyzes information quality in advertisements for prescription drugs before and after the ANVISA (National Agency for Sanitary Protection) RDC 102/200 Resolution wich regulates drugs advertising as well as discusses the regulating role of the state in this area. A first approach was to interview 50 physicians in Brasília/DF (25 general physicians and 25 surgeons) in order to examine how they perceive the effects of advertisement on their professional activities. A second approach was to study 10 publicity pieces, five from before and five from after the RDC Resolution. The results showed that: a) 98% of phsicians are visited by sales representatives on a regular basis; b) 86% of physicians receive gifts during these visits; c) 68% beleive that advertising strongly influences prescription practices; d) 14% related prescription practices to the receival of rewards; e) 68% beleive that information contained in advertisements is unreliable; f) before the RDC Resolution, 28% of advertisements had adequate information content (counter-indications, indications precautions, warnings, and adverse reactions); after the RDC Resolution, that number grew to 79%. PMID:17680073
Hostiuc, Sorin; Moldoveanu, Alin; Dascălu, Maria-Iuliana; Unnthorsson, Runar; Jóhannesson, Ómar I; Marcus, Ioan
Translational research tries to apply findings from basic science to enhance human health and well-being. Many phases of the translational research may include non-medical tasks (information technology, engineering, nanotechnology, biochemistry, animal research, economy, sociology, psychology, politics, and so on). Using common bioethics principles to these areas might sometimes be not feasible, or even impossible. However, the whole process must respect some fundamental, moral principles. The purpose of this paper is to argument the need for a different approach to the morality in translational bioethics, and to suggest some directions that might be followed when constructing such a bioethics. We will show that a new approach is needed and present a few ethical issues that are specific to the translational research. PMID:26767499
This article analyses, from a bioethics journal editor's perspective, the threats to academic freedom and freedom of expression that academic bioethicists and academic bioethics journals are subjected to by political activists applying pressure from outside of the academy. I defend bioethicists' academic freedom to reach and defend conclusions many find offensive and 'wrong'. However, I also support the view that academics arguing controversial matters such as, for instance, the moral legitimacy of infanticide should take clear responsibility for the views they defend and should not try to hide behind analytical philosophers' rationales such as wanting to test an argument for the sake of testing an argument. This article proposes that bioethics journals establish higher-quality requirements and more stringent mechanisms of peer review than usual for iconoclastic articles. PMID:23637435
Tawalare, Kiran A; Nanote, Kalpana D; Gawai, Vijay U; Gotmare, Ashish Y
Ethics deal with the set of principles of right conduct. The four basic principles of bioethics - autonomy, beneficence, non-maleficence and justice are known as "principlism". Though these four principles are influenced by the western world; in the medical field they are adapted as universal ethics. Originally, Ayurveda, the Indian medical system, has strongly advocated ethical code of conduct for physicians, but does not get its due recognition till this date. Proposed article aims to compare universally accepted basic tenets of bioethics and ancient Ayurvedic ethics. For this purpose classical texts of Ayurveda and literature regarding principlism was collected and analyzed thoroughly. It was found that the essence of ethics is very well-defined and described in the fundamental texts of Ayurveda in the form of Sadvritta, Chatushpada, Yogya, Vaidyavritti and Aachara Rasayana. Hence, Ayurveda should be considered as a trailblazer in establishing the basic tenets of bioethics. PMID:26195897
Van Campen, Luann E; Therasse, Donald G; Klopfenstein, Mitchell; Levine, Robert J
Current ethics and good clinical practice guidelines address various aspects of pharmaceutical research and development, but do not comprehensively address the bioethical responsibilities of sponsors. To fill this void, in 2010 Eli Lilly and Company developed and implemented a Bioethics Framework for Human Biomedical Research to guide ethical decisions. (See our companion article that describes how the framework was developed and implemented and provides a critique of its usefulness and limitations.) This paper presents the actual framework that serves as a company resource for employee education and bioethics deliberations. The framework consists of four basic ethical principles and 13 essential elements for ethical human biomedical research and resides within the context of our company's mission, vision and values. For each component of the framework, we provide a high-level overview followed by a detailed description with cross-references to relevant well regarded guidance documents. The principles and guidance described should be familiar to those acquainted with research ethics. Therefore the novelty of the framework lies not in the foundational concepts presented as much as the attempt to specify and compile a sponsor's bioethical responsibilities to multiple stakeholders into one resource. When such a framework is employed, it can serve as a bioethical foundation to inform decisions and actions throughout clinical planning, trial design, study implementation and closeout, as well as to inform company positions on bioethical issues. The framework is, therefore, a useful tool for translating ethical aspirations into action - to help ensure pharmaceutical human biomedical research is conducted in a manner that aligns with consensus ethics principles, as well as a sponsor's core values. PMID:26325585
Chattopadhyay, Subrata; De Vries, Raymond
The field of bioethics continues to struggle with the problem of cultural diversity: can universal principles guide ethical decision making, regardless of the culture in which those decisions take place? Or should bioethical principles be derived from the moral traditions of local cultures? Ten Have and Gordijn (2011) and Bracanovic (2011) defend the universalist position, arguing that respect for cultural diversity in matters ethical will lead to a dangerous cultural relativity where vulnerable patients and research subjects will be harmed. We challenge the premises of moral universalism, showing how this approach imports and imposes moral notions of Western society and leads to harm in non-western cultures. PMID:22955969
This article by one of the Editors of Bioethics, published in the 25th anniversary issue of the journal, describes some of the revolutionary changes academic publishing has undergone during the last decades. Many humanities journals went from typically small print-runs, counting by the hundreds, to on-line availability in thousands of university libraries worldwide. Article up-take by our subscribers can be measured efficiently. The implications of this and other changes to academic publishing are discussed. Important ethical challenges need to be addressed in areas such as the enforcement of plagiarism-related policies, the so-called 'impact factor' and its impact on academic integrity, and the question of whether on-line only publishing can currently guarantee the integrity of academic publishing histories. PMID:21175707
Bryant, John; la Velle, Linda Baggott
Points out the importance of awareness among biologists and biology teachers of the ethical and social implications of their work. Describes the bioethics module established at the University of Exeter mainly targeting students majoring in biology and science education. (Contains 18 references.) (Author/YDS)
Turrens, Julio F.
Undergraduate students in the Department of Biomedical Sciences at the University of South Alabama, Mobile, are required to take a course entitled "Issues in Biomedical Sciences," designed to increase students' awareness about bioethical questions and issues concerning research integrity. This paper describes the main features of this course and…
Mullet, Etienne; Sorum, Paul C.; Teysseire, Nathalie; Nann, Stephanie; Martinez, Guadalupe Elizabeth Morales; Ahmed, Ramadan; Kamble, Shanmukh; Olivari, Cecilia; Sastre, Maria Teresa Munoz
We present, in a synthetic way, some of the main findings from five studies that were conducted in the field of empirical bioethics, using the Functional Measurement framework. These studies were about (a) the rationing of rare treatments, (b) adolescents' abortions, (c) end-of-life decision-making regarding damaged neonates, (d) end-of-life…
Pyrrho, Monique; do Prado, Mauro Machado; Cordón, Jorge; Garrafa, Volnei
The Brazilian Dentistry Code of Ethics (DCE), Resolution CFO-71 from May 2006, is an instrument created to guide dentists' behavior in relation to the ethical aspects of professional practice. The purpose of the study is to analyze the above mentioned code comparing the deontological and bioethical focuses. In order to do so, an interpretative analysis of the code and of twelve selected texts was made. Six of the texts were about bioethics and six on deontology, and the analysis was made through the methodological classification of the context units, textual paragraphs and items from the code in the following categories: the referentials of bioethical principlism--autonomy, beneficence, nonmaleficence and justice -, technical aspects and moral virtues related to the profession. Together the four principles represented 22.9%, 39.8% and 54.2% of the content of the DCE, of the deontological texts and of the bioethical texts respectively. In the DCE, 42% of the items referred to virtues, 40.2% were associated to technical aspects and just 22.9% referred to principles. The virtues related to the professionals and the technical aspects together amounted to 70.1% of the code. Instead of focusing on the patient as the subject of the process of oral health care, the DCE focuses on the professional, and it is predominantly turned to legalistic and corporate aspects. PMID:19851604
In this first Bioethical Issues column the author outlines some of the distinctions and congruities between ethics and law, and between bioethics and medical law. The evidence for connections is obvious and wide-ranging, appearing within health and medical education, the academic literature, statute and case law, professional guidelines and the activities of professional associations, the history of legal practice and philosophical inquiry, and the emergence of human rights theory and applications. The interpenetration of morals and law is examined first by briefly tracing the development of natural law and legal positivism. These links are then developed through a number of examples which are the subjects of both bioethical and legal interest: decision-making capacity, what constitutes good medical practice in the advance care planning context, sex selection, embryo experimentation and posthumous conception. These topics illustrate some of the explicit and some of the less obvious ways in which moral considerations and medical law interact, and suggest that biolaw can involve inconsistencies and even obfuscation which, while difficult to avoid in plural societies, are appropriate areas for examination. In the final section the author argues that bioethics and medical law share some important logical features, including a prescriptivist, principled structure, which is subject to the related requirements of specification and universalisability. Again, medico-legal illustrations are used to support this proposal, which also constitutes a suitable topic for critique. Future columns will provide the opportunity for those who care about the issues of bioethics and medical law to share their thoughts and those of their colleagues. PMID:18365517
Islam, Sharmin; Nordin, Rusli Bin; Bin Shamsuddin, Ab Rani; Mohd Nor, Hanapi Bin; Al-Mahmood, Abu Kholdun
The comparative approach regarding the ethics of surrogacy from the Western secular and Islamic bioethical view reveals both commensurable and incommensurable relationship. Both are eager to achieve the welfare of the mother, child and society as a whole but the approaches are not always the same. Islamic bioethics is straightforward in prohibiting surrogacy by highlighting the lineage problem and also other social chaos and anarchy. Western secular bioethics is relative and mostly follows a ...
This article aims to contribute to a deeper reflection on intercultural conflicts within the bioethics scope, and to point out the problem of using human rights as a theoretical normative mediator of the conflicts in bioethics that bear elements of interculturalism. The methodological steps adopted in this inquiry were: analysis of the concept of intercultural conflict in bioethics, from the perception developed by Colectivo Amani; study of human rights as tools of the culture of human beings...
Islam, Sharmin; Nordin, Rusli Bin; Bin Shamsuddin, Ab Rani; Mohd Nor, Hanapi Bin; Al-Mahmood, Abu Kholdun
The comparative approach regarding the ethics of surrogacy from the Western secular and Islamic bioethical view reveals both commensurable and incommensurable relationship. Both are eager to achieve the welfare of the mother, child and society as a whole but the approaches are not always the same. Islamic bioethics is straightforward in prohibiting surrogacy by highlighting the lineage problem and also other social chaos and anarchy. Western secular bioethics is relative and mostly follows a utilitarian approach. PMID:23864994
Lora Jean Brake
At first glance the twenty-first century arena of biotechnology and bioethics seems worlds away from the practical concerns of the first century outlook of the New Testament book of James. A closer look, however, reveals that the issues that James addresses have applications to challenges in bioethics. This article will give an overview of James and examine James’ teaching on wealth, poverty, and generosity and its import for the issue of global stewardship in bioethics. Stewardship concerns...
Despite the fact that bioethics is, basically, an interdisciplinary scientific field, it is deeply intertwined with less objectivistic, yet important, threads of morality and religion. From the beginning, in the United States, the language of bioethics has been shaped by theologians and people who do not neglect the religious approaches of particular scientific issues. This paper examines the possibility of using religious and nonreligious terminologies in the bioethical discourse, paying clo...
Powell, Tia; Foglia, Mary Beth
Our goal in producing this special issue is to encourage our colleagues to incorporate topics related to LGBT populations into bioethics curricula and scholarship. Bioethics has only rarely examined the ways in which law and medicine have defined, regulated, and often oppressed sexual minorities. This is an error on the part of bioethics. Medicine and law have served in the past as society's enforcement arm toward sexual minorities, in ways that robbed many people of their dignity. We feel that bioethics has an obligation to discuss that history and to help us as a society take responsibility for it. We can address only a small number of topics in this special issue of the Hastings Center Report, and we selected topics we believe will stimulate discourse. Andrew Solomon offers an elegant overview of the challenges that bioethics faces in articulating a solid basis for LGBT rights. Timothy F. Murphy asks whether bioethics still faces issues related to lesbian, gay, and bisexual people, given the deletion of homosexuality as a disease and the progress toward same-sex marriage. Jamie Lindemann Nelson's essay addresses the search for identity for transgender persons and the role of science in that search. Two articles, those by Brendan S. Abel and by Jack Drescher and Jack Pula, take up the complex issue of medical treatment for children who reject their assigned birth gender. Celia B. Fisher and Brian Mustanski address the special challenges of engaging LGBT youth in research, balancing the need for better information about this vulnerable group against the existing restrictions on research involving children. Tia Powell and Edward Stein consider the merits of legal bans on psychotherapies intended to change sexual orientation, particularly in the light of current research on orientation. Mary Beth Foglia and Karen I. Fredricksen-Goldsen highlight health disparities and resilience among LGBT older adults and then discuss the role of nonconscious bias in perpetuating
This article examines the emergence and consolidation of bioethics as a discipline from a sociological perspective. This reconstruction helps us to understand on the one hand what is meant by bioethics and what its practices and areas of inquiry are, and on the other to identify various concepts and expert opinions about what the field of study for bioethics should be, opinions which lead in practice to different applications of the discipline in health sciences. This becomes relevant for epistemological discussions about the discipline and for consolidating a sociology of bioethics in the context of Ibero-America. PMID:26625913
... an advisory panel of the nation's leaders in medicine, science, ethics, religion, law, and... biomedicine and related areas of science and technology. The Bioethics Commission seeks to identify...
...'s leaders in medicine, science, ethics, religion, law, and engineering. The Commission advised the President on bioethical issues arising from advances in biomedicine and related areas of science...
... medicine, science, ethics, religion, law, and engineering. The Commission advises the President on bioethical issues arising from advances in biomedicine and related areas of science and technology....
...'s leaders in medicine, science, ethics, religion, law, and engineering. The Commission advises the President on bioethical issues arising from advances in biomedicine and related areas of science...
The UNESCO Universal Declaration on Bioethics and Human Rights of 2005 purports to articulate universal norms for bioethics. However, this document has met with mixed reviews. Some deny that the elaboration of universal bioethics norms is needed; some deny that UNESCO has the expertise or authority to articulate such norms; some regard the content of the UNESCO document as too vague or general to be useful; and some regard the document as a cog in the effort of like-minded cosmopolitans to codify their particular moral intuitions in international law. This issue examines the potential merits and pitfalls of the Universal Declaration on Bioethics and Human Rights. PMID:19387002
Pragmatism has been understood by bioethicists as yet another rival in the "methods wars," as yet another theory of moral deliberation. This has led to criticism of pragmatic bioethics as both theoretically and practically inadequate. Pragmatists' responses to these objections have focused mainly on misunderstandings of pragmatism's epistemology. These responses are insufficient. Pragmatism's commitment to radical empiricism gives it theoretical resources unappreciated by critics and defenders alike. Radical empiricism, unlike its more traditional ancestors, undercuts the gaps between theory and practice, and subjective and objective accounts of experience, and in so doing provides the metaphysical and epistemological basis for a thoroughgoing empirical naturalism in ethics. Pragmatism's strength as an approach to moral problems thus emerges as a result of a much wider array of resources than contemporary interpreters have acknowledged, which makes it a richer, deeper framework for understanding moral deliberation in general and bioethical decision making in particular. PMID:23878348
In bioethical discussions of preimplantation genetic diagnosis and prenatal screening, accusations of eugenics are commonplace, as are counter-claims that talk of eugenics is misleading and unhelpful. This paper asks whether “eugenics talk”, in this context, is legitimate and useful or something to be avoided. It also looks at the extent to which this linguistic question can be answered without first answering relevant substantive moral questions. Its main conclusion is that the best and most...
Chowning, Jeanne Ting; Griswold, Joan Carlton; Kovarik, Dina N.; Collins, Laura J.
Developing a position on a socio-scientific issue and defending it using a well-reasoned justification involves complex cognitive skills that are challenging to both teach and assess. Our work centers on instructional strategies for fostering critical thinking skills in high school students using bioethical case studies, decision-making frameworks, and structured analysis tools to scaffold student argumentation. In this study, we examined the effects of our teacher professional development an...
Author in this paper refers to ethical and bioethical issues and implications characteristic within female elite gymnastics. Female gymnastics is not the only sport, whose ethics can be called into question, but it is specific, because the female elite gymnasts are mostly under aged girls, and they are faced with both, demanding sport and pressure from parents and coaches. Contemporary athletes are often called modern gladiators. Acute injuries, chronic diseases and various psychosomatic diso...
Ahmadi Nasab Emran, Shahram
In Bioethics and Secular Humanism: The Search for a Common Morality, Tristram Engelhardt examines various possibilities of finding common ground for moral discourse among people from different traditions and concludes their futility. In this paper I will argue that many of the assumptions on which Engelhardt bases his conclusion about the impossibility of a content-full secular bioethics are problematic. By starting with the notion of moral strangers, there is no possibility, by definition, for a content-full moral discourse among moral strangers. It means that there is circularity in starting the inquiry with a definition of moral strangers, which implies that they do not share enough moral background or commitment to an authority to allow for reaching a moral agreement, and concluding that content-full morality is impossible among moral strangers. I argue that assuming traditions as solid and immutable structures that insulate people across their boundaries is problematic. Another questionable assumption in Engelhardt's work is the idea that religious and philosophical traditions provide content-full moralities. As the cardinal assumption in Engelhardt's review of the various alternatives for a content-full moral discourse among moral strangers, I analyze his foundationalist account of moral reasoning and knowledge and indicate the possibility of other ways of moral knowledge, besides the foundationalist one. Then, I examine Engelhardt's view concerning the futility of attempts at justifying a content-full secular bioethics, and indicate how the assumptions have shaped Engelhardt's critique of the alternatives for the possibility of content-full secular bioethics. PMID:26715286
The refusal of medical treatment is a recurrent topic in bioethical debates and Jehovah's Witnesses often constitute an exemplary case in this regard. The refusal of a potentially life-saving blood transfusion is a controversial choice that challenges the basic medical principle of acting in patients' best interests and often leads physicians to adopt paternalistic attitudes toward patients who refuse transfusion. However, neither existing bioethical nor historical and social sciences scholarship sufficiently addresses experiences of rank-and-file Witnesses in their dealings with the health care system. This article draws on results of a nine-month (2010, 2011-2012) ethnographic research on the relationship between religious, legal, ethical, and emotional issues emerging from the refusal of blood transfusions by Jehovah's Witnesses in Germany (mainly in Berlin). It shows how bioethical challenges are solved in practice by some German physicians and what they perceive to be the main goal of biomedicine: promoting the health or broadly understood well-being of patients. I argue that two different understandings of the concept of autonomy are at work here: autonomy based on reason and autonomy based on choice. The first is privileged by German physicians in line with a Kantian philosophical tradition and constitutional law; the second, paradoxically, is utilized by Jehovah's Witnesses in their version of the Anglo-Saxon Millian approach. PMID:23538204
The family is the exemplar community of Chinese society. This essay explores how Chinese communitarian norms, expressed in thick commitments to the authority and autonomy of the family, are central to contemporary Chinese bioethics. In particular, it focuses on the issue of surrogate decision making to illustrate the Confucian family-grounded communitarian bioethics. The essay first describes the way in which the family, in Chinese bioethics, functions as a whole to provide consent for significant medical and surgical interventions when a patient has lost decision-making capacity. It is argued that the practice of not having an established order for surrogate decision makers (e.g., spouse, children, and then parents), as it is done in the United States, reflects the acknowledgment that the family as a social reality cannot be reduced to a stereotype of the appropriate order of default decision makers. This description of the family as being in authority to make surrogate decisions for an incompetent family member is enriched by an elaboration of the differences among the concepts of patient autonomy, family autonomy, and moral autonomy. The Chinese model, as well as the Confucian communitarian life of families, engages a family autonomy that is supported by a Confucian understanding of moral autonomy, rather than individual autonomy. Finally, the issue of possible conflicts between patient and family interests in relation to a patient's past wishes in the Chinese model is addressed in light of the role of the physician. PMID:21858670
Guyer, Ruth Levy; Dillon, Mary Lou; Anderson, Linda; Szobota, Lola
Discusses the use of bioethics and bioethical dilemmas in different subject areas at the high school level by focusing on the case of Baby K. Includes the story of Baby K, classroom activities for U.S. history, 10th and 11th grade ethics, and anatomy and physiology. (CMK)
Solberg, Mary M.
Teaching bioethics might be likened to a rollercoaster ride of twists, turns, and dips that invite teachers and students to experience something of their own edges of fear and comfort. Here the author provides readers with a glimpse into her distinctive approach to teaching bioethics that encourages students to move beyond boundaries of personal…
Notes that life-saving advances in medicine have created difficult ethical and legal dilemmas for health care professionals. Presents beginning knowledge base for bioethical practice, especially in hospital neonatal units. Outlines key elements of bioethical decision making and examines potential social work role from clinical and organizational…
Precollegiate education has paid little attention to the bioethical underpinning of recent innovations. Without a deliberate commitment to bioethical education, confusion and divisiveness regarding genetic testing are likely to challenge harmony in families and further polarize the already fragmented society. This article presents the following…
Full Text Available This article aims to contribute to a deeper reflection on intercultural conflicts within the bioethics scope, and to point out the problem of using human rights as a theoretical normative mediator of the conflicts in bioethics that bear elements of interculturalism. The methodological steps adopted in this inquiry were: analysis of the concept of intercultural conflict in bioethics, from the perception developed by Colectivo Amani; study of human rights as tools of the culture of human beings, based on Bauman’s and Beauchamp’s theories; investigation of the toolsthat human rights offer so as to solve intercultural conflicts in bioethics. It was concluded that intercultural bioethics must incorporate to its prescriptive and descriptive tasks norms and institutions of human rights that ensure the participation and social integration of the individuals from communities that are in cultural conflict. Such measure will act as instrumentsfor the solution of intercultural conflicts.
The recent interest in systematic review methods in bioethics has highlighted the need for greater transparency in all literature review processes undertaken in bioethics projects. In this article, I articulate features of a good bioethics literature review that does not aim to be systematic, but rather to capture and analyse the key ideas relevant to a research question. I call this a critical interpretive literature review. I begin by sketching and comparing three different types of literature review conducted in bioethics scholarship. Then, drawing on Dixon-Wood's concept of critical interpretive synthesis, I put forward six features of a good critical interpretive literature review in bioethics: answering a research question, capturing the key ideas relevant to the research question, analysing the literature as a whole, generating theory, not excluding papers based on rigid quality assessment criteria, and reporting the search strategy. PMID:25655982
Marin, Ana; Bouffard, Chantal
At a time in which the ethical awareness towards socio-cultural diversity is a necessity, it seems of paramount importance to explore what is meant by bioethics. Without being exhaustive, this paper suggests to scrutinize the key defnitions of bioethics, considering their evolution over time as well as their convergence with anthropology. Starting with its global and its restricted definitions, this article examines certain differences or definitional imprecisions in the light of the concepts used by bioethicists and anthropologists in their conception of bioethics. While this exercise shows the pertinence of the conceptual tools proposed by anthropology to facilitate the cultural diversity's integration into bioethics, it ultimately challenges an anthropological approach that has been unable to mainstream this knowledge into the definition of bioethics. PMID:26911078
O'Mathúna Dónal P
Full Text Available Abstract Background The justification for Nazi programs involving involuntary euthanasia, forced sterilisation, eugenics and human experimentation were strongly influenced by views about human dignity. The historical development of these views should be examined today because discussions of human worth and value are integral to medical ethics and bioethics. We should learn lessons from how human dignity came to be so distorted to avoid repetition of similar distortions. Discussion Social Darwinism was foremost amongst the philosophies impacting views of human dignity in the decades leading up to Nazi power in Germany. Charles Darwin's evolutionary theory was quickly applied to human beings and social structure. The term 'survival of the fittest' was coined and seen to be applicable to humans. Belief in the inherent dignity of all humans was rejected by social Darwinists. Influential authors of the day proclaimed that an individual's worth and value were to be determined functionally and materialistically. The popularity of such views ideologically prepared German doctors and nurses to accept Nazi social policies promoting survival of only the fittest humans. A historical survey reveals five general presuppositions that strongly impacted medical ethics in the Nazi era. These same five beliefs are being promoted in different ways in contemporary bioethical discourse. Ethical controversies surrounding human embryos revolve around determinations of their moral status. Economic pressures force individuals and societies to examine whether some people's lives are no longer worth living. Human dignity is again being seen as a relative trait found in certain humans, not something inherent. These views strongly impact what is taken to be acceptable within medical ethics. Summary Five beliefs central to social Darwinism will be examined in light of their influence on current discussions in medical ethics and bioethics. Acceptance of these during the Nazi
This philosophical inquiry examines the nature of the technology of genetic predisposition testing and its relation to patients as whole persons. The bioethical principles of non-maleficence, beneficence, autonomy and justice are judged insufficient to resolve issues associated with use. A new principle of 'sustained being', drawn from philosophical propositions of Pellegrino, is suggested. The new principle is suited to an evolving practice and is compatible with consequentialist, deontological and relational ethics theories. The notion of 'taking care' is related to nursing in genetic health care to form a standard of conduct and a moral imperative to 'safeguard being'. PMID:12762460
Full Text Available En Occident, on semble généralement persuadé que ce qui y est appelé la bioéthique peut s’exporter mondialement. En fait les excellentes études qui ont été consacrées aux indiens Hopi montrent que notre bioéthique y serait totalement incompréhensible. Et l’enquête faite chez les Hopis donnerait des résultats très semblables dans d’autres sociétés dites « traditionnelles », dénomination qui signale l’autre aspect du problème. L’Occident, qui prétend étendre la bioéthique, en plus de ce qu’il appelle le droit, la démocratie et d’autres valeurs qui sont en fait une façon d’afficher sa supériorité et sa stratégie de conquête, cet Occident dissimule derrière son discours civilisateur la réalité d’une pensée sauvage qui se perçoit fort bien lorsque le prêche bioéthique dissimule mal les interdits des sacralités primitives.The Western world seems generally convinced that what is labelled as bioethics can be exported throughout the world. In fact the excellent research devoted to Hopi indians shows that our bioethics would be there totally impossible for them to understand. And the study carried out among the Hopis would produce very similar results in other so-called « traditional » societies. When the West claims the extension of bioethics in addition to law, democracy and other values, this may in fact be analyzed as a way of displaying its superiority and its strategy of conquest. It conceals behind its civilizing discourse the reality of a savage mind which is clearly perceptible, for its bioethical sermonising barely hides the taboos of its primitive sacrednesses .
In recent years there has been a wealth of literature arguing the need for empirical and interdisciplinary approaches to bioethics, based on the premise that an empirically informed ethical analysis is more grounded, contextually sensitive and therefore more relevant to clinical practice than an 'abstract' philosophical analysis. Bioethics has (arguably) always been an interdisciplinary field, and the rise of 'empirical' (bio)ethics need not be seen as an attempt to give a new name to the longstanding practice of interdisciplinary collaboration, but can perhaps best be understood as a substantive attempt to engage with the nature of that interdisciplinarity and to articulate the relationship between the many different disciplines (some of them empirical) that contribute to the field. It can also be described as an endeavour to explain how different disciplinary approaches can be integrated to effectively answer normative questions in bioethics, and fundamental to that endeavour is the need to think about how a robust methodology can be articulated that successfully marries apparently divergent epistemological and metaethical perspectives with method. This paper proposes 'Reflexive Bioethics' (RB) as a methodology for interdisciplinary and empirical bioethics, which utilizes a method of 'Reflexive Balancing' (RBL). RBL has been developed in response to criticisms of various forms of reflective equilibrium, and is built upon a pragmatic characterization of Bioethics and a 'quasi-moral foundationalism', which allows RBL to avoid some of the difficulties associated with RE and yet retain the flexible egalitarianism that makes it intuitively appealing to many. PMID:23444909
Hiemke Katharina Schmidt
Full Text Available Prior knowledge is known to facilitate learning new information. Normally in studies confirming this outcome the relationship between prior knowledge and the topic to be learned is obvious: the information to be acquired is part of the domain or topic to which the prior knowledge belongs. This raises the question as to whether prior knowledge of various domains facilitates recalling information. In this study 79 eleventh-grade students completed a questionnaire on their prior knowledge of seven different domains related to the bioethical dilemma of prenatal diagnostics. The students read a text containing arguments for and arguments against prenatal diagnostics. After one week and again 12 weeks later they were asked to write down all the arguments they remembered. Prior knowledge helped them recall the arguments one week (r = .350 and 12 weeks (r = .316 later. Prior knowledge of three of the seven domains significantly helped them recall the arguments one week later (correlations between r = .194 to r = .394. Partial correlations with interest as a control item revealed that interest did not explain the relationship between prior knowledge and recall. Prior knowledge of different domains jointly supports the recall of arguments related to bioethical topics.
Hubbard, William J; Dashti, Nassrin
The aged patient stands at the nexus of significant biomedical and bioethical issues in transplantation. This in itself can be seen as a microcosm of an imminent global tempest, stemming from expanding numbers and longer lives of the aged population. As a candidate for receiving organ and tissue transplants, the geriatric patient is challenging because they present unique physiology for medical management. As organ and tissue donors, the aged are perceived of as providing "marginal" organs, which drives the fear that the graft will fail before the recipient. Such difficulties lead inexorably to several unique bioethical considerations for transplantation with this population. The thorny conundrums for society hinge on fairness versus discrimination based on age, played out under the enormous and probably intractable problem of severe donor organ shortages. Fortunately, recent findings offer some rather unexpected new and favorable prospects. Notably, aged donors can provide organs with good, lifesaving function, even though there are nonetheless age-related compromises present. On the other side of the coin, there is less doubt that recipients can have their lives extended with high quality through transplantation. Here they benefit from some (counterintuitively) positive attributes for aging, such as reduced immune function, making immunosuppression less rigorous. Finally, the pressure of organ and tissue shortages plus the lifting of bans on embryonic stem cell research have portents for an explosive alternative to transplantation of adult organs. Stem cells also lend credibility to prospects for realizing regenerative medicine, assuming ethical and religious concerns can be satisfied. PMID:22396872
María Natalia Zavadivker
Full Text Available This article seeks to investigate to what extent the resulting empirical data from various experiments in Moral Psychology (some behavioral, others based on evidence from neuroimaging and in patients with brain lesions associated with moral competence areas , can contribute to a better understanding of the psychological processes (cognitive and emotional underlying to our moral practical judgments, helping us to understand the mechanisms that influence our assessment of moral dilemmas in general and bioethics in particular. Various experiments are discussed (and the theoretical models that are supported that reveal aspects such as the role of disgust or repugnance in the production of moral judgments, the competitive or cooperative role of emotions and cognitions in impersonal and personal moral dilemmas -and between the above mentioned, easy and difficult-, the neurophysiological bases of deontologist and consequentialist, the value attributed to the intent and the results of action, etc. The relevance of these experiments are analyzed to understand the evaluative and deliberative processes concerning various bioethical dilemmas, for which appeals to examples of conflict situations involved and our emotional resources (that activate immediate assessment and our higher cortical areas interact (cognitive processes responsible for slower deliberative and reflexive.
Jones, S F; Kessel, A S
Biomedicine is a global enterprise constructed upon the belief in the universality of scientific truths. However, despite huge scientific advances over recent decades it has not been able to formulate a specific and universal definition of death: In fact, in its attempt to redefine death, the concept of death appears to have become immersed in ever increasing vagueness and ambiguity. Even more worrisome is that bioethics, in the form of principlism, is also endeavouring to become a global enterprise by claiming neutrality. It appears that the discourse within both disciplines have similarly manipulated the boundaries of death to include the "dying". This paper argues that the redefinition of death debate in biomedicine reveals a concept of personhood which is profoundly western in origin and which is in accordance to the concept adhered to within principlism. Biomedicine and bioethics do not appear to acknowledge the limitations of their own world view and hence lack an understanding of their applicability and appropriateness in diverse social and cultural contexts; a situation which adds credence to claims as to the hegemonic and imperialistic nature of all such global enterprises. PMID:11214385
Mizuno, Toshinari; Slingsby, Brian Taylor
Religious traditions can play a significant role in the shaping of bioethical thought. In Japan, traditional Buddhist and Shinto thought continue to influence contemporary bioethical perspectives. To better define this relationship, this paper examines the correlation between Japanese bioethical perspectives and Buddhist and Shinto thought. An in-depth discussion explores how Buddhist and Shinto scholars have used fundamental concepts with each religious tradition to agree and disagree with the disclosure of an incurable disease to a patient, brain death, and brain-dead organ transplantation. PMID:17269549
Bloom, Arthur; Constan, Phyllis
A bioethics unit aimed at taking biology out of the laboratory and classroom and into the world. An experience in which students not only begin to understand reasons for making decisions, but also understand how values change. (Author/EB)
Yang, Wan-Ping; Chen, Ching-Huey; Chao, Co-Shi Chantal; Lai, Wei-Shu
To understand the gaps between current bioethics education and the requirements of practicing nurses, a semistructured questionnaire was used to invite the directors of nursing departments at all 82 teaching hospitals in Taiwan to participate in this survey. The response rate was 64.6%. Through content analysis we obtained information about previous bioethical training, required themes and content, recommended teaching strategies, and difficulties with education and its application. The results suggest that Taiwanese nursing personnel need to be instilled with both self-cultivation of morality and mental cultivation to acquire nursing virtues and the right attitudes toward bioethical issues. Good communication skills to prevent damage to the harmonious relationships between patients, their families and medical team members, policies that support the provision of systematic formal knowledge of ethics, small group training, and clarification of values were also shown to be important in bioethics education. PMID:20610584
... advisory panel of the nation's leaders in medicine, science, ethics, religion, law, and engineering. The... related areas of science and technology. The Bioethics Commission seeks to identify and promote...
Loike, John D.; Rush, Brittany S.; Schweber, Adam; Fischbach, Ruth L.
Columbia University offers two innovative undergraduate science-based bioethics courses for student majoring in biosciences and pre–health studies. The goals of these courses are to introduce future scientists and healthcare professionals to the ethical questions they will confront in their professional lives, thus enabling them to strategically address these bioethical dilemmas. These courses incorporate innovative pedagogical methods, case studies, and class discussions to stimulate the stu...
Marina Alekseevna Nikulina
In article the conceptual analysis of a phenomenon of subjectivity in the space of a modern bioethical reflection is given, the main transformations of subjectivity, adherent by a post-nonclassical paradigm and development of biotechnological activities are determined. Social and sociological loading of a concept "subjectivity" is connected with judgment of incorporated moral components. Proving the need of ethical parameterization of subjectivity for a bioethical discourse, the author opens ...
Pandya, Radhika H; Shukla, Radha; Gor, Alpa P; Ganguly, Barna
The principles of bioethics have been identified as important requirements for training basic medical doctors. Till now, various modalities have been used for teaching bioethics, such as lectures, followed by a small case-based discussion, case vignettes or debates among students. For effective teaching-learning of bioethics, it is necessary to integrate theory and practice rather than merely teach theoretical constructs without helping the students translate those constructs into practice. Classroom teaching can focus on the theoretical knowledge of professional relationships, patient-doctor relationships, issues at the beginning and end of life, reproductive technologies, etc. However, a better learning environment can be created through an experiencebased approach to complement lectures and facilitate successful teaching. Engaging students in reflective dialogue with their peers would allow them to refine their ideas with respect to learning ethics. It can help in the development both of the cognitive and affective domains of the teaching of bioethics. Real-life narratives by the interns, when used as case or situation analysis models for a particular ethical issue, can enhance other students' insight and give them a moral boost. Doing this can change the classroom atmosphere, enhance motivation, improve the students' aptitude and improve their attitude towards learning bioethics. Involving the students in this manner can prove to be a sustainable way of achieving the goal of deep reflective learning of bioethics and can serve as a new technique for maintaining the interest of students as well as teachers. PMID:27474694
The paper explores the backward and forward linkage between HCL and bioethics. Indeed, the relationship between the two is so close that it can be considered one of symbiosis. This is particularly the case when an account is taken of how HCL and bioethics positively benefitted from each other in diverse ways during their development into their present status as discrete disciplines. In the first place, the aftermath of the Second World War, such as the Nuremberg trial and unprecedented medical experiment scandals in the 1960s/70s fuelled the increasing participation of lay scholars in exploring and critiquing medical ethics which culminated in the emergence ofbioethics.2 This in turn facilitated the evolution of HCL as a discipline, since academic lawyers involved in early bioethical discourse developed interest in exploring the interface between law and bioethics at the same time that society was waking up to the ethical implications of medical advances. As HCL emerged as a discrete discipline, it consolidated the status of bioethics as a field of inquiry by projecting the relevance of the latter in adjudication of novel cases with significant slippery moral undertones. Thus, the chicken and egg paradox finds a perfect reflection in the emergence of health care law and bioethics in England and Wales. PMID:24946511
If we want to take firm the importance of universal principles in Bioethics, but at the same time we want to take seriously the importance of cultural diversity and pluralism, it is necessary to adopt a multifaceted approach. In the article I argue that a possible way out is a sort of hermeneutic approach, in order to reduce the ambivalence that stems from the dual recognition of cultural diversity and universal value of human rights. Through this approach conflicting principles and traditions can be harmonized within a common framework, at least to some extent. Such an approach, in my perspective, can be implemented as a strategy of interpretation, which can hold together different conceptions and common principles. PMID:26860625
Fitzpatrick, Scott J; Kerridge, Ian H; Jordens, Christopher F C; Zoloth, Laurie; Tollefsen, Christopher; Tsomo, Karma Lekshe; Jensen, Michael P; Sachedina, Abdulaziz; Sarma, Deepak
The prevention and relief of suffering has long been a core medical concern. But while this is a laudable goal, some question whether medicine can, or should, aim for a world without pain, sadness, anxiety, despair or uncertainty. To explore these issues, we invited experts from six of the world's major faith traditions to address the following question. Is there value in suffering? And is something lost in the prevention and/or relief of suffering? While each of the perspectives provided maintains that suffering should be alleviated and that medicine's proper role is to prevent and relieve suffering by ethical means, it is also apparent that questions regarding the meaning and value of suffering are beyond the realm of medicine. These perspectives suggest that medicine and bioethics have much to gain from respectful consideration of religious discourse surrounding suffering. PMID:25680422
The Hastings Center was founded in 1969 to study ethical problems in medicine and biology. The Center arose from a confluence of three social currents: the increased public scrutiny of medicine and its practices, the concern about the moral problems being generated by technological developments, and the desire of one of its founders (Callahan) to make use of his philosophical training in a more applied way. The early years of the Center were devoted to raising money, developing an early agenda of issues, and identifying a cadre of people around the country interested in the issues. Various stresses and strains in the Center and the field are identified, and some final reflections are offered on the nature and value of the contributions made by bioethics as an academic field. PMID:22198414
Jeanne Ting Chowning
Full Text Available Developing a position on a socio-scientific issue and defending it using a well-reasoned justification involves complex cognitive skills that are challenging to both teach and assess. Our work centers on instructional strategies for fostering critical thinking skills in high school students using bioethical case studies, decision-making frameworks, and structured analysis tools to scaffold student argumentation. In this study, we examined the effects of our teacher professional development and curricular materials on the ability of high school students to analyze a bioethical case study and develop a strong position. We focused on student ability to identify an ethical question, consider stakeholders and their values, incorporate relevant scientific facts and content, address ethical principles, and consider the strengths and weaknesses of alternate solutions. 431 students and 12 teachers participated in a research study using teacher cohorts for comparison purposes. The first cohort received professional development and used the curriculum with their students; the second did not receive professional development until after their participation in the study and did not use the curriculum. In order to assess the acquisition of higher-order justification skills, students were asked to analyze a case study and develop a well-reasoned written position. We evaluated statements using a scoring rubric and found highly significant differences (p<0.001 between students exposed to the curriculum strategies and those who were not. Students also showed highly significant gains (p<0.001 in self-reported interest in science content, ability to analyze socio-scientific issues, awareness of ethical issues, ability to listen to and discuss viewpoints different from their own, and understanding of the relationship between science and society. Our results demonstrate that incorporating ethical dilemmas into the classroom is one strategy for increasing student
Bryan, Charles S
Problems posed by HIV/AIDS differ from those of past epidemics by virtue of unique properties of the causative agent, dramatic societal changes of the late 20th century, and the transition of medical practice from a professional ethic to a technology-dependent business ethic. HIV/AIDS struck during the coming-of-age of molecular biology and also of bioethics, and the epidemic stimulated the growth of both disciplines. The number of articles published about AIDS and ethics (as identified by a MEDLINE search) peaked in 1990, just before the peak incidence of AIDS in the United States. The character of ethical dialogue has now shifted from familiar moral quandaries such as civil liberty versus public welfare to concerns about vaccine trials and public policy toward the developing world. Physicians and other health care workers who were involved from the onset endured something of an emotional roller coaster. Their compassion-based work ethic was to a large extent replaced by a competence-based work ethic after the introduction in 1996 of highly active antiretroviral therapy. The abundant recent literature on "professionalism" in medicine makes scant mention of AIDS/HIV. The disruptive effect of AIDS/HIV on society would have been substantially greater had relevant technology such as the ability to isolate retroviruses and potent therapy against tuberculosis not been in place. This sobering consideration, along with such recent events as the use of bioterrorism against civilian populations, suggests new relevance for Potter's definition of "bioethics" as a science of survival in which the biology of ecosystems must be taken into account. PMID:15971565
Chowning, Jeanne Ting; Griswold, Joan Carlton; Kovarik, Dina N; Collins, Laura J
Developing a position on a socio-scientific issue and defending it using a well-reasoned justification involves complex cognitive skills that are challenging to both teach and assess. Our work centers on instructional strategies for fostering critical thinking skills in high school students using bioethical case studies, decision-making frameworks, and structured analysis tools to scaffold student argumentation. In this study, we examined the effects of our teacher professional development and curricular materials on the ability of high school students to analyze a bioethical case study and develop a strong position. We focused on student ability to identify an ethical question, consider stakeholders and their values, incorporate relevant scientific facts and content, address ethical principles, and consider the strengths and weaknesses of alternate solutions. 431 students and 12 teachers participated in a research study using teacher cohorts for comparison purposes. The first cohort received professional development and used the curriculum with their students; the second did not receive professional development until after their participation in the study and did not use the curriculum. In order to assess the acquisition of higher-order justification skills, students were asked to analyze a case study and develop a well-reasoned written position. We evaluated statements using a scoring rubric and found highly significant differences (pstrategies and those who were not. Students also showed highly significant gains (p<0.001) in self-reported interest in science content, ability to analyze socio-scientific issues, awareness of ethical issues, ability to listen to and discuss viewpoints different from their own, and understanding of the relationship between science and society. Our results demonstrate that incorporating ethical dilemmas into the classroom is one strategy for increasing student motivation and engagement with science content, while promoting reasoning
Full Text Available Problem statement: With the advent of globalization and information and communication technology (ICT, web-facilitated learning strategy has taken an important role in the learning and teaching process. This paper examines how bioethics principles on human dignity and human rights can be learned through web-facilitated learning strategies among tertiary level International Relations students. Bioethics is an emerging field that concerns states and inter-state relations. It is about thinking globally about ethics and about our moral judgment about life, the environment and other species. The objective of this study is to provide an assessment on how graduate students of International Relations use web-based tools to gather information about global bioethics principles. Approach: The research data is collected through feedbacks solicited from some 40 post-graduate students of International Relations on (i self-assessment on the learning acquired regarding the bioethics principles using web resources and (ii through a set of pre- and post-tests to test the knowledge acquired on the subject matter. Results: The findings reveal that through the use of web-facilitated learning strategy respondents showed increased comprehension and receptiveness towards bioethics principles on human dignity and human rights. Conclusion: Therefore the study concludes that the use of web-facilitated learning strategy can emphasize the importance of bioethics principles in understanding the ethical framework in dealing with human dignity and human rights. The research findings may provide useful information for scholars and researchers developing teaching strategies using bioethics resources.
