Participatory approaches have become de rigueur in research for development. A goal of many participatory projects is to generally empower beneficiaries, beyond the scope of the immediate project. The technical and organizational learning, the social contacts, and the prestige that result from participation continue to serve beneficiaries after the end of a project. These benefits would accrue more in projects with higher levels of participation. However, in the event of a premature end or an...
Vaughan, Gregory; Lanc?on, Jacques
In this chapter, the field of Participatory Design is introduced, including the description of a number of its specific approaches. After an introduction in some of the issues in Participatory Design, approaches within the field of Participatory Design and relevant for the field of Participatory Design are outlined.
This investigation seeks to understand "action research" as an approach to "interactive form of evaluation". The first half of the investigation illuminates the approach with the help of the selective body of literature and the second half draws attention to its application in the field with the help of an authentic evaluation plan. Action…
Chaudary, Imran Anjum; Imran, Shahida
Introduction. Older African American women are particularly vulnerable to unhealthy lifestyle behaviors such as physical inactivity and the resultant chronic diseases and conditions. This study explored older African American women's perception of physical activity as well as facilitators of and barriers to being physically active in their local environment. Methods. Using a participatory research approach, a total of 7 women aged 65 years and over had their PA level assessed objectively thro...
Emerson Sebastião; Kelechi Ibe-Lamberts; Julie Bobitt; Andiara Schwingel; Wojtek Chodzko-Zajko
This paper explores the research method of participatory action research, first by examining the roots of this approach and then analysing the shift to using more participatory approaches than in former years. It begins by considering the reasoning and theoretical underpinning for adopting this approach and provides an overview of the steps to be…
Savin-Baden, Maggi; Wimpenny, Katherine
Purpose: This paper outlines how community service activities can evolve as a mechanism to identify and initiate community-based participatory research projects in diet/healthy eating. Background: The Delta Nutrition Intervention Research Initiative (NIRI) is sponsored by the United States Departm...
Participatory epidemiology is the application of participatory methods to epidemiological research and disease surveillance. It is a proven technique which overcomes many of the limitations of conventional epidemiological methods, and has been used to solve a number of animal health surveillance and research problems. The approach was developed in small-scale, community animal health programmes, and then applied to major international disease control efforts. The Global Rinderpest Eradication Program adopted participatory epidemiology as a surveillance tool for controlling rinderpest. This approach was subsequently used in both rural and urban settings in Africa and Asia, for foot and mouth disease, peste des petits ruminants and highly pathogenic avian influenza. Participatory disease surveillance has made an important contribution towards controlling both rare and common diseases. This paper reviews the principal applications of participatory epidemiology and highlights the lessons learned from field applications. In addition, the authors examine future challenges and consider new areas for research. PMID:18293603
Jost, C C; Mariner, J C; Roeder, P L; Sawitri, E; Macgregor-Skinner, G J
Full Text Available "nIn Iran, Population Research Centers, which were established in medical universities in 2001, were working for the aim of health promotion in particular and human development in general. These centers were based on community participation in their activities to develop the necessary capacity to allow people "more control over their own health and development". Iran's experience reveals that Community-Based Participatory Research is an approach that uses community knowledge and local resources. Its objective is to empower all stakeholders of development. The priority in local communities and the grass-root of health problems were mainly social determinants of health. On the other hand, both approaches of top-down and bottom-up approaches must be simultaneously considered for dealing with these determinants. Establishment of such centers can create good opportunities for developing original solutions for dealing with social determinants of health. The success of Population Research Centers depends on policy makers' concepts and attitude toward social determinants of health and the role of community participation in this regard. It seems that a more extensive engagement of different sectors including universities, governmental and non-governmental organizations is also vital for such movements.
Background: Health education is one of the proven ways to improve knowledge and change health attitudes and behaviors. This study is intended to assess the effectiveness of five health workshops in a Chinese community, focusing on depression, elder abuse, nutrition, breast cancer and stroke. Methods: A community-based participatory research approach was implemented to plan and organize the workshops. A total of 236 Chinese community-dwelling older adults participated in different health works...
Xinqi Dong; Yawen Li; Ruijia Chen; E-Shien Chang; Melissa Simon
The international focus on the learning potential of games in recent years has led to a boost in both academic research interest and the development of game formats. Numerous educational computer games are available for today's teachers, but the implementation of games in everyday teaching is often problematic. In this paper, we argue that the focus on designing and implementing game-based learning environments in educational settings implies a need to rethink methodological questions on how to apply and study educational designs. We review the methodological approaches of design-based research and action research and discuss some of the implications of applying these methods to game research. Both methods involve combining empirical educational research with the theory-driven design of learning environments. However, whereas action research aims at changing attitudes or behavior by involving participants in the different phases of designing environments for change, design-based research has a strong focus ontheory-based design and implementation of technologies and artifacts as part of the learning environment. In this paper, we present data from a study involving the design and implementation of game technology in educational settings: the game Global Conflict: Latin America, which is a role-playing game, set in a 3D environment. In the game, students play a freelance journalist who has to investigate particular issues or conflicts in the Latin American region. The game is designed to teach different subjects that involve social studies, such as geography, Danish, and history in secondary and upper secondary schools. In the first case, we conducted a study of how it is possible to integrate the game Global Conflict: Latin America in a local school practice. The involvement of game developers, researchers, students, and teachers in the different phases of the game-based educational scenario is discussed. The teacher involvement in the various design phases and student approaches and practices observed within the classes playing the games are compared as well as possibilities for the future integration of design. The case is discussed in relation to the methodological approaches of action research and design-based research. With the aim of developing approaches to modulate and integrate new game designs into school education, we suggest a design-based research approach inspired by action research with a focus on inviting teachers and players into the various phases of development of designs, intervention, redesigns, and analysis of design interventions.
Magnussen, Rikke; SØrensen, Birgitte Holm
Women are among the most disadvantaged members of any community, and they tend to be at greatest risk of illness. Black women are particularly vulnerable and more prone than White women to illnesses associated with social and economic deprivation, including heart disease and diabetes. They utilize preventive health services less often, and when they fall ill, the health of their families and communities typically suffers as well. This article discusses the process of doing innovative participatory action research (PAR) in southwest Nova Scotia Black communities. The effort resulted in the generation of a database, community action, and interdisciplinary analysis of the intersecting inequities that compromise the health and health care of African Canadian women, their families, and their communities. This particular research effort serves as a case study for explicating the key tenets of PAR and the barriers to and contradictions in implementing PAR in a community-academic collaborative research project. PMID:17911575
Etowa, Josephine B; Bernard, Wanda Thomas; Oyinsan, Bunmi; Clow, Barbara
Participatory diagnosis of soil fertility problems and subsequent experimentation was carried out at Kibwezi Division, Makweni district, using Participatory learning and Action Research (PLAR) methodologies. results of the soil analysis showed that nitrogen (N), phosphorus (P) and carbon (C) were the most limiting nutrients to the crop production. Farmers were excited to learn how to identify deficiency symptoms of N and P by looking at plant leaves. Farmers also identified and implemented practical options under rain-fed and irrigated conditions for solving the soil fertility problems such as use of manure, fertilisers or a combination of both. Fertiliser application at the rate of 40N + 40P2O5 ha-1 and 60N + 60P2O5 ha-1 produced significantly yield responses under rain-fed conditions. However, application of 20 t ha-1 and 40 t ha-1 of farm yard manure had no effect on grain yield of maize. Maize gross margins were positive with increasing fertilizer application. Similarly, fresh yields of Chili showed marked yield increasing with increasing fertility conditions. In contrast, onions and tomatoes showed a corresponding smaller yield increase with fertility improvement. Chili, onions and tomatoes had positive gross margins as nutrient application was increased indicating that benefit was higher with increasing fertiliser inputs. The PLAR methodology provided farmers with knowledge ahodology provided farmers with knowledge and skills that helped them to change their attitude towards soil fertility improvement interventions
Reviews the four basic principles of an ethical framework as outlined by the Code of Ethical Conduct for Research Involving Humans in light of the requirements of a participatory action research approach. Discusses the ethics of participatory action research in regard to care and concern. Argues that the ethics of morality and justice are…
Stuart, Carol A.
Financed partly by the French ministry in charge of environment, PRIME is a participative research coordinated by IRSN. The aim is to develop with stakeholders and experts a prospective method to build a multicriteria decision tool for ranking specificities of territories which identifies its vulnerability in case of nuclear accident. The method is elaborated through the participation of experts, decision-makers and local actors in order to enable the risk managers to choose the appropriate strategy in case of an accident involving radioactive substances. The method establishes the hierarchy of factors of the sensitivity of a territory to radioactive pollution. The studied zone is situated within the radius of about 50 km around three nuclear sites in the South of France. The main questions of this project are the following: Does the sensitivity of the territory of 50 km radius around a nuclear site depend only on the distance from the source or, alternatively, can it vary depending on the type and the use of the soils? Which criteria are important for the people living in the area and how are they balanced? Which of them would be particularly useful for decision-making? Can the multi criteria method be an appropriate tool to treat the data and make them visible and accessible? The characteristic of the project is to combine different opinion of the vulnerability of a territory in a participatory approach. The first step is to identify, alongside with stakeholders, th identify, alongside with stakeholders, the factors of the sensitivity of a territory and to establish correlation between them. The second step is to provide the managers and people who have to decide in such case with data necessary for working out the preparation and action plans for rationalizing the decision-making in the field of post-accidental management. As expected results, we hope to simplify the representation about territorial consequences of radiological contamination and to elaborate management tools common for different actors who a priori speak different 'languages', tools showing the evaluation of radio ecological sensitivity of a territory for further exploration. We will also share the main findings concerning the way to manage such a challenging social process. (author)
Key words: village committee approach, agroforestry, improved tree fallows, biomass transfer, realist evaluation, soil fertility, adoption, dissemination. The thesis explores and describes various processes that take place in the implementation of a community based participatory initiative known as the village committee approach by a collaborative agroforestry programme between the Kenya Forestry Research Institute (KEFRI), Kenya Agricultural Research Institute (KARI) and the World Agrofor...
This paper addresses the distinctive nature of participatory action research (PAR) in relation to ethical review requirements. As a framework for conducting research and reducing health disparities, PAR is gaining increased attention in community and public health research. As a result, PAR researchers and members of Research Ethics Boards could benefit from an increased understanding of the array of ethical concerns that can arise. We discuss these concerns in light of commonly held ethical requirements for clinical research (social or scientific value, scientific validity, fair subject/participant selection, favourable risk-benefit ratio, independent review, informed consent, and respect for potential and enrolled participants) and refer to guidelines specifically developed for participatory research in health promotion. We draw from our community-based experiences in mental health promotion research with immigrant and culturally diverse youth to illustrate the ethical advantages and challenges of applying a PAR approach. We conclude with process suggestions for Research Ethics Boards. PMID:15748680
Khanlou, N; Peter, E
The use of community-based participatory research has gained momentum as a viable approach to academic and community engagement for research over the past 20 years. This article discusses an approach for extending the process with an emphasis on evaluation of a community partnership–driven initiative and thus advances the concept of conducting community-based participatory evaluation (CBPE) through a model used by the Healthy Start project of the Augusta Partnership for Children, Inc., in A...
Braithwaite, Ronald L.; Mckenzie, Robetta D.; Pruitt, Vikki; Holden, Kisha B.; Aaron, Katrina; Hollimon, Chavone
The collection of essays in this book illustrate commonalties and differences among the theories, practices, and forms of organization of participatory action research in different countries. Participatory action research expresses the recognition that all research methodologies are implicitly political in nature, and this is reflected in the…
McTaggart, Robin, Ed.
Participatory research in which experts and non-experts are co-researchers in addressing local concerns (also known as participatory action research or community-based research) can be a valuable approach for dealing with the uncertainty of social-ecological systems because it fosters learning among stakeholders and co-production of knowledge. Despite its increased application in the context of natural resources and environmental management, evaluation of participatory research has received little attention. The objectives of this research were to define criteria to evaluate participatory research processes and outcomes, from the literature on participation evaluation, and to apply them in a case study in an artisanal fishery in coastal Uruguay. Process evaluation criteria (e.g., problem to be addressed of key interest to local and additional stakeholders; involvement of interested stakeholder groups in every research stage; collective decision making through deliberation; and adaptability through iterative cycles) should be considered as conditions to promote empowering participatory research. Our research contributes to knowledge on evaluation of participatory research, while also providing evidence of the positive outcomes of this approach, such as co-production of knowledge, learning, strengthened social networks, and conflict resolution.
Trimble, Micaela; Lázaro, Marila
Full Text Available Background: Health education is one of the proven ways to improve knowledge and change health attitudes and behaviors. This study is intended to assess the effectiveness of five health workshops in a Chinese community, focusing on depression, elder abuse, nutrition, breast cancer and stroke. Methods: A community-based participatory research approach was implemented to plan and organize the workshops. A total of 236 Chinese community-dwelling older adults participated in different health workshops. Quantitative questionnaires on knowledge, risk factors and outcomes of each health topic were distributed before and after the workshop. Pre and post workshop comparison analyses were conducted to examine the effectiveness of the workshops on knowledge and learning. Results: Overall, the health workshops have significantly improved participants’ understanding throughout the five health themes (P<0.05. Whereas Chinese older adults have limited knowledge on depression, nutrition and stroke, their health knowledge regarding depression and elder abuse were significantly improved after attending the workshops. In addition, health education workshops increased older adults’ understanding of the risk factors and consequences of depression, elder abuse and breast cancer. Conclusion: This study sheds light on the importance of promoting health education, and the complexity and challenges of designing health education for community dwelling Chinese older adults. Significant implications for researchers, community service providers, health service workers and policy makers are discussed.
Background: Following decades of conflict, South Sudan gained independence from Sudan in 2011. Prolonged conflict, which included gender-based violence (GBV), exacerbated gender disparities. This study aimed to assess attitudes towards gender inequitable norms related to GBV and to estimate the frequency of GBV in sampled communities of South Sudan. Methods: Applying a community-based participatory research approach, 680 adult male and female household respondents were interviewed in seven si...
Scott, Jennifer Ann; Averbach, Sarah Helene; Modest, Anna; Hacker, Michele Renee; Cornish, Sarah; Spencer, Danielle; Murphy, Maureen; Parmar, Parveen
Background: Communities in South Sudan have endured decades of conflict. Protracted conflict exacerbated reproductive health disparities and gender inequities. This study, conducted prior to the country’s 2011 independence, aimed to assess attitudes toward gender inequitable norms related to sexual relationships and reproductive health and the effects of sex, age, and education on these attitudes. Methods: Applying a community-based participatory research approach and quota sampling, 680 ad...
Scott, Jennifer; Averbach, Sarah; Modest, Anna Merport; Hacker, Michele; Cornish, Sarah; Spencer, Danielle; Murphy, Maureen; Parmar, Parveen
A group of nurses at a rural, psychiatric hospital used participatory action research to explore issues of autonomy and found that they could successfully challenge institutional norms and ideas that limit nurses' autonomy. (Author/JOW)
Breda, Karen Lucas; And Others
This paper gives an overview of the theory of participatory ergonomics interventions and summary examples from a range of industries, including health care, military, manufacturing, production and processing, services, construction and transport. The definition of participatory approaches includes interventions at macro (organizational, systems) levels as well as micro (individual), where workers are given the opportunity and power to use their knowledge to address ergonomic problems relating to their own working activities. Examples are given where a cost-effective benefit has been measured using musculoskeletal sickness absence and compensation costs. Other examples, using different outcome measures, also showed improvements, for example, an increase in productivity, improved communication between staff and management, reduction in risk factors, the development of new processes and new designs for work environments and activities. Three cases are described from Canada and Japan where the participatory project was led by occupational health teams, suggesting that occupational health practitioners can have an important role to play in participatory ergonomics projects. PMID:15857899
Hignett, Sue; Wilson, John R; Morris, Wendy
Participatory research can be seen as providing affordances for "listening" to student voices. This study contributes to the debate around its affordances in ameliorating democratic processes in schools. Students in a northern city secondary school in England used multimodal methods to research questions based on "where do students…
In this paper, we discuss and analyse the strategies employed and challenges encountered when conducting a recent feminist participatory action research study with highly marginalized women who were illicit drug users in an inner city area of Vancouver, Canada. Through an analysis of the political economy of participatory praxis within current neoliberal contexts, we focus on three main areas: (i) reconceptualizing the pragmatics of participation; (ii) the microeconomic implications of participatory research, including ethical issues in payment for research participation; and (iii) the value and limits of using research as a tool for activism and empowerment. We conclude with a brief discussion of what we see to be some of the most salient social justice implications arising from feminist and participatory approaches to health research within neoliberal political spaces. PMID:21059151
Salmon, Amy; Browne, Annette J; Pederson, Ann
Full Text Available This article gives insights into the work of the self-help- and research-group of the "Projekt Selbstverständigung über Drogengebrauch" as an example of participatory research in psychology. In a first step the basics of the project will be discussed by distinguishing it from other approaches in drug research, positioning it within the field of participatory research and analyzing it in regard to its theoretical basics. In a second step the practical work of the project will be described to illustrate problems that emerged as well as first solutions that could be helpful for further development of participatory research.
This paper describes the development of a unique prison participatory research project, in which incarcerated women formed a research team, the research activities and the lessons learned. The participatory action research project was conducted in the main short sentence minimum/medium security women's prison located in a Western Canadian province. An ethnographic multi-method approach was used for data collection and analysis. Quantitative data was collected by surveys and analysed using des...
Martin, R. Elwood; Murphy, K.; Hanson, D.; Hemingway, C.; Ramsden, V.; Buxton, J.; Granger-brown, A.; Condello, L-l; Buchanan, M.; Espinoza-magana, N.; Edworthy, G.; Hislop, T. G.
Participatory methodologies are often favoured in education research. This study aimed to determine collaborative partnership trends between education researchers and teachers in order to understand the use of participatory theory and practice in education studies. Seven symposium presentations by education scholars from various higher education…
Ebersohn, L.; Ferreira, R.; Beukes, J.
Participatory research is a useful technique for collecting basic data over a large geographic area. Garlic production was chosen as a participatory research study focus in Maine. Project participants (285) received bulbs to plant, monitored their crop, and reported data online. Participants received a monthly educational newsletter to improve…
Fuller, David; Johnson, Steven B.
Research experiences for undergraduates (REU) have been shown to be effective in improving undergraduate students' personal/professional development, ability to synthesize knowledge, improvement in research skills, professional advancement, and career choice. Adding to the literature on REU programs, a new conceptual model situating REU within a context of participatory action research (PAR) is presented and compared with data from a PAR-based coastal climate research experience that took place in Summer 2012. The purpose of the interdisciplinary Participatory Action Research Experiences for Undergraduates (PAREU) model is to act as an additional year to traditional, lab-based REU where undergraduate science students, social science experts, and community members collaborate to develop research with the goal of enacting change. The benefits to traditional REU's are well established and include increased content knowledge, better research skills, changes in attitudes, and greater career awareness gained by students. Additional positive outcomes are expected from undergraduate researchers (UR) who participate in PAREU, including the ability to better communicate with non-scientists. With highly politicized aspects of science, such as climate change, this becomes especially important for future scientists. Further, they will be able to articulate the relevance of science research to society, which is an important skill, especially given the funding climate where agencies require broader impacts statements. Making science relevant may also benefit URs who wish to apply their science research. Finally, URs will gain social science research skills by apprenticing in a research project that includes science and social science research components, which enables them to participate in future education and outreach. The model also positively impacts community members by elevating their voices within and outside the community, particularly in areas severely underserved socially and politically. The PAREU model empowers the community to take action from the research they, themselves, conducted, and enables them to carry out future research. Finally, many of these communities (and the general public) lack the understanding of the nature of science, which leads to ignorance on the part of citizens in areas of science such as climate change. By participating in science/social science research, community members gain a better understanding of the nature of science, making them more informed citizens. The PAREU model is theoretically grounded in decades of research in social science and documented impacts of student research experiences. In addition to providing practical benefits for communities with needs solvable by scientific research, the model builds on and expands student skills gained from traditional REU programs Deep and sustained engagement among scientists, social scientists, and community leaders is expected to create better informed citizens and improve their ability to solve problems.
Sample McMeeking, L. B.; Weinberg, A. E.
Participatory Action Research (PAR) is a qualitative research methodology option that requires further understanding and consideration. PAR is considered democratic, equitable, liberating, and life-enhancing qualitative inquiry that remains distinct from other qualitative methodologies (Kach & Kralik, 2006). Using PAR, qualitative features of an…
In the field of participatory design originating in Scandinavia, where approaches are developed for actively engaging local stakeholders in change processes, a major part of the research has been confined to Western contexts. The need to study participatory design in broader settings outside Western organisations has been stressed in the research community over the last decade, but later research indicates that still relatively few studies are done in developing countries. Researchers recognise that participatory design approaches cannot simply be transferred to developing country settings as there are numerous challenges for enabling participation, e.g. power distance, cultural barriers, low educational levels and geographical distances. However, participatory design offers substantial opportunities for developing countries, regarding empowerment in local communities and democratisation of change processes. Arguably, the appropriation of participatory design approaches and methods to developing world settings is an important priority in research cooperation between Nordic and Southern African universities. This work presents issues and opportunities for introducing participatory design in a South African context, based on two case studies. In the first case, concepts for new information technology were developed for a small-scale wine farm in the Western Cape, engaging multiple stakeholders on the farm. In the second case, hyper-local storytelling distributed through Bluetooth technology was explored in a socially challenged suburb in the Cape Flats area of Cape Town. Issues on appropriation of strategies and methods for participation are discussed, and directions for further research in the field are identified.
Messeter, Jörn; Claassen, Hester
Despite an increased focus on entrepreneurship as a means of promoting development, there has been limited discussion of the conceptual and methodological issues related to researching entrepreneurship in low-income countries. Drawing on experiences from Uganda, this paper presents a study of entrepreneurship conducted in a low-income settlement, which combined participatory quantitative and qualitative approaches, highlighting the strengths and challenges of using participatory methods. The paper demonstrates how drawing on a range of participatory methods can contribute to creating more engaging research relationships and generate.
Gough, Katherine V.; Langevang, Thilde
Introduction The California Health Interview Survey, the largest state health survey in the United States, uses community-based participatory research principles to develop each cycle. Other large-scale health surveys rarely include participatory research approaches. Every 2 years, the California Health Interview Survey generates state and local population-based data on health insurance coverage, access to health care, chronic disease prevalence and management, health behaviors and disease pr...
E Richard Brown, Phd; Sue Holtby, Mph; Elaine Zahnd, Phd; George B Abbott, Md
We employed a community-based participatory research approach to assess mental health among the Haitian community in the Somerville, MA area. The development of the survey coincided with the 2010 earthquake in Haiti, and so several questions related to the natural disaster were included in the analysis to increase understanding of the impact locally. We surveyed a convenience sample of 64 Haitians recruited with the assistance of the Somerville Haitian Coalition. The survey assessed demographic data, reasons for migrating to the area, response to the 2010 earthquake, and mental health. Mental health measures included the short versions of the Center for Epidemiologic Studies Depression Scale (CES-D) and the Perceived Stress Scale. Participants reported high rates of stress and depression post-earthquake. On the CES-D, men reported higher average depression and stress scores than women (13.8 vs. 11 and 20.6 vs. 17.6). Our results suggest that social and family support resources may be beneficial to Haitians in our sample. PMID:23515968
Martinez, Linda Sprague; Reich, Amanda J; Ndulue, Uchenna J; Dalembert, Franklin; Gute, David M; Peréa, Flavia C
Projects involving mental health clients receiving occupational therapy and senior citizens engaged in capacity building illustrate steps in the participatory action research (PAR) process: issue identification and planning; investigation and action; action, reflection, and modification cycles; and knowledge creation and change. Challenges and…
Cockburn, Lynn; Trentham, Barry
Full Text Available SciELO South Africa | Language: English Abstract in english Gender-based violence is pervasive in South African society and is often seen as the driver of HIV, particularly affecting youth. Rural KwaZulu-Natal, where we have been working in a district in an on-going university-school partnership, is noted as the epicentre of the epidemic. The two secondary s [...] chools in this study were therefore conveniently chosen while the 30 Grade 9 learners, 7 boys and 23 girls between the ages of 13-16, were purposively selected. The use of participatory visual methodologies, which is the focus of this special issue, taps into the notion of 'research as intervention' and speaks to the potential of educational research contributing to social change. In this qualitative study we used participatory video to explore youths' understanding of gender-based violence, as well as how they envision making schools safe. Power theory is used as theoretic lens to frame the study and to make meaning of the findings, namely, that girls' bodies are sites for gender-based violence at unsafe schools; that the 'keepers of safety' are perpetuating gender-based violence at school; and that learners have a sound understanding of what can be done to address gender-based violence. This study, with its 'research as intervention' approach, enabled learners to make their voices heard and to reflect on what it is that they as youth can do to contribute to safe schooling.
Naydene, de Lange; Mart-Mari, Geldenhuys.
Full Text Available Gender-based violence is pervasive in South African society and is often seen as the driver of HIV, particularly affecting youth. Rural KwaZulu-Natal, where we have been working in a district in an on-going university-school partnership, is noted as the epicentre of the epidemic. The two secondary schools in this study were therefore conveniently chosen while the 30 Grade 9 learners, 7 boys and 23 girls between the ages of 13-16, were purposively selected. The use of participatory visual methodologies, which is the focus of this special issue, taps into the notion of 'research as intervention' and speaks to the potential of educational research contributing to social change. In this qualitative study we used participatory video to explore youths' understanding of gender-based violence, as well as how they envision making schools safe. Power theory is used as theoretic lens to frame the study and to make meaning of the findings, namely, that girls' bodies are sites for gender-based violence at unsafe schools; that the 'keepers of safety' are perpetuating gender-based violence at school; and that learners have a sound understanding of what can be done to address gender-based violence. This study, with its 'research as intervention' approach, enabled learners to make their voices heard and to reflect on what it is that they as youth can do to contribute to safe schooling.
Naydene de Lange
Cyberbullying is an emerging problem among youngsters. Although the current body of knowledge about cyberbullying is expanding rapidly, it lacks a more in-depth research approach honoring adolescents' perspectives on the problem. Moreover, very few studies have focused on cyberbullying among elementary school children. The purpose of this study therefore, was to explore children's perspectives on the problem of cyberbullying. A participatory research design was used in which 28 children (aged 11-12 from four elementary schools) actively participated for 6 weeks in weekly scheduled group sessions. In these sessions, different aspects of cyberbullying were discussed using various enabling techniques. Between sessions, the children were given preparation assignments. The research revealed several ambiguities that should be addressed in interventions against cyberbullying. First, it appears difficult for all parties involved to distinguish cyberbullying from innocent pranks. Frequency and intention are key variables, but these are ambiguous in the context of cyberbullying. Second, cyberbullies may have very different motives, not all of which have to do with their relationship with the victim. Third, the expectations children have of the way their parents or teachers will react to incidents of cyberbullying are an obstacle for seeking help. Children are particularly afraid of overreaction and the subsequent loss of their Internet privileges. These results confirm earlier insights from research on cyberbullying, and examine the ambiguities in more detail. In addition, the research demonstrates the usefulness of participatory research to investigate cyberbullying among younger children and demonstrates that the research led to mutual learning. PMID:23438266
Baas, Niels; de Jong, Menno D T; Drossaert, Constance H C
Although logic models are now touted as an important component of health promotion planning, implementation and evaluation, there are few published manuscripts that describe the process of logic model development, and fewer which do so with community involvement, despite the increasing emphasis on participatory research. This paper describes a process leading to the development of a logic model for a youth mental health promotion intervention using a participatory approach in a Palestinian re...
Afifi, Rema A.; Makhoul, Jihad; El Hajj, Taghreed; Nakkash, Rima T.
Ecologically sound tourism planning and policy require an empowering community participation. The participatory action research model helps a community gain understanding of its social reality, learn how to learn, initiate dialog, and discover new possibilities for addressing its situation. (SK)
Guevara, Jose Roberto Q.
The author describes the process and development-related benefits of "participatory research." Her example is of the efforts of Canada's native people to resolve the issue of family and child welfare. (Author/CH)
Castellano, Marlene Brant
In this article I describe my personal journey from working as private practitioner to participating in the wider South African society. Post-apartheid South African society struggles with overwhelming problems related to poverty, illness, violence, sexism, and racism. Moreover, in those communities where the trauma is most severe, professional resources are scarce. I propose a participatory approach which invites therapists to respond to these socio-economic and political challenges and the problems that arise from them by thinking and acting outside the constraints of their consultation rooms and of traditional therapeutic conversations, into active participation in ways that might support healing and social transformation. I use two examples to illustrate and discuss the participatory approach with which I have engaged for over 10 years. The illustrative examples show how a participatory approach can create ripples that impact communities in healing and transformative ways. PMID:22145721
We would like to welcome you to a series of dialogues within the framework of action research (AR) and participatory research (PR), which will be focused on the relationship between participation and power. The basic question in this anthology is ‘What are the possibilities and barriers to participation conceptualised as various degrees of codetermination in organisations and in research processes?’ The anthology is part of a follow-up on an initiative taken in 2010 by Professor Werner Fricke, editor-in-chief of the International Journal of Action Research for many years. His vision was to create an academy of AR and PR.
This paper examines a participatory approach to community-based HIV/AIDS awareness campaigns in South Africa. The SARAR methodology, developed by Lyra Srinivasan, Ron Sawyer, and Jake Pfohl, was adapted specifically to the water supply and environmental sanitation sector through the PROWWESS and Participatory Hygiene and Sanitation Transformation (PHAST) initiative. The SARAR methodology of participatory learning is based on the innate ability of the people to address and resolve their own problems. The application of this methodology in HIV/AIDS awareness was explored through a training session held in KwaZulu/Natal, South Africa. The course seeks to demonstrate how participatory methods could intensify mass media campaigns. A summary of this approach, together with the outcome of the workshop, was presented. This paper concludes that participatory methodologies, such as modified versions of SARAR and PHAST, could open up discussions on HIV/AIDS. It could also assist in developing and strengthening existing household-coping strategies, and emphasize alternative ways for health care professionals to play a supportive, proactive, and constructive role at the community level. PMID:12349293
Breslin, E D; Sawyer, R
During the past two decades, there has been an increased use of community-based participatory research in public health activities, especially as part of efforts to understand health disparities affecting communities of color. This article describes the history and lessons learned of a long-standing community participatory project, Healthy African American Families (HAAF), in Los Angeles, California. HAAF evolved from a partnership formed by a community advisory board, university, and federal...
Ferre?, Cynthia D.; Jones, Loretta; Norris, Keith C.; Rowley, Diane L.
Community-based participatory research (CBPR) is an approach to research that recognizes the specific knowledge and abilities that individuals from diverse backgrounds bring to the generation of new knowledge for the purpose of social action aimed at improving public health and health equity. In this article, the authors apply Gaventa and Cornwall's dimensions of participatory research to the analysis of 12 semistructured interviews with members of our Community Advisory Committee for the Participatory Research in Ottawa: Understanding Drugs (PROUD) study. This process-to-outcomes framework may help projects more systematically explore their experiences in relation to common CBPR principles and lead to greater conceptual clarity. PMID:25774651
Stanley, Daina; Marshall, Zack; Lazarus, Lisa; LeBlanc, Sean; Heighton, Tarah; Preater, Beverley; Tyndall, Mark
Full Text Available Objectives. To examine the benefits, limitations and ethical issues associated with conducting participatory research on tobacco use using youth to research other youth. Study design. Community-based participatory research. Methods. Research on tobacco use was conducted with students in the K’àlemì Dene School and Kaw Tay Whee School in the Northwest Territories, Canada, using PhotoVoice. The Grade 9–12 students acted as researchers. Researcher reflections and observations were assessed using “member checking,” whereby students, teachers and community partners could agree or disagree with the researcher's interpretation. The students and teachers were further asked informally to share their own reflections and observations on this process. Results and conclusions. Using youth to research other youth within a participatory research framework had many benefits for the quality of the research, the youth researchers and the community. The research was perceived by the researchers and participants to be more valid and credible. The approach was more appropriate for the students, and the youth researchers gained valuable research experience and a sense of ownership of both the research process and results. Viewing smoking through their children's eyes was seen by the community to be a powerful and effective means of creating awareness of the community environment. Limitations of the approach were residual response bias of participants, the short period of time to conduct the research and failure to fully explore student motivations to smoke or not to smoke. Ethical considerations included conducting research with minors, difficulties in obtaining written parental consent, decisions on cameras (disposable versus digital and representation of all participants in the final research product.
Cynthia G. Jardine
Full Text Available Participatory research relies on stakeholder inputs to obtain its acclaimed benefits of improved social relevance, validity, and actionability of research outcomes. We focus here on participatory research in the context of natural resource management. Participants’ acceptance of participatory research processes is key to their implementation. Our first assumption is that this positive view and acceptance of participation in research processes is a public good for the whole participatory research community. We also assume that the diversity of participatory forms of research is rarely considered by potential participants when they make their decisions about whether or not to participate in a proposed process. We specifically address how to avoid stakeholders’ reluctance to be involved in participatory research projects based on disillusion with past experiences. We argue that the disappointment experienced by stakeholders and other participants (i.e., researchers and policy makers can be avoided by being upfront and precise about how “participation” will be implemented, and what kind of involvement is expected from participants. Such a collective effort from the research community can also clarify the variety of possible implementations for potential participants. Building on earlier efforts to characterize and categorize the diversity of participatory research approaches, we develop a conceptual analytic procedural framework to make participants’ roles explicit in the implementation of different participatory research processes. This framework consists of three facets: (1 the flows of information among participants and the control over these flows for each step in a process, i.e., who will be expected to produce information, who will use this information, and who will receive the results; (2 the timing of the involvement of participants in the different steps of the research process, and the framing power that is associated with each process step; and (3 the organization of communication among participants for each information flow, i.e., in what configuration (bilaterally or as a group, mediated or face to face the interactions among researchers, stakeholders, and policy makers will take place. This framework can accommodate a wide variety of research methods, and highlights exactly how participants are involved in research processes. We are prescriptive in dealing with the need to be procedurally explicit when engaging in participatory research. We anticipate that using this framework will lead to more thoughtful acceptances or refusals to participate in proposed research processes. Our framework is based on various experiences with participatory research. It is intended to be used from the very beginning of a participatory research process as a conceptual guide for researchers. We suggest a protocol to transform it into more practical guidelines for communicating about upcoming participatory research processes. The leader of such processes should propose at each key stage an explicit, yet adaptive, plan for the following stages. This plan should also specify in what ways participants will be involved, and how the plan itself can be questioned and revised.
Katherine A. Daniell
Participatory research relies on stakeholder inputs to obtain its acclaimed benefits of improved social relevance, validity, and actionability of research outcomes. We focus here on participatory research in the context of natural resource management. Participants’ acceptance of participatory research processes is key to their implementation. Our first assumption is that this positive view and acceptance of participation in research processes is a public good for the whole participatory res...
Barreteau, O.; Bots, P.; Daniell, K.
Rough roads increase vehicle operation and road maintenance costs. Consequently, transportation agencies spend a significant portion of their budgets on ride-quality characterization to forecast maintenance needs. The ubiquity of smartphones and social media, and the emergence of a connected vehicle environment present lucrative opportunities for cost-reduction and continuous, network-wide, ride-quality characterization. However, there is a lack of models to transform inertial and position information from voluminous data flows into indices that transportation agencies currently use. This work expands on theories of the Road Impact Factor introduced in previous research. The index characterizes road roughness by aggregating connected vehicle data and reporting roughness in direct proportion to the International Roughness Index. Their theoretical relationships are developed, and a case study is presented to compare the relative data quality from an inertial profiler and a regular passenger vehicle. Results demonstrate that the approach is a viable alternative to existing models that require substantially more resources and provide less network coverage. One significant benefit of the participatory sensing approach is that transportation agencies can monitor all network facilities continuously to locate distress symptoms, such as frost heaves, that appear and disappear between ride assessment cycles. Another benefit of the approach is continuous monitoring of all high-risk intersections such as rail grade crossings to better understand the relationship between ride-quality and traffic safety.
Purpose - The purpose of this paper is to describe the development, by incarcerated women who were members of a prison participatory health research team, of a survey tool regarding homelessness and housing, the survey findings and recommendations for policy. Design/methodology/approach - A survey was developed by incarcerated women in a minimum/medium security women's prison in Canada. Associations were examined between socio-demographic factors and reports of difficulty finding housing upon release, homelessness contributing to a return to crime, and a desire for relocation to another city upon release. Open-ended questions were examined to look for recurrent themes and to illuminate the survey findings. Findings - In total, 83 women completed the survey, a 72 per cent response rate. Of the 71 who were previously incarcerated, 56 per cent stated that homelessness contributed to their return to crime. Finding housing upon release was a problem for 63 per cent and 34 per cent desired relocation to another city upon release. Women indicated that a successful housing plan should incorporate flexible progressive staged housing. Research limitations/implications - The present study focuses only on incarcerated women but could be expanded in future to include men. Practical implications - Incarcerated women used the findings to create a housing proposal for prison leavers and created a resource database of the limited housing resources for women prison leavers. Social implications - Lack of suitable housing is a major factor leading to recidivism. This study highlights the reality of the cycle of homelessness, poverty, crime for survival, street-life leading to drug use and barriers to health, education and employment that incarcerated women face. Originality/value - Housing is a recognized basic determinant of health. No previous studies have used participatory research to address homelessness in a prison population. PMID:25758145
Elwood Martin, Ruth; Hanson, Debra; Hemingway, Christine; Ramsden, Vivian; Buxton, Jane; Granger-Brown, Alison; Condello, Lara-Lisa; Macaulay, Ann; Janssen, Patti; Gregory Hislop, T
This article traces the development of the "second" and arguably more well-known "genre" of participatory action research (PAR). The article argues that the origins of PAR are highly distributed and cannot really be traced back to the ideas of a single person or even a single group of researchers. Instead, the development of…
Glassman, Michael; Erdem, Gizem
This report presents the results of work carried out ARGONA project. The main objective has been to gain some appreciation of the success, or otherwise, of several public involvement approaches associated with radioactive waste disposal facility siting in general and of various involvement activities and techniques in particular, especially any that appear to be novel in their content and/or application. The main focus of the analysis has been to examine three case studies. Firstly the use of stakeholder panels as part of the consultation about the BPEO (Best Practicable Environmental Option) study for low-level radioactive waste (LLW) management at Britain's former centre for fast reactor research and development at Dounreay in northern Scotland; secondly, the series of subsequent 'drop-in' meetings held to communicate information about the development of the agreed solution for these wastes (namely a near-surface disposal facility); thirdly, work carried out by the Nuclear Research Institute at Rez (NRI) in the Czech Republic, as part of ARGONA WP5.1, involving a series of stakeholder meetings to examine radioactive waste management in the context of plans for the management of spent fuel. In order to evaluate the success or usefulness of the approaches, techniques and meetings involved, we have developed a participation process 'Evaluation Matrix'. This has involved the use of criteria against which particular approaches and activities may be judged. In order to ded activities may be judged. In order to develop these we have adapted criteria developed as part of the RISCOM II project and developed a parallel set of descriptions to enable us to examine each activity through the 'lens' of an appropriate Evaluation Matrix. We have then conducted an evaluation using these 'ARGONA criteria' for the three separate case studies. It is recognised that the literature currently fails to offer a methodology for comparing approaches and allowing selection of appropriate techniques for use in particular circumstances. The methodology adopted here has shown that it is however possible to map approaches and techniques against RISCOM-type criteria using a range of information, including feedback forms, questionnaires and interviews. This can inform about how particular approaches are perceived by both sides and assist in development of more suitable methods for the future. Evaluation of the different activities and techniques employed in the three case studies has allowed insight into several common factors, such as timing, purpose of the involvement, scale of the involvement, and development of suitable discussion arenas. We consider that this work makes a contribution to responding to the absence of a comparison methodology by proposing the development of a 'knowledge base' as a basis for reporting participation studies in a manner that would facilitate comparisons and selection of methods appropriate to particular issues. We consider that the resulting knowledge base should be developed in the form of a library of relevant approaches (techniques, meeting types etc) that can be 'indexed' in terms of what the desired end result might be (a requirement for advice; development of societal consensus; provision of clarity regarding a contentious issue etc) and cross referenced as to their suitability at different stages of an involvement process. The intention would then be that a 'customer' agency could consult the knowledge base and identify possible approaches and techniques that would be suitable for use (and adaptation) in the particular situation and at the relevant process stage in question. The approach could be developed more widely to include a large number of processes and a large number of 'requirement criteria' as components in the knowledge base. It should be emphasised, however, that such an approach should be used for communication about what it means to use certain processes, and not as a calculation tool to decide on which method to use in a simple objective manner
The Messengers for Health on the Apsaalooke Reservation project uses a community-based participatory research (CBPR) approach and lay health advisors (LHAs) to generate knowledge and awareness about cervical cancer prevention among community members in a culturally competent manner. Northern Plains Native Americans, of whom Apsaalooke women are a…
Christopher, Suzanne; Gidley, Allison L.; Letiecq, Bethany; Smith, Adina; McCormick, Alma Knows His Gun
This paper reports on an experiment linking science with people. Taking as a paradigm the holistic scientific approach fostered by agroecology, we present a methodological proposal for the implementation of participatory action research in rural areas. Our aims were various: to solve a specific problem, i.e. the exclusion of small- and…
Cuellar-Padilla, Mamen; Calle-Collado, Angel
This paper evaluates a participatory action research (PAR) approach to conducting family research in Ireland. Drawing on PAR methodology it describes how parents of people with intellectual disabilities were recruited and trained to facilitate focus groups of parents in Ireland, in order to create an evidence base to support improved dialogue…
Walmsley, Jan; Mannan, Hasheem
Participatory research has in recent years become a popular approach for problem-oriented scientific research that aims to tackle complex problems in a real management context. Within the European Union project NeWater, stakeholder processes were initiated in seven case studies to develop approaches for adaptive water management. The Uzbek part of the Amudarya River basin was one of the studied river basins. However, given the current political and cultural context in Uzbekistan, which provid...