Cohen, Cynthia B
National bioethics commissions have struggled to develop ethically warranted methods for conducting their deliberations. The National Bioethics Advisory Commission in its report on stem cell research adopted an approach to public deliberation indebted to Rawls in that it sought common ground consistent with shared values and beliefs at the foundation of a well-ordered democracy. In contrast, although the research cloning and stem cell reports of the President's Council on Bioethics reveal that it broached two different methods of public deliberation--balancing goods and following an overarching moral principle--it adopted neither. Thereupon its primer mover, Leon Kass, influenced particularly by the approach of Leo Strauss, sought to develop a method of public deliberation guided by tradition and practical wisdom. When this failed, the Council fell back on a method that took account of shared fundamental values of a free democracy--a method remarkable akin to that employed by the National Bioethics Advisory Commission. Respect for diverse reasonable conceptions of the good in a democratic polity requires national bioethics commissions to seek and incorporate that which is valuable in opposing positions. PMID:16250108
Harmon, Shawn H E
Complex social and ethical problems are often most effectively solved by engaging them at the messy and uncomfortable intersections of disciplines and practices, a notion that grounds the InVisible Difference project, which seeks to extend thinking and alter practice around the making, status, ownership, and value of work by contemporary dance choreographers by examining choreographic work through the lenses of law, bioethics, dance scholarship, and the practice of dance by differently-abled dancers. This article offers a critical thesis on how bioethics has come to occupy a marginal and marginalizing role in questions about the differently-abled body. In doing so, it has rendered the disabled community largely invisible to and in bioethics. It then defends the claim that bioethics - as a social undertaking pursued collaboratively by individuals from different disciplines - must take much better notice of the body and the embodied individual if it is to better achieve its ends, which include constructing a moral and just society. Finally, this article considers how the arts, and specifically dance (and here dance by differently-abled dancers), provides us with rich evidence about the body and our ability to respond positively to normally 'othered' bodies. It concludes that greater attention to empirical evidence like that being generated in InVisible Difference will help to expand the reach and significance of bioethics, and thereby its relevance to (and consciousness of) important questions about the status of bodies and bodily differences, which must be considered as central to its ambitions. PMID:25476013
Premkumar, Ashish; Gates, Elena
Within the realm of bioethics, the construction of pregnancy classically has focused on principle-based ethics, essentially separating maternal and fetal interests. Respect for maternal autonomy becomes distinct from an obligation of fetal beneficence, placing practitioners in complicated ethical situations when the goals of pregnant women may be at odds with the best health interests of the fetus as defined by both professional groups and society in general. As a result, clinical care is framed by an ethical "maternal-fetal conflict," with important downstream legal and policy consequences for the well-being of pregnant women. Developments in the social sciences highlight the value of attending to the biosocial realm that a pregnant woman inhabits rather than relating to her and to her fetus as discrete entities. By understanding the needs, concerns, and context within which a woman lives, clinicians can practice an ethics of accompaniment. With a focus on an ethics of accompaniment, assumptions about the maternal moral responsibility to fetal health made by practitioners and society in general can directly affect not only clinical care, but also the way policy surrounding reproductive health is constructed and implemented. PMID:27400011
Full Text Available This paper examines the question of ethical expertise and does so in the context of bioethics or, more accurately, applied ethics and the ethical governance of the life sciences. This analysis builds on a perspective set out in a previous paper and develops it further such that it relates to democratic processes. I argue that the academic practice of applied ethics exhibits a particular logic, way of thinking or eidos. Drawing on work in the history of science I present the logic of this practice as underpinned by a particular set of values or ethos. This can be contrasted with what Bernstein calls the democratic ethos as well as that of everyday moral agents. Using the framework of expertise developed by Collins and Evan’s—which differentiates between ubiquitous, contributory, and interactional expertise—I suggest that (bioethicists should modulate their expertise depending on the particular nature of the fora—academic, public, and policy-making—they are speaking in.
María Elisa Quinteros
Full Text Available Dental caries is one of the oral pathologies with greater burden of disease in the Chilean population. Fluoridation of drinking water has been used as a caries prevention strategy. However, its application as a public policy has been questioned since its implementation. The aim of this article is to analyze whether fluoridation of drinking water is a justified measure in reducing the incidence and prevalence of caries from the perspective of bioethics, taking into account the current evidence on its effectiveness. The arguments reviewed are based on the belief that water fluoridation is effective and, in general terms, ethically acceptable. A recent systematic review concludes that there is not enough evidence to support fluoridation as a public policy. There is a gap of knowledge that ought to be closed so that public health authorities can assess the significance of the intervention and make a democratic decision on its continuation or suspension based on scientific evidence. This decision should be informed and disseminated within the community.
Schultz, Michael; Bar-Sela, Gil
What are the ethical responsibilities of the medical staff (doctors, nurses, social workers, and chaplains) regarding the preservation of meaningful life for their patients who are approaching the end of life (EOL)? In particular, what is the staff's ethical responsibility to initiate a conversation with their patient regarding palliative care? By subjecting traditional Jewish teachings to an ethical analysis and then exploring the underlying universal principles, we will suggest a general ethical duty to inform patients of the different care options, especially in a manner that preserves hope. The principle that we can derive from Jewish bioethics teaches that the medical staff has a responsibility to help our patients live in a way that is consistent with how they understand their task or responsibility in life. For some patients, the best way to preserve a meaningful life in which they can fulfill their sense of purpose in the time that remains is to focus on palliation. For this reason, although palliative and supportive care are provided from the time of diagnosis, it is critical we make sure our patients realize that they have the opportunity to make a decision between either pursuing additional active treatments or choosing to focus primarily on palliative therapies to maximize quality of life. The Jewish tradition and our experience in spiritual care suggest the importance of helping patients preserve hope while, simultaneously, honestly acknowledging their situation. Staff members can play a vital role in helping patients make the most of this new period of their lives. PMID:23089233
Medical ethics has traditionally been oriented towards the clinical setting. Since the middle of the last century, however, various circumstances (associated mainly, though not exclusively, with rapid advances in technology and knowledge) have considerably broadened both the field of enquiry and the scope of this discipline. This is due partly to the overlap between medical ethics and bioethics, which in recent decades has acquired its own identity and concerns a multitude of ethical aspects in the biomedical field. Clinical ethics taps into the vast wealth of deontology, so that it has no need for additional criteria or principles, or for the definition of new values: rather, it recognizes the need to apply existing criteria, principles and values to contingent circumstances and contexts. A special role is reserved for ethics committees and, above all, for clinical ethics consultants, although in some countries the former are concerned mainly with authorisations for clinical trials. Clinical ethics consultants, however, may have a more incisive influence in clinical decisions: the special requisites and skills they need have been defined and discussed in various documents which are mentioned briefly in the present article. The presence of these consultants does not exonerate clinical physicians from their responsibilities or from liability for their decisions, in the formation of which they must refer constantly to codes of professional ethics. PMID:24424236
Kotalik, Jaro; Martin, Gerry
Contemporary bioethics recognizes the importance of the culture in shaping ethical issues, yet in practice, a process for ethical analysis and decision making is rarely adjusted to the culture and ethnicity of involved parties. This is of a particular concern in a health care system that is caring for a growing Aboriginal population. We raise the possibility of constructing a bioethics grounded in traditional Aboriginal knowledge. As an example of an element of traditional knowledge that contains strong ethical guidance, we present the story of the Gifts of the Seven Grandfathers. We note a resemblance of this Ojibway teaching to virtue ethics in European traditions, but we suggest that there are also important differences in how these two traditions are currently presented. We hope that further engagement with a variety of indigenous moral teachings and traditions could improve health care involving Aboriginal patients and communities, and enrich the discipline of bioethics. PMID:27111368
It is increasingly common for universities to provide cross-curricular education in bioethics as part of contemporary attempts to produce 'global citizens.' In this article I examine three perspectives drawn from research into pedagogy that has been conducted from the perspective of cognitive anthropology and consider its relevance to bioethics education. I focus on: two metaphors of learning, participation and acquisition, identified by Sfard; the psychological notion of moral development; and the distinction between socialization and enculturation. Two of these perspectives have been particularly fruitful in understanding the processes of teaching and learning in a variety of domains. The third perspective has been developed in relation to the formal ethical education of medical students. I examine their relevance for 'non-professional' bioethics education suggesting that if we take seriously the idea that it is part of 'educating for citizenship' then the distinction between 'ethics' and 'politics' is blurred as such programmes aim at the development of student's political subjectivity. PMID:25344014
Maria de Jesús Sánchez Bouza
Full Text Available Bioethical aspects related with the prevention, diagnosis and treatment of patients with AIDS are present in the Cuban strategy to fight the epidemic. Through the revision of the essentials and principles of Bioethics, we analyze the problems that doctors face when treating these patients and aspects related with education for health in the case of this disease. It also outlines the association between these principles and the disposition, manifested or not, of theses patients to be part of some researches. This infection should be the target of permanent analysis by the Bioethics due to the constant challenges that it represent for medical staff and for society, either for the prevention, treatment and care, or for other kids of actions. Cuba has exceptional results in this field.
The abstinence approach to sex education remains influential despite its demonstrated ineffectiveness. One bill forbids the "promotion" of "gateway sexual activity," while requiring outright condemnation of "non-abstinence," defined so loosely as to plausibly include handholding. Bioethics seldom (if ever) contributes to sex-ed debates, yet exploring the pivotal role of medical discourse reveals the need for bioethical intervention. Sex-ed debates revolve around a theory of human flourishing based on heteronormative temporality, a developmental teleology ensuring the transmission of various supposed social goods through heterosexual marriage (Halberstam, 2005). Heteronormative temporality also constitutes a moralized discourse in which the values of health and presumed certainties of medicine serve to justify conservative religious dictates that otherwise would appear controversial as the basis for public policy. Overall, this analysis explores how moralized medical discourses compound existing injustices, while suggesting bioethics' potential contributions to moral and political analysis of sex-ed policies. PMID:23468394
Mendelevich Vladimir D
Full Text Available Abstract This article provides an overview of a sociological study of the views of 338 drug addiction treatment professionals. A comparison is drawn between the bioethical approaches of Russian and foreign experts from 18 countries. It is concluded that the bioethical priorities of Russian and foreign experts differ significantly. Differences involve attitudes toward confidentiality, informed consent, compulsory treatment, opioid agonist therapy, mandatory testing of students for psychoactive substances, the prevention of mental patients from having children, harm reduction programs (needle and syringe exchange, euthanasia, and abortion. It is proposed that the cardinal dissimilarity between models for providing drug treatment in the Russian Federation versus the majority of the countries of the world stems from differing bioethical attitudes among drug addiction treatment experts.
Bioethics in a globalized world is meeting a number of challenges - fundamentalism in its different forms, and a focus on economic growth neglecting issues such as equity and sustainability, being prominent among them. How well are we as bioethicists equipped to make meaningful contributions in these times? The paper identifies a number of restraints and proceeds to probe potential resources such as the capability approach, care ethics, cosmopolitanism, and pragmatism. These elements serve to outline a perspective that focuses on the preconditions for flourishing human relationships as a way to address bioethical challenges in a globalized world. PMID:21929701
Hart, Curtis W
This article outlines the method utilized by physicians and major figures in the founding of Clinical Pastoral Education, Helen Flanders Dunbar, in her work of 1943, Psychosomatic Diagnosis, and relates it to the currently evolving approach in bioethics known as clinical pragmatism. It assesses Dewey's influence on both Dunbar in psychosomatic medicine and clinical pragmatism in bioethics, and illustrates the breadth of influence of the school of philosophical thought known as pragmatism with which Dewey's name and those of William James and Charles Sanders Pierce are most often identified. PMID:12385140
Alvarez-Díaz, Jorge Alberto
The presence of a transsexual pregnant male in the mass media has made people reassess if transsexuals should have access to assisted reproduction. The bioethical discussion should focus on the future child best interests. This article describes the story of this transsexual man, legally married to a woman in the state of Oregon in the United States. A brief overview of transsexuality and the specific characteristics of this case, with special considerations towards fertility in transsexual people is included. We suggest reflections on what constitutes motherhood and fatherhood and bioethical considerations brought forth by this groundbreaking event. PMID:19518023
Goodwin Frederick K
Full Text Available Abstract Objective To assess the scientific and ethical basis for clinical innovation in psychopharmacology. Methods We conducted a literature review, utilizing MEDLINE search and bibliographic cross-referencing, and historical evidence regarding the discovery and development of new medications in psychiatry. Clinical innovation was defined as use of treatments in a clinical setting which have not been well-proven in a research setting. Results Empirical data regarding the impact of clinical innovation in psychopharmacology are lacking. A conceptual and historical assessment of this topic highlights the ethical and scientific importance of clinical innovation. Ethically, it touches a borderline that, in our judgment, is not adequately framed in contemporary mainstream bioethics. Currently, research is viewed as not at all benefiting the patients who participate in it, while clinical care is viewed as being solely for the benefit of patients. Clinical innovation straddles these two worlds, uncomfortably at times. While many argue that clinical innovation should either be avoided or folded into research projects, we argue that clinical innovation is necessary for progress in psychopharmacology research, and that it can prosper best when guided by the following ethical principles: 1. The treatment should be based on a viable hypothesis. 2. Whenever possible, one's clinical observations should be reported so they can be evaluated by the scientific community. 3. One should be willing to report unexpected observations of drug effects. 4. A high standard of informed consent should be maintained. Again, this proposal goes against the standard view among bioethicists that research and clinical care are categorically opposed activities, as made clear by the either-or dichotomy of the Belmont Report on bioethics. This approach has so polarized our profession into clinicians versus researchers, that many clinicians will not apply new knowledge produced by
Burgos Velasco, Juan Manuel
This article analyses the position of two secularized theories on the role of religious beliefs in bioethical reasoning. The excluding laicism of Sádaba rejects the rationality of religious fact and extend a general suspicion about the bioethical reasoning of believer. Contrary, the open position of Habermas-Rawls considers reasonable religions as one of the typical comprehensive views of liberal State, encourage secularized citizens to value his contributions and urge to secular and, then, neutral, State not to impose to all citizens a secularized cosmo-vision. Only the second perspective put the bases for a fruitful and calm dialogue in the bioethical area. PMID:18402228
... not more than 13 members who are drawn from the fields of bioethics, science, medicine, technology, engineering, law, philosophy, theology, or other areas of the humanities or social sciences. The Commission... science and technology. The Commission seeks to identify and promote policies and practices that...
... of science and technology. The Commission shall pursue its work with the goal of identifying and... members, who will be drawn from fields of bioethics, science, medicine, technology, engineering, law, philosophy, theology, and other areas of the humanities or social sciences. Commission members shall...
Loike, John D.; Rush, Brittany S.; Schweber, Adam; Fischbach, Ruth L.
Columbia University offers two innovative undergraduate science-based bioethics courses for student majoring in biosciences and pre-health studies. The goals of these courses are to introduce future scientists and healthcare professionals to the ethical questions they will confront in their professional lives, thus enabling them to strategically…
Hendrix, Jon R.; And Others
Results from a human genetics/bioethics needs assessment questionnaire (N = 124 out of 300) mailed to Indiana health teachers are reported. Genetic topics and human genetic diseases/defects included in health science instruction are listed in two tables. Responses to 16 science/society statements (and statements themselves) are also reported. (SK)
Goodwin, Mark; Kramer, Cas; Cashmore, Annette
Bioethics is an increasingly important part of the biosciences curriculum at school and in higher education, but few science teachers have much experience of teaching the subject in an engaging or interactive manner. This article sets out a session that allows students to practise the skills of ethical thinking and ethical debate in a relevant…
Hendrix, Jon R.
Data from questionnaires sent to every college and university in the United States ascertained that 26 percent of the 223 responding major institutions offered a bioethics course, most frequently presented by the biology department to medical students and taught most frequently by professors of ethics and philosophy background. Questionnaire and…
Asada, Yukiko; Tsuzuki, Miho; Akiyama, Shiro; Macer, Nobuko Y.; Macer, Darryl R. J.
Summarizes the results of an International Bioethics Education Survey conducted in Australia, New Zealand, and Japan. Compares knowledge and teaching of 15 selected topics with particular emphasis on the teaching of social, ethical, and environmental issues of in vitro fertilization, prenatal diagnosis, biotechnology, nuclear power, pesticides,…
Full Text Available Context: The orthodontists usually have to manage patient′s expectations and treatment plans at the same time. Consequently, the civil responsibility and the bioethics involved on orthodontic routine are matters of relevance. Therefore, the importance of adequate conducts is addressed in this research. Aim: The present aim is to analyze the tendency of the courts judging the orthodontists′ responsibility and to observe the bioethical aspects on the current jurisprudence. Materials and Methods: The sample consisted of 108 lawsuits related to the orthodontist′s civil responsibility, dated from 2003 to 2009. The qualitative data were obtained by the Bardin′s method for detailed reading. The quantitative collection was performed by observing statistical distribution of the following variables: (1 reason of the complaint against the orthodontist, (2 type of obligation designated to the professional, (3 presence of expert′s examination, and (4 jury decision. The correlations between the jury decision and the other variables were verified by applying the Chi-square test. Results: The main reason of the complaints against the orthodontist was the personal dissatisfaction (32%. Subjective and objective obligations had pair incidence (26% and 27%, respectively. The experts′ examination was present in 63, 89%, of the cases, and the jury decision acquitted 57, 78%, of the orthodontists. The passages involving bioethical principles supported properly the qualitative approach. Conclusion: The orthodontists show deviations from the correct daily attitudes. In order to avoid further conflicts, more attention must be given to the principles of bioethics.
Lora Jean Brake
Full Text Available At first glance the twenty-first century arena of biotechnology and bioethics seems worlds away from the practical concerns of the first century outlook of the New Testament book of James. A closer look, however, reveals that the issues that James addresses have applications to challenges in bioethics. This article will give an overview of James and examine James’ teaching on wealth, poverty, and generosity and its import for the issue of global stewardship in bioethics. Stewardship concerns both a Christian’s care and management of time, talents, and treasures. Faithful use of the resources God has given demonstrates the fruitful faith that James writes of in his epistle. The idea of global stewardship, though “stewardship” is grounded in a distinctly Christian ethic, reflects an emerging discussion in bioethics regarding the need to address the inequities present between the money and time spent on biotechnology in some of the world in proportion to the money spent on meeting the basic healthcare needs of the poor of the entire world. This New Testament epistle gives clear indications of how the Christian is to view wealth and how the Christian is to respond to poverty. James, though a comparatively small book, sends a crucial message across the years that should greatly impact how Christians view stewardship in terms of global healthcare needs.
H. Tristram Engelhardt
Full Text Available http://dx.doi.org/10.5007/1677-2954.2012v11n1p13 Given intractable secular moral pluralism, the force and significance of the four principles (autonomy, beneficence, non-maleficence, and justice of Tom Beauchamp and James Childress must be critically re-considered. This essay examines the history of the articulation of these four principles of bioethics, showing why initially there was an illusion of a common morality that led many to hold that the principles could give guidance across cultures. But there is no one sense of the content or the theoretical justification of these principles. In addition, a wide range of secular moral and bioethical choices has been demoralized into lifestyle choices; the force of the secular moral point of view has also been deflated, thus compounding moral pluralism. It is the political generation of the principles that provides a common morality in the sense of an established morality. The principles are best understood as embedded not in a common morality, sensu stricto, but in that morality that is established at law and public policy in a particular polity. Although moral pluralism is substantive and intractable at the level of moral content, in a particular polity a particular morality and a particular bioethics can be established, regarding which health care ethics consultants can be experts. Public morality and bioethics are at their roots a political reality.
In the last two decades, there have been numerous calls for a culturally sensitive bioethics. At the same time, bioethicists have become increasingly involved in empirical research, which is a sign of dissatisfaction with the analytic methods of traditional bioethics. In this article, I will argue that although these developments have broadened and enriched the field of bioethics, they can easily be construed to be an endorsement of ethical relativism, especially by those not well grounded in academic moral philosophy. I maintain that bioethicists must resist the temptation of moving too quickly from cultural relativism to ethical relativism and from empirical findings to normative conclusions. Indeed, anyone who reasons in this way is guilty of the naturalistic fallacy. I conclude by saying that properly conceptualized, empirical research and sensitivity to cultural diversity should give rise to objective rational discourse and criticism and not indiscriminate tolerance of every possible moral practice. Bioethics must remain a normative discipline that is characterized by rigorous argumentation. PMID:23908754
Downie, Don; Snart, Fern
The paper reviews bioethical positions regarding the "human-ness" of severely handicapped students, notes that the quality of life for many severely handicapped persons is directly threatened by the utilitarian position which questions the personhood of individuals with limited IQ, and asserts that the deontological postition is more aligned with…
Van Campen, Luann E; Therasse, Donald G; Klopfenstein, Mitchell; Levine, Robert J
Pharmaceutical human biomedical research is a multi-dimensional endeavor that requires collaboration among many parties, including those who sponsor, conduct, participate in, or stand to benefit from the research. Human subjects' protections have been promulgated to ensure that the benefits of such research are accomplished with respect for and minimal risk to individual research participants, and with an overall sense of fairness. Although these protections are foundational to clinical research, most ethics guidance primarily highlights the responsibilities of investigators and ethics review boards. Currently, there is no published resource that comprehensively addresses bioethical responsibilities of industry sponsors; including their responsibilities to parties who are not research participants, but are, nevertheless key stakeholders in the endeavor. To fill this void, in 2010 Eli Lilly and Company instituted a Bioethics Framework for Human Biomedical Research. This paper describes how the framework was developed and implemented and provides a critique based on four years of experience. A companion article provides the actual document used by Eli Lilly and Company to guide ethical decisions regarding all phases of human clinical trials. While many of the concepts presented in this framework are not novel, compiling them in a manner that articulates the ethical responsibilities of a sponsor is novel. By utilizing this type of bioethics framework, we have been able to develop bioethics positions on various topics, provide research ethics consultations, and integrate bioethics into the daily operations of our human biomedical research. We hope that by sharing these companion papers we will stimulate discussion within and outside the biopharmaceutical industry for the benefit of the multiple parties involved in pharmaceutical human biomedical research. PMID:26325424
Summary This article charts the history of bioethics in Britain through the work of the academic lawyer Ian Kennedy. From the late 1970s, Kennedy claimed that external oversight, which he termed ‘bioethics’, was needed to make medicine accountable to patients and the public. I believe these arguments provide a window onto the historical factors that generated the demand for bioethics, and help us determine why it became influential in recent decades. I detail how Kennedy's argument resonated with the Conservative enthusiasm for audit and consumer choice in the 1980s. Contrary to traditional portrayals of bioethics as a critique of medicine, I also show that Kennedy promised it would benefit doctors by improving decision making and maintaining public confidence. This analysis reframes bioethics as an important constituent of the ‘audit society’: fulfilling the neo-liberal demand for oversight and the medical demand for legitimacy.
Eduardo Rafael Medina Márquez; Luis Alberto Sánchez–Alfaro
Introduction: Dentistry has been presenting the changes that involve not only the discipline, but also the decision–making at both the professional–patient relationship and research processes. Given these new challenges, the bioethics foundation (theory and practice) plays a major role and promotes integral formation. Objective: To identify the knowledge possessed by the graduate students of the Faculty of Dentistry at the University of Cartagena about principles and foundations of bioethics...
Paola, F; Barten, S S
In order to determine whether there is a significant difference between the medical literature and the surgical literature in terms of their bioethics content, we conducted a computerized search of the MEDLINE database. The journals searched were selected from the 'Medicine' and 'Surgery' sections of the 'Brandon-Hill List', and the search was limited to 1992 issues of these journals. Three hundred and seven bioethics bibliographic records (out of a total of 11,239 articles indexed) were retr...
Recent decades have seen a shift in the management and discussion of biomedicine. Issues once considered by doctors and scientists are now handled by a diverse array of participants, including philosophers, lawyers, theologians and lay representatives. This new approach, known as ‘bioethics', has become the norm in regulatory committees and public debate. In this article, I argue that bioethics emerged as a valued enterprise in Britain during the 1980s because it fulfilled, and linked, the concerns of several groups. My analysis centres on the moral philosopher Mary Warnock, who chaired a government inquiry into human fertilization and embryology between 1982 and 1984, and became a strong advocate of bioethics. I detail how Warnock's promotion of bioethics tallied with the Conservative government's desire for increased surveillance of hitherto autonomous professions – while fulfilling her own belief that philosophers should engage in public affairs. And I also show that Warnock simultaneously promoted bioethics to doctors and scientists as an essential safeguard against declining political and public trust. This stance, I argue, framed bioethics as a vital intermediary between politics, the public, and biomedicine, and explains the growth and endurance of what the Guardian identified as an ethics industry. PMID:22563348
Khorfan, Rhami; Padela, Aasim I.
Modern secular bioethics has focused on developing a set of universal principles to guide clinical decision making. However, this ignores the important role of religion in resolving bioethical questions. It is imperative that health-care providers understand these belief systems in order to traverse value conflicts and provide the highest quality care to a diverse population. This paper focuses on the process of bioethical deliberation in Judaism, Catholicism, and Islam. Abortion is normative...
Full Text Available Abstract The anthology, Feminist Bioethics, edited by Jackie Leach Scully, Laurel E. Baldwin-Ragaven, and Petya Fitzpatrick, examines how feminist bioethics theoretically and methodologically challenges mainstream bioethics, and whether these approaches are useful for exploring difference in other contexts. It offers critical conceptual analyses of "autonomy", "universality", and "trust", and covers topics such as testing for hereditary cancer, prenatal selection for sexual orientation, midwifery, public health, disability, Indigenous research reform in Australia, and China's one child policy.
Magalhães, Susana; Araújo, Joana; Carvalho, Ana Sofia
Since the focus of Bioethics is the bridge between Humanities and the Life Sciences and bearing in mind that this bridge is often difficult to build, those who believe that this dialogue is important in our days should promote it through Education. By educating in Bioethics it is possible to improve the participation of the citizens in debates on the ethical issues raised by new technologies and scientific research. It is our conviction that literary texts are laboratories of ethical judgment, where the ethical questions concerning specific scientific/ technological issues are addressed in an imaginary world. Therefore our purpose is to present a framework for ethical deliberation through the use of literature. Fiction allows us to "practise" ethical decision making, by focusing on the particular cases of the characters of the story and by checking how the principles/theories working in the background apply to the narrated cases. PMID:21528799
Stoddard, Hugh A; Labrecque, Cory A; Schonfeld, Toby
Educators in bioethics have struggled to find valid and reliable assessments that transcend the "reproduction of knowledge" to target more important skill sets. This manuscript reports on the process of developing and grading a minimal-competence comprehensive examination in a bioethics master's degree program. We describe educational theory and practice for the creation and deployment of scoring rubrics for high-stakes performance assessments that reduce scoring inconsistencies. The rubric development process can also benefit the program by building consensus among stakeholders regarding program goals and student outcomes. We describe the Structure of the Observed Learning Outcome taxonomy as a mechanism for rubric design and provide an example of how we applied that taxonomy to define pass/fail cut scores. Details about domains of assessment and writing descriptors of performance are also presented. Despite the laborious work required to create a scoring rubric, we found the effort to be worthwhile for our program. PMID:26957455
Barkhordarian, Andre; Demerjian, Gary; Jan, Allison; Sama, Nateli; Nguyen, Mia; Du, Angela; Chiappelli, Francesco
Modern health care in the field of Medicine, Dentistry and Nursing is grounded in fundamental philosophy and epistemology of translational science. Recently in the U.S major national initiatives have been implemented in the hope of closing the gaps that sometimes exist between the two fundamental components of translational science, the translational research and translational effectiveness. Subsequent to these initiatives, many improvements have been made; however, important bioethical issue...
Aging attracted keen interest in research, health, education as well as cross-sectors approaches. We researched what has been produced by the National Bioethics/Ethics Councils in the form of opinions or other documents, relating to aging and elderly people. In the websi-tes of the 28 EU councils and 12 other countries, we identified 4 documents relating to aging and 8 opinions, which we analyse. The Councils have proposed to draw the attention and reflection of public opinion ...
Daniel Badulescu; Alina Badulescu
Abstract Nowadays, medical tourism reports impressive growth in terms of number of persons, income and number of countries involved in cross-border flows. So this study was undertaken to clarify entrepreneurship opportunities and bio-ethics boundaries in medical tourism. For tourism entrepreneurs, these outgoing flows related to medical procedures and tourism become an opportunity that cannot be ignored, so a wide range of tourist services related to health care are provided on a private, ent...
Th e beginning of the 21 century imposes the need of synchronising the practical and the academic approach in the interpretation of bioethical problems and the implications of their solving. Some of the goals of the Declaration are the education of health-care professionals, the creation the infrastructure necessary for biomedical research and the education of the scientists involved in it, and the foundation of ethical committees. Th e Declaration provides with a legal and political guidelin...
Camila Maria Pereira Rates; Larriny Maciel Silva; Lívia Moura Pereira; Juliana Dias Reis Pessalacia
Objective. Identifying the contribution of using films in the process of teaching-learning in bioethics and verifying the facilities and difficulties in using this teaching resource. Methodology. A qualitative study analyzed from the Bardin referential. Semi-structured interviews were carried out, recorded, and transcribed in full. For definition of the sample was used the criteria of repetition. In total, participated in the study 21 students of Nursing and Biochemistry, members of a Center ...
Kalokairinou, Eleni M.
Contrary to the usual claim that Bioethics is a contemporary discipline, I argue that its origins can be traced back to the Ancient Greek philosophers-healers. In classical antiquity philosophy was almost inseparable from medicine not only in the sense that philosophers like Empedocles, Plato and Aristotle contributed to its development, but also in that later philosophers conceived of moral principles and rules in order to prevent the physicians’ malpractice and the patients’ harassment. Fro...
Background In the more and more globalized world, the experience of moral pluralism (often related to, or based upon, religious pluralism) has become a common issue which ethical importance is undeniable. Potential conflicts between patients' and therapeutic teams' moral views and between moral beliefs of the particular member of this team are being resolved in the light of bioethical theories, among which principlism remains the mainstream approach to biomedical ethics. The question arises, ...
Faria, Miguel A.
In 2013, U.S. President Barack Obama decreed the creation of the Presidential Commission for the Study of Bioethical Issues, as part of his $100 million Brain Research through Advancing Innovative Neurotechnologies (BRAIN) initiative. In the wake of the work of this Commission, the purpose, goals, possible shortcomings, and even dangers are discussed, and the possible impact it may have upon neuroscience ethics (Neuroethics) both in clinical practice as well as scientific research. Concerns w...
O'Keefe, Meaghan; Perrault, Sarah; Halpern, Jodi; Ikemoto, Lisa; Yarborough, Mark
Metaphors used to describe new technologies mediate public understanding of the innovations. Analyzing the linguistic, rhetorical, and affective aspects of these metaphors opens the range of issues available for bioethical scrutiny and increases public accountability. This article shows how such a multidisciplinary approach can be useful by looking at a set of texts about one issue, the use of a newly developed technique for genetic modification, CRISPRcas9. PMID:26632354
Many Christian scholars, if not all of them, consider Genesis to be foundational texts of the Bible and the spring for all the other doctrines of the Scripture. Therefore, I'm considering the attempt to search and find arguments for cell therapy ethical issues in the fundamental text of Genesis as a challenging and educative task. Moreover, this could be the first step in analyzing the relationships between Christian religions and bioethics, in terms of finding reasonable decisions for ethica...
Segura Castillo Mario
Full Text Available Resumen:En este ensayo pretendo presentar concepciones a cerca del abordaje de la bioética, desde las teorías del caos y del pensamiento complejo. La bioética es un modo de estar en el dominio del consenso, de coordinaciones de sentires, que requiere de una gran plasticidad, desde lo humano, comprometido con su historia y las futuras generaciones. Además, concibo la aprendiencia como un proceso bioético de vida, en la convivencia, en ese lenguajear perpetúo, que permite la aceptación del otro y la otra. En ese sentido, todos los seres, que crecemos en el lenguaje, somos capaces de aprender y de reconocer nuestros propios errores, como los que hemos cometido con la naturaleza, en todas sus formas. Por lo tanto, una idea personal de la bioética es aprehender los sentires y los pensamientos, con compromiso, en el devenir sostenible de la Tierra.Abstract:In this essay I try to present conceptions which deal with bioethics, from the chaos theories and complex thinking. Bioethics is a mode of being dominated by consensus, the coordination of feelings, which require great flexibility from the human, committed to its history and future generations. Furthermore, I conceive learning as a bioethical process of life, within coexistence, in this perpetual language which permits the acceptation of the other. In this sense, all beings, we who grow up with language, are capable of learning and recognizing our own mistakes, and those which we have committed in nature, and in all forms. Therefore, a personal idea of bioethics is to seize feelings and thoughts, with commitment, in order for earth’s sustainability to come about.
Walker, Rebecca; Morrissey, Clair
While bioethics as a field has concerned itself with methodological issues since the early years, there has been no systematic examination of how ethics is incorporated into research on the Ethical, Legal and Social Implications (ELSI) of the Human Genome Project. Yet ELSI research may bear a particular burden of investigating and substantiating its methods given public funding, an explicitly cross-disciplinary approach, and the perceived significance of adequate responsiveness to advances in...
The preceding article in this issue of the Kennedy Institute of Ethics Journal presents the argument that "moral fundamentalism," the position that international bioethics rests on "basic" or "fundamental" moral prinicples that are universally accepted in all eras and cultures, collapses under a variety of multicultural and postmodern critiques. The present article looks to the contractarian tradition of Hobbes and Locke -- as reinterpreted by David Gauthier, Robert Nozick, and John Rawls -- for an alternative justification for international bioethics. Drawing on the central themes of this tradition, it is argued that international bioethics can be rationally reconstructed as a negotiated moral order that respects culturally and individually defined areas of nonnegotiability. Further, the theory of a negotiated moral order is consistent with traditional ideals about human rights, is flexible enough to absorb the genuine insights of multiculturalism and postmodernism, and yet is strong enough to justify transcultural and transtemporal moral judgments, including the condemnation of the Nazi doctors at Nuremberg. This theory also is consistent with the history of the ethics of human subjects experimentation and offers insights into current controversies such as the controversy over changing the consent rule for experiments in emergency medicine and the controversy over exempting certain clinical trials of inexpensive treatments for preventing the perinatal transmission of AIDS from the ethical standards of the sponsoring country. PMID:11656933
Walker, Rebecca L; Morrissey, Clair
While bioethics as a field has concerned itself with methodological issues since the early years, there has been no systematic examination of how ethics is incorporated into research on the Ethical, Legal and Social Implications (ELSI) of the Human Genome Project. Yet ELSI research may bear a particular burden of investigating and substantiating its methods given public funding, an explicitly cross-disciplinary approach, and the perceived significance of adequate responsiveness to advances in genomics. We undertook a qualitative content analysis of a sample of ELSI publications appearing between 2003 and 2008 with the aim of better understanding the methods, aims, and approaches to ethics that ELSI researchers employ. We found that the aims of ethics within ELSI are largely prescriptive and address multiple groups. We also found that the bioethics methods used in the ELSI literature are both diverse between publications and multiple within publications, but are usually not themselves discussed or employed as suggested by bioethics method proponents. Ethics in ELSI is also sometimes undistinguished from related inquiries (such as social, legal, or political investigations). PMID:23796275
Magdalena (Leentie C. de Lange
Full Text Available Recent technological advancements in Bioethics have been rapid and incremental, leaving little time for Christian ethicists to reflect or develop a coherent methodological approach. To assess the situation in the Reformed Churches in South Africa (RCSA, a bioethical questionnaire was developed and administered during the synod in 2009. Three practical questions served as point of departure, viz. which bioethical issues confronted ministers in their work environment, which value judgement trends are evident when counselling members of their congregations and what theoretical frameworks or resources do they call upon when reflecting on these difficult situations? The survey consisted of 19 questions with several subquestions that sought demographic information to determine the population and information about bioethical issues confronting them, methodological strategies they apply and how they think they can contribute to the resolution of any such bioethical dilemmas. The results were tabulated and it was concluded that recent advancements in biotechnology cannot be ignored or dealt with in a piecemeal fashion any longer, either by the RCSA or its ministers. The need for clarity and analysis of the principles underlying those theories that guide or should guide their decision-making and pastoral care in dealing with bioethical dilemmas was emphasised. The findings highlighted the need for appropriate courses in Bioethics to be taught during initial theological training, as well as the need to keep the debate alive by offering workshops, seminars and short courses for practicing ministers to enhance awareness and allay fears and uncertainties in this very dynamic and morally challenging field of human and scientific endeavour.