Hirsch, D.; Abrami, G.; Giordano, R.; Liersch, S.; Matin, N.; Schlu?ter, M.
Participatory research has in recent years become a popular approach for problem-oriented scientific research that aims to tackle complex problems in a real management context. Within the European Union project NeWater, stakeholder processes were initiated in seven case studies to develop approaches for adaptive water management. The Uzbek part of the Amudarya River basin was one of the studied river basins. However, given the current political and cultural context in Uzbekistan, which provid...
Nilufar Matin; Maja Schlüter; Stefan Liersch; Raffaele Giordano; Geraldine Abrami; Darya Hirsch
Participatory research and development approaches involving all stakeholders along the value chain have recently been hypothesized to produce quicker outcomes than the linear technology transfer model. This paper analyzed the crop yield obtained by farmers and their uptake of improved technologies in a 2009 survey, one year after the completion of project field activities. It was a multi-stakeholder project involving research, extension, farmer groups, marketers and policymakers, that operate...
Abdoulaye, T.; Amaza, Ps; Olanrewaju, As; Ellis-jones, J.
Youth participatory action research (YPAR) projects offer young people the opportunity to increase their sociocultural awareness, critical thinking abilities, and sense of agency within a collaborative group experience. Thus far, however, such projects have been primarily the province of educators and social psychologists, and not substantively…
Smith, Laura; Davis, Kathryn; Bhowmik, Malika
This article looks at participatory action research (PAR) as a means for a religious educator to unite scholarship and teaching with the purpose of building up community and moving toward social justice. A definition of this term is offered as well as short examples of how different religious educators have engaged in doing PAR in their respective…
Full Text Available Influenza pandemics disproportionately impact remote and/or isolated Indigenous communities worldwide. The differential risk experienced by such communities warrants the recommendation of specific mitigation measures. Interviewer-administered questionnaires were conducted with adult key health care informants from three remote and isolated Canadian First Nations communities of sub-Arctic Ontario. Forty-eight mitigation measures (including the setting, pandemic period, trigger, and duration were questioned. Participants’ responses were summarized and collected data were deductively and inductively coded. The participants recommended 41 of the questioned mitigation measures, and often differed from previous literature and national recommendations. Results revealed that barriers, such as overcrowded housing, limited supplies, and health care infrastructure, impacted the feasibility of implementing mitigation measures. These findings suggest that pandemic plans should recommend control strategies for remote and isolated Canadian First Nations communities that may not be supported in other communities. These findings highlight the importance of engaging locally impacted populations using participatory approaches in policy decision-making processes. Other countries with remote and/or isolated Indigenous communities are encouraged to include recommendations for mitigation measures that specifically address the unique needs of such communities in an effort to improve their health outcomes during the next influenza pandemic.
Nadia A. Charania
Objectives. To examine the benefits, limitations and ethical issues associated with conducting participatory research on tobacco use using youth to research other youth. Study design. Community-based participatory research. Methods. Research on tobacco use was conducted with students in the K’àlemì Dene School and Kaw Tay Whee School in the Northwest Territories, Canada, using PhotoVoice. The Grade 9–12 students acted as researchers. Researcher reflections and obse...
Jardine, Cynthia G.; Angela James
Specific, situated participatory design (PD) practices have always been at the heart of Participatory Design research. The role of the very situatedness and specificity of PD practice for theory-building within PD research is, however, seldom discussed explicitly. In this article, we explore why and in which ways the specificity and situatedness of PD practices are crucial for PD research. We do so by developing the notion of PD as situated innovation based on a pragmatic epistemology. PD research aims at devel oping and continuously unfolding what PD can, might and should be. We show implications of such a pragmatic epistemology of PD on understanding and arguing for PD research approaches. These concepts are illustrated referring to PD practices as experienced in PD research projects. Our epistemological argumentation supports the emphasis on exploring new PD practices and learning and theorizing about PD from the specificities, in line with recent debate contributions.
Dittrich, Yvonne; Eriksén, Sara
In this article, I aim to further the discussion of engaged research in anthropology and education by examining the unique changes promoted by participatory research in contrast to policy-oriented activist research models. Drawing on my work with Latina immigrant mothers in a school reform movement, I argue for a Latina feminist view of…
The consequences of agricultural pesticide exposure continue to be major environmental health problems in rural communities. Community-based participatory research (CBPR) is an important approach to redressing health disparities resulting from environmental causes. In this article we introduce a collection of articles that describe projects using CBPR to address the health disparities resulting from pesticide exposure in agricultural communities, particularly the communities of migrant and se...
Arcury, T. A.; Quandt, S. A.; Dearry, A.
For community engagement to be successful, the interests of the community must be taken into account and researchers must become facilitators. Patience is required. Meaningful and sustainable relationships that have been developed over time promote mutual learning and capacity building among the partners (Elders, community members, health care providers, and researchers). In addition, community engagement leads to the sharing of available resources (eg, human, time, and financial) and to a sustained commitment by the partners. This mutual commitment makes future projects easier to develop and complete. Thus, authentic transformative health development, informed by participatory health research, becomes an ongoing process. PMID:24029518
Ramsden, Vivian R; McKay, Shari; Bighead, Shirley; Boucher, Gail; Bourassa, Carrie; Butt, Peter; Clinton, Andrea; Crowe, Jackie; Felix, Fred; Jorgenson, Derek; LaRocque, Karen; McKee, Nora; Nketia, Irene; Rabbitskin, Norma; Thunderchild, Ella; Troupe, Cheryl; Turner, Tara
Models for community-based participatory research (CBPR) urge academic investigators to collaborate with communities to identify and pursue research questions, processes, and outcomes valuable to both partners. The tribal participatory research (TPR) conceptual model suggests modifications to CBPR to fit the special needs of American Indian…
Goins, R. Turner; Garroutte, Eva Marie; Fox, Susan Leading; Geiger, Sarah Dee; Manson, Spero M.
Environmental Education and Networking in Mafeteng Primary Schools: A-Participatory Approach Constance BITSO Institute of Education National University of Lesotho Lesotho, SOUTHERN AFRICA ABSTRACT This paper explores a participatory process of Environmental Education (EE) networking in Mafeteng primary schools. It gives an overview of the existing EE efforts in Lesotho, particularly the models schools of the National Curriculum Development Centre. It also...
Ethical principles of community-based participatory research (CBPR)— specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability—stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR. PMID:23124502
Smith, Selina A.; Blumenthal, Daniel S.
Full Text Available Community-based participatory research (CBPR is gaining increasing credence among public health researchers and practitioners. However, there is no standardization in assessing the quality of research methods, the effectiveness of the interventions, and the reporting requirements in the literature. The absence of standardization precludes meaningful comparisons of CBPR studies. Several authors have proposed a broad set of competencies required for CBPR research for both individuals and organizations, but the discussion remains fragmented. The Prevention Research Centers (PRC Program recently began a qualitative assessment of its national efforts, including an evaluation of how PRCs implement CBPR studies. Topics of interest include types of community partnerships; community capacity for research, evaluation, and training; and factors that help and hinder partner relationships. The assessment will likely contribute to the development of a standard set of competencies and resources required for effective CBPR.
Zubaida Faridi, MBBS, MPH
Participatory modeling and participatory scenario development have become an essential part of environmental impact assessment and planning in the field of water resources management. But even if most people agree that participation is required to solve environmental problems in a way that satisfies both the environmental and societal needs, success stories are relatively rare, while many attempts to include stakeholders in the development of models are still reported to have failed. This paper proposes the hypothesis, that the lack of success in participatory modeling can partly be attributed to a lack of attractiveness of participatory approaches for researchers from natural sciences (subsequently called 'modelers'). It has to be pointed out that this discussion is mainly concerned with natural scientists in academia and not with modelers who develop models for commercial purposes or modelers employed by public agencies. The involvement of modelers and stakeholders in participatory modeling has been intensively studied during recent years. However, such analysis is rarely made from the viewpoint of the modelers themselves. Modelers usually don't see participatory modeling and scenario development as scientific targets as such, because the theoretical foundations of such processes usually lie far outside their own area of expertise. Thus, participatory processes are seen mainly as a means to attract funding or to facilitate the access to data or (relatively rarely) as a way to develop a research model into a commercial product. The majority of modelers very likely do not spend too much time on reflecting whether or not their new tools are helpful to solve real world problems or if the results are understandable and acceptable for stakeholders. They consider their task completed when the model they developed satisfies the 'scientific requirements', which are essentially different from the requirements to satisfy a group of stakeholders. Funding often stops before a newly developed model can actually be tested in a stakeholder process. Therefore the gap between stakeholders and modelers persists or is even growing. A main reason for this probably lies in the way that the work of scientists (modelers) is evaluated. What counts is the number of journal articles produced, while applicability or societal impact is still not a measure of scientific success. A good journal article on a model requires an exemplary validation but only very rarely would a reviewer ask if a model was accepted by stakeholders. So why should a scientist go through a tedious stakeholder process? The stakeholder process might be a requirement of the research grant, but whether this is taken seriously, can be questioned, as long as stakeholder dialogues do not lead to quantifiable scientific success. In particular for researchers in early career stages who undergo typical, publication-based evaluation processes, participatory research is hardly beneficial. The discussion in this contribution is based on three pillars: (i) a comprehensive evaluation of the literature published on participatory modeling and scenario development, (ii) a case study involving the development of an integrated model for water and land use management including an intensive stakeholder process and (iii) unstructured, personal communication - with mainly young scientists - about the attractiveness of multidisciplinary, applied research.
There is limited literature describing the ethical dilemmas that arise when conducting community-based participatory research. The following provides a case example of ethical dilemmas that developed during a multi-method community-based participatory action research project with youth in Calgary, Alberta, Canada. Several ethical dilemmas emerged…
Walsh, Christine A.; Hewson, Jennifer; Shier, Michael; Morales, Edwin
Under the label 'participatory ergonomics' the idea of establishing changes in working conditions through participatory approaches has been a central issue within ergonomics. Tools and procedures have been developed and demonstrated beneficial. But how this approach can be established as the way changes are made in firms have only had limited attention. In the Scandinavian countries legislation has, through mandatory joint working environment committees, tried to establish an organizational unit promoting direct participation. Several studies have showed that the intentions of the legislators are not automatically fulfilled, and they have reviled preconditions for more successful achievement. This opens for many supplementary regulatory strategies to improve activities in firms, but one has been in focus: establishing formalized management systems within occupational health and safety. This strategy may be contrary to the general intentions in the laws. Some of the conditions which must be taken into consideration are discussed.
Jensen, Per Langaa
Full Text Available SciELO Public Health | Language: English Abstract in english By involving citizens and health workers in producing evidence and learning, participatory action research has potential to organize community evidence, stimulate action, and challenge the marginalization that undermines achievement of universal health coverage. This paper summarizes and analyzes re [...] sults of two sessions on this research model convened by the authors at the First Global Symposium on Health Systems Research in Montreux Switzerland, November 16-19, 2010. In so doing, it reviews case studies and experiences discussed, particularly their contribution to universal health coverage in different settings. The paper also reflects on challenges faced by participatory action research, and outlines recommendations from the two sessions, including creation of a learning network for participatory action research.
Rene, Loewenson; Walter, Flores; Abhay, Shukla; Maija, Kagis; Amuda, Baba; Ashraf, Ryklief; Clara, Mbwili-Muleya; Dhananjay, Kakde.
One information source for the Personally Controlled Electronic Health Record is the consumer repository. This paper reports on the use of community based participatory research, as a project method, derived from an initiative where people with complex chronic conditions and their carers attended a rural health promotion and lifestyle modification program. Through co-operative inquiry embedded in the research approach, health promotion workers and their clients were actively supported to adopt and use the PCEHR as an intervention. Simultaneously they were encouraged to reflect on its design, mechanisms for its implementation and their perceptions of its overall impact on consumer's ability to self-manage complex conditions. PMID:25676944
Almond, Helen; Cummings, Elizabeth; Turner, Paul
Within Canada, community-based participatory research (CBPR) has become the dominant methodology for scholars who conduct health research with Aboriginal communities. While CBPR has become understood as a methodology that can lead to more equitable relations of power between Aboriginal community members and researchers, it is not a panacea. In…
Darroch, Francine; Giles, Audrey
Research studies are increasingly complex: They draw on multiple methods to gather data, generate both qualitative and quantitative data, and frequently represent the perspectives of more than one stakeholder. The teams that generate them are increasingly multidisciplinary. A commitment to engaging community members in the research process often adds a further layer of complexity. How to approach a synthesizing analysis of these multiple and varied data sources with a large research team requires considerable reflection and dialogue. In this article, we outline the strategies used by one multidisciplinary team committed to a participatory action research (PAR) approach and engaged in a mixed method program of research to synthesize the findings from four subprojects into a conceptual framework that could guide practice in community mental health organizations. We also summarize factors that hold promise for increasing productivity when managing complex research projects. PMID:18420539
Westhues, Anne; Ochocka, Joanna; Jacobson, Nora; Simich, Laura; Maiter, Sarah; Janzen, Rich; Fleras, Augie
Full Text Available Participatory research and development approaches involving all stakeholders along the value chain have recently been hypothesized to produce quicker outcomes than the linear technology transfer model. This paper analyzed the crop yield obtained by farmers and their uptake of improved technologies in a 2009 survey, one year after the completion of project field activities. It was a multi-stakeholder project involving research, extension, farmer groups, marketers and policymakers, that operated for 4 years (2005-2008 in Borno state of Nigeria. Survey results indicated that farmers who participated in project activities' have been successful in increasing crop yields. Both yields and per capita production of major crops were statistically significantly higher (ñ? 0.05 in project communities compared to non-project ones. It is also estimated that there was a decline in percentage of households in food insecurity situation in project communities. Probit regression revealed that participation in project activities had a positive and significant effect on household food security (ñ? 0.05. It is then concluded that development interventions that involve multiple stakeholder partnership, use of participatory research and extension approach can help increase technology uptake among resourcepoor farmers as well as increase food production and food security in a region.
Ergonomics are rarely addressed directly in the design and re-design of workspaces in Denmark. Often architects, engineers and other actors design the workspaces on the basis of for example spatial, technological or finan-cial considerations, thereby making ergonomics a by-product of the design process. However, by introducing ergonomists in the role of ‘workspace de-signers’ early in the design process, ergonomic considerations as well as the involvement of employees, can be integrated in the design process. In this article we demonstrate the use of the workspace design approach in a case study where an industrial manufacturer is undergoing a major technological change: going from labour intensive manual work to a highly automated production. The workspace design team, which included the company’s OHS consultant, designed the intervention as a participatory design process by using visually based methods such as workbooks, layout workshops and use scenarios. Employees, management and external design engineersalike took actively part in the design process. The general outcome of the inter-vention was some very concrete changes in the proposed design layout, an enhanced clarity of the production procedures in the new plant, and an identification of potential future ergonomic problems. This case study indi-cates that workspace design can be a new approach for OHS consultants.
Seim, Rikke; Broberg, Ole
Full Text Available The paper attempts to explain different possible research approaches to pursue a research project. It starts with three important components of a research approach amelyphilosophical world view, research design, and research methods. Research approaches are classified on the basis of work of Guba (1990, which puts it in to the categories of post positivism, constructivism, transformative and pragmatism. Further paper explains salient features and principals of these four world views. These world views are merged to form three approaches namely-quantitative, qualitative and mixed methods. Quantitative approach includes positivism and post positivism world view, qualitative approach includes constructivism and transformative world view and mixed method approach corresponds to pragmatism. Beside these approaches two more approaches has been discussed namely-Logical, theoretical research used in the field of mathematics and computer science and Participatory action research used in the field of management, sociology and anthropology. Paper finally ends with criterion for choosing a research approach. In concluding remarks author stresses that all the approaches are complementary to each other rather than opposing each other. No concept or phenomena can be studied by single approach, a combination of these is necessary to uncover the truth.
Vijay Kumar Grover
Focuses on the fundamental issues of criticism of participatory research: responses to the critique of traditional research; conceptual clarifications; the role of values; uses and misuses; and questions of class relationships. (SK)
Conchelos, Greg; Kassam, Yusuf
The aim of this paper is to present a design strategy for collaborative knowledge-management systems based on a semiotic approach. The contents and structure of experts' knowledge is highly dependent on professional or individual practice. Knowledge-management systems that support cooperation between experts from different (sub-)fields need to be situated and tailored to provide effective support even if the common aspects of the data need to be described by ontologies that are generic in respect to the sub-disciplines involved. To understand and approach this design problem, we apply a semiotic perspective to computer application and human–computer interaction. From a semiotic perspective, the computer application is both a message from the designer to the user about the structure of the problem domain, as well as about interaction with it, and a structured channel for the user's communication with herself, himself or other users of the software. Tailoring or “end-user development” – i.e. adapting the knowledge-management system to a specific (sub-)discipline, task or context – then refines both the message and adapts the structure of the interaction to the situated requirements. The essential idea of this paper is to define a new perspective for designing and developing interactive systems to support collaborative knowledge management. The key concept is to involve domain experts in participatory knowledge design for mapping and translating their professional models into the proper vocabularies, notations, and suitable visual structures for navigating among interface elements. To this end, the paper describes how our semiotic approach supports processes for representing, storing, accessing, and transferring knowledge through which the information architecture of an interactive system can be defined. Finally, the results of applying our approach to a real-world case in an archaeological context are presented.
Valtolina, Stefano; Barricelli, Barbara Rita
'Intentional'/'hourly rounding' is defined as regular checks of individual patients carried out by health professionals at set intervals rather than a response to a summons via a call bell. Intentional rounding places patients at the heart of the ward routine including the acknowledgement of patient preferences and in anticipation of their needs. The aim of this study was to implement intentional rounding using participatory action research to increase patient care, increase staff productivity and the satisfaction of care provision from both patients and staff. Outcomes of the study revealed a drop in call bell use, no observable threats to patient safety, nursing staff and patient satisfaction with care provision. However, any future studies should consider staff skill mix issues including the needs of newly graduated nursing staff as well as the cognitive status of patients when implementing intentional rounding on acute care wards. PMID:24093744
Harrington, Ann; Bradley, Sandra; Jeffers, Lesley; Linedale, Ecushla; Kelman, Sue; Killington, Geoffrey
Drawing on the results of community-based research with a local hospice organisation, this article addresses the need to enhance social support for caregivers of people with life-threatening illnesses. The goal of the research was to involve palliative care stakeholders in the identification, prioritisation and implementation of social support interventions for caregivers who provide palliative care support as hospice volunteers and as family members of those at end-of-life. Guided by a community-based participatory research approach, primary data were collected from 39 volunteer and family member caregivers through four focus groups and nine personal diaries in July 2008. Content analysis and modified constant comparison techniques resulted in emergent themes and priorities relating to challenges, existing coping strategies and resources, and potential support interventions. The findings revealed communication, emotional support, education, advocacy and personal fatigue as the most important challenges to be addressed through support interventions at the organisational (professional support, volunteer mentoring and continuing education) and household levels (caregiver assessments, telephone support and follow-up). There was convergence in how caregivers perceived and access existing social supports, yet a crucial divergence in the availability of resources among volunteers and family members. The findings are discussed in the light of the capacity for hospices to implement social supports and the potential efficacy of the community-based participatory research approach for enhancing social support for caregivers in other parts of health-care and social care. PMID:21978371
MacLeod, Ann; Skinner, Mark W; Low, Eleanor
Although intervention research is vital to eliminating health disparities, many groups with health disparities have had negative research experiences, leading to an understandable distrust of researchers and the research process. Community-based participatory research (CBPR) approaches seek to reverse this pattern by building trust between community members and researchers. We highlight strategies for building and maintaining trust from an American Indian CBPR project and focus on 2 levels of trust building and maintaining: (1) between university and community partners and (2) between the initial project team and the larger community. This article was cowritten by community and academic partners; by offering the voices of community partners, it provides a novel and distinctive contribution to the CBPR literature. PMID:18556605
Christopher, Suzanne; Watts, Vanessa; McCormick, Alma Knows His Gun; Young, Sara
Evaluating the efficacy of behavioral interventions for rare outcomes is a challenge. One such topic is stroke preparedness, defined as inteventions to increase stroke symptom recognition and behavioral intent to call 911. Current stroke preparedness intermediate outcome measures are centered on written vignettes or open-ended questions and have been shown to poorly reflect actual behavior. Given that stroke identification and action requires aural and visual processing, video vignettes may improve on current measures. This article discusses an approach for creating a novel stroke preparedness video vignette intermediate outcome measure within a community-based participatory research partnership. A total of 20 video vignettes were filmed of which 13 were unambiguous (stroke or not stroke) as determined by stroke experts and had test discrimination among community participants. Acceptable reliability, high satisfaction, and cultural relevance were found among the 14 community respondents. A community-based participatory approach was effective in creating a video vignette intermediate outcome. Future projects should consider obtaining expert and community feedback prior to filming all the video vignettes to improve the proportion of vignettes that are usable. While content validity and preliminary reliability were established, future studies are needed to confirm the reliability and establish construct validity. PMID:25367896
Skolarus, Lesli E; Murphy, Jillian B; Dome, Mackenzie; Zimmerman, Marc A; Bailey, Sarah; Fowlkes, Sophronia; Morgenstern, Lewis B
Practicing various innovations pertinent to irrigated farming at local field scale is instrumental to increase productivity and yield for small holder farmers in Africa. However the translation of innovations from local scale to the scale of a jointly operated irrigation scheme is far from trivial. It requires insight on the drivers for adoption of local innovations within the wider farmer communities. Participatory methods are expected to improve not only the acceptance of locally developed innovations within the wider farmer communities, but to allow also an estimation to which extend changes will occur within the entire irrigation scheme. On such a base, more realistic scenarios of future water productivity within an irrigation scheme, which is operated by small holder farmers, can be estimated. Initial participatory problem and innovation appraisal was conducted in Gumselassa small scale irrigation scheme, Ethiopia, from Feb 27 to March 3, 2012 as part of the EAU4FOOD project funded by EC. The objective was to identify and appraise problems which hinder sustainable water management to enhance production and productivity and to identify future research strategies. Workshops were conducted both at local (Community of Practices) and regional (Learning Practice Alliance) level. At local levels, intensive collaboration with farmers using participatory methods produced problem trees and a "Photo Safari" documented a range of problems that negatively impact on productive irrigated farming. A range of participatory methods were also used to identify local innovations. At regional level a Learning Platform was established that includes a wide range of stakeholders (technical experts from various government ministries, policy makers, farmers, extension agents, researchers). This stakeholder group did a range of exercise as well to identify major problems related to irrigated smallholder farming and already identified innovations. Both groups identified similar problems to productive smallholder irrigation: soil nutrient depletion, salinization, disease and pest resulting from inefficient irrigation practices, infrastructure problems leading to a reduction of the size of the command area and decrease in reservoir volume. The major causes have been poor irrigation infrastructure, poor on-farm soil and water management, prevalence of various crop pests and diseases, lack of inputs and reservoir siltation. On-farm participatory research focusing on soil, crop and water management issues, including technical, institutional and managerial aspects, to identify best performing innovations while taking care of the environment was recommended. Currently, a range of interlinked activities are implemented a multiple scales, combining participatory and scientific approaches towards innovation development and up-scaling of promising technologies and institutional and managerial approaches from local to regional scales. ____________________________ Key words: Irrigation scheme, productivity, innovation, participatory method, Gumselassa, Ethiopia
Habtu, Solomon; Ludi, Eva; Jamin, Jean Yves; Oates, Naomi; Fissahaye Yohannes, Degol
Community-based participatory research (CBPR) is an increasingly utilized research approach that involves the affected community identifying a health-related problem, developing a research agenda, and planning an appropriate intervention to address the problem. This report on a CBPR partnership in San Francisco's Bayview Hunters Point neighborhood documents the rise of a community food security policy in response to youth-involved research that found poor access to quality food in an economically disadvantaged area of the city. To analyze the impact of the research on public policy, a framework of specific steps in the policy-making process is used to organize and better understand the partnership's objectives, activities, strategies, and successes. This community-health department partnership has been able to achieve an innovative and sustainable public policy solution, the Good Neighbor Program, by working closely with policy makers and local businesses to expand community accessibility to healthy food. PMID:17728199
Vásquez, Victoria Breckwich; Lanza, Dana; Hennessey-Lavery, Susana; Facente, Shelley; Halpin, Helen Ann; Minkler, Meredith
In the last few decades, community based participatory research (CBPR) has emerged as an important approach that links environmental health and justice advocates with research institutions to understand and address environmental health problems. CBPR has generally been evaluated for its impact on policy, regulation, and its support of community science. However, there has been less emphasis on assessing the ways in which CBPR (re)shapes and potentially improves the scientific enterprise itsel...
Balazs, Carolina L.; Morello-frosch, Rachel
This work illustrates the preliminary findings of a participatory research process aimed at identifying responses for sustainable water management in a climate change perspective, in two river basins in Europe and Asia. The paper describes the methodology implemented through local workshops, aimed at eliciting and evaluating possible responses to flood risk. Participatory workshops allowed for the identification of four categories of possible responses and a set of nine evaluation criteria, t...
Ceccato, Lucia; Giannini, Valentina; Giupponi, Carlo
It is imperative that nursing education addresses the issues arising from globalization. The adjustment challenges faced by international nursing students globally highlight the need to understand how nursing faculty experience and teach nursing classes with a mix of domestic and foreign students. This article reports on a participatory action research (PAR) study to examine and enhance the scholarly teaching of international nursing students. The overarching research question for this PAR was: How did participation in a PAR study contribute to shared learning and professional development of nursing faculty teaching international students? Five major themes were identified across the PAR: creating sharing spaces, recognizing and respecting diversity, developing and acknowledging teaching capabilities, utilizing precious time, and valuing the research. In summary, PAR was a useful approach to engage faculty in research by providing a process and a space to address concerns about the teaching and learning of international students. [J Nurs Educ. 2015;54(3):153-158.]. PMID:25693177
Fabbro, Letitia Del; Mitchell, Creina; Shaw, Julie
The disappointing results of many public health interventions have been attributed in part to the lack of meaningful community engagement in the planning, implementation, and evaluation of these initiatives. Community-based participatory research (CBPR) has emerged as an alternative research paradigm that directly involves community members in all aspects of the research process. Their involvement is often said to be an empowering experience that builds capacity. In this paper, we interrogate...
Guta, Adrian; Flicker, Sarah; Roche, Brenda
Preventing cancer, downstaging disease at diagnosis, and reducing mortality require that relevant research findings be translated across scientific disciplines and into clinical and public health practice. Interdisciplinary research focuses on using the languages of different scientific disciplines to share techniques and philosophical perspectives to enhance discovery and development of innovations; (i.e., from the “left end” of the research continuum). Community-based participatory rese...
Hebert, James R.; Brandt, Heather M.; Armstead, Cheryl A.; Adams, Swann A.; Steck, Susan E.
Within the domain of participatory urban planning, this position paper argues for a focus on the notion of place in the design of mobile and/or ubiquitous systems that are used in deliberation processes with central spatial references. I discuss (1) leveraging properties of place as a resource for users in the design of such systems and (2) situating, or merely co-locating, deliberation activities within the places these discussions are concerned with. To support my argument, I outline two exemplary cases that explore this focus on place and situated deliberation to further motivate research in that direction. The first case concerns the different qualities of in-situ reflection and action on proposed changes to the cityscape in contrast to ex-situ reflection and action on those changes. The second case focuses on providing immersive information about citizens’ own living environment on the spot for everyone and everywhere through a mobile augmented reality application that visualizes future, planned buildings on capable mobile phones. I conclude with the central questions and problems for future research that focuses on place and situated deliberation.
The aim of this book is to provide a current account of the commitments and contributions of research and practice in the Participatory Design of information technologies. An overview of the central concepts that have defined and shaped the field is provided as an introduction to the more detailed focus of later chapters. The target audience is identified, and the structure of the book explained. A short description of each chapter highlights its particular contributions as well as the associated challenges facing designers and researchers engaged in participatory approaches. The chapter concludes with some guidance and recommendations for further reading. An introduction to Participatory Design is followed by explanations of how practitioners and researchers in the field understand participation and practice and how design is approached as a process driven by social interaction and engagement. The structure of the book is described, individual chapters introduced and further relevant publications listed. Essentially this chapter introduces, motivates, and grounds the book and the chapters that follow. It provides basic definitions of the core concepts of Participatory Design and explains both their origins and ongoing relations to the motivations and commitments of researchers and practitioners who use participatory approaches in their work. The chapter provides the foundation to account for the structure of the book: one section focusing on some of the different perspectives in the field and their particular contributions and challenges and another section that presents case studies of three outstanding applications of Participatory Design. If we are to design the futures we wish to live then we need those, whose futures they will be, to actively participate in their design. This is why it is so important that Participatory Design keeps developing the design processes, tools, techniques, and methods needed to enable full and active participation in all kinds of design activities.
Robertson, Toni; Simonsen, Jesper
Flood risk mitigation decisions pose key challenges not only from a technical but also from a social, economic and political viewpoint. There is an increasing demand for improving the quality of these processes by including different stakeholders - and especially by involving the local residents in the decision making process - and by guaranteeing the actual improvement of local social capacities during and after the decision making. In this paper we analyse two case studies of flood risk mitigation decisions, Malborghetto-Valbruna and Vipiteno-Sterzing, in the Italian Alps. In both of them, mitigation works have been completed or planned, yet following completely different approaches especially in terms of responses of residents and involvement of local authorities. In Malborghetto-Valbruna an 'interventionist' approach (i.e. leaning towards a top down/technocratic decision process) was used to make decisions after the flood event that affected the municipality in the year 2003. In Vipiteno-Sterzing, a 'participatory' approach (i.e. leaning towards a bottom-up/inclusive decision process) was applied: decisions about risk mitigation measures were made by submitting different projects to the local citizens and by involving them in the decision making process. The analysis of the two case studies presented in the paper is grounded on the results of two research projects. Structured and in-depth interviews, as well as questionnaire surveys were used to explore residents' and local authorities' orientations toward flood risk mitigation. Also a SWOT analysis (Strengths, Weaknesses, Opportunities and Threats) involving key stakeholders was used to better understand the characteristics of the communities and their perception of flood risk mitigation issues. The results highlight some key differences between interventionist and participatory approaches, together with some implications of their adoption in the local context. Strengths and weaknesses of the two approaches, as well as key challenges for the future are also discussed.
Bianchizza, C.; Del Bianco, D.; Pellizzoni, L.; Scolobig, A.
Full Text Available This paper defends the idea that a participatory approach is a suitable method for basin planning integrating both water and land aspects. Assertions made are based on scientific literature review and corroborated by field experience and research carried out in the Limpopo River basin, a transboundary river located in southern Africa which is affected by periodical floods. The paper explains how a basin strategic plan can be drafted and disaster risk reduction strategies derived by combining different types of activities using a bottom-up approach, despite an institutional context which operates through traditional top-down mechanisms. In particular, the “Living with Floods” experience in the lower Limpopo River, in Mozambique, is described as a concrete example of a disaster adaptation measure resulting from a participatory planning exercise. In conclusion, the adopted method and obtained results are discussed and recommendations are formulated for potential replication in similar contexts of the developing world.
Morgan De Dapper
Full Text Available Within the Participatory Design community as well as the Computer Supported Cooperative Work tradition, a lot of effort has been put into the question of letting field studies inform design. In this paper, we describe how game-like approaches can be used as a way of exploring a practice from a design point of view. Thinking of ethnographic fieldwork as a base for sketching, rather than descriptions, creates openness that invites collaborative authoring. The concept of playful collaborative exploration suggests certain ways of interacting with material from field studies so that it becomes a design material for an open-ended design process. We have carried out field studies, transformed the field material into design material, and set up a design game for working with it together with the people we followed in the field. The design game builds on an idea about the power of narratives and the benefits of constraining rules. We believe that this framework for collaboration opens for playfulness, experimentation, and new design ideas.
Public participation, now mainstreamed as a desirable goal in research and policy has a wide variety of different models, classifications, approaches, tools, mechanisms and processes that are utilized across science and social science utilise. Demands for public participation in environmental issues have found particular resonance within recent European water legislation, specifically the Water Framework Directive (2000/60/EC). In the UK River Basin Plans are under the jurisdiction of the Environment Agency (EA) and the practice of their management is currently being trialed through the EA's management of 10 trial catchments. In these trials, the Environment Agency has outlined its wish to explore improved ways of engaging with people so as to develop shared understandings of problems within catchments. In this work, we report on project outcomes funded under the Rural Economy and Land Use Program (Relu) in which we worked with the Lune Rivers Trust. The project was the first in the UK to use a Participatory Action Research (PAR) approach to understanding and creating tools to address problems in river catchments. PAR is a distinct approach to participation because it is driven by participants (people who have a stake in the issue being researched) rather than an outside sponsor, funder or academic (although they may be invited to help); it offers a democratic model of who can produce, own and use knowledge; it is collaborative at every stage, involving discussion, pooling skills and working together; and it is intended to result in some action, change or improvement on the issue being researched, towards more socially and environmentally just outcomes. Both the project and the tools we coproduced resonate very strongly with current policy objects for river catchments as outlined above. We argue that PAR has particular resonance with the above focus of catchment management particularly in light of future uncertainties with climate change. As such, it offers a critical reflection on approaches to catchment management that characterize themselves as 'participatory'.
Whitman, G.; Pain, R.
This article presents participatory action synthesis as a new approach to qualitative synthesis which may be used to facilitate the promotion and use of qualitative research for policy and practice. The authors begin by outlining different forms of qualitative research synthesis and then present participatory action synthesis, a collaborative…
Wimpenny, Katherine; Savin-Baden, Maggi
Water has always been held in high respect by the Apsaálooke (Crow) people of Montana. Tribal members questioned the health of the rivers and well water due to visible water quality deterioration and potential connections to illnesses in the community. Community members initiated collaboration among local organizations, the Tribe and academic partners, resulting in genuine community based participatory research. The article shares what we have learned as tribal members and researchers about ...
Cummins, C.; Doyle, J.; Kindness, L.; Lefthand, M. J.; Bear Don T Walk, U. J.; Bends, A.; Broadaway, S. C.; Camper, A. K.; Fitch, R.; Ford, T. E.; Hamner, S.; Morrison, A. R.; Richards, C. L.; Young, S. L.; Eggers, M. J.
Full Text Available The strength of community-engaged research has been well documented in public health literature. It is recognised as a useful approach for eliminating health disparities by linking research and practice. While the framework of community-engaged research encompasses a broad range of research collaborations, community-based participatory research (CBPR places most emphasis on involving the community as a full, equitable partner throughout the collaboration. Despite growing interest in and demand for community-university partnerships, less attention is given to the issue of partnership sustainability. The purpose of this article is to present the challenges faced in sustaining a community-university partnership when conducting a CBPR project with an elderly Chinese population in Chicago’s Chinatown. Lessons and strategies learned from the cultural and linguistic complexities of the Chinese community are also detailed. In addition, based on a well-accepted sustainability conceptual framework, we reflect on the initial stage, mid-term actions and long-term goals of developing partnership sustainability. Working with the Chinese community required trust and respect for its unique cultural values and diversity. The cultural, social and environmental contexts within which the partnership operated served as critical forces for long-term sustainability: a culturally sensitive approach is instrumental in sustaining community-university partnership. Also discussed are the significant implications for evidence-based, impact-driven partnerships to develop culturally appropriate strategies to meet the needs of diverse populations. Keywords Community-based participatory research, community health partnerships, health promotion, Chinese Americans, ageing
Full Text Available Engagement in collaborative learning and knowledge building activities is still a big challenge for many workplace-learning designers. Especially in highly competitive environments people might be reluctant to give away too much of their tacit knowledge. A feeling of ownership and an involvement of the individual in the planning of the learning activities can be important motivational factors. In an international research project called IntelLEO – Intelligent Learning Extended Organization we intend to follow a participatory design approach involving individual workers from the very beginning of the development process. The planned user participation will range from the first conceptual design phase through the different development stages until the final validation of the system. Our hypothesis is that this involvement will increase the motivation of the individuals for collaborative learning and knowledge building activities.
Recommendations for reducing racial and ethnic disparities in health and health care suggest that clinical researchers try community-based participatory research (CBPR). While the body of literature discussing the ethics of CBPR continues to grow, we are not aware of a specific attempt to provide a structure for analyzing the ethics of clinical research using a CBPR approach. We adapt a framework developed by Emanuel, Wendler, and Grady articulating seven requirements for ethical clinical research to clinical research using a CBPR approach. We incorporate findings from the literature on CBPR and identify some of the ethical and practical challenges from our experiences working in CBPR as academics and community members. We find Emanuel et al's framework easily adaptable for CBPR. Six of the requirements are flexible enough to accommodate the needs of CBPR; they are: social or scientific value, scientific validity, fair subject selection, favorable risk-benefit ratio, independent review, and informed consent. We suggest that the seventh requirement, respect for potential and enrolled participants, be amended to respect for potential and enrolled participants, community, and research partners to acknowledge that separate attention should be paid to relationships on these three levels. This adapted framework can guide community-academic partnerships as they evaluate whether to proceed with potential clinical research studies and as they work to enhance the ethics of clinical research studies using a CBPR approach. PMID:16681135
Chen, Donna T; Jones, Loretta; Gelberg, Lillian
Full Text Available Participatory-action research encourages the involvement of all key stakeholders in the research process and is especially well suited to mental health research. Previous literature outlines the importance of engaging stakeholders in the development of research questions and methodologies, but little has been written about ensuring the involvement of all stakeholders (especially non-academic members in dissemination opportunities such as publication development. The Article Idea Chart was developed as a specific methodology for engaging all stakeholders in data analysis and publication development. It has been successfully utilised in a number of studies and is an effective tool for ensuring the dissemination process of participatory-action research results is both inclusive and transparent to all team members, regardless of stakeholder group.Keywords: participatory-action research, mental health, dissemination, community capacity building, publications, authorship
Community-based participatory research (CBPR) is increasingly being used to better understand and improve the health of diverse communities. A key strength of this research orientation is its adaptability to community contexts and characteristics. To date, however, few studies explicitly discuss adaptations made to CBPR principles and processes in response to community context and partners' needs. Using data from our CBPR study, the San Francisco Chinatown Restaurant Worker Health and Safety Project, and drawing from literature on immigrant political incorporation, we examine the links between the contexts of the Chinese immigrant worker community, adaptations made by our collaborative, and study outcomes. In particular, we explore the concepts of contexts of reception and participatory starting points, which may be especially relevant for partnerships with immigrant communities whose members have historically had lower rates of civic and political participation in the US. We discuss contextual findings such as worker partner accounts of language barriers, economic and social marginalization, and civic skills and participation, as well as subsequent adaptations made by the partnership. We also describe the relative effectiveness of these adaptations in yielding equitable participation and building partners' capacity. We conclude by sharing lessons learned and their implications for CBPR and partnerships with immigrant communities more broadly. PMID:23370942
Chang, Charlotte; Salvatore, Alicia L; Lee, Pam Tau; Liu, Shaw San; Tom, Alex T; Morales, Alvaro; Baker, Robin; Minkler, Meredith
Gender-based violence is pervasive in South African society and is often seen as the driver of HIV, particularly affecting youth. Rural KwaZulu-Natal, where we have been working in a district in an on-going university-school partnership, is noted as the epicentre of the epidemic. The two secondary schools in this study were therefore conveniently chosen while the 30 Grade 9 learners, 7 boys and 23 girls between the ages of 13-16, were purposively selected. The use of participatory visual meth...
Naydene de Lange; Mart-Mari Geldenhuys
This qualitative study researches a participatory action research project undertaken by 12 history teachers in two urban school districts. In this project middle and high school teachers were engaged in a yearlong action research project that involved them in implementing literacy strategies within their classrooms and reflecting on the use and…
D'warte, Jacqueline Ann
The present study seeks to extend current thinking on participatory research by actively engaging 36 young children with and without a known disability in all aspects of a research project. Matched according to age and gender, six dyads of children attending four early years settings in Northern Ireland chose the research question, selected the…
Gray, Colette; Winter, Eileen
Full Text Available This article is part of the series on African primary care research and focuses on participatory action research. The article gives an overview of the emancipatory-critical research paradigm, the key characteristics and different types of participatory action research. Following this it describes in [...] detail the methodological issues involved in professional participatory action research and running a cooperative inquiry group. The article is intended to help students with writing their research proposal.
To address disproportionately high rates of diabetes morbidity and mortality in some of Chicago's medically underserved minority neighborhoods, a group of community residents, medical and social service providers, and a local university founded the Chicago Southeast Diabetes Community Action Coalition, a Centers for Disease Control and Prevention REACH 2010 Initiative. A community-based participatory action research model guided coalition activities from conceptualization through implementation. Capacity building activities included training on: diabetes, coalition building, research methods, and action planning. Other activities sought to increase coalition members' understanding of the social causes and potential solutions for health disparities related to diabetes. Trained coalition members conducted epidemiologic analyses, focus groups, a telephone survey, and a community inventory. All coalition members participated in decisions. The participatory process led to increased awareness of the complexities of diabetes in the community and to a state of readiness for social action. Data documented disparities in diabetes. The participatory action research approach (a) encouraged key stakeholders outside of the health care sector to participate (e.g., business sector, church groups); (b) permitted an examination of the sociopolitical context affecting the health of the community; (c) provided an opportunity to focus on preventing the onset of diabetes and its complications; (d) increased understanding of the importance of community research in catalyzing social action aimed at community and systems change and change among change agents. PMID:12815078
Giachello, Aida L; Arrom, Jose O; Davis, Margaret; Sayad, Judith V; Ramirez, Dinah; Nandi, Chandana; Ramos, Catalina
This article reports on how one teacher education program utilized a Learn and Serve America grant to embed service-learning experiences into its practices. Included are narrative reflections on how the program faculty developed a community-based, participatory approach to service-learning in order to act as a responsive partner to the needs of…
Tinkler, Alan; Tinkler, Barri; Gerstl-Pepin, Cynthia; Mugisha, Vincent M.
Background: Since its initiation in 2005, the Harvard Personal Genome Project has enrolled thousands of volunteers interested in publicly sharing their genome, health and trait data. Because these data are highly identifiable, we use an ‘open consent’ framework that purposefully excludes promises about privacy and requires participants to demonstrate comprehension prior to enrollment. Discussion Our model of non-anonymous, public genomes has led us to a highly participatory model of resea...
Ball, Madeleine P.; Bobe, Jason R.; Chou, Michael F.; Clegg, Tom; Estep, Preston W.; Lunshof, Jeantine E.; Vandewege, Ward; Zaranek, Alexander Wait; Church, George M.
Historically, consumers of mental health services have not been given meaningful roles in research and change efforts related to the services they use. This is quickly changing as scholars and a growing number of funding bodies now call for greater consumer involvement in mental health services research and improvement. Amidst these calls, community-based participatory research (CBPR) has emerged as an approach which holds unique promise for capitalizing on consumer involvement in mental health services research and change. Yet, there have been few discussions of the value added by this approach above and beyond that of traditional means of inquiry and enhancement in adult mental health services. The purpose of this paper is to add to this discussion an understanding of potential multilevel and multifaceted benefits associated with consumer-involved CBPR. This is accomplished through presenting the first-person accounts of four stakeholder groups who were part of a consumer-involved CBPR project purposed to improve the services of a local community mental health center. We present these accounts with the hope that by illustrating the unique outcomes associated with CBPR, there will be invigorated interest in CBPR as a vehicle for consumer involvement in adult mental health services research and enhancement. PMID:25245601
Case, Andrew D; Byrd, Ronald; Claggett, Eddrena; DeVeaux, Sandra; Perkins, Reno; Huang, Cindy; Sernyak, Michael J; Steiner, Jeanne L; Cole, Robert; LaPaglia, Donna M; Bailey, Margaret; Buchanan, Candace; Johnson, Avon; Kaufman, Joy S
This study focuses on Kenyan student-teachers' professional learning and development in health education in a participatory action research project conducted in one Kenyan teacher training college. The aim was to explore the potential of participatory action research to instigate change in student-teachers' health education practices in…
Dahl, Kari Kragh Blume
While past literature has explored school engagement in older students, there is less research for younger children specifically, and very little which engages children themselves in the research process. This paper provides insight into school engagement for academically at-risk students in the second year of school through a participatory…
O'Toole, Nadia; Due, Clemence
Community-based participatory research (CBPR) increasingly is being used to study and address environmental justice. This article presents the results of a cross-site case study of four CBPR partnerships in the United States that researched environmental health problems and worked to educate legislators and promote relevant public policy. The…
Minkler, Meredith; Vasquez, Victoria Breckwich; Tajik, Mansoureh; Petersen, Dana
This study proposes participatory action research as a signature pedagogy for principal preparation programs. Signature pedagogies bring professional knowledge and core values together in distinctive teaching and learning arrangements. A rationale and learning results are presented that describe key components of action research intended to help…
Sappington, Neil; Baker, Paul J.; Gardner, Dianne; Pacha, Joe
Purpose: Scholars agree that evaluation of participatory action research is inherently valuable; however there have been few attempts at evaluating across methods and across interventions because the perceived success of a method is affected by context, researcher skills and the aims of the participants. This paper describes the systematic…
Home, Robert; Rump, Niels
Participatory action research (PAR) can be used in the health professions to redefine their roles. This study investigated a small health professional group, the members of The Chiropractic Association Singapore (TCAS), by using a PAR method; researchers and participants gained insights into the self-regulation of a health profession. A…
Sheppard, Lorraine A.; Jorgensen, Anna Maria S.; Crowe, Michael J.
Community-based participatory research is predicated on building partnerships that tackle important issues to the community and effectively improve these issues. Community-based participatory research can also be an empowering experience, especially for children. This article describes a university-community partnership in which students at a low-income middle school worked to improve the quality of the cafeteria food provided to the 986 students eligible for free and reduced price lunches. The project led to menu changes, improved communication between youth, school administrators, and district staff, and enabled youth to enact school improvements that were beneficial for their health. PMID:25423246
Reich, Stephanie M; Kay, Joseph S; Lin, Grace C
This study tries to put forward the argument that, much as the Participatory Approach has in theory been praised and given high international prominence as a possible solution to addressing community development issues, its practical application still leaves a lot to be desired. Practically, it remains to be seen as an approach whose islands of knowledge continue to be unknown, some invisible and yet others denied from the mainstream of practice. The paper makes this observation from a study ...
Daniel Wandera Clief Naku; Sam Afrane
We consider the work of research ethics boards and funding models for research that at times are incompatible with the relationship building required for feminist participatory action research with a disability community. We explore the barriers that emerged for university- and community-based partners as they asserted individual and collective identities, and negotiated boundaries, access, and power relations in the process of designing and conducting research. This critical reflection contributes to our understanding of the structures of academic research funding, ethics approval, and how problematic conceptualizations of vulnerability embedded in the Tri-Council Policy Statement and research ethics board practices impact on relationship building and the research process. Recommendations for change will be helpful to researchers studying disability, those using participatory action research, and individuals serving on ethics review boards. PMID:24872327
Gustafson, Diana L; Brunger, Fern
Full Text Available Worldwide interest in the study of participatory journalism has been growing in recent years and it is generally accepted that journalistic practices are undergoing considerable transformations as a result of this expanding conversational dimension (Gillmor, 2004; Bowman and Willis 2003; Brums, 2005; Deuze et al. 2006; Rutigliano, Hyun and Jeong, 2007 brought forwards by mechanisms that facilitate production and circulation of information through different participatory communication systems, such as forums, blogs, and sites of the open source type. In this study we produce a preliminary survey of thematic concentration and methodologies of research on blogs and other interactive models of journalistic publication in recent Brazilian contributions in this area.
Jan Alyne Barbosa Silva
Citizen science, participatory research, and volunteer monitoring all describe research where data are collected by non-professional collaborators. These approaches can allow for research to be conducted at spatial and temporal scales unfeasible for professionals, especially in current budget climates. Mobile computing apps for data collection,…
Drill, Sabrina L.
Exploring the importance of ethical issues in the conduct of community-based participatory research (CBPR) continues to be an important topic for researchers and practitioners. This article uses the Beyond Sabor Project, a CBPR project implemented in the Lower Rio Grande Valley, as a case example to discuss ethical issues such as the importance of increasing community involvement in research, ensuring that communities benefit from the research, sharing leadership roles, and sensitive issues r...
Bastida, Elena M.; Tseng, Tung-sung; Mckeever, Corliss; Jack, Leonard
This study questions whether or not participatory action research is an effective and practical method for increasing learning transfer of recovery-based principles. The participants (N = 250) were ethnically and educationally diverse clinicians, in an urban state mental health institute. The Self-Assessment of Recovery-Based Behaviors survey ( n…
Barish, Diane J.
In this study, farmers were engaged in a participatory research project and their attitudes evaluated. The purpose was to identify the characteristics of farmers who are favourably predisposed towards meaningful participation in the process. Several cover crops were tested for possible use in the management of watergrass ("Commelina diffusa"), a…
Ganpat, Wayne G.; Isaac, Wendy-Ann P.; Brathwaite, Richard A. I.; Bekele, Isaac
Community-based participatory research (CBPR) is being used increasingly to address health disparities and complex health issues. The authors propose that CBPR can benefit from a systems science framework to represent the complex and dynamic characteristics of a community and identify intervention points and potential "tipping points." Systems…
BeLue, Rhonda; Carmack, Chakema; Myers, Kyle R.; Weinreb-Welch, Laurie; Lengerich, Eugene J.
Through Participatory Action Research (PAR), the present study investigated psychological and social aspects of women's experiences at a diverse Catholic college in California (CU). The study sought to better understand female students' perspectives about the environment for women on campus and to develop actionable outcomes to improve…
Community engagement is an on-going, arduous, and necessary process for developing effective health promotion programs. The challenges are amplified when the particular health issue or research question is not prominent in the consciousness of the targeted community. In this paper, we explore the community-based participatory research (CBPR) model as a means to negotiate a mutual agenda between communities and researchers.
Mosavel, Maghboeba; Simon, Christian; Stade, Debbie; Buchbinder, Mara
This paper deals with the comparative analysis of different policy options for water resources management in three south-eastern Mediterranean countries. The applied methodology follows a participatory approach throughout its implementation and is supported by the use of three different software packages dealing with water allocation budget, water quality simulation, and Multi Criteria Analysis, respectively. The paper briefly describes the general objectives of the SMART project and then pre...
Giupponi, Carlo; Mysiak, Jaroslav; Crimi, Jacopo
The past two decades have witnessed a rapid proliferation of community-based participatory research (CBPR) projects. CBPR methodology presents an alternative to traditional population-based biomedical research practices by encouraging active and equal partnerships between community members and academic investigators. The National Institute of Environmental Health Sciences (NIEHS), the premier biomedical research facility for environmental health, is a leader in promoting the use of CBPR in in...
O Fallon, Liam R.; Dearry, Allen
Full Text Available Consistent with the global demand for palm oil, the intensified upstream harvesting activities of oil palms’ fresh fruit bunches, despite the harvesters evidences of various ergonomics risk factors leading to musculoskeletal disorders should be a cause for concern. Thus, this study describes the effectiveness of a modified and locally adapted Participatory Action-Oriented Training intervention program in improving the working environment of the harvesters. A training program modified and customized to the harvesters’ working in oil palm plantation consist of 3 primary instrument (awareness video, interactive lecture and action checklist with 3 reinforcing activities (to increase knowledge, enhance understanding and practical application. Based on the result of post-intervention assessment, the self-reported prevalence of MSD and KAP score among Intervention Group (IG did not significantly differ from Control Group (CG. Instead of decreasing, the prevalence of MSD in the past 12 months and 7 days increased within IG. Qualitative findings in this research show that the negative psychosocial and organizational climate has severely affected the implementation of PAOT rendering the effect of the intervention approach. The interventions were ineffective on the IG as this study suffers from various situational barriers as obstacles to benefit the full extent of PAOT advantages.
Ng Yee Guan
This paper describes the use of a participatory action research model to teach undergraduate social work research and statistics. Strategies of the model include (1) integration with social work education, (2) policy analysis, (3) literature review, (4) collaboration with practitioners, (5) collaboration with the target population through…
Reese, Donna J.
Community–academic partnerships have demonstrated potential for studying and improving community and environmental health, but only recently have their policy impacts been systematically studied. This case study highlights the evolution, research, and policy processes and outcomes of a community based participatory research (CBPR) partnership that has had multilevel impacts on health policy concerning diesel bus emissions and related environmental justice issues. The partnership between Wes...
Minkler, Meredith; Va?squez, Victoria Breckwich; Shepard, Peggy
Community-based participatory research (CBPR) offers great potential for increasing the impact of research on reducing cancer health disparities. This article reports how the Community Outreach Core (COC) of the Meharry-Vanderbilt-Tennessee State University (TSU) Cancer Partnership has collaborated with community partners to develop and implement CBPR. The COC, Progreso Community Center, and Nashville Latino Health Coalition jointly developed and conducted the 2007 Hispanic Health in Nashvill...
Hull, Pamela C.; Canedo, Juan R.; Reece, Michelle C.; Lira, Irma; Reyes, Francisco; Garcia, Erandi; Juarez, Paul; Williams, Elizabeth; Husaini, Baqar A.
After China’s collective forest right system reform, cooperation organizations have played an important role in the development of community forestry. In order to analyze the demands and attitudes of stakeholders of community forests, a participatory approach which included brainstorming, material collection, PRA tools, semi-structured interviews and questionnaire surveys, was used in a forest management survey involving four village cases. According to the application of the participatory ...
Yilei Hou; Jing Wu; Longbo Ma; Yali Wen
Over the past several decades there has been growing evidence of the increase in incidence rates, morbidity, and mortality for a number of health problems experienced by children. The causation and aggravation of these problems are complex and multifactorial. The burden of these health problems and environmental exposures is borne disproportionately by children from low-income communities and communities of color. Researchers and funding institutions have called for increased attention to the complex issues that affect the health of children living in marginalized communities--and communities more broadly--and have suggested greater community involvement in processes that shape research and intervention approaches, for example, through community-based participatory research (CBPR) partnerships among academic, health services, public health, and community-based organizations. Centers for Children's Environmental Health and Disease Prevention Research (Children's Centers) funded by the National Institute of Environmental Health Sciences and U.S. Environmental Protection Agency were required to include a CBPR project. The purpose of this article is to provide a definition and set of CBPR principles, to describe the rationale for and major benefits of using this approach, to draw on the experiences of six of the Children's Centers in using CBPR, and to provide lessons learned and recommendations for how to successfully establish and maintain CBPR partnerships aimed at enhancing our understanding and addressing the multiple determinants of children's health. PMID:16203263
Israel, Barbara A; Parker, Edith A; Rowe, Zachary; Salvatore, Alicia; Minkler, Meredith; López, Jesús; Butz, Arlene; Mosley, Adrian; Coates, Lucretia; Lambert, George; Potito, Paul A; Brenner, Barbara; Rivera, Maribel; Romero, Harry; Thompson, Beti; Coronado, Gloria; Halstead, Sandy
Based on a Bakhtinian approach negotiations of knowledge in a workshop with health professionals at two psychiatric wards were analyzed. Our analysis reveals that there is a mismatch between the dialogical context we as participatory-oriented researchers want to invoke and the monological context we in fact co-produce in-interaction. The analysis shows that there appears to be two major reasons for this undesired nature of the conversations. First, all participants (including us) orient to a formal and monological learning context in which there seems to be a hierarchical relationship between the participants in the workshop relating primarily to level of education. Secondly, we confuse the participants in the workshop because there is a mismatch between our orientation to a formal learning context as described above and our search for their local, concrete and lived experiences - i.e. a situated knowledge. The analysis indicates that this mismatch potentially adds to the confusion because we on the one hand meet the practitioners’ expectations to us as researchers when we invoke a more formal learning context. On the other hand we do probably not meet their expectations when we are looking for sensitive and contextualized knowledge because a representational and de-contextualized knowledge form is closely linked to a more formalized learning context.
Olesen, Birgitte Ravn; Nordentoft, Helle Merete
Preventing cancer, downstaging disease at diagnosis, and reducing mortality require that relevant research findings be translated across scientific disciplines and into clinical and public health practice. Interdisciplinary research focuses on using the languages of different scientific disciplines to share techniques and philosophical perspectives to enhance discovery and development of innovations; (i.e., from the "left end" of the research continuum). Community-based participatory research (CBPR), whose relevance often is relegated to the "right end" (i.e., delivery and dissemination) of the research continuum, represents an important means for understanding how many cancers are caused as well as for ensuring that basic science research findings affect cancer outcomes in materially important ways. Effective interdisciplinary research and CBPR both require an ability to communicate effectively across groups that often start out neither understanding each other's worldviews nor even speaking the same language. Both demand an ability and willingness to treat individuals from other communities with respect and understanding. We describe the similarities between CBPR and both translational and interdisciplinary research, and then illustrate our points using squamous cell carcinoma of the esophagus as an example of how to deepen understanding and increase relevance by applying techniques of CBPR and interdisciplinary engagement. PMID:19336548
Hebert, James R; Brandt, Heather M; Armstead, Cheryl A; Adams, Swann A; Steck, Susan E
The National Empowerment Project is an innovative Aboriginal-led community empowerment project that has worked with eight Aboriginal and Torres Strait Islander communities across Australia over the period 2012-13. The aim of the Project was to develop, deliver and evaluate a program to: (1) promote positive social and emotional well-being to increase resilience and reduce the high reported rates of psychological distress and suicide among Aboriginal and Torres Strait Islander people; and (2) empower communities to take action to address the social determinants that contribute to psychological distress, suicide and self-harm. Using a participatory action research approach, the communities were supported to identify the risk factors challenging individuals, families and communities, as well as strategies to strengthen protective factors against these challenges. Data gathered during Stage 1 were used to develop a 12-month program to promote social and emotional well-being and build resilience within each community. A common framework, based on the social and emotional well-being concept, was used to support each community to target community-identified protective factors and strategies to strengthen individual, family and community social and emotional well-being. Strengthening the role of culture is critical to this approach and marks an important difference between Aboriginal and Torres Strait Islander and non-Indigenous mental health promotion and prevention activities, including suicide prevention. It has significant implications for policy makers and service providers and is showing positive impact through the translation of research into practice, for example through the development of a locally run empowerment program that aims to address the social determinants of health and their ongoing negative impact on individuals, families and communities. It also provides a framework in which to develop and strengthen culture, connectedness and foster self-determination, through better-informed policy based on community-level holistic responses and solutions as opposed to an exclusive focus on single-issue deficit approaches. PMID:25310135
Cox, Adele; Dudgeon, Pat; Holland, Christopher; Kelly, Kerrie; Scrine, Clair; Walker, Roz
Evidence shows that the Roma people engage less in democratic processes than the majority population. Rather than being involved in the planning of measurements and proposals, the Roma people have been treated as a helpless group in need of expert support from the authorities. To enable Roma people to take a leading role in their integration process a 2-year action research was implemented in 2010-2012. The idea was to strengthen the Roma Peoples’ critical health literacy which allows them to analyze and apply health information to oppose the forces that are holding them oppressed and to take better control over their life situation. The objective of this paper is to discuss methodological issues based on experiences of the use of participatory research approach in increasing health literacy. Methods: The core of the intervention was ‘training of trainers’ of a group of Roma people from western Sweden. They organized lectures on Roma issues for the civil servants and mobilized the Roma community for social action. The data, consisting of observational notes, reports, and participant interviews, were analysed qualitatively. Results: The intervention created an arena for dialogue between the Roma people and the public service employees. Their mutual viewpoints improved as their insight into each other’s life circumstances increased. However, rigidity and an inability to see the character of the emancipatory approach of the project by the authorities created difficulties for its implementation. Conclusions: The Roma participants’ strengthened critical health literacy improved their health chances and possibilities for participation in working life and decision making on Roma issues. The existing system of rules for project operations clashed with the character of the “soft” bottom-up approach of the project. This created situations where the project spent more time working with the rules of the authorities than with the purpose of the project.
Eklund Karlsson, Leena; Crondahl, Kristine
Keywords: Land use analysis, GIS, remote sensing, yield gaps, regression modeis, crop management improvement, crop selection, conservation, multiple goal optimisation model, stakeholder communication matrix, fuzzy modelling, soft systems methodologyRemotely-sensed data coupled with GIS-derived biophysical data have been key components in land use studies during the past decades. Natural Resource Managers relied on biophysically-oriented 'top down' approaches for the design of land and water m...
Nidumolu, U. B.
This work was undertaken in order to develop methods and techniques for evaluating systematically and comprehensively protective action strategies in the case of a nuclear or radiation emergency. This was done in a way that the concerns and issues of all key players related to decisions on protective actions could be aggregated into decision-making transparently and in an equal manner. An approach called facilitated workshop, based on the theory of Decision Analysis, was tailored and tested i...
Academic success, and the economic well-being it usually affords, is closely tied to math achievement. Key national indicators reveal decades of underperformance of African American males in mathematics. Scholars argue that the schooling experiences of Black males are highly-racialized, are often bereft of significance, and result in academic and social marginalization. The author reports findings from an eight-month participatory action research (PAR) project involving seven high-school aged...
Terry, Clarence L.
This article positions participatory action learning and action research (PALAR) as a preferred methodology for community-university partnerships to achieve a holistic outcome that benefits the common interest. Evidence for this claim is illustrated through case studies of two community engagement programs, one in South Africa and the other in Australia. The South African study explains how relationships, reflection and recognition (the three R’s of PALAR) are important elements that promot...
Judith Kearney; Lesley Wood; Ortrun Zuber-Skerritt
Although informal waste collectors are sometimes organized in cooperatives, their working conditions remain extremely precarious and unsafe. The paper discusses the findings of action oriented, participatory qualitative research with several recycling groups in the metropolitan region of São Paulo, Brazil. During workshops with the recyclers mapping, acting, and drawing methods helped reveal health hazards from collection, separation and transportation of recyclable materials. Major health p...
Felipone, Sonia M. N.; Dos Santos, Tereza L. F.; Pontuschka, Ni?dia N.; Baeder, Angela M.; Jutta Gutberlet
HIV/AIDS is having a devastating impact on South Africa and particularly on poor communities. Empowerment of communities has been identified as an important step towards mitigating the consequences and helping communities to overcome the challenges presented. Participatory Action Research (PAR) has been identified as a useful methodology for the purpose of facilitating empowerment. This study explores the challenges involved in implementing PAR in the context of HIV/AIDS and poverty. In this ...
Rosenthal, W. A.; Khalil, D. D.
Abstract Background Community assessment is a core function of public health. In such assessments, a commitment to community participation and empowerment is at the heart of the WHO European Healthy Cities Network, reflecting its origins in health for all and the Ottawa Charter for Health Promotion. This study employs a participation and empowerment plan in order to conduct community assessment. Methods The method of participatory action research (PAR) was used. The study was carried out in a...
Ahari Saeid; Habibzadeh Shahram; Yousefi Moharram; Amani Firouz; Abdi Reza
Collaboratively, the nutritional health problems of the Lower Mississippi Delta (LMD) region were examined and opportunities identified for conducting research interventions. To combat the nutritional health problems in the LMD, community residents yielded to a more comprehensive and participatory approach known as community-based participatory research (CBPR). Community residents partnered with academic researchers and other organizational entities to improve the overall quality of diet and health in their respective communities using CBPR. The collaborative work in the LMD focused on interventions conducted in each of three specific communities across three states: Marvell, Arkansas (Marvell NIRI), and its surrounding public school district; Franklin Parish in Louisiana (Franklin NIRI); and the city of Hollandale, Mississippi (Hollandale NIRI). This paper examined some of the research interventions conducted in Franklin, Hollandale, and Marvell NIRI respectively, how leadership emerged from each of these communities, and lessons learned as a result of the CBPR model. PMID:22073526
Kennedy, Betty M; Prewitt, T Elaine; McCabe-Sellers, Beverly; Strickland, Earline; Yadrick, Kathy; Threadgill, Paula; Champagne, Catherine M; McGee, Bernestine B; Bogle, Margaret L
The Environmental Health Research Division (EHRD) of the First Nations and Inuit Health Branch, Health Canada conducts science-based activities and research with Canadian Indigenous communities in areas such as climate change adaptation, environmental contaminants, water quality, biomonitoring, risk assessment, health impact assessment, and food safety and nutrition. EHRD's research activities have been specifically designed to not only inform Health Canada's policy decision-makers but as well, Indigenous community decision-makers. This paper will discuss the reasons why Indigenous community engagement is important, what are some of the barriers preventing community engagement; and the efforts by EHRD to carry out community-based participatory research activities with Indigenous peoples.
Virtues and challenges in using the community based participatory research (cbpr) approach by the delta nutrition research initiative (delta niri) in developing rural community walking studies to lower obesity risks
Purpose: To discuss the CBPR approach in development, implementation, and evaluation of rural community walking and nutrition studies. Background: The current obesity epidemic, especially among rural and low-income minority populations, presents challenges in designing interventions that are effec...
Through a series of participatory activities within a product development project, we analyse how these activities influence the design process and how new meaning is created through the interaction of crossing intentions (Larsen, 2010). By focusing on a specific theme in the project we reflect on how participatory activities are a key part in establishing important interactions between participants resulting in new design approaches. At other times participatory activities become a part of blurring these new approaches when performing new participatory activities towards developing new iterations of the concept in focus. We conclude that participatory activities can play a key part in the uptake of user knowledge but that a participatory innovation approach of establishing collaboration between crossing intentions can as well be considered provocative and as such, result in resistance and exclusion of potential project partners.
Gottlieb, Frederik; SØrensen, Vicki
This paper addresses the challenge of engaging civil society stakeholders in the development process of ambitious mitigation scenarios that are based on formal energy system modeling, allowing for the explicit attachment of normative considerations to technology-focused mitigation options. It presents the definition and model results for a set of mitigation scenarios for Germany that achieve 85% CO2 emission reduction in 2050 relative to 1990. During consecutive dialogues, civil society stakeholders from the transport and electricity sector framed the definition of boundary conditions for the energy-economy model REMIND-D and evaluated the scenarios with regard to plausibility and social acceptance implications. Even though the limited scope of this research impedes inferential conclusions on the German energy transition as a whole, it demonstrates that the technological solutions to the mitigation problem proposed by the model give rise to significant societal and political implications that deem at least as challenging as the mere engineering aspects of innovative technologies. These insights underline the importance of comprehending mitigation of energy-related CO2 emissions as a socio-technical transition embedded in a political context. - Highlights: ? Preferences of German civil society stakeholders are elicited in dialogues. ? Three scenarios represent likely, desirable and controversial key developments. ? A carbon lock-in from freipments. ? A carbon lock-in from freight transport and coal electrification is deemed likely. ? Stakeholders advocate major paradigm shifts for resolving the carbon lock-in. ? Institutional and societal factors are decisive for achieving ambitious mitigation.
Objective. To describe the design of the developmental project Healthy Future that aims to implement a new evidence-based program for the prevention of childhood obesity and collaboration and sharing of work between specialist and community health care professionals in parts of a county in western Norway. Methods. Comprehensive participatory planning and evaluation (CPPE) process as an action-oriented research approach was chosen, using mixed data sources, mixed methods, and triangulation. Di...
Øen, Gudbjørg; Stormark, Kjell Morten
Drama for Schools (DFS) is an arts integration professional development program rooted in critical pedagogy and constructivism that emphasizes partnerships between school districts and a major research university. As a part of the research initiative embedded in this professional development program, DFS began an Arts integration Research Teacher…
Cawthon, Stephanie W.; Dawson, Kathryn M.; Judd-Glossy, Laura; Ihorn, Shasta
Highlights: ? Life Cycle Assessment is still not fully operational in waste management at local scale. ? Credibility of WM LCAs is negatively affected by assumptions and lack of transparency. ? Local technical-social-economic constraints are often not reflected by WM LCAs. ? A participatory approach can increase acceptability and credibility of WM LCAs. ? Results of a WM LCA can hardly ever be generalised, thus transparency is essential. - Abstract: The paper summarises the main results obtained from two extensive applications of Life Cycle Assessment (LCA) to the integrated municipal solid waste management systems of Torino and Cuneo Districts in northern Italy. Scenarios with substantial differences in terms of amount of waste, percentage of separate collection and options for the disposal of residual waste are used to discuss the credibility and acceptability of the LCA results, which are adversely affected by the large influence of methodological assumptions and the local socio-economic constraints. The use of site-specific data on full scale waste treatment facilities and the adoption of a participatory approach for the definition of the most sensible LCA assumptions are used to assist local public administrators and stakeholders showing them that LCA can be operational to waste management at local scale.
Highlights: Black-Right-Pointing-Pointer Life Cycle Assessment is still not fully operational in waste management at local scale. Black-Right-Pointing-Pointer Credibility of WM LCAs is negatively affected by assumptions and lack of transparency. Black-Right-Pointing-Pointer Local technical-social-economic constraints are often not reflected by WM LCAs. Black-Right-Pointing-Pointer A participatory approach can increase acceptability and credibility of WM LCAs. Black-Right-Pointing-Pointer Results of a WM LCA can hardly ever be generalised, thus transparency is essential. - Abstract: The paper summarises the main results obtained from two extensive applications of Life Cycle Assessment (LCA) to the integrated municipal solid waste management systems of Torino and Cuneo Districts in northern Italy. Scenarios with substantial differences in terms of amount of waste, percentage of separate collection and options for the disposal of residual waste are used to discuss the credibility and acceptability of the LCA results, which are adversely affected by the large influence of methodological assumptions and the local socio-economic constraints. The use of site-specific data on full scale waste treatment facilities and the adoption of a participatory approach for the definition of the most sensible LCA assumptions are used to assist local public administrators and stakeholders showing them that LCA can be operational to waste management at local scale.
Blengini, Gian Andrea, E-mail: firstname.lastname@example.org [DIATI - Department of Environment, Land and Infrastructures Engineering, Politecnico di Torino, Corso Duca degli Abruzzi 24, 10129 Turin (Italy); CNR-IGAG - Institute of Environmental Geology and Geo-Engineering, Corso Duca degli Abruzzi 24, 10129 Turin (Italy); Fantoni, Moris, E-mail: email@example.com [DIATI - Department of Environment, Land and Infrastructures Engineering, Politecnico di Torino, Corso Duca degli Abruzzi 24, 10129 Turin (Italy); Busto, Mirko, E-mail: firstname.lastname@example.org [European Commission - Joint Research Centre, Via Enrico Fermi 2749, I-21027 Ispra (Italy); Genon, Giuseppe, E-mail: email@example.com [DIATI - Department of Environment, Land and Infrastructures Engineering, Politecnico di Torino, Corso Duca degli Abruzzi 24, 10129 Turin (Italy); Zanetti, Maria Chiara, E-mail: firstname.lastname@example.org [DIATI - Department of Environment, Land and Infrastructures Engineering, Politecnico di Torino, Corso Duca degli Abruzzi 24, 10129 Turin (Italy)
This article describes a collaborative research study of university researchers and Grades one and two teachers from an Ontario, Canada French-language School Board. The School Board offered phonological awareness and reading-teaching training to grades one and two teachers with a long-term goal of improving the reading outcomes of the students in…
Ducharme, Daphne; Leblanc, Raymond; Bourassa, Michelle; Chevalier, Jacques
Over the course of 9 years, an international multidisciplinary team of US and Kenyan scientists under the Sustainable Management of Rural Watersheds (SUMAWA) Project, based at Egerton University in Kenya, worked with Kenyan public agencies to apply a variety of participatory methods and outreach activities combined with land use mapping, hydrologic and water system modeling, and other scientific tools and evaluations to investigate and identify solutions to declining water quantity and quality problems affecting communities and environmental and productive sectors in the River Njoro Watershed in Kenya. Traditional participatory rural appraisal techniques were modified to engage low income, informal, and tribal communities in identification of local services, benefits, and groups linked to water and riparian resources and collect their perceptions of water-related problems, priorities, and solution options throughout the watershed. Building on this foundation of insights, information, and engagement on water issues with local communities and other stakeholders, the project designed a research agenda aimed at creating shared scientific understanding of the causes of identified problems and developing and testing promising interventions to address community and stakeholder priority concerns. This presentation will share lessons from the SUMAWA experience of using a problem-driven, solution-oriented, community-based watershed approach to address water resource problems at local scale in a semi-arid African developing country setting.
The theoretical background in this chapter is information systems development in an organizational context. This includes theories from participatory design, human-computer interaction, and ethnographically inspired studies of work practices. The concept of design is defined as an experimental iterative process of mutual learning by designers and domain experts (users), who aim to change the users’ work practices through the introduction of information systems. We provide an illustrative case example with an ethnographic study of clinicians experimenting with a new electronic patient record system, focussing on emergent and opportunity-based change enabled by appropriating the system into real work. The contribution to a general core of design research is a reconstruction of the iterative prototyping approach into a general model for sustained participatory design.
Simonsen, Jesper; Hertzum, Morten
Restricted mobility is the most common impairment among older adults and a manual wheelchair is often prescribed to address these limitations. However, limited access to rehabilitation services results in older adults typically receiving little or no mobility training when they receive a wheelchair. As an alternative and novel approach, we developed a therapist-monitored wheelchair skills home training program delivered via a computer tablet. To optimize efficacy and adherence, principles of self-efficacy and adult learning theory were foundational in the program design. A participatory action design approach was used to engage older adult wheelchair users, care providers, and prescribing clinicians in an iterative design and development process. A series of prototypes were fabricated and revised, based on feedback from eight stakeholder focus groups, until a final version was ready for evaluation in a clinical trial. Stakeholder contributions affirmed and enhanced the foundational theoretical principles and provided validation of the final product for the target population. PMID:25276768
Giesbrecht, Edward M; Miller, William C; Mitchell, Ian M; Woodgate, Roberta L
The notion of laboratory or simply 'lab' has become popular in recent years in areas outside science and technology development. Learning Labs, Innovation Labs, Usability Labs, Media and Communication Labs and even Art Labs designate institutions or fora dedicated to change and experimentation. Influenced by these currents we use the expression 'Design:Lab' as a shorthand description of open collaborations between many stakeholders sharing a mutual interest in design research in a particular field. Many have reacted to the term 'laboratory' or 'lab' as foreign and awkward to design, and we as well as others have frequently used other metaphors like workshop, studio or atelier in design research. In this article we will argue that the laboratory metaphor is particularly suitable and useful for the design:lab, and we will give examples of how we have worked with the design:lab as a platform for collaborative inquiries and knowledge production based on design experiments. Udgivelsesdato: June
Binder, Thomas; Brandt, Eva
Although much attention has been paid to health disparities in the past decades, interventions to ameliorate disparities have been largely unsuccessful. One reason is that the interventions have not been culturally tailored to the disparity populations whose problems they are meant to address. Community-engaged research has been successful in improving the outcomes of racial and ethnic minority groups and thus has great potential for decreasing between-group health disparities. In this articl...
Gehlert, Sarah; Coleman, Robert
Full Text Available "nCommunity-based participatory research (CBPR is believed to be a potent means for the promotion of health in the community. To that end, Iran has conducted several CBPR projects in various community research centers (CRCs. We aimed to assess the quality of some of these CBPR projects in Iran from the perspective of Iranian academicians. In this cross-sectional study, carried out during 2005, five CBPR projects implemented in Iranian CRCs (Tehran, n=3; Qazvin, n=1; and Bandar Abbas, n=1 were selected. Three academic members involved in each project were interviewed using a structured questionnaire that appraised the extent to which the research project was aligned with the principles of participatory research. Results show that the CRCs and the academic members in our CBPR projects should receive further training and consultation. Quality assessment of CBPR projects seems essential from the view point of other participants of such projects, namely community and stakeholders.
This user guide on participatory communication aims to answer the following questions: What do we mean when we say participatory communication? What are the practical implications of working with participatory communication strategies in development and social change processes? What practical experiences document that participatory communication adds value to a development project or program? Many communication practitioners and development workers face obstacles and challenges in their practical work. A participatory communication strategy offers a very specific perspective on how to articulate social processes, decision-making processes, and any change process for that matter. Participatory approaches are nothing new. At a time when institutions, both governmental and non-governmental, increasingly seek participatory approaches in their development initative, this guide provides perspectives, tools, and experiences on how to implement participatory communications strategies. It is targeted toward government officials, World Bank staff, develompent workers in the field, and civil society.
Participatory research (PR) experts believe that increased community and stakeholder participation in research augments program pertinence, quality, outcome, sustainability, uptake, and transferability. There is, however, a dearth of assessments and measurement tools to demonstrate the contribution of participation in health research and interventions. One systematic review of PR, conducted for the Agency for Health Research and Quality (AHRQ), provided no conclusive evidence concerning the benefits of community participation to enhance research and health outcomes. To overcome methodological gaps and barriers of the AHRQ review, we propose to conduct a systematic realist review, which can be understood as a theory-driven qualitative review capable of capturing the often complex, diffuse and obtuse evidence concerning participation. Reviewing how PR mechanisms and contextual factors mediate and moderate outcomes, the review will generate and test hypotheses (middle-range theories) conceptualizing the benefits of participation and will portray the manner and circumstances in which participation influences outcomes. PMID:21744664
Macaulay, Ann C; Jagosh, Justin; Seller, Robbyn; Henderson, Jim; Cargo, Margaret; Greenhalgh, Trisha; Wong, Geoff; Salsberg, Jon; Green, Lawrence W; Herbert, Carol P; Pluye, Pierre
The food insecurity faced by many Native American communities has numerous implications for the health and welfare of families. To identify and address upstream causes of food insecurity in a rural California reservation, we conducted a community assessment using the Tool for Health and Resilience in Vulnerable Environments (THRIVE). Guided by a community-based participatory research orientation, the THRIVE tool was adapted using digital storytelling and implemented in a series of focus groups. As a result of the THRIVE assessment, community members identified racial injustice and physical and financial barriers to accessing healthy and culturally appropriate foods as areas of greatest importance. Subsequently, the project partnership developed policies to reduce identified barriers which included an integrated community supported agriculture and commodity food program, the introduction of Electronic Benefits Transfer and culturally appropriate foods at the local farmers' market and reallocation of shelf space at the grocery store to include vegetables and fruits as well as special foods for diabetics. Results suggest that a participatory research orientation coupled with the use of a culturally adapted THRIVE tool may be an effective means for identifying structural determinants of food insecurity and initiating novel policy interventions to reduce health disparities experienced by Native American communities. PMID:21994709
Jernigan, Valarie Blue Bird; Salvatore, Alicia L; Styne, Dennis M; Winkleby, Marilyn
Full Text Available Participatory action research (PAR is a robust and versatile research and development strategy. It can be utilised to: understand complex community structures and interaction; determine various types of vulnerability; assist in community capacity building and skills transfer; ensure community participation,and allow for the strengthening of livelihoods. This article focuses on PAR as a strategy, applying various methods and specific participatory tools to understand social vulnerability, within the context of women as rural farm dwellers in the North-West Province, South Africa. It emphasises the need for continued participation and highlights the practical principles and benefits derived from PAR. The PAR process cycles are discussed and parallels are drawn with the practical setting. In conclusion, the article emphasises that the application of the PAR process can make a multi-dimensional contribution towards the development of a community by creating an understanding of social vulnerability, by building capacity and by ensuring participation, and also addresses income-generating activities.
Liezel van Niekerk
Participatory approaches have becoming an important tool in planning of sustainable communities. Although participation is conceived as a malleable concept there are certain methods that planners can adopt to ensure a meaningful participation. This paper will provide some experiences and lessons on how participatory planning could be carried out with local people, the role of planners in the process of plan preparation, implementation and the outcome. This paper first explores some of the meanings of participation, the criteria of participation and the approaches of participation in planning for sustainable community. The second part is a description and discussion of how participatory approach in planning was applied in planning for low carbon and eco-village in Iskandar Malaysia based on a case study of planning of Felda Taib Andak scheme. The participatory approach involved a series of meetings, site visit and focus group discussions with representative of the Felda Village to come out with action plan and actual implementation. From focus group discussions a roadmap consisted of a vision and objectives and a dozen actions were formulated and adopted. In the process of implementation the main implementation & coordination committee was form in which the author (planner) is one of its members to look into fund raising & implementation strategies together with the local people. Several task forces or sub committees responsible to implement the dozen actions were also formed. The outcome was encouraging in which some of the actions such as planting of bamboo trees, reduction of pollution from oil palm factory and bicycling activities has been implemented and shown progress. The paper also highlights some of the issues and challenges in participatory planning.
Ngah, I.; Zulkifli, A. S.