Full Text Available Aim The place of ethics in undergraduate medical curricula is essential but the methods of teaching medical ethics did not show substantial changes. “Basic principles of bioethics” is the best knowledge to develop student’s reasoning analysis in medical ethics In this study, we investigate the effects of an additional small group discussion in basic principles of bioethics conventional lecture methods to cognitive achievement and retention. This study was a randomized controlled trial with parallel design. Cognitive scores of the basic principles of bioethics as a parameter was measured using basic principles of bioethics (Kaidah Dasar Bioetika, KDB test. Both groups were attending conventional lectures, then the intervention group got an additional small group discussion.Result Conventional lectures with or without small group discussion significantly increased cognitive achievement of basic principles of bioethics (P= 0.001 and P= 0.000, respectively, and there were significant differences in cognitive achievement and retention between the 2 groups (P= 0.000 and P= 0.000, respectively.Conclusion Additional small group discussion method improved cognitive achievement and retention of basic principles of bioethics. (Med J Indones 2009; 18: 48-52Keywords: lecture, specification checklist, multiple choice questions
Berger, Zackary; Cahan, Rabbi Joshua
In contemporary bioethics, the autonomy of the patient has assumed considerable importance. Progressing from a more limited notion of informed consent, shared decision making calls upon patients to voice the desires and preferences of their authentic self, engaging in choice among alternatives as a way to exercise deeply held values. One influential opinion in Jewish bioethics holds that Jewish law, in contradistinction to secular bioethics, limits the patient's exercise of autonomy only in those instances in which treatment choices are sensitive to preferences. Here, we analyze a discussion in the Mishna, a foundational text of rabbinic Judaism, regarding patient autonomy in the setting of religiously mandated fasting, and commentaries in the Babylonian and Palestinian Talmuds, finding both a more expansive notion of such autonomy and a potential metaphysical grounding for it in the importance of patient self-knowledge. PMID:27357582
Barkhordarian, Andre; Demerjian, Gary; Jan, Allison; Sama, Nateli; Nguyen, Mia; Du, Angela; Chiappelli, Francesco
Modern health care in the field of Medicine, Dentistry and Nursing is grounded in fundamental philosophy and epistemology of translational science. Recently in the U.S major national initiatives have been implemented in the hope of closing the gaps that sometimes exist between the two fundamental components of translational science, the translational research and translational effectiveness. Subsequent to these initiatives, many improvements have been made; however, important bioethical issues and limitations do still exist that need to be addressed. One such issue is the stakeholder engagement and its assessment and validation. Federal, state and local organizations such as PCORI and AHRQ concur that the key to a better understanding of the relationship between translational research and translational effectiveness is the assessment of the extent to which stakeholders are actively engaged in the translational process of healthcare. The stakeholder engagement analysis identifies who the stakeholders are, maps their contribution and involvement, evaluates their priorities and opinions, and accesses their current knowledge base. This analysis however requires conceptualization and validation from the bioethics standpoint. Here, we examine the bioethical dilemma of stakeholder engagement analysis in the context of the person-environment fit (PE-fit) theoretical model. This model is an approach to quantifying stakeholder engagement analysis for the design of patient-targeted interventions. In our previous studies of Alzheimer patients, we have developed, validated and used a simple instrument based on the PE-fit model that can be adapted and utilized in a much less studied pathology as a clinical model that has a wide range of symptoms and manifestations, the temporomandibular joint disorders (TMD). The temporomandibular joint (TMJ) is the jaw joint endowed with sensory and motor innervations that project from within the central nervous system and its dysfunction can
In this paper it will be argued that Beauchamp and Childress' principle-based approach to bioethics has strongly pragmatic features. Drawing on the writings of William James, I first develop an understanding of methodological pragmatism as a method of justification. On the basis of Beauchamp's and Childress' most recent proposals concerning moral justification in the fifth edition of their Principles of Biomedical Ethics (2001), I then discuss different aspects that the principle-based approach and methodological pragmatism have in common. PMID:14972762
Culture and class remain contested terrains in policy narratives about the right of the urban poor to access health and social services delivery systems under welfare reform. An urban bioethics agenda is needed to address these dilemmas that have arisen in the context of PRWORA and had an impact on access to health and social services in the urban environment.2;18 Such efforts, however, must address the intellectual framing of the urban poor, as well as the public policies that inscribe deter...
Full Text Available The ethics in economy is not only a corrector, but also must be initiator if we want to achieve essence of our existence - the human being as “Homo ethicus”, as well as, which is more important for mankind - to achieve a human being as “Homo homine ethica ethicus est”. This remark points on two things. First: we came to the stage where we become aware about the fact that our economies are dehumanized. The second: that’s the reason why we must return to ethics and pull out from it that universal values which will make the managers of natural recourses more ethically awarded, so they will be able to start managing production without endangering bio potentials anymore. Previous remark lead us to conclusion that, no matter if the idiom “business ethics” is oxymoron or not, the present ethics is more a list of rules of conduction or, more precisely, etiquette. This clearly points that this kind of ethics of economy and in economy is not adoptive to the imperative of Bioethics: Don’t misuse recourses if you want to feed yourself and those for which you create the existence! This is so because always when we talk about ethics and ethicizing of those which managing the base of existence, de facto, are discussions about choosing the appropriate model of capitalism. The problem of these “discussions” is that we almost always forget to explain: is the chosen model of capitalization of society applicable considering the local specifics and needs of community? Therefore, the imperative of Bioethics, in this context, is to teach the ethics how to think about bio resource and bio heritage, even if we stop talk of some kinds of ethics and ethicizing of economies and of those which managing with it, because if we reconsider the reactions of the population, it is clear that they are seek of talking about it. But also, it’s recognizable the fact that they who talks just show that the essential thinking about Bioethics is absent and that the
Santos, Ana Carolina Clemente Dos; Amorim Neto, Thomaz Pereira de; Goes, Andrea Carla de Souza
The speed with which science generates results in modern society requires reflection on the limits of scientific progress. This is the foundation of Brave New World, a book published by Aldous Huxley in 1932 that portrays a future technological society along the lines of Fordism. This article establishes a relationship between our current technocratic society and that described by Huxley, discussing the viability of the technical and biological aspects of the manipulations narrated in the book in light of current knowledge. Some bioethical considerations with respect to the procedures 'invented' by the author - and which are already or could be developed in modern society - will also be addressed. PMID:23739805
H. Tristram Engelhardt
http://dx.doi.org/10.5007/1677-2954.2012v11n1p13 Given intractable secular moral pluralism, the force and significance of the four principles (autonomy, beneficence, non-maleficence, and justice) of Tom Beauchamp and James Childress must be critically re-considered. This essay examines the history of the articulation of these four principles of bioethics, showing why initially there was an illusion of a common morality that led many to hold that the principles could give guidance across cultu...
Colucci, Massimiliano; Aprile, Anna; Pegoraro, Renzo
Sometimes medical errors should not be disclosed. We report a case of semen samples exchange, during a homologous artificial insemination procedure, where a bioethics consultation was required. The bioethics consultation addressed ethical and legal elements in play, supporting non-disclosure to some of the subjects involved. Through a proper methodology, gathering factual and juridical elements, a consultant can show when a moral dilemma between values and rights-privacy versus fatherhood, in our case-is unsubstantial, in a given context, because of the groundlessness of the value or the right itself. However, being the error elicited by organizational factors, a broader ethical pronouncement was needed. Under such circumstances, ethical evaluation should engage in a sort of 'ethical-based root-cause analysis', linking ethical principles to quality aims and showing the opportunity to integrate ethical methodology in healthcare management. From this perspective, errors may become an incentive to promote high-quality organizations, attending to the central value of person even through the organizational process. PMID:26276448
Full Text Available In an environment which is ethically and from a human rights point of view overly sensitive and in which interculturism is becoming more and more a norm, pastoral care practitioners need to be committed to providing services that are ethical, intercultural and respecting of patients’ rights. This article demonstrates how application of the Symphonology Bioethical Theory (SBT as the framework for practice in pastoral care and counselling can help Pastoral Care Practitioners (PCP to be ethical while upholding patients’ human rights, and it can also help to bridge the intercultural chasm while simultaneously explaining the rationale for the practice. Symphonology is a context-driven, ethical decision- making model guiding holistic interaction between patients and PCPs. The Symphonological decision-making matrix is based on a practitioner-patient agreement for pastoral care that emphasizes patient preferences, pastoral psychological and theological knowledge, the pastoral care content and the context of the situation. The goal of the PCP is to ethically incarnate the divine presence and thus to bring about hope and emancipation to the patient using the bioethical standards of autonomy, freedom, objectivity, self-assertion, benevolence and fidelity.
Newland, Shelby E
In terms of health care access, bioethics has an important role to inform and shape policy issues and develop interdisciplinary ideas and interventions. The rising price of prescription drugs presents one of the most looming barriers to health care access in the world today. Including both theoretical and practical features of the pharmaceutical industry's behavior is necessary to find ethical solutions towards increasing access. Bioethics can evaluate global justice by weighing human rights theory and future innovation at the macro level, and by addressing market forces and responsibilities at the micro level. Inherent structural features of pharmaceuticals, such as its reliance on research and development, cause the industry to employ pricing strategies that seem counter-intuitive to conventional wisdom, but that result in producing a just allocation as defined by market forces. Parallel trade and drug exportation/reimportation threaten the saliency of the industry's differential pricing scheme; a case-study of a single "Euro-price" within the European Union illustrates how this will actually create harm to the most needy member states. This complex situation requires solutions weighing arguments from human rights theory with those from economic theory to arrive at the most globally just allocation of prescription drugs in the global marketplace, as well as to ensure future innovation and scientific progress. Bioethicists as well as economists need to partake urgently in this discourse for the betterment of the global injustices in the international prescription drug market. PMID:17146900
Full Text Available Thorough genetic testing gives possibility's diagnosis of genetic diseases or identity individuals, who genetic predisposed for disease outbreak Aims: To present/identify the ethical and religious issues, which arise from the application of genetic testing in humans. Furthermore, the principles from the European and Greek legislation regarding genetic testing will be discussed. Materials & Methods: A literature review based on both review and research literature, conducted during the period of (1993-2010, derived from MEDLINE, SCOPUS and ΙΑΤΡΟΤΕΚ databases using as key words: Bioethics, genetic testing, bioethics, access, genetic information, orthodox ethics, Legislation. Results: Genetic testing for disease prevention is of primary importance. The main ethical concerns however, are related to the dissemination/ disclosure and use of this information from insurance companies, healthcare authorities, scientists, forensic departments/services and employers. Similarly, the orthodox religion accepts the use of genetic testing for the prevention and treatment of diseases as long as there is no break of confidentiality. Finally, considering the legal issues, it is apparent that genetic information is regarded as personal information and as such it is protected from the national (Greek and international law. Conclusions: It is necessary to ensure that the public authorities protect the rights of their citizens regarding genetic testing and all insurance companies, employers, schools etc. should not be allowed to have access to genetic information. Such an approach will ensure that social discrimination, obstructions or other inequalities between people on the basis of genetic information is avoided.
Manuel J Santos
Full Text Available The new discoveries, the extraordinary dynamism in human stem cell (SC research, and the great expectations of the benefits in clinical treatment of many diseases are on the edge of unparalleled advances in both: 1 the understanding of basic mechanisms of cell differentiation and development and 2 the translation from basic research to new clinical therapies. Human stem cells are obtained from different sources, such as embryo, fetal, and adult tissues, in vitro induction (iPS cells or transdifferentiation. The evidence that these cells are pluripotent (or multipotent, meaning they have the ability to differentiate into all body tissues or tissues of the same lineage, raises the possibility that they could regenerate diseased or damaged tissue in diseases that until now have had no effective treatments. Human stem cell research and therapy raise important bioethical considerations because of the human nature of these cells and their peculiar characteristics. Here we discuss the bioethical aspects of basic human SC research and the conditions necessary for the translation of basic preclinical research into clinical use of SC.
Civilian and common law judges differ substantially in their approach to the resolution of issues concerning bioethics and health sciences. Whereas the civilian judge will first take into account the legislative source, his common law counterpart will most probably first look at judicial precedents for guidance. In both systems, however, the legislative drafting technique differs substantially and has a direct impact on judicial interpretation of the law. Both systems also differ in the way that judicial decisions are drafted and rendered. In the common law tradition, judges draft their own opinion, leaving the possibility of dissent which, in turn, helps to better illustrate contentious issues and may have an influence on social awareness of difficult problems. Finally, in bioethics, legislation should be preferred if only for a question of social legitimacy, since decisions are then taken by elected representatives. However, this type of legislation should be subject to periodical review to better adapt its rules to the evolution of science and society. PMID:17902324
Full Text Available Nowadays, medical tourism reports impressive growth in terms of number of persons, income and number of countries involved in cross-border flows. So this study was undertaken to clarify entrepreneurship opportunities and bio-ethics boundaries in medical tourism. For tourism entrepreneurs, these outgoing flows related to medical procedures and tourism become an opportunity that cannot be ignored, so a wide range of tourist services related to health care are provided on a private, entrepreneurial basis. However, social and economic boundaries are omnipresent (impaired health services in receiving (incoming countries, the crisis of the health care systems in emitting (outgoing countries, over-consumption of medical and tourism services, and, not least, ethical considerations. Transforming medical care in a market tool, reducing human attributes to the status of commodity that can be bought, sold or negotiated, seriously challenges contemporary bioethics principles. It is a significant entering in the area (which is essentially un-ethic of market transactions, where libertarianism and consumer-oriented attitudes dominates the spectrum of rational choice. So tourism comes to provide an organized and comfortable framework for all these choices, but many issues still re-main controversial and may worsen if national health systems and national and international regulations would not identify their problems and would continue to leave medical tourism to market mechanisms. Market will efficiently allocate the resources, but not always in an ethical manner.
Murphy, Timothy F
In many ways, we live in propitious times for gay and lesbian people. In 1996, the Supreme Court struck down Colorado law prohibiting any kind of protected status based on sexual orientation. In 2003, the Supreme Court held that states may not criminalize sexual conduct between consenting adults of the same sex in private, so long as no money changes hands. In 2010, the Congress repealed the "Don't Ask, Don't Tell" policy that excluded openly gay men and lesbians from military service. In 2013, the Supreme Court struck down key elements of the Defense of Marriage Act that prohibited any federal recognition of same-sex marriage. Most states do not allow same-sex marriage, but more and more states are joining the fold. Likewise, most U.S. states do not forbid discrimination based on sexual orientation, but the number that does is increasing. Arguably, no other social minority has made as much legal progress in so short a time. Despite these advances, the story of gay and lesbian people and the law is not yet finished, and the meaning of homosexuality for bioethics is still being written too. Concerns about gay and lesbian people remain important to bioethics in key domains, especially in seeing to the conferral of optimal health care benefits and in sorting through the priorities and social effects of research. Progress in these domains still involves lifting certain burdens of medical and social misjudgments about same-sex attraction. PMID:25231791
Padela, Aasim I; Basser, Taha A
Islamic ethico-legal assessments of brain death are varied and controversial. Some Islamic ethico-legal bodies have concluded that brain death is equivalent to cardiopulmonary death; others regard it as an intermediate state between life and death, and a few opine that it does not meet the standards for legal death according to Islamic law. Yet this translation of the concept of brain death into the Islamic ethico-legal domain has generated multiple ethical complexities that receive insufficient attention within the extant medical and fiqh literature. How do Islamic legists understand brain death as a clinical phenomenon? How does the Islamic ethico-legal system treat medical uncertainty? What Islamic ethico-legal principles should apply to bioethical questions about life and death? In this paper, we analyze the arguments for, and against, the acceptance of brain death within the context of the deliberation of a representative juridical council. In our discussion we focus on areas in which the legists' ethico-legal reasoning hinges upon clinical conceptions of the state of the individual when diagnosed as brain dead. As Islamic ethics continues to engage scientific and technological advancements in these areas, such exploration of internal workings is necessary if we wish to better understand how Islamic ethical principles can contribute to bioethical deliberation. PMID:23248843
The Symposium on "The Interface of Child Rights and Pediatric Bioethics in the Clinical Setting" brought together a diverse group of pediatric bioethicists and child rights advocates to explore how the junction of these disciplines could inform their respective work. In retrospect, it is clear how the diversity of personal histories, professional disciplines, knowledge, experience, language, culture, and politics of the participants influenced the outcomes of the Symposium and provided both challenges and opportunities for further collaboration. Several themes emerged from the meeting, including the relevance of the U.N. Convention on the Rights of the Child (CRC), the role of the family, and consideration of the best interests of the child to complex medical decision-making; research ethics; and the applicability of the principles of bioethics and child rights to the social determinants of health. This essay poses questions related to each of these themes that can serve as a framework for further collaboration. It concludes with a statement by Da Silva and his coauthors that the CRC and the principles of child rights can provide "increased conceptual clarity and a widely endorsed language that can assist pediatric bioethicists in clinical, organizational, and international consultations, as well as in education and policy development." PMID:27157356
Butler, Catherine R; Mehrotra, Rajnish; Tonelli, Mark R; Lam, Daniel Y
Throughout the history of dialysis, four bioethical principles - beneficence, nonmaleficence, autonomy and justice - have been weighted differently based upon changing forces of technologic innovation, resource limitation, and societal values. In the 1960s, a committee of lay people in Seattle attempted to fairly distribute a limited number of maintenance hemodialysis stations guided by considerations of justice. As technology advanced and dialysis was funded under an amendment to the Social Security Act in 1972, focus shifted to providing dialysis for all in need while balancing the burdens of treatment and quality of life, supported by the concepts of beneficence and nonmaleficence. At the end of the last century, the importance of patient preferences and personal values became paramount in medical decisions, reflecting a focus on the principle of autonomy. More recently, greater recognition that health care financial resources are limited makes fair allocation more pressing, again highlighting the importance of distributive justice. The varying application and prioritization of these four principles to both policy and clinical decisions in the United States over the last 50 years makes the history of hemodialysis an instructive platform for understanding principlist bioethics. As medical technology evolves in a landscape of changing personal and societal values, a comprehensive understanding of an ethical framework for evaluating appropriate use of medical interventions enables the clinician to systematically negotiate and optimize difficult ethical situations. PMID:26912540
Rodrigo A. Salinas
Full Text Available The reflection on bioethical contents of health policies and their effects on the demands for social justice has been a preferred concern of those who have driven the health reforms that were behind the creation of the National Health Service and, more recently, the regime of health guarantees. In the course of the years, the concern for the vindication of individual rights in the context of health care and research has joined to citizen demands for equitable access to health actions. For this purpose, in 2006 and 2012, specific laws addressing these matters were enacted and in the last year, regulations that make them operative emerged and are being implemented. The wording of the articles of both laws, in the effort to rescue individual rights, raises an imbalance in some respects, with regard to the social impact of their implementation. In certain subjects, its provisions run counter to existing codes of professional ethics in the country and in others; its implementation allows the privatization of the process of ethical review of pharmacological research, which was restricted to public health services. The absence of starting up of the National Bioethics Commission, pending since 2006, has prevented the creation of a pluralistic spaTce for deliberation on these issues and others as provided by law.
Badulescu, Daniel; Badulescu, Alina
Nowadays, medical tourism reports impressive growth in terms of number of persons, income and number of countries involved in cross-border flows. So this study was undertaken to clarify entrepreneurship opportunities and bio-ethics boundaries in medical tourism. For tourism entrepreneurs, these outgoing flows related to medical procedures and tourism become an opportunity that cannot be ignored, so a wide range of tourist services related to health care are provided on a private, entrepreneurial basis. However, social and economic boundaries are omnipresent (impaired health services in receiving (incoming) countries, the crisis of the health care systems in emitting (outgoing) countries, over-consumption of medical and tourism services), and, not least, ethical considerations. Transforming medical care in a market tool, reducing human attributes to the status of commodity that can be bought, sold or negotiated, seriously challenges contemporary bioethics principles. It is a significant entering in the area (which is essentially un-ethic) of market transactions, where libertarianism and consumer-oriented attitudes dominates the spectrum of rational choice. So tourism comes to provide an organized and comfortable framework for all these choices, but many issues still re-main controversial and may worsen if national health systems and national and international regulations would not identify their problems and would continue to leave medical tourism to market mechanisms. Market will efficiently allocate the resources, but not always in an ethical manner. PMID:26005650
The need for explicit theoretical reflection on cross-cultural bioethics continues to grow as the spread of communication technologies and increased human migration has made interactions between medical professionals and patients from different cultural backgrounds much more common. I claim that this need presents us with the following dilemma. On the one hand, we do not want to operate according to an imperialist ethical framework that denies and silences the legitimacy of cultural values other than our own. On the other hand, we do not want to backslide into a form of cultural relativism that is unable to critically appraise cultural practices that are harmful, unjust, or oppressive. I examine two prominent attempts - the principlism of Tom Beauchamp and James Childress and the Contractarianism of Robert Baker - to frame cross-cultural bioethics between these two extremes and argue that both approaches have significant flaws. The principlist approach fails to provide a non-question begging way to identify cross-cultural norms that does not already assume the universal legitimacy of moral principles dominant in North American society. Baker's contractarianism cannot grapple with the realities of political power imbalances that often characterize cross-cultural moral disputes. I suggest that a naturalized feminist framework, though not free of its own theoretical difficulties, provides the best alternative for approaching moral diversity respectfully and critically. PMID:24750579
Fausett, Jennifer Kleiner; Gilmore-Szott, Eleanor; Hester, D Micah
Ethics networks have emerged over the last few decades as a mechanism for individuals and institutions over various regions, cities and states to converge on healthcare-related ethical issues. However, little is known about the development and nature of such networks. In an effort to fill the gap in the knowledge about such networks, a survey was conducted that evaluated the organizational structure, missions and functions, as well as the outcomes/products of ethics networks across the country. Eighteen established bioethics networks were identified via consensus of three search processes and were approached for participation. The participants completed a survey developed for the purposes of this study and distributed via SurveyMonkey. Responses were obtained from 10 of the 18 identified and approached networks regarding topic areas of: Network Composition and Catchment Areas; Network Funding and Expenses; Personnel; Services; and Missions and Accomplishments. Bioethics networks are designed primarily to bring ethics education and support to professionals and hospitals. They do so over specifically defined areas-states, regions, or communities-and each is concerned about how to stay financially healthy. At the same time, the networks work off different organizational models, either as stand-alone organizations or as entities within existing organizational structures. PMID:26055879
Miguel A Faria
Full Text Available In 2013, U.S. President Barack Obama decreed the creation of the Presidential Commission for the Study of Bioethical Issues, as part of his $100 million Brain Research through Advancing Innovative Neurotechnologies (BRAIN initiative. In the wake of the work of this Commission, the purpose, goals, possible shortcomings, and even dangers are discussed, and the possible impact it may have upon neuroscience ethics (Neuroethics both in clinical practice as well as scientific research. Concerns were expressed that government involvement in bioethics may have unforeseen and possibly dangerous repercussions to neuroscience in particular and to medicine in general. The author emphasizes that the lessons of history chronicle that wherever governments have sought to alter medical ethics and control medical care, the results have frequently been perverse and disastrous, as in the examples of the communist Soviet Union and National Socialist (Nazi Germany. The Soviet psychiatrists′ and the Nazi doctors′ dark descent into ghastly experimentation and brutality was a product of convoluted ethics and physicians willingly cooperating with authoritarianism citing utilitarianism in the pursuit of the ′collective′ or ′greater good.′ Thus in the 20 th century, as governments infringed on the medical profession, even the Liberal Democracies have not been immune to the corruption of ethics in science and medicine.
BADULESCU, Daniel; BADULESCU, Alina
Abstract Nowadays, medical tourism reports impressive growth in terms of number of persons, income and number of countries involved in cross-border flows. So this study was undertaken to clarify entrepreneurship opportunities and bio-ethics boundaries in medical tourism. For tourism entrepreneurs, these outgoing flows related to medical procedures and tourism become an opportunity that cannot be ignored, so a wide range of tourist services related to health care are provided on a private, entrepreneurial basis. However, social and economic boundaries are omnipresent (impaired health services in receiving (incoming) countries, the crisis of the health care systems in emitting (outgoing) countries, over-consumption of medical and tourism services), and, not least, ethical considerations. Transforming medical care in a market tool, reducing human attributes to the status of commodity that can be bought, sold or negotiated, seriously challenges contemporary bioethics principles. It is a significant entering in the area (which is essentially un-ethic) of market transactions, where libertarianism and consumer-oriented attitudes dominates the spectrum of rational choice. So tourism comes to provide an organized and comfortable framework for all these choices, but many issues still re-main controversial and may worsen if national health systems and national and international regulations would not identify their problems and would continue to leave medical tourism to market mechanisms. Market will efficiently allocate the resources, but not always in an ethical manner. PMID:26005650
Tsatsenko L. V.
Full Text Available In this article, we describe the experience of formation and creating illustrative images for the course called «Bioethics and questions of bio safety». The peculiarity of this course is to review bioethical problems in the context of concrete scientific activities of the biologist – research, experimental work. The part of the course issues related to Bio safety, is revealed as an interdisciplinary area of knowledge focusing on the identification, study and understanding of biological practice and biological research associated with broad philosophical and moral component. The main blocks have been identified, which form visual resources: animals in the experiment, the questions of bioethics in the media; the metamorphosis of the human body; chimeras in works of art. In the selection of illustrative images we have taken into account several aspects: illustration, as an information resource for the analysis of the studied phenomenon; illustration, as a form of motivation to seek information, the answer to the question; illustration, as an element of ethical education of the student to different issues of bioethics. For each semantic unit collected 20-30 illustrative images within two years. They are used both when reading a lecture course and as material for independent work of students. It is shown that the presented visual resources for the course reflect the basic components of visual thinking: linear; structural; combinatorial and functional
This article examines how a fundamental element of the British bioethical assemblage - the literature on informed consent published between 1980 and 2000, a period when bioethics became a powerful force in the UK--has influenced contemporary understandings of the research subject. Drawing on Foucault, the article argues that this corpus of texts has created a sphere of possibilities in which research subjects can imagine themselves as human beings who reflect and decide whether they want to participate in medical experimentation. In particular, it shows how the narratives found in these texts portray relationships between researchers and their human subjects as 'paternalistic', and calls for their replacement by new, more ethical relationships characterized by both 'dialogue' and 'respect' and articulated around subjects who can 'think and take decisions'. It also discusses the different strategies- using patient information sheets, a list of possible questions and invitations to take time to reflect--which the bioethical literature has developed in order to realise these new, ethical relationships. As the article suggests, these narratives and strategies provide researchers and research subjects with models and examples of how to interact with each other that are very different from the ones that prevailed before the emergence of bioethics. PMID:23035387
Full Text Available There are various ethical approaches in the history of philosophy. Beauchamp and Childress introduced four basic principles which were acceptable in all communities: beneficence, non-maleficence, respect for autonomy and justice. Yusuf Khass Hajib is the first author of the Islamic Turkish Literature whose work was found out. This study aims to reveal the existence of four principles of bioethics in this work, in Kutadgu Bilig, presented to the prince of Karakhanids, Tavgach Bugra Khan, by Yusuf Khass Hajib in 1069-1070. It was found out in this study that all these principles were included in Kutadgu Bilig in different forms. The principles that Beauchamp and Childress argued to be acceptable in all communities and all cultures have already existed in different communities in different ages. Yusuf Khass Hajib work, Kutadgu Bilig, constitutes a good example of this reality.
Witte, Michael M; Foster, Norman L; Fleisher, Adam S; Williams, Monique M; Quaid, Kimberly; Wasserman, Michael; Hunt, Gail; Roberts, J Scott; Rabinovici, Gil D; Levenson, James L; Hake, Ann Marie; Hunter, Craig A; Van Campen, Luann E; Pontecorvo, Michael J; Hochstetler, Helen M; Tabas, Linda B; Trzepacz, Paula T
Until recently, estimation of β-amyloid plaque density as a key element for identifying Alzheimer's disease (AD) pathology as the cause of cognitive impairment was only possible at autopsy. Now with amyloid-positron emission tomography (amyloid-PET) neuroimaging, this AD hallmark can be detected antemortem. Practitioners and patients need to better understand potential diagnostic benefits and limitations of amyloid-PET and the complex practical, ethical, and social implications surrounding this new technology. To complement the practical considerations, Eli Lilly and Company sponsored a Bioethics Advisory Board to discuss ethical issues that might arise from clinical use of amyloid-PET neuroimaging with patients being evaluated for causes of cognitive decline. To best address the multifaceted issues associated with amyloid-PET neuroimaging, we recommend this technology be used only by experienced imaging and treating physicians in appropriately selected patients and only in the context of a comprehensive clinical evaluation with adequate explanations before and after the scan. PMID:27239516
Magdalena C. de Lange
Full Text Available This article outlined a model for guidance in ‘doing’ bioethics in a Reformed context. The proposed model suggested that in order to arrive at responsible ethical decisions, one must refer to both contextual elements and theory. The theoretical grounding for this model was based on the integration of a deontological and virtue ethics approach, arguing that virtue enables persons to know and desire the right moral ends and motivates them to carry out appropriate action toward achieving these ends. An integrative model opens up the possibility whereby bioethics as a systematic tool provides the individual decision-maker with the critical-reflective skills and justification for the ultimate choice that is lacking in the general decision-making processes. This could lead to clearer thinking and increased confidence in the justification of decisions within the Reformed tradition. The proposed hermeneutical perspective on ethical decision-making represents a shift in views about the nature of knowledge and the process of how we come to know. The key to this hermeneutical approach is to acknowledge the dialectic between the universal and the subjectivity of human relations. Working in specific religious communities, one needs to take cognisance of the fact that knowledge is situated in the context of human relationships in which the interpreter participates when articulating the meaning of bioethical experiences. Another aspect that is anticipated lies in the realisation that people struggling with bioethical dilemmas should not be viewed as isolated individuals, but as members of a broader faith community.‘n Geïntegreerde etiese benadering tot bioetiese besluitneming: Voorgestelde model vir predikante. Hierdie artikel het ‘n model geskets wat moontlike riglyne aantoon vir die beoefening van bioetiek binne ‘n Gereformeerde konteks. Die voorgestelde model argumenteer dat verwysing na beide kontekstuele elemente en teorie
Romeo Casabona, Carlos María
The Universal Declaration on Bioethics and Human Rights represents a significant milestone in the history of Law, particularly in the application of International Law to an important area of human activity, namely the medical sciences, the life sciences and the technologies which, linked to both, can be applied to human relations. In parallel with this, and as will be analysed in this article, the Declaration has involved adopting a clear position regarding cultural diversity and pluralism in relation to Biomedicine. In this paper the author highlights the fact that perspectives have been opened which have hardly been explored concerning Biomedicine, such as the recognition of the value and respect which cultural diversity (multiculturalism), economic and social diversity deserve in relation to the issues covered by the Declaration, and the acceptance that the owners of the rights are not only individuals, but can also be groups. PMID:22984748
Full Text Available Abstract There is much to be investigated about the specific characteristics of stem cells and about the efficacy and safety of the new drugs based on this type of cells, both embryonic as adult stem cells, for several therapeutic indications (cardiovascular and ischemic diseases, diabetes, hematopoietic diseases, liver diseases. Along with recent progress in transference of nuclei from human somatic cells, as well as iPSC technology, has allowed availability of lineages of all three germ layers genetically identical to those of the donor patient, which permits safe transplantation of organ-tissue-specific adult stem cells with no immune rejection. The main objective is the need for expansion of stem cell characteristics to maximize stem cell efficacy (i.e. the proper selection of a stem cell and the efficacy (maximum effect and safety of stem cell derived drugs. Other considerations to take into account in cell therapy will be the suitability of infrastructure and technical staff, biomaterials, production costs, biobanks, biosecurity, and the biotechnological industry. The general objectives in the area of stem cell research in the next few years, are related to identification of therapeutic targets and potential therapeutic tests, studies of cell differentiation and physiological mechanisms, culture conditions of pluripotent stem cells and efficacy and safety tests for stem cell-based drugs or procedures to be performed in both animal and human models in the corresponding clinical trials. A regulatory framework will be required to ensure patient accessibility to products and governmental assistance for their regulation and control. Bioethical aspects will be required related to the scientific and therapeutic relevance and cost of cryopreservation over time, but specially with respect to embryos which may ultimately be used for scientific uses of research as source of embryonic stem cells, in which case the bioethical conflict may be further
Spranzi, Marta; Brunet, Laurence
The French bioethics laws of 1994 contain the principles of the anonymity and non commodification of all donations of body parts and products including gametes in medically assisted reproduction. The two revisions of the law, in 2004 and 2011 have upheld the rule. In view of the latest revision process, the French government organized a large public consultation in 2009 ("Etats généraux de la bioéthique"). Within the event a "consensus conference" was held in Rennes about different aspects of assisted reproduction (access, anonymity, gratuity and surrogacy). In what follows we shall first describe the anonymity clause for gamete donations in the French law and the debates surrounding it. We shall then analyse the procedure used for the 2009 public consultation and the related consensus conference, as well as its upshot concerning the anonymity doctrine. In this respect we shall compare the citizens' own recommendations on the gamete anonymity issue and its translation in the consultation's final report drafted by a philosopher mandated by the organizing committee. Whereas the final report cited some fundamental ethical arguments as reason for upholding the provisions of the law-most notably the refusal of the 'all biological' approach to reproductive issues-citizens were more careful and tentative in their position although they also concluded that for pragmatic reasons the anonymity rule should continue to hold. We shall argue that the conservative upshot of the public consultation is due to some main underlying presuppositions concerning the citizens' role and expertise as well as to the specific design of the consensus conference. Our conclusion will be that public consultations and consensus conferences can only serve as an empirical support for devising suitable bioethics norms by using second-order normative assumptions. PMID:25783454
Leyser-Whalen, Ophra; Lawson, Erma; Macdonald, Arlene; Temple, Jeff R; Phelps, John Y
The clinical literature notes that pregnancy has become an expected benefit of solid organ transplant. Establishing "best practices" in the management of this particular transplant population requires careful consideration of the ethical dimensions, broadly speaking, of posttransplant pregnancies and these women's lived experiences. In this article, we present the current clinical and social science posttransplant pregnancy research. We specifically address the psychosocial and ethical issues surrounding preconception counseling and posttransplant health quality of life and mothering and suggest areas for future research. PMID:25151472
Full Text Available The Italian Ministry of Health, in 2002, instructed the National Committee for Bioethics to carefully review and ultimately provide evidence for future legislative bills in various aspects. One such matter was that of the subject of "Pet Therapy", generically viewed as a "man-animal" relationship, with the purpose of proving beneficiary to both human health and welfare. The necessity of a bioethical approach was deemed important in establishing the concrete benefits for mankind (and the research required to demonstrate this whilst also considering any possible malaise inflicted on those animals participating. The final recommendations decided upon, took into consideration effectiveness, cost, suitable alternatives, discussion of the intervention with the patient.
Saenz, Carla; Heitman, Elizabeth; Luna, Florencia; Litewka, Sergio; Goodman, Kenneth W; Macklin, Ruth
The landscape in research ethics has changed significantly in Latin America and the Caribbean over the past two decades. Research ethics has gone from being a largely foreign concept and unfamiliar practice to an integral and growing feature of regional health research systems. Four bioethics training programs have been funded by the Fogarty International Center (FIC) in this region in the past 12 years. Overall, they have contributed significantly to changing the face of research ethics through the creation of locally relevant training materials and courses (including distance learning), academic publications, workshops, and conferences in Spanish, and strengthening ethics review committees and national systems of governance. This paper outlines their achievements and challenges, and reflects on current regional needs and what the future may hold for research ethics and bioethics training in Latin America and the Caribbean. PMID:24782074
Dedi Afandi; Yuli Budiningsih; Oktavinda Safitry; Agus Purwadianto; Dwi Novitasari; Ivan R. Widjaja
Aim The place of ethics in undergraduate medical curricula is essential but the methods of teaching medical ethics did not show substantial changes. “Basic principles of bioethics” is the best knowledge to develop student’s reasoning analysis in medical ethics In this study, we investigate the effects of an additional small group discussion in basic principles of bioethics conventional lecture methods to cognitive achievement and retention. This study was a randomized controlled trial with pa...
O. I. Kubar
Full Text Available Abstract. The serial materials on the history of establishment and the modern concepts of bioethics in the field of infectious pathology is planned to present in several articles. In the current report problems of forming and compliance of social responsibility are considered. It is demonstrated the universal importance of ethic principles and specificity of their realization in the different stages of combating with infectious diseases.
O. I. Kubar
Abstract. The serial materials on the history of establishment and the modern concepts of bioethics in the field of infectious pathology is planned to present in several articles. In the current report problems of forming and compliance of social responsibility are considered. It is demonstrated the universal importance of ethic principles and specificity of their realization in the different stages of combating with infectious diseases.
Full Text Available Tattoos and piercings can become a mask to hide behind? Everything can become a mask if we use it for masquerading. The tattoo is the anthropological roots of ancient and modern makeup that refers to the mask understood as that which creates the face, which gives it its social being. The tattoo is also an artistic decoration that should be born by the deep desire to communicate yourself to others. Tattoos must be able to "tell" the people who wear them, but if the latter decorate their body with a message or image that does not belong, it can cause the destruction of individuality. The tattoo is immortal. It can be a permanent dress, a way to resist the unwanted transformations using a piece of subjective identity, non-imitable, from which one cannot be excluded. Along with careful identification of psycho-sociological motivations that drive a young man to want a tattoo, you need to traverse an education that not only form a personality, teaches the knowledge of his own body. Getting a tattoo means not only change the morphology of the body but the risk of jeopardizing their health. Responsibility for their own health also means being aware that a tattoo can procure mild side effects or more severe depending on the initial state of health of the subject. Then a tattoo only after a careful history following the favorable opinion of the doctor and after a personal assessment aware. These initial objectives of a path bioethical-pedagogical significant.
Full Text Available Abstract Background There have been different ethical approaches to the issues in the history of philosophy. Two American philosophers Beachump and Childress formulated some ethical principles namely 'respect to autonomy', 'justice', 'beneficence' and 'non-maleficence'. These 'Four Principles' were presented by the authors as universal and applicable to any culture and society. Mawlana, a great figure in Sufi tradition, had written many books which not only guide people how to worship God to be close to Him, but also advise people how to lead a good life to enrich their personality, as well as to create a harmonious society and a peaceful world. Methods In this study we examined the major works of Mawlana to find out which of these 'Four Principles of Bioethics' exist in Mawlana's ethical understanding. Results We have found in our study that all these principles exist in Mawlana's writings and philosophy in one form or another. Conclusions We have concluded that, further to Beachump and Childress' claim that these principles are universal and applicable to any culture and society, these principles have always existed in different moral traditions in different ways, of which Mawlana's teaching might be presented as a good example.
In the context of clinical and non-clinical biomedical practices, negligence is usually understood as a lapse of a specific professional duty by a healthcare worker or by a medical facility. This paper tries to delineate systemic negligence as another kind of negligence in the context of health systems, particularly in developing countries, that needs to be recognized and addressed. Systemic negligence is not just a mere collection of stray incidences of medical errors and system failures in a health system, but is proposed in this paper as a more pervasive kind of neglect. Several non-medical factors, such as lack of social and political will, also contribute to it and hence is more difficult to address in a health system. This paper argues that recognizing systemic negligence and including it research agenda have special moral importance for researchers in developing world bioethics, public health ethics and for health activists in the developing world. For, it can be a potent health system barrier, and can seriously impair efforts to ensure patient safety, particularly in the weaker health systems. As it erodes accountability in a health system, addressing it is also important for the twin goals of ensuring patient safety and improving health system performance. Above all, it needs to be addressed because the tolerance of its persistence in a health system seems to undervalue health as a social good. PMID:24761790
Wisely managing the profound human and environmental risks of nuclear wastes requires complex moral and ethical judgments. Whereas traditional ethics is limited to interpersonal relations, a new system of ethics--bioethics--concerns man's relation with nature. Environmentalists claim that technology has upset the balance of nature, that nature is sacred and has inviolable rights, and that man must therefore regulate his behavior to conform to earth's limited carrying capacity. They also say that Judeo-Christian monotheism and anthropocentrism have sanctioned the exploitation of nature in the West, whereas Eastern religions teach adaptation to nature. Evidence suggests, however, that the balance of nature is neither absolute nor precarious, but is continually changing. Moreover, technology has brought more good than harm to man, and man's needs should supersede nature's. Other evidence indicates that the earth's resources may be neither limited nor nearly exhausted. Persuasive arguments also demonstrate that man's relation with nature is not traceable to religious assumptions. In assessing the risks/benefits of nuclear-waste management, we should avoid risks that jeopardize the rights of future generations without imposing excessive sacrifices on the present generation.
Wisely managing the profound human and environmental risks of nuclear wastes requires complex moral and ethical judgments. Whereas traditional ethics is limited to interpersonal relations, a new system of ethics--bioethics--concerns man's relation with nature. Environmentalists claim that technology has upset the balance of nature, that nature is sacred and has inviolable rights, and that man must therefore regulate his behavior to conform to earth's limited carrying capacity. They also say that Judeo-Christian monotheism and anthropocentrism have sanctioned the exploitation of nature in the West, whereas Eastern religions teach adaptation to nature. Evidence suggests, however, that the balance of nature is neither absolute nor precarious, but is continually changing. Moreover, technology has brought more good than harm to man, and man's needs should supersede nature's. Other evidence indicates that the earth's resources may be neither limited nor nearly exhausted. Persuasive arguments also demonstrate that man's relation with nature is not traceable to religious assumptions. In assessing the risks/benefits of nuclear-waste management, we should avoid risks that jeopardize the rights of future generations without imposing excessive sacrifices on the present generation
Atkins, Chloe G K
For communities which espouse egalitarian principles, the hierarchical nature of care-giving relationships poses an extraordinary challenge. Patients' accounts of their illnesses and of their medical care capture the latent tension which exists between notional, political equality and the need for dependency on care from others. I believe that the power imbalance in doctor-patient relationships has broad implications for liberal democracies. Professional and care-giving relationships almost always consist of an imbalance of knowledge and expertise which no template of egalitarian moralism can suppress. When we seek help or guidance from authority figures, we are at a disadvantage politically even though we may be equal citizens theoretically and legally. Hierarchic relationships persist within democracies. Moreover, they tend to exist within a realm of privacy which is only partially visible from the social realm. In the end, traditional notions of liberal autonomy and egalitarianism do not properly describe or monitor these interactions. Liberal rhetoric (i.e., terms such as equality, rights, consent, etc.) pervades much of bioethical literature and interventions but, this very language tends to mask the persistence of structural hierarchies in the clinic. The doctor-patient relationship forces democratic communities to confront the problem of continuing hierarchic power relations and challenges liberalism to revise its understanding of individual autonomies. PMID:16475273
Inhorn, Marcia C
'Reproductive tourism' has been defined as the search for assisted reproductive technologies (ARTs) and human gametes (eggs, sperm, embryos) across national and international borders. This article conceptualizes reproductive tourism within 'global reproscapes,' which involve the circulation of actors, technologies, money, media, ideas, and human gametes, all moving in complicated manners across geographical landscapes. Focusing on the Muslim countries of the Middle East, the article explores the Islamic 'local moral worlds' informing the movements of Middle Eastern infertile couples. The ban on third-party gamete donation in Sunni Muslim-majority countries and the recent allowance of donor technologies in the Shia Muslim-majority countries of Iran and Lebanon have led to significant movements of infertile couples across Middle Eastern national borders. In the new millennium, Iran is leading the way into this 'brave new world' of high-tech, third-party assisted conception, with Islamic bioethical discourses being used to justify various forms of technological assistance. Although the Middle East is rarely regarded in this way, it is a key site for understanding the intersection of technoscience, religious morality, and modernity, all of which are deeply implicated in the new world of reproductive tourism. PMID:21563005
Full Text Available A bioética se consolidou no Brasil em finais dos anos 1990. Um fenômeno semelhante ocorreu em outros países da América Latina, em especial na Argentina, no Chile e no México. Nesse processo de consolidação, as mulheres assumiram diferentes papéis: ora de protagonistas acadêmicas da bioética, ora de interlocutoras da bioética no espaço público. Essa dupla inserção é marca registrada das mulheres na bioética latino-americana e é parte da biografia das autoras deste ensaio. Este ensaio é uma peça biográfica e genealógica da bioética latino-americana e brasileira em particular. O fio condutor da narrativa são experiências vividas pelas autoras nesse duplo papel de protagonismo acadêmico e de interlocução política da bioética.Bioethics was consolidated in Brazil at the end of the 1990s. A similar phenomenon occurred in other countries in Latin America, especially in Argentina, Chile, and Mexico. In this consolidation process, women assumed different roles: sometimes as bioethics academic protagonists, and sometimes as bioethics interlocutors in the public sphere. This dual insertion is the trademark of the women in Latin American bioethics and is part of the biography of the authors of this essay. This essay is a biographical and genealogical narrative of Latin American, and specifically, of Brazilian bioethics. The common thread of this narrative is our experiences in this dual role as academic protagonists and as bioethics political speakers.
Full Text Available In their search for answers to the relevant theoretical questions on importing knowledge in practical ethics, the authors take an instrumental approach to metaphor. This figure of language allows one to compare language and linguistic variants to bioethics and knowledge. As defined by the dictionary, an 'idiom' is the official language of a nation, a 'dialect' is a regional variant of an idiom, and an 'idiolect' is an individual variant of a dialect. The bioethical idiom is thus seen as a linguistic set constituting a 'bioethical nation'. Since it is situated above particular dialects, it exercises more than a regulatory role over the discipline. In this article, in order to focus on the process of transmission of knowledge in bioethics, the authors chose Diego Gracia's work as a paradigmatic reference to the question on the transculturation of dialects and the relations in bioethics which are considered 'peripheral' or 'central'. Although this researcher found the key question pointing to the core of the problem of importing dialects, he is still searching for a proper answer to the cultural/bioethical context/contradictionNa procura de respostas à questão teórica relativa à importação de conhecimento em ética prática, os autores utilizam, de forma instrumental, a metáfora. Essa figura de linguagem permite que se compare o idioma e suas variantes lingüísticas com a bioética e seus saberes. Segundo o registro dicionarizado, o idioma é a língua oficial de uma nação, o dialeto é uma variante regional de um idioma e o idioleto é uma variante individual de um dialeto. O idioma bioético é entendido, então, como um conjunto lingüístico que constitui a 'nação bioética' e que, por estar acima dos dialetos particulares, exerce um papel sobre-regulador na disciplina. Os dialetos correspondem às várias correntes ou teorias existentes e realizam a ponte entre o idioma e a prática. Os idioletos são frutos de tentativas cr
Full Text Available Este artigo trata de alguns dos múltiplos aspectos éticos/bioéticos e de gênero no campo das novas tecnologias reprodutivas conceptivas (NTRc. A literatura nele apresentada aponta para a pluralidade de situações e abordagens possíveis em um campo multidimensional e controvertido. Explicita alguns princípios éticos/bioéticos do agir biomédico encontrados durante pesquisa com casais heterossexuais que fizeram reprodução assistida e com médic@s especialistas em reprodução humana no Sul do Brasil.1 Apresenta os pressupostos éticos/bioéticos sancionadores do agir médico e da continuidade dos chamados tratamentos para engravidar, e analisa os mecanismos utilizados para reerguer as expectativas dos casais em situação de desconfiança ou de insucesso.This article concerns some of the multiple ethical-bioethical and gender issues in the field of new reproductive and contraceptive technologies. The literature presented points to the plurality of possible situations and approaches in a multidimensional and controversial field. It presents some ethical-bioethical principals of biomedical action found in the study of heterosexual couples who use assisted reproduction. and of medical specialists in human reproduction in southern Brazil. It presents the ethical-bioethical presumptions that sanction medical behavior and the continuity of the so-called impregnation treatments, and analyzes the mechanisms used to raise the expectations of couples who lack confidence or success.
Horstkötter, Dorothee; Berghmans, Ron; Feron, Frans; De Wert, Guido
Genomic and neuro-scientific research into the causes and course of antisocial behaviour triggers bioethical debate. Often, these new developments are met with reservation, and possible drawbacks and negative side-effects are pointed out. This article reflects on these scientific developments and the bioethical debate by means of an exploration of the perspectives of one important stakeholder group: juveniles convicted of a serious crime who stay in a juvenile justice institution. The views of juveniles are particularly interesting, as possible applications of current and future scientific findings are considered to be most effective if applied early in life. Based on their statements we come to the following provisional conclusions. Concerns about labelling and stigmatization are recognized and widely shared. Possible effects on one's identity are acknowledged too. Yet, a possible biological underpinning of one's antisocial behaviour is not considered to result in the development of a criminal identity. Nonetheless, psychopharmacological interventions are experienced as endangering one's current self. Concerns regarding the refusal of responsibility and the blaming of one's genes or brain can be put into perspective. Instead, participants emphasize the motive of own choice as underlying their criminal behaviour. Moreover, bioethical debate should pay attention to the role of parents of children at risk and the parent-child relationship in families at-risk. We argue that the short-term and long-term interests of children at risk, as well as their interests and those of society at large, may conflict. In order to deal appropriately with newly arising dilemmas, a normative framework needs to be developed. PMID:22845747
Brosco, Jeffrey P
Why might pediatric bioethicists in the United States reject the U.N. Convention on the Rights of the Child (CRC) as a framework for resolving ethical issues? The essays in this issue present arguments and counterarguments regarding the usefulness of the CRC in various clinical and research cases. But underlying this debate are two historical factors that help explain the seeming paradox of pediatric bioethicists' arguing against child's rights. First, the profession of clinical bioethics emerged in the 1970s as one component of modern medicine's focus on improving health through the application of technologically sophisticated treatments. The everyday work of U.S. bioethicists thus usually involves emerging technologies or practices in clinical or laboratory settings; the articles of the CRC, in contrast, seem better suited to addressing broad policy issues that affect the social determinants of health. Second, U.S. child health policy veered away from a more communitarian approach in the early 20th century for reasons of demography that were reinforced by ideology and concerns about immigration. The divide between clinical medicine and public health in the United States, as well as the relatively meager social safety net, are not based on a failure to recognize the rights of children. Indeed, there is some historical evidence to suggest that "rights language" has hindered progress on child health and well-being in the United States. In today's political climate, efforts to ensure that governments pledge to treat children in accordance with their status as human beings (a child right's perspective) are less likely to improve child health than robust advocacy on behalf of children's unique needs, especially as novel models of health-care financing emerge. PMID:27157355
A new universal culture is championing the human race; never before has immersion in the cosmological environment been so clearly presented nor invited as revolutionary a sense of participatory identity to the human race. We are delving into the awareness of a complex relatedness with the expanse of spatial architectures and life that astrophysics and cosmology are revealing. History is marked by waves of interest and inquiry into the possibilities of the existence of other worlds. Since the Renaissance, building of telescopes has been pursued in their quest; now Kepler and other space missions are leading us into direct apprehension of these worlds, scattered across the cosmological landscape. This affords a unique repertoire of dimensionalities in which to re-construe our global cultural evolution and identity. Spatial education, with related social science and humanities, are facilitating the actualization of a universal culture, redefining the collective global heritage, with infinity as our home. The potential significance of space sciences to the human cognitive environment is yet to be fully ascertained. We now understand that the entire history of the universe informs each and every particle and spin of the fabric of existence. The implications of this knowledge have the power to facilitate our overcoming many social diseases such as racism, nationalism and the ideological delusions that tolerate such activities as warfare. Space sciences may help to purge the human cognitive atmosphere of those ills and ignorance that sap global resources, challenging global sustainability, from the economic to the psychosocial. Were the full implications of our united origins and destiny as a cosmic organism to be applied to how we live as a species on the Earth, there would be adequate funds for all manner of science and education such as to transform the global human and ecological landscape in ways as yet only dreamt or fictionalized. The bioethics of universal
Full Text Available Many Christian scholars, if not all of them, consider Genesis to be foundational texts of the Bible and the spring for all the other doctrines of the Scripture. Therefore, I'm considering the attempt to search and find arguments for cell therapy ethical issues in the fundamental text of Genesis as a challenging and educative task. Moreover, this could be the first step in analyzing the relationships between Christian religions and bioethics, in terms of finding reasonable decisions for ethical challenges, raised by the current biomedical research. As for many other dilemmas of humanity, we have to recall the text of Genesis for analyzing the goodness or evilness of our actions in translational medicine, even though that is not the only way to get a reasonable ethical decision. My contribution is an essay that is trying to correlate the Genesis lessons with the needed arguments in deciding what could be good and what could be evil in the stem cell research, according to the religious convictions. The biggest challenges of biomedical research for Christian religions were due to the human cloning issue, made possible by the somatic cell nuclear transfer, but those challenges update the older debates on birth control pill, technologically assisted reproduction, or gene therapy. Issues related to in vitro fertilization, gene enhancement and gene therapy, human cell cloning, embryonic stem cell using, and chimera cell obtaining for research are being considered and related to the putative arguments extracted from the book of Genesis, describing the origins. As a matter of fact, I may conclude that the single way to reach a reasonable ethical decision in our society is to intersect ethics, science and theology and to engage large debates involving scientists, theologians, civil society representatives, ethicists (experts in applied ethics and moral philosophers, having the two latest professionals as referees.
Health care ethics consultation: nature, goals, and competencies. A position paper from the Society for Health and Human Values-Society for Bioethics Consultation Task Force on Standards for Bioethics Consultation.
Aulisio, M P; Arnold, R M; Youngner, S J
Patients, families, and health care providers have a right to expect that ethics consultants can deal competently with the complex issues that they are asked to address. The Society for Health and Human Values-Society for Bioethics Consultation Task Force on Standards for Bioethics Consultation explored core competencies and related issues in ethics consultation. This position paper summarizes the content of the resulting Task Force Report, which included nine general conclusions: 1) U.S. societal context makes "ethics facilitation" an appropriate approach to ethics consultation; 2) ethics facilitation requires certain core competencies; 3) core competencies can be acquired in various ways; 4) individual consultants, teams, or committees should have the core competencies for ethics consultation; 5) consult services should have policies that address access, patient notification, documentation, and case review; 6) abuse of power and conflicts of interest must be avoided; 7) ethics consultation must have institutional support; 8) evaluation of process, outcomes, and competencies is needed; and 9) certification of individuals and accreditation of programs are rejected. PMID:10877742
Pamela Chávez Aguilar
Full Text Available La bioética debe tener una perspectiva intercultural. Ello se fundamenta en tres hechos: los principios y valores sobre los que reflexiona pertenecen a cosmovisiones y tradiciones, el ser humano es en sí mismo un ser cultural y las sociedades actuales son enormemente diversas. Para ello, la bioética ha de buscar un adecuado equilibrio entre el universalismo ético y el contextualismo. Esto es un fundamento necesario para el respeto incondicionado a la dignidad humana y para el mutuo reconocimiento, el diálogo, la correlación y la complementariedad entre las diversas culturas.Bioethics must have an intercultural perspective. This is based on three facts: The principles and values around which reflection is made are related to world views and traditions, human beings are cultural beings, and current societies are considerably diverse. Based on this, bioethics will seek an adequate balance between ethical universalism and contextualism. This is a fundamental step for unconditional respect for human dignity and mutual recognition, dialogue, correlation and complementarity among diverse cultures.
Park, Yun-Bok; Kim, Young-Shin; Chung, Wan-Ho
Investigates the effect of decision-making activities on improving decision-making abilities to meet bioethical issues in everyday situations. Uses worksheets for decision making that consists of six steps. Concludes that the resulting scores on decision-making were increased by the activities of the worksheets. (Contains 31 references.)…
McDougall, Rosalind; Notini, Lauren; Phillips, Jessica
Clinical ethics records offer bioethics researchers a rich source of cases that clinicians have identified as ethically complex. In this paper, we suggest that clinical ethics records can be used to point to types of cases that lack attention in the current bioethics literature, identifying new areas in need of more detailed bioethical work. We conducted an analysis of the clinical ethics records of one paediatric hospital in Australia, focusing specifically on conflicts between parents and health professionals about a child's medical treatment. We identified, analysed, and compared cases of this type from the clinical ethics records with cases of this type discussed in bioethics journals. While the cases from journals tended to describe situations involving imminent risk to the child's life, a significant proportion of the clinical ethics records cases involved different stakes for the child involved. These included distress, poorer functional outcome, poorer psychosocial outcome, or increased risk of surgical complications. Our analysis suggests that one type of case that warrants more detailed ethics research is parental refusal of recommended treatment, where the refusal does not endanger the child's life but rather some other aspect of the child's well-being. PMID:26133890
Macpherson, C.; Akpinar-Elci, M.
Interdisciplinary dialog and collaboration aimed at protecting health against climate change is impeded by the small number of scientists and health professionals skilled in interdisciplinary work, and by the view held by many that "climate change won't affect me personally". These challenges may be surmounted by discussions about the lived experience of climate change and how this threatens things we value. Dialog between bioethics and public health generated an innovative collaboration using the focus group method. The main limitation of focus groups is the small number of participants however the data obtained is generalizable to wider groups and is used regularly in business to enhance marketing strategies. Caribbean academicians from varied disciplines discussed how climate change affects them and life in the Caribbean. Caribbean states are particularly vulnerable to climate change because their large coastal areas are directly exposed to rising sea levels and their development relies heavily on foreign aid. The Caribbean comprises about half of the 39 members of the Association of Small Island States (AOSIS), and small island states comprise about 5% of global population . Participants described socioeconomic and environmental changes in the Caribbean that they attribute to climate change. These include extreme weather, unusual rain and drought, drying rivers, beach erosion, declining fish catches, and others. The session exposed impacts on individuals, businesses, agriculture, and disaster preparedness. This data helps to reframe climate change as a personal reality rather than a vague future concern. It is relevant to the design, implementation, and sustainability of climate policies in the Caribbean and perhaps other small island states. The method and interdisciplinary approach can be used in other settings to elicit dialog about experiences and values across sectors, and to inform policies. Those who have experienced extreme weather are more concerned
Manuel Jesús López Baroni
Full Text Available Resumen: La bioética es un campo del conocimiento con un difuso poso ideológico en el que coexisten con no pocas tensiones las religiones y las corrientes de pensamiento político clásicas. A la hora de defender argumentos, la expresión que se ha impuesto es la de “ética”, probablemente por el sesgo pretendidamente objetivo y paracientífico de dicha expresión. Pues bien, estudiaremos en el presente artículo qué relación hay entre las diferentes corrientes del pensamiento y la forma en que emplean los conceptos de “ética” y de “moral”. Para ello, hemos creado cuatro modelos con los que pretendemos recoger todas las posibilidades existentes. El objetivo último es clarificar qué queremos decir en bioética cuando se afirma que algo es ético o moral, qué relación hay entre las ideologías y los enunciados axiológicos y cómo influye en la composición ideal de los comités de bioética. Abstract: Bioethics is a field of knowledge with a widespread ideological background in which religions and current classic political thoughts coexist with tension. At the moment of defending arguments, the expression that has been imposed is "ethics", probably for the alleged objective and parascientific bias of the expression mentioned above. Well then, we will study in the present article the relation between the different currents of thought and the form in which they use the concepts of "ethics" and of "moral". For this, we have created four models with which we try to gather all the existing possibilities. The last aim is to clarify what we want to say in bioethics when one affirms that something is ethical or moral, what relation is between the ideologies and the terms of axiological references and how it influences the ideal composition of the committees of bioethics.
This essay offers a Confucian evaluation of Article 14 of the UNESCO Declaration on Bioethics and Human Rights, with a focus given to its statement that "the enjoyment of the highest attainable standard of health is one of the fundamental rights of every human being." It indicates that "a right to health" contained in the statement is open to two different interpretations, one radically egalitarian, another a decent minimum. It shows that Confucianism has strong moral considerations to reject the radical egalitarian interpretation, and argues that a Confucian nonegalitarian health distribution ethics of differentiated and graded love and obligation can reasonably be supported with a right to the decent minimum of health at the international level. PMID:27477196
生命伦理学是20世纪60年代兴起于美国的一门新兴学科,旨在应对生命科学和生物技术的发展或医疗保健的演变使人类面临的种种伦理难题.生命伦理学的兴起有着特殊的社会历史背景.它在发展过程中出现的一些里程碑式的案例,对生命伦理学的发展产生了深远的影响.从其发展特征上看,生命伦理学和医学伦理学紧密联系,有着更为广泛的研究内容和独特的专业特性.生命伦理学要有效回应现代医学和生命科学的发展给人类带来的伦理难题,既要准确地界定伦理问题,又要以适当的方式将伦理学基础理论应用到具体问题当中.对生命伦理学的基本理论进行概述.%Bioethics is an emerging discipline originating in America of the 1960s, aiming to bridge between life science, biomedical technology, health care and ethics. Bioethics originated under particular social historical contexts; Some events or cases which happened as the cornerstone in the history have profound influences on the development of bioethics. With respect to its developmental features, even though bioethics historical linked with medical ethics, it owns broader contents and unique characteristics. In order to answer ethical dilemmas caused by the developments of contemporary medicine and life science, bioethics firstly needs to define ethical issues correctly, then apply fundamental theories of ethics to concrete scenarios in appropriate ways. This paper also makes a briefly introduction of the basic theories of bioethics.
Full Text Available La Bioética puede entenderse como una reflexión crítica sobre la vida y la salud, como una nueva forma de tomar decisiones en esos ámbitos, como un movimiento de reforma social y también como una disciplina académica. En cualquiera de los casos, la Bioética implica un diálogo interdisciplinario e intercultural. A su vez, los derechos humanos, como pautas morales universales, proporcionan una base plausible para el diálogo intercultural, permitiendo identificar un núcleo de valores transculturales que funcionen como “mínimos morales” en las arenas del diálogo entre culturas diversas y la búsqueda de consensos internacionales. En este trabajo se plantea la triple vinculación (histórico-genealógica, conceptual y práctica de la bioética y los derechos humanos y se reflexiona sobre algunas condiciones que deberían tomarse en cuenta para una bioética implicada en la cultura de los derechos humanos.Bioethics can be interpreted as a critical reflection on life and health, a new way to make decisions in these fields, a social reform movement, and an academic discipline. In any case, Bioethics implies an interdisciplinary and intercultural dialogue. At the same time, human rights, as universal moral guidelines, provide a plausible basis for this intercultural dialogue, for they enable the identification of a core of transcultural values that can work as “moral minima” in the dialogue among different cultures and the search for international consensuses. This article sets forth the triple connection (historical-genealogical, conceptual and practical between bioethics and human rights, and reflects on some of the conditions that should be taken into account for bioethics to be involved in the human rights culture.
Isa, Noor Munirah; Baharuddin, Azizan; Man, Saadan; Chang, Lee Wei
The field of bioethics aims to ensure that modern scientific and technological advancements have been primarily developed for the benefits of humankind. This field is deeply rooted in the traditions of Western moral philosophy and socio-political theory. With respect to the view that the practice of bioethics in certain community should incorporate religious and cultural elements, this paper attempts to expound bioethical tradition of the Malay-Muslim community in Malaysia, with shedding light on the mechanism used by the National Fatwa Council to evaluate whether an application of biological sciences is ethical or not. By using the application of the genetically modified food as a case study, this study has found that the council had reviewed the basic guidelines in the main references of shari'ah in order to make decision on the permissibility of the application. The fatwa is made after having consultation with the experts in science field. The council has taken all factors into consideration and given priority to the general aim of shari'ah which to serve the interests of mankind and to save them from harm. PMID:24750562
Full Text Available Currently about 25% of Americans die in nursing homes, many with poorly controlled pain and other symptoms, with minimal provisions for psychosocial support. New models are necessary to lessen structural and process barriers to give effective end-of-life care in nursing homes. Objectives: 1 To extend hospital-based Bioethics Consultation Services (BCS and Palliative Care Services (PCS at Montefiore Medical Center (MMC in the Bronx to two local Skilled Nursing Facilities (SNFs, Morningside House Aging in America (MSH using direct face-to-face consultations and Beth Abraham Health Systems (BAHS via video consultations (VC; 2 Achieve improvements in quality of life and comfort for elderly residents and their families; 2a Improve the level of practice and increase staff satisfaction with palliative care content-related knowledge and bioethical analysis. Methods: We report preliminary findings of this two group quasi experimental project with results of pre- and post- tests rating content-related knowledge in aspects of end-of-life care for staff. Select pre-test and post-test questions were given to physicians and other staff, but were re-configured for, registered and licensed practice nurses, social workers, and certified nursing assistants from the End-of-Life Physician Education Resource Center (EPERC. Patient, family, and staff ratings of the quality of palliative care were measured with a Palliative Outcomes Scale (POS one week prior to and post consultation. Results: 72 staff attended in-services; 53 completed pre-tests and 49 post-tests. Overall knowledge scores increased for 9 of the 16 items that were analyzed. There were improvements in knowledge scores in 12 of 16 items tested for staff content related knowledge which were statistically significant in regard to management of cancer pain from 63.8% to 81.5% (p = 0.03 and a trend to significance for assessment and management of delirium from 31.6% to 61.9% (p = 0.073. Seventy five POS
Immig, Cláudio Vicente
Full Text Available Este artigo foi extraído de parte do segundo capítulo da tese de doutorado apresentada pelo autor em fevereiro de 2010 na Academia Alfonsiana de Roma. Nele são apresentadas diferentes correntes bioéticas com seus respectivos posicionamentos e suas consequências práticas na vida das pessoas com deficiência. Através de algumas citações das obras Ética prática e Fundamentos da bioética, respectivamente de Peter Singer e Hugo T. Engelhardt, se constata a urgência de denunciar os perigos desta corrente utilitarista e deste modelo contratualista, pois ao negarem o status de pessoa para os seres humanos com deficiência mental grave, anulam a sua dignidade, negando os direitos proclamados pelas nações. Percebe-se a necessidade de uma antropologia de fundo para que o conceito de pessoa não fique restrito às capacidades, à autonomia e autodeterminação, mas que supere esta leitura parcial que reduz a dignidade humana à decisão dos agentes morais. Através da bioética personalista se observa a importância de considerar a pessoa em todas as suas dimensões, acentuando o aspecto da dignidade humana que é anterior às capacidades e às transcende, exigindo acolhida e respeito, de modo especial nas situações de vulnerabilidade, questionando assim o agir ético. This article was extracted from the second chapter of the doctorate thesis presented by the author in February 2010 in the Alphonsian Academy of Rome. In the article are showed different bioethics fronts with their respective positions and their practical consequences in disabled people’s lives. By some quotations from the works Practical Ethics and The foundations of Bioethics, from Peter Singer and Hugo T. Engelhardt respectively, we can see the urgency of reporting the dangers of this utilitarian front and this contractual model, because, when they deny the person status to the human beings with a serious mental disease, they declare their dignity invalid, denying the
J. Aso Escario
Full Text Available La Bioética implica hoy en día a toda la actividad médica, habiéndose convertido en un factor crucial a la hora de orientar la acción en muchas situaciones clínicas y evaluar materias médicas tales como publicaciones, artículos y conferencias. Sin embargo, hasta el momento, la Bioética ha prestado poca atención a la actividad pericial médica. Ello a pesar de los importantes problemas que surgen en los peritajes ante los Tribunales. Factores como la cualificación del perito, sesgo, error, confidencialidad, conflictos entre actividad asistencial y pericial, están entre las principales materias potenciales de discusión ética. En España, en particular, hay una falta de regulación de estos aspectos, causando importantes consecuencias sobre todo en casos de litigación por cuestiones de responsabilidad médica. El presente trabajo intenta revisar la situación en España, comparada con las posiciones en el extranjero, y enfatizar la necesidad de una regulación legal, profesional pero sobre todo ética de la actividad pericial médica ante los Tribunales.Bioethics involves the entire medical activity, becoming, in recent years, a crucial factor in evaluating medical matters such as publications, conferences, articles, and clinical cases analysis. Nevertheless, expert-witness testimony is sheldomly included in Bioethic discussions, despite the important problems that arise from medical testimonies in tribunals. Factors as expert qualification, bias, error, confidentiality, conflict between clinical and expert activities, are among the main potential subjects of Ethical discussion. In Spain in particular, there is a lack of regulation in these matters, determining important consequences mainly in professional responsability judgement cases. The present paper tries to review the Spanish situation, compared to abroad positions, and enphasize the need of a more extensive legal, professional but mainly ethical regulation of medical expert
Padela, Aasim I; Furber, Steven W; Kholwadia, Mohammad A; Moosa, Ebrahim
The field of medicine provides an important window through which to examine the encounters between religion and science, and between modernity and tradition. While both religion and science consider health to be a 'good' that is to be preserved, and promoted, religious and science-based teachings may differ in their conception of what constitutes good health, and how that health is to be achieved. This paper analyzes the way the Islamic ethico-legal tradition assesses the permissibility of using vaccines that contain porcine-derived components by referencing opinions of several Islamic authorities. In the Islamic ethico-legal tradition controversy surrounds the use of proteins from an animal (pig) that is considered to be impure by Islamic law. As we discuss the Islamic ethico-legal constructs used to argue for or against the use of porcine-based vaccines we will call attention to areas where modern medical data may make the arguments more precise. By highlighting areas where science can buttress and clarify the ethico-legal arguments we hope to spur an enhanced applied Islamic bioethics discourse where religious scholars and medical experts use modern science in a way that remains faithful to the epistemology of Islamic ethics to clarify what Islam requires of Muslim patients and healthcare workers. PMID:23445524
The debate over the legalisation of voluntary euthanasia is most often seen to be the result of three changes in society: individualisation, diminished taboos concerning death and changes in the balance of power in medicine. The fact that these changes occurred in many western countries but led to legalisation in only a few makes this claim problematic. I examine whether socio-legal propositions, with respect to the emergence of laws which focus on social control, offer a better approach to understanding the development of rules allowing and governing euthanasia. After a short sketch of the history of the Dutch law regulating euthanasia, I discuss these three societal changes in the light of shifts in the social control of medical behaviour that shortens life. I show that the Dutch relaxation of the prohibition of euthanasia goes together with new forms of social control: doctors' self control is complemented with second-party control (by patients), professional third-party control and governmental control. My work calls attention to the fact that bioethics is part of larger systems of social control. PMID:17184419
Amundsen, Darrel W; Mandahl, Otto W
A Christian approach to the issues that constitute bioethics is inevitable for us who cherish the truth of historic, creedal, trinitarian Christianity. Scripture teaches and the Greek and Latin Church Fathers as well as the Reformers aver that man, created in the image of God, has an inherent, if vestigial, sense of right and wrong and a conscience however marred by the fall and by rebellion. We must believe that we share this most basic ecumenism with all humanity, not because of rational observation and analysis of nature, but because Scripture reveals it. We who are convinced of the truth of historic, creedal, trinitarian Christianity have a high view of Scripture and hold it to be infallible and utterly trustworthy irrespective of the importance we assign to our specific post-biblical traditional distinctives. This is a narrower but much more vital ecumenism than the first. Faithful adherence to Scripture inevitably manifests itself in remarkably similar priorities and values, often, lamentably, not because of, but in spite of, ourselves. PMID:11654508
Bioethical common factors amidst Krause masonry and Saint Francis of Assisi systems of thought appeal to respectful dialogue, nature and understanding: the Jahr’s dialogue beyond the age of "enlightment" and the metadisciplinary "dark" ages
Roa-Castellanos, Ricardo Andrés
It has been known that the fi rst reference of the word Bioethics in the twentieth century was due to German theologist Fritz Jahr in 1927. In that surprising paper Jahr, a protestant Lutheran university professor, proposes humble catholic deacon, Saint Francis of Assisi (1181-1226), as the first discoverer of Bioethics in Western Civilization. At the same time, Jahr quotes K.C.F Krause, a Masonic mathematics and philosophy doctor, who is referred within this manuscript because of his ideas o...
Jorge José Ferrer
Full Text Available El artículo examina el estatuto epistemológico de la bioética como disciplina académica. El autor sostiene que el estatuto epistemológico de un discurso lo determina la pregunta fundamental que se plantea y la respuesta que se busca, focos integradores del discurso. En el caso de la bioética, la pregunta fundamental es de índole moral. La bioética es pues una disciplina ética que tiene su hogar epistemológico en la filosofía. El autor también defiende el concepto de "éticas aplicadas". Sugiere finalmente que el método de la bioética, sobre todo la que se hace desde nuestras latitudes, debería adoptar el círculo hermenéutico como metodología para su filosofar.O artigo examina o estatuto espistemológico da bioética como disciplina acadëmica. O autor defende que o estatuto espistemológico de um discurso é determinado pela pergunta fundamental que se faz e a resposta que se busca, focos integradores do discurso. No caso da bioética, a pergunta fundamental é de índole moral. A bioética é uma disciplina ética que encontra seu lugar epistemológico na filosofia. O autor também defende o conceito de "éticas aplicadas". O autor sugere finalmente que o método da bioética, sobretudo a que se faz a partir de nossas terras, deveria adotar o círculo hermenëutico como metodologia para seu filosofar.This article examines the epistemological statute of bioethics as an academic discipline. The author claims that the epistemological statute of a dialogue determines the fundamental question that is raised and the answer that is sought, essential points of discourse. In the case of bioethics, the fundamental question is of a moral nature. Therefore, bioethics is an ethical discipline that has its epistemological roots in philosophy. The author also defends the concept of applied ethics. Finally, he suggests that bioethical methods, above all especially what is realized in our latitudes, should adopt the Hermeneutic Circle as the
Sorta-Bilajac, Iva; Brkanac, Domagoj; Brozović, Boris; Baždarić, Ksenija; Brkljačić, Morana; Pelčić, Gordana; Golubović, Vesna; Šegota, Ivan
The aim of this study was to assess attitude towards euthanasia, and the influence of socio-demographic data and death education carried out through the »Rijeka model« of bioethics education for the first-year medical students of the School of Medicine, University of Rijeka, Croatia. The cross-sectional study was conducted in the academic year 2003/ 2004. 124 (61% female) participants were surveyed by using an anonymous questionnaire before and after training. Catholics (p= 0.003)...
José Humberto Belmino Chaves
Full Text Available OBJETIVOS: descrever características sócio-demográficos, comportamentais, clínicos, analise anatomopatológica, e o tipo de abortamento em adolescentes, de modo a discuti-los bioeticamente. MÉTODOS: aplicou-se questionário estruturado no atendimento a 201 adolescentes com abortamento incompleto submetidas à curetagem uterina, em uma maternidade pública no nordeste do Brasil. RESULTADOS: idade média de 16,1 anos; parceiro estável; mulatas; não usavam preservativos nas relações sexuais; média de idade de início de atividade sexual de 15 anos; não planejaram a gestação; desejavam a gravidez; idade gestacional média de 13,2 semanas. O desfecho da gravidez, quanto ao tipo de abortamento 1,99% abortamento espontâneo e 81,59% certamente provocados, dados obtido através da classificação da Organização Mundial da Saúde. Tecidos embrionários e maternos no anatomopatológico 88,56% e 11,44%, respectivamente. Entre os abortamentos certamente provocados, um caso de mola hidatiforme. CONCLUSÕES: recomenda-se urgência nos programas estratégicos de planejamento familiar; realização do anatomopatológico no material proveniente de aborto; a bioética refletindo pró-ativamente se apresenta como instrumento para diretrizes mínimas de proteção e assistência a adolescente, e auxilio ao profissional de saúde.OBJECTIVES: to describe the socio-demographic, behavioral, clinical and anatomical-pathological characteristics and the type of abortion in adolescents as a way of discussing the subject from a bio-ethical perspective. METHODS: a structured questionnaire was applied to 201 adolescent girls receiving treatment for incomplete abortion and being subjected to uterine curretage, at a public maternity unit in the Northeast region of Brazil. RESULTS: the mean age was 16.1 years; most girls had a stable partner, were of mixed race, and were not accustomed to using condoms during sexual intercourse. The mean age for initiation of
Burgio, G R; Locatelli, F
The two most widely used sources of hematopoietic stem cells for allogeneic transplants in pediatric practice are bone marrow (BM) and cord blood (CB). While bone marrow transplantation (BMT) is reaching its 30th year of application, human umbilical cord blood transplantation (HUCBT) is approaching its 10th. Although these procedures have basically the same purpose, a number of biological differences distinguish them. In particular, the intrinsically limited quantity of CB stem cells and their immunological naiveté confer peculiar characteristics to these hematopoietic progenitors. From a bioethical point of view, the problems which have repeatedly been raised when the BM donor is a child are well-known. Different but no less important ethical problems are raised when one considers HUCBT; in this regard the most important issues are the easier propensity of programming a CB donor in comparison with a BM donor (clearly due to the shorter time interval needed to collect the hematopoietic progenitors); the in utero HLA-typing; the implication of employing 'blood belonging to a neonate' for a third party; the need to perform a number of investigations both on the CB of the donor and on the mother and the implications that the discovery of disease may have for them, but also the need to establish banks for storing CB, with the accompanying administration and management problems. All these different aspects of UCBT will be discussed in the light of the four fundamental and traditional principles of bioethics, namely autonomy, nonmaleficence, beneficence and justice. PMID:9208108
Ledys Mary Herrera
Full Text Available The quality and scientific development of health assistance in Cuba are reflected in its health index which is an expression of respect for all those who give and receive health services in the country. Thus human dignity, which is widely represented in the informed consent should be a premise while practicing a high quality health service according to the principles of Bioethics, constituting it an ethical challenge for all the health staff. This paper reviews the principles of Bioethics with regards to informed consent in Orthodontics. La calidad que se ha logrado en la atención médica y el desarrollo científico alcanzado por Cuba, se reflejan en nuestros indicadores de salud, lo cual se manifiesta en el respeto a quien recibe los servicios y a quienes lo ofertan, por lo que el cuidado de la dignidad humana representada ampliamente en el consentimiento informado debe ser una premisa para ofrecer servicios de salud con calidad según los principios de la bioética, lo cual constituye un reto ético de primer orden para los profesionales del sector de la salud. En este trabajo se hace una revisión sobre el consentimiento informado en Ortodoncia.
Jorge Alberto Álvarez-Díaz
Full Text Available Para plantear posibles retos de la bioética en la medicina del siglo XXI es necesario considerar que existieron algunos retos en el pasado (en el origen de esa nueva disciplina llamada bioética; que los retos se han ido modificando con el avance científico, biomédico y humanístico; considerando que los retos que pueden plantearse para el futuro serán, de diferentes maneras, resultado de este devenir histórico. Se plantean como grandes retos: los problemas no resueltos de justicia, equidad y pobreza; los retos que plantea la introducción de nuevas tecnologías con el paradigma de la nanomedicina y los retos que plantea el avance de las neurociencias con el paradigma de la neuroética.In order to propose possible challenges of bioethics in the twenty-first century medicine, it is necessary to consider that there were some past challenges (at the origin of this new discipline called bioethics, that the challenges have been modified with scientific, biomedical and humanistic breakthroughs, considering at the same time that challenges that may arise in the future will be, in different ways, a result of this historical evolution. The major challenges would be in the future: the unsolved problems of justice, equity and poverty; the challenges posed by the introduction of new technologies with the nanomedicine paradigm; and finally, the challenges driven by breakthroughs in neurosciences with the neuroethics paradigm.
Ana Fátima Viero Badaró
Full Text Available A Bioética, como campo disciplinar, teve um avanço significativo nas últimas décadas. A América Latina e principalmente o Brasil seguiram essa tendência mundial, com edição expressiva de publicações na área da saúde. Este estudo tem por objetivo verificar como questões éticas e bioéticas foram incorporadas à prática e à pesquisa na área da Fisioterapia. Este estudo exploratório procedeu à revisão sistemática das bases de dados MedLine/PubMed, SciELO, ProQuest, Scopus, Lilacs, Biblioteca Virtual de Saúde e Google acadêmico, sites de periódicos de Fisioterapia, recorrendo a uma bibliografia bioética brasileira editada em 2002 e a contato com autores, em busca de artigos publicados a partir de 2000 que abordassem temas relacionados às questões éticas e bioéticas na fisioterapia. Excluíram-se livros, comentários e/ou resenhas de livros, artigos em revistas não-indexadas e textos com enfoque comercial ou de divulgação. Foram selecionados 23 artigos, 2 editoriais e uma seção de revista. Verificou-se que a evolução da pesquisa bioética na fisioterapia é crescente no cenário internacional, mas há carência desses estudos no âmbito nacional. Isso demonstra a necessidade premente de incluir essa temática na formação e nas discussões dos fisioterapeutas, como forma de contribuir para o fortalecimento da identidade profissional.The bioethics discipline has had a significant advancement in the last decades. Latin America, and mainly Brazil, have followed this world trend, showing a good number of publications by health care professionals. This study aims at verifying how the themes of bioethics and ethics were incorporated into practice and research in the physical therapy field. This systematic literature review has drawn on MedLine/PubMed, SciELO, ProQuest, Scopus, Lilacs, Biblioteca Virtual de Saúde and Scholar Google databases, on physical therapy journal websites, also resorting to a Brazilian bioethics
Flavia Pedro dos Anjos Santos
Full Text Available A violência na escola é um problema social que perpassa o âmbito da educação e da saúde pública, envolve aspectos bioéticos e requer mecanismos de enfrentamento, a partir da educação em saúde. Este estudo objetiva discutir estratégias fundamentadoras da educação em saúde, sobre aspectos bioéticos no domínio da violência escolar. Consiste em uma revisão bibliográfica crítico-reflexiva por meio do acesso a banco de dados da Biblioteca Virtual de Saúde (BVS, utilizando os descritores "violência and bioética" e "violência na escola", considerando os estudos publicados no período de 2004 a 2009. Realizamos também levantamento das obras de Paulo Freire e Pedro Demo, teóricos da Educação Libertadora. A leitura do material conduziu-nos a definição e discussão de três eixos temáticos: 1 bioética como instrumento reflexivo para a retomada dos valores morais na sociedade; 2 escola como formadora ética e de exercício de cidadania; 3 educação em saúde como instrumento para o enfrentamento da violência na escola. Acreditamos que a violência escolar envolve questões bioéticas que devem ser alvo de intervenções educativas na perspectiva libertadora, no intuito de gerar reflexões sobre o caráter negativo da violência escolar, tanto para o ensino-aprendizagem, como para o adoecimento dos atores envolvidos nessa problemática. Os profissionais da saúde poderão estabelecer a intersetorialidade com a educação e contribuir na prevenção da violência na escola, por meio de ações educativas em saúde, mobilizando cidadãos para uma sociedade comprometida em promover a vida; e que os profissionais da educação sejam receptivos e coparticipantes do processo intersetorial de educação e saúde.School violence is a social problem that pervades the educational and public health context, involving bioethical issues and requires coping mechanisms from health education. This study aims to discuss strategies that
José Paranaguá de Santana
Full Text Available O estudo considera o cenário das relações internacionais na transição para o Século XXI como pano de fundo para uma reflexão sobre a perspectiva bioética da cooperação internacional em saúde. Apresenta uma análise exploratória sobre a produção científica interdisciplinar da bioética com a saúde pública no contexto internacional, revelando que o enfoque de ambas, ou mesmo das articulações entre esses dois temas, tem parca abordagem do ponto de vista das relações diplomáticas. Descreve a metodologia que permitiu selecionar publicações catalogadas nessa área interdisciplinar em duas fontes bibliográficas disponíveis na Web (93 artigos na BVS/Bireme e 161 na PubMed, apontando dificuldades na recuperação dessa literatura. Advoga o potencial da vertente epistemológica que floresceu na América Latina sob a designação da Bioética de Intervenção na abordagem dos desafios que afrontam o sistema de cooperação internacional, acenado como referencial de análise da cooperação sul-sul em saúde. Conclui propondo a sistematização e o aprofundamento do conhecimento na interseção da bioética com a saúde pública e a diplomacia, cuja projeção no âmbito político-institucional poderá contribuir para a redução das desigualdades das condições de saúde entre as nações.This study considers the scenario of international relations in the transition to the twenty-first century as a backdrop for reflection on the bioethical perspective of international cooperation in health. It presents an exploratory analysis of the interdisciplinary scientific production in bioethics and public health in the international context, revealing that the focus and confluence of both issues has scant coverage in terms of diplomatic relations. It describes the methodology used to select publications cataloged in this interdisciplinary area from two bibliographic sources available on the web (93 articles in BVS/BIREME and 161 in Pub
Fernanda Degilio Alves
Full Text Available O desenvolvimento da Fisioterapia, aliado às mudanças na educação e na saúde, faz com que a autonomia e os dilemas éticos do fisioterapeuta sejam maiores a cada dia, expandindo seu papel no cuidado do paciente. Para além do Código de Ética, as noções de Bioética são centrais no preparo de graduandos para os desafios profissionais. Este estudo verificou a capacidade de tomar decisões éticas de alunos no último ano de Fisioterapia de duas universidades na cidade de São Paulo, das quais uma oferece no currículo a disciplina Bioética e a outra não. Cinqüenta alunos de cada universidade responderam a um questionário sobre dilemas éticos correspondentes a artigos do Código de Ética; cada questão oferecia três alternativas de resposta: uma bioética, outra referente ao Código e uma não-ética. As respostas foram analisadas estatisticamente. Os resultados mostraram um bom preparo ético em pouco mais de metade dos alunos das duas universidades, sugerindo que ambas oferecem preparo ético similar aos graduandos, independente da diferença curricular. No entanto, os alunos da universidade que oferece Bioética tiveram resultados significantemente melhores nos quesitos referentes à relação com outros profissionais da saúde, sugerindo que essa disciplina oferece melhores condições para o relacionamento interprofissional, fator importante tanto na prática clínica quanto para elevar o status da Fisioterapia.Physical therapy recent expansion, along with changes in education and health, enhance physical therapists' role in patient care, while increasing both their autonomy and the ethical challenges they face in daily clinic. In addition to knowledge of the professional ethical code, notions of Bioethics are thought to be central to students training. This study analysed the ability to make ethical decisions among 100 physical therapy undergraduate students at two universities in São Paulo, of which only one offers the
Dove, Edward S.; Özdemir, Vural
The global bioeconomy is generating new paradigm-shifting practices of knowledge co-production, such as collective innovation; large-scale, data-driven global consortia science (Big Science); and consortia ethics (Big Ethics). These bioeconomic and sociotechnical practices can be forces for progressive social change, but they can also raise predicaments at the interface of law, human rights, and bioethics. In this article, we examine one such double-edged practice: the growing, multivariate exploitation of Big Data in the health sector, particularly by the private sector. Commercial exploitation of health data for knowledge-based products is a key aspect of the bioeconomy and is also a topic of concern among publics around the world. It is exacerbated in the current age of globally interconnected consortia science and consortia ethics, which is characterized by accumulating epistemic proximity, diminished academic independence, “extreme centrism”, and conflicted/competing interests among innovation actors. Extreme centrism is of particular importance as a new ideology emerging from consortia science and consortia ethics; this relates to invariably taking a middle-of-the-road populist stance, even in the event of human rights breaches, so as to sustain the populist support needed for consortia building and collective innovation. What role do law, human rights, and bioethics—separate and together—have to play in addressing these predicaments and opportunities in early 21st century science and society? One answer we propose is an intertwined ethico-legal normative construct, namely trustworthiness. By considering trustworthiness as a central pillar at the intersection of law, human rights, and bioethics, we enable others to trust us, which in turns allows different actors (both nonprofit and for-profit) to operate more justly in consortia science and ethics, as well as to access and responsibly use health data for public benefit. PMID:26345196
Popa V.I.; Lascar I.; Valcu M.; Sebe Ioana Teona; Caraban B.; Margina Arina Cristiana
Animal experiments are used on a large scale worldwide in order to develop or to refine new medicines, medicinal products or surgical procedures. It is morally wrong to cause animals to suffer, this is why animal experimentation causes serious moral problems.