Community psychologists are increasingly using Participatory Action Research (PAR) as a way to promote social justice by creating conditions that foster empowerment. Yet, little attention has been paid to the differences between the power structure that PAR advocates and the local community power structures. This paper seeks to evaluate the level of participation in a PAR project for multiple stakeholder groups, determine how PAR was adjusted to better fit community norms, and whether our research team was able to facilitate the emergence of PAR by adopting an approach that was relevant to the existing power relations. We conclude that power differences should not be seen as roadblocks to participation, but rather as moments of opportunity for the researchers to refine their methods and for the community and the community psychologist to challenge existing power structures. PMID:20232244
Dworski-Riggs, Deanne; Langhout, Regina Day
Many behavioral health materials have not been translated into Spanish. Of those that are available in Spanish, some of them have not been translated correctly, many are only appropriate for a subgroup of Latinos, and/or multiple versions of the same materials exist. This article describes an innovative model of conducting bilingual English-Spanish translations as part of community-based participatory research studies and provides recommendations based on this model. In this article, the traditional process of conducting bilingual translations is reviewed, and an innovative model for conducting translations in collaboration with community partners is described. Finally, recommendations for conducting future health research studies with community partners are provided. Researchers, health care providers, educators, and community partners will benefit from learning about this innovative model that helps produce materials that are more culturally appropriate than those that are produced with the most commonly used method of conducting translations. PMID:25741929
Sánchez-Johnsen, Lisa; Escamilla, Julia; Rodriguez, Erin M; Vega, Susan; Bolaños, Liliana
Responding to Martin Luther King Jr.'s 1968 address at the American Psychological Association calling for a psychology that would educate Whites about racial injustice, this article challenges the widening epistemological gap between those who suffer from inequality and those who conduct social policy research on inequality. In this 20-year memoir on the echoes of a single piece of participatory policy research, Changing Minds: The Impact of College in a Maximum-Security Prison (Fine et al., 2001), readers are invited to explore how deep critical participation by a collaborative team of university and prisoner researchers has facilitated theoretical and methodological complexity, enhanced contextual and construct validity, thickened commitments to ethics and action, and fueled the political sustainability and generalizability of the findings over time and space. PMID:24320653
Full Text Available Inequities experienced by Aboriginal people in Canada due to residual effects of colonization and assimilation are evident; research is needed focusing on positive strategies for health and healing in urban settings. Participatory action research (PAR is identified as an appropriate method of research for engaging collaboratively with Aboriginal people. This study involved seven First Nations grandmothers in a small urban community in Alberta, Canada. The grandmothers linked personal health with family and community health, and practiced health promotion through maintaining cycles of support between themselves, their families, and communities. These grandmothers recognized their invaluable roles as leaders in health promotion in families and communities. The collective knowledge of Aboriginal grandmothers has potential to affect health inequities on a broader scale.
University of Calgary
Abstract Background Participatory Research (PR) entails the co-governance of research by academic researchers and end-users. End-users are those who are affected by issues under study (e.g., community groups or populations affected by illness), or those positioned to act on the knowledge generated by research (e.g., clinicians, community leaders, health managers, patients, and policy makers). Systematic reviews assessing the generalizable benefits of PR must address: the diversity of research...
Greenhalgh Trish; Wong Geoff; Seller Robbyn; Bush Paula L; Sirett Erin; Henderson Jim; Salsberg Jon; Macaulay Ann C; Pluye Pierre; Jagosh Justin; Cargo Margaret; Herbert Carol P; Seifer Sarena D; Green Lawrence W
Full Text Available I report on a phenomenological investigation into teacher experiences of generating and interpreting drawings during their participation in the Resilient Educators (REds intervention. All 18 teacher participants came from rural communities challenged by HIV & AIDS. I reflect critically on the ambivalence in teacher experiences of drawings to highlight the complexity of employing drawings as visual method. Then, I interpret the teachers' methodological experiences through the lens ofsocial-ecological understandings of resilience in order to address the question of how drawings, as form of visual participatory methodology, may make a positive difference and nurture participant resilience. What the teachers' experiences suggest is that drawings offer methodological opportunities for participants to make constructive meaning of adversity, to take action, to experience mastery, and to regulate emotion associated with adversity. All of the aforementioned are well documented pathways to resilience. I theorise, therefore, that researchers with a social conscience would be well advised to use drawings, albeit in competent and participatory ways, as this methodology potentiates participant resilience and positive change.
Linda C Theron
Full Text Available I report on a phenomenological investigation into teacher experiences of generating and interpreting drawings during their participation in the Resilient Educators (REds) intervention. All 18 teacher participants came from rural communities challenged by HIV & AIDS. I reflect critically on the ambiv [...] alence in teacher experiences of drawings to highlight the complexity of employing drawings as visual method. Then, I interpret the teachers' methodological experiences through the lens ofsocial-ecological understandings of resilience in order to address the question of how drawings, as form of visual participatory methodology, may make a positive difference and nurture participant resilience. What the teachers' experiences suggest is that drawings offer methodological opportunities for participants to make constructive meaning of adversity, to take action, to experience mastery, and to regulate emotion associated with adversity. All of the aforementioned are well documented pathways to resilience. I theorise, therefore, that researchers with a social conscience would be well advised to use drawings, albeit in competent and participatory ways, as this methodology potentiates participant resilience and positive change.
Linda C, Theron.
Full Text Available Despite its almost four decade mainstay, the field of parti-cipatory communication for social change still experiences a definitional and pragmatic problem regarding what exactly participation is (cf. Jacobson & Storey, 2004; Chambers, 1994; Melkote & Steeves, 2001; Rogers, 1976; Lerner, 1964; Schramm, 1964; Servaes, 1995. What remains is a vastly under-theorised field of participatory communication for social change. This article examines the possibility of participatory communication approaching the Habermasian “ideal speech situation” in which people, as communicators, are seen as having a value in their own right and not simply regarded as a means to an end (cf. Habermas, 1984; 1987; 1989. Consistent with the Freirean “liberal pedagogy”, the praxis of dialogical communication or intersubjective communication is seen as putting right the “participative” quality of participatory com-munication (cf. Freire, 1970. For both theorists, transformative action can only occur if reflective and collective learning occurs in linguistically constructed settings where the normative dimensions of truth (logos, rightfulness (ethos and truthfulness (pathos are raised and met in the developmental conversation. This is especially significant in a globalised world and fragmented, post-bourgeois public sphere where debate among developmental stakeholders is becoming more marginal, in-strumentalist, and less public. Based on available analyses of development communication literature, this article proposes that the chosen dialogical approaches share a type of communi-cative behaviour (i.e. action theoretic, rather than representing a particular paradigm or school of thought. This could offer further definitional clarification of proper participatory communi-cation for social change in a post-1994 South Africa.
In this paper, we present a case study of a participatory project that focuses on interaction in large-scale design, namely, the development of the new Urban Mediaspace Aarhus. This project, which has been under way for ten years, embodies a series of issues that arise when participatory design approaches are applied to large-scale, IT-oriented projects. At the same time, it highlights the issues public knowledge institutions face, when interactive technologies challenge their fundamental roles and practices; by extension, this case offers examples of how these challenges may be explored and addressed through IT-based participatory initiatives. We present a range of such activities carried out during the past ten years, and present the main lessons from the project, based on interviews with three key stakeholders. These lessons focus on how to make participation work in practice, how to align different paradigms of inquiry and practice in a project of this scale, and how to capture and anchor the insights from participatory events to inform the ongoing design process.
Dalsgaard, Peter; Eriksson, Eva
With mounting appreciation of the complexity of chronic disease, there is a growing need to understand the systemic causes of current health trends. This will support the development of a prevention system and the use of systems thinking to achieve better, more equitable and more sustainable health outcomes. With new language and a need to change our thinking, the push towards systems practice in preventive health is challenging, and calls for a method to support its application. Group model building (GMB) is a participatory approach that is widely used to build the capacity of practitioners to think in a systems way. However, it is a resource-intensive approach that requires high-level buy-in and the investment of time. We discuss the evidence, including a systematic review of the literature examining the effectiveness of GMB approaches across a wide range of contexts. The results of the review are generally positive and suggest that GMB improves problem understanding, increases engagement in systems thinking, builds confidence in the use of systems ideas and develops consensus for action among diverse stakeholders. PMID:25828443
Siokou, Christine; Morgan, Rebecca; Shiell, Alan
With its 10th biannual anniversary conference, Participatory Design (PD) is leaving its teens and must now be considered ready to join the adult world. In this article we encourage the PD community to think big: PD should engage in large-scale information-systems development and opt for a PD approach applied throughout design and organizational implementation. To pursue this aim we extend the iterative PD prototyping approach by (1) emphasizing PD experiments as transcending traditional prototyping by evaluating fully integrated systems exposed to real work practices; (2) incorporating improvisational change management including anticipated, emergent, and opportunity-based change; and (3) extending initial design and development into a sustained and ongoing stepwise implementation that constitutes an overall technology-driven organizational change. The extended approach is exemplified through a large-scale PD experiment in the Danish healthcare sector. We reflect on our experiences from this experiment and discuss four challenges PD must address in dealing with large-scale systems development.
Simonsen, Jesper; Hertzum, Morten
Since 2002, community-based participatory research methods have been used by the Calvin College Nursing Department to map out a strategic health plan for three urban, low-income, underserved neighborhoods. Nine focus groups and 449 door-to-door health surveys were completed across the three urban neighborhoods between 2002 and 2004. Neighborhood…
This paper describes a study focused on promoting culturally responsive collaboration practices at an urban preK-8 Catholic school. Using participatory action research (PAR) as its framework, a team of school stakeholders and university faculty and students from the psychology department partnered to create a participant-driven data collection and…
Shriberg, David; Schumacher, Ruth; McMahon, Kara C.; Flores, Sofia; Moy, Gregory E.; Swidzinski, Joanna; Tompkins, Nicole A.
Full Text Available SciELO Public Health | Language: Portuguese Abstract in portuguese No campo da saúde pública, advoga-se uma mudança de paradigma de investigação que possibilite maior tradução do conhecimento científico em ações e políticas de saúde mais adaptadas às comunidades. Especial atenção tem sido dada à investigação participativa baseada na comunidade, pelo seu potencial e [...] m possibilitar um maior conhecimento sobre as questões complexas de saúde. Neste ensaio, refletiu-se sobre a contribuição da investigação participativa em saúde, analisando as suas perspectivas teóricas, princípios e potencialidades. Também se examinarom alguns aspectos críticos na sua implementação, realçando-se possíveis estratégias para superar esses desafios. A investigação participativa integra uma abordagem colaborativa de envolvimento das comunidades, profissionais, decisores políticos e acadêmicos na produção de conhecimento, incorporando as suas diferentes perspectivas e experiências. Essa abordagem favorece a aceitação do projeto, a adesão das comunidades ao estudo e, consequentemente, a qualidade dos dados coletados. A investigação participativa pode ser, em si só, uma intervenção: o envolvimento das comunidades pode aumentar a sua tomada de consciência sobre a importância das temáticas abordadas e capacitá-las para definir e responder às problemáticas de saúde, promovendo o seu empoderamento. Contudo, os investigadores encontram desafios na utilização dessa abordagem, relacionados com o estabelecimento e manutenção das parcerias de investigação, a partilha de controle da tomada de decisão e a conciliação das motivações e interesses dos parceiros. Mais evidência sobre o processo de implementação da investigação participativa reforçará o seu quadro teórico, a compreensão das suas potencialidades e limitações no estudo de diferentes problemáticas, contextos e populações, e o seu papel benéfico para as comunidades. Abstract in english A change in the research paradigm towards a method that more readily allows the translation of scientific knowledge into more community-oriented health actions and policies has been advocated in the field of public health. Special attention has been paid to community-based participatory research, wh [...] ich has the potential to allow the production of deeper knowledge of complex health issues. The present essay reflects on the contributions of participatory research in health, analyzing its theoretical perspectives, principles, and strengths. Some key aspects relating to the implementation of participatory research are also examined, underscoring possible strategies to face this challenge. Participatory research integrates a collaborative approach with involvement of communities, professionals, political decision-makers, and academics to produce knowledge, incorporating the different perspectives and experiences of these stakeholders. This approach facilitates acceptance of the project and engagement of communities, and consequently enhances the quality of the data collected. Participatory research may work in and of itself as an intervention: the involvement of communities may increase their awareness about the importance of the research themes and serve as training to define and address health issues, promoting empowerment. Nevertheless, researchers face challenges in applying this approach. Such challenges are related to the establishment and maintenance of research partnerships, the sharing of decision-making control, and the reconciliation of the motivations and interests of partners. More evidence regarding the process of implementation of participatory research will strengthen the method's theoretical framework and provide further understanding regarding its potential and limitations to address various problems, contexts, and populations, and clarify its beneficial role for communities.
Sónia, Dias; Ana, Gama.
This research paper presents the outcomes of Work Package 5 (socio-economical vulnerability assessment and community-based disaster risk reduction) of the MIAVITA (MItigate and Assess risk from Volcanic Impact on Terrain and human Activities) research programme conducted on Fogo Volcano, Cape Verde. The study lasted for almost 3 years (May 2010 to January 2012), of which most of the time was spent in the village of Chã das Caldeiras, situated within the 9 km wide caldera of the volcano inside Fogo Natural Park. The objectives of the programme included assessment of the vulnerability of the community at risk in terms of livelihoods, access to resources, and power relations between the local people and the different public and private institutions. These are important factors that need to be investigated in order to understand the root causes of vulnerability of the local people. This case study shows that the voluntary exposure of people to volcanic threats is linked to daily access to sources of livelihood, especially agriculture and tourism. This is despite the perception of people of the risk to their lives and properties. In order to counter the factors of vulnerability, the study also aimed to identify and enhance local capacities. To achieve such an objective, a participatory three-dimensional mapping (P3DM) activity was conducted to facilitate the dialogue between the local people and the different stakeholders as well as to prepare plans and measures to reduce volcanic risk. The P3DM was a half success considering that it has not yet led to an operational plan which takes into account the local capacities. The main reasons included (1) the non-participatory aspect of the project at the beginning which should have identified priorities for people and let them lead the project to ensure the sustainability of (2) deep conflicts within the community which complicated the focus group discussions around the 3-D map, and the difficulties in involving more marginalised people like women and the youth, and (3) the fact that volcanic risk is not a priority for the people, who are more concerned with daily difficulties due to unsustainable livelihoods, a lack of access to water, land tenure, and the restrictions by the Fogo Natural Park administration and the municipal officials. Still, the study was successful in creating a space for dialogue between the local people and the outside stakeholders such as the Natural Park Administration, the Civil Protection, and the Municipality of Santa Catarina, who have all participated actively during the course of the project.
Texier-Teixeira, P.; Chouraqui, F.; Perrillat-Collomb, A.; Lavigne, F.; Cadag, J. R.; Grancher, D.
At the science - policy interface there are several reasons to combine models with the participatory process to facilitate the complex policy making process but the communication of the two sides is often too hard to generate any meaningful results. In this paper we argue that to close the communication gap the rationale of the Meta – rule of complex policy making needs to be comprehended and coped with. Gaming as a participatory method can be used to organize the combined process. Through ...
Zhou, Q.; Mayer, I. S.
The purpose of this article is to demonstrate the importance of creating effective partnerships between nurses practising community development (CD) and nurses engaged in participatory action research (PAR). To that end, an overview of the theoretical principles of CD and PAR is provided and the central tenets of each methodology explored. This is followed by a discussion of the similarities and differences inherent in CD and PAR which derive from the same theoretical and philosophical foundation; that of critical social theory. Examples of two research projects highlight the relationship between CD and PAR and demonstrate the value of creating effective practitioner/researcher partnerships. Finally, some of the lessons learned in creating these important partnerships will be presented. Although this call for practitioner/researcher alliance is not new, what is new is the central role the practising nurse could take in research. Creating partnerships between practising nurses and nurse researchers advances the opportunity to actualize responsive and effective PAR and to fulfill nursing's social contract. PMID:10320509
Lindsey, E; Sheilds, L; Stajduhar, K
Full Text Available SciELO South Africa | Language: English Abstract in english HIV/AIDS is having a devastating impact on South Africa and particularly on poor communities. Empowerment of communities has been identified as an important step towards mitigating the consequences and helping communities to overcome the challenges presented. Participatory Action Research (PAR) has [...] been identified as a useful methodology for the purpose of facilitating empowerment. This study explores the challenges involved in implementing PAR in the context of HIV/AIDS and poverty. In this article, the author describes a PAR project that took place in 2003/ 2004 with a group of five Xhosa speaking people living with HIV/AIDS in Masiphumelele, Cape Town. The aims of the study were to: 1. Create an opportunity for the participants to engage in a participatory process aimed at self-awareness and empowerment. 2. To record and analyse this process with the intention of producing insight into the use of PAR in the context of poverty and HIV/AIDS and to identify the challenges involved. The findings of this study highlight some important insights into the process of engaging people in the PAR process and the experiences of HIV positive people living in the context of poverty. The study explores the challenges involved in the process of empowerment and examines the process of "transferring" power and control from the researcher to the participants. Challenges were uncovered both from the point of view of the researcher who had to "let go of control" and participants who had to take on control. Participants struggled with issues of low self-efficacy and learned helplessness. Fluctuations in health also contributed towards alternating periods of hope and despair and these problems had an impact on their motivation to participate in the study. Lack of motivation to participate is a challenge highlighted in the literature and explored in this study. Participation is necessary for a study of this nature to be of benefit to the community, but unfortunately those most in need were found to be least likely to participate. The study also critically examines the research process that was conducted and highlights the positive and negative contribution of the process towards empowerment. Certain aspects of the research process, including the contracting process, were identified as being problematic as they emphasize the power and control of the researcher rather than the participants. Recommendations for future research include: Promoting participation among the disempowered; the Contracting process and Power relations in PAR.
WA, Rosenthal; DD, Khalil.
Full Text Available HIV/AIDS is having a devastating impact on South Africa and particularly on poor communities. Empowerment of communities has been identified as an important step towards mitigating the consequences and helping communities to overcome the challenges presented. Participatory Action Research (PAR has been identified as a useful methodology for the purpose of facilitating empowerment. This study explores the challenges involved in implementing PAR in the context of HIV/AIDS and poverty. In this article, the author describes a PAR project that took place in 2003/ 2004 with a group of five Xhosa speaking people living with HIV/AIDS in Masiphumelele, Cape Town. The aims of the study were to: 1. Create an opportunity for the participants to engage in a participatory process aimed at self-awareness and empowerment. 2. To record and analyse this process with the intention of producing insight into the use of PAR in the context of poverty and HIV/AIDS and to identify the challenges involved. The findings of this study highlight some important insights into the process of engaging people in the PAR process and the experiences of HIV positive people living in the context of poverty. The study explores the challenges involved in the process of empowerment and examines the process of “transferring” power and control from the researcher to the participants. Challenges were uncovered both from the point of view of the researcher who had to “let go of control” and participants who had to take on control. Participants struggled with issues of low self-efficacy and learned helplessness. Fluctuations in health also contributed towards alternating periods of hope and despair and these problems had an impact on their motivation to participate in the study. Lack of motivation to participate is a challenge highlighted in the literature and explored in this study. Participation is necessary for a study of this nature to be of benefit to the community, but unfortunately those most in need were found to be least likely to participate.The study also critically examines the research process that was conducted and highlights the positive and negative contribution of the process towards empowerment. Certain aspects of the research process, including the contracting process, were identified as being problematic as they emphasize the power and control of the researcher rather than the participants. Recommendations for future research include: Promoting participation among the disempowered; the Contracting process and Power relations in PAR
Full Text Available The lack of understanding on how to integrate ecological issues into so-called social-ecological natural resource management hampers sustainability in tropical forest landscape management. We build upon a comparison of three cases that show inverse gradients of knowledge and perceptions of the environment and human pressure on natural resources. We discuss why the ecological dimension currently lags behind in the management of tropical forest landscapes and to what extent participatory development can enhance the fit among ecological, socio-cultural, and economic systems. For each case study, socio-cultural and anthropological aspects of society and indigenous knowledge of the environment, the distribution of natural resources, classification, and management are documented in parallel with biophysical studies. Our results confirm that the ecological dimension remains weakly addressed and difficult to integrate into development actions when dealing with tropical forested landscape management in developing countries. We discuss three issues to understand why this is so: the disdain for traditional ecological knowledge and practices, the antagonism between economy and ecology, and the mismatch between traditional and modern governance systems. Participatory development shows potential to enhance the fit among ecological, socio-cultural, and economic systems through two dimensions: the generation and sharing of information to understand trends and the generation of new coordination practices that allow stakeholders to voice environmental concerns. In the absence of a "champion," institutions, and financial resources, the expected outcomes remain on paper, even when changes are negotiated. Future research in natural resource management must emphasize better integration at the interface of ecology and governance. Finally, we identify three challenges: the design of operational tools to reconcile ecology with social and economic concerns, the creation of governance systems to institutionalize collaborative and integrated resource management, and the design of enabler organizations close to local communities.
Participatory Design (PD) offers a democratic approach to design by creating a platform for active end-user participation in the design process. Since its emergence, the field of PD has been shaped by the Scandinavian context, in which many early PD projects took place. In this paper we discuss the challenges that arise from employing participatory methods in a different socio-cultural setting with participants who have had comparatively limited exposure to digital technologies. We offer a comparative study of two PD projects carried out with school classes in Scandinavia and India. While the setup for the two projects was identical, they unfolded in very different ways. We present and discuss this study, which leads us to conclude that PD can be a useful approach in both settings, but that there is a distinct difference as to which methods bring about fruitful results. The most prominent difference is the ways in which abstract and manifest participatory methods led to different outcomes in the two settings.
Wakil, Nahid; Dalsgaard, P.
Objectives . This article synthesizes discussion of collaborative research results, interventions and policy engagement for St Lawrence Island (SLI), Alaska, during the years 2000–2012. Methods . As part of on-going community-based participatory research (CBPR) studies on SLI, 5 discrete exposure-assessment projects were conducted: (a) a biomonitoring study of human blood serum; (b–d) 3 investigations of levels of contaminants in environmental media at an abandoned military site...
Miller, Pamela K.; Viola Waghiyi; Gretchen Welfinger-Smith; Samuel Carter Byrne; Jane Kava; Jesse Gologergen; Lorraine Eckstein; Ronald Scrudato; Jeff Chiarenzelli; Carpenter, David O.; Samarys Seguinot-Medina
Community-based participatory research (CBPR) has emerged to bridge the gap between research and primary-care practice through community engagement and social action to increase health equity. It is widely acknowledged that access to high-quality primary care services is important to the overall health of a community. Here, CBPR studies in a primary care setting are reviewed to assess the use of CBPR associated with common health problems seen in primary care such as access to care and dispar...
Tapp, Hazel; White, Lauren; Steuerwald, Mark; Dulin, Michael
Community-based participatory research (CBPR) introduces new ethical challenges for HIV prevention studies in low-resource international settings. We describe a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. Academic partners (APs) worked with a community advisory committee (CAC) during formative research, intervention development, and a pilot trial. Ethical challenges emerged related to: negotiating pow...
Puffer, Eve S.; Pian, Jessica; Sikkema, Kathleen J.; Ogwang-odhiambo, Rose A.; Broverman, Sherryl A.
Full Text Available Although informal waste collectors are sometimes organized in cooperatives, their working conditions remain extremely precarious and unsafe. The paper discusses the findings of action oriented, participatory qualitative research with several recycling groups in the metropolitan region of São Paulo, Brazil. During workshops with the recyclers mapping, acting, and drawing methods helped reveal health hazards from collection, separation and transportation of recyclable materials. Major health problems relate to chemical and biological hazards, musculoskeletal damage, mechanical trauma and poor emotional wellbeing. The recent federal legislation on solid waste management opens new avenues for the inclusion of recycling cooperatives in selective waste collection. Nevertheless, we express the need to consider the distinctive characteristics and vulnerabilities of recycling groups, when developing safer work environments in these social businesses. We also suggest that the workspace be ergonomically organized and that public awareness campaigns about selective waste collection are conducted regularly to increase the quality of source separation. The introduction of electric hand pushed carts can further reduce health strains. This research has produced a better understanding of the work of the recyclers and related health risks. The interactive qualitative research methodology has allowed for the co-creation and mobilization of specific knowledge on health and safety in recycling cooperatives.
Sonia M. N. Felipone
Abstract Background A gap continues to exist between what is known to be effective and what is actually delivered in the usual course of medical care. The goal of implementation research is to reduce this gap. However, a tension exists between the need to obtain generalizeable knowledge through implementation trials, and the inherent differences between healthcare organizations that make standard interventional approaches less likely to succeed. The purpose of this paper is to explore the int...
Lanham Holly J; Pugh Jacqueline A; Leykum Luci K; Harmon Joel; McDaniel Reuben R
Full Text Available Abstract Background The Charlotte-Mecklenburg region has one of the fastest growing Hispanic communities in the country. This population has experienced disparities in health outcomes and diminished ability to access healthcare services. This city is home to an established practice-based research network (PBRN that includes community representatives, health services researchers, and primary care providers. The aims of this project are: to use key principles of community-based participatory research (CBPR within a practice-based research network (PBRN to identify a single disease or condition that negatively affects the Charlotte Hispanic community; to develop a community-based intervention that positively impacts the chosen condition and improves overall community health; and to disseminate findings to all stakeholders. Methods/design This project is designed as CBPR. The CBPR process creates new social networks and connections between participants that can potentially alter patterns of healthcare utilization and other health-related behaviors. The first step is the development of equitable partnerships between community representatives, providers, and researchers. This process is central to the CBPR process and will occur at three levels -- community members trained as researchers and outreach workers, a community advisory board (CAB, and a community forum. Qualitative data on health issues facing the community -- and possible solutions -- will be collected at all three levels through focus groups, key informant interviews and surveys. The CAB will meet monthly to guide the project and oversee data collection, data analysis, participant recruitment, implementation of the community forum, and intervention deployment. The selection of the health condition and framework for the intervention will occur at the level of a community-wide forum. Outcomes of the study will be measured using indicators developed by the participants as well as geospatial modeling. On completion, this study will: determine the feasibility of the CBPR process to design interventions; demonstrate the feasibility of geographic models to monitor CBPR-derived interventions; and further establish mechanisms for implementation of the CBPR framework within a PBRN.
Urquieta de Hernandez Brisa
Full Text Available Academic success, and the economic well-being it usually affords, is closely tied to math achievement. Key national indicators reveal decades of underperformance of African American males in mathematics. Scholars argue that the schooling experiences of Black males are highly-racialized, are often bereft of significance, and result in academic and social marginalization. The author reports findings from an eight-month participatory action research (PAR project involving seven high-school aged Black males in South Los Angeles; students undertook research to empirically verify and qualitatively explore narratives concerning incarceration and university enrollment. Utilizing a critical ethnographic methodology to privilege student voice, the author shares how „low-performing? students in an urban setting utilize their mathematical knowledge to become critically literate about these narratives. Highlighting two student-constructed counternarratives he terms mathematical counterstories, the author shows how students used data analysis to contradict dominant understandings about young Black males. The author argues math counterstories are a unique synthesis of critical and mathematical literacies that are supported through PAR. Implications for the re-orientation of high school-aged Black males towards mathematics are discussed.
Clarence L. Terry
This paper presents a qualitative analysis of a series of in-depth interviews with governmental and non-governmental institutions (NGOs). Within the EUROCAT 1 project this methodology of participatory approach, aiming to scope the present perceptions about environmental issues and possible strategies for environmental improvement, is applied to the study of the Elbe catchment for the first time. In this frame, an Advisory Board (AB) was created, with the aim of giving insights into conflicting interests in the river catchment and guidelines for river basin management. Focus of the Elbe case study is the issue of nutrient enrichment (from the catchment) and the induced eutrophication of the coastal waters (the German Bight). Specifically, regarding this topic, the possible reduction of eutrophication in the German Bight by a (policy driven) decrease in nutrient inputs from the catchment area is analysed. Different measures for reducing the input of nutrients from the catchment, and ultimately preventing eutrophication of the coastal waters are considered. In this context, the members of the AB were asked about the efficiency and feasibility of different measures and the criteria for choosing 'better' management solutions among the possible ones. Although there is a general agreement about the necessity of reducing nutrient emissions, some members of the AB perceive other environmental issues (e.g. altered morphodynamics) as more relevant than nutrient enrichment. Voluntary cooperation, eco-efficiency and 'trans-sectoral' communication are the key concepts mentioned as being indispensable for integrated management. The (public) acceptance of measures for nutrient reduction have to find its way through compromises and social equity, allowing for win-win solutions among different groups of interests and balanced spatial division of costs and benefits. EUROpean CATchments, Project N° EVK1-CT-2000-00044 ( http://www.iia-cnr.unical.it/EUROCAT/project.htm).
Nunneri, C.; Hofmann, J.
Background. Calorie labeling at the point-of-purchase in chain restaurants has been shown to reduce energy intake. Objective. To investigate the impact of point-of-purchase calorie information at one rural middle school. Methods. With a community-based participatory research framework a mixed method approach was used to evaluate the impact of point-of-purchase calorie information. Students in grades 6–8, dining at the school cafeteria January and February 2010, participated for 17 school days each month; in January a menu was offered in the usual manner without calorie labels; the same menu was prepared in February with the addition of calorie labels at point-of-purchase. Gross calories served per student were measured each day allowing for matched comparison by menu. In March/April of 2010, 32 students who ate in the cafeteria 3 or more times per week were interviewed regarding their views on menu labeling. Results. Calorie consumption decreased by an average of 47 calories/day; fat intake reduced by 2.1 grams/day. Five main themes were consistent throughout the interviews. Conclusion. Point-of-purchase calorie labels can play a role in reducing the number of calories consumed by middle school age children at the lunch. The majority of students interviewed found the calorie labels helped them choose healthier food.
McGinnis, Paul; Beamer, Beth Ann; O'Malley, Jean
Background. Calorie labeling at the point-of-purchase in chain restaurants has been shown to reduce energy intake. Objective. To investigate the impact of point-of-purchase calorie information at one rural middle school. Methods. With a community-based participatory research framework a mixed method approach was used to evaluate the impact of point-of-purchase calorie information. Students in grades 6-8, dining at the school cafeteria January and February 2010, participated for 17 school days each month; in January a menu was offered in the usual manner without calorie labels; the same menu was prepared in February with the addition of calorie labels at point-of-purchase. Gross calories served per student were measured each day allowing for matched comparison by menu. In March/April of 2010, 32 students who ate in the cafeteria 3 or more times per week were interviewed regarding their views on menu labeling. Results. Calorie consumption decreased by an average of 47 calories/day; fat intake reduced by 2.1 grams/day. Five main themes were consistent throughout the interviews. Conclusion. Point-of-purchase calorie labels can play a role in reducing the number of calories consumed by middle school age children at the lunch. The majority of students interviewed found the calorie labels helped them choose healthier food. PMID:25874121
Hunsberger, Monica; McGinnis, Paul; Smith, Jamie; Beamer, Beth Ann; O'Malley, Jean
Community-based participatory research (CBPR) increasingly is seen as a potent tool for studying and addressing urban environmental health problems by linking place-based work with efforts to help effect policy-level change. This paper explores a successful CBPR and organizing effort, the Toxic Free Neighborhoods Campaign, in Old Town National City (OTNC), CA, United States, and its contributions to both local policy outcomes and changes in the broader policy environment, laying the groundwor...
Minkler, Meredith; Garcia, Analilia P.; Williams, Joy; Lopresti, Tony; Lilly, Jane
To address disproportionately high rates of diabetes morbidity and mortality in some of Chicago's medically underserved minority neighborhoods, a group of community residents, medical and social service providers, and a local university founded the Chicago Southeast Diabetes Community Action Coalition, a Centers for Disease Control and Prevention REACH 2010 Initiative. A community-based participatory action research model guided coalition activities from conceptualization through implementati...
Giachello, Aida L.; Arrom, Jose O.; Davis, Margaret; Sayad, Judith V.; Ramirez, Dinah; Nandi, Chandana; Ramos, Catalina
This article explores ethical considerations related to participatory visual and digital methods for public health research and practice, through the lens of an approach known as "digital storytelling." We begin by briefly describing the digital storytelling process and its applications to public health research and practice. Next, we explore 6 common challenges: fuzzy boundaries, recruitment and consent to participate, power of shaping, representation and harm, confidentiality, and release of materials. We discuss their complexities and offer some considerations for ethical practice. We hope this article serves as a catalyst for expanded dialogue about the need for high standards of integrity and a situated practice of ethics wherein researchers and practitioners reflexively consider ethical decision-making as part of the ongoing work of public health. PMID:23948015
Gubrium, Aline C; Hill, Amy L; Flicker, Sarah
Based on the review of experiences in SEA and EIA in the Czech Republic summarized in Deliverable No.3 and the testing of novel participatory and dialogue approaches summarized in Deliverables No.7, 11 and 12 in this report a model for the siting process specifically in the Czech Republic, that takes into account the need for transparency and interaction with the public, within the framework of legal requirements is outlined. Lessons learnt are summarised and a road map specified. The guidelines / recommendations in this report are proposed based on mapping the situation in the Czech Republic and experience gained in connection with the testing and application of novel participatory approaches and dialogue, but many of them are of general validity and can be applied in other countries outside the Czech Republic. This reports links directly to Work package 6, where general guidelines for participation and transparency, reflecting institutional and cultural differences, are given - Deliverable No.22
Full Text Available This research paper presents the outcomes of the Work Package 5 (Socio-economical Vulnerability Assessment and Community-Based Disaster Risk Reduction of the MIAVITA Research Program (MItigate and Assess risk from Volcanic Impact on Terrain and human Activities conducted in Fogo Volcano, Cape-Verde. The study lasted for almost 3 yr (May 2010–January 2012 of which most of the time was spent in the village of Chã das Caldeiras, situated within the 9 km-wide caldera of the volcano inside the Fogo Natural Park. The objectives of the program included assessment of the vulnerability of the community at risk in terms of livelihoods, access to resources, and power relations between the local people and the different public and private institutions. These are important factors that need to be investigated in order to understand the root causes of vulnerability of the local people. This case study shows that the voluntary exposure of people at volcanic threats is linked with daily access to sources of livelihood specially agriculture and tourism. This is despite the perception of people of the risk on their lives and properties. In order to counter the factors of vulnerability, the study also aimed to identify and enhance local capacities. To achieve such objective, a Participatory 3-Dimensional Mapping (P3DM activity was conducted to facilitate the dialogue between the local people and the different stakeholders as well as to prepare plans and measures to reduce volcanic risk. The P3DM was a half success considering that it has not yet led to an operational plan which takes into account the local capacities. The main reasons included (1 the non-participative aspect of the project at the beginning which should have identified priorities for people and let them lead the project to ensure the sustainability (2 deep conflicts within the community which complicated the focus group discussions around the 3-D map, and the difficulties to involve more marginalized people like women and youth, and (3 the fact that volcanic risk is not the priority for people who are more concerned on daily difficulties due to unsustainable livelihood, lack of access to water, land tenure, and the restrictions by the Fogo Natural Park administration and the municipal officials. Still, the study was successful in creating a space for dialogue between the local people and the outside stakeholders such as the Natural Park administration, the National Civil Protection Service (SNPC, and the Municipality of Santa Catarina who have all participated actively during the implementation of the project.
This research paper presents the outcomes of the Work Package 5 (Socio-economical Vulnerability Assessment and Community-Based Disaster Risk Reduction) of the MIAVITA Research Program (MItigate and Assess risk from Volcanic Impact on Terrain and human Activities) conducted in Fogo Volcano, Cape-Verde. The study lasted for almost 3 yr (May 2010-January 2012) of which most of the time was spent in the village of Chã das Caldeiras, situated within the 9 km-wide caldera of the volcano inside the Fogo Natural Park. The objectives of the program included assessment of the vulnerability of the community at risk in terms of livelihoods, access to resources, and power relations between the local people and the different public and private institutions. These are important factors that need to be investigated in order to understand the root causes of vulnerability of the local people. This case study shows that the voluntary exposure of people at volcanic threats is linked with daily access to sources of livelihood specially agriculture and tourism. This is despite the perception of people of the risk on their lives and properties. In order to counter the factors of vulnerability, the study also aimed to identify and enhance local capacities. To achieve such objective, a Participatory 3-Dimensional Mapping (P3DM) activity was conducted to facilitate the dialogue between the local people and the different stakeholders as well as to prepare plans and measures to reduce volcanic risk. The P3DM was a half success considering that it has not yet led to an operational plan which takes into account the local capacities. The main reasons included (1) the non-participative aspect of the project at the beginning which should have identified priorities for people and let them lead the project to ensure the sustainability (2) deep conflicts within the community which complicated the focus group discussions around the 3-D map, and the difficulties to involve more marginalized people like women and youth, and (3) the fact that volcanic risk is not the priority for people who are more concerned on daily difficulties due to unsustainable livelihood, lack of access to water, land tenure, and the restrictions by the Fogo Natural Park administration and the municipal officials. Still, the study was successful in creating a space for dialogue between the local people and the outside stakeholders such as the Natural Park administration, the National Civil Protection Service (SNPC), and the Municipality of Santa Catarina who have all participated actively during the implementation of the project.
Texier-Teixeira, P.; Chouraqui, F.; Perrillat-Collomb, A.; Lavigne, F.; Cadag, J. R.; Grancher, D.
Use of community-based participatory research (CBPR) approaches is increasing with the goal of making more meaningful and impactful advances in eliminating cancer-related health disparities. While many reports have espoused its advantages, few investigations have focused on comparing CBPR-oriented recruitment and retention. Consequently, the purpose of this analysis was to report and compare two different CBPR approaches in two cancer prevention studies. We utilized frequencies and Chi-squared tests to compare and contrast subject recruitment and retention for two studies that incorporated a randomized, controlled intervention design of a dietary and physical activity intervention among African Americans (AA). One study utilized a de-centralized approach to recruitment in which primary responsibility for recruitment was assigned to the general AA community of various church partners whereas the other incorporated a centralized approach to recruitment in which a single lay community individual was hired as research personnel to lead recruitment and intervention delivery. Both studies performed equally well for both recruitment and retention (75 and 88 % recruitment rates and 71 and 66 % retention rates) far exceeding those rates traditionally cited for cancer clinical trials (~5 %). The de-centralized approach to retention appeared to result in statistically greater retention for the control participants compared to the centralized approach (77 vs. 51 %, p < 0.01). Consequently, both CBPR approaches appeared to greatly enhance recruitment and retention rates of AA populations. We further note lessons learned and challenges to consider for future research opportunities. PMID:25086566
Adams, Swann Arp; Heiney, Sue P; Brandt, Heather M; Wirth, Michael D; Khan, Samira; Johnson, Hiluv; Davis, Lisa; Wineglass, Cassandra M; Warren-Jones, Tatiana Y; Felder, Tisha M; Drayton, Ruby F; Davis, Briana; Farr, Deeonna E; Hébert, James R
Consistent with the global demand for palm oil, the intensified upstream harvesting activities of oil palms? fresh fruit bunches, despite the harvesters evidences of various ergonomics risk factors leading to musculoskeletal disorders should be a cause for concern. Thus, this study describes the effectiveness of a modified and locally adapted Participatory Action-Oriented Training intervention program in improving the working environment of the harvesters. A training program modified and cus...
Ng Yee Guan; Shamsul Bahri Mohd Tamrin; Ismi Arif Ismail; Gede Pramudya Ananta; Zailina Hashim; Irwan Syah Mohd Yusoff; Baba Md. Deros; Shahriman Abu Bakar; Azmin Sham Rambely
Full Text Available Eind augustus 2006 vond in Groningen het gecombineerde internationale congress over Action Learning and Action Research/Participatory Action Research (ALARPM 7th/PAR 11th plaats. Onderzoekers van over de hele wereld namen deel om te luisteren naar key-note speakers, om een workshop te geven of bij te wonen en om ervaringen uit te wisselen. De 290 deelnemers hadden een ruime keus: naast de zeven centrale lezingen was er een scala aan workshops over thema’s uit vijf verschillende stromingen (Standards/Ethics, Education/Action Learning, Organizational Development, Rural Development/Developmental Cooperation/Social Innovation, Health. Een impressie van het congres.
Eind augustus 2006 vond in Groningen het gecombineerde internationale congress over Action Learning and Action Research/Participatory Action Research (ALARPM 7th/PAR 11th) plaats. Onderzoekers van over de hele wereld namen deel om te luisteren naar key-note speakers, om een workshop te geven of bij te wonen en om ervaringen uit te wisselen. De 290 deelnemers hadden een ruime keus: naast de zeven centrale lezingen was er een scala aan workshops over thema’s uit vijf verschillende stromingen ...