Alexander Georgievich Yushchenko
The essential theses of evolutional theology are set forth here, which assume biological evolution to be either a technology of the Creator or His own evolution towards understanding His own intentions and attributes. The paradigm of evolutional Christianity is reviwed along with the position and the role of humans in the psychophysical megasynthesis of the Universe and the attibutes of religious and scientifically-atheistic world-view. Biological evolution is interpreted as an ascending row ...
Full Text Available The recent laws on mental health define psychiatric illness as a loss of consciousness and understanding of consequences of self-behavioral acts, evaluated by loss of discernment. As discernment represents the main criteria of responsibility towards personal actions, this study attempts at presenting the ethical issues related to discernment evaluation from the perspective of forensic medicine. We propose a "mint" representation of the content and consequences of one’s own actions as a new criteria of evaluation, taking into account the modern principles of psychology and psychiatry.
@@ Chinese civilization has a long history of 5,000years. It is China's fine tradition to attach importance to ethics and morality, that is "All must regard self-cultivation as the root." Confucius once said that "Benevolence means love of people." He advocated respecting people, concerning about people and caring for people.
... Nelda Godfrey INTERVIEW LISTEN David Casarett LECTURE LISTEN Rosemary Flanigan INTERVIEW LISTEN Impact Stories From Others Navigating Health Policies Like most emergency medical services (EMS) providers, ...
This article examines ethical issues debated in Iceland concerning population genetic research, specifically methods of collecting biosamples and ways to return clinically relevant results to participants. Also discussed are scientific research in the health sector, a bill on surrogacy, and a policy on consent for organ donation. PMID:27348827
Full Text Available Animal experiments are used on a large scale worldwide in order to develop or to refine new medicines, medicinal products or surgical procedures. It is morally wrong to cause animals to suffer, this is why animal experimentation causes serious moral problems.
Este trabajo presenta la experiencia que significó el paso por el Programa Internacional de Formación en Ética de la investigación biomédica y psicosocial del Centro Interdisciplinario de Estudios en Bioética de la Universidad de Chile (2003–2004) y algunas reflexiones respecto de la integración de lo aprendido en mi posterior labor en comités de ética y programas académicos de ética de investigación. Asimismo, en la elaboración de regulaciones que permitan una mejor evaluación ética y científica. PMID:23172984
Ricardo Cruz-Coke M
Full Text Available The author, member of the UNESCO Bioethics Committee, participated in the preparation of the Universal Declaration about Human Genoma and Human Rights, in 1997. The aim of this work is to analyze the initial articles of such Declaration, defining the bioethical principles that defend human dignity, freedom and rights, against the madness of the present biotechnological revolution. The development of genetics for the benefit of mankind will be guaranteed if these principles are honored. Genetic discrimination, reductionism and determinism, are identified by the author as perversions that, if used by biotechnologists, can lead to the rebirth of eugenism and racism, that were condemned by the Code of Nuremberg, in 1947. Investigators must assume their responsibility, respecting the principles of human dignity, the real freedom of research and solidarity among people. This attitude will avoid the use of genetics for purposes other than the welfare of mankind. (Rev Méd Chile 2000; 128: 679-82.
Carlos C. Goller
Full Text Available Historical ethical dilemmas are a valuable tool in bioethics courses. However, garnering student interest in reading and discussing the assigned cases in the classroom can be challenging. In an effort to actively engage undergraduate and graduate students in an Ethical Issues in Biotechnology course, an activity was developed to encourage reflection on a classical ethical dilemma between a patient, St. Martin, and his employer/caretaker, Beaumont. Two different texts were used to analyze the ethical ramifications of this relationship: a chapter in a popular press book and a short perspective in a medical journal. Participants read the book chapter for homework and discussed it in class. This easy read highlights the fundamental ethical issues in the relationship between two men. Students were then provided with a second text focusing on the scientific accomplishments achieved through Beaumont's experimentation on St. Martin. A structured worksheet prompted participants to reflect on their feelings after reading each text and create a concept map depicting the dilemma. Student-generated concept maps and written reflections indicate participants were able to list the ethical issues, analyze the situation, and evaluate the information provided. This activity not only encouraged higher-level thinking and reflection, it also mirrored the course's structured approach of using concept mapping and reflection to dissect ethical dilemmas.
Faria, Miguel A
American bioethicists have been providing persuasive arguments for rationing medical care via the theory of the necessary "rational allocation of finite health care resources." Anticipating the need for the drastic rationing of medical care in the U.S. with the implementation of ObamaCare and assisted by various sectors of organized medicine in league with the State, bioethicists have deduced that more ingenious approaches are necessary to convince Americans who have been accustomed to receiving the best medical care that third-party payers are willing to pay for. It is in this context that the individual-based, patient-oriented ethics of Hippocrates, including his fundamental dictum, "First Do No Harm," have to be supplanted by the utilitarian approach promoted by the bioethicists. And today's foremost proponent of the bioethics movement is Dr. Ezekiel Emanuel. This editorial proposes a rational rebuttal to Dr. Emanuel's proposal to limit life expectancy to age 75 as a rational paradigm to a better life. PMID:25789197
Miguel A Faria
Full Text Available American bioethicists have been providing persuasive arguments for rationing medical care via the theory of the necessary "rational allocation of finite health care resources." Anticipating the need for the drastic rationing of medical care in the U.S. with the implementation of ObamaCare and assisted by various sectors of organized medicine in league with the State, bioethicists have deduced that more ingenious approaches are necessary to convince Americans who have been accustomed to receiving the best medical care that third-party payers are willing to pay for. It is in this context that the individual-based, patient-oriented ethics of Hippocrates, including his fundamental dictum, "First Do No Harm," have to be supplanted by the utilitarian approach promoted by the bioethicists. And today′s foremost proponent of the bioethics movement is Dr. Ezekiel Emanuel. This editorial proposes a rational rebuttal to Dr. Emanuel′s proposal to limit life expectancy to age 75 as a rational paradigm to a better life.
Maria de Jesús Sánchez Bouza
Full Text Available Bioethical aspects related with the prevention, diagnosis and treatment of patients with AIDS are present in the Cuban strategy to fight the epidemic. Through the revision of the essentials and principles of Bioethics, we analyze the problems that doctors face when treating these patients and aspects related with education for health in the case of this disease. It also outlines the association between these principles and the disposition, manifested or not, of theses patients to be part of some researches. This infection should be the target of permanent analysis by the Bioethics due to the constant challenges that it represent for medical staff and for society, either for the prevention, treatment and care, or for other kids of actions. Cuba has exceptional results in this field.Aspectos éticos relacionados con la prevención, diagnóstico y tratamiento a los pacientes con SIDA, están presentes en la estrategia cubana para el enfrentamiento de la epidemia. A través de una revisión de los estatutos o principios de la Bioética, se analizan los problemas que enfrenta el médico al tratar a estos pacientes y los aspectos relacionados con la educación para la salud en el caso de la enfermedad; también se destaca la relación con estos principios y el deseo expreso o no de los pacientes de someterse a determinadas investigaciones. El VIH/sida tiene que constituir una situación de análisis permanente de la Bioética por los desafíos constantes del personal de salud y la sociedad, tanto para la prevención, cuidado y tratamiento como para otras acciones. Cuba exhibe resultados excepcionales, diferentes al resto del mundo.
生命伦理的差序性是指生命伦理观念的差异性和生命伦理地位的等级性、顺序性。由于治疗性克隆涉及对人类早期胚胎的破坏和利用，人们对胚胎能否享有人的道德主体地位，或是否享有与患者同等的道德权利产生了分歧，这种分歧源于是否承认生命伦理的差序性。因而，只有从生命伦理的差序性出发，以后现代伦理思想为指导，积极开展伦理辨析，进行生命伦理思想的交流、调适，采取伦理宽容态度，并经历长期交互对话与协调的伦理实践过程，治疗性克隆伦理的困境才能在短期内缓和，在长期内逐渐趋于消解。%The differentiation of bioethics refers to the difference of ethic notions as well as the hierarchy and sequentiality of bioethics .As therapeutic cloning concerns the damage and use of human early embryos ,there are contentious arguments on whether embryos have the same moral rights as human beings or whether they share the same moral rights as patients . This dispute comes from whether the differentiation of bioethics should be acknowledged .Therefore ,the solution to the dilemma of therapeutic cloning lies in the active discussion ,communication and adaptation of bioethical thoughts as well as the adoption of the ethical tolerance and the guidance of postmodern ethics thought .The dilemma of therapeutic cloning will be moderated in short terms and solved in long terms through the long‐term practice of ethical discourse and coordination .
Liliane Cristina Gonçalves Bernardes
Full Text Available O artigo propõe reflexões, à luz da bioética, acerca do dilema da alocação de recursos públicos para a assistência à saúde das pessoas com deficiência no Brasil. Para tanto, o conceito de deficiência e o marco legal brasileiro de assistência às pessoas com deficiência são apresentados; faz-se uma análise sobre a escassez de recursos; discutem-se referenciais teóricos atinentes e destaca-se o aporte da bioética de proteção e da bioética de intervenção. Conclui-se que, em razão de sua vulnerabilidade, as pessoas com deficiência devem ser protegidas pelo Estado e recursos devem ser empregados para garantir seu acesso aos serviços de saúde. Enfatiza-se, também, que apesar da previsão legal já existente, a efetiva destinação de recursos depende de outros fatores, tais como a participação sociopolítica das pessoas com deficiência na " pactuação" das políticas de saúde.The purpose of this article is to analyze the dilemma of allocation of public funds to the healthcare of people with disabilities in Brazil from a bioethical standpoint. The concept of disability and the legal framework are presented; the question of budgetary constraints and theoretical bioethics references about this issue are discussed; and the role of Bioethics of Protection and Bioethics of Intervention is stressed. It is concluded that, because of their vulnerability, people with disabilities should be protected by the state and funds must be allocated to guarantee their access to healthcare services. However, in spite of the existing legal basis, the actual destination of public funds to people with disabilities still depends on other factors, among others social and political participation of the disabled persons themselves in the negotiation of healthcare policies.
This article is about the legalization of euthanasia in China from the perspective of bioethics.On the one hand,euthanasia is basically in line with the four cardinal bioethical principles of Respecting for Autono-my,Nonmaleficence,Beneficence and Justice,which at the same time ensures the protection of human dignity.So euthanasia can be reasonably defended by bioethics.On the other hand,the legalization of euthanasia is subject to the limited conditions of the real world in China.The implied moral hazard of euthanasia cannot be ignored. Only through deepening reform to improve social security system,to narrow the social gap,and to prevent the a-buse of euthanasia,can the legalization of euthanasia truly meet the spirit and principles of bioethics.%从生命伦理学的视角审视安乐死在我国的合法化问题可知，一方面，安乐死合法化基本符合生命伦理不伤害、有利、尊重、公正四项基本原则，同时又是对人生命尊严与人格尊严的重要保障，因而可以获得伦理辩护；另一方面，受我国现实社会条件所限，安乐死又有潜在的社会道德风险，存在着被滥用和因外在压力而“自愿安乐死”的可能。只有通过深化改革使社会保障体制趋于完善、社会差距趋于缩小、预防滥用的措施趋于完备，安乐死合法化被提上议事日程才真正符合生命伦理的精神和原则。
Wilma da Costa Torres
Full Text Available O presente trabalho focaliza os fatores impulsionadores do surgimento da Bioética, destacando: a a revolução científica e tecnológica, e b a revolução social dos anos 1960. Descreve o desenvolvimento histórico da Bioética desde sua definição inicial como ciência da sobrevivência humana até seu estágio atual - o da Bioética Global, e suas fronteiras com os vários campos do saber. A psicologia da saúde integra esse contexto multidisciplinar principalmente por sua reflexão sobre temas desafiadores da Bioética, entre os quais são aqui discutidos aqueles decorrentes da medicina intensiva (eutanásia e distanásia e aqueles derivados da medicina substitutiva (transplantes. Questões básicas como definição de morte, consentimento livre e informado são analisadas como ainda polêmicas e controvertidas. Conclui-se com as indagações sobre as quimeras da ciência para triunfar sobre a doença e os problemas da ordem canibal que se espera diminuam na medida em que as terapêuticas etiológicas e fisiológicas progridamThe present work focus on factors that contributed to the emerging field of Bioethic. Among, those, we point out: a technological and scientific revolution; b social revolution of the 60's. It describes the historical development of Bioethic, from its former definition as a science of human survival to its current stage - Global Bioethic and its boundaries with different fields of knowledge. Health Psychology takes part in this multidisciplinary context, mainly due to its reflection upon challenging themes that involve Bioethics; among these themes, we discuss here those brought about by intensive medicine (euthanasia and disthanasia and the ones that are a consequence of substitutive medicine (transplants. Basic questions, such as death definition, free and informed consent, are analysed as still polemic and controversial. The article is concluded raising questions upon the chimeras of science to triumph over
José Alvaro Marques Marcolino
Full Text Available Os autores realizam um estudo a respeito de uma correlação entre a bioética e a psicologia médica. Dividem o trabalho em duas partes. A primeira discute os conceitos filosóficos sobre a distinção entre moral e ética, trata da ética ligada à medicina e dedica-se à bioética, procurando definir o que se compreende por essa disciplina, descrevendo seus três princípios básicos: a autonomia, a beneficência, não-maleficência e a justiça. Portanto, traça nesta parte do trabalho, uma trajetória que partiu da ética em sua vertente filosófica até chegar à ética em sua aplicação à medicina. A segunda parte é dedicada a definição do campo da psicologia médica, estudando aspectos da relação emocional do indivíduo doente com a sua doença, da relação do médico com a medicina e enfoca o relacionamento do médico com seu paciente. Discutem algumas situações clínicas em que se observa essa correlação. No final, buscam elaborar algumas conclusões.The authors make a study about the correlation between bioethics and medical psychology. They divide the study in two parts. The first part they discuss the philosophical concepts about the distinction between morals and ethics, they deal with ethics applied to medicine and they are trying to define what is meant by subject and describe its three basic principles: autonomy, beneficence, non maleficence and justice. Consequently in this part they trace route that started from ethics in its philosophical origins and moved on to ethics in its application to medicine. The second part is dedicated to the definition of the field of study of medical psychology, they study some aspects of the emotional relation of the patient with his illness, the relation of the doctors of his medicine and the relacionship between doctor and his patient. They discusse some clinical issues where they observe this correlation. At last, they try to draw some conclusions.
Full Text Available Les modifications récentes des Codes de statut personnel ou pénal de certains pays musulmans qui touchent en particulier au mariage, au divorce, à l’adultère et aux crimes d’honneur réinterrogent les notions fondamentales que sont la dot, le lien conjugal, l’autorité des hommes, le contrôle de la sexualité des femmes. De plus, les réformes législatives liées à « l’adoption », aux procréations médicalement assistées, au désaveu et à la reconnaissance de paternité, à l’usage de tests ADN, font apparaître le rapport du biologique et du social dans la détermination de la filiation en islam. Par ailleurs, les nouvelles questions de bioéthique comme la contraception, l’avortement, ou encorele don d’organes, ont amené les juristes musulmans à émettre des avis juridiques (fatâwâ sur ces questions inédites en puisant leurs réponses dans l’esprit des textes de droit musulman classique. Le droit musulman (fiqh loin d’être intangible et immuable, comme on a tendance à le penser, se situe dans une dynamique pragmatique et évolutive permanente ainsi que le montre la diversité des avis juridiques produits par les juristes musulmans sur des questions sans cesse renouvelées.Recent modifications of personal status and of penal codes in some Muslim countries question fundamental patriarchal ideas and practices about marriage such as bridewealth, conjugal relations, male authority and sexual control of women. These modifications specifically concern weddings, divorce, adultery, and honor crimes. Furthermore, legislative reforms connected to «adoption», medically assistedprocreation, denial or recognition of paternity, use of genetic tests, illustrate the relation of biological and social in the determination of filiation in Islam. Besides, new questions of bioethics such as contraception, abortion, or organ donation, have led Muslim jurists to express legal opinions (fatâwâ on these new questions while
Full Text Available O Código de Ética Odontológica (CEO brasileiro, Resolução CFO-71 de maio/2006, é um instrumento elaborado para orientar a conduta dos cirurgiões-dentistas sobre os aspectos éticos da prática profissional. O objetivo do estudo é analisar o CEO comparando os enfoques deontológico e bioético. Para tal, realizou-se a análise interpretativa do CEO e de doze textos selecionados, seis sobre bioética e seis sobre deontologia, por meio da classificação metodológica das unidades de contexto, parágrafos textuais e itens do código, nas seguintes categorias: os referenciais do principialismo bioético - autonomia, beneficência, não-maleficência e justiça -, aspectos técnicos e virtudes morais relacionados à profissão. Os quatro princípios somados representaram 22,9%, 39,8% e 54,2% do conteúdo do CEO, dos textos deontológicos e dos bioéticos, respectivamente. No CEO, 42% dos itens referiam-se às virtudes, 40,2%, a aspectos técnicos e apenas 22,9%, aos princípios. As virtudes relacionadas aos profissionais e os aspectos técnicos juntos representam 70,1% do código. O CEO, em vez de centrar-se no paciente como sujeito do processo de atenção à saúde bucal, focaliza o profissional, sendo predominantemente voltado para aspectos legalistas e corporativistas.The Brazilian Dentistry Code of Ethics (DCE, Resolution CFO-71 from May 2006, is an instrument created to guide dentists' behavior in relation to the ethical aspects of professional practice. The purpose of the study is to analyze the above mentioned code comparing the deontological and bioethical focuses. In order to do so, an interpretative analysis of the code and of twelve selected texts was made. Six of the texts were about bioethics and six on deontology, and the analysis was made through the methodological classification of the context units, textual paragraphs and items from the code in the following categories: the referentials of bioethical principlism - autonomy
白洁; 周萍; 薛迪; 达庆东; 纪洁
通过上海市临床医师问卷调查,应用Logistic模型分析临床医师对基因技术与生命伦理的认知的影响因素.结果显示,临床医师的性别、年龄、学历和职称等人口学因素主要影响对基因技术优势的认知.基因工作经历、伦理委员会任职经历、对伦理与相关法规的知晓度主要影响对基因技术风险的认知.建议加强基因伦理与相关法规教育,重视部属或市属综合性医院基因技术研究与应用的管理.%After a survey of physicians in Shanghai, the factors that influence the cognition of genetic technology and bioethics were analyzed through using Logistic model. The results indicated that demographic factors of physicians, such as gender, age, education and professional titles, mainly affected their cognition of the advantages of genetic technology, while experience in genetic work and ethics committees as well as knowledge of ethics and related regulations mainly affected their cognition of the risks of genetic technology. It is suggested that education and training on bioethics and related regulations should be reinforced and the management of clinical genetic trials, and services in the general hospitals subordinated to Ministry of Health or Municipal Health Bureau should be paid more attention to.
An exercise is described in which second year undergraduate bioscientists write a reflective commentary on the ethical implications of a recent biological/biomedical news story of their own choosing. As well as being of more real-world relevance than writing in a traditional essay format, the commentaries also have potential utility in helping the…
Fermin Roland Schramm
Full Text Available A vigência simultânea do paradigma biotecnocientífico (que incentiva a incorporação tecnológica e da cultura dos limites (que seleciona as tecnologias constitui um grande desafio aos sistemas sanitários atuais, suscitando debates éticos e políticos sobre as escolhas a serem feitas. A avaliação tecnológica em saúde diz respeito à análise das conseqüências dos cuidados em saúde e das políticas de saúde, e apresenta pontos de interseção com a bioética, apesar de serem campos distintos. A importância das implicações éticas e sociais da avaliação tecnológica é cada vez mais reconhecida, mas a maioria das publicações tem enfatizado apenas os aspectos metodológicos e científicos. Existem vários tipos de interesses envolvidos na incorporação tecnológica, fontes de conflitos de valores. As implicações éticas incluem aquelas relativas aos ensaios clínicos para aferir sua eficácia; à avaliação da boa ou má prática médica; à forma de incorporar as novas tecnologias e à sua efetividade; ao acesso e à alocação de recursos disponíveis. A incorporação da dimensão ética na avaliação tecnológica possibilitará melhor compreensão da prática de saúde e um avanço em direção ao seu aprimoramento.The simultaneous existence of a biotechnoscientific paradigm (which emphasizes technological incorporation and a culture of limits (which selects technologies challenges current health systems, raising ethical and political discussions as to the choices to be made. Health care technology assessment is mainly concerned with the consequences of health care and health care policies. Thus, there is significant overlap between this activity and bioethics, even though they are different fields of knowledge. Although the importance of ethical and social issues arising in technology assessment has been recognized, most publications emphasize only methodological and scientific aspects. There are different interests
Full Text Available OBJETIVO: Propor a "solidariedade crítica" como valor a ser incorporado na agenda bioética do século XXI e como instrumento que guia as pessoas e associações na prática voluntária. MÉTODOS: Para explicar de que modo a solidariedade se materializa são analisadas as motivações à atividade voluntária das associações que integram o voluntariado do Instituto Nacional do Câncer, Rio de Janeiro. Os dados para análise foram obtidos pela aplicação de dois instrumentos: um questionário dividido em duas partes que o identificam o perfil socioeconômico, e a solidariedade como valor que motiva a atividade voluntária; e entrevista semi-estruturada para obtenção de dados complementares à análise. RESULTADOS: Os resultados mostram que a atividade voluntária se dá em torno de três tipos de motivações básicas: a motivações pessoais relacionadas à vida do voluntário, b motivações decorrentes da crença professada, e c motivações despertadas pelo sentimento de solidariedade. CONCLUSÕES: A incorporação da solidariedade crítica impõe a ruptura do modelo de voluntariado assistencial detectado. Isso implica em visibilizar os interesses, que egóicos, em geral, permeiam as práticas voluntárias. Assim, qualifica-se um voluntariado orgânico, politizado e comprometido em atender demandas específicas dos tempos atuais.OBJECTIVE: The study proposes "critical solidarity" as a value to be incorporated into the 21st century's bioethics agenda and as an instrument to guide people and associations in volunteer praxis. METHODS: To explain how solidarity materializes itself, the motivations for engaging in volunteer activities in associations that integrate the corps of volunteers of the Instituto Nacional do Cancer [National Cancer Institute] in Rio de Janeiro, Brazil, are analyzed. The data for analysis were obtained by applying two instruments. The first one consists of a questionnaire divided into 2 parts: one part identifies the
Maria José Delgado Fagundes
Full Text Available Sob a perspectiva da "ética da proteção" e da "bioética de intervenção", a pesquisa analisa a influência das peças publicitárias de medicamentos veiculadas à classe médica na prescrição de medicamentos. Estuda, ainda, a qualidade das informações nas propagandas de medicamentos de venda sob prescrição, antes e depois da Resolução da Diretoria Colegiada da Anvisa - RDC 102/2000, que regulamenta a propaganda de medicamentos no país, bem como discute o papel regulador do Estado na área. Primeiramente, foram entrevistados 50 médicos de Brasília, a fim de examinar como percebem os efeitos da propaganda sobre sua atividade profissional. Em seguida, foram avaliadas 10 peças publicitárias, 5 veiculadas antes e 5 depois da RDC 102/2000. Os resultados permitiram concluir que: a 98% dos médicos recebem visitas regulares de representantes comerciais; b 86% recebem brindes; c 68% crêem na influência direta da propaganda sobre a prescrição; d 14% disseram prescrever medicamentos em função do recebimento de prêmios; e 68% acreditam existir inverdades nas informações das peças publicitárias; f antes da RDC, as informações (contra-indicações, indicações, precauções, cuidados e advertência nas propagandas representava 28% dos casos; após a RDC, foram encontradas informações em 79% dos casos.This study investigates how advertising campaigns for drugs influence drug prescription practices among physicians from a point of view of "protection ethics" and of "intervention bioethics". It also analyzes information quality in advertisements for prescription drugs before and after the ANVISA (National Agency for Sanitary Protection RDC 102/200 Resolution wich regulates drugs advertising as well as discusses the regulating role of the state in this area. A first approach was to interview 50 physicians in Brasília/DF (25 general physicians and 25 surgeons in order to examine how they perceive the effects of advertisement on
Stronck, David R.
Many teachers avoid controversial topics because they do not want to upset students or parents, do not know appropriate instructional strategies, and fail to recognize the importance of motivating students through placing science in its relevant context. An example is provided for use in a methods course for helping future high school teachers to…
Kleinman, I; Baylis, F; Rodgers, S; P. Singer
Physicians are obliged to keep information about their patients secret. The understanding that the physician will not disclose private information about the patient provides a foundation for trust in the therapeutic relationship. Respect for confidentiality is firmly established in codes of ethics and in law. It is sometimes necessary, however, for physicians to breach confidentiality. Physicians should familiarize themselves with legislation in their own province governing the disclosure of ...
Full Text Available Emergency contraceptives, in this case post-morning pills, are contraceptive methods used to avoid an unwanted pregnancy after an unprotected sexual intercourse. Their use is feeding a strong ethical debate between subjects for and against their prescription and leading some health professionals to conscientious objection. Among people contrary to prescription some oppose to it because of a general refuse of all contraceptive methods, others considering post-morning pills as abortive. Among people supporting prescription, some consider emergency contraception necessary to assure fundamental women’s rights, in particular the right to sexual auto-determination, while others prescribe emergency contraception only to avoid a greater demand for abortion. It is up to the Italian National Health Service warranting a correct balance between the two opposite positions, that can protect women’s right of access to health services.
Garvey, G; Towney, P; McPhee, J R; Little, M; Kerridge, I H
It is well recognised that medicine manifests social and cultural values and that the institution of healthcare cannot be structurally disengaged from the sociopolitical processes that create such values. As with many other indigenous peoples, Aboriginal Australians have a lower heath status than the rest of the community and frequently experience the effects of prejudice and racism in many aspects of their lives. In this paper the authors highlight values and ethical convictions that may be held by Aboriginal peoples in order to explore how health practitioners can engage Aboriginal patients in a manner that is more appropriate. In doing so the authors consider how the ethics, values, and beliefs of the dominant white Australian culture have framed the treatment and delivery of services that Aboriginal people receive, and whether sufficient effort has been made to understand or acknowledge the different ethical predispositions that form the traditions and identity of Aboriginal Australia(ns). PMID:15574447
Nunes, Rui; Duarte, Ivone; Santos, Cristina; Rego, Guilhermina
“Education for Values and Bioethics” is a project which aims to help the student to build his/her personal ethics. It was addressed to ninth grade students (mean age 14) who frequented public education in all schools of the City of Porto, Portugal-EU in 2010–2013 (N-1164). This research and action project intended to promote the acquisition of knowledge in the following areas: interpersonal relationships, human rights, responsible sexuality, health, environment and sustainable development, pr...
Eudes Q. Oliveira Junior
, visa encartar o profissional no campo seguro da ética e do pensamento bioético. O comprometimento médico assume uma postura social direcionada para a melhor realização do ser humano, ofertando a ele não só o tratamento adequado, mas contando com sua colaboração para atingir os resultados pretendidos. Uma verdadeira simbiose, que busca a concretização do princípio da dignidade humana.Cell therapy has been gaining more and more attention in medical procedures providing acceptable results and thereby efficiently satisfying the mission entrusted by specialists in hematology. The moral principles, together with the professional ethical conduct, demand new positions. The evolution of biotechnology and biotechnoscience carries a considerable amount of human knowledge, but requires the development and refinement of ethical concepts, bringing together social approval and bioethics. More than ever the doctor is geared to conduct an analysis and take into consideration the patient or his guardian. The purpose of this present study is to discuss the main roots of ethics, since its birth, its transformation in philosophical thought, its suitability in the professional field, the materialization of the Code of Medical Ethics and the severance of the new life science, named bioethics. This is in fact an effort to raise undervalued ethical principles again, reassess them in the Code of Medical Ethics, a status it deserves, and open space for bioethical thought. Bioethics emerges as a two-way science, because it involves doctors, researchers, patients and volunteers. The objectives of medical intervention should be explained, discussed and approved by interested parties. The hematologist has to put himself in the shoes of his patient, show him the clinical situation, pointing out the options for conduct and await the "placet". The proposal, therefore, aims to raise the professional to the safety of ethics and bioethical thought. The doctor takes an attitude better targeted
Ivan Dieb Miziara
Full Text Available Implante coclear é a melhor forma de correção da surdez profunda nas formas congênitas. As crianças "implantáveis" são tidas como "vulneráveis", recaindo a decisão de se implantar sobre os responsáveis. Pelo Código Penal Brasileiro, o surdo-mudo pode ter sua imputabilidade reduzida. Existem controvérsias bioéticas a respeito do implante, pois parcela dos representantes da chamada "comunidade de surdos" vê nele uma maneira de "dizimar" sua cultura e valores intrínsecos. OBJETIVOS: Discutir em termos bioéticos a validade de se realizar implante coclear em criança, analisando a sua vulnerabilidade e os aspectos socioculturais do problema, e discutir aspectos médico-legais a respeito da imputabilidade do surdo-mudo. MATERIAL E MÉTODOS: Forma de estudo: pesquisou-se o tema nas bases de dados Medline e Lilacs e a análise ética foi baseada na Bioética Principialista. RESULTADOS: O implante coclear é a melhor opção terapêutica para correção da surdez profunda, estando moralmente justificado. Quanto à imputabilidade penal do surdo-mudo é necessário analisar seu grau de entendimento e autodeterminação à época dos fatos a ele imputados. CONCLUSÕES: O implante coclear é moralmente válido. Sua aplicação deverá ser analisada em cada caso, cabendo ao otorrinolaringologista a responsabilidade ética pela indicação, após assinatura de termo de consentimento pelos responsáveis pela criança.Cochlear implants are the best treatment for congenital profound deafness. Pediatric candidates to implantation are seen as vulnerable citizens, and the decision of implanting cochlear devices is ultimately in the hands of their parents/guardians. The Brazilian Penal Code dictates that deaf people may enjoy diminished criminal capacity. Many are the bioethical controversies around cochlear implants, as representatives from the deaf community have seen in them a means of decimating their culture and intrinsic values. OBJECTIVE: This
Helena Maria Carneiro Leão
Full Text Available A busca sem limites do conhecimento e a preocupação com o cometimento de abusos e exageros nascidos da curiosidade dividem a conduta do homem. A teoria ética nasce da necessidade de justificar racionalmente as condutas morais, diante da própria consciência e diante dos demais. Por ser a teoria um complexo integrado de princípios éticos, coerentes e fundamentais, o conhecimento das teorias éticas é essencial para reflexão, especialmente quando parece impossível cumprir todas as exigências de moralidade. A bioética, originalmente considerada fonte de normas e regras gerais para disciplinar eticamente a investigação científica, constitui-se uma espécie de código de ética profissional para os cientistas e pesquisadores, tornando-se um conjunto de reflexões filosóficas e morais sobre a vida em geral e sobre as práticas médicas em particular. Neste artigo, através de uma revisão da literatura, buscou-se descrever e discutir a importância das teorias éticas na prática da bioética.The knowledge search without limits and the concern of practicing abuses and exaggerations as a result of curiosity divide the human behavior. The ethical theory comes from the need for rational justification of moral actions, toward the own human conscience and other people. As the theory consists of an integrated complex of ethical, coherent and fundamental principles, the ethical theories knowledge is essential for the reflection, especially when is not possible to fulfill all moral requests. The bioethics, originally considered source of general norms and rules for disciplining ethically the scientific investigation, can be regard as a sort of professional ethical code to scientists and researchers, being a group of moral and philosophical reflection concerning life in general and medical practices in particular. In this article, by a literature review, it was aimed to describe and discuss the importance of ethical theories in the bioethics
Full Text Available Introducción: La bioética está presente en la odontología y en las otras áreas de la salud, tanto en las investigaciones científicas, que favorecen el progreso de la profesión, como en el propio tratamiento odontológico. Materiales y métodos: El estudio consiste en la evaluación de las metodologías de enseñanza-aprendizaje de la bioética en las facultades de odontología brasileñas. La recolección de datos se realizó mediante cuestionarios semiestructurados enviados por correo electrónico y por correo postal. Se empleó el análisis de contenido por la técnica de análisis de categorías, conforme a lo preconizado por Bardin. Resultados: Entre las 182 facultades de odontología activas en Brasil, apenas 57 (31,3% presentaban en su malla curricular la asignatura de bioética. Se observó que la asignatura se enseña generalmente de forma teórica (77,8%. Las principales formas de evaluación son: prueba escrita (100% y seminarios y/o trabajo en grupo (75%. Apenas el 6,4% de los profesores emplean referencias bibliográficas sobre bioética dirigidas específicamente a la odontología. La mayoría de los entrevistados (74,2% consideró que la bioética se relaciona de forma directa o indirecta con todas las otras asignaturas. Con respecto a la importancia de la bioética en la formación del cirujano dentista, el 64,7% apuntó a la relación profesional-paciente. Conclusión: La bioética presenta una metodología de enseñanza y prácticas de evaluación conservadoras, haciéndose necesarias otras metodologías dirigidas para la reflexión de los problemas actuales en el área de odontología, que contribuyen significativamente a la formación integral del cirujano dentista.Introduction: Bioethics is present in Dentistry and other health areas, as scientific research that results on profession progress, as in proper clinical attendance. The study consists on valuation of teaching-learning methods of Bioethical on Brazilian
Dolores Lynch Pueyrredon
ños Ricardo Gutiérrez was carried out to determine a the knowledge of basic concepts of bioethics bthe place and function of the committee. A total of 150 surveys were given out, 90 responses were obtained (60%. Basic concepts of bioethics (definition of bioethics, end of life, autonomy, justice, beneficence, and informed consent were correctly answered by 75.2%; 97.8% knew of the existence of the committee in the hospital, it had been consulted by 61.1%. From the group that had consulted the recommendations suggested by the committee to solve the ethical dilemma was considered: useful by 23.6%, partially useful by 45.5% and not useful by 27.3%; 37.8% had never consulted the committee. Of these, 64.7% had never had a dilemma, 11.7% considered not useful any possible answer of the committee, and 11.7% did not give a reason. The majority of the responders had appropriate information of the basic bioethical concepts. Both the index of consultation to the committee and the assessment of its judgements as totally or partially useful (69.1% guarantee its presence. It is peculiar that the principal argument for not consulting the committee was the absence of dilemmas. Both the committee in the hospital and the universities should intensify the teaching of medical ethics (mainly practical ethics, in order to facilitate the detection of ethical dilemmas by the health team.
Carlos JG Flores-Angulo
environmental conditions, the base of carcinogenesis is the non lethal genetic damage. In this sense, the study of genetic susceptibility markers acquires capital importance, because it allows the identification of high genetic risk individuals, estimate their prognosis and their answer to treatment, obtaining a more predictive and preventive position of the medical practice. None the less this could unleash a great deal of ethical problems, especially difficult to solve in a society without an adequate legal context. That is why it is important to carry out an analysis of the Venezuelan Legal System (VLS that protects the information of human genome and its bioethical repercussions. For that, a search and interpretation of the valid Venezuelan normative was made, concerning publications about cancer, its susceptibility and technological diagnosis. The conclusions that were obtained were that 1 Their massive offer is not recommended because of its psychosocial and labor repercussions, 2 The normative of the VLS about the genome protection is quite limited, and 3 The adaptation of the VLS is necessary to the imminent scientific development, in order to control the bioethical impact of the obtained information and guarantee the access to a genetic, psychological and legal advisement so that the context of responsibilities can be established.
I Espinoza Santander
. This requires ethical considerations that support these policies more than demographic and epidemiological data. This article outlines the oral health of older adults in Chile and subsequently, bioethical considerations that may limit or support health care resource allocation in this group. Finally, it can be concluded that Justice in Health and Protection Bioethics must be applied to the discussion about resources allocation in dental health care program for elderly people and other susceptible groups that should be the focus of protection.
Simone de Melo Costa
Full Text Available Este artigo objetivou analisar a problemática da cárie dentária, enquanto uma questão de saúde pública de relevância epidemiológica, tendo como suporte analítico a visão da Bioética da Proteção. Trata-se de estudo de caso realizado a partir de análise documental dos inquéritos epidemiológicos em saúde bucal, de base nacional, 1986, 2003 e 2010. Os levantamentos apontam desigualdades entre grupos populacionais. Essa desigualdade foi analisada, com relação à redução da doença na população mais jovem, no acesso ao atendimento, e na perda dentária, pior desfecho para a cárie dentária. Os bons resultados apresentados, nos levantamentos, não atinge toda a população, apresentando desigualdades por renda familiar e região brasileira. Constatou-se a partir de 2003 intervenções do Estado em ações protetoras, como adoção de critérios de equidade na destinação dos recursos na saúde e inclusão de populações em vulneração, contribuindo para redução da cárie. No entanto, considera-se necessário avançar mais nos modelos assistenciais em saúde bucal usando a Epidemiologia como uma ferramenta estruturante, já que as diferenças regionais ainda permaneceram marcantes, em interface com uma bioética protetora e socialmente responsável.The scope of this paper was to analyze the problem of dental caries as a public health issue of epidemiological relevance. It is a case study based on documentary analysis of national epidemiological surveys on oral health in the years 1986, 2003 and 2010, with the Bioethics of Protection as an analytical support. The surveys revealed inequalities between population groups; and such inequalities were analyzed with respect to the reduction of the disease in the younger population, access to oral health care, and tooth loss, which is the worst outcome for tooth decay. The good results presented in the surveys have not reached the whole population; data have shown inequalities
Full Text Available Este artigo analisa uma das ações educativas adotadas pelo Ministério da Saúde no campo das hemoglobinopatias: o folheto informativo Anemia Falciforme: Um Problema Nosso. O objetivo é discutir as premissas e os valores morais que se encontram associados a iniciativas no campo da educação genética, tendo as políticas públicas sobre anemia falciforme no Brasil como estudo de caso. A análise mostra que o conteúdo do folheto oscila entre políticas de prevenção para doenças e promoção de direitos fundamentais, uma característica da nova genética. Além disso, o excesso de informação biomédica especializada no folheto dificulta sua divulgação em massa. Os resultados encontrados foram discutidos à luz do debate bioético contemporâneo sobre a nova genética.This article analyzes one of the educational initiatives of the Brazilian Ministry of Health on hemoglobinopathies: the leaflet entitled Sickle Cell Anaemia: A Brazilian Problem. The purpose is to discuss the moral values associated with initiatives in genetics education, and the case study focuses on public policies related to sickle cell anaemia in Brazil. The analysis shows that the topics in the leaflets fluctuate between disease prevention policies and human rights protection, a basic characteristic of the new genetics. In addition, the leaflet’s excessive biomedical information hinders understanding by lay readers. The results are analyzed in the light of the contemporary bioethical debate on the new genetics.