Participatory approaches in environmental regulation are expected to be a part of achieving environmental targets, but experiences show that it is difficult to implement knowledge in practice. The aim of the article is to achieve a better understanding of prerequisites for participatory processes for change in agricultural contexts. The hypothesis is that the processes in the case project can be analysed by applying concepts of the theory of communities of practice. The first analytical component is a test for learning prerequisites conducted by the concepts of domain, community and practice. The second component concerns identity changes among involved farmers and the third component introduces the concept of boundary objects to concrete cooperative processes in the case project. We find that the stakeholder approach is problematic in catchment areas because communities of practice are rare in interest groups and organisations. On the basis of the theory of communities of practice, we suggest to integrate both knowledge production and knowledge implementation in the work-related social setting of each individual farm.
Madsen, Mads Lægdsgaard; Noe, Egon
Full Text Available After China’s collective forest right system reform, cooperation organizations have played an important role in the development of community forestry. In order to analyze the demands and attitudes of stakeholders of community forests, a participatory approach which included brainstorming, material collection, PRA tools, semi-structured interviews and questionnaire surveys, was used in a forest management survey involving four village cases. According to the application of the participatory approach it can be seen that the different types of stakeholders had different demands and attitudes toward community forest management. Farmers were more focused on economic benefit while forestry bureaus were more concerned about attaining the maximum level of forestry farmers’ ecological, economic and social efficiency. Cooperative members had more positive attitudes than non-cooperative members. According to all stakeholders, the harvest quota control system is the most unreasonable policy. In addition, based on the results of the SWOT strategy analysis matrix for forest management policies and systems at the level of forestry farmers, four strategy selections are proposed.
Participatory research is increasingly advocated for use in health and health services research and has been defined as a 'process of producing new knowledge by systematic enquiry, with the collaboration of those being studied'. The underlying philosophy of participatory research is that those recruited to studies are acknowledged as experts who are 'empowered to truly participate and have their voices heard'. Research methods should enable children to express themselves. This has led to the development of creative approaches of working with children that offer alternatives to, for instance, the structured questioning of children by researchers either through questionnaires or interviews. To examine the feasibility and potential of developing participatory methods in imaging research. We employed three innovative methods of data collection sequentially, namely the provision of: 1) a graffiti wall; 2) cameras, and 3) a video box for children's use. While the graffiti wall was open to all who attended the department, for the other two methods children were allocated to each 'arm' consecutively until our target of 20 children for each was met. The study demonstrated that it was feasible to use all three methods of data collection within the context of a busy radiology department. We encountered no complaints from staff, patients or parents. Children were willing to participate but we did not collect data to establish if they enjoyed the activities, were pleased to have tyed the activities, were pleased to have the opportunity to make comments or whether anxieties about their treatment inhibited their participation. The data yield was disappointing. In particular, children's contributions to the graffiti wall were limited, but did reflect the nature of graffiti, and there may have been some 'copycat' comments. Although data analysis was relatively straightforward, given the nature of the data (short comments and simple drawings), the process proved to be extremely time-consuming. This was despite the modest amount of data collected. Novel methods of engaging with children have been shown to be feasible although further work is needed to establish their full potential. (orig.)
Participatory research is increasingly advocated for use in health and health services research and has been defined as a 'process of producing new knowledge by systematic enquiry, with the collaboration of those being studied'. The underlying philosophy of participatory research is that those recruited to studies are acknowledged as experts who are 'empowered to truly participate and have their voices heard'. Research methods should enable children to express themselves. This has led to the development of creative approaches of working with children that offer alternatives to, for instance, the structured questioning of children by researchers either through questionnaires or interviews. To examine the feasibility and potential of developing participatory methods in imaging research. We employed three innovative methods of data collection sequentially, namely the provision of: 1) a graffiti wall; 2) cameras, and 3) a video box for children's use. While the graffiti wall was open to all who attended the department, for the other two methods children were allocated to each 'arm' consecutively until our target of 20 children for each was met. The study demonstrated that it was feasible to use all three methods of data collection within the context of a busy radiology department. We encountered no complaints from staff, patients or parents. Children were willing to participate but we did not collect data to establish if they enjoyed the activities, were pleased to have the opportunity to make comments or whether anxieties about their treatment inhibited their participation. The data yield was disappointing. In particular, children's contributions to the graffiti wall were limited, but did reflect the nature of graffiti, and there may have been some 'copycat' comments. Although data analysis was relatively straightforward, given the nature of the data (short comments and simple drawings), the process proved to be extremely time-consuming. This was despite the modest amount of data collected. Novel methods of engaging with children have been shown to be feasible although further work is needed to establish their full potential. (orig.)
Mathers, Sandra A. [Aberdeen Royal Infirmary, Department of Radiology, Aberdeen (United Kingdom); The Robert Gordon University, Faculty of Health and Social Care, Aberdeen (United Kingdom); Anderson, Helen [Royal Aberdeen Children' s Hospital, Department of Radiology, Aberdeen (United Kingdom); McDonald, Sheila [Royal Aberdeen Children' s Hospital, Aberdeen (United Kingdom); Chesson, Rosemary A. [University of Aberdeen, School of Medicine and Dentistry, Aberdeen (United Kingdom)
Ethical principles of community-based participatory research (CBPR)— specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability—stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities ...
Smith, Selina A.; Blumenthal, Daniel S.
This article offers a perspective on the relationship between cultural-historical activity theory (CHAT) and one particular strand of action research--Freirean participatory action research (PAR). It reflects on a research collaboration conducted two decades ago with a community organisation and seeks to "show" the interaction of CHAT and Freirean…
While the principles behind community-based participatory research are firmly established, the process of taking community-based participatory research with children and youth to scale and integrating it into the programming of non-governmental organizations has been scarcely documented. This article reflects on the experiences of Save the Children in implementing a multicountry community-based participatory research program to increase understanding of kinship care in the Democratic Republic of Congo, Nigeria, and Sierra Leone. The article discusses challenges faced and lessons learned and highlights how the research process enabled action and advocacy initiatives at different levels-leading to an increase in support and policy attention for children living in kinship care. PMID:25423249
Chukwudozie, Oge; Feinstein, Clare; Jensen, Celina; O?Kane, Claire; Pina, Silvia; Skovdal, Morten; Smith, Rebecca
In innovation networks, participatory foresight activities can typically have several functions. They can be seen as a tool for supporting decision-making on science and technology (S&T) priorities, but they can also be expected to contribute to the structures of a network beyond the scope of decision making. Foresight activities are often limited by tight timeframes, budgets and they need to be synchronized with other S&T processes. In this setting there is a need for tools that reflect fore...
This chapter discusses the interview method in relation to context, a central notion in audience studies. Through a critique of the traditional conception of the interview method as a question-answer model, the chapter suggests two different articulations of the interview method in the framework of a contextual inquiry: the performative and participatory models of interview. These models are presented in their original theoretical, methodological and empirical contexts and then highlighted along four methodological considerations that help position audience research towards the challenges of a contextual inquiry.
Mathieu, David; Brites, Maria José
This paper examines community-based participatory research (CBPR) intervention approaches in promoting cancer-relevant outcomes for 102 Vietnamese women. Results indicated that the intervention was effective in promoting breast and cervical cancer knowledge, positive attitudes towards breast cancer screening, and breast cancer screening. Collectivism moderated the effect of the intervention on attitudes towards breast cancer screening. The intervention led to more favorable attitudes towards breast cancer screening for women with high levels of collectivism but not for women with low levels. Ethnic identity moderated the effect of the intervention on breast cancer screening: the intervention program led to higher probability of getting a clinical breast exam; however, this effect was more pronounced for women with low ethnic identity than for those with high ethnic identity. The study provides evidence for the effectiveness of culturally-tailored strategies in developing cancer screening interventions for the Vietnamese American population. PMID:24858871
Nguyen, Anh B; Belgrave, Faye Z
As part of a multinational program of research, we undertook a community-based participatory research project in Jamaica to strengthen nurses' engagement in HIV and AIDS policy. Three leadership hubs were purposefully convened and included small groups of people (6-10) from diverse HIV and AIDS stakeholder groups in Jamaica: frontline nurses and nurse managers in primary and secondary care settings; researchers; health care decision makers; and other community members. People living with HIV or AIDS were among the hub members. Using a relational public health ethics framework, we outline some of the ethical challenges and opportunities experienced by the research team and the leadership hubs. Data included research assistant field notes and hub progress reports. Emerging ethical concerns were associated with relational personhood, social justice, relational autonomy, relational solidarity, and sustainability of the hub activities. PMID:23485671
Davison, Colleen M; Kahwa, Eulalia; Atkinson, Uki; Hepburn-Brown, Cerese; Aiken, Joyette; Dawkins, Pauline; Rae, Tania; Edwards, Nancy; Roelofs, Susan; MacFarlane, Denise
This multi-method study examines tensions in the practice of youth-led participatory research (YPAR) in urban high schools among 15 semester-cohorts. Student participants in the present study were 77 ethnically diverse youth from four high schools in a major metropolitan school district. Data were gathered using systematic classroom observations, interviews with teachers and students involved in the projects, and participant observation. The two most commonly-constrained phases of the YPAR project were issue selection and action steps. A central tension in the issue selection phase for projects enacted across multiple semester cohorts was the tension between original inquiry and "traction:" Sticking with the same topic enabled sustained building of strategic alliances and expertise for making change, but limited the incoming cohort's power to define the problem to be addressed. In further analyses, we identified processes that promoted student power despite continuity-related constraints-teachers' framing and buy-in strategies, "micro-power" compensation, and alignment of students' interests with the prior cohort-as well as constraints in other phases of the projects. This study's findings regarding the promotion of youth power in the face of constraints advance the integration of theory and practice in youth-led research and have implications for participatory research more broadly. PMID:23444005
Ozer, Emily J; Newlan, Sami; Douglas, Laura; Hubbard, Elizabeth
Informal and formal surveys, and participatory rural appraisal conducted within the coffee land-use system of Embu District in Eastern Kenya identified feed shortage as a major constraint to increased dairy production on small holder farms. To address this constraint, a two-year (1996-1998) on-farm research project involving 20 farms in Manyatta division, Embu District was initiated with broad objectives of developing components technologies that would use maize crop residues. This was due to the recognition of the fact that the greatest potential for improving field availability would be in the exploitation of crop residues, especially those derived from maize, the main staple crop in the region. Based on these reality appropriate technologies that would offer viable offers for the use of crop residues were identified and discussed during workshops and meetings with farmers. Component technologies considered included drying of maize leaves after defoliation and post-harvest storage methods for dry maize stover. this paper discussed the results of the participatory research in context of farmers' involvement in the technology development, testing, evaluation and promotion. The study demonstrated that involving farmers in all stages of the research process, enhanced their interest and participation in the testing and subsequent adoption of appropriate technologies
Community psychologists are increasingly using Participatory Action Research (PAR) as a way to promote social justice by creating conditions that foster empowerment. Yet, little attention has been paid to the differences between the power structure that PAR advocates and the local community power structures. This paper seeks to evaluate the level of participation in a PAR project for multiple stakeholder groups, determine how PAR was adjusted to better fit community norms, and whether our res...
Dworski-riggs, Deanne; Langhout, Regina Day
The lack of understanding on how to integrate ecological issues into so-called social-ecological natural resource management hampers sustainability in tropical forest landscape management. We build upon a comparison of three cases that show inverse gradients of knowledge and perceptions of the environment and human pressure on natural resources. We discuss why the ecological dimension currently lags behind in the management of tropical forest landscapes and to what extent participatory develo...
Jean-Laurent Pfund; Robin Bourgeois; Yves Laumonier
Using a perspective from the sociology of knowledge, this study identifies some ‘dilemmas of participatory research’. We look at how social relationships between fishers and scientists develop around the exchange of fishers’ knowledge in particular institutional contexts. We survey the general types and global examples of fisher– scientist relationships in terms of how they approach the integration of fishers’ and scientists’ knowledge. Based on an empirical study of three European cases of participatory research, we then discuss five dilemmas that tend to characterize fisher– scientist relationships. These dilemmas centre on the relationship between fisheries research, fishery regulations and fishers as subjects of both regulation and participatory research endeavours. We argue that these dilemmas – experienced by both scientists and fishers – express an underlying tension between ‘empowering’ fishers to support the effective management of the fishing commons and the bureaucratic need to regulate the fishery as an industry.
Jacobsen, Rikke Becker; Wilson, Douglas Clyde
A multidisciplinary team of researchers at the Center for the Promotion of Health in the New England Workplace (CPH-NEW) developed an evidence-based approach to address three recognized challenges to workplace programs designed to improve employee health: establishing employee ownership, integrating with work organization, and sustainability. The two main innovations being introduced in combination were (1) integrating traditional workplace health protection (e.g., ergonomics, industrial hygi...
Henning, Robert; Warren, Nicholas; Robertson, Michelle; Faghri, Pouran; Cherniack, Martin
Full Text Available Objective: since the revision of some criteria of the Participatory Action Research (p a r: the researcher`s influence, agrees, transparency and coupling, we try to point out the significance that this approach is qualitative research to address problems like abuse and some forms of political violence that affect children and young people. Issues that are cross to the interests of investigative work and intervention of a political psychology and psychology of gender, since the focus of a critical social psychology. Methodology: the goals of this task requiring the deployment of methodologies analyzes recognize the pattern of meaning as a space in which meanings emerge on triggers of the problems and factors that enable the development of alternative solution. The empirical component consists of some research findings on racism, women’s identity in subjects with experience of abuse, the construction of subjectivities and the phenomenon of political participation in children and young people demobilized from illegal armed groups. The text shows dates of abuse and the untying of young children and armed conflict as a way of forms of political violence and some thoughts about the commitment of psychologists in handling these problems. Results: a summary of some historical background to the par and its significant elements as proposed critical and qualitative research and intervention, and ends the text to mean scientific criteria of the p a r, the influence of the researcher, agreement and transparency, based on empirical findings of the component.
Olga L. Obando S
A number of studies have demonstrated the efficacy of environmental change strategies (ECS) in effecting community-level change on attitudes and behaviors related to underage drinking (Treno and Lee in Alcohol Res Health 26:35-40, 2002; Birckmayer et al. in J Drug Educ 34(2):121-153, 2004). Primary data collection to inform the design of these strategies, however, can be resource intensive and exceed the capacity of community stakeholders. This study describes the participatory planning and implementation of community-level surveys in 12 diverse communities in the state of Washington. These surveys were conducted through collaborations among community volunteers and evaluation experts assigned to each community. The surveys were driven by communities' prevention planning needs and interests; constructed from collections of existing, field-tested items and scales; implemented by community members; analyzed by evaluation staff; and used in the design of ECS by community-level leaders and prevention practitioners. The communities varied in the content of their surveys, in their sampling approaches and in their data collection methods. Although these surveys were not conducted using traditional rigorous population survey methodology, they were done within limited resources, and the participatory nature of these activities strengthened the communities' commitment to using their results in the planning of their environmental change strategies. PMID:22864957
Gabriel, Roy M; Leichtling, Gillian J; Bolan, Marc; Becker, Linda G
The international focus on the learning potential of games in recent years has led to a boost in both academic research interest and the development of game formats. Numerous educational computer games are available for today’s teachers, but the implementation of games in everyday teaching is often problematic. In this paper, we argue that the focus on designing and implementing game-based learning environments in educational settings implies a need to rethink methodological questions on how to apply and study educational designs. We review the methodological approaches of design-based research and action research and discuss some of the implications of applying these methods to game research. Both methods involve combining empirical educational research with the theory-driven design of learning environments. However, whereas action research aims at changing attitudes or behavior by involving participants in the different phases of designing environments for change, design-based research has a strong focus ontheory-based design and implementation of technologies and artifacts as part of the learning environment. In this paper, we present data from a study involving the design and implementation of game technology in educational settings: the game Global Conflict: Latin America, which is a role-playing game, set in a 3D environment. In the game, students play a freelance journalist who has to investigate particular issues or conflicts in the Latin American region. The game is designed to teach different subjects that involve social studies, such as geography, Danish, and history in secondary and upper secondary schools. In the first case, we conducted a study of how it is possible to integrate the game Global Conflict: Latin America in a local school practice. The involvement of game developers, researchers, students, and teachers in the different phases of the game-based educational scenario is discussed. The teacher involvement in the various design phases and student approaches and practices observed within the classes playing the games are compared as well as possibilities for the future integration of design. The case is discussed in relation to the methodological approaches of action research and design-based research. With the aim of developing approaches to modulate and integrate new game designs into school education, we suggest a design-based research approach inspired by action research with a focus on inviting teachers and players into the various phases of development of designs, intervention, redesigns, and analysis of design interventions.
SØrensen, Birgitte Holm; Magnussen, Rikke
Participatory Sensing is an emerging computing paradigm that enables the distributed collection of data by self-selected participants. It allows the increasing number of mobile phone users to share local knowledge acquired by their sensor-equipped devices, e.g., to monitor temperature, pollution level or consumer pricing information. While research initiatives and prototypes proliferate, their real-world impact is often bounded to comprehensive user participation. If users have no incentive, or feel that their privacy might be endangered, it is likely that they will not participate. In this article, we focus on privacy protection in Participatory Sensing and introduce a suitable privacy-enhanced infrastructure. First, we provide a set of definitions of privacy requirements for both data producers (i.e., users providing sensed information) and consumers (i.e., applications accessing the data). Then, we propose an efficient solution designed for mobile phone users, which incurs very low overhead. Finally, we di...
De Cristofaro, Emiliano
Participatory design includes engaging in large-scale information-systems development where participatory design approaches have been applied throughout design and organizational implementation. The keynote suggest to extend the iterative prototyping approach by (1) emphasizing participatory design experiments and pilot implementations as transcending traditional prototyping by evaluating fully integrated systems exposed to real work practices; (2) incorporating improvisational change management including anticipated, emergent, and opportunity-based change; and (3) extending initial design and development into a sustained and ongoing implementation that constitutes an overall technology-driven organizational change. This sustained participatory design and implementation approach is exemplified through a large-scale project in the Danish healthcare sector
Community-based participatory research (CBPR) has emerged to bridge the gap between research and primary-care practice through community engagement and social action to increase health equity. It is widely acknowledged that access to high-quality primary care services is important to the overall health of a community. Here, CBPR studies in a primary care setting are reviewed to assess the use of CBPR associated with common health problems seen in primary care such as access to care and disparities in chronic disease management across vulnerable populations. CBPR involves building relationships with local communities, determining areas of need and establishing priorities for health concerns. Studies showing improved access to care for a Hispanic population, reduced asthma symptoms and weight loss are highlighted. PMID:24236682
Tapp, Hazel; White, Lauren; Steuerwald, Mark; Dulin, Michael
Full Text Available Recent literature suggests that dialogic forms of risk communication are more effective to build stakeholders' hazard-related social capacities. In spite of the high theoretical expectations, there is a lack of univocal empirical evidence on the relevance of these effects. This is mainly due to the methodological limitations of the existing evaluation approaches. In our paper we aim at eliciting the contribution of participatory river revitalisation projects on stakeholders' social capacity building by triangulating the findings of three evaluation studies that were based on different approaches: a field-experimental, a qualitative long-term ex-post and a cross-sectional household survey approach. The results revealed that social learning and avoiding the loss of trust were more relevant benefits of participatory flood management than acceptance building. The results suggest that stakeholder involvements should be more explicitly designed as tools for long-term social learning.
The article describes the process and the findings of a Participatory Action Research (PAR) conducted with young people in Bosnia and Herzegovina (BiH) in 2003, with an aim to develop a communication strategy for the prevention of HIV/AIDS in BiH. The study was initiated and funded as part of a global UNICEF initiative bearing the same name and…
Maglajlic, Reima Ana
The Agri-Environment Footprint Index (AFI) has been developed as a generic methodology to assess changes in the overall environmental impacts from agriculture at the farm level and to assist in the evaluation of European agri-environmental schemes (AES). The methodology is based on multi-criteria analysis (MCA) and involves stakeholder participation to provide a locally customised evaluation based on weighted environmental indicators. The methodology was subjected to a feasibility assessment in a series of case studies across the EU. The AFI approach was able to measure significant differences in environmental status between farms that participated in an AES and non-participants. Wider environmental concerns, beyond the scheme objectives, were also considered in some case studies and the benefits for identification of unintentional (and often beneficial) impacts of AESs are presented. The participatory approach to AES evaluation proved efficient in different environments and administrative contexts. The approach proved to be appropriate for environmental evaluation of complex agri-environment systems and can complement any evaluation conducted under the Common Monitoring and Evaluation Framework. The applicability of the AFI in routine monitoring of AES impacts and in providing feedback to improve policy design is discussed.
Mauchline, Alice L.; Mortimer, Simon R.
Since its inception, capacity building has been a stated goal of the Delta Nutrition Intervention Research Initiative, a tri-state collaboration in the Lower Mississippi Delta to address high rates of chronic disease. Textual analysis of project documents identifies and describes strategies carried out to foster capacity building. Strategies to build community capacity include fostering participation, cultivating leadership opportunities, training community members as co-researchers, securing community resources, and implementing the intervention together. Incorporating capacity-building approaches in health promotion and nutrition-intervention programming in rural communities provides a means to enhance potential for sustainability of health outcomes and developed effectiveness. PMID:20531098
Downey, Laura H; Castellanos, Diana Cuy; Yadrick, Kathy; Threadgill, Paula; Kennedy, Betty; Strickland, Earline; Prewitt, T Elaine; Bogle, Margaret
This research aims to foster discourse about the extent to which gender is important to consider within the context of participatory approaches for biological conservation. Our objectives are to: (1) gender-disaggregate data about stakeholders' risk perceptions associated with human-wildlife conflict (HWC) in a participatory conservation context, and (2) highlight insights from characterizing gendered similarities and differences in the way people think about HWC-related risks. Two communal c...
Gore, Meredith L.; Kahler, Jessica S.
The ever greater role given to public participation by laws and regulations, in particular in the field of environmental management calls for new operational methods and tools for managers and practitioners. This paper analyses the potentials and the critical limitations of current approaches in the fields of simulation modelling (SM), public participation (PP) and decision analysis (DA), for natural resources management within the context of climate change research. The potential synergies o...
Giupponi, Carlo; Mys?iak, Jaroslav; Sgobbi, Alessandra
Full Text Available This paper describes the main features of a middleware for Ambient Assisted Living (AAL applications, exemplified along the SOPRANO research project. The contribution outlines main requirements towards the technical system and the elicitation methodology. The presented middleware allows for personalisation and flexible, extendible configuration of AAL solutions with low effort. Concerning the technical concept, the design approach as well as components, qualities and functionality of the AAL platform are depicted. Furthermore the methodology of requirements elicitation is discussed. It is explained how SOPRANO met the problem to elicit socio-technical system requirements in a user-centred manner, although the addressed target group is not expected to be able to express precise guidelines. SOPRANO („Service oriented programmable smart environments for older Europeans“, http://www.soprano-ip.org/ is a research project funded by the European Commission, which aims at the provision of a technical (AAL infrastructure to help elderly people to keep their independence and to stay in their familiar environment as long as possible. SOPRANO focuses on in-house support and emphasises well-being. It is a main goal to secure situation-aware assistance and help not only in case of emergencies but particularly as well in activities of daily living.
Achieving a good ecological status in water bodies by 2015 is one of the objectives established in the European Water Framework Directive. Cost-effective analysis (CEA) has been applied for selecting measures to achieve this goal, but this appraisal technique requires technical and economic information that is not always available. In addition, there are often local insights that can only be identified by engaging multiple stakeholders in a participatory process. This paper proposes to combine CEA with the active involvement of stakeholders for selecting cost-effective measures. This approach has been applied to the case study of one of the main coastal lagoons in the European Mediterranean Sea, the Mar Menor, which presents eutrophication problems. Firstly, face-to-face interviews were conducted to estimate relative effectiveness and relative impacts of a set of measures by means of the pairwise comparison technique. Secondly, relative effectiveness was used to estimate cost-effectiveness ratios. The most cost-effective measures were the restoration of watercourses that drain into the lagoon and the treatment of polluted groundwater. Although in general the stakeholders approved the former, most of them stated that the latter involved some uncertainties, which must be addressed before implementing it. Stakeholders pointed out that the PoM would have a positive impact not only on water quality, but also on fishing, agriculture and tourism in the area. This approach can be useful to evaluate other programmes, plans or projects related to other European environmental strategies. PMID:23669576
Perni, Angel; Martínez-Paz, José M
For the last 10 years, the Partnership for Citrus Workers Health (PCWH) has been an evidence-based intervention program that promotes the adoption of protective eye safety equipment among Spanish-speaking farmworkers of Florida. At the root of this program is the systematic use of community-based preventive marketing (CBPM) and the training of community health workers (CHWs) among citrus harvester using popular education. CBPM is a model that combines the organizational system of community-based participatory research (CBPR) and the strategies of social marketing. This particular program relied on formative research data using a mixed-methods approach and a multilevel stakeholder analysis that allowed for rapid dissemination, effective increase of personal protective equipment (PPE) usage, and a subsequent impact on adoptive workers and companies. Focus groups, face-to-face interviews, surveys, participant observation, Greco-Latin square, and quasi-experimental tests were implemented. A 20-hour popular education training produced CHWs that translated results of the formative research to potential adopters and also provided first aid skills for eye injuries. Reduction of injuries is not limited to the use of safety glasses, but also to the adoption of timely intervention and regular eye hygiene. Limitations include adoption in only large companies, rapid decline of eye safety glasses without consistent intervention, technological limitations of glasses, and thorough cost-benefit analysis. PMID:24911686
Tovar-Aguilar, J Antonio; Monaghan, Paul F; Bryant, Carol A; Esposito, Andrew; Wade, Mark; Ruiz, Omar; McDermott, Robert J
Recent literature suggests that dialogic forms of risk communication are more effective to build stakeholders' hazard-related social capacities. In spite of the high theoretical expectations, there is a lack of univocal empirical evidence on the relevance of these effects. This is mainly due to the methodological limitations of the existing evaluation approaches. In our paper we aim at eliciting the contribution of participatory river revitalisation projects on stakeholders' social capacity b...
Buchecker, M.; Menzel, S.; Home, R.
This case study provides a mid-course assessment of the Bronx Health REACH faith-based initiative four years into its implementation. The study uses qualitative methods to identify lessons learned and to reflect on the benefits and challenges of using a community-based participatory approach for the development and evaluation of a faith-based program designed to address health disparities. Key findings concern the role of pastoral leadership, the importance of providing a religious context fo...
Kaplan, Sue A.; Ruddock, Charmaine; Golub, Maxine; Davis, Joyce; Foley, Robert; Devia, Carlos; Rosen, Rosa; Berry, Carolyn; Barretto, Brenda; Carter, Toni; Irish-spencer, Evalina; Marchena, Maria; Purcaro, Ellenrita; Calman, Neil
Our community-based participatory research (CBPR) partnership engaged in a multi-step process to refine a culturally congruent intervention that builds on existing community strengths to promote sexual health among immigrant Latino men who have sex with men (MSM). The steps were: (1) increase Latino MSM participation in the existing partnership; (2) establish an Intervention Team; (3) review the existing sexual health literature; (4) explore needs and priorities of Latino MSM; (5) narrow prio...
Rhodes, Scott D.; Daniel, Jason; Alonzo, Jorge; Duck, Stacy; Garcia, Manuel; Downs, Mario; Hergenrather, Kenneth C.; Alegria-ortega, Jose; Miller, Aas; Boeving Allen, Alex; Gilbert, Paul A.; Marsiglia, Flavio F.
The authors conducted a systematic review of peer-reviewed literature on clinical trials between 2003 and 2010 that implemented the principles of community-based participatory research (CBPR). The review showed that CBPR-based trials covering a wide range of behavioral and clinical outcomes have achieved high success rates in recruiting and retaining ethnic and racial minorities in clinical research, and significant findings on positive intervention effects in these populations were developed.
This paper describes the development of a course module on sustainability issues and Education for Sustainable Development in German pre-service chemistry teacher education. The module was inspired by empirical research findings about the knowledge base of student teachers. It was created and cyclically refined using participatory action research. Experience gained during its three-year application will be reflected upon here, including feedback collected from student evaluation sheets. In th...
Mareike Burmeister; Ingo Eilks
This short paper outlines the background and prospects for a potential research agenda of Participatory Design (PD) in the area of collaborative transnational rule-making on global sustainability concerns. The paper adopts a pragmatic approach to interdisciplinary work, identifying new opportunities for PD by pointing to social science oriented processes that may be strengthened by the theory and practice of PD. With a theoretical foundation in legal philosophy on legitimacy and steps towards a deliberative democratic evolution of norms of conduct for global concerns, the paper is concerned with opportunities to involve a global citizenry in the evolution of norms of conduct that may affect the lives and futures of individuals. The paper describes research potential for PD towards enhancing information technology assisted inclusion of views, needs and concerns of individuals in transnational rule-making. It does so by drawing on the process that led to the 2011 United Nations Guiding Principles on Business and Human Rights. This process exemplifies challenges in collaborative and inclusive global rule-making that that may be assisted by increased and informed deployment of IT in order to enhance broad and balanced participation in the rule-making process
This short paper outlines the background and prospects for a potential research agenda of Participatory Design (PD) in the area of collaborative transnational rule-making on global sustainability concerns. The paper adopts a pragmatic approach to interdisciplinary work, identifying new opportunities for PD by pointing to social science oriented processes that may be strengthened by the theory and practice of PD. With a theoretical foundation in legal philosophy on legitimacy and steps towards a deliberative democratic evolution of norms of conduct for global concerns, the paper is concerned with opportunities to involve a global citizenry in the evolution of norms of conduct that may affect the lives and futures of individuals. The paper describes research potential for PD towards enhancing information technology assisted inclusion of views, needs and concerns of individuals in transnational rule-making. It does so by drawing on the process that led to the 2011 United Nations Guiding Principles on Business and Human Rights. This process exemplifies challenges in collaborative and inclusive global rule-making that that may be assisted by increased and informed deployment of IT in order to enhance broad and balanced participation in the rule-making process.
The purpose of this study was to understand student and teacher empowerment through a socially critical environmental education perspective. The main research question guiding this study was: How do participants make sense of a learning experience in which students design and carry out an environmental action project in their community? This study used participatory action research and critical theory as practical and theoretical frameworks. These frameworks were relevant as this study sought to examine social change, power, and relationships through participants' experiences. The context of this study was within one seventh and one eighth grade classroom participating in environmental projects. The study was conducted in spring 2005 with an additional follow-up data collection period during spring 2006. The school was located in a densely populated metropolitan suburb. Fifty-three students, a teacher researcher, and three science teachers participated. Data sources were written surveys, scores on Middle School Environmental Literacy Survey Instrument (MSELI), observations, interviews, and student work. This study used a mixed methodological approach. Quantitative data analysis involved dependent samples t-test scores on the MSELI before and after the completion of the projects. Qualitative data were analyzed using an inductive analysis approach. This study has implications for educators interested in democratic education. Environmental action projects provide a context for students and teachers to learn interdisciplinary content knowledge, develop personal beliefs, and learn ways to take action in their communities. This pedagogy has the potential to increase cooperation, communication, and tensions within school communities. Students' participation in the development of environmental action projects may lead to feelings of empowerment or being able to make a difference in their community, as an individual or member of a group. Future research is needed to discern why participants experience this type of educational experience differently, for example, how does the type of environmental action project influence individual and group empowerment?
Participatory budgeting is a reasonably well-established governance practice, particularly in South America. It is information and communication rich - making it well suited for modern technology support; in addition, the widespread participation of many citizens is difficult to achieve without this support. Participatory budgeting is associated with eParticipation, where much is already known about the kinds of technologies supporting citizen participation and how they are used. This paper identifies (from the existing literature) basic processes which are common to most participatory budgeting initiatives and couples them together in a generic process model. Two cases studies are examined for different purposes. The well known Porto Alegre case is analysed to show how the generic process model is implemented in a practical example. The more recent Berlin-Lichtenberg initiative, however, is integrated with a purpose-built internet platform; here we use the analysis to understand how the internet-based technologies are used to support the various participatory budgeting processes. We identify a range of these technologies which are currently used to support different eParticipation activities and match them to the generic participatory budgeting processes. This results in a comprehensive picture of how known eParticipation technologies can be used to support participatory budgeting. The next research question (unfortunately beyond the scope of this article) is how to choose - which technologies fit which local circumstances and conditions?
Rose, Jeremy; Rios, Jesus
Full Text Available Abstract Background We report on the challenges of obtaining Institutional Review Board (IRB coverage for a community-based participatory research (CBPR environmental justice project, which involved reporting biomonitoring and household exposure results to participants, and included lay participation in research. Methods We draw on our experiences guiding a multi-partner CBPR project through university and state Institutional Review Board reviews, and other CBPR colleagues' written accounts and conference presentations and discussions. We also interviewed academics involved in CBPR to learn of their challenges with Institutional Review Boards. Results We found that Institutional Review Boards are generally unfamiliar with CBPR, reluctant to oversee community partners, and resistant to ongoing researcher-participant interaction. Institutional Review Boards sometimes unintentionally violate the very principles of beneficence and justice which they are supposed to uphold. For example, some Institutional Review Boards refuse to allow report-back of individual data to participants, which contradicts the CBPR principles that guide a growing number of projects. This causes significant delays and may divert research and dissemination efforts. Our extensive education of our university Institutional Review Board convinced them to provide human subjects protection coverage for two community-based organizations in our partnership. Conclusions IRBs and funders should develop clear, routine review guidelines that respect the unique qualities of CBPR, while researchers and community partners can educate IRB staff and board members about the objectives, ethical frameworks, and research methods of CBPR. These strategies can better protect research participants from the harm of unnecessary delays and exclusion from the research process, while facilitating the ethical communication of study results to participants and communities.
Rudel Ruthann A
Full Text Available Lori MacCallum,1,2 Heather McGaw,1 Nazanin Meshkat,3 Alissia Valentinis,4 Leslie Beard Ashley,5 Rajan Sacha Bhatia,3,6,7 Kaye Benson,7 Noah Ivers,6,8 Kori Leblanc,2,7 Dante Morra3,5,7 1Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, 2Leslie Dan Faculty of Pharmacy, University of Toronto, 3Department of Medicine, University of Toronto, Toronto, 4Taddle Creek Family Health Team, Toronto, 5Trillium Health Partners, Mississauga, 6Women's College Hospital, Toronto, 7Centre for Innovation in Complex Care, University Health Network, Toronto, 8Department of Family and Community Medicine, University of Toronto, Toronto, ON, Canada Abstract: After identifying that significant care gaps exist within the management of atrial fibrillation (AF, a patient-focused tool was developed to help patients better assess and manage their AF. This tool aims to provide education and awareness regarding the management of symptoms and stroke risk associated with AF, while engaging patients to identify if their condition is optimally managed and to become involved in their own care. An interdisciplinary group of health care providers and designers worked together in a participatory design approach to develop the tool with input from patients. Usability testing was completed with 22 patients of varying demographics to represent the characteristics of the patient population. The findings from usability testing interviews were used to further improve and develop the tool to improve ease of use. A physician-facing tool was also developed to help to explain the tool and provide a brief summary of the 2012 Canadian Cardiovascular Society atrial fibrillation guidelines. By incorporating patient input and human-centered design with the knowledge, experience, and medical expertise of health care providers, we have used an approach in developing the tool that tries to more effectively meet patients' needs. Keywords: patient education, atrial fibrillation, care gaps, patient care tools, patient self-assessment
The authors are involved in a project aiming at the development of a methodology for participatory modeling as a tool for public participation in water resource management. In this paper, some examples of different degrees of stakeholder influence in six key dimensions of participatory modeling are identified and discussed. Arnstein's (A ladder of citizen participation. Journal of the American Institute of Planners, 1969, 4, 216-224) critical discussion of different degrees of "real" decision-making power is taken as a point of departure to assess possible degrees of stakeholder influence. Can we as participatory modelers be sure that we are really inviting our research objects to an equal communicative relationship where local perspectives, knowledge and priorities are respected to the same extent as central and/or expert perspectives? This paper presents an approach that could be used as a tool for structured reflection to avoid unreflective tendencies towards expert knowledge dominance and low degree of stakeholders' real influence over the process. PMID:17711017
Jonsson, A; Andersson, L; Alkan-Olsson, J; Arheimer, B
The article discusses Arizona's strategic implementation and evaluation of the first time motherhood initiative grant (FTMI) to understand preconception health among African American men and women in Arizona. Longitudinal focus groups assessed whether African American men and women in the targeted areas comprehended and recalled the messages related to preconception health. Matched pre and posttests assessed community members' knowledge of preconception as well as physicians' perceptions on preconception health and care. Focus-group data were transcribed and coded by independent coders to conduct content analyses. Inter-rater reliability and agreement among coders, bivariate and multivariate statistics were conducted for quantitative matched pre and posttests data using SAS v9.2 (SAS Institute, Cary, NC). The social marketing campaign had limited impact in recall and comprehension of the preconception health message among African American men and women. Data from focus groups revealed that African American men and women perceived preconception health to be vital. And results from the pretest and posttests of community-based presentations, further supported this finding. Evidence from Grand Round presentations indicated that practitioners and health care providers had diverging views on preconception health. Use of community-based participatory mixed methods research can facilitate better understanding of the efficacy of strategic interventions such as FTMI and can provide valuable information on preconception health. Cost limitations often prohibit extensive evaluation of social marketing campaigns, hence, evaluators and researchers should assess the feasibility of conducting an efficacy study versus an effectiveness study in evaluating social marketing campaigns. PMID:23229170
Hussaini, Khaleel S; Hamm, Eric; Means, Toni
The paper describes our usage of and experience with the method of participatory systems mapping. The method, developed for the purpose of facilitating knowledge brokerage, builds on participatory modelling approaches and applications and was used in several events involving both researchers and policy makers. The paper presents and discusses examples of how different types of participatory interaction with causal loop diagrams (‘system maps’) produced different insights on issues related to sustainable consumption and enabled participatory reflection and sharing of knowledge. Together, these insights support a systemic understanding of the issues and Thus the method provides instruments for coping with complexity when formulating policies for sustainable consumption. Furthermore the paper discusses the ability of the method—and its limits—to connect mental models of participants through structured discussion and thus bridge boundaries between different communities.
Sedlacko, Michal; Martinuzzi, Andre
This research paper presents the outcomes of Work Package 5 (socio-economical vulnerability assessment and community-based disaster risk reduction) of the MIAVITA (MItigate and Assess risk from Volcanic Impact on Terrain and human Activities) research programme conducted on Fogo Volcano, Cape Verde. The study lasted for almost 3 years (May 2010 to January 2012), of which most of the time was spent in the village of Chã das Caldeiras, situated within the 9 km wide caldera...
Texier-teixeira, P.; Chouraqui, F.; Perrillat-collomb, A.; Rom-cadag, J.; Gaillard, J. -c; Lavigne, F.; Grancher, D.
This research paper presents the outcomes of the Work Package 5 (Socio-economical Vulnerability Assessment and Community-Based Disaster Risk Reduction) of the MIAVITA Research Program (MItigate and Assess risk from Volcanic Impact on Terrain and human Activities) conducted in Fogo Volcano, Cape-Verde. The study lasted for almost 3 yr (May 2010–January 2012) of which most of the time was spent in the village of Chã das Caldeiras, situated within the 9 km-wide calder...
Texier-teixeira, P.; Chouraqui, F.; Perrillat-collomb, A.; Lavigne, F.; Cadag, J. R.; Grancher, D.
Approaches to natural resource management are often based on a presumed ability to predict probabilistic responses to management and external drivers such as climate. They also tend to assume that the manager is outside the system being managed. However, where the objectives include long-term sustainability, linked social-ecological systems (SESs) behave as complex adaptive systems, with the managers as integral components of the system. Moreover, uncertainties are large and it may be difficu...
Jon Norberg; Louis Lebel; Janssen, Marco A.; Graeme Cumming; Nick Abel; Anderies, John M.; Carpenter, Stephen R.; Brian Walker; Peterson, Garry D.; Rusty Pritchard
Full Text Available The article seeks to specify the requirements of the framework for public participation in policy making on the governmental level aiming to elaborate a substantial content of the participatory policy. The research methodology engages both qualitative and quantitative approaches based on document analysis and interviews. We analysed a range of documents, issued by the Ministry of Education and Science of the Republic of Lithuania, where participatory groups are nominated for the annual terms of 2007 and 2010. Results of the research testify that, notwithstanding the considerable number of participatory facts, public administrators hold more than a half of the places in the participatory groups. Stakeholders other than public administrators are considered to be rather consultants than partners in policy development. We suggest that for a substantial, effective and efficient participation framework, several requirements should be met including a correct arena for stakes’ expression; completeness of the stake representation; balanced stake representation; sensitivity to research based evidence; monitoring and evaluation of participation quality.
Full Text Available Approaches to natural resource management are often based on a presumed ability to predict probabilistic responses to management and external drivers such as climate. They also tend to assume that the manager is outside the system being managed. However, where the objectives include long-term sustainability, linked social-ecological systems (SESs behave as complex adaptive systems, with the managers as integral components of the system. Moreover, uncertainties are large and it may be difficult to reduce them as fast as the system changes. Sustainability involves maintaining the functionality of a system when it is perturbed, or maintaining the elements needed to renew or reorganize if a large perturbation radically alters structure and function. The ability to do this is termed “resilience.” This paper presents an evolving approach to analyzing resilience in SESs, as a basis for managing resilience. We propose a framework with four steps, involving close involvement of SES stakeholders. It begins with a stakeholder-led development of a conceptual model of the system, including its historical profile (how it got to be what it is and preliminary assessments of the drivers of the supply of key ecosystem goods and services. Step 2 deals with identifying the range of unpredictable and uncontrollable drivers, stakeholder visions for the future, and contrasting possible future policies, weaving these three factors into a limited set of future scenarios. Step 3 uses the outputs from steps 1 and 2 to explore the SES for resilience in an iterative way. It generally includes the development of simple models of the system’s dynamics for exploring attributes that affect resilience. Step 4 is a stakeholder evaluation of the process and outcomes in terms of policy and management implications. This approach to resilience analysis is illustrated using two stylized examples.
Activities that are fun, social, engaging and put something at stake are positive for your health no matter age or condition. What can you do if you suffer from dementia and are living at a Special Housing? According to research you should dance, visit the garden, get tactile massage discuss artworks etc. Still, despite all these proposals there are many voices from this domain, telling stories about living without live. Suffering from dementia may affect your ability to speak for your self a...
Engagement in collaborative learning and knowledge building activities is still a big challenge for many workplace-learning designers. Especially in highly competitive environments people might be reluctant to give away too much of their tacit knowledge. A feeling of ownership and an involvement of the individual in the planning of the learning activities can be important motivational factors. In an international research project called IntelLEO – Intelligent Learning Extended Organization ...
Barbara Kieslinger; Kai Pata; Claudia Magdalena Fabian
Farmer Field Schools (FFS) is a well-known concept, which is widely used in many types of farming systems in the Global South. In this report different approaches to FFS adjusted to Ugandan smallholder dairy systems and to Danish organic dairy systems are explored and discussed. The report is based on a Master Thesis in Health Anthropology and a mini manual to the so-called Stable Schools. Improvements of farming practices should be based on the context of the individual farm and include the goals of the farmer and the farming system. This should be the case in all types of farming systems. Viewing learning as a social phenomenon and process, as well as an interaction between the learner and the learning environment (including other farmers) may give opportunities for context based innovations and developments towards a common goal in a group of farmers.
Despite the fact that many measures to attenuate flood hazards and reduce vulnerabilities are being implemented, adverse effects of floods are ever-increasing in most parts of the world. On the one hand this holds true for economically and/or demographically growing regions. On the other hand this applies also to areas that face population shrinkage and economic problems. Such flood risks occur in human-environment systems and are subject to dynamics caused by a number of drivers such as climate change, land-use changes, and others. Many drivers evolve slowly over time or show time-lag effects and long return periods. Moreover, certain decisions may determine the control actions of the following decades. At present, current flood risks are mostly determined based on historic developments and the ex post analysis of flood events. Approaches that look at the future dynamics of both hazards and vulnerable elements ex ante in an integrated manner are rare. Instead, future hazard scenarios are often just overlaid with current socio-economic data, which poses a strong inconsistency. Usually the focus lies on rather short-term, specific or local problems. But many developments and measures show their effects only after long time periods and when considering the whole catchment area. This calls for a holistic and long-term view into the future and implies the challenge of dealing with many uncertainties due to the system's complexity. In order to anticipate and react to these developments, this contribution suggests developing a flexible, yet holistic approach to design, analyse and evaluate alternative futures of such human-environment systems. These futures follow a scenario understanding that considers both specific (current) factor constellations as well as consistent assumptions on autonomous developments (so-called development frameworks) and potentials for control (strategic alternatives) of the interacting entities that influence flood risk. Different scenario concepts and the application of respective techniques are thus reviewed and incorporated with regard to their suitability for an integrated management of current and future flood risks. In particular, "hybrid scenarios" with qualitative and quantitative components represented by nested models as well as assumptions across different spatiotemporal scales, respectively, are suggested for dealing with the uncertainties when assessing flood risks throughout a system's possible evolution. The (initially top-down developed) approach and its components will be briefly presented. These "scenario products" could later serve as a stimulus for discussions that bring together different actors and enhance - and eventually legitimise - the scenarios further in a "scenario process": (1) A first step is the conceptualisation of a flood risk system following the SPRC-model. Its physical geographical and anthropogenic factors may either be subject to autonomous trends, target-oriented control, or facultative system behaviour (e.g. dike breaches). With this concept, the integration of different processes and scales is aspired. (2) Secondly, it is conceptually shown how the risk cascade for present and future states of the flood risk system can be calculated based on coupled models ranging from climate change projections to a damage simulation models. (3) Thirdly, ways to develop socioeconomic storylines for the development frameworks and guiding principles for the strategic alternatives are presented and the futures are combined. This involves making plausible and consistent assumptions for many system factors and their drivers and finding ways to harmonise existing data for the same areas and time steps. (4) Fourthly, selected futures can be analysed and evaluated ex ante applying the coupled models of the second step to derive the emerging flood risks. The evaluation addresses, amongst other aspects, the identification of (i) the sensitivity of all scenarios against the current strategic alternative; (ii) the resulting risks when applying different str
Background: There is comparatively little published research that transparently charts the contribution of people with an intellectual disability to a collaborative research process. This paper illustrates the process of data analysis in a project located within the Emancipatory Disability Research (EDR) paradigm. Materials and Methods: Textual…
Abstract Background In order to select priority hotspots for environment and health research in Flanders (Belgium), an open procedure was organized. Environment and health hotspots are strong polluting point sources with possible health effects for residents living in the vicinity of the hot spot. The selection procedure was part of the work of the Flemish Centre of Expertise for Environment and Health, which investigates the relation between environmental pollution and human health. The proj...
Chovanova Hana; Van Campenhout Karen; Springael Johan; Loots Ilse; Koppen Gudrun; Colles Ann; Croes Kim; Morrens Bert; Keune Hans; Schoeters Greet; Nelen Vera; Baeyens Willy; Van Larebeke Nik
Enthusiasm for community-based participatory research (CBPR) is increasing among health researchers and practitioners in addressing health disparities. Although there are many benefits of CBPR, such as its ability to democratize knowledge and link research to community action and social change, there are also perils that researchers can encounter that can threaten the integrity of the research and undermine relationships. Despite the increasing demand for CBPR-qualified individuals, few programs exist that are capable of facilitating in-depth and experiential training for both students and those working in communities. This article reviews the Partnerships in Community Health Research (PCHR), a training program at the University of British Columbia that between 2001 and 2009 has equipped graduate student and community-based learners with knowledge, skills, and experience to engage together more effectively using CBPR. With case studies of PCHR learner projects, this article illustrates some of the important successes and lessons learned in preparing CBPR-qualified researchers and community-based professionals in Canada. PMID:21057046
Masuda, Jeffrey R; Creighton, Genevieve; Nixon, Sean; Frankish, James
Ethical principles of community-based participatory research (CBPR)--specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability--stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR. PMID:23124502
Smith, Selina A; Blumenthal, Daniel S
Conducting research with communities constructed as the "other" from a purely positivist paradigm can often be replete with colossal flaws with enormous potential to oppress the researched--especially minority communities in this case. This article presents an analysis of the cultural and experiential affinity experiences of the author…
Full Text Available This paper describes a collaborative process of identifying and prioritising current and future water research questions from a wide range of water specialists within South Africa. Over 1 600 questions were collected, reduced in number and prioritised by specialists working in water research and pra [...] ctice. A total of 59 questions were finally proposed as an outcome of the study and are categorised under the themes of change, data, ecosystems, governance, innovation and resources. The questions range in scale, challenge and urgency, and are also aligned with prevailing paradigms in water research. The majority of the questions dealt with relatively short- to medium-term research requirements and most focused on immediate issues such as water supply, service delivery and technical solutions. Formulations of long-term research questions were sparse, partly because some of the principles and methods used in this study were difficult to apply in the South African context, and also because researchers are influenced by addressing what are believed to be the more immediate, short-term water-related challenges in South Africa. This is the first initiative of its kind to produce a comprehensive and inclusive list of research priorities for water in South Africa.
RM, Siebrits; K, Winter; J, Barnes; MC, Dent; G, Ekama; M, Ginster; J, Harrison; B, Jackson; I, Jacobs; A, Jordaan; HC, Kasan; W, Kloppers; R, le Roux; J, Maree; MNB, Momba; AV, Munnik; J, O' Keeffe; R, Schulze; M, Silberbauer; D, Still; JE, van Zyl.
Beyond the initial phases of systems design Participatory Design has potentiality to include operation and maintenance of IT systems in organizations. The paper presents this argument through reports from case studies of local IT-support coined ‘participatory IT-support’. The paper presents characteristics of participatory Itsupport and suggests a method for identifying qualified candidates for the support position in the organization.
Kanstrup, Anne Marie; Bertelsen, Pernille
Wesseh Cucu. Thesis: Futistreffit – analysis and evaluation. Language: English. Content: 53 pages, 2 appendices. Degree: Bachelor of Social Services. Focus: Community Development. Institution: Diaconia University of Applied Sciences, Järvenpää The aim of this research is to examine football as a positive youth development tool for Learning-Integration. It focuses on community youth work and uses action research as the prime method of analysis and evaluation. The subject of re...
The article discusses interviews as participatory reflexive observation. It is based on experiences of interviewing policymakers and researchers about knowledge and evidence in health promotion. This particular group of informants challenged an approach to interviews as getting informants to describe their everyday work life. By employing a methodological framework focusing on reflexive processes, interviews became consensual interactions, and the content of the interviews turned out to be analyses, interpretations and meaning making, that is, knowledge production. Interpretation and meaning making drew on ideologies, norms and values central to the field and thereby the strategies employed by the informants as well as by the researcher could be seen as wayfaring strategies; creating the paths in the field as they go along. Such an approach to interviews opens up the creative character of knowledge production and points out the role of the researcher as an active participant in the creative process.
Kauffmann, Lene Teglhus
In 2007, two years after Hurricane Katrina, several education and child advocacy groups began discussing the depleted conditions of the New Orleans public school district. These groups came together to discuss how to create a sustainable education reform movement post Katrina. New Orleans-based community groups and outside university researchers…
Johnson-Burel, Deirdre; Drame, Elizabeth; Frattura, Elise
Full Text Available Objectives . This article synthesizes discussion of collaborative research results, interventions and policy engagement for St Lawrence Island (SLI, Alaska, during the years 2000–2012. Methods . As part of on-going community-based participatory research (CBPR studies on SLI, 5 discrete exposure-assessment projects were conducted: (a a biomonitoring study of human blood serum; (b–d 3 investigations of levels of contaminants in environmental media at an abandoned military site at Northeast Cape – using sediment cores and plants, semi-permeable membrane devices and blackfish, respectively; and (e a study of traditional foods. Results . Blood serum in residents of SLI showed elevated levels of polychlorinated biphenyls (PCBs with higher levels among those exposed to the military site at Northeast Cape, an important traditional subsistence-use area. Environmental studies at the military site demonstrated that the site is a continuing source of PCBs to a major watershed, and that clean-up operations at the military site generated PCB-contaminated dust on plants in the region. Important traditional foods eaten by the people of SLI showed elevated concentrations of PCBs, which are primarily derived from the long-range transport of persistent pollutants that are transported by atmospheric and marine currents from more southerly latitudes to the north. Interventions . An important task for all CBPR projects is to conduct intervention strategies as needed in response to research results. Because of the findings of the CBPR projects on SLI, the CBPR team and the people of the Island are actively engaging in interventions to ensure cleanup of the formerly used military sites; reform chemicals policy on a national level; and eliminate persistent pollutants internationally. The goal is to make the Island and other northern/Arctic communities safe for themselves and future generations. Conclusions . As part of the CBPR projects conducted from 2000 to 2012, a series of exposure assessments demonstrate that the leaders of SLI have reason to be concerned about the health of people due to the presence of carcinogenic chemicals as measured in biomonitoring and environmental samples and important traditional foods.
Pamela K. Miller
Palliative care researchers face many ethical and practical challenges. In particular, recruitment has proven difficult. New methodologies and methods need to be developed if barriers are to be overcome. This paper presents an example of a participatory approach to research with people receiving palliative care services. The approach was used for recruitment into an in-depth multi-methods study of weight loss and eating difficulties experienced by people with advanced cancer. Methods included a survey of patients on the case-loads of two community palliative care teams working in the South of England in 2003. The questionnaire was returned by 199 patients, 58% of the total patient population under the care of the two teams. Benefits of the approach taken are detailed, but also issues that emerged across the course of recruitment, thus highlighting points of interest for palliative care researchers. It is proposed that the success of the recruitment process can be attributed to the adoption of a context specific participatory approach. Successful recruitment into the study challenges the widely held belief that, for practical and ethical reasons, it is inappropriate to study people who are approaching the end of life. It demonstrates that a participatory approach enables clinical practice and research to share decision making and values, leading to a feasible and successful recruitment process that is acceptable to clinicians, researchers and patients. PMID:16295285
Hopkinson, Jane B; Wright, David N M; Corner, Jessica L
Background: Delirium is a common complication for older people in hospital. Evidence suggests that delirium incidence in hospital may be reduced by about a third through a multi-component intervention targeted at known modifiable risk factors. We describe the research design and conceptual framework underpinning it that informed the development of a novel delirium prevention system of care for acute hospital wards. Particular focus of the study was on developing an implementation process aime...
Godfrey, Mary; Smith, Jane; Green, John; Cheater, Francine; Inouye, Sharon K.; Young, John B.
Full Text Available Where disenfranchised groups such as women, immigrants and people of color more generally were either excluded from the academy or not thought to have important 'stories' to tell, several qualitative methodologies now value these voices, in large measure because disenfranchised research participants have an understanding in their bodies of what it means to be exposed to patriarchy, racism, classism, heterosexism, ableism, xenophobia and other complex forms of oppression (Gitlin, 2007, p.1.
In the United States, the agricultural industry is dependent on men and women from Mexico who migrate throughout the country to participate in the care and harvest of crops. They often migrate independently of their families and leave loved ones behind. Separation from families and difficult working conditions create high frequencies of mental health issues. When available, the farmworkers seek out treatment for the somatic symptoms such as high heart rate, upset stomachs, and difficult breathing often associated with depression and anxiety. Mental health counselors and facilities often are not able to meet the needs in culturally sensitive ways presented by this population. The purpose of this study was to examine the effects of music therapy on Mexican farmworkers’ levels of depression, anxiety, and social isolation. In addition, this study sought to examine how the migrant farmworkers used music-making sessions between music therapy sessions as a coping skill to further improve their overall mental health. Finally, this study sought to examine how migrant farmworkers engaged in the research process and how they valued their relationship with the researcher. This study utilized a mixed methods approach incorporating a randomized control trial with repeated measures and participatory action research. A total of 125 farmwokers participated in this study over the course of two distinct phases. Farmworkers in Phase I were randomly assigned to music therapy, English as a second language classes, and a stress education (control) group. Farmworkers in Phase II were randomly assigned to music therapy or a comparison stress education group. Farmworkers in the music therapy condition participated in 6-10 music therapy sessions during which time they learned how to play an instrument, engaged in song writing and lyric analysis, and group music-making. Results indicated that participants in the music therapy condition across both phases did not significantly improve their depression, anxiety, and social isolationscores compared to the control/comparison group. The farmworkers who did participate in group musicmaking between sessions did improve their scores more so than participants who did not engage in weekly group music-making. The farmworkers identified helpful and impeding aspects of the research through focus group interviews. They also identified components of their relationship to the music therapist/researcher that were helpful in establishing and developing a relationship with her.
Farmer participatory research is not only a significant concept today but it has become an essential approach to certain aspects of contemporary agricultural research. The CGIAR has already launched a system wide program on participatory research to assess the effectiveness of this approach in plant breeding, natural resources management and gender analysis. The need for participatory research arose when some of the superior technologies identified based on the tests at experiment stations failed to gain acceptance/popularity with resource poor farmers. In most cases, there was nothing wrong with the technologies but farmers did not have access to the recommended inputs and without inputs, the new technologies were poorer, equal to or marginally better than what farmers were using. The apparent lacuna was the lack of testing of new technologies in divers conditions including marginal environments without inputs to ensure superior performance under all conditions. Since all possible test conditions cannot be created at the experiment station, it is now generally agreed that farmer participation at strategic stages may be helpful in developing improved technologies intended for resource poor conditions and traditional cropping systems. The farmer participation ensures use of indigenous knowledge, farmer's perception about the acceptable plant types, seed types and use patterns. It also permits testing of selected materials in diverse conditions and farmer to farmer diffusion of improved technologies
Full Text Available Abstract Background Community-based participatory research (CBPR has been recognized as an important approach to develop and execute health interventions among marginalized populations, and a key strategy to translate research into practice to help reduce health disparities. Despite growing interest in the CBPR approach, CBPR initiatives rarely use experimental or other rigorous research designs to evaluate health outcomes. This behavioral study describes the conceptual frameworks, methods, and early findings related to the reach, adoption, implementation, and effectiveness on primary blood pressure outcomes. Methods The CBPR, social support, and motivational interviewing frameworks are applied to test treatment effects of a two-phased CBPR walking intervention, including a 6-month active intervention quasi experimental phase and 12-month maintenance randomized controlled trial phase to test dose effects of motivational interviewing. A community advisory board helped develop and execute the culturally-appropriate intervention components which included social support walking groups led by peer coaches, pedometer diary self-monitoring, monthly diet and physical activity education sessions, and individualized motivational interviewing sessions. Although the study is on-going, three month data is available and reported. Analyses include descriptive statistics and paired t tests. Results Of 269 enrolled participants, most were African American (94% females (85% with a mean age of 43.8 (SD = 12.1 years. Across the 3 months, 90% of all possible pedometer diaries were submitted. Attendance at the monthly education sessions was approximately 33%. At the 3-month follow-up 227 (84% participants were retained. From baseline to 3-months, systolic BP [126.0 (SD = 19.1 to 120.3 (SD = 17.9 mmHg; p Conclusions This CBPR study highlights implementation factors and signifies the community's active participation in the development and execution of this study. Reach and representativeness of enrolled participants are discussed. Adherence to pedometer diary self-monitoring was better than education session participation. Significant decreases in the primary blood pressure outcomes demonstrate early effectiveness. Importantly, future analyses will evaluate long-term effectiveness of this CBPR behavioral intervention on health outcomes, and help inform the translational capabilities of CBPR efforts.
It has been said that governmental bureaucracies lack the animating life force that is normally provided by the human conscience. Research efforts that include patients and their representatives in the planning and regulatory process can add back this animating life force, a force Friedrich Wilhelm Nietzsche describes "... that your self be in your deed as the mother is in her child-let that be your word concerning virtue." This paper comprises our invited introductory remarks as patient activists at this symposium, entitled "The Menstrual Cycle and Adolescent Health" and held in Potomac, Maryland in mid October 2007. Attendees included patients, patient advocates, and experts from a variety of fields and disciplines. While our stories have their share of pain, that pain developed into a passion to help others in similar circumstances. A consortium of passionate community activists interested in the menstrual cycle could play the role as a "governmental conscience" around this issue. Developing a community consortium initiated via partnerships between patient advocates and investigators could direct more attention and funding toward menstrual cycle research. PMID:18574202
Hijane, Karima; Heyman, Carly; Bell, Maureen; Busby, Mary Beth
While many researchers have worked to address the unequal educational outcomes between White and non-White students, there are few signs of progress for people of color seeking entry into a STEM career trajectory. Starting from high school, the number of students who persist to complete a STEM bachelor's degree and obtaining a job in science or engineering continues to indicate that people of color are underrepresented. I suggest that research must consider the role of race and racism in the education of youth of color. Especially in science education, there is very little work addressing how racism may present barriers that impede progress for students along the STEM trajectory. This study is informed by critical race theory (CRT) that posits racism is endemic in society. White privilege enables the dominant group to maintain inequitable advantages that marginalizes populations of color. CRT also puts forth that counter narratives of the marginalized groups is essential to challenge the institutionalized forms of oppression. Using CRT and youth participatory action research (YPAR), this investigation re-imagines youth as capable of transforming their own social and political condition through research and action. This project asked youth of color to interrogate their own experiences as science learners, engage in research on structural inequities of STEM trajectories, plan strategic moves to challenge power structures, and take action for social justice. The youth started by exploring the concept of race and instances where racism was found in public spaces and in their personal experiences. They examined their experiences in science as a student more generally and then for racism. Then, the focus turned to conducting research with peers, observing science classrooms in another school, and using online information to compare schools. The youth planned strategic action against the racism they found in the analysis of the data that included conference presentations, using social media to communicate with peers, and teaching a science unit for middle grades peers using lessons that incorporated engaging teaching practices lacking in their student experiences. YPAR resulted in counternarratives that exposed youth encounters with systemic racism and their efforts to positively change STEM trajectories for themselves and their peers. Through YPAR, youth gained research tools and skills to critically examine the world and expose racism. While schools are purported to be places of equal opportunity for all students to learn and find success, the youth showed that institutionalized racism in schools created barriers to STEM aspirations. By planning and teaching a food and nutrition unit, the youth took aim at the institutionalized racism by taking on the role of teacher and expert while improving the science learning opportunities for their middle grades peers and themselves. In addition, planning the unit enabled the youth to conduct all of the activities before teaching the unit. Thus, the youth supplemented their own science learning. YPAR provided an empowering opportunity to challenge racism along their STEM trajectories and fight for social justice.
Sato, Takumi C.
This book investigates the notion of beauty in participatory art, an interdisciplinary form that necessitates the audience’s agential participation and that is often seen in interactive art and technology-driven media installations. After considering established theories of beauty, for example, Plato, Alison, Hume, Kant, Gadamer and Santayana through to McMahon and Sartwell, Heinrich argues that the experience of beauty in participatory art demands a revised notion of beauty; a conception that accounts for the performative and ludic turn within various art forms and which is, in a broader sense, a notion of beauty suited to a participatory and technology-saturated culture. Through case studies of participatory art, he provides an art-theoretical approach to the concept of performative beauty; an approach that is then applied to the wider context of media and design artefacts.
This case study provides a mid-course assessment of the Bronx Health REACH faith-based initiative four years into its implementation. The study uses qualitative methods to identify lessons learned and to reflect on the benefits and challenges of using a community-based participatory approach for the development and evaluation of a faith-based program designed to address health disparities. Key findings concern the role of pastoral leadership, the importance of providing a religious context for health promotion and health equality messages, the challenges of creating a bilingual/bi-cultural program, and the need to provide management support to the lay program coordinators. The study also identifies lessons learned about community-based evaluation and the importance of addressing community concern about the balance between evaluation and program. Finally, the study identifies the challenges that lie ahead, including issues of program institutionalization and sustainability. PMID:20168022
Kaplan, Sue A; Ruddock, Charmaine; Golub, Maxine; Davis, Joyce; Foley, Robert; Devia, Carlos; Rosen, Rosa; Berry, Carolyn; Barretto, Brenda; Carter, Toni; Irish-Spencer, Evalina; Marchena, Maria; Purcaro, Ellenrita; Calman, Neil
Changes in rainfall patterns and temperatures are likely to affect water resources in India. Also, changes in the extreme events will have direct implications on life and property. Adapting to the adverse effects of climate change becomes critical to avoid huge material and immaterial damages. This paper discusses the use of a multi-level and participatory approach to develop adaptation options to deal with climate related risks in a manner that contributes to stakeholder engagement, understanding of the risks, identification of the adaptation responses as well as its prioritization for risk reduction. It highlights the importance of involving stakeholders from multiple levels as each level corresponds with different priorities in adaptation options. PMID:23845508
Bhadwal, Suruchi; Groot, Annemarie; Balakrishnan, Sneha; Nair, Sreeja; Ghosh, Sambita; Lingaraj, G J; van Scheltinga, Catharien Terwisscha; Bhave, Ajay; Siderius, Christian
What impact does culture have on tools and techniques that are used to facilitate cooperation amongst stakeholders in Information Communication Technology (ICT) design projects? This is a question facing the ICT development activities at the World Maritime University in Malmö, Sweden. At the university around 300 staff and students from 90 different countries come together every year. Continuously finding ways to improve how they can actively participate in design activitie...
Full Text Available Este trabalho objetiva destacar a importância do orçamento participativo como fonte de inclusão social na sociedade intensiva de informação, em conjunto com os postulados da Ciência da Informação. O modelo participativo de gestão do orçamento participativo apresenta sinais de possibilidades de const [...] rução de um método provedor de democracia, e, nesse processo, a informação torna-se insumo inestimável. Nesse contexto, a Ciência da Informação surge como uma teia de formulações com laços concomitantes para que o acesso, a disseminação, o registro e a organização das informações produzidas sejam transformadas em realidades, sugerindo, ademais, proposições de ordem educativa para a cidadania. No atual momento de transição histórica e cultural da sociedade brasileira, comunidades e pessoas excluídas econômica e socialmente têm a possibilidade de participar do processo de gestão democrática mediante o orçamento participativo. Esses núcleos de compartilhamento de informações, conhecimentos e saberes tendem a contribuir para criar alternativas de transformação do espaço social, de modo a promover a inclusão dos grupos sociais menos favorecidos no acesso à informação. Abstract in english This work proposes highlighting the importance of participatory budgeting as a source of social inclusion in the intensive information society, in conjunction with the premises of Information Science. The model of participatory budget management shows signs of the possibility of constructing a metho [...] d that provides democracy, in which case the information becomes an invaluable input. In this context, information science emerges as a web of formulations with concurrent ties, permitting the dissemination, recording and organization of the information produced to be transformed into reality, suggesting, moreover, propositions of an educational order for citizens. At the present moment of historical and cultural transition through which we are passing in Brazilian society, communities and economically and socially excluded individuals have the chance to participate in the process of democratic management through participatory budgeting. These clusters of information sharing, knowledge and wisdom tend to contribute to the creation of alternatives for the transformation of social space in order to promote the inclusion of disadvantaged social groups in terms of access to information.
Alex de Araujo, Lopes; Isa Maria, Freire.
Full Text Available Environmental and limnological monitoring is of interest to government agencies, researchers, and the general public. In communities that rely on and are heavily affected by lakes and their watersheds, accessible and intuitive presentation of lake properties influences and aids decision-making, interventions, and the formulation of environmentally sound policies. In this paper, interactive web-based visualizations are employed as a mechanism to communicate environmental information collected from a commercial cruise vessel. A pilot study is presented for monitoring Lake Nipissing, a large culturally and environmentally important lake in northeastern Ontario, Canada. This example of community-based participatory research suggests that: (1 policy makers and researchers can quickly gain insight into what is happening in the lake through visualizations, which helps to direct subsequent, detailed investigations; and (2 through accessible, visual presentation, community members may be encouraged to become involved in contributing to environmental policies that directly affect them, thereby supporting environmental “citizen science”.
Mark P. Wachowiak
This paper argues that participation in natural resource management, which is often coupled with moves for more local ownership of decision making, is based on three sets of assumptions: about the role of the state, the universality of application of such approaches and the transformatory potential of institutional reform. The validity of these assumptions requires investigation in view of the rapid institutionalisation and scaling-up of participatory approaches, particularly in developing country contexts. Post-apartheid South Africa is widely recognised as a pioneer of participatory and devolutionary approaches, particularly in the field of water resources. It is 12 years since the promulgation of the forward-thinking 1998 National Water Act, and thus an opportune moment to reflect on South Africa's experiences of participatory governance. Drawing on empirical research covering the establishment of the first Catchment Management Agency, and the transformation of existing Irrigation Boards into more inclusive Water User Associations in the Inkomati Water Management Area, it emerges that there may be fundamental weaknesses in the participatory model and underlying assumptions, and indeed such approaches may actually reinforce inequitable outcomes: the legacy of long-established institutional frameworks and powerful actors therein continues to exert influence in post-apartheid South Africa, and has the potential to subvert the democratic and redistributive potential of the water reforms. It is argued that a reassessment of the role of the state is necessary: where there is extreme heterogeneity in challenging catchments more, rather than less, state intervention may be required to uphold the interests of marginalised groups and effect redistribution. PMID:21941692
Full Text Available This paper describes the development of a course module on sustainability issues and Education for Sustainable Development in German pre-service chemistry teacher education. The module was inspired by empirical research findings about the knowledge base of student teachers. It was created and cyclically refined using Participatory Action Research. Experience gained during its three-year application will be reflected upon here, including feedback collected from student evaluation sheets. In the end, the participants responded extremely positively to the course. The student teachers stated that the module was interesting, relevant and valuable for their later profession as high school chemistry teachers. They also emphasised that they now felt more competent in the area of sustainability and ESD.
The aim was to link necessary research skills to increase the range of options available to resource-poor farmers in the study area. The research consisted of on-station research to evaluate and understand cropping-system options resulting from insertion of a legume crop into the sorghum and castor system, on-farm research whereby farmers evaluate cropping-system options that are of interest to them, use of 15N as a label to help understand the nitrogen (N) balance of the various options, and cropping-systems simulation to examine long-term climatic risks from possible options. Particular attention was placed on the option of sorghum/pigeon pea intercrops, and on quantifying the inputs of N from animal manure and by the pigeon-pea component. We were also interested in the process of linking on-station to on-farm research, and simulation modelling to the cropping system research. One important outcome was that different groups identified different problems and posed different questions. The problems identified and questions raised were examined by use of scenario analyses run for ten to thirty years which contrasted the existing practice with a range of alternative practices. The simulations were useful in guiding the design of on-farm experiments. Other likely outcomes are the setting of low-rate fertilizer recommendations specifically for the semi-arid tropics, the marketing of small packs of fertilizers, and increased use of manure resources for crop prodased use of manure resources for crop production. (author)
Background: Participatory approaches to qualitative research practice constantly change in response to evolving research environments. Researchers are increasingly encouraged to undertake secondary analysis of qualitative data, despite epistemological and ethical challenges. Interpretive focus groups can be described as a more participative method for groups to analyse qualitative data. Objective: To facilitate interpretive focus groups with women in Papua New Guinea to extend analysis of exi...
Michelle Redman-MacLaren; Jane Mills; Rachael Tommbe
Information technology, such as real-time location (RTL) systems using Radio Frequency IDentification (RFID) may contribute to overcome patient safety issues and high costs in healthcare. The aim of this work is to study if a RFID specific Participatory Design (PD) approach supports the design and the implementation of RTL systems in the Operating Room (OR). A RFID specific PD approach was used to design and implement two RFID based modules. The Device Module monitors the safety status of OR devices and the Patient Module tracks the patients' locations during their hospital stay. The PD principles 'multidisciplinary team', 'participation users (active involvement)' and 'early adopters' were used to include users from the RFID company, the university and the hospital. The design and implementation process consisted of two 'structured cycles' ('iterations'). The effectiveness of this approach was assessed by the acceptance in terms of level of use, continuity of the project and purchase. The Device Module included eight strategic and twelve tactical actions and the Patient Module included six strategic and twelve tactical actions. Both modules are now used on a daily basis and are purchased by the hospitals for continued use. The RFID specific PD approach was effective in guiding and supporting the design and implementation process of RFID technology in the OR. The multidisciplinary teams and their active participation provided insights in the social and the organizational context of the hospitals making it possible to better fit the technology to the hospitals' (future) needs. PMID:25503417
Guédon, A C P; Wauben, L S G L; de Korne, D F; Overvelde, M; Dankelman, J; van den Dobbelsteen, J J
The Courage to Critique Policies and Practices from within: Youth Participatory Action Research as Critical Policy Analysis. A Response to ""Buscando la Libertad": Latino Youths in Search of Freedom in School"
This response to ""Buscando la Libertad": Latino Youths in Search of Freedom in School" by Jason G. Irizarry demonstrates how youth participatory action research (YPAR) as an instrument of subverting oppressive school policies and structures is a form of critical policy analysis (CPA). As an evolving method, CPA acknowledges the absent voices in…
Over the past several decades there has been growing evidence of the increase in incidence rates, morbidity, and mortality for a number of health problems experienced by children. The causation and aggravation of these problems are complex and multifactorial. The burden of these health problems and environmental exposures is borne disproportionately by children from low-income communities and communities of color. Researchers and funding institutions have called for increased attention to the...
Israel, Barbara A.; Parker, Edith A.; Rowe, Zachary; Salvatore, Alicia; Minkler, Meredith; Lo?pez, Jesu?s; Butz, Arlene; Mosley, Adrian; Coates, Lucretia; Lambert, George; Potito, Paul A.; Brenner, Barbara; Rivera, Maribel; Romero, Harry; Thompson, Beti
While the knowledge management literature has addressed the explicit and tacit skills needed for successful performance in the modern enterprise, little attention has been paid to date in this particular literature as to how these wide-ranging skills may be suitably acquired during the course of an undergraduate business school education. This paper presents case analysis of the research-oriented participatory education curriculum developed at Copenhagen Business School because it appears uniquely suited, by a curious mix of Danish education tradition and deliberate innovation, to offer an educational experience more empowering of essential tacit knowledge skills than that found in educational institutions in other national settings. We specify the program forms and procedures for consensus-based governance and group work (as benchmarks) that demonstrably instruct undergraduates in the tacit skill dimensions of knowledge thought to be essential for success following graduation.
Tackney, Charles T.; Strömgren, Ole
Full Text Available By using active and participatory methods it is hoped that pupils will not only come to a deeper understanding of the issues involved, but also that their motivation will be heightened. Pupil involvement in their learning is essential. Moreover, by using a variety of teaching techniques, we can help students make sense of the world in different ways, increasing the likelihood that they will develop a conceptual understanding. The teacher must be a good facilitator, monitoring and supporting group dynamics. Modeling is an instructional strategy in which the teacher demonstrates a new concept or approach to learning and pupils learn by observing. In the teaching of biology the didactic materials are fundamental tools in the teaching-learning process. Reading about scientific concepts or having a teacher explain them is not enough. Research has shown that modeling can be used across disciplines and in all grade and ability level classrooms. Using this type of instruction, teachers encourage learning.
A pesquisa-ação participante como estratégia metodológica para o estudo do empreendedorismo social em administração de empresas / Participatory action research as a methodological strategy for the study of social entrepreneurship in business administration
Full Text Available SciELO Brazil | Language: Portuguese Abstract in portuguese O presente ensaio tem como objetivo analisar e discutir como a pesquisa-ação participante pode ganhar espaço como estratégia metodológica em administração. Esta análise enfoca em especial o campo do empreendedorismo, e mais especificamente o campo do empreendedorismo social, ressaltando as vantagens [...] e limitações da aplicação dessa estratégia de pesquisa. Procede-se, inicialmente, à análise dos principais paradigmas de pesquisa em administração e define-se a pesquisa-ação participante como modalidade de pesquisa crítica, inserida no paradigma humanista radical. A seguir, passa-se à identificação das características da pesquisa participante e ao seu contraste com outras modalidades de pesquisa, em especial com a observação participante e a pesquisa-ação. Os conceitos da pesquisa-ação participante são apresentados e os autores prosseguem apresentando uma revisão dos mais recentes trabalhos em que essa foi usada para apoiar pesquisas na área do empreendedorismo social. Concluem com a proposta de que a avaliação desses trabalhos se dê por outros conceitos que não os da pesquisa tradicional. Abstract in english This essay aims to analyze and discuss how participatory action research can be applied as a methodological strategy in business administration. This analysis focuses mainly on the field of entrepreneurship and, more specifically, social entrepreneurship, highlighting the advantages and limitations [...] of this research strategy. Firstly, the main research paradigms in business administration are analyzed and participatory-action research is defined as a research modality set within the radical humanist paradigm. Then, the characteristics of participatory research are identified and it is contrasted with other research modalities, specially with participant observation and action research. Participatory action research is then presented and the authors proceed with the presentation of a review of recent researches which it was used. They finish the work proposing that avaliation of works with this kind of methodology must be different then those used for traditional research.
Marcos Bidart Carneiro de, Novaes; Antonio Carlos, Gil.
The widespread use of participatory design (PD) has meant that different approaches and conceptualisations exist in this field today. In this article, it is argued that one fruitful approach is to rekindle a concern for values in design, focusing upon values as the engine that drives activities in PD. Drawing from the authors‘ own PD projects, this article shows how this can be accomplished: through designers enacting their appreciative judgement of values by engaging in a dynamic and dialogical process of cultivating the emergence of values, developing them and supporting their grounding.
Iversen, Ole Sejer; Halskov, Kim
Inspired by Photovoice, a participatory research methodology, I WAS HERE was a photoblogging workshop in Toronto, Canada, for young mothers who, when they joined, were either homeless or had past experience of homelessness. A participatory qualitative analysis process was developed to support workshop participants in collectively conducting qualitative analysis on a selection of their photoblogs exploring how they view their lives. Five mothers engaged in the participatory qualitative analysis process to categorize their photoblogs into themes. Participants selected over 70 of their personal photoblogs, discussed the meaning of their photoblogs, and categorized them into qualitative themes. One of the mothers continued work on the research by contributing to the write-up of the themes for publication. Participants, through the reflective dialogue, developed nine themes from the photoblogs that describe how they experience motherhood. The resulting nine themes were as follows: 'Family', 'Reality Check', 'Sacrifice for Positive Change', 'Support', 'Guidance', 'Growth and Transition', 'Proud of Becoming/Being a Mother', 'Passing on/Teaching Values' and 'Cherished Moments/Reward for Being a Mother'. These themes illustrate the satisfaction that comes from motherhood, strengths and goals for the future, and the desire for support and guidance. The themes developed from this participatory analysis illustrate that young mothers have a positive view of themselves and their ability to be mothers. This constructive view of young mothers provides an alternative to the negative stereotypes commonly attributed to them. This paper also discusses the strengths and challenges of using a participatory analysis approach. As a research methodology, incorporating procedures for participatory qualitative analysis into the Photovoice process provides an effective mechanism to meaningfully engage participants in qualitative analysis. From a health promotion perspective, using the participatory analysis process expanded the Photovoice methodology to facilitate self-reflection and an empowering collective dialogue among a group of women whose strengths and assets are rarely showcased. PMID:24830441
Fortin, Rebecca; Jackson, Suzanne F; Maher, Jessica; Moravac, Catherine
Evaluation research has been in progress to clarify the concept of participatory evaluation and to assess its impact. Recently, two theoretical frameworks have been offered--Daigneault and Jacob's participatory evaluation measurement index and Champagne and Smits' model of practical participatory evaluation. In this case report, we apply these…
Connors, Susan C.; Magilvy, Joan K.
Stakeholder participation in evaluation, where the evaluator engages stakeholders in the process, is prevalent in evaluation practice and is an important focus of evaluation research. Cousins and Whitmore proposed a bifurcation of participatory evaluation into the two streams of transformative participatory and practical participatory evaluation…
Harnar, Michael A.
Women are often ignored from research and development agenda although they play key roles in agriculture in developing countries. They are excluded from decision making and as a result, they frequently do not have access to resources, technologies and extension services, credits, inputs and markets. This paper aims to document, using qualitative methods, how participatory approach through Farmers Research Group (FRG) can address gender inequalities and subsequently empower women smallholder f...
Ali Mohammed Oumer; Wudineh Getahun Tiruneh; Chilot Yirga Tizale
This deliverable presents a common operational framework for activities in Go-Lab that aim to engage different stakeholders (teachers, teacher trainers, policy makers, lab owners etc.) with the goals and products of Go-Lab. The main mechanisms we use are participatory activities in the form of different kinds of workshops. This relates to task 6.2 of the Go-Lab project (Participatory Engagement Activities).
This article discusses the dissemination of a process of youth-led participatory research in urban secondary schools within the Interactive Systems Framework for Dissemination and Implementation (ISF) developed in collaboration with the CDC and its university partners (Wandersman et al. American Journal of Community Psychology, 41(3-4) 2008). The focus here is on the development of the Prevention Support System with respect to general and innovation-specific capacity building. The specific process under study involves youth-led needs assessment and research to inform the planning of prevention programs and policies to address students' health and developmental needs. The article first briefly describes the youth-led research process, its potential benefits, and a case example in two urban secondary schools. It then describes challenges and responses in providing support for the diffusion of this model in 6 secondary schools. The settings are urban public schools with a majority of students of color from diverse ethnic groups: Asian-American, Latino, and African-American. This project constitutes a collaborative partnership with a university school of public health and community-based organizations (CBOs) to build capacity for long-term, sustainable implementation of this innovative process within the local school system. The perspectives of the university-based researcher and the CBO partners on the development and effectiveness of the Prevention Support System are presented. PMID:18299977
Ozer, Emily J; Cantor, Jeremy P; Cruz, Gary W; Fox, Brian; Hubbard, Elizabeth; Moret, Lauren
The need for governments to reduce the exposure of energy consumers to future increases in fossil fuel prices places urgent pressure on policy-makers to deliver fundamental transformations in energy strategies, particularly in jurisdictions with high dependency on fossil fuel sources (). This transformation is unlikely without a high level of stakeholder engagement in the policy development process. This paper describes two policy development processes recently undertaken in Nova Scotia in which the inclusion of stakeholder views was central to the approach. The first delivered a new institutional framework for electricity energy efficiency involving the inception of an independent performance-based administrator. The second required the delivery of a strategy to significantly increase renewable energy generation in the Province. It involved recommendations for changes in institutional arrangements, financial incentives and technological options. This process was followed by new commitments to renewable energy developments, new infrastructure for the importation of hydro-electricity, and the announcement of FITs for ocean energy. In both cases, recommendations were made by an independent academic institution, and the Government responded directly to a majority of recommendations. The paper concludes with a discussion of lessons learned and the implications for future energy policy making in carbon-intensive jurisdictions. - Research highlights: ? Fundamental transfosearch highlights: ? Fundamental transformations in energy policy require stakeholder engagement to be successful. ? We describe two policy development processes where stakeholder views were key considerations. ? The first delivered a new institutional framework for electricity energy efficiency. ? The second delivered a strategy to significantly increase renewable energy generation. ? In each case, the Government directly responded to the majority of recommendations.