Pérez Arianna Hernández
Full Text Available La Segunda Guerra Mundial y las atrocidades cometidas en investigaciones con los prisioneros en los campos de concentración nazis y japoneses, despertaron la conciencia por el desarrollo de los derechos humanos que se habían conquistado paulatinamente a lo largo de la historia. Por ello se conforman una serie de leyes, normas y declaraciones donde se tratan los aspectos bioéticos en los ensayos clínicos. Se debe prestar vital atención a la relación médico-paciente en el curso de las investigaciones y considerar la relación beneficio/riesgo cuando se va a experimentar en seres humanos. La retinopatía diabética proliferativa es una de las afecciones oftalmológicas que más ensayos ha suscitado. El objetivo de este trabajo consiste en analizar algunos aspectos éticos en la experimentación en pacientes con esta afección.The Second World War and the atrocities committed in research with prisoners in Japanese and Nazi concentration camps, awakened consciousness for the development of human rights that had gradually been conquered throughout history. That´s why a series of laws, rules and statements that deal with bioethical aspects in clinical trials, were passed. Special attention must be given to the doctor-patient relationship during the research and consider the benefit/risk ratio when conducting experiments on human beings. Proliferative Diabetic Retinopathy is one of the ophthalmological disorders that has given rise to more trials. The research goal is to analyze some ethical aspects when experimenting on patients with this condition.
转基因作物的产业化作为当前生命伦理学的重要问题之一日益受到我国学术界、政府和广大公众的关注.转基因作物产业化不仅关涉到我国13亿人的吃饭问题,也与我国公众的身心健康、基本权利密切相关.转基因作物产业化的生命伦理意蕴主要体现在:转基因作物产业化的基础是确保公众健康与生命安全,关键是尊重公众权利,核心是促进社会公正.%As one of the significant issues of bioethics, the industrialization of transgenic crops has been paid more attention by the academia, the government and the public. The industrialization of transgenic crops is not only related with the food problem of 1.3 billion people in China, but also with the public's physical and mental health as well as basic rights. The ethical significance of the industrialization of transgenic crops are mainly embodied as follows: the foundation is to ensure safety of the health and safety of the public, the key is to respect the rights of the public, and the core is to promote social justice.
DE UNA NOCIVIDAD A LA OTRA: LA BIOÉTICA FRENTE AL DESAFÍO DE CULTIVAR SU PLURALISMO DESDE UMA NOCIVIDADE ATÉ UMA OUTRA: A BIOÉTICA EM FRENTE DO DESAFIO DE CULTIVAREM O SEU PLURALISMO FROM ONE HARMFULNESS TO THE OTHER: BIOETHICS FACES THE CHALLENGE OF CULTIVATING ITS PLURALISM
Sergio Zorrilla Fuenzalida
para que se continue reflexionando com respeito às nocividades desde a pespectiva da bioética. Pelo fato desta história também trazer à tona os obstáculos e dificuldades com as regulações e juízos já propostos, traz como consequência que ao se medir a bioética com as nocividades também se está medindo com uma parte considerável de si mesmaThis text addresses environmental and food harmfulness as issues that despite their own features constitute an important part inside the universe where bioethics develops. In this sense harmfulness poses a reflective and methodological challenge that compels bioethics to question even about processes and concepts that underlie its daily deeds. Considering that environmental and food harmfulness have their own reflexive and practical history -unrelated to bioethics-, with the participation of actors from diverse spheres it is necessary to make reference to experiences accumulated upon the latest years. As it is stated in the text, there is a necessity of questioning about its discourse and the results derived from it. These experiences constitute the unavoidable ground to keep on thinking over harmfulness from the bioethics standpoint. Since this history also reports obstacles and difficulties with already proposed regulations and value judgements, bioethics when tested against harmfulness is also being tested against an important part of itself
Hélder Boska de Moraes Sarmento
Full Text Available A sociedade contemporânea está atravessada por contradições e paradoxos, dentre os quais vale destacar a relação entre a alta tecnologia e, a pior situação humana, a miséria. Resultado das escolhas éticas e políticas desta era tecnológica, vive-se em situações de fronteira, nas quais as biociências desempenham papel central, tanto no volume de conhecimentos gerados, como na utilização de seus resultados, que, sem controle social, ampliam desigualdades. O objetivo deste artigo é demonstrar o quanto as biociências articulam-se com o desenvolvimento científico dos países inovadores de tecnologia, criando uma nova relação de poder, violento e desigual para os que apenas a consomem, denominado de biopoder. Daí a necessidade de uma bioética crítica capaz de empreender reflexões sobre os procedimentos técnicos, os fundamentos da atividade científica, sua aplicabilidade e relação com o mercado, oportunizando uma 'ponte' na tomada de decisões para que a própria ciência não se torne um obstáculo à democracia.Contemporary society is rife with contradictions and paradoxes, among which stand out the relationship between high technology and the worst human situation, poverty. The result of ethical and political choices of this technological era, we experience frontier situations, in which the biosciences play a central role, both in the volume of knowledge generated, as well as in the use of their results which, without social control, broaden inequalities. The objective of this article is to demonstrate the degree to which the biosciences are articulated with the scientific development of the countries that innovate technologies, creating a new relationship of power, which is violent and unequal for those who only consume, denominated biopower. This creates a need for a critical bioethics that is capable of reflecting on the technical procedures, the bases of scientific activity and their applicability and relation with
Wanderson Flor do Nascimento
Full Text Available O objetivo deste trabalho é discutir algumas noções desenvolvidas pelos estudos sobre colonialidade originadas por um conjunto de pensadores(as da América Latina acerca do modo como a Modernidade surgiu estruturada como uma maneira de arranjar o poder, o saber e o ser de modo que uma hierarquia entre centro e periferia, instalados em uma perspectiva colonial, organize nossa maneira de lidar com a política, com as ciências e - esse é o ponto principal que o trabalho sustentará - com a própria vida. A Bioética de Intervenção (BI, que tem como proposta politizar de modo ético e aplicado o modo de lidar com os conflitos biotecnocientíficos, sanitários, sociais e ambientais a partir da realidade latino-americana, desenvolve uma linha de pesquisa que pode acolher as críticas e contribuições advindas dos estudos sobre a colonialidade, sobretudo no que diz respeito às bases conceituais relacionadas com as teorias éticas e epistemológicas que a sustentam. Entre estas, especificamente, o estudo discute as relações existentes entre o utilitarismo aceito pela BI por meio de um consequencialismo solidário e suas inter-relações com a ideia de colonialidade.This paper aims to discuss some concepts - developed within the Coloniality Studies by a group of thinkers in Latin America - about how Modernity emerged structured as a way to dispose power, knowledge and being, so that a hierarchy between center and periphery, installed in a colonial perspective, organizes our way of dealing with politics, with science and - this is the main focus of this paper - with life. Intervention Bioethics (IB, whose proposal is to politicize in an ethical manner the method of dealing with biotechnoscientific, sanitary, social and environmental conflicts from the Latin American reality, develops a line of research that can accommodate the contributions, as well as the criticisms, from Coloniality Studies, particularly with regard to conceptual frameworks
Tratamento homeopático de crianças com úlcera de córnea em escudo por ceratoconjuntivite primaveril: relato de casos e aspectos bioéticos Homeopathic treatment of children with shield ulcers of the cornea in vernal keratoconjunctivitis: case reports and bioethical dimensions
Antônio Carlos Gonçalves da Cruz
Full Text Available OBJETIVOS: apresentar um tratamento homeo-pático de úlcera de córnea por ceratoconjuntivite primaveril, considerando-o bioeticamente. MÉTODOS: foram usados nove casos, encami-nhados por insucesso terapêutico convencional. Escolheram-se os medicamentos de acordo com características singularizantes dos pacientes que incluíram o psiquismo. Levantaram-se os custos medicamentosos consultando-se três farmácias homeopáticas e três não-homeopáticas de Belo Horizonte. O tratamento convencional foi estimado a partir da medicação usada pelos enfermos antes do início dos cuidados homeopáticos. RESULTADOS: as cicatrizações ocorreram entre quinze e cento e oitenta dias, com custo medicamentoso médio de oito dólares, cerca de treze vezes menor do que a estimativa de custo direto de um mês da abordagem convencional. O manejo terapêutico da similitude pode minimizar preocupações bioéticas relativas à atenção à saúde de crianças com ceratoconjuntivite primaveril. CONCLUSÕES: a homeopatia pode colaborar para o tratamento desta enfermidade, aprimorando-o bioeticamente.OBJECTIVES: present a homeopathic treatment of corneal ulcers for vernal keratoconjunctivitis and its bioethical implications. METHODS: nine cases were studied, after having been referred following the failure of conventional treatments. Medications were chosen according to the specific characteristics of the patients, including psychiatric disorders. The medication costs were gathered by consulting three homeopathic and three non-homeopathic pharmacies in Belo Horizonte. The estimate for conventional treatment cost was based on the medication prescribed for the patient prior to the commencement of homeopathic care. RESULTS: scarring occurred between fifteen and one-hundred eighty days, with an average medication cost of eight dollars, roughly one-thirteenth of the estimated direct cost of one month of conventional treatment. The similarity of therapeutic approaches
Temas éticos e bioéticos que inquietaram a Enfermagem: publicações da REBEn de 1970-2000 Cuestiones éticas y bioéticas que inquietan la enfermería: publicaciones de la REBEn de 1970 a el 2000 Ethical and bioethical issues disturbing nursing: REBEn's publications from 1970 to 2000
Maria Madalena de Andrade Santiago
Full Text Available Estudou-se temas éticos e/ou bioéticos publicados na Revista Brasileira de Enfermagem - REBEn, que inquietaram a Enfermagem no período 1970 2000, objetivando identificar nos artigos publicados, temas relacionados à ética/bioética e discutir as perspectivas teóricas nas quais os autores fundamentam suas argumentações. O desenho do estudo é de tipo documental ou bibliográfico. Os resultados mostraram que nos últimos 30 anos houve aumento gradativo, no número de artigos que debatem questionamentos éticos. Os principais temas relacionados à Bioética foram: dilemas e conflitos éticos associados a assistência à saúde, Deontologia, formação ética do enfermeiro e ética em pesquisa. Após 1984 surge o primeiro estudo, versando sobre tema usual da bioética e o termo bioética aparece pela primeira vez em 1998.Fueran estudiados los temas éticos y/o bioéticos publicados en la Revista Brasileña de Enfermería (REBEn que inquietaran la enfermería en el período entre 1970 y 2000. Objectivando: Identificar en los artículos publicados en la REBEn, durante el período mencionado, los temas relacionados con la ética/bioética. Discutir las perspectivas teóricas en las cuales los autores basan sus discusiones. El estudio era cuantitativo y cualitativo, tipo documental o bibliográfico. Resultados: en los 30 años pasados tenía aumento gradual en el número de los artículos que debatían los cuestionamientos éticos. Después de 1984 aparezcó el primer estudio, con connotación bioética, en la cual el autor discurre sobre las intervenciones de la enfermería delante del paciente en muerte inminente, con el propósito de verificar las relaciones entre los valores personales y profesionales del enfermero. El término bioética fue utilizado por la primera vez por Valéria Lunardi en 1998.It was studied the ethical and/or bioethical issues published in the Revista Brasileira de Enfermagem (Brazilian Nursing Journal REBEn that
Ensino da Bioética na formação do enfermeiro: interface com a bibliografia adotada La enseñanza de la Bioética en la formación del enfermero: relación con la bibliografía adoptada The teaching of Bioethics in the education of nurses: interface with the adopted literature
Nildo Batista Mascarenhas
Full Text Available OBJETIVO: Identificar e descrever as fontes bibliográficas, utilizadas pelos docentes no ensino da Ética/Bioética em Enfermagem nos cursos de graduação em Enfermagem de Salvador-BA. MÉTODOS: Trata-se de um estudo exploratório, quanti-qualitativo. A análise dos dados teve três momentos e foi guiada pelas temáticas da Ética, Bioética e Exercício Profissional. RESULTADOS: A análise dos dados de cinco cursos, mostrou que os docentes adotam obras que contemplam aspectos relacionados à deontologia, exercício da enfermagem, fundamentos da Bioética e da Ética. CONCLUSÃO: O ensino da Ética/Bioética nos cursos de graduação em Enfermagem de Salvador não se restringe a uma abordagem deontológica e fornece os subsídios básicos para a reflexão crítica e moral dos futuros enfermeiros.OBJETIVO: Identificar y describir las fuentes bibliográficas, utilizadas por los profesores en la enseñanza de la Ética/Bioética en Enfermería en los cursos de graduación de Enfermería en Salvador, Bahía. MÉTODOS: Se trata de un estudio exploratorio, cuantitativo y cualitativo. El análisis de los datos fue realizado en tres etapas y fue guiado por los temas: Ética, Bioética y Práctica Profesional. RESULTADOS: El análisis de los datos de cinco cursos, mostró que los profesores adoptan obras que incluyen aspectos relacionados con la deontología, con la práctica de la enfermería, con los fundamentos de la Bioética y de la Ética. CONCLUSIÓN: La enseñanza de la Ética/Bioética en cursos de graduación en Escuelas de Enfermería, en Salvador, no se limita a un enfoque deontológico y proporciona los medios básicos para el pensamiento crítico y el desarrollo moral de las futuras enfermeras.OBJECTIVE: To identify and to describe the bibliographic sources used by professors in the teaching of Ethics/Bioethics in nursing undergraduate courses, in nursing schools, in Salvador, Bahia. METHODS: This is an exploratory and quantitative study
Carlos Dimas Martins Ribeiro
Full Text Available O artigo oferece uma reflexão sobre a tomada de decisão nas UTI neonatais levando-se em conta o princípio da justiça distributiva, tendo como referenciais teóricos complementares a bioética de proteção, elaborada por Schramm e Kottow, e a teoria das capacidades ("capability", formulada por Nussbaum e Sen. Em um primeiro momento, apresenta-se a abordagem das capacidades e a bioética de proteção, caracterizando-se, dentro da concepção de justiça sanitária adotada neste trabalho, quais são as necessidades essenciais dos cidadãos que o Estado tem o dever de satisfazer para que haja justiça. Em seguida, discute-se a questão de quem deve ser beneficiado na UTI neonatal - e de que maneira - com os recursos públicos disponíveis, considerando-se três grupos de recém-nascidos que, de forma geral, compõem a demanda pelo atendimento nestes serviços. Conclui-se que a decisão ética será também mais qualificada quanto melhor for a informação clínica que estiver disponível, sendo necessário desenvolver mais estudos que amparem a construção de evidências razoáveis, inclusive relativas ao prognóstico, para que se possa esclarecer de forma ainda mais apropriada às famílias envolvidas. E, especialmente, a importância de envolver os pais da criança na tomada de decisões clínicas.This article presents a reflection about decision-making in Neonatal Intensive Care Units based on the principle of distributive justice and considering the theoretical approaches of the Bioethics of Protection, formulated by Schramm and Kottow, and the Theory of Capabilities developed by Nussbaum and Sen. Within the concept of justice in the health area adopted in this study, we characterize the essential needs of the citizens that must be satisfied by the State. Then we discuss the question of who should be benefited in the neonatal intensive care units- and in which way - given the scarce public resources available, considering three groups of
João Geraldo Bugarin Júnior
Full Text Available OBJETIVO: Analisar o uso de biomateriais em odontologia por cirurgiões dentistas especialistas sob os aspectos da Teoria Bioética do Princiapialismo e da Ética da Responsabilidade individual e Coletiva. MÉTODOS: Foram aplicados questionários a 95 cirurgiões dentistas registrados no Conselho Regional de Odontologia do Distrito Federal, 2002. sobre o uso de biomateriais em sua prática. Dados relativos ao controle sanitário foram obtidos por meio das respostas desses cirurgiões dentistas e de pesquisa nos órgãos competentes. RESULTADOS: Os profissionais entrevistados utilizavam rotineiramente biomateriais, sendo que 45% relataram acreditar não haver riscos para os pacientes; 48% não consideram biomaterial como medicamento e 70% se sentiam seguros com relação à origem, apesar de membranas e osso serem os itens mais adquiridos por meio de vendedores autônomos. Apesar disso, 96% dos entrevistados afirmaram que deveria haver maior controle das autoridades sanitárias. Mais da metade dos entrevistados (51% referiu pouca ou nenhuma participação do paciente no processo de escolha terapêutica. O termo de consentimento informado foi anexado por 12% dos cirurgiões dentistas pesquisados. CONCLUSÕES: Os resultados mostraram que os profissionais utilizam biomateriais desconhecendo riscos e efeitos adversos, distanciando-se do princípio da beneficência. A ética da responsabilidade pública não é observada pelos organismos públicos responsáveis e órgãos de categoria profissional. O consentimento informado ainda não está incorporado à prática profissional, permanecendo a relação profissional-paciente em odontologia excessivamente vertical.OBJECTIVE: To analyze the use of biomaterials in surgical procedures carried out by specialist dental surgeons, in light of the Principalist Bioethics Theory and the Individual and Collective Ethics of Responsibility. METHODS: Dental surgeons (n=95, who were registered as specialists at the
The author suggests that radiation and radioactivity have acquired a set of attributes that tend almost inevitably to intensify public alarm as public concern over nuclear energy and nuclear weapons has escalated. She discusses the moral argument that widespread use of radioactive substances seems tantamount to an immoral violation of human rights no matter what the benefits might be
Madsen, Kathrine H.; Sandøe, Peter
From the early stages of genetic engineering legal frameworks were set up to ensure the safe development of this technology. These regulatory frameworks focus primarily on risks to human health and the environment, and the concepts of substantial equivalence and familiarity seem to be the two...... universally adopted principles on which risk assessments are based. Despite this focus on risk prevention, genetically modified (GM) crops have given rise to controversies over the last 10–15 years. It is argued that one reason for this is that the early regulatory frameworks did not adequately address the...... things, indirect and long-term environmental effects are now included. Other major socio-economic concerns — e.g. lack of demonstrated usefulness to society, and the consumer’s right to choose non-GM food products — have been debated. This debate has led to regulations designed to permit the co...
HELOISA BENEVIDES DE C. CHIATTONE; RICARDO WERNER SEBASTIANI
El presente artículo expone una discusión sobre los aspectos éticos y bioéticos que envuelven la prácticadel psicólogo de la salud en la atención a la población. Enfatiza los conflictos y las polémicas en losmodelos de salud vigentes, y las complicaciones que tienen los avances en las ciencias de la salud en lasprácticas cotidianas, como por ejemplo la dicotomización de la persona enferma; el sesgo de mirar laenfermedad y no a quien la padece, y las complejas y difíciles relaciones que surgen...
The beginning of the 21st century is marked by a great revolution supported by science, which is called biothechnological revolution and our century a biotechnological century (1). Enormous advances in biology, especially in genetics have led to homological and heterological procreation in laboratory, human genome manipulation, genetic engineering, animal but also human cloning, and scientific research on human embryos for therapeutic or eugenic purposes.
M Aala; Larijani, B; F Zahedi
Nanotechnology is considered as an industrial revolution of the third millennium. Advances have a remarkable impact on differ¬ent fields such as medicine, engineering, economy and even politics. However, a wide range of ethical issues has been raised by this innovative science. Many authorities believe that these advancements could lead to irreversible dis¬asters if not lim¬ited by ethical guidelines. Involvement of developing countries in new fields of science could b...
HELOISA BENEVIDES DE C. CHIATTONE
Full Text Available El presente artículo expone una discusión sobre los aspectos éticos y bioéticos que envuelven la prácticadel psicólogo de la salud en la atención a la población. Enfatiza los conflictos y las polémicas en losmodelos de salud vigentes, y las complicaciones que tienen los avances en las ciencias de la salud en lasprácticas cotidianas, como por ejemplo la dicotomización de la persona enferma; el sesgo de mirar laenfermedad y no a quien la padece, y las complejas y difíciles relaciones que surgen de una propuesta depráctica transdisciplinar y humanizada frente a los modelos propios del paradigma biomédico que aúnse mantiene como fuente de referencia para la atención en salud.
Full Text Available Nanotechnology is considered as an industrial revolution of the third millennium. Advances have a remarkable impact on differ¬ent fields such as medicine, engineering, economy and even politics. However, a wide range of ethical issues has been raised by this innovative science. Many authorities believe that these advancements could lead to irreversible dis¬asters if not lim¬ited by ethical guidelines. Involvement of developing countries in new fields of science could be as¬sociated with substan¬tial advantages. In this paper, we intend to review main ethical issues of nanotechnology, taking into account the surge of interests in this field and the ever-increasing advances of nanotechnology in Iran. The issue of safety, considering envi¬ronmental and ecological impacts of nanoparticles (smart dust, and standards of customer aware¬ness are important de¬bates. The ‘Grey-goo' scenario and the concerns about ‘post-humanism' are also discussed by bioethicists. There are further con¬cerns about justice, intellectual property rights, accountability, and the probability of military and security misuse.
Mário Antonio Sanches
Full Text Available O projeto de ética mundial, desenvolvido pelo teólogo ecumênico Hans Küng, propõe que somente por meio de um diálogo inter-religioso é possível estruturar princípios básicos que sejam válidos globalmente e que proporcionem a construção de uma cultura da paz. Essa possibilidade no campo da ética estabelece um amplo diálogo com diferentes autores. No entanto, como o próprio autor assume, o projeto possui limitações, sendo que uma delas é a exclusão de temas que envolvem questões de Bioética que são importantes para as relações em sociedade. Os temas hoje avaliados na área de Bioética são de difícil consenso, entre eles: aborto, uso de embriões, reprodução assistida, questão de gênero. Desse modo, novas frentes de diálogo se fazem necessárias, principalmente no tocante às ciências biológicas, ou seja: a relação entre religião e ciência e cultura e ciência. Para que esse diálogo se torne possível, é necessário reconhecer as possibilidades e os limites do diálogo, numa exigente proposta de transcendência do individualismo, das culturas e da própria religião. Por isso é necessário aprofundar a reflexão começando pela identificação dessas novas questões para se buscar novos espaços de diálogo. Palavras-chave: Ética mundial; Cultura da paz; Bioética; Ética da transcendência. AbstractThe world ethics project, developed by the ecumenical teologian Hans Küng, indicates that only by a inter-religious dialogue is possible to built basic principles that would be wordly accepted and helpfull in the building of a culture of peace. This possibility on ethics research brings a large dialogue with several thinkers. Although, as the author himself accepts, the project has some limitations, being one of them the exclusion of themes that are discussed in Bioethics and are important to relationship in society. The issues that are studied in Bioethics are of rare consensus, like: abortion, utilization
Dilemas bioéticos del postoperatorio en cirugía cardiovascular pediátrica: futilidad y limitación del esfuerzo terapéutico Bioethical dilemma of postoperative care of pediatric cardiovascular surgery: futility and limitation of life-sustaining treatments
Luis Enrique Marcano Sanz
Full Text Available Los avances en la medicina, en especial en el área de los cuidados intensivos postoperatorios, han determinado un aumento importante en la supervivencia de niños que hasta hace poco tiempo morían de forma irremediable. Las decisiones de limitación del esfuerzo terapéutico y cuando considerar la futilidad de un tratamiento son polémicas pues generan gran estrés intelectual y emocional en las personas que tienen la responsabilidad de decidir, sobre todo en Pediatría. El trabajo tiene como objetivo reflexionar sobre los dilemas bioéticos que se presentan en el postoperatorio de la cirugía cardiovascular pediátrica, para fomentar discusiones y elaborar recomendaciones concretas que faciliten la toma de decisiones clínicas.Medical advances, especially in postoperative intensive care, have significantly increased the survival of children, who inevitably used to die in recent years. The decisions on life-sustaining treatments and acceptance of their futility are controversial and cause intellectual and emotional stress in those involve in decision making, particularly in Pediatrics. This paper reflects on bioethical dilemmas present in postoperative care of pediatric cardiovascular surgery, so as to incite discussions and produce concrete recommendations that facilitate clinical decision making.
Magali Roseira Boemer
Full Text Available Nesse estudo propomo-nos a realizar uma aproximação à Bioética, área que vem sendo alvo de discussões e reflexões no âmbito das ciências biológicas e da saúde no sentido de se repensar as condutas humanas frente aos valores morais no atual contexto de grande desenvolvimento tecnológico e científico. Procuramos iniciar uma discussão acerca do exercício da enfermagem em sua dimensão bioética, analisando como ele tem se dado em relação à ética dos princípios a qual é baseada na beneficência, autonomia e justiça. Neste sentido os membros da equipe de enfermagem, em suas relações com o paciente, têm adotado uma postura calcada na beneficência interligada à subordinação de sua prática ao ato médico. Por outro lado, a sua proximidade com o doente lhes permite a formação de vínculos que lhes conferem um certo poder através do qual podem conduzir o cliente ao exercício de sua autonomia.En este estudio nos proponemos realizar una aproximación a la Bioética, area que viene siendo objeto de discusiones y reflexiones en el ámbito de las ciencias biológicas y de la salud, en el sentido de volver a pensar en las conductas humanas frente a los valores morales en el actual contexto de gran desarrollo tecnológico y científico. Buscamos iniciar una discusión acerca del ejercicio de la Enfermería en su dimensión bioética, analizando cómo el se ha dado al nivel de la ética fundada en los principios de servicio, autonomía y justicia. En este sentido los miembros del equipo de enfermería en sus relaciones con el paciente han adoptado una postura nata de servicio interligada a la subordinación de su práctica al acto médico. Por otro lado, su proximidad con el enfermo le permite la formación de vínculos que adjudican un cierto poder a través del cual pueden conducir el cliente al ejercicio de su autonomía.In the present study we approached Bioethics, an area that has been targeted for discussion and reflection
Marylane Viana Silva
Full Text Available Reflexão teórica sobre a bioética do cuidar, a partir da perspectiva histórica do cuidado em saúde e suas contribuições para a ampliação da produção de conhecimentos em Enfermagem, como proposta de intervenção mais humana e democrática no exercício do cuidar; através de conceitos baseados no respeito à pessoa humana, na formação de profissional comprometido com realidade social. A enfermagem como profissão priorizou os avanços técnico-científicos, em detrimento ao cuidado humanizado, decorrentes das demandas impostas pelo mundo capitalista. Neste sentido, se coloca como desafio a sistematização do cuidado, o que possibilitará a melhoria da qualidade de vida da clientela, sendo necessário para isto o estabelecimento de interlocuções de saberes com outros profissionais, consolidando a legitimidade da enfermagem como profissão.Reflexión teórica sobre la bioética del cuidar, a partir de la perspectiva histórica del cuidado en salud y sus contribuciones para la ampliación de la producción de conocimientos en Enfermería, como propuesta de intervención más humana y democrática en el ejercicio del cuidar, a través de los conceptos basados en el respeto de la persona humana en la formación del profesional comprometido con la realidad social. La enfermería como profesión priorizó los avances técnico-científicos en detrimento al cuidado humanizado, como consecuencia de las demandas impuestas por el mundo capitalista. En este sentido, se coloca como desafío la sistematización del cuidado, lo que posibilita la mejoría de la calidad de vida de la clientela siendo necesario para esto el establecimiento de interlocutores de saberes con otros profesionales, consolidando la legitimidad de la enfermería como profesión.This is a theoretical discussion of the bioethics of care from the historical perspective of health care and its contribution to the expansion of knowledge roduction in Nursing, which is presented
Collection of main international documents on the ethical principles of research and the main regulations on bioethics of the United States and of European Community; Raccolta sui principali documenti internazionali sui principi etici della ricerca e dei principali documenti legislativi degli Stati Uniti e della Comunita` Europea sulla bioetica
Scuderi, G. [Istituto Superiore di Sanita`, Rome (Italy). Lab. di Immunologia
The collection includes an Italian translation of the main international documents on ethical principles of scientific research (the Nuremberg Code, the Helsinki Declaration, the Belmont Report) as well as the regulatory text of the United States (the Code of Federal Regulation Title 45, Part 46, that is the 45 Cfr 46) and the regulations of the European Community (the Good Clinical Practice and the Convention for the protection of human rights and dignity of the human being regards to the application of biology and medicine: convention on human rights and biomedicine). The informed consent and the human rights of human subjects involved in a clinical trial are discussed. Moreover, in the regulatory texts, legal rights of particular subjects, i.e. pregnant women, minors, fetuses, embrions, prisoners, are discussed; as well as the bioethics of organ transplantations. [Italiano] Contiene una traduzione in lingua italiana dei principali documenti internazionali sui principi etici della ricerca scientifica: il Codice di Norimberga, la dichiarazione di Helsinki e il rapporto Belmont; il testo legislativo degli Stati Uniti Code of Federal Regulation, capitolo 45 parte 46 (detto il 45 CFR 46) e la normativa della Comunita` Europea relativa alle norme di Good Clinical Practice e alla Convenzione per la protezione dei diritti dell`uomo e la dignita` dei soggetti umani relativamente alle applicazioni della biologia e medicina: Convenzione sui diritti dell`uomo e la biomedicina. Vengono trattati il consenso informato e i diritti umani delle persone che sono coinvolte in una sperimentazione clinica. Inoltre, nei testi normativi ci si riferisce anche ai diritti legali di soggetti particolari, ad esempio: donne in stato di gravidanza, minori, feti, embrioni, prigionieri; viene trattata, infine, l`etica dei trapianti d`organo.
Selecionar quem deve viver: um estudo bioético sobre critérios sociais para microalocação de recursos em emergências médicas To choose who should live: a bioethical study of social criteria to microallocation of health care resources in medical emergencies
PAULO ANTONIO DE CARVALHO FORTES
Full Text Available OJETIVO: Estudo, de caráter exploratório, que trata de dilemas de natureza ética de microalocação de recursos escassos de saúde, objetivando-se, com base em referenciais bioéticos, deontológicos e utilitaristas, analisar critérios sociais considerados nas escolhas para seleção de pacientes no atendimento de emergências médicas por parte de parcela da opinião pública. MÉTODOS: Foram entrevistadas 395 pessoas, na cidade de Diadema/SP, que responderam a nove situações que versaram sobre os seguintes critérios sociais: idade, sexo, responsabilidade social, condição econômica e local de residência. RESULTADOS: Significativa parcela dos pesquisados parece aceitar que o uso de critérios sociais seja válido em situação de escassez de recursos. Mostrou a presença de elementos identificadores de correntes éticas deontológicas (justiça como eqüidade como de correntes utilitaristas de tomada de decisão. CONCLUSÕES: Demonstrou-se uma expressiva opção pelas pessoas que se encontram em situação de "maior desfavorecimento", ou seja, se favorecem "os mais desafortunados", em detrimento de situações que pudessem levar a um maior custo/benefício social.OBJECTIVE: To analyze ethical dilemmas about microallocation of health care scarce resources, based on deontological and utilitarian bioethical basis. It analyzes some criteria considered in the choices and justifications for patients selection in medical emergencies.METHODS: 395 subjects were interviewed in the city of Diadema/SP, about dilemmas among two people needing a place in a public hospital of emergency service. The presented situations dealed with the following social criteria: age, sex, social responsibility and economical condition.RESULTS: They pointed that significant portion of those researched seems to consider that the use of social criteria is valid and that the people lives can have unequal value in situations of scarce resources, accepting social variables
Deficiência, políticas públicas e bioética: percepção de gestores públicos e conselheiros de direitos Disability, public policies and bioethics: the perception of public administrators and legal counselors
Liliane Cristina Gonçalves Bernardes
Full Text Available Tomando como base reflexões bioéticas sobre direitos humanos, realizou-se um estudo descritivo e exploratório sobre a percepção de conselheiros e gestores públicos acerca da deficiência. Para tanto, foi conduzido um survey com 50 participantes, distribuídos em dois grupos: 29 conselheiros de direitos da pessoa com deficiência e 21 especialistas em políticas públicas e gestão governamental. Os dados obtidos foram submetidos à análise estatística descritiva. De modo geral, os resultados apontaram que, para os conselheiros, a deficiência é uma questão social que deve ser compartilhada em sociedade; ao passo que, para os gestores, trata-se sobretudo de uma tragédia pessoal circunscrita à esfera individual e familiar. Hipotetiza-se que tal visão diferenciada decorre de perspectivas diferentes em relação à alocação dos recursos públicos. Destaca-se, também, a importância da vivência da deficiência, ou a convivência com pessoas com deficiência, para fundamentar a avaliação da qualidade e a satisfação com a vida experimentada pelas pessoas com deficiência e contribuir para a elaboração de políticas públicas. Recomendam-se estudos semelhantes com amostras mais abrangentes e diversificadas, assim como a adoção de metodologias qualitativas e participativas.A descriptive study of the perception of public administrators and counselors regarding disability was conducted on the basis of bioethical reflections on human rights. The survey involved 50 participants, divided into two groups: 29 counselors on the rights of disabled people and 21 specialists in public policies and government administration. The data obtained was submitted to descriptive statistical analysis. In general, the results showed that for counselors disability is a social issue and should be shared by society, whereas for public administrators it is predominantly a personal tragedy limited to the individual and family sphere. It is considered that
Rita de Cássia Gabrielli Souza Lima
Full Text Available Este artigo busca percorrer as políticas de saúde italiana e brasileira em um recorte histórico das conjunturas econômicas e políticas do século XVIII ao século XX, na perspectiva de identificar elementos sinalizadores de aproximações e distanciamentos para compreender o processo de materialização do direito à saúde. Trata-se de uma pesquisa descritiva com abordagem qualitativa, tendo como fonte de dados documentos oficiais e revisão de literatura, numa perspectiva histórica. A análise dos dados é feita com base na bioética cotidiana. Os resultados obtidos mostram que, em ambos os Estados, a origem da concretização do direito à saúde é fruto da iniciativa dos trabalhadores com o propósito de satisfazer uma de suas dimensões: o direito à assistência à saúde. Percebem-se similaridades nos modelos de proteção social, a importância da Itália no processo brasileiro de construção do direito à saúde, distanciamento entre as novas ações estatais instituídas após as reformas sanitárias e a necessidade de se enfrentar, valendo-se de um sistema político de regras, o histórico conflito ético entre os direitos individuais e a garantia dos direitos sociais, especialmente o direito à saúde, nas duas realidades.This article approaches the Italian and Brazilian health policies based on a historical overview of the economic and political conjunctures from the 18th century to the 20th century, so as to identify elements that signal similarities and differences in order to understand the materialization process of the right to health. The present study is a descriptive research with a qualitative approach. The data source includes official documents and a literature review in a historical perspective. The data analysis is carried out based on Everyday Bioethics. The results show that in both States the right to health is rendered concrete as a result of the workers' initiative, with the aim of satisfying one of its
Problemas éticos vivenciados por dentistas: dialogando com a bioética para ampliar o olhar sobre o cotidiano da prática profissional Ethical problems experienced by dentists: dealing with bioethics to wide the view on the daily professional practice
Adriana Gomes Amorim
Full Text Available A bioética busca a humanização dos serviços de saúde e a promoção dos direitos dos usuários. Na odontologia, são poucos os estudos que tratam dessa temática, o que justificou a realização da pesquisa que apresentamos neste artigo. O objetivo do estudo foi identificar, a partir da visão dos cirurgiões-dentistas, os problemas éticos vivenciados na prática odontológica. Trata-se de uma investigação qualitativa de caráter exploratório descritivo. O material empírico foi coletado através de entrevistas semiestruturadas, realizadas com quinze cirurgiões-dentistas que atuam no estado do Rio Grande do Norte. Os resultados apontam que muitos dos problemas éticos coincidem com infrações ao Código de Ética Odontológica, confirmando uma noção de ética deontológica adquirida na formação profissional e, portanto, insuficiente para solucionar os problemas que emergem na prática profissional. Concluímos que os problemas éticos identificados na prática profissional precisam ser compreendidos para além da dimensão deontológica em direção aos aspectos da produção do trabalho. Torna-se preciso, então, incorporar nas práticas de saúde, incluindo as de saúde bucal, as tecnologias da gestão do cuidado, o que implica o reconhecimento de diferentes dimensões que produzem os sujeitos e suas necessidades de saúde.Bioethics strives for humanization in health services along with promoting the rights of patients. In view of the lack of dental research dealing with this topic, the present study was undertaken to identify, from the viewpoint of dental surgeons, ethical problems experienced in dental practice. It is a descriptive exploratory investigation within a qualitative approach. Empirical material was collected through semi-structured interviews performed with 15 dental surgeons in the state of Rio Grande do Norte, Brazil. The results indicate that many of the ethical problems coincide with infringements of the norms
Clinical research on new drugs (Phase I. Profile of scientific publications: data from the pre-clinical phase and bioethical aspects Pesquisa clínica com novos fármacos (Fase I. Perfil das publicações científicas: dados da fase pré-clínica e aspectos bioéticos
Vanessa de Souza Brick
Full Text Available PURPOSE: To trace a profile of scientific publications, phase I, in order to know whether or not they show pre-clinical phase data, emphasizing bioethical aspects. METHODS: Sixty-one scientific articles, published in 2007, involving research in human beings using new drugs, medicines and vaccines during phase I were analysed. A schedule for data collection was elaborated in which it would be possible to analyse and evaluate those articles. The schedule included items related to the pre-clinical phase associated to the clinical phase, and items related to the sample characteristics. RESULTS: Most of research works were carried out in USA. Taking into consideration that a large number of works have been dedicated to oncologic affections, most of them were carried out in voluntary ill individuals. Information on the pre-clinical phase, phase I, was very poor or absent. Even though some authors consider the phase I research as a promising one and also suggest some future studies on phase II, the reader is not able to consider the same way, as long as there is a shortage of information on the pre-clinical phase. CONCLUSION: The profile of scientific publications showed that data deserve some reflections and analysis to better evaluate the publications on phase I.OBJETIVO: Traçar o perfil das publicações científicas de fase I e procurar saber se a publicação oferece dados da fase pré-clínica com ênfase nos aspectos bioéticos. MÉTODOS: Foram analisados 61 artigos científicos publicados no ano de 2007, que relatam pesquisas envolvendo seres humanos com novos fármacos, medicamentos ou vacinas em fase I. Foi elaborado um roteiro para coleta de dados, com o qual fosse possível analisar e avaliar os artigos científicos. O roteiro contempla itens referentes à fase pré-clínica (associados à fase clínica e itens referentes às características da amostra. RESULTADOS: Nos artigos analisados, a maioria das pesquisas foi realizada nos EUA
The question that I was asked to address was: Is electrical stunning ethical? A stunning method would be considered ethical if the following criteria were attained. 1) Stunning results in a rapid onset of unconsciousness within a minimal time and with a minimal perception of pain. 2) The durat...
Rolim-Neto Leite Modesto
Full Text Available Background: Vulnerable people are relatively or absolutely incapable of protecting their own interests. Vulnerability is an anthropological attribute of human beings due to the simple fact of being alive. Brazilian society has long been established as a matter through the eyes of social scientists. In the name of it, the vulnerability in the doctor-patient context is now being a much-discussed issue. Purpose: This study aims to analyze the current studies regarding the insertion of vulnerability in the health issue, reflexively dealing with the ethical matters involved, as well as with the narratives’ insertion in this process. Methods: This article is based on data extracted from Scientific Electronic Library Online (Scielo and on secondary data from textbooks about vulnerability, ethics, physician-patient relationship and narratives. Results and discussion: Doctors are faced with dilemmas in clinical practice: moral, ethical, legal, social, religious and economic. On these occasions, question their own values. By listening carefully to the stories of patients, health professionals broaden their perspectives, organize and integrate complex situations, which assists in conducting these difficult situations. Conclusion: Reflect the concept of vulnerability raises (re think health practices, particularly in bringing to light the social experience of illness and hospitalization of the patient.
Willmott, Christopher J. R.
There is growing recognition that science is not conducted in a vacuum and that advances in the biosciences have ethical and social implications for the wider community. An exercise is described in which undergraduate students work in teams to produce short videos about the science and ethical dimensions of current developments in biomedicine.…
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'Alternative therapies' are those treatments used in place of conventional medical treatments or procedures. By opposing orthodox vs. 'alternative', 'natural' has come to be laden with meaning of the absence of evil, of regeneration, synonymous with non-technological, not drug-based, non-invasive, non-hostile. We discuss the attention directed to products supplied to a market of 'alternative therapies', some of which border illegality because of lack of adequate scientific controls to assure they are innocuous and because of lack of adequate legal controls to prevent 'therapeutic' fraud.