This article is a report of the process and results of a feasibility pilot study to improve the quality of maternity care in a sample of 31 women and their newborns delivering in a public, tertiary hospital in the Dominican Republic. The pilot study was the first "action step" taken as a result of a formative, community-based participatory research (CBPR) study conducted between 2008 and 2010 by an interdisciplinary, international partnership of U.S. academic researchers, Dominican medical/nursing personnel, and Dominican community health workers. Health personnel and community health workers separately identified indicators most important to measure quality of antepartum maternity care: laboratory and diagnostic studies and respectful, interpersonal communication. At the midpoint and the completion of data collection, the CBPR team evaluated the change in quality indicators to assess improvement in care. The pilot study supports the idea that joint engagement of community health workers, health personnel, and academic researchers with data creation and patient monitoring is motivating for all to continue to improve services in the cultural context of the Dominican Republic. PMID:24793488
Foster, Jennifer; Gossett, Sarah; Burgos, Rosa; Cáceres, Ramona; Tejada, Carmen; Dominguez García, Luis; Ambrosio Rosario, Angel; Almonte, Asela; Perez, Lydia J
The case for inquiry-based, hands-on, meaningful science education continues to gain credence as an effective and appropriate pedagogical approach (Karukstis 2005; NSF 2000). An innovative community-based framework for science learning, hereinafter referred to as the Big Sky Model, successfully addresses these educational aims, guiding high school and tribal college students from rural areas of Montana and Idaho in their understanding of chemical, physical, and environmental health concepts. Students participate in classroom lessons and continue with systematic inquiry through actual field research to investigate a pressing, real-world issue: understanding the complex links between poor air quality and respiratory health outcomes. This article provides background information, outlines the procedure for implementing the model, and discusses its effectiveness as demonstrated through various evaluation tools. PMID:20428505
Ward, Tony J; Vanek, Diana; Marra, Nancy; Holian, Andrij; Adams, Earle; Jones, David; Knuth, Randy
OBJECTIVE To generate recommendations for framing messages to promote HPV vaccination, specifically for African American adolescents and their parents who have not yet made a decision about the vaccine (the “Undecided” market segment). METHODS Focus groups and interviews were conducted with African American girls ages 11–18 (N=34) and their mothers (N=31), broken into market segments based on daughter’s vaccination status and mother’s intent to vaccinate. RESULTS Findings suggested that the HPV vaccine should be presented to “Undecided” mothers and adolescents as a routine vaccine (just like other vaccines) that helps prevent cancer. Within the “Undecided” segment, we identified two sub-segments based on barriers to HPV vaccination and degree of reluctance. The “Undecided/Ready If Offered” segment would easily accept HPV vaccine if given the opportunity, with basic information and a healthcare provider recommendation. The “Undecided/Skeptical” segment would need more in-depth information to allay concerns about vaccine safety, mistrust of drug companies, and recommended age. Some mothers and girls had the erroneous perception that girls do not need the vaccine until they become sexually active. African American adolescents and their mothers overwhelmingly thought campaigns should target both girls and boys for HPV vaccination. In addition, campaigns and messages may need to be tailored for pre-teens (ages 9–12) versus teens (ages 13–18) and their parents. CONCLUSIONS Findings pointed to the need to “normalize” the perception of HPV vaccine as just another routine vaccine (e.g., part of pre-teen vaccine package). Findings can inform social marketing campaigns targeting Undecided or ethnically diverse families. PMID:24491412
Hull, Pamela C.; Williams, Elizabeth A.; Khabele, Dineo; Dean, Candace; Bond, Brea; Sanderson, Maureen
Public dialogue can widen the knowledge base for decision making to make public policy and programmes more effective and accountable, in line with citizens’ priorities. Audience research can enhance the relevance of a communication strategy to its objectives and to participants’ needs and communication preferences. Audience research designs based on diffusion models of communication are, however, inadequate for the participatory objectives of public dialogue. This article, ...
Kruger, Jenni; Fourie, Ina; Dick, Archie L.
Full Text Available O direito dos jovens à participação afigura-se como um meio para exprimirem necessidades e reclamarem os seus direitos. Contudo, a perspetiva dos jovens continua sub-representada na investigação aplicada à definição das políticas e práticas no âmbito dos serviços de saúde, sendo pouco utilizada na m [...] elhoria dos mesmos. Neste artigo apresentam-se os resultados de uma investigação participativa, na qual os jovens identificaram alguns fatores que promovem ou inibem a utilização dos serviços de saúde, e contribuíram para o desenho de um centro de saúde ideal para jovens. Abstract in english The right of youth to participation is a means for young people to express their needs and claim their rights. However, the perspectives of youth remain underrepresented in research applied to the definition of policies and practices within the health services and are seldom used to improve them. In [...] this article we present the results of a participatory research in the design of a health service with young people. The results indicate the reasons for the recurrence of young people to health services, as well as the characteristics of an ideal health center in their perspective.
Maria Manuel, Calheiros; Joana Nunes, Patrício; Sónia, Bernardes.
Emerging evidence supports the theoretical and clinical importance of the preconception period in influencing pregnancy outcomes and child health. Collectively, this evidence affirms the need for a novel, integrative theoretical framework to design future investigations, integrate new findings, and identify promising, evidence-informed interventions to improve intergenerational health and reduce disparities. This article presents a transdisciplinary framework developed by the NIH Community Child Health Network (CCHN) through community-based participatory research processes. CCHN developed a Preconception Stress and Resiliency Pathways (PSRP) model by building local and multi-site community-academic participatory partnerships that established guidelines for research planning and decision-making; reviewed relevant findings diverse disciplinary and community perspectives; and identified the major themes of stress and resilience within the context of families and communities. The PSRP model focuses on inter-relating the multiple, complex, and dynamic biosocial influences theoretically linked to family health disparities. The PSRP model borrowed from and then added original constructs relating to developmental origins of lifelong health, epigenetics, and neighborhood and community influences on pregnancy outcome and family functioning (cf. MCHJ 2014). Novel elements include centrality of the preconception/inter-conception period, role of fathers and the parental relationship, maternal allostatic load (a composite biomarker index of cumulative wear-and-tear of stress), resilience resources of parents, and local neighborhood and community level influences (e.g., employment, housing, education, health care, and stability of basic necessities). CCHN's integrative framework embraces new ways of thinking about how to improve outcomes for future generations, by starting before conception, by including all family members, and by engaging the community vigorously at multiple levels to promote resiliency, reduce chronic and acute stressors, and expand individualized health care that integrates promotive and prevention strategies. If widely adopted, the PSRP model may help realize the goal of sustaining engagement of communities, health and social services providers, and scientists to overcome the siloes, inefficiencies, and lack of innovation in efforts to reduce family health disparities. Model limitations include tremendous breadth and difficulty measuring all elements with precision and sensitivity. PMID:25070734
Ramey, Sharon Landesman; Schafer, Peter; DeClerque, Julia L; Lanzi, Robin G; Hobel, Calvin; Shalowitz, Madeleine; Chinchilli, Vern; Raju, Tonse N K
This study focuses upon the social organization of innovation. It makes use of insights from knowledge and information systems research, development sociology, management science and applied philosophy and seeks answers to the following questions: What do social actors, individuals and/or organizations, actually do to innovate their practices? How do they organize themselves? Can this be managed or facilitated, and if so, how? The research is exploratory rather than conclusion-oriented and sy...
Engel, P. G. H.
This article examines the dialogue that occurred within the structure of a Research-to-Practice Consensus Workshop that critiqued academic research priorities regarding social isolation among community-dwelling older adults and identified practice-based suggestions for a social isolation research agenda. The investigators adapted the scientific consensus workshop model to include expert practitioners and researchers in a discussion of the current state and future directions of social isolatio...
Sabir, Myra; Wethington, Elaine; Breckman, Risa; Meador, Rhoda; Reid, M. C.; Pillemer, Karl
In this workshop we explore the opportunities of ethnography and design anthropology in Participatory Design (PD) as an approach to design in an increasingly global and digital world. Traditionally, ethnography has been used in PD to research real-life contexts and challenges, and as ways to involve people in defining user-needs and design opportunities. As the boundaries between physical, digital and hybrid spaces and experiences become increasingly blurred, so do conventional distinctions between research and design. This half-day workshop invites participant to discuss and explore opportunities of using design anthropology as a holistic and critical approach to societal challenges, and a way for anthropologists and designers to engage in design that extends beyond the empirical.
Smith, Rachel Charlotte; Gislev Kjærsgaard, Mette
Full Text Available Over the last five years Crisis Resolution/Home Treatment (CR/HT teams have been established in Norway. These teams provide an alternative to in-patient acute care services offering assessment as well as direct care. This paper addresses a method of examining the nature of practice models that are being developed in a CR/HT team incorporating the philosophy of open dialogue and the open lifeworld approach. The overall design of this research is action research applying a cooperative inquiry perspective. Multistage focus group interviews are used as a method for generating data, followed by phenomenological–hermeneutic approach in analyzing the data. Three themes were identified: (a “keeping the dialogue open” referring to the emphasis of openness in dialogues and opening up for a variety of perspectives on what's going on; (b “tolerance of uncertainty” referring to the need to accept and deal with uncertainty and multiplicity; and (c “nurturing everyday life issues” referring to the emphasis on illustrating clinical situations in detail through remaking of stories. The on-going co-processes of research and practice was a double helix that links the happenings in the practice with the findings in the research revealing the knowledge in practice and further developing that knowledge.
Participatory Geographic Information Systems (PGIS) can integrate participatory methodologies with geo-spatial technologies for the representation of characteristic of particular place. Over the last decade, researchers use this method to integrate the local knowledge of community within a GIS and Society conceptual framework. Participatory GIS are tailored to answer specific geographic questions at the local level and their modes of implementation vary considerably across space, ranging from field-based, qualitative approaches to more complex web-based applications. These broad ranges of techniques, PGIS are becoming an effective methodology for incorporating community local knowledge into complex spatial decision-making processes. The objective of this study is to reduce the soil erosion by formulating the general rule for the soil conservation by participation of the stakeholders. The poster was prepared by satellite image, topographic map and Arc GIS software including the local knowledge. The data were collected from the focus group discussion and the individual questionnaire for incorporate the local knowledge and use it to find the risk map on the basis of economic, social and manageable physical factors for the sensitivity analysis. The soil erosion risk map is prepared by the physical factors Rainfall-runoff erosivity, Soil erodibility, Slope length, Slope steepness, Cover-management, Conservation practice using RUSLE model. After the comparison and discussion among stakeholders, researcher and export group, and the soil erosion risk map showed that socioeconomic, social and manageable physical factors management can reduce the soil erosion. The study showed that the preparation of the poster GIS map and implement this in the watershed area could reduce the soil erosion in the study area compared to the existing national policy.
Bhandari, K. P.
Community-Based Environmental Monitoring (CBM) is a social practice that makes a valuable contribution to environmental management and construction of active societies for sustainable future. However, its documentation and analysis show deficiencies that hinder contrast and comparison of processes and effects. Based on systems approach, this article presents a model of CBM to orient assessment of programs, with heuristic or practical goals. In a focal level, the model comprises three components, the social subject, the object of monitoring, and the means of action, and five processes, data management, social learning, assimilation/decision making, direct action, and linking. Emergent properties were also identified in the focal and suprafocal levels considering community self-organization, response capacity, and autonomy for environmental management. The model was applied to the assessment of a CBM program of water quality implemented in rural areas in Mexico. Attributes and variables (indicators) for components, processes, and emergent properties were selected to measure changes that emerged since the program implementation. The assessment of the first 3 years (2010-2012) detected changes that indicated movement towards the expected results, but it revealed also the need to adjust the intervention strategy and procedures. Components and processes of the model reflected relevant aspects of the CBM in real world. The component called means of action as a key element to transit "from the data to the action." The CBM model offered a conceptual framework with advantages to understand CBM as a socioecological event and to strengthen its implementation under different conditions and contexts. PMID:23852536
Burgos, Ana; Páez, Rosaura; Carmona, Estela; Rivas, Hilda
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This publication presents the French case study of the European ENCI-LowCarb research project: Engaging Civil Society in Low Carbon scenarios. The core activity of this project was the development of a methodology for the transparent integration of stakeholders' contributions in the scenario design process to enhance the stakeholders' acceptance of the resulting low carbon pathways. This attempt at integrating acceptability in scenario-making constitutes an important step to distinguish what is technically and economically feasible from what is acceptable. Today, a wide range of published scenarios emphasize the fact that they are built on public consultations or stakeholders' contributions. However, transparency is lacking concerning the methodology relative to how contributions were taken into account and translated into assumptions that can be used by the modeling tool. The project ENCI-LowCarb aimed at exploring this scientific gap. Energy scenarios outline possible low-carbon futures built around assumptions on fossil fuels prices evolution, technological choices and the mechanisms of energy demand and supply, among others. Scenarios are influential tools in political decision-making processes since they shed light on the long-term impacts of today's investment decisions, especially regarding infrastructures. This is why it is crucial that these pathways derive from discussions with main stakeholders. In this report, the French project team (CIRED and RAC-F) has the pleasure to present energy scenarios for France which derive from a collaborative scenario design process including the participation of a wide range of French stakeholders (civil society organizations including trade unions and non-governmental organizations, private companies, banks, statewide and local authorities). Participating stakeholders were asked to define or select acceptable CO2 emissions mitigation measures. Their contributions were implemented in the technico-economic model Imaclim-R France to create a scenario that is economically and technically consistent as well as acceptable by stakeholders. This methodology allowed an assessment of the level of achievable emissions reductions with stakeholders' 'acceptable' measures. This project report is organized as follows: part 2 presents the methodology of the collaborative scenario design process in detail, part 3 describes the low carbon scenario - the outcome of the stakeholder discussions. In part 4, other drivers of CO2 emissions and additional measures are explored. Chapter 5 introduces additional sensitivity analysis. Part 6 concludes
An important part of the ARGONA project is the testing and application of novel participation and dialogue approaches. The ways in this is being done include a series of events involving different stakeholders such as a focused science shop, a consensus panel and an interaction panel. In the framework of these activities in the Czech Republic the consensus panel was held on June 12, 2008 in Rez and addressed the theme: 'Spent nuclear fuel management alternatives'. The main goals of this consensus panel were: 1. Identification of the main criteria relevant to the assessment of the existing alternatives and determination their importance (weight) from the perspective of all stakeholders; 2. Achieving at least a partial consensus on selecting the most suitable alternative (management of radioactive waste and spent nuclear fuel). A broader audience was selected with a suitable mixture of specialists and interested technical and non-technical peers including representatives from NRI, universities, Ministry of Industry and Trade, Ministry of the Environment, State Office for Nuclear Safety and Radioactive Waste Repository Authority, representatives of municipalities and NGOs, and waste producers such as CEZ plc etc. In opinion of all participants, there was a 'safe space' for debate ensured and everyone had the same opportunity to express his opinion. All participants also agreed that the whole course of seminar was transparent and correct. From this perspective, the chosencorrect. From this perspective, the chosen format of dialogue seems appropriate to ensure the exchange of new information and mutual discussion among the interested parties on the contentious issues in the NWM and nuclear energy in general. It was also found, however, that at present the social and political problems are the most important and the most urgent problems in the field of the nuclear waste management in the Czech Republic. It is very important not only to ensure a safe space for meaningful communication, but also: - To increase the activities of relevant state institutions in communication with the public in the field of NWM and enhance public confidence in the state institutions. - To develop motivation programs as another way how to incite the public interest and to positively influence their attitude towards the radioactive waste disposal, siting of the geological repository, and nuclear power production in general. - To strengthen the political responsibility - a long-lasting consistent and clear political attitude of the government and government parties concerning the problems of the final disposal of spent fuel is lacking in the Czech Republic. The general public misses the necessary long-term guarantees. Recommendations for the organization of further activities: - To select appropriate topics with clearly formulated questions taking into account the character of participants - other issues can be discussed within the scientific community and others in the wider discussion with the public participation. - To use service a professional mediator (as an impartial and independent person managing the whole course of the discussion) to facilitate communication among interested parties during the discussion. This applies mainly in the discussions on contentious issues such as selection of appropriate nuclear waste management alternative or the deep repository siting. - To ensure participation of representatives of state institution such as Ministry of Environment, Ministry of Industry and Trade, Ministry for Regional Development and also representatives of government parties. This is one of the most important prerequisites in order that discussion would be relevant and meaningful and the conclusions obtained could be used practically. - To proceed step by step and set smaller goals - The current situation in the field of NWM in the Czech Republic makes it impossible to achieve consensus among all stakeholders on controversial issues, such as the siting of the deep repository or selecting the optimal alternative to nuclear waste management. There
Biomedical research is increasingly collaborative, and successful collaborations often produce high impact work. Computational approaches can be developed for automatically predicting biomedical research collaborations. Previous works of collaboration prediction mainly explored the topological structures of research collaboration networks, leaving out rich semantic information from the publications themselves. In this paper, we propose supervised machine learning approaches to predict researc...
Zhang, Qing; Yu, Hong
The National Institute of Environmental Health Sciences (NIEHS) is the leading biomedical research institution in the United States whose mission is to support research that seeks to understand how environmental exposures affect human health. NIEHS possesses a longstanding interest in the health effects of agrochemical and other environmental exposures in rural America, including pesticides, to farmers and their families and to migrant farmworkers and their families. In recent years, NIEHS ha...
O Fallon, L. R.; Dearry, A.
Health promotion programs are commonly viewed as value-free initiatives which seek to improve health, often through behavior change. An opposing view has begun to emerge that health promotion efforts, especially ones seeking to impact health policy and social determinants of health, are vulnerable to political contexts and may depend on who is in power at the time. This community-based participatory research study attempts to understand these interactions by applying a conceptual model focused on the power context, diverse stakeholder roles within this context, and the relationship of political levers and other change strategies to the sustainability of health promotion interventions aimed at health policy change. We present a case study of a health promotion coalition, New Mexico for Responsible Sex Education (NMRSE), as an example of power dynamics and change processes. Formed in 2005 in response to federal policies mandating abstinence-only education, NMRSE includes community activists, health promotion staff from the New Mexico Department of Health, and policy-maker allies. Applying an adapted Mayer's 'power analysis' instrument, we conducted semi-structured stakeholder interviews and triangulated political-context analyses from the perspective of the stakeholders. We identified multiple understandings of sustainability and health promotion policy change, including: the importance of diverse stakeholders working together in coalition and social networks; their distinct positions of power within their political contexts; the role of science versus advocacy in change processes; the particular challenges for public sector health promotion professionals; and other facilitators versus barriers to action. One problem that emerged consisted of the challenges for state employees to engage in health promotion advocacy due to limitations imposed on their activities by state and federal policies. This investigation's results include a refined conceptual model, a power-analysis instrument, and new understandings of the intersection of power and stakeholder strategies in the sustainability of health promotion and health in all policies. PMID:25432963
Mendes, Rosilda; Plaza, Veronica; Wallerstein, Nina
The professional school counseling literature has proposed innovative frameworks for practice including social justice/multicultural approaches, school-wide counseling initiatives, and school-community partnerships. In this article, we propose a programmatic intervention that can be a vehicle for all three: the implementation of school-based youth…
Smith, Laura; Beck, Katharine; Bernstein, Erinn; Dashtguard, Pasha
Several case studies in literature and handbooks about participatory design (PD) suggest that the use of emerging methods to generate user information is common practice. However, these authors address practices in academia or in leading companies and not necessarily the practice of the majority of product development companies. The mentioned companies like for example Microsoft (Sanders, 2004) are in a privileged position, having the possibilities to spend time, manpower and budget on extensive user studies and explore participatory design projects. But how does the Small-to-Medium sized Enterprise (SME) fare in this respect? Some literature is known in this context, Heiskanen et al. (2007) provide many insights on working with SMEs, especially on technology oriented SMEs. De Lille et al. (2009) gives an overview of problems designers experience when conducting user studies. Asboe (2009) provides an anthropologists perspective on user studies within SMEs.
Buur, Jacob; de Lille, Christine
Central to multi-stakeholder processes of participatory innovation is to generate knowledge about ‘users’ and to identify business opportunities accordingly. In these processes of collaborative analysis and synthesis, conflicting perceptions within and about a field of interest are likely to surface. Instead of the natural tendency to avoid these tensions, we demonstrate how tensions can be utilized by embodying them in provocative types (provotypes). Provotypes expose and embody tensions that surround a field of interest to support collaborative analysis and collaborative design explorations across stakeholders. In this paper we map how provotyping contributes to four related areas of contemporary Interaction Design practice. Through a case study that brings together stakeholders from the field of indoor climate, we provide characteristics of design provocations and design guidelines for provotypes for participatory innovation.
Boer, Laurens; Donovan, Jared
This paper positions relation expertise as a core competence in participatory design. It is an expertise that demands the participatory designer to stimulate the emergence of loosely coupled knotworks, and obtain symbiotic agreement between participants disregarding their professional and social status. We illustrate our theoretical argument for a relational expertise with a running example from a participatory design process engaging an interprofessional group of participants in a project on future technology enabled learning environments.
Dindler, Christian; Iversen, Ole Sejer
This research aims at providing a general overview about participatory budgeting as well as providing a studyon the possibility whether participatory budgeting can be implemented in the kingdom of Bahrain. The researchwas conducted with the assist of primary data as well as secondary data. The primary data consists of a surveydistributed to 52 samples as well as an interview performed at the Ministry of Finance in the kingdom ofBahrain. The secondary data revolved around some previous studies...
Maram Al Maskati
Pesquisa-apoio: pesquisa participante e o método Paideia de apoio institucional / Support research: participatory research and the Paideia method of institutional support / Investigación-apoyo: la investigación participante y el método Paideia de apoyo institucional.
Full Text Available A partir da revisão da tradição da pesquisa participante, origens e tipologias, este artigo sugere a intercessão com o método Paideia, usando-o como estratégia para intervenção dos pesquisadores, o que vem sendo denominado pesquisa-apoio. Essa integração busca incorporar a participaçã [...] o dos sujeitos investigados no processo de pesquisar, considerando ainda a inserção ativa do pesquisador com suas ofertas e seu projeto. São apresentados conceitos do método Paideia, seu referencial operativo e dialógico, a metodologia da pesquisa-apoio, que integra tanto momentos participantes como de intervenção dos pesquisadores, com a construção de narrativas interpretativas. Analisa-se que as premissas do metódo destacam o esforço para a reflexão e a produção de conhecimento em três planos: do objeto ou problema, da sociabilidade/da instituição (relações de poder) e da análise de si mesmo (pesquisador e investigado). Abstract in spanish A partir de una revisión de la investigación participante, orígenes y tipologías, este artículo propone la intersección con el método Paideia, usándolo como una estrategia de intervención de los investigadores, lo que se ha denominado investigación-apoyo. El propósito de esta interven [...] ción es incorporar la participación de los sujetos investigados en el proceso de investigación, considerando también la inserción activa del investigador con sus ofertas y su proyecto. Se presentan los conceptos del método Paideia, su marco operativo y de diálogo, la metodología de investigación-apoyo que integra tanto momentos participantes como de intervención de los investigadores, con la construcción de narrativas interpretativas. Se analiza que las premisas del método destacan el esfuerzo para la reflexión y la producción de conocimiento en tres planos: del objeto o problema, de la sociabilidad/institución (relaciones de poder) y del análisis de sí mismo (investigador y investigado). Abstract in english From reviewing the tradition of participatory research and its origins and types, this article suggests that intercession by means of the Paideia method should be used as a strategy for researchers’ interventions. This has been termed “support research”. This integration seeks to inco [...] rporate participation in the research process by the subjects investigated, and also envisages active involvement by researchers, with their offers and projects. The concepts of the Paideia method are presented, with its operating and dialogical framework. The “support research” methodology integrates participatory moments and interventions by the researchers, with construction of interpretive narratives. This analysis shows that the premises of the method highlight the efforts made towards reflection and knowledge production in three planes: the object or problem, sociability/institution (power relations) and self-analysis (researcher and subject investigated).
Paula Giovana, Furlan; Gastão Wagner de Sousa, Campos.
The case for inquiry-based, hands-on, meaningful science education continues to gain credence as an effective and appropriate pedagogical approach (Karukstis 2005; NSF 2000). An innovative community-based framework for science learning, hereinafter referred to as the Big Sky Model, successfully addresses these educational aims, guiding high school and tribal college students from rural areas of Montana and Idaho in their understanding of chemical, physical, and environmental health concepts. ...
Ward, Tony J.; Vanek, Diana; Marra, Nancy; Holian, Andrij; Adams, Earle; Jones, David; Knuth, Randy
This paper describes a three-year curriculum innovation project on teaching about climate change. The innovation for this study focused on a socio-critical approach towards teaching climate change in four different teaching domains (biology, chemistry, physics and politics). The teaching itself explicitly aimed at general educational objectives, i.e., fostering students’ communication and evaluation abilities as essential components for preparing young people for active participation in soc...
Timo Feierabend; Ingo Eilks
Getting the Most from Working with Higher Education: A Review of Methods Used within a Participatory Design Activity Involving KS3 Special School Pupils and Undergraduate and Post-Graduate Industrial Design Students
This paper provides education-based researchers and practitioners with the preferred research and design methods used by Higher Education Institute (HEI) students and Key Stage 3 (KS3) pupils applied within a participatory approach to a design activity. The outcomes were that both pupils and students found informal (unstructured) interview to be…
Torrens, George Edward; Newton, Helen
In the context of the Kaleidoscope Network of Excellence, six European research teams developed a methodology for integrating their research approaches. In this paper we present the methodology, based on a cross experiment, showing how it gave insight to the understanding of each team's research, and on the relationship between theoretical frameworks and experimental research.
Cerulli, Michele; Georget, Jean-philippe; Maracci, Mirko; Trgalova, Jana; Psycharis, Giorgos
Full Text Available Strategies to support people living with dementia are broad in scope, proposing both pharmacological and non-pharmacological interventions as part of the care pathway. Assistive technologies form part of this offering as both stand-alone devices to support particular tasks and the more complex offering of the “smart home” to underpin ambient assisted living. This paper presents a technology-based system, which expands on the smart home architecture, orientated to support people with daily living. The system, NOCTURNAL, was developed by working directly with people who had dementia, and their carers using qualitative research methods. The research focused primarily on the nighttime needs of people living with dementia in real home settings. Eight people with dementia had the final prototype system installed for a three month evaluation at home. Disturbed sleep patterns, night-time wandering were a focus of this research not only in terms of detection by commercially available technology but also exploring if automated music, light and visual personalized photographs would be soothing to participants during the hours of darkness. The NOCTURNAL platform and associated services was informed by strong user engagement of people with dementia and the service providers who care for them. NOCTURNAL emerged as a holistic service offering a personalised therapeutic aspect with interactive capabilities.
Full Text Available The success of Free Open Source Software (FOSS has resulted in thousands of robust and ubiquitous products such as Linux, Firefox and Apache. However, the usability of many other FOSS products is often poor, and the most successful projects are the ones where the user and the developer are one and the same. The lack of broader participation is worrying, because it threatens the entire production model of FOSS. In this paper we investigate the reasons for this situation, drawing extensively from research on participatory design and commons based peer production (CBPP, and on a case study of three FOSS projects. Potential lessons are also drawn from the CBPP model in general, and the FOSS approach in particular, to mitigate the challenges facing distributed participatory design (DPD.
Zegaye Seifu Wubishet
While knowledge intensive SMEs have recognized the need for change with respect to productivity and wellbeing, and to some extend have access to tools and methods for enabling this, they still lack process competences and are uncertain about how to approach primary stress interventions and initiate relevant change processes. This paper presents the outline of our research and development project on participatory primary stress management interventions in knowledge intensive SMEs, as well as the preliminary results and related implications. The research and development project is conducted in order to develop an operational model which SMEs can use when they want to initiate participatory primary stress management interventions in their company. The development project builds on a process model for participatory primary interventions in larger knowledge intensive companies and the premises behind this model in combination with other theories which have been used successfully in other interventions. The project is only in its initial phases in conducting the intervention, but so far the preliminary results indicate that management support and allocation of resources is vital, that internal facilitators are important drivers of the change process and that easy-to-use tools are requested from the involved company actors. Given that the interventions in the selected companies are conducted successfully we argue that a new organizational capability to address work-related stress in a collective and collaborative manner is developed in the participating companies. With a successfully conducted intervention we mean that the companies have been able to implement their own change proposals in a collective and collaborative process. By developing this organizational capability we expect that the companies would be able to repeat the process with new change proposals. The research builds on observations, participatory action research, interviews and surveys.
Gish, Liv; Ipsen, Christine
The European Union Water Framework Directive (WFD) offers an unparalleled opportunity for improving river basin management. Active participation is essential for its delivery. "End-of-pipe" solutions will not deliver the improvements needed to achieve its ambitious goals. This research tested DesignWays, a toolkit for participatory planning, as a mechanism for maximizing the long-term social and environmental benefits of such stakeholder and community participation. It examined the emerging role of "planning for sustainability" in the context of river catchments. Sustainable management of water requires integration, and recognition of interconnections between systems at different levels of scale. This is an endeavour in which systems thinking provides useful tools. The development of DesignWays was a conscious attempt to embed 'new paradigm' living systems metaphors into a practical planning tool. This paper begins with a description of DesignWays and its development in Southern Africa. An outline of the context of the action research in North-West England is followed by a description of the stages of the process, with highlights of the outcomes. This research had two major outcomes: a contribution to theory through an in-depth exploration of the theoretical basis of participatory, ecologically informed design; and a contribution to practice through investigating DesignWays' potential to meet key challenges of the WFD. This research points to the importance of understanding participatory planning as a societal process, aiming to make the process engaging and meaningful. It has pointed to the need to see participatory planning and education for sustainability as an integrated process. It demonstrated the benefits of an iterative process in which planning at the landscape level of scale informs, and is informed by, work at the site level. It has shown that an approach consistent with a living systems paradigm can contribute to the development of more integrated, ecologically sound plans. PMID:16445178
„Play. Learn. Innovate. – Grasping the Social Dynamics of Participatory Innovation“ the title of this thesis describes how the complex interplay of unexpected events led to some burning questions and eventually to this thesis, which one could call an innovation*1*. During several years as a communication designer, a manager in retail, and a consultant I have been involved in several innovation projects from different perspectives. After experiencing that a major factor for success or failure of innovation processes – which always entail change – were people and how they relate to each other, I became curious to understand this from a management perspective. When I did not find any satisfying answers in the world of practice, I decided to return to the world of theory hoping to find answers there. However, I did not. After extensive literature studies mainly in the fields of social capital, organizations, complexity, and knowledge – but also drawing on psychology, sociology, and philosophy – I did not find any satisfying approach that resonated with my complex experiences in innovation practice where in the messy everyday of projects the only thing I knew for sure was that my role and function was interdependent with other people‘s roles and functions and that uncertainty was omnipresent. While I found many interesting and enlightening studies with brilliant concepts, methods and implications in each respective field, they typically either addressed the individual, or the group level, or the institutional level and they often were ignoring or excluding other disciplines and perspectives – in short they seemed unconnected. My impression was – in order to understand why this was the case – I had to go to the very foundations of management thinking – the research philosophy of management. The aims of my study were to better understand the theoretical foundations and practical implications of complex social interaction in organizational innovation settings. As I did not find any existing models or hypotheses that Iwas interested in testing I set out to discover how I could grasp complex social interaction across different units of analysis. Drawing on explorative projects I had the opportunity to conduct with students – we involved firms and used interviews and video analysis – I explored different theoretical perspectives in relation to practice. In further workshops and experiments I found evidence that play and games could be interesting perspectives to take in order to understand complex social interaction. I come to the conclusion that – in innovation settings – the social dynamics that affect the process are essentially about transformation of knowledge across boundaries. I propose a multi-level conceptual framework to understand and analyze social dynamics of participatory innovation in organizations – complementing research on knowledge transformation when facing novelty (Carlile, 2004) and participatory innovation (Buur and Matthews, 2008; Buur and Larsen, 2010). Further, based on this I carve out theoretical and practical links between innovation as a social process across boundaries, play and games, learning, and design in organizational settings. Thus, confirming and complement work in the field of play (e.g. Kaark, 2011; Sandelands, 2010; Mainemelis and Ronson, 2006;), learning and play (e.g. Brown and Vaughaun, 2010; Thomas and Brown, 2011; Kolb and Kolb, 2010), games (e.g. McGonigal, 2011; Mäyrä, 2008), and innovation across knowledge boundaries (e.g. Carlile, 2004; Nicolini et al, 2011; Buur and Matthews, 2008). I clarify how the proposed approach differs from system thinking and game theory – and I provide first evidence for that playful games are promising as a tool, a method, and a process to grasp and research social dynamics of participatory innovation theoretically and practically. I believe that the idea to use playful games in the proposed way is new and can provide new insights in participatory innovation. Further, I argue that this approach opens up promising way
Killer Fashion Revolution points out connecting nodes between peace education and participatory art and design practices both in theory and in practice. In theory this thesis gives an overview on how peace educational organizations in need of engaging campaigns can find inspiration in participatory art practices like hacktivism, craftivism and fashion hacktivism. Killer Fashion Revolution is as well an example of how participatory design research and a combination of various mediums; workshop...
The research on the efforts of combining human and machine intelligence has a long history. With the development of mobile sensing and mobile Internet techniques, a new sensing paradigm called Mobile Crowd Sensing (MCS), which leverages the power of citizens for large-scale sensing has become popular in recent years. As an evolution of participatory sensing, MCS has two unique features: (1) it involves both implicit and explicit participation; (2) MCS collects data from two ...
Guo, Bin; Yu, Zhiwen; Zhang, Daqing; Zhou, Xingshe
This article describes an ecological study in Eastside, a particular area of Rotherham, a town in the north of England, UK. The purpose of the study was to collect information about literacy practices in a community setting, focusing on a library. The researchers used an ecological approach to data collection. The methodology included approaches…
Pahl, Kate; Allan, Chloe
Action research has been used in many areas where an understanding of complex social situations has been sought in order to improve the quality of life. Among these are industrial, health and community work settings. Kurt Lewin, often cited as the originator of action research, used the methodology in his work with people affected by post- war social problems. Action research approaches to educational research were adopted in the late 60s and early 70s by the ?teacher- researcher? movement ...
Phil Riding; Sue Fowell; Phil Levy
Engaging children in the design of digital technology is one of the core strands in Child-Computer Interaction literature. Nevertheless, only few studies explore how teenagers as a distinct user group are engaged in Participatory Design activities. Based on a case study comprising ten Participatory Design workshops with teenagers (13-15 years old) we identified a range of means that designers employed in order to engage the teenagers actively in PD: Rewards, storytelling, identification, collaboration, endorsement, technology and performance. While these means were realised through the use of well-established PD tools and techniques, a deeper understanding of teenagers’ motivation and motives is essential to understand how tools and techniques can made to support teenagers motivation. We outline a Cultural Historical Activity Theoretical approach to teenagers’ motives and motivation as a frame for understanding how various means may be employed to engage teenagers in PD activities.
Iversen, Ole Sejer; Dindler, Christian
Croatia, like many other transition countries has undergone radical changes in its nature protection models. This paper discusses a historical overview, present situation and future possibilities for nature conservation in Croatia. A conservative top-down approach to nature protection was applied in the past in Croatia and is now being replaced by a prevalent bottom-up approach. Social context is crucial to introducing participatory conservation, therefore special concern is given to the perception of the local population towards protected area management in Istria as a case study in Croatia. Survey data were used to assess the conservation knowledge of local populations and their perception towards Protected Areas (PAs), leadership activities and management authorities in Istria County. This paper examines the perceptions of 313 residents living in and around six natural PAs located in Istria. The results revealed a moderate general knowledge about PAs in Istria and environmental issues, and a low awareness of institutions managing PAs, eagerness to participate in the activities of PAs and general support for the conservation cause. Understanding the perception of local residents enables the creation of feasible, long-term strategies for the implementation of participatory conservation. The research identifies the need for greater human, technical and financial efforts to strengthen the management capabilities of local agencies responsible for PAs. The process of participatory conservation optimization in Croatia is underway and world experiences must be observed in order to create a congruent, site-specific model with the best possible results.
Sladonja, Barbara; Brš?i?, Kristina; Poljuha, Danijela; Fanuko, Neda; Grgurev, Marin
Forest policy decisions are often a source of debate, conflict, and tension in many countries. The debate over forest land-use decisions often hinges on disagreements about societal values related to forest resource use. Disagreements on social value positions are fought out repeatedly at local, regional, national, and international levels at an enormous social cost. Forest policy problems have some inherent characteristics that make them more difficult to deal with. On the one hand, forest policy decisions involve uncertainty, long time scales, and complex natural systems and processes. On the other hand, such decisions encompass social, political, and cultural systems that are evolving in response to forces such as globalization. Until recently, forest policy was heavily influenced by the scientific community and various economic models of optimal resource use. However, growing environmental awareness and acceptance of participatory democracy models in policy formulation have forced the public authorities to introduce new participatory mechanisms to manage forest resources. Most often, the efforts to include the public in policy formulation can be described using the lower rungs of Arnstein’s public participation typology. This paper presents an approach that incorporates stakeholder preferences into forest land-use policy using the Analytic Hierarchy Process (AHP). An illustrative case of regional forest-policy formulation in Australia is used to demonstrate the approach. It is contended that applying the AHP in the policy process could considerably enhance the transparency of participatory process and public acceptance of policy decisions.
We discuss the design and usage of "Wordle," a web-based tool for visualizing text. Wordle creates tag-cloud-like displays that give careful attention to typography, color, and composition. We describe the algorithms used to balance various aesthetic criteria and create the distinctive Wordle layouts. We then present the results of a study of Wordle usage, based both on spontaneous behaviour observed in the wild, and on a large-scale survey of Wordle users. The results suggest that Wordles have become a kind of medium of expression, and that a "participatory culture" has arisen around them. PMID:19834182
Viégas, Fernanda B; Wattenberg, Martin; Feinberg, Jonathan
This poster reviews the collarborative research approaches that NASA has been designing and implementing for the Integrated Vehicle Health Management (IVHM) Project. The inputs for the technical plan are reviewed, the Research Test and Integration Plan (RTIP) WIKI, is used to create and propose a multi-themed and multi-partner research testing opportunities. The outputs are testing opportunities.
Venti, Mike W.; Berger, David E.
This paper seeks to discuss the use of a participatory documentary process (PDP) in human geography as a method of constructing critical visual information on territorial histories of dispossession. The process was also used to enhance social change both in conjunction with local communities and within the communities themselves. The project involved 14 local young participants and four professionals who collectively produced a documentary on the rural context of violence in La Toma District, Colombia. By enabling the reflections and intentions of young participants in the research process, PDP gave special value to their social and political commitment to supporting community social organisation, and provided fresh research insights into comprehending territorial conflict. The paper concludes that this method amplifies participatory and action research approaches in geography by producing knowledge that is academically and socially relevant. Such collective, emancipatory and anti-hegemonic visual representations and actions for social change in PDP are especially pertinent in spaces of conflict and violence.