We are concerned about vulnerability because 'alternative therapies' can subject individuals to exploitation by becoming an undue profit and inducing an uncritical illusion of risk-free remedies against disease. They can seriously harm well-intentioned people, who seek through them a way to strive in an environment perceived as threatened by science and technology. The law has to come into play when legitimate spiritual beliefs are exploited by 'alternative therapies'. It is important not to place medical research in the same plane of perspectivism in which 'alternative therapies' operate. Finally more trials have to be conducted by proponents of 'alternative therapies' if adequate evidence of their benefits is to be demonstrated.
New discoveries and advances in biotechnology are producing new social realities which must be appraised properly from the ethical point of view. Vitally important in this task is the principle of human dignity, which is examined here by the author. Human dignity is crucial in seeking to resolve the conflicts that might arise as a result of the new possibilities opened up by modern biotechnology, such as embryo research, predictive diagnosis, gene therapy, human cloning or the issue of xenotransplants. PMID:11284123
R. van den Akker (Ruud); M. Balls; J.W. Eichberg; J. Goodall; J.L. Heeney (Jonathan); A.D.M.E. Osterhaus (Albert); A.M. Prince; I. Spruit
textabstractThe present article represents a consensus view of the appropriate utilization of chimpanzees in AIDS research arrived at as a result of a meeting of a group of scientists involved in AIDS research with chimpanzees and bioethicists. The paper considers which types of studies are scientif
Lazar, N M; Greiner, G G; Robertson, G; Singer, P A
Substitute decision-making is a means of making health care decisions on behalf of people who are incapable of making these decisions for themselves. It is based on the ethical principle of respect for autonomy. Substitute decision-making poses two main questions: Who-should make the decision for the incapable person, and, How should the decision be made? Because the applicable statutory and common law varies across Canada, clinicians should become familiar with the legal requirements of thei...
José Geraldo De Freitas Drumond
Full Text Available The contemporary world is characterized by a formidable accumulation of scientific knowledge, which is responsible for developing the technology that permeates all latitudes of the planet and is incorporated, so virtually irreplaceably, to the daily life of human beings. However, the world is in a borderline: serious responsibilities determined by the process of increasingly aggressive human intervention in the biosphere (accelerating its deterioration and the very human biology, reaching its genetic identity. Humanity is wrapped in a moral dilemma, since it is found that most of the benefits offered by human knowledge —the whole set of scientific and technological progress of humanity— remains inaccessible to most of the universal family. A recurring issue in today’s society is to establish the boundaries between normal and abnormal, between natural and artificial. Is the human being willing, once again, to transgress the parameters established by her concerning what is normal, anatomically and physiologically? Will she not be satisfied by merely making her biological structure sufficiently adapted to the current practices of the species? Will she want more? In the singular historical transition experienced by contemporary society, the emergence of a new ethical reflection to modulate human behavior has become imperative, so that the actions of men and women can converge to the achievement of universal benefits, so as not to endanger the very survival of human beings on the planet.
Full Text Available There are different types of pain, and the various civil institutions are forms with which mankind combats pain. Unlike those who believe western civilisation to be in decline because it is no longer able to give a meaning to pain and distinguish its “saving value”, the author observes that medicine is gradually making available new institutions to fight pain. This task is of fundamental importance for civil progress, on a par with that of important scientific discoveries.
Three problems of major concern to policymakers whose task it is to protect public health by setting standards for ''safe'' radiation management are reviewed. The first problem is to decide if current conceptual tools for assessing basic harms to valued living systems are ethically adequate. The second is how to set safety standards on the basis of informed consent to scientific evidence presented by experts who disagree in interpreting that evidence. The third problem is how to resolve conflicting philosophies about radiation protection. Principles which might serve as guidance in the formulation of social policies for radiation health protection are suggested. (H.K.)
Science in the 21st century does not consider participants' welfare, safety and human rights in clinical studies, but modern science puts economic profits in its priority. This leads to a growing concern about social responsibility and professionalism ethics of companies, sponsors and scientists. Specifically, there is no way to control conflicts of participants' welfare with economic profits, leading to simply relying on individual ethics, social responsibilities and audit. This paper helps relevant agencies and people involved understand conflict of interest. Also this study presents the guidelines as well as independence, autonomy, ethical imagination and phronesis required for scientists. PMID:25949165
Matar, Amal; Garner, Sam; Millum, Joseph; Sina, Barbara; Silverman, Henry
The curriculum design, faculty characteristics, and experience of implementing masters' level international research ethics training programs supported by the Fogarty International Center was investigated. Multiple pedagogical approaches were employed to adapt to the learning needs of the trainees. While no generally agreed set of core competencies exists for advanced research ethics training, more than 75% of the curricula examined included international issues in research ethics, responsible conduct of research, human rights, philosophical foundations of research ethics, and research regulation and ethical review process. Common skills taught included critical thinking, research methodology and statistics, writing, and presentation proficiency. Curricula also addressed the cultural, social, and religious context of the trainees related to research ethics. Programs surveyed noted trainee interest in Western concepts of research ethics and the value of the transnational exchange of ideas. Similar faculty expertise profiles existed in all programs. Approximately 40% of faculty were female. Collaboration between faculty from low- and middleincome countries (LMICs) and high-income countries (HICs) occurred in most programs and at least 50% of HIC faculty had previous LMIC experience. This paper is part of a collection of papers analyzing the Fogarty International Research Ethics Education and Curriculum Development program. PMID:24782069
Siqueira-Batista, Rodrigo; Schramm, Fermin Roland
Despite extensive current debate on euthanasia, many open and apparently unsolvable issues persist, awaiting a better conceptual treatment. The area includes "prejudices and fundamentalisms" in relation to the theme, still viewed as taboo by a major share of society, specifically in the case of Brazil, while semantic imprecision in the term and argumentative tensions surround the issue, focusing on the principles of sacredness of life, quality of life, and autonomy and the so-called "slippery slope" argument. The purpose of the current essay is thus to serve as a sphere of inquiry concerning euthanasia, moving from historical antecedents towards a better solution to the problem and the demarcation of necessary future perspectives for enhanced understanding of the issue. PMID:15692644
Wahlberg, Ayo; Rehmann-Sutter, Christoph; Sleeboom-Faulkner, Margaret;
arising from cross-continental research collaborations: (1) ambiguity as to which regulations are applicable; (2) lack of ethical review capacity not only among ethical review board members but also collaborating scientists; (3) already complex, researcher-research subject interaction is further......One of the features of advanced life sciences research in recent years has been its internationalisation, with countries such as China and South Korea considered ‘emerging biotech’ locations. As a result, crosscontinental collaborations are becoming common generating moves towards ethical and legal...... with the ethical challenges that inter-continental biomedical research collaborations generate. In particular we ask how national systems of ethical governance of life science research might cope with increasingly global research collaborations with a focus on Sino-European collaboration. We propose four ‘spheres...
Gibson, T M
There are many ways of enhancing human performance. For military aviation in general, and for spaceflight in particular, the most important tools are selection, training, equipment, pharmacology, and surgery. In the future, genetic manipulation may be feasible. For each of these tools, the specific modalities available range from the ethically acceptable to the ethically unacceptable. Even when someone consents to a particular procedure to enhance performance, the action may be ethically unacceptable to society as a whole and the burden of risk for the individual may be too great. In addition, there are several characteristics that define the quality and the acceptability of the consent. Each method of enhancing performance will be examined in the context of the principles of medical ethics in a western society: autonomy, non-maleficence, beneficence, and justice. The aim is to draw the attention of aeromedical practitioners to the complexities of ethical dilemmas such as this particular one in order to help them to develop a morally justifiable code of practice that balances society's needs against individual ambitions and corporate goals. PMID:16507654
Lavery, J V; Dickens, B. M.; Boyle, J. M.; Singer, P A
Euthanasia and assisted suicide involve taking deliberate action to end or assist in ending the life of another person on compassionate grounds. There is considerable disagreement about the acceptability of these acts and about whether they are ethically distinct from decisions to forgo life-sustaining treatment. Euthanasia and assisted suicide are punishable offences under Canadian criminal law, despite increasing public pressure for a more permissive policy. Some Canadian physicians would b...
Corrigan, Oonagh P; Williams-Jones, Bryn
Concern about the ethics of clinical drug trials research on patients and healthy volunteers has been the subject of significant ethical analysis and policy development--protocols are reviewed by Research Ethics Committees and subjects are protected by informed consent procedures. More recently attention has begun to be focused on DNA banking for clinical and pharmacogenetics research. It is, however, surprising how little attention has been paid to the commercial nature of such research, or the unique issues that present when subjects are asked to consent to the storage of biological samples. Our contention is that in the context of pharmacogenetic add-on studies to clinical drug trials, the doctrine of informed consent fails to cover the broader range of social and ethical issues. Applying a sociological perspective, we foreground issues of patient/subject participation or 'work', the ambiguity of research subject altruism, and the divided loyalties facing many physicians conducting clinical research. By demonstrating the complexity of patient and physician involvement in clinical drug trials, we argue for more comprehensive ethical review and oversight that moves beyond reliance on informed consent to incorporate understandings of the social, political and cultural elements that underpin the diversity of ethical issues arising in the research context. PMID:16980194
Motivations and experiences of ethics/bioethic subjects in nursing Motivaciones y experiencias de la enseñanza de la ética/bioética en enfermería Motivações e experiências do ensino da ética/bioética em enfermagem
PALHANO DE MELO THAYSE APARECIDA
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his paper deals with a research on the discourse of ethics in the nurse education process.
Objective: this study sought to characterize professors in terms of their teaching experiences and motivations in nursing courses.
Methodology: case study with a documentary stage and a focus group with 50 professors from 6 courses of Santa Catarina (Brazil.
Results and discussion: Despite the precarious conditions, nurses seem to be willing to dedicate themselves to teaching career paths since they wish to contribute to change and develop the profession or because of the professional perspectives and nature of the teaching career. In spite of the different experiences in teaching ethics, professors perceive themselves as stakeholders in the ethics formation of nurses, especially as they consider the daily academic and welfare life as a venue for ethical formation, as well as the values, positions, and example as the expression of the influence of teaching performance on ethics formation.
Conclusions: the reflection over ethics formation should not confine to the discussion of the pedagogical contents and strategies involved in teaching ethics and bioethics, hence, the importance of discussing about ethics in educational experience and envisage the speech being built by these professors.
El artículo trata de un pasaje de una investigación sobre el discurso de la ética en el proceso de formación del enfermero.
Objetivo: este estudio buscó caracterizar a los profesores en cuanto a sus experiencias y motivaciones en la enseñanza de la ética y bioética en las carreras de enfermería.
Metodología: Se desarrolló como estudio de caso, con etapa documental y grupo focal con 50 profesores de 6 programas de Santa Catarina (Brasil.
Aspectos medicolegales y bioéticos de la cirugía instrumentada de la columna lumbar degenerativa: Implicaciones en el manejo del dolor crónico Medico-legal and bioethical aspects of fusion surgery in degenerative lumbar spine: Implications in pain management
F.J. Robaina Padrón
some companies that would like to associate it with their products. Continuing medical training is another area that can involve conflicts of interest, since every dollar invested returns a benefit of almost four-fold. Patients generally leave decisions on surgery and the technique to be used in the hands of their physicians, overestimating the results that will be obtained. Wide variability in medical practice in fusion surgery has been detected among similar countries and among regions within the same country. Patients older than 65 years can sometimes accept high surgical risk, either because of the type of intervention proposed, without using the new technologies of minimally-invasive surgery and without taking full advantage of interventionist antialgic techniques. Likewise, patients also accept a high risk of complications resulting from the long-term use of opioids when surgery is not performed. Medico-legal and bioethical conflicts are proliferating both in the media and in specialized journals with free online access. An avalanche of lawsuits can be expected against the health service that employs us. These lawsuits will affect not only physicians but also the institutions where we work and, subsidiarily, our private insurance policies. Fraudulent marketing in the field of pain is generating multimillion fines. The results of this type of surgery in terms of occupational recovery are highly discouraging. Very few patients recover minimal capacity to work or report a high level of physical functioning after the intervention. Research in this field should focus on the creation or organisms or national consortiums to control and fund research, which should be free of the direct involvement of industry. Because of the increase in health expenditure, mechanisms for the evaluation of health technologies are important. To rationalize and perform cost accounting of funding in public health services for this disorder and surgical techniques, new diagnosis
Martín Hortigüela, María Elena
Nowadays, most of the deaths in neonatal ages take place in neonatal intensive care units and a significative number of these are involved in decisions of withholding or withdrawing medical care. The growing complexity of the health care in neonatal settings entails that end-of-life decision-making occurs more frequently. Personal views and attitudes on the best care of the severely ill newborns can be different, since to define objectively the ″best interests″ for the infant is not easy at all. The question of how to best care for such infants is ongoing, and there remain deep divisions within the field. The aim of this issue is to review the different criteria used in the western world, Europe, especially in the Netherlands, and the EEUU and the current debate on neonatal euthanasia. Poor vital prognosis, current and future quality of life and, after the Groningen protocol, unbearable suffering are the criteria commonly used in neonatal end-of-life decisions, including euthanasia. It is necessary to distinguish the decisions, in which euthanasia is chosen, of which they are an appropriate limit of therapeutic effort. PMID:26378596
Downie, Roger; Clarkeburn, Henriikka
The role of ethics in bioscience undergraduate degrees is now widely accepted, but how ethics should be taught, who should teach it and what the curriculum should include are matters for debate. This article discusses teaching strategies: specialist options, or embed ethics in other courses, or both; use of professional philosophers, or…
Markowitz, Dina; DuPre, Michael J.; Holt, Susan; Chen, Shaw-Ree; Wischnowski, Michael
A science education center at a university medical school had grant funding to develop a genetics curriculum unit, but needed a dissemination plan. A statewide science teacher organization that provided professional development training was facing decreased funding. These two groups combined their efforts, and created a unique partnership, called…
Geppert, Cynthia M. A.; Cohen, Mary Ann
Objective: This article briefly reviews the history of the relationship between psychiatry and the leadership of ethics committees as a background for examining appropriate educational initiatives to adequately prepare residents and early career psychiatrists to serve as leaders of ethics committees. Method: A Medline review of literature on…
Stem cell research promises remedies to widespread diseases ranging from diabetes to paralysis. ‘Stem cell’ is a term used to refer to a range of cells that have the ability to divide into specialized body cells, such as blood cells or new tissue. By studying the processes in which stem cells grow and differentiate, biologists study the causes of many diseases, and hope to use them for therapeutic uses in the repair of damaged tissue and organs for a wide range of currently incurable di...
Abstract There is much to be investigated about the specific characteristics of stem cells and about the efficacy and safety of the new drugs based on this type of cells, both embryonic as adult stem cells, for several therapeutic indications (cardiovascular and ischemic diseases, diabetes, hematopoietic diseases, liver diseases). Along with recent progress in transference of nuclei from human somatic cells, as well as iPSC technology, has allowed availability of lineages of all three germ la...
Novotny, Thomas E.; Mordini, Emilio; Chadwick, Ruth; Pedersen, J. Martin; Fabbri, Fabrizio; Lie, Reidar K; Thanachaiboot, Natapong; Mossialos, Elias; Permanand, Govin
The term “globalization” was popularized by Marshall McLuhan in War and Peace in the Global Village. In the book, McLuhan described how the global media shaped current events surrounding the Vietnam War  and also predicted how modern information and communication technologies would accelerate world progress through trade and knowledge development. Globalization now refers to a broad range of issues regarding the movement of goods and services through trade liberalization, and the movement ...
Mujović-Zornić Hajrija M.
Full Text Available The paper focuses on issues of development dimensions of Medical Law and its ongoing process of standardization and harmonization on one hand, versus the traditionally rooted and available principles of biomedical ethics, on the other. The collision of new legal institutes and the spread of human rights protections is evident. This paper follows the theory and practice of medical ethics and medical law. The theoretical aspect points out medical ethics as one of the sources of medical law. Legal theory makes a distinction between formal and autonomous sources of medical law. Even though ethics is morally much higher, law prevails because it has stronger sanctions and legal power. In its practical aspect, this paper gives examples of different situations of medical decision-making processes. Ethical rules are of the utmost relevance in the domain of confidentiality and options of medical treatment. But, in concrete medical procedures, where legal positions of patients are evidently very significant, law has a more distinct function. Therefore, explaining particular cases from medical malpractice, such as cases of penal, civil or professional liability have an ethical dimension as well. Members of medical professions in Serbia often find these cases unfair. Mostly this is the consequence of ignorance in this kind of medical law and ethics relations. A discussion about practical cases has in that sense a self-learning component, which could be developed to strengthen ethical reasoning and judgment.
Wade, Katherine; Melamed, Irene; Goldhagen, Jeffrey
This analysis adopts a child rights approach-based on the principles, standards, and norms of child rights and the U.N. Convention on the Rights of the Child (CRC)-to explore how decisions could be made with regard to treatment of a severely impaired infant (Baby G). While a child rights approach does not provide neat answers to ethically complex issues, it does provide a framework for decision-making in which the infant is viewed as an independent rights-holder. The state has obligations to develop the capacity of those who make decisions for infants in such situations to meet their obligations to respect, protect, and fulfill their rights as delineated in the CRC. Furthermore, a child rights approach requires procedural clarity and transparency in decision-making processes. As all rights in the CRC are interdependent and indivisible, all must be considered in the process of ethical decision-making, and the reasons for decisions must be delineated by reference to how these rights were considered. It is also important that decisions that are made in this context be monitored and reviewed to ensure consistency. A rights-based framework ensures decision-making is child-centered and that there are transparent criteria and legitimate procedures for making decisions regarding the child's most basic human right: the right to life, survival, and development. PMID:27157351
Pedro Federico Hooft
El trabajo analiza, en la primera parte, los fuertes y estrechos vínculos existentes entre Bioética y Derecho desde los albores mismos del nacimiento de esta nueva transdisciplina, y el creciente entrelazamiento que se produce en las sociedades actuales entre Bioética, Medicina y Derecho. Relaciona este fenómeno tanto con la "medicalización de la vida", como con la "juridificación de la sociedad". En este contexto, se reconoce a la salud como un valor fundamental, reconocido y protegido por e...
The death of Freud raises the ethical dilemma about euthanasia. It can be characterized as indirect active euthanasia according to the rule of double effect, or terminal sedation, or palliated death. The primacy of the principle of autonomy over non maleficence, conditioned the physician's attitude toward his patient Freud. The physician assisted death was and remains punishable in western medicine. Therefore, a fundamental tradition was infringed. In contrast, the present study attempts to characterize the final position of Freud himself to his death and called it appropriation of his finitude; he assumes his being-unto-death, that is, he now projects his being not as a being-at-his-end but as a being-unto-end, indicating thereby that he understood that the end always penetrated his whole existence. PMID:21879194
Leon Kass is much misunderstood. He is not simply a Republican ideologue who tailored his ideas to break out of the ivory tower and into the halls of power. Nor does he look simply to use human nature as a moral guide. When the full range of his writings is considered and set in the tradition of his teachers, Hans Jonas and Leo Strauss, what emerges is a natural law position colored by religious revelation. PMID:16776021
Deisy Vital dos Santos
Full Text Available Normal 0 21 false false false PT-BR X-NONE X-NONE MicrosoftInternetExplorer4 Objetivo: analisar o programa das disciplinas que contemplam os conteúdos da Bioética desenvolvidos nos cursos de graduação em Enfermagem nas universidades públicas baianas. Métodos: Pesquisa documental, descritiva, de natureza exploratória, com abordagem qualitativa. Dados secundários e análise de conteúdo. Resultados: A disciplina que contempla os conteúdos de Bioética apresenta o desafio de ter que abarcar os conteúdos da Deontologia profissional, da Ética e da Bioética. De modo que, em algumas instituições a variável carga horária tenha sido responsável pelo aprofundamento ou superficialidade dos conteúdos da Bioética. A tendência pedagógica velada nas metodologias e avaliações mescla perspectivas tradicionais e progressistas, havendo predomínio da segunda. As publicações de Bioética na Enfermagem são discretas, carecendo de maiores investimentos. Conclusão: O caminho trilhado pela maioria das universidades baianas é coerente, pois oferece ao futuro profissional o conhecimento dos conceitos básicos da Bioética e a análise de temas emergentes e persistentes.
Jagger, Kathleen S.; Jack Furlong
With the rise of biomedicine and biotechnology, there has been a corresponding growth in the need for better understanding of consequent ethical questions. Increasingly, biologists are being asked not only to offer technical clarifications but also to venture ethical opinions, for which most feel poorly equipped. This expectation puts pressure on biology instructors at the university level to provide biology majors the skills and experience to discuss with some confidence and competence bioet...
Full Text Available Abortion, the cruel reality of the contemporary mankind, bites with no mercy our life and lacerates the humanity face, relativizing life’s ultimate value. We fight for the animal’s lives and rights, but we kill our children in womb. We are confused and living up to the rules imposed by us, and we fail, because we do not see the „Light of the world” (John 8,12 - Jesus Christ, losing sight of the reference frame – the divinity. We have declared God dead , the fountain of life , and we put ourselves in His place. We lost indiscriminatingly the values of “as Gods” ( Genesis 3,5 and “as God’s image” (Genesis 1, 27 drifting on the gradient of big fails, as big as God we have chased but never listened. So, that, from the survival outlook and lacking of love in our life, the fight for survival targets against the somebody ‘s else life, and no illustration is more eloquent and tragic as the mothers, families and society’s fight against the procreation generally, and particularly against the unborn child.
Margeris Yanes Calderón; Tatiana de la Vega Pazitková; Ileana Chio Naranjo
A pesar de los grandes avances alcanzados en la prevención, diagnóstico y tratamiento oncológico de diferentes tipos de cánceres, aún persisten casos que son diagnosticados en etapas avanzadas. Si bien estos pacientes afectados pueden no tener criterio de tratamiento con fines curativos, son tributarios de cuidados paliativos, que son aquellos que se brindan a los enfermos para mantener o incrementar su bienestar emocional, controlar sus síntomas y prepararlos para la vida en la etapa final d...
Federal and state law enforcement authorities have amassed large collections of DNA samples and the identifying profiles derived from them. These databases help to identify the guilty and to exonerate the innocent, but as the databanks grow, so do fears about civil liberties. The research reported here discusses three legal and social policy issues that have been raised in regard to these biobanks—the choice of loci to type for identifying individuals, the indefinite retention of DNA samples, and the use of the DNA samples or the identifying profiles for research purposes. It also considers the possible value of the databases for research into the genetics of human behavior and the ethics of using them for this purpose. It rejects the broad claim that such research is inherently unethical but proposes procedures for ensuring that the value of the proposed research justifies any psychosocial or other risks to the subjects of the research.
Goldstein, Melissa M; Bowers, Daniel G
Discussions surrounding patient engagement and empowerment often use the terms "patient" and "consumer" interchangeably. But do the two terms hold the same meaning, or is a "patient" a passive actor in the health care arena and a "consumer" an informed, rational decision-maker? Has there been a shift in our usage of the two terms that aligns with the increasing commercialization of health care in the U.S. or has the patient/consumer dynamic always been a part of the buying and selling of health care in the American system? Recent discussions of the issue exist in the popular press and in social media forums such as TEDMED, but few direct analyses of the ethical, legal, and policy ramifications of this possible shift in terminology are available in the academic literature. This paper analyzes our usage of the terms and any recent changes in the dynamic and discusses the ethical, legal, and policy implications of this simple terminology for the physicianpatient relationship. PMID:25846046
Full Text Available In the 1980s numerous debates were held in the House of Lords on the scientific research of embryos, with certain participants attempting to point out the difference between two styles of thought, namely, religious and scientific thought. Yet was the conflict in the House of Lords between two styles of thinking, or rather between the proponents of the scientific approach, on the one hand, and the proponents of religious thought, on the other, for intellectual and moral domination in society? Clearly, these debates hinted at something beyond and something more complex than a mere concern about embryos. What was actually being problematized? Or, to put it differently, to what extent does the use of bioreproductive technologies call into question the notions and issues of ethics, procreation and kinship, regardless of the religious dogma that considers the possibilities of their application? This paper will be confined to an analysis of Islamic dogma and any correspondences between this dogma and certain aspects of the new reproductive technologies. Still, in order to be able to discuss the relation between the new reproductive technologies and Islamic ethics, it is necessary to devote the greater part of this paper to an interpretation of how man is perceived in the context of the Koran.
Full Text Available The author highlights the importance of emotions in all ethical reflections. He describes the most common positions of ethicists employing duties and rights as the basis for ethical thought. The author, goes to Freudian theory as viewed by the utilitarians, stating that the 'quest for pleasure' is not necessarily egocentric, especially for adults. For example, the feeling of solidarity emerges 'from the inside out', making irrelevant all the emphasis laid on obedience to duty (from the outside in. The article questions the essence of Kantian theory, based exclusively on 'reason' with disregard for feelings, by establishing what he considers a 'positivist' view of rational thought. It emphasizes the principle of autonomy, which it seen as basically opposing the principles of beneficence and fairness. It is proposed that the latter should be seen as what he calls heteronomy (a concept different from that of the rational ethicists. In theory, autonomy is not assigned to anyone on the basis of an external assessment. Any intervention in individual autonomy must be made (by the intervenor when it becomes imperative in the defense of social or cultural values. The article distinguishes between ethics and morals and states that the sole acceptable ethical principle is that ethics (theoretically has no principle.
... will continue discussing the emerging science of synthetic biology, including its potential benefits... discussion of the opportunities and benefits to the public of the emerging science of synthetic biology,...
... meeting, the Commission will continue discussing the emerging science of synthetic biology, including its... public of the ] emerging science of synthetic biology, the challenges and risks, and the...
Farzad Mahmoodian; Bita Pakniyat Jahromi; Nazanin Setayeshpour
Introduction: Sharply progression and development in different aspect of technology and science in the field of medicine and sanitation bring many challenges in biological moral and social aspects of the life. Meanwhile statistical problems of this subjects will be rised. Study and researches on embryonic stem cells are one of this specimens. Religions and different ideological views in vast human cultures associated with various laws in different countries of the world, made moral and bio...
Anderson, Emily E.; Hoskins, Kent
Research suggests that individual breast cancer risk assessment may improve adherence to recommended screening and prevention guidelines, thereby decreasing morbidity and mortality. Further research on the use of risk assessment models in underserved minority populations is critical to informing national public health efforts to eliminate breast cancer disparities. However, implementing individual breast cancer risk assessment in underserved patient populations raises particular ethical issue...
Li, Jun; Wang, Jue
This paper is aimed at a critical assessment of the moral framework of the current Chinese health system from a Confucian perspective, by focusing on the debate between the individual directed approach and the family-oriented approach to a health care system. Concerned with the nature and status of the family in communal life, the paper deals with the following questions: to cope with the frailties of material life (including susceptibility to disease), what good is presupposed by human existence and flourishing; why it is the family that serves as the primary locus of bearing and realizing this unique good; and what kind of society might possess the structures necessary to achieve the good thus conceived. All these questions lead to a revision of the theory of justice required in health care, in favor of family health saving accounts as an important institutional guarantee. PMID:23175794
Dias, H P
The author's vast experience in medicine and law is demonstrated in this article, which analyzes moral issues in professional ethics. The article includes up-to-date references to the Brazilian Code of Deontology (1984) and the Code of Medical Ethics (1988), as well as to the Civil and Criminal Codes. The analysis considers the different trends that have emerged as a result of recent advances and discoveries in science and technology related to family planning; medical experimentation and research; euthanasia; transplants of organs, tissues, and other parts of the human body; abortion; and professional confidentiality. PMID:2144133
The author highlights the importance of emotions in all ethical reflections. He describes the most common positions of ethicists employing duties and rights as the basis for ethical thought. The author, goes to Freudian theory as viewed by the utilitarians, stating that the 'quest for pleasure' is not necessarily egocentric, especially for adults. For example, the feeling of solidarity emerges 'from the inside out', making irrelevant all the emphasis laid on obedience to duty (from the outside in). The article questions the essence of Kantian theory, based exclusively on 'reason' with disregard for feelings, by establishing what he considers a 'positivist' view of rational thought. It emphasizes the principle of autonomy, which it seen as basically opposing the principles of beneficence and fairness. It is proposed that the latter should be seen as what he calls heteronomy (a concept different from that of the rational ethicists). In theory, autonomy is not assigned to anyone on the basis of an external assessment. Any intervention in individual autonomy must be made (by the intervenor) when it becomes imperative in the defense of social or cultural values. The article distinguishes between ethics and morals) and states that the sole acceptable ethical principle is that ethics (theoretically) has no principle. PMID:10089551
The ethics in economy is not only a corrector, but also must be initiator if we want to achieve essence of our existence - the human being as “Homo ethicus”, as well as, which is more important for mankind - to achieve a human being as “Homo homine ethica ethicus est”. This remark points on two things. First: we came to the stage where we become aware about the fact that our economies are dehumanized. The second: that’s the reason why we must return to ethics and pull out from it that univers...
Sehovic, Ivana; Gwede, Clement K; Meade, Cathy D; Sodeke, Stephen; Pentz, Rebecca; Quinn, Gwendolyn P
Participation in biobanking among individuals with familial risk for hereditary cancer (IFRs) and underserved/minority populations is vital for biobanking research. To address gaps in researcher knowledge regarding ethical concerns of these populations, we developed a web-based curriculum. Based on formative research and expert panel assessments, a curriculum and website was developed in an integrative, systematic manner. Researchers were recruited to evaluate the curriculum. Public health graduate students were recruited to pilot test the curriculum. All 14 researchers agreed the curriculum was easy to understand, adequately addressed the domains, and contained appropriate post-test questions. The majority evaluated the dialgoue animations as interesting and valuable. Twenty-two graduate students completed the curriculum, and 77 % improved their overall test score. A web-based curriculum is an acceptable and effective way to provide information to researchers about vulnerable populations' biobanking concerns. Future goals are to incorporate the curriculum with larger organizations. PMID:25773136
Daniel eStrech; Irene eHirschberg; Antje eMeyer; Annika eBaum; Tobias eHainz; Gerald eNeitzke; Gabriele eSeidel; Marie-Luise eDierks
Background: Informing lay citizens about complex health-related issues and their related ethical, legal and social aspects (ELSA) is one important component of democratic health care/research governance. Public information activities may be especially valuable when they are used in multi-staged processes that also include elements of information and deliberation. Objectives: This paper presents a new model for a public involvement activity on ELSA (ethics university) and evaluation data for a...
... of the nation's leaders in medicine, science, ethics, religion, law, and engineering. The Commission... science and technology. The Commission seeks to identify and promote policies and practices that...
Runnels, Vivien; Turner, Leigh
Health-related travel, also referred to as "medical tourism" is historically well-known. Its emerging contemporary form suggests the development of a form of globalised for-profit healthcare. Medical tourism to India, the focus of a recent conference in Canada, provides an example of the globalisation of healthcare. By positioning itself as a low-cost, high-tech, fast-access and high-quality healthcare destination country, India offers healthcare to medical travellers who are frustrated with waiting lists and the limited availability of some procedures in Canada. Although patients have the right to travel and seek care at international medical facilities, there are a number of dimensions of medical tourism that are disturbing. The diversion of public investments in healthcare to the private sector, in order to serve medical travellers, perversely transfers public resources to international patients at a time when the Indian public healthcare system fails to provide primary healthcare to its own citizens. Further, little is known about patient safety and quality care in transnational medical travel. Countries that are departure points as well as destination countries need to carefully explore the ethical, social, cultural, and economic consequences of the growing phenomenon of for-profit international medical travel. PMID:22106599
Benarroz, Monica de Oliveira; Faillace, Giovanna Borges Damião; Barbosa, Leandro Augusto
Cancer constitutes a major group of chronic diseases and is the second leading cause of death in the developed countries. Palliative care proposes to offer comprehensive support to control symptoms and improve quality of life for patients and their families. Nutrition is an important tool in palliative care, helping patients with their physical, psychological, and social issues and promoting comfort and quality of life. However, in the context of palliative care, nutritional support rarely achieves its role of fully recovering and assuring nutritional status. At this point, the nutritionist must consider the individual patient's needs, preferences, and eating habits, which are essential both for controlling symptoms and assuring satisfaction and comfort. The impossibility of conventionally applying established management and the development of a new perception of the patient often raise dilemmas for professional nutritionists. PMID:19750375
Hericka Zogbi Jorge Dias; Gabriel José Chittó Gauer; Rachel Rubin; Alessandro Valério Dias
O presente artigo discute questões acerca das intersecções entre a psicologia e a bioética. Muitos dos dilemas envolvendo a psicologia já são enfrentados por profissionais que atuam na saúde. Porém há aspectos teóricos importantes a serem considerados no estudo da psicologia hoje, como os dilemas morais comuns ao desenvolvimento humano em meio aos avanços tecnológicos tais como reprodução assistida, seleção de sexo, terminalidade, mas não somente estes. Consideraremos também como pertencentes...
Rogelio González Pérez
A doctor who has to perform an on demand Caesarean section instead of a vaginal birth, without any medical need, must analyze several ethical elements to accept this request. To review and reflect on the principles of medical ethic can guide the physician to prioritize a medical-based decision, ensuring the best result possible for the mother and for the unborn child.
Rogelio González Pérez
Full Text Available A doctor who has to perform an on demand Caesarean section instead of a vaginal birth, without any medical need, must analyze several ethical elements to accept this request. To review and reflect on the principles of medical ethic can guide the physician to prioritize a medical-based decision, ensuring the best result possible for the mother and for the unborn child.
Following contemporary trends, the author discusses questions and dilemmas of today's medical practice in relation to the patient, society, and generally in relation to positive and well known ethical principles. He is advocating a positive influence of the society on medicine as a science and on its practice. The impact of modern technology upon the physician-patient relationship and the new ethical dilemmas posed by advances in such technology is also discussed. The author cautiously accepts randomized clinical trials, with a necessary presence of uninvolved physicians with an interest in medical ethics, but he refuses to accept euthanasia as an ethically correct act, not only for physicians but for other professionals as well. Euthanasia should be replaced with a fight against pain, both physical and mental. The advantages of physicians in medical practice should not be underestimated especially in the assessment of scientific work and ethical codes of behavior as they relate to the practice of medicine. They should know better than other health care professionals what is good for the health of their patients. PMID:2636302
Neves Pinto, Gerson
In this article the author examines the formulation of the problem of new technologies with their ethical limits and legal. To do this, in a first it is d'assess the contribuitions of the two most important contemporary philosophers who have treated this subject: Jürgen Habermas and Ronald Dworkin, while trying to put them into dialog with the one who has been one of the founders of l'classic ethics: Aristotle. Then, it tries to answer the question of how could we understand this notion that Dworkin nome "moral dislocation" between the random and the choice or well, as the appointed Habermas, "l'extension of the contingency". Finally, we questioned how the Aristotelian distinction between the technical deliberation and deliberative ethical-moral can contribute to a better understanding of the questions on the decisions and choices that will make the moral agents (such as patients or the judges), as well as those relating to the type of deliberation technique chosen by the doctor or by the health professional. PMID:27120826
Ozer Keskin, Melike; Keskin Samanci, Nilay; Yaman, Hale
Nowadays, there is a need in science education to consider scientific research and its applications alongside ethical consensus. Even though classroom debates of value issues have been demonstrated to significantly contribute to the raising of social consciousness and awareness, research shows that neither academics in higher education nor…
Kirchhoffer, David G
The rise of "dignity talk" has led to the concept of human dignity being criticized in recent years. Some critics argue that human dignity must either be something we have or something we acquire. Others argue that there is no such thing as human dignity and people really mean something else when they appeal to it. Both "dignity talk" and the criticisms arise from a problematic conception of medical ethics as a legalistic, procedural techne. A retrieval of hermeneutical ethics, by contrast, offers a way to overcome both the legalism of contemporary ethics and the abuses and criticisms of the concept of human dignity. Such an ethics affirms both the inherent dignity of a human being as a multi-dimensional, meaning-seeking, historically-situated, relational individual, who desires to live a good life, and the realized sense of his/her own dignity toward which s/he works. As such, human dignity cannot be reduced to one feature of the human, and instead functions as both a descriptive category that avoids moralism, and as a normative category that allows relativity whilst avoiding relativism. PMID:23589988
Halac, Jacobo; Halac, Eduardo; Moya, Martín P; Olmas, José M; Dopazo, Silvina L; Dolagaray, Nora
The so called "Groningen Protocol" was conceived as a framework to discuss the euthanasia in neonates. Originally, it presents three groups of babies who might be candidates to this option. We analyzed the protocol in its original context and that of the Dutch society in which it was created. The analysis started with a careful reading of the protocol in both English and Dutch versions, translated later into Spanish. The medical and nursing staff participated in discussing it. A final consensus was reached. The Institutional Ethics Committee at our hospital discussed it freely and made recommendations for its application as a guideline to honestly discuss with parents the clinical condition of their babies, without permitting the option included literally in the word euthanasia. We selected four extremely ill infants. Their parents were interviewed at least twice daily: three stages were identified: the initial one of promoting all possible treatments; a second one of guarded and cautious request for the staff to evaluate "suffering", and a last one where requests were made to reduce therapeutic efforts to provide dignified death. A week after the death of their infants, they were presented with the facts of the protocol and the limits of our legal system. In all four cases the parents suggested that they would have chosen ending the life of their infants, in order to avoid them undue suffering. They clearly pointed out that this option emerged as a viable one to them once the ultimate outcome was evident. The protocol must not be viewed as a guideline for euthanasia in newborns, but rather as a mean to discuss the critical condition of an infant with the parents. Its direct implementation in our setting remains difficult. As a clear limitation for its overall application remains the definition of what is considered "unbearable suffering" in newborns, and how to certify when the infant has "no prospect". We emphasize the benefits of securing the help of the Ethics Committee and of "second opinions" from authorized physicians. PMID:20049397
Wambebe Charles; Kirigia Joses M; Baba-Moussa Amido
Abstract Background The Regional Committee for Africa of the World Health Organization (WHO) in 2001 expressed concern that some health-related studies undertaken in the Region were not subjected to any form of ethics review. In 2003, the study reported in this paper was conducted to determine which Member country did not have a national research ethics committee (REC) with a view to guiding the WHO Regional Office in developing practical strategies for supporting those countries. Methods Thi...
Full Text Available Abstract Background The Regional Committee for Africa of the World Health Organization (WHO in 2001 expressed concern that some health-related studies undertaken in the Region were not subjected to any form of ethics review. In 2003, the study reported in this paper was conducted to determine which Member country did not have a national research ethics committee (REC with a view to guiding the WHO Regional Office in developing practical strategies for supporting those countries. Methods This is a descriptive study. The questionnaire was prepared and sent by diplomatic pouch to all the 46 Member States in the WHO African Region, through the WHO country representatives, for facilitation and follow up. The data were entered in Excel spreadsheet and subsequently exported to STATA for analysis. A Chi-Squared test (χ2 for independence was undertaken to test the relationship between presence/absence of Research Ethics Committee (REC and selected individual socioeconomic and health variables. Results The main findings were as follows: the response rate was 61% (28/46; 64% (18/28 confirmed the existence of RECs; 36% (10/28 of the respondent countries did not have a REC (although 80% of them reported that they had in place an ad hoc ethical review mechanism; 85% (22/26 of the countries that responded to this question indicated that ethical approval of research proposals was, in principle, required; and although 59% of the countries that had a REC expected it to meet every month, only 44% of them reported that the REC actually met on a monthly basis. In the Chi-Squared test, only the average population in the group of countries with a REC was statistically different (at 5% level of significance from that of the group of countries without a REC. Conclusion In the current era of globalized biomedical research, good ethics stewardship demands that every country, irrespective of its level of economic development, should have in place a functional research ethics review system in order to protect the dignity, integrity and safety of its citizens who participate in research.
... transplant professions, nursing, epidemiology, immunology, law and bioethics, behavioral sciences, economics...; nursing; epidemiology and applied statistics; immunology; law and bioethics; behavioral...
This paper argues that there is a relationship between understandings of anorexia nervosa (AN) and how the ethical issues associated with involuntary treatment for AN are identified, framed, and addressed. By positioning AN as a construct/discourse (hereinafter "AN: the diagnosis") several ethical issues are revealed. Firstly, "AN: the diagnosis" influences how the autonomy and competence of persons diagnosed with AN are understood by decision-makers in the treatment environment. Secondly, "AN: the diagnosis" impacts on how treatment and treatment efficacy are defined and the ethical justifiability of paternalism. Thirdly, "AN: the diagnosis" can limit the opportunity for persons with AN to construct an identity that casts them as a competent person. "AN: the diagnosis" can thus inherently affirm professional knowledge and values. Postmodern professional ethics can support professionals in managing these issues by highlighting the importance of taking responsibility for professional knowledge, values, and power and embracing moral uncertainty. PMID:24366443
Mills, Kenneth V.
The College of the Holy Cross offers a universal first-year program called Montserrat, in which first-year students participate in a living-learning experience anchored by a yearlong seminar course. The seminar courses are part of a thematic cluster of four to eight courses; students in the cluster live together in a common dormitory and…
This article analyzes the religio-ethical discussions of Muslim religious scholars, which took place in Europe specifically in the UK and the Netherlands, on organ donation. After introductory notes on fatwas (Islamic religious guidelines) relevant to biomedical ethics and the socio-political context in which discussions on organ donation took place, the article studies three specific fatwas issued in Europe whose analysis has escaped the attention of modern academic researchers. In 2000 the ...
Batista, Cristiano Corrêa
Resultados e conclusão: Nossa conclusão é de a medicina não ser apenas uma ciência, mas também uma arte. Ela exige, em situações particulares, elaborar julgamentos de valor. A Bioética Clínica, surge para guiar caminhos combinando o conhecimento técnico- científico das ciências biomédicas com o conhecimento filosófico. Por meio da Bioética Clínica é possível resgatar os aspectos humanos da arte da medicina.
PABLO VALENZUELA F
Full Text Available La anencefalia se presenta sobre 4 por 1 000 nacidos vivos, es incompatible con la vida extrauterina y puede representar un peligro para la vida de la gestante. No existe en nuestro medio una discusión sobre el problema deontológico que presenta el anencéfalo quien no tiene todas las características propias de un ser, que aún en potencia, pudiese llegar a desarrollar pensamiento y autonomía. El sufrimiento de la madre y consecuentemente del padre y grupo familiar se analiza como argumento para tomar decisiones que en nuestro medio no están protocolizadas. Se discute el problema de la persona humana en el anencéfalo, pilar fundamental en la adquisición de derechos que configuren su tratamiento y se sugieren líneas de trabajo para enfrentar el problemaAnencephaly occurs every 4/1 000 newborns, it is incompatible with extrauterine life and can be dangerous for mother's life. In our society, we do not talk about the ethical question set by anencephaly, whom have not the total attributes of human being, not even the likelihood of thinking and autonomy. Parents and family pain is examinated critically at the time of decisions, something that among us is not regulated. The debate centers on the point of humanity related to anencephalic babies and the right to medical care. On the other hand, some suggestions to deal with this problem are given
PABLO VALENZUELA F
La anencefalia se presenta sobre 4 por 1 000 nacidos vivos, es incompatible con la vida extrauterina y puede representar un peligro para la vida de la gestante. No existe en nuestro medio una discusión sobre el problema deontológico que presenta el anencéfalo quien no tiene todas las características propias de un ser, que aún en potencia, pudiese llegar a desarrollar pensamiento y autonomía. El sufrimiento de la madre y consecuentemente del padre y grupo familiar se analiza como argumento par...
The traditional paradigm of medicine assumes that health is a natural given depending on a body's intrinsic teleology, and that medicine aims at restoring or preserving health, making a physician only an "assistant to nature." I argue that nowadays this paradigm is becoming obsolete, because the concept of health is no longer a "natural given" and interventions on the human body attempt not only to help nature's teleology, but also to change it whenever doing so can satisfy human needs and wants. We should abandon the term "medicine" and adopt the term "health care" to mark such an epoch-making transition, analogous to that marking the passage from "alchemy" to "chemistry." PMID:11262634
Immig, Cláudio Vicente
Este artigo foi extraído de parte do segundo capítulo da tese de doutorado apresentada pelo autor em fevereiro de 2010 na Academia Alfonsiana de Roma. Nele são apresentadas diferentes correntes bioéticas com seus respectivos posicionamentos e suas consequências práticas na vida das pessoas com deficiência. Através de algumas citações das obras Ética prática e Fundamentos da bioética, respectivamente de Peter Singer e Hugo T. Engelhardt, se constata a urgência de denunciar os perigos desta cor...
Strech, Daniel; Hirschberg, Irene; Meyer, Antje; Baum, Annika; Hainz, Tobias; Neitzke, Gerald; Seidel, Gabriele; Dierks, Marie-Luise
Background Informing lay citizens about complex health-related issues and their related ethical, legal, and social aspects (ELSA) is one important component of democratic health care/research governance. Public information activities may be especially valuable when they are used in multi-staged processes that also include elements of information and deliberation. Objectives This paper presents a new model for a public involvement activity on ELSA (Ethics University) and evaluation ...
Pamela Chávez Aguilar
La bioética debe tener una perspectiva intercultural. Ello se fundamenta en tres hechos: los principios y valores sobre los que reflexiona pertenecen a cosmovisiones y tradiciones, el ser humano es en sí mismo un ser cultural y las sociedades actuales son enormemente diversas. Para ello, la bioética ha de buscar un adecuado equilibrio entre el universalismo ético y el contextualismo. Esto es un fundamento necesario para el respeto incondicionado a la dignidad humana y para el mutuo reconocimi...
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Jorge Alberto Álvarez-Díaz
Para plantear posibles retos de la bioética en la medicina del siglo XXI es necesario considerar que existieron algunos retos en el pasado (en el origen de esa nueva disciplina llamada bioética); que los retos se han ido modificando con el avance científico, biomédico y humanístico; considerando que los retos que pueden plantearse para el futuro serán, de diferentes maneras, resultado de este devenir histórico. Se plantean como grandes retos: los problemas no resueltos de justicia, equidad y ...
Most physicians dealing with Jehovah's Witnesses (JWs) who refuse blood-based treatment are uncertain as to any obligation to educate patients where it concerns the JW blood doctrine itself. They often feel they must unquestioningly comply when demands are framed as religiously based. Recent discussion by dissidents and reformers of morally questionable policies by the JW organisation raise ethical dilemmas about "passive" support of this doctrine by some concerned physicians. In this paper, ...
Pérez García, Liumar
Full Text Available ResumenIndependientemente del trabajo de educación ambiental que se realiza en el país, en los últimos tiempos, en una parte de los sectores más jóvenes de la población, se ha despertado el interés por las peleas de perros y de gallos, entre otras prácticas que afectan el bienestar animal.SummaryIndependently of the work of environmental education that is carried out in the country, in the past few years, in a part of the sectors of the younger population's, has raised up the interest for the fights of dogs and of roosters, among other practices that affect the animal well-being.
Fermin Roland Schramm
Full Text Available Este artículo intenta caracterizar la especificidad de los problemas morales en salud pública y analizar la aplicabilidad del modelo principialista como padrón para dirimir sus conflictos. Aunque considerado pertinente para la bioética clínica, este modelo no es aplicable sin más a los dilemas en salud pública, puesto que se fundamenta en la moral de las interrelaciones médico-paciente. Se analiza la pertinencia de los principios de "solidaridad", de "responsabilidad óntica" según Jonas, y de "responsabilidad diacónica" según Lévinas, destacando la inaplicabilidad del primero y la posible adaptación de los otros dos a la salud pública. A ese respecto se discute la posibilidad de vincular la preocupación ontológica de Jonas y la trascendental de Lévinas, proponiendo un principio de protección que sería más adecuado a los propósitos de una ética de la salud pública, permitiendo identificar claramente los objetivos y los actores implicados en una implementación de políticas públicas moralmente correctas y pragmáticamente efectivas.We propose to analyze the specificity of ethical problems in public health issues and to elucidate the applicability of principlism as a problem-solving strategy in this realm. Although well-established in clinical ethics, principlism is not an adequate model to be used in public health, since it is basically intended to serve as a moral guide in the physician-patient encounter. We discuss the possible adequacy of principles like "solidarity", "ontic responsibility" (as proposed by Jonas, and "caring or diaconal responsibility" as presented by Lévinas. Solidarity appears to be insufficiently specified, whereas the other two perspectives may be adapted to public health issues by bringing together Jonas´ ontological and Lévinas´ transcendental concerns to form a principle of protection that might better serve the purposes of such an ethics. This principle would help to identify more clearly the goals and agents involved in the implementation of public policies that are expected to be both morally correct and pragmatically effective.
Even though the researchers tend to put emphasis on the problem of euthanasia while people faces the death, the first and foremost issue concerning euthanasia is always a question of life and death. This paper discussed the Confucianism world view、 outlook on life and Values. The Confucianism world view believes that human should integrate themselves with nature, we should calmly accept death when facing the inevitable end, which provides a logic point for the study of euthanasia. Confucians'outlook on life reckon that not all patients with constant agony can apply for euthanasia, and this agony does not include the spiritual sufferings. Only the disease has to stop to the pursuit of an ideal personality you can apply for euthanasia According to the Confucius view, life is not taken as an absolute holy thing. Confucians also confirms the attendant utilitarian effects of euthanasia, even though it cannot be applied for this reason.%安乐死的研究者往往强调死得“安乐”,但是安乐死首先面对的问题仍然是“生”与“死”的问题,本文从儒家世界观,人生观,价值观方面来探讨安乐死问题,儒家世界观认为“天人一体”,在死亡面前,应该坦然接受死亡,这为安乐死研究提供了一个逻辑起点.儒家人生观认为,并非存在持续性的痛苦的患者都可以申请安乐死,只有疾病已阻止到了对人格理想的追求时才可以申请安乐死,并且痛苦不包含精神上的痛苦.生命权的地位问题是安乐死的一个热点问题,儒家价值观认为,生命权并不是绝对神圣的,还对安乐死所附带的功利主义效果予以肯定,虽然这种功利主义效果不能作为实行安乐死的理由.
Fernando Lolas; Carolina Valdebenito; Eduardo Rodríguez; Irene Schiattino; Adelio Misseroni
The effects of genetic knowledge beyond the scientific community depend on processes of social construction of risks and benefits, or perils and possibilities, which are different in different communities. In a globalized world, new developments affect societies not capable of technically replicating them and unaware of the very nature of the scientific process. Moral and legal consequences, however, diffuse rapidly and involve groups and persons with scant or no knowledge about the way scientific concepts are developed or perfected. Leading genomics researchers view their field as developing after a sharp break with that worldwide social movement of the 20´s and 30´s known as eugenics and its most radical expression in the Nazi efforts to destroy life “not worth living”. Manipulation, prejudice and mistrust, however, pervade non-expert accounts of current research. Researchers claim that the new knowledge will have a positive impact on medicine and serve as a foundation for informed social policy. Both types of applications depend on informed communities of non-scientists (physicians, policymakers), whose members may well differ on what constitutes burden and what is benefit, depending upon professional socialization and cultural bias. ELSI projects associated with genomic research are notable for the lack of minorities involved and for the absence of comparative analysis of data reception in different world communities. It may be contended also that the critical potential of philosophical or ethical analyses is reduced by their being situated within the scientific process itself and carried out by members of the expert community, thus reducing independence of judgment. The majority of those involved in such studies, by tradition, experience, and formative influences, share the same worldview about the nature of moral dilemmas or the feasibility of intended applications. The global effects of new knowledge when combined with other cultural or religious traditions are thus unknown. These effects are interesting on two accounts. First, even if underdeveloped countries cannot replicate the technical aspects of research, their influence on social practices is not kept within geographical or language barriers. The way they are handled in developed countries may become part of resistances to “ethical imperialism”. Second, these advances have economic consequences. Their full understanding and the creation of a scientific literacy essential for sound ethical analysis demand the creation of “receptive capacity” in developing countries. The morality of genomics research and its applications can be analyzed from two main vantage points. Some traditions stress the ethics of convictions (in Max Weber´s terms, Gesinnungsethik) while others rely on the ethics of responsibility (Verantwortungsethik). In different forms, the latter deals with the consequences of social action, scientific research in this case, and may or may not be related to utilitarian considerations. It may be hypothesized that convictions, mostly of a religious nature, dominate the argumentative preferences in Latin countries and continental European traditions which rely on virtues while responsibility is associated with a discourse based on rights prevalent in countries following the Anglo-Saxon pattern of thought. This finds expression in different legal systems (common law versus codes) and in the language used for deliberation and moral reasoning. Although results of US-based ELSI research may not be transferable to other cultural and economic contexts, they impact other societies and serve as models. Rarely do they apply completely in other settings. In a globalized world, both appropriate understanding of the scientific enterprise and its ethical or economic sustainability demand empirical analysis of the patterns of thought, main beliefs, and reactions toward the new knowledge and its applications. Anecdotal accounts show that expectations may be misleading and inadequate knowledge prevents appropriate appraisal of burdens and benefits in different societies.
El presente trabajo reflexiona sobre la experiencia de 10 años en procesos de aprendizaje grupal y adquisición de competencias, de los participantes en el Programa de Ética de la Investigación Biomédica y Psicosocial del Centro Interdisciplinario de Estudios en Bioética de la Universidad de Chile, Fogarty Grant R25TW6056. Considera el papel de la bioética en la formación en su carácter transdisciplinario. PMID:22833694
Of growing concern over Jehovah's Witnesses' (JWs) refusal of blood is the intrusion of the religious organisation into its members' personal decision making about medical care. The organisation currently may apply severe religious sanctions to JWs who opt for certain forms of blood-based treatment. While the doctrine may be maintained as the unchangeable "law of God", the autonomy of individual JW patients could still be protected by the organisation modifying its current policy so that it s...
Carvalho, Bruno R de; Taitson, Paulo F; Brandão, Karina S A G; Ferriani, Rui Alberto; Nakagawa, Hitomi M; Silva, Adelino A; Lopes, Joaquim R C
Although the causality between Zika virus, microcephaly, and other central nervous system disorders has been taken for granted by the scientific community, many uncertainties remain. The gap of knowledge at the moment is large enough to remove part of the confidence physicians have on the advice given to patients - and infertile women in particular - on their reproductive plans. Pretreatment serologic screening is a possible strategy to offer more confidence for individuals choosing to bear children regardless of the Zika virus, but the tests currently available do not seem to be sufficiently adequate. Until now, there is no formal recommendation to avoid pregnancy solely because of the Zika virus outbreak, and the choice of becoming pregnant has been regarded as a personal decision to be made by each woman and her family. PMID:27584610
... Carr, Acting Director, Office of Clinical Research and Bioethics Policy, Office of Science Policy, NIH... 28, 2012. Sarah Carr, Acting Director, Office of Clinical Research and Bioethics Policy, Office...
... Address, Jewish Lights Publishing, 2000. www.jewishlights.com Bioethics , Thomas Shannon, ed. Paulist Press, 2009 Swallowing Problems , ... 2004 The Feeding Tube Dilemma, The Center for Bioethics and Human Dignity, 1/27/06, cbhd.org ...
Rights, children/parents, donation/legal, bioethics, IVF - assisted reproduction, eggs/semen/embryo......Rights, children/parents, donation/legal, bioethics, IVF - assisted reproduction, eggs/semen/embryo...
Defining bioethics as the rational use of dialogue in the formulation, justification, and application of ethical principles, with the aim ofgenerating good practices in research, clinical practice, and advocacy, this paper focuses on methods for bioethical deliberation relevantto psychiatry. Stressing that bioethics fuses the two main ethical traditions in Western thought, the deontological and the teleological, thepaper emphasizes the three conditions that any intervention, ...
Indtroduction This chapter about bioethics in Denmark focuses on specific Danish characteristics. These are the early start of a bioethics debate, legislation and Danish ethics' councils; the independence of the councils and the parliamentarians voting on ethical issues; the introduction and...... extraordinary importance of laymen as part of the bioethical debate and decisions; and the strong focus on debate and educational tools....
Goldim, J. R.; Gibbon, S.
Drawing from perspectives of both bioethics and anthropology, this article explores how the boundaries between personal and relational privacy are negotiated by patients and practitioners in the context of an emerging domain of cancer genetics in Brazil. It reflects on the place of informed consent in the history of bioethics in North America in contrast to the development of bioethics in Brazil and the particular social cultural context in which consent is sought in Brazilian public health c...
Full Text Available The Hippocratic Oath enjoys imperishable value in the western traditions of medicine. In modern culture, its postulates have frequently been interpreted as the foundations for the principles of bioethics and a basis of paternalistic practice, typical for modern medicine and opposite to bioethics. According to the authors of this contribution the semantics of the Hippocratic Oath underwent a serious transformation in the course of centuries, while contemporary bioethics revives its archaic pragmatics.
Carvalho, Ana Sofia; Ramalho-Santos, João
We live in an era of an important turning point in the relationship between ethics (or, more accurately, bioethics) and science, notably due to both public interest and the gradual tightening of the gap in time between scientific discoveries and ethical reflection. The current bioethics debates of emerging situations (pluripotent stem cells, gene therapy, nanotechnology) have undoubtedly contributed to this change. Today, science happens and bioethics reflects on the possibilities, considers ...
Eduardo Luis Tinant
Full Text Available Legal and bioethical principles. Separation, connection, integrationThis work is intended to establish relationships between legal and bioethical principles especially when bioethical principles complement and enrich legal ones in order to solve a specific case. Prior author’s contributions on bioethical principles as legal topics and legal bioethics creation in terms of a branch of bioethics which studies legal regulations as well as legal implementation and scope of bioethical problems are referred, making a critical reflection on growing and fruitful relationships between bioethics and law. An Interdisciplinary integration proposed in order to realize cooperation between both fields rejecting a separation or mere connection is suggested: «hetero integration», an integrating system produced by development of common and related principles. The article concludes stating that law structure is a «textual» subject not just involve on the writing of the law but capable to be analyzed from a social sense point of view, conferred to different manifestation of this discipline together with several social practices; a path warning by the need to broad theoretical-practical frameworks in order to move towards the interdisciplinarity taking into account bioethics from its foundations.
Scarpelli, Ana Carolina
Full Text Available O respeito à autonomia do paciente implica em informá-lo sobre as propostas de tratamento, benefícios e riscos, de forma que possa compreender e participar ativamente deste processo. Este estudo transversal teve por objetivo verificar o esclarecimento dos responsáveis acerca do tratamento odontológico de suas crianças na faixa etária de 4 a 12 anos, atendidas em um serviço público de Belo Horizonte. Ademais, desejou-se avaliar a participação dos mesmos na decisão do tratamento. A amostra constituiu-se de 63 responsáveis, os quais foram abordados por meio de uma entrevista utilizando-se um formulário estruturado. Para análise estatística adotou-se o teste qui-quadrado e o teste exato de Fisher com 5% de significância através do programa SPSS 10. 0. Os resultados revelaram que 79,4% dos responsáveis confirmaram o recebimento de informações sobre o tratamento proposto para a sessão, sendo tal informação considerada satisfatória. Em relação ao autojulgamento, 93,7% dos entrevistados declararam ter conhecimento acerca do tratamento que estava sendo executado pelo cirurgião-dentista, e 60,3% declararam ter participado do processo de decisão. Entretanto, quando questionados sobre qual o procedimento executado, 30,2% dos responsáveis acertaram. Não houve diferença estatisticamente significativa quando se associou a variável esclarecimento e as variáveis idade (p = 0,355, grau de parentesco (p = 0,747, nível de escolaridade (p = 0,472 e nível econômico dos responsáveis (p = 0,725. Desta forma, concluiu-se que a maioria dos entrevistados não estava devidamente esclarecida quanto ao tratamento odontológico realizado em seu menor, assumindo uma postura passiva frente ao profissional. Sugeriu-se, portanto que, os responsáveis não exerceram de forma satisfatória a sua autonomia.
Eudes Q. Oliveira Junior
A terapia celular vem ganhando cada vez mais espaço nos procedimentos médicos e com resultados satisfatórios, cumprindo, desta forma, com eficiência, a missão confiada aos especialistas em hematologia. Os preceitos morais, aliados às condutas éticas profissionais, cobram novas posturas. A evolução da biotecnologia e da biotecnociência carrega uma dose considerável do saber humano, mas exige, em contrapartida, um desenvolvimento e aperfeiçoamento do pensamento ético, que reúne a aprovação soci...
Ivan Dieb Miziara; Carmen Silvia Molleis Galego Miziara; Robson Koji Tsuji; Ricardo Ferreira Bento
Implante coclear é a melhor forma de correção da surdez profunda nas formas congênitas. As crianças "implantáveis" são tidas como "vulneráveis", recaindo a decisão de se implantar sobre os responsáveis. Pelo Código Penal Brasileiro, o surdo-mudo pode ter sua imputabilidade reduzida. Existem controvérsias bioéticas a respeito do implante, pois parcela dos representantes da chamada "comunidade de surdos" vê nele uma maneira de "dizimar" sua cultura e valores intrínsecos. OBJETIVOS: Discutir em ...
João Geraldo Bugarin Júnior; Volnei Garrafa
OBJETIVO: Analisar o uso de biomateriais em odontologia por cirurgiões dentistas especialistas sob os aspectos da Teoria Bioética do Princiapialismo e da Ética da Responsabilidade individual e Coletiva. MÉTODOS: Foram aplicados questionários a 95 cirurgiões dentistas registrados no Conselho Regional de Odontologia do Distrito Federal, 2002. sobre o uso de biomateriais em sua prática. Dados relativos ao controle sanitário foram obtidos por meio das respostas desses cirurgiões dentistas e de pe...
I. Espinoza Santander
Una creciente preocupación entre quienes reconocen que los recursos sanitarios son finitos y que el deseo de beneficios en salud puede ser ilimitado, ha promovido una discusión sobre qué es una distribución justa y equitativa de los servicios en salud. En este escenario, la asignación de recursos para la atención sanitaria de adultos mayores es objeto de debate. La planificación de programas odontológicos para adultos mayores, necesita conocer la magnitud y distribución de las patologías en l...
Rodrigo Siqueira-Batista; Fermin Roland Schramm
A despeito das grandes discussões hodiernas sobre a eutanásia, permanecem ainda muitos pontos em aberto, aparentemente insolúveis, aguardando que um melhor tratamento conceitual seja desenvolvido. Neste âmbito podem ser incluídos os "preconceitos e fundamentalismos" em relação ao tema — a eutanásia ainda é vista como tabu em boa parte da sociedade, especificamente no caso do Brasil —, as imprecisões semânticas do vocábulo e as acérrimas tensões argumentativas em torno do tema — levando-se em ...
西方社会主要是围绕人类和位格人的关系对人类胚胎道德地位进行讨论.在中国本土化语境下,胚胎不是真正意义上的人,人工流产可以得到辩护,但考虑其潜能性和关系性价值,胚胎具有有限的道德地位.在对待胚胎问题上,不是通过强调胚胎的道德地位来保护胚胎,而是采用人道主义的角度去尊重胚胎,对人工流产进行合适的控制.%The discussion of the moral status of the embryo mainly focuses on the debating of human beings and human persons in western country.From the angle of the localizing view,the embryo is not a real person.The abortion can get defended.Considering the embryo has potential and value relationship,it has the limited moral status.In dealing with the problem,we should not protect the embryos by emphasizing the embryo's moral position,but we should control abortion appropriately by humanitarian perspective to respect the embryo.
Beneficiários do trabalho voluntário: uma leitura a partir da bioética Beneficiarios del trabajo voluntario: una lectura a partir de la bioética Beneficiaries of volunteering: a bioethical perspective
Full Text Available OBJETIVO: Descrever a percepção dos voluntários sobre os beneficiários do trabalho voluntário no setor de saúde hospitalar e a influência que o tema dos benefícios exerce sobre as motivações. MÉTODOS: Estudo exploratório com abordagem qualitativa. Participaram 110 voluntários em serviços de saúde referências no tratamento de câncer no Rio de Janeiro (RJ, com coleta de dados de outubro a dezembro de 2001. Os dados foram obtidos por dois instrumentos: um questionário com perfil socioeconômico e sobre motivações para atividade voluntária; e entrevista semi-estruturada para obtenção de dados complementares. RESULTADOS: A visão dos voluntários sobre os beneficiários da atividade voluntária esteve centrada mais freqüentemente no paciente (50,5%, no voluntário (41,9% e na instituição e sociedade (7,6%. Paciente e voluntário foram considerados simultaneamente beneficiários, sendo o voluntário o que mais recebe benefícios. Foi relatada também uma compreensão do benefício social dessa atividade. CONCLUSÕES: Constatou-se que existe, entre os voluntários, uma noção da importância social do seu trabalho voluntário, faltando uma articulação maior entre motivações individuais e trabalho voluntário como espaço de enfrentamento de problemas sociais.OBJETIVO: Describir la percepción de los voluntarios sobre los beneficiarios del trabajo voluntario en el sector de salud hospitalaria y la influencia que el tema de los beneficios ejerce sobre las motivaciones. MÉTODOS: Se efectuó estudio exploratorio con abordaje cualitativo. Participaron 110 voluntarios en servicios de salud de referencia en el tratamiento de cáncer en la ciudad de Rio de Janeiro (Sureste de Brasil, con colecta de datos de octubre a diciembre de 2001. Los datos fueron obtenidos por dos instrumentos: un cuestionario con perfil socioeconómico y sobre motivaciones para actividad voluntaria; y entrevista semi-estructurada para la obtención de datos complementarios. RESULTADOS: La visión de los voluntarios sobre los beneficiarios de la actividad voluntaria estuvo centrada más frecuentemente en el paciente (50,5%, en el voluntario (41,9% y en la institución y sociedad (7,6%. Paciente y voluntario fueron considerados simultáneamente beneficiarios, siendo el voluntario el que más recibe beneficios. Fue señalado también una comprensión del beneficio social de esa actividad. CONCLUSIONES: Se constató que existe, entre los voluntarios, una noción de la importancia social de su trabajo voluntario, faltando una articulación mayor entre motivaciones individuales y trabajo voluntario como espacio de enfrentamiento de problemas sociales.OBJECTIVE: To describe volunteers' perceptions of the beneficiaries of volunteering within the hospital setting and the influence that the theme of benefits exercises on their motivations. METHODS: This is an exploratory study with a qualitative approach. One hundred and ten volunteers working in health services that are references for the treatment of cancer in Rio de Janeiro (Southeastern Brazil are the subjects of this study. Data was collected between October and December 2001. Data was obtained by two instruments - a questionnaire which identifies the socioeconomic profile and the motivations for undertaking voluntary activity; and a semi-structured interview that provided complementary information. RESULTS: According to the volunteers' perception, the beneficiaries of voluntary activity were, primarily, the patient, (50.5%; secondarily the volunteer him/herself (41.9%; and least of all, the institution and the society in which these benefits are obtained (7.6%. Both the patient and the volunteer were considered simultaneously beneficiaries, being that the volunteer tends to receive more benefits. A comprehension of the social benefits of this activity was also reported. CONCLUSIONS: A notion of the social importance of their volunteering was verified among the volunteers. However, the study indicates that a larger articulation is lacking between individual motivations and volunteer work as a setting within which social problems may be confronted.
The death of Freud raises the ethical dilemma about euthanasia. It can be characterized as indirect active euthanasia according to the rule of double effect, or terminal sedation, or palliated death. The primacy of the principle of autonomy over non maleficence, conditioned the physician’s attitude toward his patient Freud. The physician assisted death was and remains punishable in western medicine. Therefore, a fundamental tradition was infringed. In contrast, the present study attempts to c...
Bioética e cuidados paliativos: tomada de decisões e qualidade de vida Bioética y cuidados paliativos: toma de decisiones y calidad de vida Bioethics and palliative care: decision making and quality of life
Full Text Available OBJETIVO: Avaliar o processo de tomada de decisão e a qualidade de vida de pacientes adultos, oncológicos, internados em unidade de cuidados paliativos. MÉTODOS: Estudo transversal, realizado ao longo de 12 meses, incluiu 89 pacientes que aceitaram participar respondendo aos instrumentos de Desenvolvimento Psicológico-Moral, WHOQOL-OLD e WHOQOL-BREF. RESULTADOS: Na avaliação do Desenvolvimento Psicológico-Moral, os pacientes demonstraram ter capacidade para tomar decisões em seu melhor interesse. Nos domínios do WHOQOL-OLD, a Participação social teve a menor média, e a Intimidade, a melhor. Na aplicação do instrumento WHOQOL-BREF, o domínio Físico teve a menor média, sendo o Meio Ambiente o de melhor desempenho. CONCLUSÃO: Os pacientes demonstraram-se satisfeitos com a capacidade de estabelecer relações sociais, pessoais e íntimas, mesmo estando internados.OBJETIVO: Evaluar el proceso de toma de decisiones y la calidad de vida de pacientes adultos, oncológicos, internados en una unidad de cuidados paliativos. MÉTODOS: Estudio transversal, realizado a lo largo de 12 meses, que incluyó a 89 pacientes que aceptaron participar respondiendo a los instrumentos de Desarrollo Psicológico-Moral, WHOQOL-OLD y WHOQOL-BREF. RESULTADOS: En la evaluación del Desarrollo Psicológico - Moral, los pacientes demostraron tener capacidad para tomar la mejor decisión. En los dominios del WHOQOL-OLD, la Participación social tuvo el menor promedio, y la Intimidad, la mejor. En los dominios del WHOQOL-BREF, el físico tuvo el menor promedio, siendo el Medio Ambiente el de mejor desempeño. CONCLUSIÓN: Los pacientes se mostraron satisfechos con la capacidad de establecer relaciones sociales, personales e íntimas, a pesar de estar internados.OBJECTIVE: To evaluate the decision-making process and quality of life of adult oncology patients, hospitalized in a palliative care unit. METHODS: A cross-sectional study, conducted over 12 months, which included 89 patients who agreed to participate by responding to the Psychological-Moral Development, WHOQOL-OLD and WHOQOL-BREF instruments. RESULTS: In evaluating the Psychological-Moral Development instrument, patients demonstrated a capacity for making decisions in their best interest. In the domains of WHOQOL-OLD, the social participation had the lowest mean, and intimacy had the best. In terms of application of the domains of the WHOQOL-BREF instrument, the physical domain had the lowest mean, while the environment had he best performance. CONCLUSION: Patients demonstrated satisfaction with the capacity to establish social relationships, personal and intimate, even while hospitalized.
Full Text Available The author highlights the importance of emotions in all ethical reflections. He describes the most common positions of ethicists employing duties and rights as the basis for ethical thought. The author, goes to Freudian theory as viewed by the utilitarians, stating that the 'quest for pleasure' is not necessarily egocentric, especially for adults. For example, the feeling of solidarity emerges 'from the inside out', making irrelevant all the emphasis laid on obedience to duty (from the outside in. The article questions the essence of Kantian theory, based exclusively on 'reason' with disregard for feelings, by establishing what he considers a 'positivist' view of rational thought. It emphasizes the principle of autonomy, which it seen as basically opposing the principles of beneficence and fairness. It is proposed that the latter should be seen as what he calls heteronomy (a concept different from that of the rational ethicists. In theory, autonomy is not assigned to anyone on the basis of an external assessment. Any intervention in individual autonomy must be made (by the intervenor when it becomes imperative in the defense of social or cultural values. The article distinguishes between ethics and morals and states that the sole acceptable ethical principle is that ethics (theoretically has no principle.O autor destaca a importância das emoções em todas as reflexões éticas. Descreve as posições mais comuns dos eticistas, que empregam deveres e direitos como base para o pensamento ético. O autor refere-se à teoria freudiana, sob o enfoque dado pelos utilitaristas, ao afirmar que a "busca do prazer" não é necessariamente egocêntrica, especialmente para os adultos. Por exemplo, o sentimento de solidariedade emerge de "dentro para fora", tornando irrelevante toda ênfase colocada na obediência ao dever. O artigo questiona a essência da teoria Kantiana baseada exclusivamente na razão, desconsiderando os sentimentos , ao estabelecer o que ele encara como uma visão positivista do pensamento racional. Enfatiza o princípio de autonomia, que é visto como basicamente se opondo aos princípios da beneficência e da justiça. Na teoria, a autonomia não é atribuída a ninguém, tendo como base uma avaliação externa. Qualquer intervenção na autonomia individual precisa ser feita (pelo interventor quando se torna imperativa a defesa de valores sociais ou culturais. O artigo distingue ética de moral e estabelece que o único princípio ético aceitável é o de que a ética (teoricamente não possui princípios.
Full Text Available A despeito das grandes discussões hodiernas sobre a eutanásia, permanecem ainda muitos pontos em aberto, aparentemente insolúveis, aguardando que um melhor tratamento conceitual seja desenvolvido. Neste âmbito podem ser incluídos os "preconceitos e fundamentalismos" em relação ao tema — a eutanásia ainda é vista como tabu em boa parte da sociedade, especificamente no caso do Brasil —, as imprecisões semânticas do vocábulo e as acérrimas tensões argumentativas em torno do tema — levando-se em consideração os princípios da sacralidade da vida, da qualidade de vida e da autonomia e o argumento da assim chamada "ladeira escorregadia" ou slippery slope. Compor o horizonte de indagação acerca da eutanásia, partindo dos antecedentes históricos em direção a um melhor equacionamento do problema — e delimitação de perspectivas vindouras necessárias à sua melhor compreensão — é, pois, o objetivo do presente ensaio.Despite extensive current debate on euthanasia, many open and apparently unsolvable issues persist, awaiting a better conceptual treatment. The area includes "prejudices and fundamentalisms" in relation to the theme, still viewed as taboo by a major share of society, specifically in the case of Brazil, while semantic imprecision in the term and argumentative tensions surround the issue, focusing on the principles of sacredness of life, quality of life, and autonomy and the so-called "slippery slope" argument. The purpose of the current essay is thus to serve as a sphere of inquiry concerning euthanasia, moving from historical antecedents towards a better solution to the problem and the demarcation of necessary future perspectives for enhanced understanding of the issue.
构建社会主义和谐社会的过程是一个不断诉求生命伦理的过程。尊重生命是生命伦理的基本要义，加强生命伦理教育有助于提升国民素质，有助于和谐社会建设，有助于青年人健康成长。在高等教育中，应设定生命伦理教育的目标：即通过生死教育来认识生命、敬畏生命；通过责任教育来发展生命；通过生命价值教育来完善生命。%It is a constant pursuit of the process of life ethics that the process of constructing a harmonious socialist society. Life must be respected, be reverenced, be treatment friendly, be developed, these are our basic concepts of social management. Respect life is the basic meaning of life ethics, strengthen life ethics education would help to improve civics quality, contribute to the construc- tion of a harmonious society, contribute to the healthy growth of young people. With the development of science and technology, social change and educational utilitarianism, contemporary college students＇ life ethics consciousness has already been stricken. We have to set the higher education of life ethics goals ： through the life and death education to understand life, respect life; through the responsi- bility education to develop life; through the life value education to improve life.
Monica de Oliveira Benarroz
Full Text Available O câncer vem se destacando entre as doenças crônicas, sendo a segunda causa de morte em países desenvolvidos. Os cuidados paliativos se propõem a oferecer cuidados de suporte global, visando ao controle de sintomas e à melhora da qualidade de vida dos pacientes e de seus familiares. A nutrição é uma ferramenta importante nos cuidados paliativos, podendo ajudar o paciente nos aspectos físico, psicológico e social, além de promover o bem-estar e a qualidade de vida. Entretanto, a nutrição raramente poderá cumprir seu papel de recuperar e garantir o estado nutricional. Nesse momento, a intervenção do nutricionista é considerar as necessidades do indivíduo, preferências e hábitos alimentares, fundamentais tanto para o controle dos sintomas, quanto para garantir satisfação e conforto. A impossibilidade do exercício convencional das condutas já estabelecidas e o desenvolvimento de uma nova percepção do doente muitas vezes produzem dilemas para o profissional nutricionista.Cancer constitutes a major group of chronic diseases and is the second leading cause of death in the developed countries. Palliative care proposes to offer comprehensive support to control symptoms and improve quality of life for patients and their families. Nutrition is an important tool in palliative care, helping patients with their physical, psychological, and social issues and promoting comfort and quality of life. However, in the context of palliative care, nutritional support rarely achieves its role of fully recovering and assuring nutritional status. At this point, the nutritionist must consider the individual patient's needs, preferences, and eating habits, which are essential both for controlling symptoms and assuring satisfaction and comfort. The impossibility of conventionally applying established management and the development of a new perception of the patient often raise dilemmas for professional nutritionists.
Monica Oliveira Benarroz; Giovanna Borges Damião Faillace; Leandro Augusto Barbosa
O câncer vem se destacando entre as doenças crônicas, sendo a segunda causa de morte em países desenvolvidos. Os cuidados paliativos se propõem a oferecer cuidados de suporte global, visando ao controle de sintomas e à melhora da qualidade de vida dos pacientes e de seus familiares. A nutrição é uma ferramenta importante nos cuidados paliativos, podendo ajudar o paciente nos aspectos físico, psicológico e social, além de promover o bem-estar e a qualidade de vida. Entretanto, a nutrição raram...
J. M. Moreno Villares; J. Álvarez Hernández; C. Wanden-Berghe Lozano; M. Lozano Fuster
Las decisiones éticas están presentes en toda la práctica clínica. También en el campo del soporte nutricional. En la alimentación de pacientes críticos, en el soporte nutricional de pacientes terminales o la situación de enfermos con estado vegetativo permanente se plantean, con frecuencia, conflictos éticos. Un problema frecuente es la confusión terminológica cuando se hace referencia a la aplicación de los conceptos bioéticos a la práctica de la nutrición clínica. La falta de uniformidad e...
Saulo Ferreira Feitosa
Full Text Available This article analyzes the practice of infanticide in indigenous communities in Brazil. Taking as a reference point a specific case involving two children of the Zuruahá people, it takes a broader look at the issue and discusses how infanticide is understood among other indigenous peoples. A debate focusing specifically on this topic that took place during a public hearing held in the Brazilian National Congress in December 2005 has also been taken into consideration in this discussion. In view of the positions adopted as a result of the hearing, this paper seeks to identify the ethical problems and moral dilemmas relating to the subject, by putting them into context and analyzing them in the light of respect for cultural pluralism. Seeking to contribute to the debate, the authors analyze the possibilities for intervention in the traditional practices of infanticide, while rejecting those positions that are not anchored in an attitude of profound respect for other people's cultures or that do not create conditions for dialogue between individuals or groups with different moralities.O artigo analisa a prática do infanticídio em comunidades indígenas brasileiras. Tomando como referência um caso específico envolvendo duas crianças do povo Zuruahá, focaliza o tema sob uma abordagem mais abrangente e discute como o infanticídio é interpretado em outros povos indígenas. Foram considerados, na discussão, os debates ocorridos durante a Audiência Pública realizada no Congresso Nacional Brasileiro, em dezembro de 2005, que analisou o tema, além de revisão bibliográfica. Diante dos posicionamentos assumidos naquela audiência, procurou-se identificar os problemas éticos e os dilemas morais, contextualizando-os e analisando-os à luz do respeito ao pluralismo cultural. A fim de contribuir com o debate, os autores analisam as possibilidades de intervenção nas práticas tradicionais de infanticídio, recusando qualquer opção que não esteja ancorada numa atitude de profundo respeito pela cultura de outros povos ou que não apresente condição de dialogar com indivíduos ou grupos com diferentes moralidades.
For this contribution to the special issue on "Mapping Queer Bioethics," the author offers a reflection on the nature of the literary, written word as the ethically fraught site of queer bioethics. By invoking the historical tendencies and tropes of the clinical case history alongside a seminal text by Gertrude Stein, the author at once asks if we should liberate a queer bioethics from biomedical discourse via mainstream narrative; or if we should see this strategy as unavoidably housed in narrative forms of storytelling because it echoes the tropes and stakes of the clinical, pathologized case history as regards queer sensibilities. PMID:26643902
Full Text Available Transgenic seeds: A bioethics debate?The aim of this paper is to analyze, from a bioethical perspective, the social, cultural, environmental and moral impacts of the use of biotechnology for breeding transgenic crops. We place greater emphasis with regard to the use of transgenic seeds in agriculture, and their advantages and disadvantages compared to traditional crops. Transgenic crops are genetically modified organisms (GMO. There have been two antagonistic views about transgenic crops only due to its definition. We address the issue of transgenic seeds presenting these two views, and make a bioethical analysis that allows us to make a synthesis that may set what could be the most appropriate standing on this issue in light of bioethical principles.
Cook-Deegan, R.M. [Georgetown Univ., Kennedy Inst. of Ethics, Washington, DC (United States); Venter, J.C. [National Inst. of Neurological Disorders and Strokes, Bethesda, MD (United States); Gilbert, W. [Harvard Univ., Cambridge, MA (United States); Mulligan, J. [Stanford Univ., CA (United States); Mansfield, B.K. [Oak Ridge National Lab., TN (United States)
This conference focused on DNA sequencing, genetic linkage mapping, physical mapping, informatics and bioethics. Several were used to study this sequencing and mapping. This article also discusses computer hardware and software aiding in the mapping of genes.
Nubiola, J. (Jaime)
Through a 'fuzzy' grammar of identity it is possible to link the causal theory of reference with bioethics. Some arguments on abortion derived from the theory of natural kind terms point to a post-modernism in analytical philosophy.
This paper, submitted to the Third Bioethics Seminar in Fukai, Japan, presents information on program activities and discusses primary topics concerning genetic factors in behavior. Proponents and critics views on genetic explanations of antisocial behavior are discussed.
... practices that ensure ethically responsible conduct of scientific research and healthcare delivery..., including any personally identifiable or confidential business information that they contain. Trade secrets... for the Study of Bioethical Issues. BILLING CODE 4154-06-P...
... and surgery, including pediatric and heart/lung transplantation; critical care medicine; nursing... donation, health care public policy, transplantation medicine and surgery, critical care medicine and other... professions, nursing, epidemiology, immunology, law and bioethics, behavioral sciences, economics...
Full Text Available The author discusses the extremely important issue of modifying athletes genetically in order to develop elite sportsmen. He sheds light on various aspects of bioethics and their implications for the practices and management of sport in general.