Velez Torres, Irene
Background Implementation of World Health Organization case management guidelines for serious childhood illnesses remains a challenge in hospitals in low-income countries. Facilitators of and barriers to implementation of locally adapted clinical practice guidelines (CPGs) have not been explored. Methods This ethnographic study based on the theory of participatory action research (PAR) was conducted in Kenyatta National Hospital, Kenya’s largest teaching hospital. The primary intervention consisted of dissemination of locally adapted CPGs. The PRECEDE-PROCEED health education model was used as the conceptual framework to guide and examine further reinforcement activities to improve the uptake of the CPGs. Activities focussed on introduction of routine clinical audits and tailored educational sessions. Data were collected by a participant observer who also facilitated the PAR over an eighteen-month period. Naturalistic inquiry was utilized to obtain information from all hospital staff encountered while theoretical sampling allowed in-depth exploration of emerging issues. Data were analysed using interpretive description. Results Relevance of the CPGs to routine work and emergence of a champion of change facilitated uptake of best-practices. Mobilization of basic resources was relatively easily undertaken while activities that required real intellectual and professional engagement of the senior staff were a challenge. Accomplishments of the PAR were largely with the passive rather than active involvement of the hospital management. Barriers to implementation of best-practices included i) mismatch between the hospital’s vision and reality, ii) poor communication, iii) lack of objective mechanisms for monitoring and evaluating quality of clinical care, iv) limited capacity for planning strategic change, v) limited management skills to introduce and manage change, vi) hierarchical relationships, and vii) inadequate adaptation of the interventions to the local context. Conclusions Educational interventions, often regarded as ‘quick-fixes’ to improve care in low-income countries, may be necessary but are unlikely to be sufficient to deliver improved services. We propose that an understanding of organizational issues that influence the behaviour of individual health professionals should guide and inform the implementation of best-practices. PMID:24507629
Full Text Available A saúde mental é imprescindível ao desenvolvimento social e económico das comunidades. Envolver as comunidades no desenho e desenvolvimento de planos locais de promoção da saúde mental é um importante desafio para garantir mais e melhor saúde mental a cada comunidade. De 2009 a 2012 desenvolveu-se u [...] m estudo de caso baseado nos pressupostos de uma investigação participada de base comunitária numa comunidade urbana da região metropolitana de Lisboa, com o objetivo de fundamentar o desenho de um plano local de promoção da saúde mental local. O resultado deste trabalho de parceria, que envolveu habitantes e organizações governamentais e não-governamentais da comunidade urbana, fundamentado na capacitação individual e comunitária da comunidade e dos seus membros, confirmou a necessidade de uma participação ativa e efetiva da comunidade no desenvolvimento de políticas locais de promoção da saúde e concluiu pela definição de 6 eixos estratégicos de intervenção pelo período temporal 2012/2015: uma escola com saúde mental; uma comunidade ativa e segura; uma comunidade solidária e inclusiva; uma comunidade atenta; uma organização económico-laboral promotora de saúde mental; uma senioridade mentalmente saudável. Abstract in english Mental health is essential to community social and economic development. Involving communities in the design and development of mental health promotion local plans is a major challenge to ensure more and better mental health in each community. From 2009 to 2012 a case study was developed based on th [...] e assumptions of a community-based participatory research in an urban community in the metropolitan area of Lisbon, in order to support the design of a mental health promotion local plan. The result of this partnership, which involved inhabitants and governmental and non-governmental organizations of the urban community, based on individual and community empowerment of the community and its members, confirmed the need for an active and effective participation of the community in the development of health promotion local policies and concluded by defining six strategic areas of intervention between 2012 and 2015: a school with mental health, an active and safe community, a supportive and inclusive community, a community aware, an organization promoting economic and work mental health, a seniority mentally healthy.
José Carlos Rodrigues, Gomes; Maria Isabel Guedes, Loureiro.
Strong arguments for participatory modelling in hydrology can be made on substantive, instrumental and normative grounds. These arguments have led to increasingly diverse groups of stakeholders (here anyone affecting or affected by an issue) getting involved in hydrological research and the management of water resources. In fact, participation has become a requirement of many research grants, programmes, plans and policies. However, evidence of beneficial outcomes of participation as suggested by the arguments is difficult to generate and therefore rare. This is because outcomes are diverse, distributed, often tacit, and take time to emerge. In this paper we present results from applying an evaluation framework focussed on learning outcomes (Krueger et al., 2012) to a participatory modelling process within the Tamar catchment pilot of the UK government's new Catchment Based Approach of managing water resources. The process was run as a series of workshops with email and telephone conversations in between. The outputs were models of sediment and Faecal Coliform transfers from land to water and down to the catchment outlet, mitigated by sewage treatment options, land use, livestock densities and farm management practices. The learning outcomes were assessed through semi-structured interviews with the participants. The results indicate a lack of fairness and some competence issues of the participatory modelling process. Nevertheless, salience, credibility and legitimacy of the models were judged positively by the majority of participants, and some substantive and instrumental benefits of participatory modelling theory could be confirmed, specifically input of better data and increased buy-in and ownership from the participants, respectively. Instrumental learning by the participants was high and facilitated through the models as well as the group setting. Communicative learning by the participants was mixed, with people increasingly appreciating the views of others and discovering shared interests, but not necessarily changing their own view, behaviour or institutional practice. We conclude the paper with a discussion of two learning aspects of the participatory modelling process for which conflicting results were obtained: the question of depth of model scrutiny and the question of trust in the model, in the modeller and between the participants. References Krueger, T, Inman, A, Chilvers, J. 2012. An evaluation framework for participatory modelling. Paper Number EGU2012-5958. European Geosciences Union General Assembly, April 22nd-27th: Vienna, Austria.
Krueger, Tobias; Inman, Alex; Chilvers, Jason
Full Text Available The text deals with some methodological problems in special education research. The limits of purely positivistic, quantitative, experimental research in the area of special education lately are overcome with the use of qualitative approach. Qualitative research are flexibly designed. The data are descriptive and collected in natural setting. Characteristics of the qualitative research make them more appropriate for investigation of the phenomena in special education, considering the small numbers of available subjects, heterogeneity, ethical and moral problems, etc.
The text deals with some methodological problems in special education research. The limits of purely positivistic, quantitative, experimental research in the area of special education lately are overcome with the use of qualitative approach. Qualitative research are flexibly designed. The data are descriptive and collected in natural setting. Characteristics of the qualitative research make them more appropriate for investigation of the phenomena in special education, considering the small nu...
La Investigación participativa como práctica social y su aportación al mundo laboral a través del modelo obrero Participatory Research as Social Practice, and Its Contribution to the Workplace Through Worker Models.
Full Text Available La investigación participativa (IP, también llamada investigaci?n-acción (IA ha sido un aporte teórico-metodológico muy valioso para explorar y transformar diferentes contextos sociales: salud, educación, comunidades, procesos de comunicación y el sector laboral, entre otros. Sus principios implican la reflexión sobre diferentes prácticas por parte de los grupos sociales, la generación de nuevos conocimientos y la adquisición de un nuevo status tanto del investigador como del grupo “investigado”, ya que se asume la capacidad de ambos para generar y compartir conocimiento, entraña la intencionalidad de modificar dichas prácticas en beneficio de las colectividades, como una forma de alcanzar objetivos inmediatos pero también satisfactores a largo plazo. La instrumentación de la investigación-acción atraviesa por recobrar su enorme riqueza epistemológica, política, ideológica y ética. Una modalidad de la investigación participante ha sido el Modelo Obrero Italiano, el cual se ha impulsado, en diferentes momentos históricos, al interior de diversos centros de trabajo y distintos contextos sociales. Su puesta en operación en algunos países lo perfila aún como viable, aunque las actuales condiciones sociales, políticas y económicas, señalan la necesidad de la generación de propuestas que permitan, bajo la lógica de la investigación participante, generar un nuevo modelo que de respuesta a las necesidades que la realidad plantea.Participatory research, also known as “actionoriented research” has made valuable theoretical and methodological contributions that allow us to explore and transform different social contexts: in health, education, communities, communication processes and the labor sector, among others. Its underpinnings allow thoughtful reflection on different practices by social groups, the generation of new knowledge and the acquisition of a new status for both the researcher as well as the group being researched, since both contribute to the generation and sharing of knowledge, and it includes the intent of changing practices to the benefit of a collective, as a way of achieving both immediate and long-term objectives. The articulation of actionoriented research goes through a process of recovering its enormous epistemological, political, ideological and ethical value. One example of participatory research is the Italian Worker Model, which has been implemented, at different times in history, in diverse workplaces and in different social contexts. Its use in some countries makes it still viable, although current social, political and economic conditions indicate the need to develop new proposals that allow, under the framework of participatory research, the generation of a new mode that is responsive to these new realities.
Susana Martínez Alcántara
La Investigación participativa como práctica social y su aportación al mundo laboral a través del modelo obrero / Participatory Research as Social Practice, and Its Contribution to the Workplace Through Worker Models.
Full Text Available La investigación participativa (IP), también llamada investigación-acción (IA) ha sido un aporte teórico-metodológico muy valioso para explorar y transformar diferentes contextos sociales: salud, educación, comunidades, procesos de comunicación y el sector laboral, entre otros. Sus principios implic [...] an la reflexión sobre diferentes prácticas por parte de los grupos sociales, la generación de nuevos conocimientos y la adquisición de un nuevo status tanto del investigador como del grupo “investigado”, ya que se asume la capacidad de ambos para generar y compartir conocimiento, entraña la intencionalidad de modificar dichas prácticas en beneficio de las colectividades, como una forma de alcanzar objetivos inmediatos pero también satisfactores a largo plazo. La instrumentación de la investigación-acción atraviesa por recobrar su enorme riqueza epistemológica, política, ideológica y ética. Una modalidad de la investigación participante ha sido el Modelo Obrero Italiano, el cual se ha impulsado, en diferentes momentos históricos, al interior de diversos centros de trabajo y distintos contextos sociales. Su puesta en operación en algunos países lo perfila aún como viable, aunque las actuales condiciones sociales, políticas y económicas, señalan la necesidad de la generación de propuestas que permitan, bajo la lógica de la investigación participante, generar un nuevo modelo que de respuesta a las necesidades que la realidad plantea. Abstract in english Participatory research, also known as “actionoriented research” has made valuable theoretical and methodological contributions that allow us to explore and transform different social contexts: in health, education, communities, communication processes and the labor sector, among others. Its underpin [...] nings allow thoughtful reflection on different practices by social groups, the generation of new knowledge and the acquisition of a new status for both the researcher as well as the group being researched, since both contribute to the generation and sharing of knowledge, and it includes the intent of changing practices to the benefit of a collective, as a way of achieving both immediate and long-term objectives. The articulation of actionoriented research goes through a process of recovering its enormous epistemological, political, ideological and ethical value. One example of participatory research is the Italian Worker Model, which has been implemented, at different times in history, in diverse workplaces and in different social contexts. Its use in some countries makes it still viable, although current social, political and economic conditions indicate the need to develop new proposals that allow, under the framework of participatory research, the generation of a new mode that is responsive to these new realities.
Susana, Martínez Alcántara.
We introduce participatory action research as a strategy for "consultation with." We elaborate the possibilities and limits of participatory consultation as a strategy that enables sustained relations with communities of material poverty and resilience wealth. Consulting with an activist organization, and dedicated to producing a Web-based oral…
Guishard, Monique; Fine, Michelle; Doyle, Christine; Jackson, Jeunesse; Staten, Travis; Webb, Ashley
Full Text Available This research aims at providing a general overview about participatory budgeting as well as providing a study on the possibility whether participatory budgeting can be implemented in the kingdom of Bahrain. The research was conducted with the assist of primary data as well as secondary data. The primary data consists of a survey distributed to 52 samples as well as an interview performed at the Ministry of Finance in the kingdom of Bahrain. The secondary data revolved around some previous studies as well as the assist of published books and the World Wide Web. The research analysis stated that people would love to see participatory budgeting being implemented in the kingdom. Finally, the author reached a conclusion stating that participatory budgeting can’t be implemented in the kingdom at the mean time but it could be possible in the near future by starting the execution gradually in one of the five governorates in the kingdom with the assist of the Municipal Council which was appointed by the citizens. The author also suggested for participatory budgeting to be taught in schools as well as integrating an online tool to solve the problem of participation through the e-Government Authority.
Maram Al Maskati
Brusel : ECCREDI, 2003, s. 2-2 ISBN N. [FP6 Construction research in the enlarged European union. Warsaw (PL), 06.11.2003-07.11.2003] Institutional research plan: CEZ:AV0Z2071913 Keywords : cultural heritage * interdisciplinary approach * stone masonry Subject RIV: JM - Building Engineering
Drdácký, Miloš; Minster, Ji?í
Greater attention needs to be given to ethics related to the use, organisation and coordination of participatory forms of water planning. Working with diverse groups of people on water management issues requires the ability to understand and collectively make a range of decisions on the content, design and implementation of participatory processes. Ethical questions and sensitivities arise in such work including issues of changing existing power structures, privacy conditions and cultural sen...
Daniell, K. A.; White, I.; Rollin, D.
Full Text Available This research aims at providing a general overview about participatory budgeting as well as providing a studyon the possibility whether participatory budgeting can be implemented in the kingdom of Bahrain. The researchwas conducted with the assist of primary data as well as secondary data. The primary data consists of a surveydistributed to 52 samples as well as an interview performed at the Ministry of Finance in the kingdom ofBahrain. The secondary data revolved around some previous studies as well as the assist of published books andthe World Wide Web. The research analysis stated that people would love to see participatory budgeting beingimplemented in the kingdom. Finally, the author reached a conclusion stating that participatory budgeting can’tbe implemented in the kingdom at the mean time but it could be possible in the near future by starting theexecution gradually in one of the five governorates in the kingdom with the assist of the Municipal Councilwhich was appointed by the citizens. The author also suggested for participatory budgeting to be taught inschools as well as integrating an online tool to solve the problem of participation through the e-GovernmentAuthority.
Maram Al Maskati
La investigación-acción-participativa: Una forma de investigar en la práctica enfermera / The Participatory-Action-Research: A way to research in the nursing practice / Investigação-ação-participativa: Uma forma de pesquisar na prática enfermeira
Full Text Available Dentro do paradigma qualitativo da investigação, a Investigação-Ação-Participativa (IAP) integra o conhecimento e a ação; não há que esperar a que depois de produzir o conhecimento se produza a translação deste à prática. É um método que se utiliza desde faz várias décadas em disciplinas como a educ [...] ação ou a sociologia, no entanto é emergente no âmbito da saúde. Existem uma grande variedade de definições, classificações e modelos de IAP e com este artigo pretendemos arrojar luz sobre este método de investigação, sua história, sua filosofia e sua utilização, dados seu potencial e novidade no âmbito das ciências da saúde. Abstract in spanish Dentro del paradigma cualitativo de la investigación, la Investigación- Acción-Participativa (IAP) integra el conocimiento y la acción; no hay que esperar a que tras producir el conocimiento se produzca la traslación de este a la práctica. Es un método que se utiliza desde hace varias décadas en dis [...] ciplinas como la educación o la sociología, sin embargo es emergente en el ámbito de la salud. Existen una gran variedad de definiciones, clasificaciones y modelos de IAP y con este artículo pretendemos arrojar luz sobre este método de investigación, su historia, su filosofía y su utilización, dados su potencial y novedad en el ámbito de las ciencias de la salud. Abstract in english Within the qualitative research paradigm, the Participatory-Action- Research (PAR) integrates knowledge and action. It is not necessary to wait for knowledge to be produced to transfer it into practice. It is a method used for decades in disciplines such as education and sociology; however it is eme [...] rging in the health field. There are a variety of definitions, classifications and PAR models; this article aims to shed light upon this method of research, its history, philosophy and its use, given its potential and innovation in the field of health sciences.
Eva, Abad Corpa; Pilar, Delgado Hito; Julio, Cabrero García.
The relative merits and potential complementarity of participatory methods and classical epidemiological techniques in veterinary-related research is a current topic of discussion. Few reported studies have applied both methodologies within the same research framework to enable direct comparison. The aim of this study was to compare issues identified by a classical epidemiological study of horses and their owners with those identified by owner communities using participatory approaches. In 2009, a cross-sectional survey was undertaken as part of an impact assessment study of farrier and saddler training programmes, and a small-scale nutrition trial, implemented in Lesotho by a UK-based equine charity. In total, 245 horses and their 237 owners participated in the survey which comprised a face-to-face structured questionnaire covering knowledge and practices relating to equine husbandry and primary healthcare, clinical examination and sampling of horses, and examination of tack used on those horses. In early 2010, 56 owners in three survey regions, some of whom participated in the survey, attended a participatory workshop. Each workshop group created a local resource map whilst discussing and identifying key issues associated with horse ownership and what might have an adverse impact on horse health and work. Following map completion, each group began by prioritising the identified issues, and then ranked them using a pairwise/ranking matrix to reflect how important issues were in relation to each other. Overall priority issues were: mouth problems, hunger and nutrition, diseases (including infectious diseases, parasites and colic), husbandry (including wound management), and feet and limb problems. Major health issues identified by cross-sectional study included sharp enamel points on teeth, endo- and ectoparasite infestation, suboptimal nutrition, tack-associated wounds, overgrown and poorly balanced feet and poor owner husbandry knowledge and practices. Whilst common issues were identified through the two research approaches, key differences also emerged. The classical, more quantitative approach provided objective measurement of problem frequency, which was compared with owners' perceptions of importance. The qualitative participatory approach provided greater opportunity for researchers to gain detailed understanding of local issues and appreciate how owners defined and prioritised problems affecting them and their animals. Both approaches provided valuable and complementary information that can be used to inform interventions aimed at providing sustainable improvements in the health and wellbeing of working animals and their owners. It is recommended that both quantitative and qualitative approaches are employed as part of detailed needs assessment work prior to defining and prioritising the charity's future interventions. PMID:23419786
Upjohn, M M; Attwood, G A; Lerotholi, T; Pfeiffer, D U; Verheyen, K L P
Market research companies spend large amounts of money carrying out time-intensive processes to gather information about peo- ple’s activities, such as the place they frequent and the activities in which they partake. Due to high costs and logistical difficulties, an automated approach to this practice is needed. In this work we present an automated market research system based on computer vision and machine learning algorithms with visual lifelogging data, developed in collaboration wit...
Hughes, Mark; Newman, Eamonn; Smeaton, Alan F.; O Connor, Noel E.
One barrier to searching for novel mutations in African American families with breast cancer is the challenge of effectively recruiting families-affected and non-affected relatives-into genetic research studies. Using a community-based participatory research (CBPR) orientation, we incorporated several evidence-based approaches through an iterative fashion to recruit for a breast cancer genetic epidemiology study in African Americans. Our combined methods allowed us to successfully recruit 341 African American women (247 with breast cancer and 94 relatives without breast cancer) from 127 families. Twenty-nine percent of participants were recruited through National Witness Project (NWP) sites, 11 % came from in-person encounters by NWP members, 34 % from the Love Army of Women, 24 % from previous epidemiologic studies, and 2 % from a support group. In terms of demographics, our varied recruitment methods/sources yielded samples of African American women that differ in terms of several sociodemographic factors such as education, smoking, and BMI, as well as family size. To successfully recruit African American families into epidemiological research, investigators should include community members in the recruitment processes, be flexible in the adoption of multipronged, iterative methods, and provide clear communication strategies about the underlying benefit to potential participants. Our results enhance our understanding of potential benefits and challenges associated with various recruitment methods. We offer a template for the design of future studies and suggest that generalizability may be better achieved by using multipronged approaches. PMID:25112899
Ochs-Balcom, Heather M; Jandorf, Lina; Wang, Youjin; Johnson, Detric; Meadows Ray, Veronica; Willis, Mattye J; Erwin, Deborah O
Full Text Available Women are often ignored from research and development agenda although they play key roles in agriculture in developing countries. They are excluded from decision making and as a result, they frequently do not have access to resources, technologies and extension services, credits, inputs and markets. This paper aims to document, using qualitative methods, how participatory approach through Farmers Research Group (FRG can address gender inequalities and subsequently empower women smallholder farmers using a case study from Ethiopia. Through the participatory intervention, women farmers have enhanced their skills and knowledge of improved agricultural technologies as well as their collective capacity (social capital in accessing input and output markets. As a result, the number of FRG members increased from 25 women farmers organized in one FRG in 2006 to 253 women farmers organized in 11 village-level Farmers Research Extension Groups (FREGs in 2013. The participatory intervention in the study area has improved women’s productivity of seed potatoes and marketing; enabled them to earn cash an average of Ethiopian Birr (ETB 11 000 per year only from the sale of seed potatoes; and this has created more options to improve the livelihoods of women farmers and their households by diversifying into higher-value farm and off-farm work. Consequently, women decision making in the household as well as in the community has been enhanced. Women farmers are now heard at national level for their innovative experiences and have become one of the national seed potato and knowledge sources. There is a need to replicate this model approach to enhance the productivity of smallholder women farmers and subsequently empower them to facilitate exit pathways out of poverty and ensure sustainable development.
Ali Mohammed Oumer
Capacity-building and Participatory Research Development of a Community-based Nutrition and Exercise Lifestyle Intervention Program (NELIP for Pregnant and Postpartum Aboriginal Women:Information Gathered from Talking Circles.
Full Text Available Objectives were to gather information from Talking Circles of Aboriginal women who participated in a maternal Nutrition and Exercise Lifestyle Intervention Program (NELIP to identify strategies to bring NELIP into the community. Twelve First Nations women participated. Several main themes were identified regarding health: balance, knowledge/education and time management. Benefits of the NELIP were improvement in health, stamina, stress, and a healthy baby, no gestational diabetes and a successful home birth, with social support as an important contributing factor for success. Suggestions for improvement for the NELIP included group walking, and incorporating more traditional foods into the meal plan. The information gathered is the first step in determining strategies using participatory research and capacity-building to develop a community-based NELIP for pregnant Aboriginal women.
Background: The emergence of a participatory culture, brought about mainly by the use of Web2.0 technology, is challenging us to reconsider aspects of teaching and learning. Adapting the learning-as-digital-game-building approach, this paper explores how new educational practices can help students build skills for the 21st century. Purpose: This…
Full Text Available Action research has been used in many areas where an understanding of complex social situations has been sought in order to improve the quality of life. Among these are industrial, health and community work settings. Kurt Lewin, often cited as the originator of action research, used the methodology in his work with people affected by post- war social problems. Action research approaches to educational research were adopted in the late 60s and early 70s by the ?teacher- researcher? movement in the secondary education sector. This sought to bring the practising classroom teacher into the research process as the most effective person to identify problems and to find solutions.We believe that an action research approach can contribute very positively to activity within the tertiary sector concerned with teaching quality issues, and with national Teaching Quality Assessment initiatives. As 'reflective practitioners', we can achieve greater ownership of the evaluative process by becoming systematically self-assessing, alongside, and feeding into, external assessment processes.
In this paper we describe how ongoing work with ethnographic material in a participatory innovation sets the scene for innovation to happen. We elaborate on how actionable formats of ethnographic material have been mediated to industrial partners with a stake in an innovation project. We illustrate how the stakeholders engaged in activities such as sense-making, co-analysis, and cross-comparison of the ethnographic materials, and the specification and mapping of innovation opportunities. We argue that these activities served to establish a shared understanding and ownership of the participatory research, design material.
Jaffari, Svenja; Boer, Laurens
Strong arguments for participatory modelling in hydrology can be made on substantive, instrumental and normative grounds. These arguments have led to increasingly diverse groups of stakeholders (here anyone affecting or affected by an issue) getting involved in hydrological research and the management of water resources. In fact, participation has become a requirement of many research grants, programs, plans and policies. However, evidence of beneficial outcomes of participation as suggested by the arguments is difficult to generate and therefore rare. This is because outcomes are diverse, distributed, often tacit, and take time to emerge. In this paper we develop an evaluation framework for participatory modelling focussed on learning outcomes. Learning encompasses many of the potential benefits of participation, such as better models through diversity of knowledge and scrutiny, stakeholder empowerment, greater trust in models and ownership of subsequent decisions, individual moral development, reflexivity, relationships, social capital, institutional change, resilience and sustainability. Based on the theories of experiential, transformative and social learning, complemented by practitioner experience our framework examines if, when and how learning has occurred. Special emphasis is placed on the role of models as learning catalysts. We map the distribution of learning between stakeholders, scientists (as a subgroup of stakeholders) and models. And we analyse what type of learning has occurred: instrumental learning (broadly cognitive enhancement) and/or communicative learning (change in interpreting meanings, intentions and values associated with actions and activities; group dynamics). We demonstrate how our framework can be translated into a questionnaire-based survey conducted with stakeholders and scientists at key stages of the participatory process, and show preliminary insights from applying the framework within a rural pollution management situation in the UK.
Krueger, T.; Inman, A.; Chilvers, J.
Using the new conceptual framework of participatory visual media as method, advocacy and voice (MAV), the author explores an action research study using an exemplar in which advocates from the disability community created and distributed a series of videos about love and sexuality as a critical human rights issue in the disability community. The…
Sitter, Kathleen C.
Participatory evaluation has been developing over the last several years, particularly in the social sector. Concurrently, research on the effects of evaluation has evolved significantly. Recently, one type of result has been the object of particular attention: the effects and lessons directly attributable to the evaluative process, or process use. Analyses generally underline the direct link between participatory approaches and this type of result. However, few empirical studies testing this concept are available. Our analysis aims to enrich evaluative research on this theme and is founded on a case study of a participatory evaluation project on practices carried out in a social services organization (Centre Jeunesse de Québec--Institut universitaire [Québec Youth Centre--University Institute, Canada]). The results of our analysis show that the evaluative process favours participant learning and has had several direct and indirect effects on the practices of the involved clinical teams. The results also demonstrate the existence of a link between the intensity of actor participation (individuals, groups) and process use. Both constraining factors and factors favourable to participation and the development of the evaluative process are identified, and avenues for improvement are suggested to accentuate the effects of process use. PMID:20870291
Jacob, Steve; Ouvrard, Laurence; Bélanger, Jean-François
This research aims to formulate policy and institution for Participatory Lake Singkarak management. This research was conducted in District Solok and District Tanah Datar, West Sumatera Province. This study object is focused in Lake Singkarak area. The results of research are: (1) interest and influence of stakeholders are varied based on institution, need, region, utility orientation, (2) policy alternatives for lake Singkarak management are firstly co-management and secondly lake management...
This thesis is drawn from an ongoing action research project, Health Information Systems Program (HISP) which aims at developing sustainable, computerised Health Information Systems (HIS) in developing countries in order to improve the quality of health service delivery and to create local action and analysis. The research in this thesis is conducted in Kerala in India, where the use of participatory practices is studied in a developing country perspective. Participatory Design is generally s...
"Wellbeing" is a key concept in the study of children's lives over time, given its potential to link the objective, subjective, and inter-subjective dimensions of their experiences in ways that are holistic, contextualized and longitudinal. For this reason wellbeing is one of the core concepts used by Young Lives, a 15-year project (2000-2015)…
Crivello, Gina; Camfield, Laura; Woodhead, Martin
Educação, pesquisa participante e saúde: as ideias de Carlos Rodrigues Brandão / Education, participatory research, and health: the ideas of Carlos Rodrigues Brandão / Educación, investigación participante y salud: las ideas de Carlos Rodrigues Brandão
Full Text Available Este artigo tem como objetivo analisar as obras do autor brasileiro Carlos Rodrigues Brandão relacionadas ao campo da educação e da pesquisa participante, destacando os seus pressupostos teóricos e estabelecendo relações com o campo da saúde. Realizamos uma investigação de caráter qualitativo e de t [...] ipo exploratório-descritivo, adotando a pesquisa bibliográfica como procedimento metodológico. 'Educação' foi a categoria teórica principal. Ademais, obtivemos as seguintes categorias empíricas advindas das análises textuais: 'educações'; 'sempre aprendemos uns com os outros'; 'uma antropologia participante'; 'liberdade, autonomia e esperança'; 'pesquisa participante'; 'diálogo: (re)construção do conhecimento ou construção de saberes'; 'pesquisa, conhecimento e tempo'; 'o sentido da palavra: direito de pronunciar o sentido do mundo'. Verificamos importantes fundamentos de uma concepção crítica de educação que podem contribuir como base para práticas democráticas de saúde, como, por exemplo, a ideia de 'diálogo' como pedra angular pedagógica, que possibilita processos de interação de sujeitos e a construção social do conhecimento. Abstract in spanish Este artículo tiene como objetivo analizar las obras del autor brasileño Carlos Rodrigues Brandão, relacionadas al campo de la educación y de la investigación participante, destacando sus premisas teóricas y estableciendo relaciones con el campo de la salud. Se realizó una investigación de carácter [...] cualitativo y de tipo exploratorio-descriptivo, adoptando la investigación bibliográfica como procedimiento metodológico. "Educación" fue la categoría teórica principal. Además, se obtuvieron las siguientes categorías empíricas surgidas de los análisis textuales: "educaciones"; "siempre aprendeemos unos con otros"; "una antropología participante"; "libertad, autonomía y esperanza"; "investigación participante"; "diálogo: (re)construcción del conocimiento o construcción de saberes"; "investigación, conocimiento y tiempo"; "el sentido de la palabra: derecho de pronunciar el sentido del mundo". Se verificaron fundamentos importantes de una concepción crítica de educación que pueden contribuir como base para prácticas democráticas de salud como, por ejemplo, la idea de "diálogo" como piedra angular pedagógica, que permite procesos de interacción de individuos y la construcción social del conocimiento. Abstract in english This article aims to analyze the work of Brazilian author Carlos Rodrigues Brandão as related to the field of education and participatory research, highlighting his theoretical assumptions and establishing relationships with the field of healthcare. We conducted a qualitative, exploratory-descriptiv [...] e investigation, using literature research as a methodological procedure. 'Education' was the main theoretical category. Additionally, we obtained the following empirical categories arising from textual analysis: 'Educations;' 'always learn from each other;' 'a participatory anthropology;' 'freedom, autonomy, and hope;' 'participatory research;' 'dialog: (Re)construction of knowledge or construction of knowledge;' 'research, knowledge, and time;' 'The sense of the word: the right to pronounce the meaning of the world.' We checked important foundations of a critical conception of education that can contribute as a basis for democratic health practices, such as the idea of 'dialog' as a pedagogical cornerstone that enables interaction processes among individuals and the social construction of knowledge.
Aline Almeida da, Silva; Kátia Reis de, Souza.
There is a growing interest in values-led inquiries within participatory design. One approach argues that working with values is a recursive 3-phase process that supports the emergence, development and grounding of values. In this paper we focus solely upon the emergence phase, proposing an approach that can support the emergence of values during the initial phase of a values-led inquiry. To illustrate this approach and to ground our discussion, we draw from a recent participatory design case where we were engaged in the design of digital technology to support the experiences of young adults with severe intellectual disabilities, in an art museum. By describing how we establish, negotiate and the debrief values during this initial phase of a values-led inquiry. By foregrounding both explicit and implicit mediation in the PD process we show how a theoretical understanding of mediation can potentially
Iversen, Ole Sejer; Leong, Tuck Wah
Full Text Available The present paper analyses different approaches of religiosity in the psychological researches. We intend to explain the concept of religiosity, the distinction in the psychology field between religiosity and spirituality, religiosity dimensions and the main issues to be taken into account in measuring religiosity. In the analysis of the religiosity dimensions we refer to the hierarchical model of religiosity organization (Tsang and McCullough, 2003, which argues that religiosity is manifested at two levels: the dispositional level, reflecting the interindividual differences on religious features and the operational level, which refers to the interindividual diversity in the expression of religiosity. Regarding the measurement of religiosity, we analyze the conceptual clarity of the measured dimensions, the psychometric aspects of the religiosity measurement instruments, the sample representativeness and the cultural sensitivity of the instruments measuring religiosity. Throughout the article we present the results of some researches on the implications of the religiosity dimensions on the personal and family mental health
Full Text Available Abstract Background Schools can be effective settings for improving eating habits and physical activity, whereas it is more difficult to prevent obesity. A key challenge is the “implementation gap”. Trade-off must be made between expert-driven programmes on the one hand and contextual relevance, flexibility, participation and capacity building on the other. The aim of the Stockholm County Implementation Programme was to improve eating habits, physical activity, self-esteem, and promote a healthy body weight in children aged 6–16 years. We describe the programme, intervention fidelity, impacts and outcomes after two years of intervention. Methods Nine out of 18 schools in a middle-class municipality in Sweden agreed to participate whereas the other nine schools served as the comparison group (quasi-experimental study. Tailored action plans were developed by school health teams on the basis of a self-assessment questionnaire called KEY assessing strengths and weaknesses of each school’s health practices and environments. Process evaluation was carried out by the research staff. Impacts at school level were assessed yearly by the KEY. Outcome measures at student level were anthropometry (measured, and health behaviours assessed by a questionnaire, at baseline and after 2 years. All children in grade 2, 4 and 7 were invited to participate (n=1359 of which 59.8% consented. The effect of the intervention on health behaviours, self-esteem, weight status and BMIsds was evaluated by unilevel and multilevel regression analysis adjusted for gender and baseline values. Results Programme fidelity was high demonstrating feasibility, but fidelity to school action plans was only 48% after two years. Positive and significant (p Conclusions School staff has the capacity to create their own solutions and make changes at school level on the basis of self-assessment and facilitation by external agents. However these changes were challenging to sustain over time and had little impact on student behaviours or weight status. Better student outcomes could probably be attained by a more focused and evidence-based approach with stepwise implementation of action plans.
Elinder Liselotte Schäfer
The purpose of this paper is to study the process used for selecting research areas and methodological approaches in distance education in India. Experts from the field of distance education in India were interviewed at length, with the aim of collecting qualitative data on opinions on process-issues for selecting areas for research, research design, and appropriate methodological approaches in distance education. Data collected from these interviews were subjected to content analysis; triang...
Sudarshan Mishra; Passi, B. K.
Sustainable land use planning is crucial for realizing the aim of food security and for combating land degradation in the Sahel. A participatory land use planning workshop was organised in a village in the eastern region of Burkina Faso to investigate land use problems, their causes, effects and possible solutions. Participatory research tools and GIS were combined to get insight into possible conflicts or synergies between different land use options as mapped by different ethnic groups. Pict...
Hessel, R.; Berg, J.; Kabore, O.; Kekem, A. J.; Verzandvoort, S. J. E.
The paper examined participatory hazard management system and accident prevention in the bonny NLNG construction project. The research question addressed the extent at which reduced accident/incident rate and increased organizational productivity is dependent on the implementation of participatory hazard management system in the bonny NLNG construction project. It is based on the fundamental behavioural cybernetic principle that those directly affected by workplace hazards, should be primaril...
Mba Okechukwu Agwu; Cletus Izunwanne Emeti
Full Text Available Broad-scale, multi-governance level, participatory water management processes intended to aid collective decision making and learning are rarely initiated, designed, implemented, and managed by one person. These processes mostly emerge from some form of collective planning and organization activities because of the stakes, time, and budgets involved in their implementation. Despite the potential importance of these collective processes for managing complex water-related social–ecological systems, little research focusing on the project teams that design and organize participatory water management processes has ever been undertaken. We have begun to fill this gap by introducing and outlining the concept of a co-engineering process and examining how it impacts the processes and outcomes of participatory water management. We used a hybrid form of intervention research in two broad-scale, multi-governance level, participatory water management processes in Australia and Bulgaria to build insights into these co-engineering processes. We examined how divergent objectives and conflict in the project teams were negotiated, and the impacts of this co-engineering on the participatory water management processes. These investigations showed: (1 that language barriers may aid, rather than hinder, the process of stakeholder appropriation, collective learning and skills transferal related to the design and implementation of participatory water management processes; and (2 that diversity in co-engineering groups, if managed positively through collaborative work and integrative negotiations, can present opportunities and not just challenges for achieving a range of desired outcomes for participatory water management processes. A number of areas for future research on co-engineering participatory water management processes are also highlighted.
Promoção à saúde e educação: diagnóstico de saneamento através da pesquisa participante articulada à educação popular (Distrito São João dos Queiróz, Quixadá, Ceará, Brasil Health promotion and education: a diagnosis of sanitation conditions using participatory research and community education (São João dos Queiróz, Quixadá, Ceará, Brazil
Full Text Available Este trabalho foi desenvolvido em uma comunidade rural vila de São João dos Queiróz, Distrito do Município de Quixadá, Ceará, através da pesquisa participante articulada à educação popular, tendo como referencial a promoção à saúde de acordo com os princípios da Carta de Ottawa, 1986. Participaram do projeto representantes das diversas instituições públicas do distrito e entidades associativas ligadas ao movimento popular. O tema gerador, definido em assembléia da associação comunitária, foi o diagnóstico de saneamento, e o ponto de partida, o levantamento da condição situacional. Os resultados obtidos mostraram as precárias condições locais de saneamento, escolaridade, renda e trabalho. As sugestões para resoluções dos problemas foram organizadas para subsidiar a agenda de planejamento das políticas locais de saúde. A avaliação foi processual e enriquecida com práticas do cotidiano da pesquisa. A pedagogia problematizadora, desenvolvida durante o processo educativo, contribuiu para a construção e a reconstrução crítica dos conceitos de promoção à saúde e de saneamento, assim como para a efetivação da construção, apropriação e socialização dos conhecimentos produzidos.This study was conducted in a rural community, São João dos Queiróz, a township in the county of Quixadá, Ceará, Brazil, using a combination of participatory research and community education in compliance with the health promotion reference and principles of the 1986 Ottawa Charter. The project was joined by representatives of several local government institutions and organizations from the grassroots community movement. The theme generating the research, as defined by an assembly meeting of the community association, was a diagnosis of sanitation conditions in the community. The starting point was the assessment of local conditions. Results showed adverse local conditions in sanitation, literacy, income, and employment. Suggestions for solving the problems were organized so as to be included in the planning agenda for local health policies. Evaluation was procedural and enriched with daily research activities. The problem-solving pedagogical approach developed during the educational process contributed to a critical reconstruction, appropriation, and sharing of the resulting knowledge.
Dalva A. Mello
Full Text Available This paper discusses the last segment of a three-year interdisciplinary and intersectoral action research on climate change and urban transformation. The project had, as one of its core missions, the role of imagining urban and architectural adaptations for urban neighbourhoods that would contribute to minimizing the negative impacts of climate change on people’s comfort, health and safety. The first part of the paper describes the collaborative design and augmented participation method used in the context of Québec City, Canada. These include the design process conducted to imagine adaptation scenarios, the visual strategies undertaken to make these understandable for the population, and the Web 2.0 crowdsourcing approach forwarded to measure feasibility and social acceptability of the design and visualization strategies. The second part discusses three positive outcomes of the process. First, collaborative design conducted with intersectoral groups of experts constitutes a promising avenue to identify adaptations and evaluate their relevance. Second, crowdsourcing is a powerful tool to inform the general public about climate change including both negative and potential aspects. As well, the crowdsource model allows access to particular knowledge which empowered users to make changes around their homes and neighbourhoods or advocating action from their local government. Crowdsourcing is also an efficient tool to help understand what people know about the potential impact of climate change and how it bears on their comfort, health and safety. Third and finally, the design proposals and the evaluation comments generated by working closely with various stakeholders, along with the public on-line consultation, allow for the induction of pragmatic recommendations that can be used as decision aids by elected officials and civil servants to better prepare their municipalities for climate change.
Modelos avaliativos e reforma sanitária Brasileira: enfoque qualitativo-participativo Modelos evaluativos y reforma sanitaria Brasilera: enfoque cualitativo-participativo Evaluation models and Brazilian health reform: a qualitative-participatory approach
Full Text Available Ao longo dos últimos anos, registra-se um crescente interesse por propostas avaliativas não tradicionais e mais abrangentes nos movimentos de reforma sanitária em curso na América Latina. Este estudo teve por objetivo analisar potencialidades do enfoque avaliativo qualitativo-participativo ante o desafio de fortalecer as reformas sanitárias na região, particularmente aquelas que se configuram progressistas, como o caso brasileiro. Há necessidade de se avaliarem as reformas sanitárias rigorosa e permanentemente, sobretudo a incongruência do emprego de modelos normativos para avaliar sistemas de saúde baseados nos princípios de universalização, integralidade, humanização e gestão democrática. Além da demanda por estratégias e instrumentos de avaliação, a reforma sanitária brasileira requer a adoção de propostas e práticas avaliativas fundamentadas em outros paradigmas distintos daquele ainda hegemônico no âmbito da avaliação em saúde. Advoga-se pela utilização de modelos emergentes de avaliação, tais como os de corte qualitativo-participativo.A lo largo de los últimos años, se registra un interés creciente por propuestas evaluativas no tradicionales y más amplio en los movimientos de reforma sanitaria en curso en la América Latina. Este estudio tuvo por objetivo analizar potencialidades del enfoque evaluativo cualitativo-participativo frente al desafío de fortalecer las reformas sanitarias en la región, particularmente aquellas que se configuran como progresistas, como el caso brasilero. Hay necesidad de evaluar las reformas sanitarias de forma rigorosa y permanente, sobretodo la incongruencia del empleo de modelos normativos para evaluar sistemas de salud basados en los principios de universalización, integralidad, humanización y gestión democrática. Además de la demanda por estrategias e instrumentos de evaluación, la reforma sanitaria brasilera requiere la adopción de propuestas y prácticas evaluativas fundamentadas en otros paradigmas distintos de aquel hegemónico en el ámbito de la evaluación en salud. Se defiende la utilización de modelos emergentes de evaluación, tales como los de corte cualitativo-participativo.Throughout the last years, there has been a growing interest in ongoing assessment propos